Annual IMPACT Report Thanks for supporting the National Foundation for Ectodermal Dysplasias (NFED). Here’s how your support made a difference in 2018:
243 attended Family Conference in Portland, Oregon.
53 parents and children were awarded financial scholarships so that they enjoy our once-in-a-lifetime experience at Family Conference.
100
“So grateful we were able to attend our first Family Conference and connect with other families affected by ED.”
people from 30 states advocated for the Ensuring Lasting Smiles Act (ELSA) for NFED Adovcacy Day on Capitol Hill.
330
— Sheila Aumann
new affected individuals registered with the NFED.
2 new Dental Treatment Centers were added, bringing the total to 18 nationally. Welcome, Ozark Prosthodontics and The Dental College of Georgia at Augusta University.
185 family fundraisers raised $209,793 for the NFED.
“We’re going to keep educating our lawmakers about ectodermal dysplasias and Ensuring Lasting Smiles Act until it is passed.”
Empowering others. Together! The mission of the NFED is to empower and connect people touched by ectodermal dysplasias through education, support and research.
— Sam Gansebom 212
36
29
16
139
125 69
269
114
528 21
102
The NFED supports families and individuals affected by ectodermal dysplasias in all 50 states as well as 93 countries.
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247
102
53 88
322
142
16 17
36
36
13
344 72
310
143
179
107
42 220
118
70 66 505
116
17 126
216
154
83
40 190 21 75 190
226
70 338
8,100 + affected individuals served in the U.S. and worldwide since NFED’s inception.