TOGETHER WE DIDmore
20 24 Impact
BECAUSE OF YOU.
mission OUR
To empower and connect people touched by ectodermal dysplasias through education, support and
research.
“The NFED brings knowledge together with a really supportive and active community…The NFED is an organization that has the infrastructure to support and make all the change in the world for becoming more visible- making sure that we can all get the care that we need and especially the preventative care.”
- Mindy individual affected by incontinentia pigmenti (IP)
a word
From Our Executive Director & Board President
As we reflect on 2024, our hearts are filled with gratitude and inspiration. This past year brought unforgettable moments that remind us why we do this work.
We saw children who once hid their smiles now beaming with confidence. Two mothers at our Family Conference shared an embrace—no words needed, just the deep understanding of a shared journey. Families bravely urged lawmakers to break down insurance barriers. A mother’s heartfelt plea moved scientists to turn her son’s pain into progress toward a treatment.
Numbers and programs matter, but it’s the people behind them who tell the true story of the National Foundation for Ectodermal Dysplasias (NFED). In these pages, you’ll read about lives changed, challenges faced, and victories won—big and small—because of your support.
Our NFED family grew in extraordinary ways. A record number of new individuals reached out for help — a 29% increase from the previous year — proving our resources are needed more than ever. Our reach extended to individuals in 121 countries, and we worked to meet the diverse needs of our global community. No matter where they live, families share common concerns: finding the right treatments, getting accurate information, and holding onto hope. And that’s exactly what we provide.
To meet these growing needs, our Board of Directors and staff developed a strategic plan to focus our efforts and maximize impact. We invested in additional staff and prepared for the future by creating a leadership transition plan as Executive Director Mary Fete prepares to retire later this year.
Faithful to our mission, we expanded education, support, and research initiatives while keeping the personal, heartfelt approach that defines the NFED. Families gained access to new mental health resources and shared insights on what they need next. Scientists advanced our research efforts, including a groundbreaking study that established prevalence rates for seven types of ectodermal dysplasias. We hosted a conference dedicated to finding treatments for severe wounds and helped families learn about life-changing advancements in the Edelife Clinical Trial for x-linked hypohidrotic ectodermal dysplasia (XLHED).
None of this would be possible without you. Your generosity fuels our work and turns dreams into reality. Thank you for standing with us, believing in a brighter future, and making a difference in the lives of individuals, families, and friends affected by ectodermal dysplasias.
With gratitude,
Mary Fete
Karl Nelsen President of the Board
LOOKING BACK
What we accomplished because of you
We supported more individuals and families.
We sent 437 First Connect packets to people reaching out for the first time!
We made bold moves in research and treatment.
We led a global wound healing conference, started research partnerships for incontinentia pigmenti (IP), added expert advisors and researchers, and carved new paths through our Edelife Clinical Trial for XLHED.
We got real numbers on ectodermal dysplasias.
A new prevalence study helped us raise awareness, secure funding, and affirm that every person affected deserves dignity, respect, and lasting solutions.
We grew our team to grow our impact. New staff and a smarter structure helped us serve families better, support research, and sustain essential programs.
We stood strong on Capitol Hill. Families showed up in force to share their stories. Even without a bill, your presence had power and made a difference.
We nurtured our community through personal connections and stories. Through phone calls, support groups, social media, and visits, we helped people feel seen, heard, and truly part of a caring community.
We empowered families with tools and knowledge. From a new dozens of educational articles and stories, we gave families the resources they needed.
ACCESS THE SCHOOL ADVOCACY TOOLKIT
“When Maddie entered into sixth grade, she felt super happy with her new in-progress smile, so much so that in her school picture she shared a very toothy smilefirst ever!”
Beth, Maddie’s Mother
M A D D I E dental treatment
treatment
A Great Dental Team makes all the difference!
Maddie was diagnosed with ectodermal dysplasia at age two. She had most of her baby teeth, but they were widely spaced and conical. X-rays showed she had only two adult teeth.
Maddie was curious about her unique teeth and wondered if the tooth fairy would visit, but she was hesitant to try treatments like bonding or dentures.
As she finished fifth grade, Maddie decided she wanted to change her smile before starting middle school.
Through the NFED’s network, Maddie was connected to trusted pediatric dentists. With bonding and Invisalign braces, she entered sixth grade proudly showing her first big smile in her school picture!
Maddie’s journey isn’t over, but thanks to the NFED community and caring dentists, what once felt overwhelming is now a manageable path forward.
education and suppor
A Stronger, More Connected Community
In 2024, we celebrated a significant milestone with 437 new individuals registering with the NFED, adding 98 new families.
This growth reflects a rising awareness of ectodermal dysplasias, allowing us to reach more people, connect families with resources, and provide vital information about the condition.
As our community expands, we can have a greater impact on families and health care providers alike.
A key achievement this year was enhancing our emotional support services. To better understand our community’s needs, we conducted surveys and used the data to improve and refine our offerings.
One highlight was partnering with the Canadian Ectodermal Dysplasia Syndromes Association (CEDSA) and Global Genes to launch the Wellness4Rare program, a unique digital service that delivers daily wellness messages to families coping with the emotional strain of living with a rare disease.
Beyond emotional support, we continued offering financial assistance through our Treatment Assistance Program, helping families access the care and services they need.
Whether it’s a dental stipend, cooling vest, or genetic testing, we are committed to removing financial barriers and ensuring that every individual has access to the care they deserve.
support
This year, demand for these programs increased, but so did the generosity of our donors, allowing us to continue to provide these crucial resources.
Additionally, we made strides in strengthening our young adult community. A phone call with Jeremy (name changed for privacy), a 20-something who had struggled for years with limited understanding of his condition, served as a poignant reminder of the importance of connection.
After finding the NFED on social media, he discovered a supportive network that shared his experiences, marking a transformative moment in his journey.
Our work is fundamentally about people. It’s about the families we serve, the young adults who find a place to belong, and the countless ways our donors help sustain our efforts.
None of this would be possible without your generosity and commitment.
Thank you for helping us make meaningful change and growing our impact.
Together, we are building a stronger, more connected community that provides lasting support and understanding—one individual and one family at a time.
advocacy
How We Advocated...
Advocacy at the NFED extends beyond traditional policy work to support individuals with ectodermal dysplasias in every setting—classrooms, communities, and Capitol Hill. In 2024, we deepened our commitment to empower families to speak up for themselves every day.
Sixty-three families used the NFED’s School Packet to equip teachers with tools to create inclusive learning environments. We also amplified our stories at conferences and events globally, raising awareness and driving change.
The Stand Together Advocacy Conference (STAC) in Washington, D.C., brought together 254 individuals, caregivers, and allies representing 35 states to explore how advocacy happens in everyday moments— at school, work, or medical appointments.
It feels satisfying to help an important cause...[Volunteering has] made me a better citizen by getting involved and a better father by involving my children to help better their future.
-Jordan, volunteer advocate whose daughters are affected by HED
We also continued pushing for the passage of the Ensuring Lasting Smiles Act (ELSA) in the United States, hopeful that the day is imminent for health insurance companies to cover medically necessary services resulting from congenital anomalies.
Advocacy doesn’t have to be big to be meaningful. It starts with knowing your worth, sharing your story, and asking for change. Together, the NFED community is building a culture where every voice counts, and every action matters—every single day.
research
How We Advanced Research...
Research remained a top priority for the NFED in 2024, with a strong focus on finding answers and treatments for complex wounds that affect individuals with p63 syndromes.
One of the organization’s proudest achievements was hosting the groundbreaking Wound Healing Conference at Children’s Hospital of Philadelphia. Nearly 40 experts from across the country and around the world— dermatologists, wound care specialists, dentists, and researchers—gathered to explore new ways to treat and heal chronic wounds. Their collaboration set the stage for real progress and gave families hope for better days ahead.
The NFED also laid the groundwork for the 2025 Incontinentia Pigmenti (IP) Conference: Translating Discovery to Therapy. Recognizing a lack of information and research around IP, the organization worked to connect with researchers and providers committed to understanding and helping. By building excitement and sharing
knowledge, it is opening doors for future research and better care for those living with IP.
In a major step forward, the NFED funded and laid the foundation for an innovative wound healing research study using a mobile app. Once initiated, families will track wound healing in real time by uploading photos every two weeks.
This groundbreaking project will help researchers understand which treatments work, why wounds heal—or don’t—and how geography, climate, and other factors play a role. The data collected will help shape future care and, ultimately, improve lives.
These efforts are about more than research. They’re about people—listening, learning, and moving forward together with purpose and heart.
TOGETHER
OUR STORIES MAKE US STRONGER
We stand together
Alex and Alexa’s Story
The Stand Together Advocacy Conference (STAC) was more than an event—it was a powerful gathering of families, advocates, and partners united by a shared mission. This year, 254 attendees, including 65 children, traveled from 35 states to Washington, D.C., to champion the Ensuring Lasting Smiles Act (ELSA). With the support of six partner organizations, our NFED family stood together, ready to make a difference.
For Alex and Alexa, the journey to the conference began with an unexpected discovery. Excitedly awaiting their first child, routine genetic testing revealed that their baby carried the mutated WNT10A gene which causes ectodermal dysplasia. They had never heard of the condition before, but they immediately sought to learn everything they could. Their search led them to the NFED, where they discovered the impact of ectodermal dysplasias. They found out that their child would likely be born without adult teeth and insurance would likely not pay for the treatment.
Determined to take action, Alex and Alexa traveled from Hawaii to Washington, D.C., for the conference. They wanted to meet other families, learn from experts, and advocate for their child’s future. Co-chairs of our Family Advocacy Committee, Becky
Abbott and Kevin Koser, prepared every advocate to share their personal stories with lawmakers. On Advocacy Day, they joined fellow NFED advocates, standing shoulder to shoulder on Capitol Hill. Alex and Alexa’s voices became part of a powerful chorus calling for change.
As 159 legislative meetings unfolded, our advocates painted a vivid picture of the barriers to treatment and the urgent need for ELSA. On the steps of the U.S. Capitol, a sea of teal t-shirts symbolized the determination of our community. Every handshake, every shared story, and every moment of connection strengthened our collective resolve.
Alex and Alexa came seeking answers but left with so much more—a community, a mission, and the knowledge that they were not alone. Their story is just one of many, reminding us why we fight for ELSA and why we will never stop until every child has access to the care they deserve.
Together, we stand.
Together, we advocate.
Together, we make change happen.
research conference
We Brought A Global Research Community Together...
Last October, 40 experts from four countries gathered at the NFED’s Complex Wounds in Ectodermal Dysplasias Conference at the Children’s Hospital of Philadelphia (CHOP). Co-hosted by Dr. Eric C. Liao and Dr. Maranke I. Koster, the twoday event sparked critical discussions on improving and preventing skin erosions in individuals with ectodermal dysplasias. But beyond research, this conference was about people, like Ryan.
When Ryan was born in 1998, his parents never imagined their journey would become a beacon of hope for others.
Diagnosed with ankyloblepharonectodermal defects-cleft lip and/or palate (AEC) syndrome at two days old, Ryan faced a future filled with uncertainty. With
70% of his skin eroded, his family felt lost. “We were scared and devastated,” his mother, Ruth, recalled. But the NFED stepped in, helping to build a team of experts who developed a life-changing treatment protocol.
More than 25 years later, Ryan and Ruth stood before researchers, sharing their story and inspiring the next generation of breakthroughs.
“The
Wound Healing Conference was a remarkable collaborative effort,” said NFED Executive Director Mary Fete. “It’s an honor to unite professionals committed to changing lives.”
I was blown away. It was a truly special, even overwhelming, experience. It makes you feel like there’s good people in the world!
-Ruth Geismar, on the NFED Complex Wounds Conference
This conference was made possible through the generosity of Bruce and Alice Geismar, who have championed NFED’s research for more than 20 years, and Oracle, whose commitment to leveraging data for social impact fuels progress.
As the event concluded, Ruth embraced researcher Dr. Daniela Di Girolamo, tears in both their eyes. “She was so moved by Ryan’s story,” Ruth said. “It was a powerful moment of connection.”
Through collaboration, dedication, and unwavering donor support, the NFED is forging a future where people like Ryan no longer have to suffer. The work is not easy, but together, we are making a difference.
Emily’s Advocacy Story
In 2024, the NFED continued our unwavering commitment to passing ELSA, a bipartisan, bicameral federal bill aimed at ensuring insurance coverage for medically necessary treatments resulting from congenital anomalies.
While the legislative journey had its highs and lows, the dedication and resilience of our community shone brightly.
Although the bill did not pass in 2024, it has gained increasingly significant bipartisan support––marking new milestones that are worth celebrating!
In addition to our remarkable STAC held in Washington, D.C., advocates took 30,987 actions using our advocacy tool to reach out to U.S. members of Congress. We also hit a new high of 1,142 registered NFED advocates committed to taking action to pass the bill.
It was an especially historic year for Emily, a 14-year-old advocate from Alaska. Born with
hypohidrotic ectodermal dysplasia (HED), Emily has faced challenges such as missing teeth, the inability to sweat, and thin hair.
Her journey with the NFED began at age seven when she started advocating for ELSA. Since then, Emily and her parents have advocated for ELSA in seven NFED events, where she’s gained the public speaking skills and confidence to share her story on national platforms.
In November, Emily’s advocacy, hard work and studying helped her win the National Civics Bee Championship in Washington, D.C., earning a $100,000 college scholarship.
Her essay and speeches highlighted her personal advocacy experience and the importance of ELSA.
Her achievements not only advance our mission, but also inspire others to share their experiences and advocate for change. As we continue our efforts to pass
The topic of my essay really kind of gave me a leg up over my other fellow contestants because a lot of the contestants were talking about things that they would do. But I was talking about things that I have done and things that I am doing.
-Emily, on her role as an advocate
ELSA, stories like Emily’s remind us of the power of personal stories and the collective strength of our NFED community.
Our team of dedicated staff and volunteers have been working tirelessly to reintroduce the bill in 2025 with new co-sponsors in the 119th Congress. Passing a federal law, especially a healthcare-related one, requires immense effort––but we can do this!
We are deeply grateful to everyone who continues to support this legislation. On behalf of the NFED and our Family Advocacy Committee, we thank our bill leads, ELSA’s supporting organizations, the state leads, advocacy donors and each and every one of you who advocate and share your stories.
Together, we will succeed!
clinical trial
Jack’s Life-Changing Edelife Story
At the heart of every research breakthrough are the people who make it possible— families, scientists, and supporters like you. The Edelife Clinical Trial for x-linked hypohidrotic ectodermal dysplasia (XLHED) continued its research in 2024. By the end of the year, the number of babies treated in the trial had grown to 10, bringing us closer to the goal of 20 participants and analyzing the results.
XLHED can make it difficult for people affected to sweat, develop teeth, and grow hair. Respiratory issues and a lack of salivary glands are also challenges. But, for the first time, a potential treatment could improve some of those symptoms before birth. The Edelife Clinical Trial is testing a groundbreaking therapy that may prevent some of these challenges entirely.
The trial seeks to confirm early research findings in which six boys who received the
treatment are sweating normally and have normal meibomian and salivary glands. It’s incredible!
The NFED and its families have been at the center of this XLHED research journey for decades. Parents like Elizabeth, bravely participated in the clinical trial.
Elizabeth said she always knew she would participate in the Edelife Clinical Trial should her unborn child be a boy affected by XLHED. She was the third generation in her family to have the gene. She saw firsthand the challenges her loved ones faced not being able to sweat. She and her husband, John, enrolled in Edelife and their son, Jack, received the treatment before birth.
“It’s cool to be a part of XLHED research history,” Elizabeth said. “I think we were the second participants in the trial in the U.S. and he was the eighth boy in the world to
receive the treatment. It’s super cool, and that’s something I look forward to sharing with him when he’s older. I hope he understands how special that is. It’s something to be proud of and not try to hide about. It’s awesome.”
Your support made this clinical trial possible. Donations helped us educate families, connect them with the trial, and advocate for continued research. The NFED ensured the patient voice was heard every step of the way.
Thanks to you, we are closer than ever to generations of XLHED families having a life-changing treatment option!
We invite you to learn more about XLHED Research Success and the Power of Family Participation
Because of you, lives are being enriched. Your kindness and generosity helped individuals and families receive the care, support, and answers they need. Throughout the year, we shared opportunities to give and to make a difference—and you showed up. Every gift—big or small—helped provide vital education, research, treatment, advocacy, and so much more.
1,193
Of funds go directly to program related expenses
15
“As
a family, we knew early on that we wanted to be part of something bigger—to contribute in a way that made a lasting impact. The NFED accomplishes so much with a small budget, and by giving monthly, we can help sustain their incredible work. It’s our way of showing that we believe in the mission of the NFED, and we want to see it thrive.” –George, a Smile Maker (monthly donor), individual affected by an unknown type of ectodermal dysplasia
$4,674,445
“The NFED made me feel like a normal person and made me meet people who have changed my life for the better... The NFED is life-saving.”
- Cameron, individual affected by Goltz syndrome
‘ whats next
At the NFED, we believe every individual and family deserves support, care, and a sense of belonging. Our work is inspired by real stories of families who find hope and healing through our programs.
As we look ahead to the next 12 months, we have set EIGHT CLEAR GOALS to deepen our impact and strengthen our community. Each goal is designed to support lifechanging programs while keeping people at the heart of everything we do.
LOOKING FORWARD
Here’s what we’re striving to achieve in the next couple of years...
Register 300 Attendees for Our Family Conference
The conference is a place to learn, connect, and belong. We aim to welcome families and increase funding for the event to make it more affordable for all.
Convene Additional Research Conferences
Bringing together experts and advocates will spark new ideas and speed up discoveries for better treatments.
Pass the Ensuring Lasting Smiles Act
We are committed to advocating for this important legislation to make essential treatments more affordable and accessible.
Grow Our Database to 11,600 Individuals
Expanding our community means connecting more families with the support and resources they need.
Grow Treatment Assistance Program & Dental Treatment Centers
By expanding these services, we help remove barriers to to vital oral healthcare.
Add New Articles to Our Resource Library
These articles will provide clear, useful information that empower families to understand and manage the symptoms of ectodermal dysplasias.
Establish a National Patient Registry
A robust registry will help us track essential information and connect patients with research opportunities.
Sustain a $1.5 Million Budget by the End of 2026
With these funds, we can expand our services and ensure every family receives the resources they deserve.
the future
• Become a Smile Maker
Give monthly to provide steady, reliable support for families.
• Share Your Story
Inspire others by sharing your journey with ectodermal dysplasias.
• Raise Awareness
Tell others about the NFED and help raise awareness through the stories of our community.
• Connect with Our Community
Sign up for our newsletter and engage with us on social media.
• Attend an Event
Participate in fundraisers, awareness days, and community gatherings.
• Start a Fundraiser
Rally your friends and family to support the NFED in creative ways.
• Be an Advocate
Help influence policies that improve access to care and resources for those affected by ectodermal dysplasias.
• Volunteer
Offer your time and talents to help support NFED’s programs and events.
mission OUR REIMAGINED
Together, we enrich the lives of people affected by ectodermal dysplasias by fostering community, providing education and support, and driving advocacy and groundbreaking research—creating a brighter future for all.
2024 Scientific Advisory Council
CHAIRMAN
Clark Stanford, D.D.S., Ph.D., M.H.A.
University of Iowa College of Dentistry and Dental Clinics
VICE-CHAIR
Timothy J. Fete, Sr., M.D., M.P.H.
Professor Emeritus, University of Missouri School of Medicine
LIAISON FROM THE BOARD OF DIRECTORS
J. Timothy Wright, D.D.S., M.S
University of North Carolina Chapel Hill
MEMBERS
Lauren Blieden, M.D.
Cullen Eye Institute
Clayton Butcher, M.D.
University of Missouri Internal Medicine and Pediatrics – Woodrail
Cynthia Marie Carver DeKlotz, M.D. Janssen Research & Development –Immunology
Dorothy Katherine Grange, M.D. Saint Louis Children’s Hospital
Brandon Hopkins, M.D.
Cleveland Clinic Head and Neck Institute
Maranke I. Koster, Ph.D. East Carolina University
Richard A. Lewis, M.D., M.S. Baylor College of Medicine
Pilar L. Magoulas, M.S., CGC
Baylor College of Medicine
April Adams, MD, MS, FACOG, FACMG
Baylor College of Medicine
Patricia Marik, Psy.D., M.A. Medical College of Wisconsin
Anubhav Mathur, M.D., Ph.D. University of California – San Francisco
Beau D. Meyer, D.D.S., M.P.H. The Ohio State University
Elaine C. Siegfried, M.D.
Saint Louis University School of Medicine
Raj Sindwani, M.D., FACS, FRCS Cleveland Clinic, Head and Neck Institute
Ad Hoc Members
Karl Nelsen, PA-C, M.S. NFED Family Member
Anil Vora
NFED Family Member
2024 Patient Care Council
Julie Claeys
NFED Family Member
Timothy J. Fete, Sr., M.D., M.P.H.
Professor Emeritus, University of Missouri School of Medicine
Lonnie Johnson, D.D.S., Ph.D.
University of Colorado-Anschutz
Campus School of Dental Medicine
Lisa Knobloch, D.D.S., M.S.
The Ohio State University College of Dentistry
Jonathan Korostoff, D.M.D., Ph.D University of Pennsylvania School of Dental Medicine
Dr. Rick Mediavilla, D.D.S., F.A.G.D. University of Colorado-Anschutz Campus School of Dental Medicine
Beau D. Meyer, D.D.S., M.P.H.
The Ohio State University
2024 Board of Directors
Karl Nelsen, PA-C, M.S. President
Anil Vora
Vice President
Marianne Vermeer
Treasurer
Keith Throm
Secretary
Krista C. Basile
Jack Kriz
Charles Richter
Soren Roe
Richard Stratz
Jeanne Wang
Bill Wilkinson
J. Timothy Wright, D.D.S., M.S.
Ruth Geismar
Ad Hoc Advisor
THANK YOU volunteers
“I dedicate my time to supporting the NFED because I believe it’s an extraordinary cause. Witnessing individuals from diverse backgrounds come together to share resources and stories about these rare disorders is incredible. Diagnoses like ectodermal dysplasias can feel isolating, but the NFED fosters a strong sense of community for those affected.”
- Rylee, NFED Volunteer and Dermatologist
our2025 staff
Mary Fete, M.S.N., R.N., C.C.M. Executive Director
Becky Abbott, M.P.H. Director, Treatment and Research Advocaacy
Kelley Atchison Director, Family and Community Programs
Jodi Edgar Reinhardt Communications Specialist
Kayla Hollenkamp Administrative Assistant
Greg Klimovitz Director, Development and Communications
Isabella Redding Development Coordinator
Andi Kezh Communications Coordinator
SPONSOR SPOTLIGHTS thanks
s to our sponsors
We extend our heartfelt thanks to our organizational, corporate, and major sponsors. Your generous support brings hope to individuals and families affected by ectodermal dysplasias. With you by our side, we build a caring community, offer life-changing programs and resources, and drive vital research. Your partnership lights the way to a brighter future— one smile at a time.
Thank you for making all we do possible.
Bilek Charitable Foundation
Louis & Gladyce Foster Family Foundation
Moss Family Foundation
The Hubbard Broadcasting Foundation
Louis J. and June E. Kay Foundation
thank you
Organizations and Corporations
Bethany Baptist Church, Delta Theta Tau Sorority Inc., Delta Theta Tau Sorority Inc. - Alpha Chapter, Delta Theta Tau Sorority Inc. - Alpha Delta Chapter, Delta Theta Tau Sorority Inc. - Beta Xi Chapter, Delta Theta Tau Sorority Inc. - Eta Beta Chapter, Delta Theta Tau Sorority Inc. - Eta Kappa Chapter, Delta Theta Tau Sorority Inc. - Eta Lambda Chapter, Delta Theta Tau Sorority Inc. - Gamma Pi Chapter, Delta Theta Tau Sorority Inc. - Gamma Upsilon Chapter, Delta Theta Tau Sorority Inc. - Iota Chi Chapter, Delta Theta Tau Sorority Inc. - Iota Mu Chapter, Delta Theta Tau Sorority Inc. - Kappa Omicron Chapter, Delta Theta Tau Sorority Inc. - Kappa Rho Chapter, Delta Theta Tau Sorority Inc. - Lambda Alpha Chapter, Delta Theta Tau Sorority Inc. - Lambda Epsilon Chapter, Delta Theta Tau Sorority Inc. - Lambda Eta Chapter, Delta Theta Tau Sorority Inc. - Lambda Nu Chapter, Delta Theta Tau Sorority Inc. - Lambda Theta Chapter, Delta Theta Tau Sorority Inc.Omicron Alpha Chapter, Delta Theta Tau Sorority Inc. - Omicron Omega Chapter, Delta Theta Tau Sorority Inc. - Omicron Pi Chapter, Delta Theta Tau Sorority Inc. - Omicron Psi Chapter, Delta Theta Tau Sorority Inc. - Past National Presidents, Delta Theta Tau Sorority Inc. - Phi Chapter, Delta Theta Tau Sorority Inc. - Pi Alpha Chapter, Delta Theta Tau Sorority Inc. - Pi Beta Chapter, Delta Theta Tau Sorority Inc. - Theta Mu Chapter, Delta Theta Tau Sorority Inc. - Valparaiso Chapter, Delta Theta Tau Sorority Inc. - Xi Chapter, Delta Theta Tau Sorority Inc. - Xi Phi Chapter, Delta Theta Tau Sorority Inc.Zeta Chi Chapter, Delta Theta Tau Sorority Inc. - Zeta Lambda Chapter, Delta Theta Tau Sorority Inc. - Zeta Upsilon Chapter, Delta Theta Tau Sorority Inc. - Zeta Zeta Chapter, EspeRare, Mascoutah Tuesday Women’s Club, Plandome Heights Women’s Club, St. Clair County Intergovernmental Grants Department, and The Continuum Group at Morgan Stanley, Crane Dental Laboratory, Ozark Prosthodontics, Operation Smile, Straumann USA, LLC, Pierre Fabre, Oracle, Global Genes / Rare Project.
Foundations
Al and Peggy Dematteis Family Foundation, Alexander Charitable Foundation, Inc., Bilek Charitable Foundation, Kate W. Cassidy Foundation, Louis J. and June E. Kay Foundation, Medtronic Foundation, Moss Family Foundation, Nasdaq Foundation, Schusterman Family Philanthropies, St. Louis Community Foundation, T.D. Stranger Family Foundation, The Hubbard Broadcasting Foundation, The Louis & Gladyce Foster Family Foundation, and Wells Fargo Community Support Campaign.
Donor Directed Partners
Allstate Foundation, America’s Charities, Bemis Company Foundation/ Amcor Foundation, Charities Aid Foundation of America (CAF), Combined Federal Campaign, Frontstream, The Benevity Community Impact Fund, The UBS Matching Gift Program, United Way of Bartholomew County, Inc., United Way of Greater Atlanta, United Way of the Quad Cities, and YourCause Employee Giving/United Way Campaign.
