2025 IMF Regional Community Workshop Waltham Slides

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Scientific Advisory Board

S. Vincent Rajkumar, MD IMF Board Chair

Thomas Martin, MD

UCSF, Helen Diller Family Comprehensive Cancer Center

Wee Joo Chng, MD

National University of Singapore

María-Victoria Mateos, MD, PhD   University of Salamanca

Vania Hungria, MD, PhD Santa Casa de São Paulo

Joseph Mikhael, MD, MEd, FRCPC, FACP IMF Chief Medical Officer

Sigurður Yngvi Kristinsson, MD, PhD University of Iceland

Philippe Moreau, MD University Hospital of Nantes

Shaji Kumar, MD Mayo Clinic

NIkhil Munshi, MD Dana-Farber Cancer Institute

Jesús San Miguel, MD, PhD   University of Navarra

Sagar Lonial, MD, FACP

Winship Cancer Institute, Emory University

Saad Zafar Usmani, MD, MBA, FACP, FASCO

Memorial Sloan Kettering Cancer Center

The IMF Support Group Team is Here

For You!

Shared Experiences Help to Better Understand the Myeloma Journey

• Support Groups empower patients & care partners with information, insight & hope

• The IMF provides educational support to a network of over 150 myeloma specific groups

150+ US Support Groups

Over 200 Support Group Visits/year

 Boston-Dana Farber, MA

 Meets virtually on the 2nd Wednesday of each month at 5:30 PM

 Prospect, CT

 Meets virtually, with quarterly in-person on the 2nd Tuesday of each month at 6 PM

 Greater Rhode Island

 Meets hybrid on the 1st Wednesday of each month at 6 PM

 Manchester, NH

 Meets virtually on the 3rd Wednesday of each month at 6 PM

 Cape Cod, MA

 Meets in-person on the 2nd Tuesday of each month at 3 PM

 Central MA

 Meets hybrid on the 2nd Monday of each month at 6 PM

 UConn (Farmington), CT

 Meets virtual on the 1st Thursday of each month at 3:30 PM

 Fairfield, CT

 Meets virtually on the 1st Tuesday of each month at 7 PM

 Portland, ME

 Meets virtually on the 4th Wednesday of each month at 6 PM

 Burlington, VT

 Meets virtually on the 3rd Tuesday of each month at 5 PM

Special Interest Groups

Special interest groups are designed as a supplemental support for specific populations of patients, in addition to their local Support Groups

 MM Families

 Founded in 2021

 For patients & care partners with young children

 Las Voces de Mieloma

 Founded in 2022

 For Spanish speaking patients & care partners

 Living Solo & Strong

 Founded in 2022

 For patients without a care partner

Click here for more inf

 Smolder Bolder

 Founded in 2023

 For smoldering myeloma patients & care partners

 Veterans SIG

 Founded in 2025

 For those who served our country

 High Risk Multiple Myeloma

 Founded in 2023

 For high-risk myeloma patients & care partners

 Care Partners Only

 Founded in 2024

 For myeloma care partners only

CLINICAL TRIALS MATCHING ENGINE

Seamlessly matching patients to the latest clinical trials.

• Discover clinical trials tailored to your myeloma journey with the IMF.

• Filter by diagnosis, treatment, and location to find the best fit for you.

Clinical Trials Matching Engine Usage

WRITTEN EDUCATION

Live Patient Education

& Family Seminars

• Boca Raton, FL – March 14 – 15

• Philadelphia, PA – May 2 – 3

• Los Angeles, CA – August 15 – 16

• Chicago, IL – October 3 – 4 Myeloma Community Workshops

Virtual-March 4-replay on myeloma.org • San Mateo, CA - March 29 • Atlanta, GA - April 5 • Edina, MN - April 26 • Denver, CO - June 21 • Virtual – July 29 – replay on myeloma.org

Seattle, WA - August 9

Waltham, MA - September 27

Raleigh-Durham, NC - November 15

Virtual – November 18

1. Ensure Access to Care: We advocate to ensure all myeloma patients have equitable, comprehensive, patient-centered care without insurance barriers that limit options or delay treatment initiation.

2. Eliminate Financial Barriers: We advocate for policies that allow myeloma patients access to treatments and supportive care interventions without facing financial hardships.

3. Advance Myeloma Research: We advocate for annual appropriations funding for myeloma research and the advancement of clinical trial eligibility and research protocols that ensure representation from diverse populations.

The IMF Grassroots Advocacy Program is multi-faceted and growing

• Advocacy Training & Leadership Development

• Policy and Legislative Education

• Grassroots Campaign Planning

• Health Policy Forums & Roundtables

• Advocacy Resource Development

• Storytelling and Personal Narratives

Scan for Upcoming Programs and Events!

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