Benefits/ risks
Social society
+ to have the right express the needs of the patients, the voice of the patients To participate to the design of new solutions and treatment Awareness of general public To influence the policy makers, the industry and the reseach in a way that fit the patient’s needs
Competitiviness with other associations in the cluster Loose time and money Use the patients for gaining credibility and funds Disapointment of patients with high expectations for new treatments