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Frontmatter

The Sociology of Health & Illness

Critical perspectives for 21st century Australia

Dedication

To our family for their support, and for our students in their commitment to pursuing the sociological imagination.

The Sociology of Health & Illness

Critical perspectives for 21st century Australia

Cook

Possamai-Inesedy

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Brief contents

Part 1 Theoretical foundations

Chapter 1 Health and illness as social issues 2

Chapter 2 Researching health and illness 32

Chapter 3 The Australian healthcare system 48

Part 2 Healthcare provision

Chapter 4 Choosing healthcare 68

Chapter 5 The therapeutic encounter 82

Chapter 6 Emotions 95

Chapter 7 Professions and professional identity 110

Part 3 Technology

Chapter 8 Medicalisation and biomedicalisation 128

Chapter 9 Digital health 143

Chapter 10 Medical tourism 160

Part 4 Social meanings and experiences of health and illness

Chapter 11 Indigenous health 178

Chapter 12 Mental health 197

Chapter 13 Ageing 214

Chapter 14 Disability 232

Chapter 15 Sexuality 247

Contents

Preface xii

Reviewers xiv

Guided Tour xv

About the authors xvii

Educator resources xxii

Part 1 Theoretical foundations 1

Chapter 1 Health and illness as social issues 2

The sociological approach 3

Sociological imagination 3

Social structure and agency 6

Social construction 7

Sociological approaches 8

The biomedical and social model of health 9

The biomedical model of health 9

The social model of health 11

Sociological approaches to health and illness 15

Consensus theory (structural functionalism) 16

Conflict theory 18

Feminism 20

Poststructuralism 23

Interactionism 24

Conclusion 28

Questions for review 29

Recommended resources 29

Recommended websites 29

References 29

Chapter 2 Researching health and illness 32

Reflections on methodology 34

The connection between the research question and method 35

Step 1: Identify the research topic 35

Step 2: Refine the research topic into a research question/s 35

Step 3: Determine what type of data is needed 35

Step 4: Determine the method that best collects that type of data 36

Step 5: Determine where you will collect the data 36

Step 6: Determine how you will analyse the data 36

The methodological framework 38

Ethnography 38

Visual arts-based inquiry 39

Evaluating qualitative research 40

Analysing qualitative data 41

Digital research 43

Conclusion 45

Questions for review 45

Recommended resources 46

Recommended websites 46

References 46

Chapter 3 The Australian healthcare system 48

Fragmentation of the Australian healthcare system 49

Private and public healthcare 51

What is the difference between public, private, forprofit and not-for-profit healthcare? 52

What are the differences between public and private healthcare? 52

Development of the Australian healthcare system 54

The current context: A mix of private and public services

57

The hospitals 58

Aged care 60

General practice clinics and diagnostic centres 62

Conclusion 63

Questions for review 63

Recommended resources 63

Recommended websites 63

References 64

Part 2 Healthcare provision 67

Chapter 4 Choosing healthcare 68

Australia’s contemporary healthcare system and the rise of the private sector 68

Situating ‘choice’ within the contemporary Australian healthcare field 70

Influencing choice 71

News media representations of healthcare 71

The internet and social media 71

The imperative of choice 73

Valuing the idea of choice and its perceived link to quality 75

Knowledge, trust and healthcare choices 76

System knowledge and the unequal capacity to choose 78

Conclusion 79

Questions for review 79

Recommended resources 79

Recommended websites 80

References 80

Chapter 5 The therapeutic encounter 82

What is a therapeutic encounter? 82

How does power shape the therapeutic encounter? 85

Evidence and experience in the therapeutic encounter 87

Social inequalities in the therapeutic encounter 89

Care as relational in the therapeutic encounter 89

Conclusion 91

Questions for review 92

Recommended resources 92

Recommended websites 92

References 93

Chapter 6 Emotions 95

Conceptualising emotions 96

Emotions in history 97

Emotions in psychology 98

Emotions in sociology 98

Emotions and (mental) health 101

Researching health and emotions 102

Critiquing the ‘happiness industry’ 103

Emotions in healthcare 104

Patients and carers 104

Nursing and medicine 104

Healthcare hierarchies 105

Interprofessional care 106

Conclusion 106

Questions for review 107

Recommended resources 107

Recommended websites 107

References 107

Chapter 7 Professions and professional identity 110

What is a profession? 111

Functionalist explanations 113

Trait approaches 114

Interactionism – what professions do 116

Symbolic interactionism 117

Boundary work 118

Power perspectives 120

Medical dominance 121

Conclusion 123

Questions for review 124

Recommended resources 124

Recommended websites 124

References 124

Part 3 Technology 127

Chapter 8 Medicalisation and biomedicalisation 128

Medicalisation 129

Nuances 130

Criticisms of the concept of medicalisation 131

Biomedicalisation 132

What are the differences between medicalisation and biomedicalisation? 132

The five processes of biomedicalisation 134

Criticisms of the concept of biomedicalisation 134

Conclusion 139

Questions for review 140

Recommended resources 140

Recommended websites 140

References 141

Chapter 9 Digital health 143

The datafication of health 144

Characteristics of ‘datafied’ health 144

Digital health technology as a promise and solution 146

Digital health: Reframing patients as ‘consumers’ 147

Precision medicine 148

Biomedical and wellness marketplaces 149

Health information online: Searching and sharing 150

Sharing health and illness online 150

Searching for health information 151

The next era of the web 152

Bodies, technology and digital media 153

Normativity and difference 154

The ethics of health information 155

Digital health futures 155

Hacking for health 156

Conclusion 157

Questions for review 158

Recommended resources 158

Recommended websites 158

References 158

Chapter 10 Medical tourism 160

What are health tourism and medical tourism? 161

The typology of medical tourism 163

The landscape of medical tourism 165

The size and scale of medical tourism 165

The business of medical tourism 166

Cosmetic surgery tourism 168

Stem cell tourism and ‘hope’ 168

Sociology of medical tourism 169

Neoliberalism and medical tourism 169

Healthcare choice and the ‘patient-consumer’ 170

Biological citizenship and medical tourism 172

Conclusion 173

Questions for review 174

Part 4

177

Recommended resources 174

Recommended websites 174

References 175

Social meanings and experiences of health and illness

Chapter 11 Indigenous health 178

Sociology and Indigenous health 179

A note on terminology, the authors and research 179

Sociologically imagining Indigenously 181

The global context of Indigenous ill-health 184

The health of First Nations people in Australia 186

Indigenous data sovereignty and ethics 188

Indigenous knowledge is empirical knowledge 192

Conclusion 192

Questions for review 193

Recommended resources 193

Recommended websites 194

References 194

Chapter 12 Mental health 197

The changing construction of aetiology and emergence of biological psychiatry 197

Sociological approaches to the study of mental health and illness 200

Social interactionism/labelling theories 200

Critical theories 203

Social constructionism 204

Mental health service delivery in Australia 205

Privatisation and integrated care 205

Achieving efficiencies 207

Risk management 208

Consumerism and consumer rights 209

Conclusion 211

Questions for review 211

Recommended resources 211

Recommended websites 211

References 212

Chapter 13 Ageing 214

Dimensions of ageing 215

Social and economic consequences of population

ageing 216

Social consequences 217

Economic consequences 218

Social determinants of health 219

Life course perspective 220

Strengths and limitations of the life course perspective 221

The health of older Australians 222

Measures of health 222

Physical health, function and disability 222

Disability among older Australians 223

Mental and emotional health 223

Attitudes to ageing 224

Attitudes and stereotypes 225

Ageism 225

Ageism in healthcare 226

Conclusion 228

Questions for review 228

Recommended resources 228

Recommended websites 229

References 229

Chapter 14 Disability 232

A note on terminology: ‘Persons with disabilities’ or ‘disabled people’ 233

What is disability: Can it be named? 234

Theories of disability, impairment and illness 236

Medicalisation, deviance and ableism 236

Citizenship and disability inequality 236

Social model of disability 237

Psycho-emotional disablism 237

Why might illness be considered different from disability and impairment? 238

Global understandings of disability: The struggle for personhood 239

What does personhood change? 240

Why personhood is necessary 240

How does personhood change the definition of disability? 241

What personhood means for persons with disability 241

Disability in Australia 242

Definitions in action: What do these definitions mean for everyday lives? 243

Conclusion 245

Questions for review 245

Recommended resources 245

Recommended websites 246

References 246

Chapter 15 Sexuality 247

A sociological history of sexual scripts 248

The social construction of sexual scripts 250

Discourses of sexuality and sex 251

Navigating stigma and marginalisation 253

Heteronormativity, patriarchy and power 255 Heteronormativity 257

Sexual health as public health 258

The internet: Navigating and negotiating sexuality online 260

Conclusion 262

Questions for review 262

Recommended resources 262

Recommended websites 263

References 263

Glossary 266

Index 274

Preface

The ideas and development of this text started many years ago. We were already working together on the Executive of the Australian Sociological Association (TASA), and shared an interest in developing a new sociology of health and illness text for the Australian context. Having listened to students and colleagues regarding what they were interested in, we took these ideas to inform the development of this text. In this way, we have been responding to identified needs. Part of our approach was to also include a diversity of Australian sociologists and social researchers spanning from early career to senior researchers, and to ensure each chapter was developed by a recognised or emerging expert in that area or field.

This is our first edition, and there are undoubtedly other topics or features we could include in future editions. Through ongoing conversations with colleagues as well as feedback from readers, we will look to expand this text with further developments in the sociology of health and illness.

In this first edition, we have a team of twenty-five scholars. Each of these authors is an active researcher and, in some cases, they are advocates and activists as well. This means the authors can draw on their expertise and experiences in ‘the field’, including their own research findings. For example, many of the case studies included in

each chapter are directly informed by their own scholarly research. Significantly, this research draws on the scholarship of international and Australian sociologists as well as scholarship in related fields such as anthropology, criminology, gender studies, public health, gerontology, cultural studies, political science, and science, technology and society (STS) studies. This is often complemented with data from national and international bodies such as the Australian Bureau of Statistics (ABS), Australian Institute of Health and Welfare (AIHW), Australian Federal Government Departments, the World Health Organization (WHO) and the United Nations (UN). In addition, each chapter has been peer reviewed during its development and finalisation.

Part 1 , Theoretical foundations, provides the necessary background information on health and illness in Australia, and what it means to think like a sociologist and to practise sociology, particularly as a sociologist in health and illness. Part 2 , Healthcare provision, covers how healthcare is delivered, the impacts this has, and what it means to be a healthcare professional. Part 3 , Technology, covers the role and influence of technology in healthcare provision and practices. Finally, Part 4 , Social meanings and experiences of health and illness, considers the meanings that individuals or population groups bring to understanding health and illness (or what is forced on them), as well as how they may experience health and illness.

Throughout the text, there are numerous features. Each chapter opens with Learning objectives that give direction on what can be

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