Tegan and Julie’s story
My daughter Tegan is the centre of our family and our world. She has a profound and multiple learning disability, but she’s just Tegan to us and we wouldn’t have her any other way. She can’t sit up, she is peg fed, and doesn’t use words to communicate. For her 13th birthday in January 2020 we had a massive celebration with over 200 people. When she was born the doctor said she wouldn’t survive the weekend so when she got to five, we were overjoyed and then when she got a little older we were gradually more and more relieved, but to get her to a teenager is like a weight has been lifted off our shoulders. What a joyful day that was! 41
