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January / February 2024
Disability Information Services by People with Disability Queensland Australia
Volume 1, Issue 116
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Proudly supported and printed by ToowoombaWhatsUp Regional in Council Disability
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WhatsUp
Highlights January/February 2024
06 09 10 14 26 32
Connected System of Supports
Navigators
Access and Assessment
Service Providers
NDIS Travel Allowance
My Community
Cover Page Bill Shorten MP Minister for the NDIS
Steven Paull JP (Qual) President Page 2
The Editor’s Desk 2023 Major NEWS Events King Charles was crowned King of the United Kingdom, Australia and other Commonwealth nations at an elaborate coronation on 6 May. Governor-General David Hurley, Prime Minister Anthony Albanese and musician Nick Cave were among the attendees on the big day. Days of frantic waiting ended in tragedy for the families of the five wealthy adventurers aboard the Titan submersible. The Titan lost contact with its mother ship, the Polar Prince, 1 hour and 45 minutes into its dive on Sunday, 18 June. An international search operation was quickly stood up — but after days of desperate searching, the US Coast Guard in Boston called a press conference to confirm a sad reality. Victorian Premier Daniel Andrews shocked the nation when he cancelled the state's plans to host the 2026 Commonwealth Games on 18 July, citing a massive cost blowout. Officials were left scrambling to find a yet-to-be-determined host city, and Victoria was forced to pay a $380 million bill for the cancellation. On 7 October, militant group Hamas attacked a music festival on the Jewish holiday of Sukkot. Israel formally declared war for the first time since 1973. Escalating conflict between the two sides has sparked public outcry and protests across the globe.
After a bruising campaign for Indigenous Australians, the nation rejected the addition of an Aboriginal and Torres Strait Islander Voice to the constitution in a referendum on October 14. The proposal was rejected nationally and by a majority in every state with the No vote garnering 60% of the turnout. Australia was gripped by the story of the mushroom meal that ended in three deaths in Victoria this winter. Erin Patterson is facing three charges of murder and two of attempted murder over the meal, with the case adjourned until 3 May. Optus customers were left furious following an outage on 8 November, which was not only an inconvenience but cost businesses thousands of dollars and put lives at risk. More than 10 million customers were affected across the country when one of Australia's largest telecommunication providers crashed, leaving people without phone service or access to the internet for at least nine hours. Three of Australia's Labor premiers announced their retirements in 2023. Mark McGowan announced plans to step down in March and Victoria's Dan Andrews retired in July. The last standing Australian premier elected pre-Covid pandemic, Queensland's Annastacia Palaszczuk retired on December 10 after eight years in the top job. The NDIS Review produced a 329 page report with 26 recommendations to be implemented over the next five years. Would like to take this opportunity to thank our many sponsors, writers and volunteers and our loyal readers for your valuable support and contributions in 2023.
Steven Paull
JP (Qual) President
WhatsUp in Disability
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WhatsUp The review was commissioned in 2022 amid various issues and complaints, including overpriced services, fraud and bureaucracy. The biggest concern, however, was the scheme's financial sustainability. The NDIS now has more than 630,000 participants and annual spending on it has grown to more than $35 billion, becoming the second most expensive federal government program after the aged pension. With the cost of the scheme projected to reach $97 billion by 2032-33, the federal government in April announced an annual growth target of 8 per cent to try to rein in costs. Annual spending is currently growing at around 14 per cent. It's worth noting the vast majority of the estimated 4.4 million Australians with disability are not on the NDIS. Creating more services outside the NDIS, including support for children with developmental delays, and hinging access on impairment instead of medical diagnosis, are among the key recommendations from a long-awaited review. The landmark report followed a year-long inquiry into the scheme, which was called over concerns the NDIS had become an "oasis in the desert" for people with disability and costs were growing at an unsustainable rate. The 329 page report made 26 recommendations to be implemented over the next five years and the 7 major items are included in this edition. NDIS markets are not like markets for other goods and services. Governments need to use a range of market tools to design and coordinate all NDIS markets. Coordination needs to take into account the specific needs of participants, providers, and the nature of supports being delivered.
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Here’s what our readers are saying about the NDIS Review It’s still a broken system if people like myself can’t afford the thousands of dollars it costs to get the disability diagnosed to get on to the NDIS to start with.
Dave The challenge I had and still have is the NDIS told me I am too old. The Aged Care says there is no money. I get rejected by my Aged Care Services for Deaf Alarms, and they over ride the Medical Profession, to save money. Phillip As someone who works in the industry I understand these are all complex problems. But lets take it back to the most simple solution of 'Nothing about us without us' a long held catch cry of people with disability. Let's focus and listen to the people this actually impacts; and look how to help people not just survive BUT thrive. Behind every statistic in this report is an actual person. B
Recommendations How will NDIS Review recommendations make a difference? The Panel made 26 recommendations. Underneath each recommendation there are supporting actions which outline the steps that need to be taken to implement the recommendations – there are 139 supporting actions in total. The Terms of Reference had three clear aims: 1. Put people with disability back at the centre of the NDIS 2. Restore trust, confidence and pride in the NDIS 3. Ensure the sustainability of the NDIS for future generations. The recommendations aim to:
• Create a connected system of supports for all people with disability. This includes Foundational Supports and better access to mainstream services
• Ensure people with disability and their families have more help to navigate the new system of support
• Ensure NDIS processes, especially for access and budget setting, are simpler, fairer and easier to navigate
• Ensure NDIS processes focus on the whole person and their support needs – not just their diagnosis
• Provide more support for decision making so people can have genuine choice and control
• Better support for all children with developmental concerns, delay and disability, and their families
• Improve the availability, diversity and quality of services
• Improve quality of services and ensure appropriate safeguards through better and risk-
proportionate regulation
• Secure the future sustainability of the NDIS by delivering better outcomes for people with disability with more responsive, efficient and costeffective ways of providing support.
Improve the Participant Experience The NDIS Review partly came about because many people with disability were reporting rather poor experiences of the NDIS. The NDIS Review has recommended a number of changes to the participant pathway, including: Access and Eligibility More consistent and robust methods for making eligibility decisions and measuring functional capacity and creating a new access form and guidance materials. Assessments Develop a new assessment process to better evaluate a person’s support needs. At the Press Club, Minister Shorten emphasised that this process would be very different from the Independent Assessments proposed by the last government. Assessments would be conducted by a Needs Assessor, who is a trained allied health professional, social worker, or has similar disability expertise. The Needs Assessor would be the funding decisionmaker. The assessments would not be time limited and participants would have an opportunity to provide input on the findings. Planning
• Setting budgets at a whole of plan level, rather than line-by-line
• Plans will be made of three components: flexible budget (based on assessments), home & living, and one-off assistive technology and capital
• Adopt a trust-based approach to oversight of how people use their budget. WhatsUp in Disability
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WhatsUp Connected System of Supports People with disability are still not fully included in Australian life. Many mainstream services – like catching a bus or going to a local school – are not accessible nor inclusive. Children and adults with disability are still excluded from community activities like sports.
new and different ways, and in collaboration with people with disability. It is also suggested that the recommendations happen over 5 years. The order of the change needed is very important.
For example, foundational supports must be in place before other changes can occur.
For people with disability who are not eligible for the NDIS there is often only limited support and it can be hard to find. The lack of inclusive support in local communities and inaccessible mainstream services pushes people to the NDIS, because there is nowhere else to go. People with disability and their families should know that support will be available – whether they are in the NDIS or not. To make this happen, all levels of governments need to work together to plan, govern, fund and operate a connected system of support for all people with disability. Governments must do more to make sure that mainstream services are accessible. Everyone with disability should have access to mainstream services and community activities, in the same way as other Australians do. There should be a much greater investment in foundational supports for all Australians with disability. The reforms are designed to work together. This will require governments to work in
The Panel’s Vision The NDIS should be one part of a strong connected system of supports for all people with disability. This should create a fairer and more inclusive Australia, help improve outcomes for all people with disability, not just NDIS participants, and reduce pressure on the NDIS. This connected system should support all people with disability, ensure inclusive and accessible services grounded in human rights and hold governments to account for action.
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Foundational Supports for all people with disability Whether your preferred metaphor is an oasis in the desert or the only lifeboat in the ocean, it's widely accepted that there’s a shortage of support available for people not eligible for the NDIS. Research from the Melbourne Disability Institute has recently found that the Information Linkages and Capacity Building (ILC) program spends the equivalent of $33 a year on people with disability outside the Scheme, which in 2023 supermarket prices is the equivalent of about 1 packet of pringles. Foundational supports would replace the ILC grants program, so that it is reliable and available more widely. Foundational supports are essential supports for all people with disability. Governments should therefore measure and evaluate outcomes and make changes so that activities and programs respond to changing needs and circumstances. Foundational supports should also meet the diverse needs of individuals and of particular community groups, including First Nations, Culturally and Linguistically Diverse, LGBTQI+ and people with disability who live in rural or remote areas
There will be two types of foundational supports: General Things that all people with disability can access, including Information, advice and capacity building, systemic advocacy, peer support, disability employment services. Targeted For people with lower-level support needs who are not eligible for NDIS. Supports can include:
• Home and community care • Aids and equipment • Psychosocial supports
• Early intervention for kids with developmental delays
• Support for young people navigating key life transitions
• Support navigating all these supports National Cabinet reached a landmark agreement that will see the Commonwealth, states and territories all pitch in to fund foundational supports. Shorten described it as an example of political systems actually working.
The Panel’s Vision We want there to be a connected system of support for all people with disability. This connected system should include accessible and inclusive mainstream services, foundational supports, support from a navigator and individual support funded through the NDIS. Foundational support is a new term we are introducing. Foundational supports are foundational to a good life. They should improve and expand current programs and activities funded through the Information Linkages and Capacity Building (ILC) grants program. Foundational supports will be general – for all people with disability, and targeted – for people with lower level support needs who are not eligible for the NDIS. Foundational supports should improve inclusion, increase social and economic participation and ensure all people with disability get support that meets their needs. WhatsUp in Disability
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Navigators The Panel’s Vision We want a connected system of support for people with disability. This connected system should include accessible and inclusive mainstream services, foundational supports and individual support funded through the NDIS. We also want all people with disability and their families to have more help to navigate this system. So we recommend creating a new role called a Navigator. Navigators should have good local knowledge to support people with disability and their families to understand, find and use mainstream and community services, as well as foundational supports. They should also help participants find, use and pay for NDIS funded services from their budgets, similar to the role of support coordinators currently. Most importantly, navigators will be directed by people with disability, and act in their interests. The Review proposed a fundamental shift in the way that people are supported to navigate disability support. Effectively ending the roles of Support Coordination, PRC and LAC as we know them and replacing them with a new role – Navigators. This is because the Review has heard how confusing it is to have so many different players involved in navigating the NDIS. The Navigator role would look very much like the current Support Coordinator function, with a greater focus on accessing support outside the NDIS. Specialist Navigators, ideally with qualifications in allied health or social work, would replace today’s Specialist Support Coordinators. Navigation support would be available to all people with disability, regardless of whether they are NDIS participants. It’s unclear whether people would have any choice over who their Navigator is, though the Review calls out that continuity of support would be a priority in transitioning, and that they expect much of the Support Coordination and LAC workforce to become Navigators. Likewise, there are proposed Psychosocial Recovery Navigator roles, which the Review expects to be filled by the current PRC work-
force. Navigators would be commissioned and funded by the NDIA outside of participant plans. They would need to be independent, meaning they could not provide other NDIS services. They would have nationally consistent governance, branding, online services, information management, monitoring and training. There are a lot of positive aspects to this recommendation. It is a return to the principles of local coordination, intended in the Scheme’s design but compromised with the addition of planning to the LAC role. The renewed focus on local knowledge, mainstream services and disabled people outside the NDIS is long overdue and the Review recommends Navigators be funded to spend more time with people than LACs and Support Coordinators typically are now. If these changes are implemented, it will not happen any time soon. The Review has specifically recommended a careful process of design and testing this idea in partnership with people with disability and the sector, prioritising continuity of support for participants and a smooth transition for the workforce. WhatsUp in Disability
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WhatsUp Current NDIS Access Process The Panel was told that the current NDIS access and planning process:
• Is
complicated, unclear, unfair and focuses on a diagnosis, not on your needs.
• Requires many professional reports that are expensive, difficult to get and are not always used to inform decisions.
• Has become a negotiation instead of a genuine opportunity to plan. This makes planning stressful, adversarial and sometimes traumatic.
• Leaves you feeling you must paint the worst picture of yourself to justify the support you need.
• Does not help you to understand what you can spend your funds on or help you to find supports that will work for you.
• Makes it hard to plan for your future. To make this experience simple, clear and fair, the Panel recommends separating the current planning process into stages access, disability support needs assessment, setting a budget and using your budget. NDIS processes should be fair and clear and easier for people with disability and their families to understand. You should know
and understand how decisions about access and budgets are made. NDIS budgets should be set in a fair and transparent way. You should be given a flexible budget and trusted to use it in a way that helps you achieve your goals and live an inclusive life. You should have more help every step of the way. You should be confident that the NDIS will be there for you when you need it. The Australian community should see the NDIS is fair and helps participants to achieve their goals, participate in the community and have similar opportunities as other Australians. They should be confident that the NDIS is managed well.
The Panel’s Vision People with disability and families should be supported to find and use disability supports that meet their needs and increase greater social, economic and community inclusion. Getting access to the NDIS, gathering information about your disability support needs, setting a budget and finding supports and services that work for you should be easier, with more help at each step. The process should be fair, consistent and respectful. You should be confident that you will have support as your needs or circumstances change.
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Access and Assessment Children and their families The Panel’s Vision There should be a new connected system of support for children with developmental concerns, delay or disability and their families to ensure they are well supported and have what they need to thrive. This new system of support should include more support outside the NDIS in mainstream and foundational supports as well as a new early intervention pathway in the NDIS. There should be better screening to pick up issues early, so early intervention can be provided when it is most effective. Mainstream services must become more accessible and inclusive and there should be more foundational supports available specifically for children and families. Identifying developmental concerns and disability early to give timely support will improve outcomes for all children and their families. Children with higher support needs will be able to access the NDIS. Access to the NDIS will be clear and fair. Individual budgets will be based on support needs. Families will have more help to find supports and services that will get the best outcomes for their child.
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Housing Supports What is the problem?
• The budget for housing and living support
The Panel was told that many participants with NDIS housing and living supports still have little or no choice about where they live, who supports them and who they live with. Many people still live in large or small group homes where they can’t choose their housemates or their service providers.
• Once a budget has been set, a specialist
Planning decisions don’t seem to consider housing and support in a connected way – and decisions are not always clear and consistent. Participants with similar levels of need and circumstances often don’t receive similar levels of funding.
should be set after a support needs assessment. It should include funds for home modifications if necessary. The housing and living budget would be separate from the flexible budget for other supports. housing and living navigator should help people find options that work for them. People could trial alternative housing solutions.
• Participants
who need 24/7 living supports would generally be funded at a 1:3 support ratio.
Participants and families worry about the future. They feel there is no certainty that housing and living support will continue.
• Sharing supports does not mean people
Few people are supported to explore different options. There has not been much innovation in housing and living support design. There are not enough Specialist Disability Accommodation (SDA) homes to meet people’s needs. Many old, large and poorly designed houses need to be redeveloped or replaced.
• There will be exceptions to the 1:3
Recommendations The Panel wants participants to have more choice about their living arrangements. Funding decisions should be fair, consistent and based on the needs of participants.
have to share a home if they don’t want to. We want to encourage new and better ways to enable people to live the way they want while still sharing support. support ratio. Sometimes participants can’t share supports. They might need more support because they have higher individual needs or are in more complex circumstances.
• Participants who share their home with other people will have access to a new shared support facilitator, whose job will be to help everyone to have a say in how the house and support is organised.
The Panel’s Vision Good housing and living supports are the foundation for greater social, economic and community participation. Everyone should have a safe, secure and accessible home in their community. We want to make sure decisions about housing and living are fair and consistent. Participants with similar levels of need should get similar amounts of funding. Housing and living supports should strengthen connections to family, friends and community and encourage independence. We want people to have more flexible budgets and support to find and try options that will work well for them.
WhatsUp in Disability
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WhatsUp What is the problem? The Panel heard that NDIS markets aren’t working. People with disability told them they find it hard to find supports. Providers don’t always have the information, guidance or resources to understand what good services look like or how to improve their delivery. There is also not enough information about the availability and quality of supports. The NDIS lacks integrity. The Panel have heard there is a lot of over-charging, overservicing and outright fraud. Processes to set prices are not working effectively. Price caps were intended to ensure “value for money” and prevent providers from driving up prices. However the process is blunt and not transparent. Providers have little incentive to compete on price or quality, with caps acting as a “price anchor” instead of a “price ceiling”. Price caps are higher for participants with complex needs, but they heard they don’t match the cost of delivering good quality support. Participants also find it difficult to negotiate based on price. Market settings have encouraged a focus on the number of supports provided and have
not given not enough attention to quality or outcomes. They heard this is partly due to providers not knowing how they compare with other providers, and a lack of incentive to invest in quality improvement. Inappropriate price caps are also contributing to the problem. Regulation of providers is inconsistent and is not proportionate to the risk of the activity delivered (such as the intensity of the support delivery) or provider operations (such as the size of the provider). There are big gaps in regulatory oversight of NDIS markets, particularly with unregistered providers, who are able to fly under the radar. This leaves some participants potentially exposed to risk of harm particularly participants who have complex needs or circumstances. Some providers are not aware of their requirements and obligations, for example in relation to restrictive practices. The Panel had also been told that when a provider chooses to register, the administrative burden is high, particularly for providers delivering lower risk supports. At the same time being registered is not necessarily a sign of quality and many providers told us they are thinking of de registering all or parts of their businesses.
The Panel’s Vision We want to see thriving NDIS markets with a range of providers and services so people with disability have genuine choice and can find supports that meet their needs. Price setting should be independent, transparent and reflect realistic costs. We want providers to be viable and to be incentivised to provide great quality services and improve outcomes for participants. To do that we need new approaches to pricing not just “fee-for-service”. There also needs to be the right balance between appropriate regulation to prevent harm and imposing excessive burdens on providers.
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Service Providers Recommendations A centralised online platform that provides real time claims management and information about providers so participants and their navigators can search and help select providers. This is essential for scheme integrity and an effective market. Providers should be able to benchmark their services against others in the NDIS market, learn what is working well and what participants value. This would inform service improvement and innovation. Better incentives for continuous quality improvement, including:
• Targeted capacity-building initiatives to support providers to improve the quality of their services. This could include translating evidence about what works into practical guidance and resources.
• Improved auditing that assesses the quality of support. Audits should ensure the voice of the participant is central to any assessment of quality.
• Measuring and publishing provider performance against quality and safety metrics to encourage quality, as well as reward good performance. Price caps should reflect the market price for delivering supports, including for participants with complex needs, in different regions, in group settings, supervision and other indirect costs. A new approach to determining pricing that shifts from a “one-size-fits-all” approach, and explores how to move from the current fee-for-service model. Transition the responsibility for advising on
NDIS prices from the NDIA to the Independent Health and Aged Care Pricing Authority, to enable transparency, predictability and better alignment of prices across the care and support sector.
A risk-proportionate and graduated approach to the regulation of all providers delivering NDIS and foundational supports, with four broad categories: Advanced registration for all high-risk supports (such as behaviour support and daily living supports in formal closed settings). General registration for all medium-risk supports (such as high intensity supports that may require additional skills and training like complex bowel care).
Basic registration for all lower-risk supports (such as supports with limited 1:1 contact such as specialist transport). Enrolment of all providers of lowest risk supports (such supports covered under general consumer law protections like equipment and technology). Streamlined registration processes so providers understand their obligations and regulatory burden is minimised, along with easier payments to providers through a fully electronic payment system. Improved access to supports for First Nations participants across Australia and for all participants in remote communities through alternative commissioning arrangements, such as place-based and community-driven approaches to ensure culturally informed, equitable and sustainable supports for First Nations and remote communities. Workforce strategies for a responsive workforce of sufficient size, capability and training to meet growing demand.
WhatsUp in Disability
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Plan Management The NDIS Review has recommended the transition towards a “multi-channel digital payments approach” that would allow participants to pay all providers directly. Unlike the current system, which requires either a plan manager to process the invoice or a self-managing participant to handle the funds, the proposed approach would allow direct connection between all providers and the NDIA. The Review describes this approach as gradually reducing the need for Plan Managers, eventually eliminating the need for them to pay invoices altogether. There are several reasons for this outlined by the Review in their Supporting Analysis document: People have reported that the lack of clarity between the Support Coordinator and Plan Manager roles can be stressful and confusing. There are also gaps and duplications between these roles. The current system gives intermediaries limited visibility over budgets, meaning it’s often too late to take action if a plan is overcommitted. The NDIA currently has limited visibility on transactions for self-managed and plan managed participants, which is now the vast majority of people.
could be achieved through this approach, Minister Shorten has declared this to be an end to the “ticket clipping”, taking aim at the most profitable plan management providers.
Interestingly, the Review report is silent on whether a digital payments platform would be a cheaper approach than funding plan managers. Perhaps because ‘ticket clipping’ is inevitable when it comes to payments processing, and it is unclear whether a custom-built system could process payments more affordably than what Plan Managers currently do. As with any government-sourced technology, the development of this system is unlikely to be swift. The Review recommends that the government create a clear transition path out for existing Plan Managers. This would involve clarifying the role Plan Managers play in “protecting scheme integrity” and continuing to refine this as the new system evolves. It’s envisioned that the role Plan Managers play in supporting people to monitor and manage their funding would transition to Navigators.
By removing funding rules that tie flexibility to plan management type, all participants would have access to the same number of providers (which would all either be registered or ‘enrolled’ under the new approach) Having greater control of payments would allow the NDIA to reduce instances of funds being spent not in accordance with the rules, or the person’s wishes. While the Review focused on the quality outcomes and big picture cost savings that
WhatsUp in Disability
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WhatsUp What is the problem? The Panel heard from many support workers that they feel burnt out and are not sure they want to stay in the disability sector.
They also heard how hard it is for people with disability to find good skilled workers that meet their needs. We all know we need more workers, both now and in the future, to meet the needs of people with disability. Yet large workforce shortages remain. The Panel have heard that finding and keeping disability workers with the right skills, values and attitudes is difficult. They heard that workers are frustrated by lack of good training, limited career opportunities and not enough supervision. There are particularly greater shortages of allied health professionals. The Panel also heard that current arrangements for pricing and payments are not set up well. It is often hard for providers to meet the needs of participants who are
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more complex, including providing appropriate training and higher levels of worker supervision which may be required. There is not enough information or guidance about how to deliver high quality supports, and good quality support is not recognised and rewarded. Worker screening is inconsistent across states and territories and can be slow and complicated. First Nations communities and remote communities also need a more localised workforce. All of these problems stop people from joining and staying in the workforce. Each year, 17%–25% of NDIS support workers leave their job. This can be because jobs are sometimes short term or have poor conditions – or both.
Recommendations The Panel recommended:
•
Trialling portable leave and training so that the learning and training of support workers is more widely recognised, and
Support Workers The Panel’s Vision We need a larger, more skilled workforce that can meet the future demand for quality services and improved outcomes. More targeted strategies are needed in areas such as allied health and to increase peer workers. Employers should be incentivised to invest in supervision and training. Training credits and leave should be ‘portable’ because most care and support workers do not work in traditional full-time jobs. There needs to be more opportunities to progress careers through micro-credentials (short courses). workers can build up leave balances across the care and support sector.
•
Improving worker screening processes to be faster, smoother and more consistent.
•
Worker screening processes should work better across the care and support sector.
•
Minimum online training to ensure workers understand their obligations, and then more opportunities to progress careers through micro-credentials (short courses and competencies).
•
Targeted strategies to increase the allied health workforce and peer workers.
•
A new pricing and payments framework, including independent pricing setting to support providers to invest in workforce capability.
•
Partnerships with First Nations communities and remote communities to design and roll out place-based, community-led alternative commissioning approaches, to build and keep localised workforces.
Participants should benefit from higher quality services including preventing poor outcomes and harm. Over time there should also be a greater availability of supports and services as more high quality workers stay in the sector.
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WhatsUp
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Community
Movie Review
by Steven Paull
Ridley Scott's portrayal of Napoleon in his latest film is a triumphant masterpiece that successfully captures the essence of one of history's most complex and enigmatic figures. The film, set against the backdrop of Napoleon's military campaigns and political manoeuvrings, seamlessly blends stunning visuals, a compelling narrative, and exceptional performances to deliver a cinematic experience that is both immersive and thought-provoking. The casting of the film is another stroke of genius, with the lead actor delivering a tour de force performance as the titular character. The nuances and complexities of Napoleon's character are portrayed with depth and authenticity, allowing the audience to empathize with the man behind the legend. The supporting cast is equally impressive, with each actor bringing their A-game to breathe life into the historical figures that surrounded Napoleon. Scott's direction shines in his ability to balance the epic scale of Napoleon's conquests with the intimate moments that humanize the iconic leader. The film explores not only the military genius of Napoleon but also delves into his personal struggles, relationships, and the burden of leadership. This multifaceted approach adds a layer of emotional depth to the narrative, making it more than just a historical epic. The pacing of the film is masterfully executed, keeping the audience engaged from start to finish. The strategic use of suspenseful moments and intense battle sequences is complemented by quieter, introspective scenes that allow for character development. The result is a film that is not only visually stunning but also intellectually stimulating, inviting viewers to reflect on the complexities of power, ambition, and legacy. The musical score, composed specifically for the film, is a haunting and evocative
accompaniment that enhances the emotional impact of key scenes. The soundtrack expertly captures the grandeur of Napoleon's era while underscoring the personal struggles and triumphs of the characters. In addition to its cinematic merits, Scott's Napoleon also serves as a compelling exploration of leadership and the consequences of unchecked ambition. The film prompts viewers to consider the broader implications of power and the fine line between greatness and hubris, making it a thought-provoking experience that lingers long after the credits roll. In conclusion, Ridley Scott's Napoleon is a cinematic tour de force that transcends the historical epic genre. With its breathtaking visuals, stellar performances, and nuanced storytelling, the film offers a compelling and humanizing portrayal of one of history's most iconic figures. It is a testament to Scott's skill as a director and storyteller. WhatsUp in Disability
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WhatsUp NDS Report NDIS Disability Sector Report 2023: the ‘worst year’ for disability providers David McManus Feel like the disability industry has had a rough year? You’re not alone. Providers have labelled 2023 the ‘worst,’ as some reported fiscal losses. The National Disability Services (NDS) State of the Disability Sector Report for 2023 is based on responses from 432 disability service providers across Australia who took part in the annual survey. The report found that the sector is struggling to remain viable as over a third of providers, who responded to the survey, reported financial losses
The care industry faced many challenges throughout 2023, including high turnover rates and persistent issues with paperwork, in addition to cultural and workplace stress, causing 43%o of workers to feel ‘burnt out’ during the majority of their time at work. National Disability Services, the peak body for non-government disability providers, released its annual State of the Disability Sector Report today, on December 11, 2023, which reflected the turbulent financial performance of disability support providers.
The report found that 72% of not-for-profit providers and 67% of for-profit providers said they were doubtful that they could continue to provide NDIS services at the current prices. Additionally, 34% of providers reported a fiscal loss in the 2022 – 2023 Financial Year, with a further 18% reporting that they had managed to ‘just’ break even. Survey results also indicated that 82% of respondents had received requests for
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services that they could not fulfil. Similarly, 78% of surveyed providers had reported ‘extreme’ to ‘moderate’ difficulty in finding support workers, with the availability of allied health professionals ranging from ‘low’ to ‘non-existent.’ NDS Chief Executive Officer Laurie Leigh said the report highlighted the urgent need to restructure pricing frameworks. “Providers are telling us there is plenty of work around, but either the pricing doesn’t make economic sense or they can’t get the staff,” she said. “We are already seeing some major providers cease their NDIS services and exit the market altogether, which most importantly, is impacting the people with disability who rely on these to thrive. “We welcome the independent pricing mechanism announced in last week’s NDIS Review, but if pricing issues are not addressed quickly, this will result in market failure and many more providers will not survive.” Busi Faulkner explained that reforms were needed to ensure that providers were able to support people with disability. “The NDIS must commit to the financial viability of the sector to ensure people with disability are able to access the safe and appropriate services they deserve,” she said. “The current system is like flogging a dead horse and there is a concerning lack of communication and ability to raise complaints within the NDIS system. “Whilst pricing reforms announced in the NDIS Review are welcome, if these systems and processes don’t improve quickly, the sector won’t be able to move forward.”
Political Responses Coalition Party
Greens Party
Green's senator Jordan Steele-John says it's going to take years for these services to work for Australians with disability.
Shadow Minister for NDIS Michael Sukkar has released a statement on the report. He says the review has left "many questions unanswered and stones unturned". "The government will now have to outline which changes they support and how they plan to transform these recommendations into tangible action," he said. "There is still very little detail on how the Scheme's 8 per cent growth cap will be met. "Participants also remain in the dark on what the new 'Foundational Supports' will look like, whether these will ever be comparable to the NDIS, and when these supports will commence."
"The rhetoric building up to today has been deeply problematic for many disabled people," he says. "I acknowledge that today's announcement is deeply anxiety-inducing and it is an uncertain time for many. "Everyone agrees there must be strong services available to disabled people in the community and through the NDIS. However, we know that right now our education, health, housing systems are drenched in ableism. It's going to take years for these services to be operational and work for disabled people. We will not accept NDIS supports being removed with nowhere for people to turn to. "Choice and control is core to the NDIS. With legislative changes expected in 2024, the Australian Greens will work to ensure choice and control remains at the heart of our NDIS. "Today, our community's message to the government is clear — we will not be your political football and we will not accept any changes that will make life worse for anyone in our community." WhatsUp in Disability
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Warrina Services is a specialist support agency that has been providing individual support to people of the Darling Downs since 1986. We support people with a diverse range of needs and also provide mental health services to assist personal recovery.
(07) 4659 5662
We can help you to achieve positive outcomes in your life. These may be related to choice and independence, education or training, attending social activities, increasing skills, getting a job or contributing to your community. If you would like further information please visit our website
www.warrinaservices.org.au Or contact us Phone: 07-46 380 399 Email: warrinas@warrinas.com.au
or visit our office at 172 Bridge Street Toowoomba Office hours Mon-Fri 9-5pm
Page 24
Staydry
Incontinence Solutions
Aussie Mum creates luxurious bedwetting and incontinence solutions that work and look beautiful. Business owner and mother-of-two, Pauline Ceddia is leading the way in incontinence products, providing sustainable, stylish, cost -effective solutions to families around Australia. From nappy leaks, toilet training, bedwetting to adult incontinence, Staydry is helping parents and carers reduce their laundry and mental load of dealing with the effects of bladder issues. The business first came onto the scene in the 1970s, the brainchild of Pauline’s mother -in-law Frances. “My mother-in-law was looking after her mother who had dementia. She was looking for continence solutions in terms of underwear and things that would make life easier for bedding at night,” Ms Ceddia said. “She was a real trail blazer. Running a business fulltime, looking after three children, her Mum, and taking care of the house.” Back then, the business primarily supplied linen and bedding to hospitals and health facilities around Australia. But in 2014, when Frances decided to retire, Pauline and her husband stepped up to the challenge of running the business. “When we bought the business, it operated in a very ‘old world’ way. Orders would only come through the fax machine. At one point we literally had $1.50 in our bank account. I thought, ‘I’m going to need a miracle to make this work’,” Ms Ceddia said.
products more available for families at home and in fun colours and prints. Staydry has grown by 50% year on year and is dedicated to meeting the needs of people of all ages, from toddlers to older Australians and everyone in between. “I’m a mother of two boys. I have experienced the challenges of toilet training and accidents firsthand, so I really wanted to create a range of products to make life easier for parents.” Staydry offers sheets, protectors, quilt covers, doonas, bed pads and incontinence underwear. Unlike your typical plain incontinence bedding, Staydry quilt covers and pillowcases come in a range of elegant prints, patterns and colours because no one should miss out on having a beautiful bedroom. They’re stain and water resistant, so small accidents and spills can be wiped with no washing required. With more people opting for sustainable and reusable underwear options, Staydry has a range of continence briefs for adults and kids which are designed for full incontinence and can hold up to 850mL of liquid, whereas other brands hold around 250mL. “I have mothers come up to me at expos in tears because they’ve broken washing machines with the amount of washing they have to do. I’m a total stranger and they’re hugging me saying they’ve come across our products, and it has changed their lives. It’s really rewarding.” For more information www.staydry.com.au/
visit
htps://
As a busy Mum herself, Pauline saw the potential in making quality incontinence
WhatsUp in Disability
Page 25
WhatsUp NDIS Travel What is an NDIS Travel Allowance?
•
Community access
This guide clarifies the distinctions between Provider travel and Participant transport under the NDIS, outlining specific rules for managing each type of transportation.
•
Therapeutic supports
•
Early Childhood Early Intervention (ECEI) supports
What is NDIS Provider Travel?
How to Enhance Travel Allowance Management for NDIS Providers
Provider travel, refers to situations where a Provider can claim worker time spent traveling to deliver supports to a Participant, as outlined in the NDIS Provider travel information. This guide will consistently refer to provider travel as worker travel time.
What are Participant NDIS Travel Allowances? Participant transport encompasses the transport supports utilised by Participants and may receive funding in a Participant’s NDIS plan to address associated expenses. Providers delivering community access supports can claim, alongside workers’ time, an additional contribution for transport costs (like public transport expenses or a perkilometre car usage cost) if pre-approved by the Participant in advance.
What Travel Allowances NDIS Provider claim?
can
an
Several factors dictate a Provider’s eligibility to claim worker travel time, such as:
• The type of support provided • The appointment’s location • The starting and ending points of a worker’s journey Providers can claim worker travel time under specific circumstances when delivering the following supports:
•
Personal care
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Prior to initiating services, Providers should engage in discussions regarding worker travel time with Participants and obtain their advance agreement before claiming associated costs. Service Agreements ought to outline the specifics of how and when Providers will claim worker travel time, personalised for each Participant.
Accurate record-keeping of worker travel time is crucial when making claims, ensuring payment reliability, as the NDIA reserves the right to audit Providers at any given time.
When Can’t a Workers Travel Time be Claimed? Instances where worker travel time cannot be claimed encompass several scenarios, including but not limited to cases where a worker:
Travels beyond 20 minutes. Travels areas.
beyond
45
minutes
in
regional
Provides supports that fall outside the scope of NDIA’s provider travel policy, such as support coordination.
How Can NDIS Providers Worker Travel Time?
Claim
Providers should consider the service location when claiming worker travel time, as it directly impacts the maximum
claimable duration. Providers must distinctly claim worker travel time using the specific line item relevant to the support provided. This necessitates Providers to designate the claim type as ‘travel charges’ within either the bulk upload or individual payment request.
How Can NDIS Providers Enhance Their Efficiency in Claiming Worker Travel Time? To minimise worker travel time, Providers should explore adaptable work approaches. Considerations for improving efficiency include: Arranging Participant meetings at Provider premises, when suitable. Organising staff appointments based on Participant locations to reduce travel time and distance between engagements. Assisting Participants in scheduling periodic appointments for therapeutic supports to optimise timing and reduce travel needs.
where the use of public transportation presents significant challenges due to a Participant’s disability. The provision of financial assistance for obtaining transportation support ensures that individuals facing difficulties in using public transit can seamlessly access necessary mobility assistance. Moreover, the NDIS extends its support by allocating funds to engage service Providers in assisting with transportation to activities that may or may not be directly supported under the plan. Examples of such instances include travel to and from medical appointments, physiotherapy sessions, and commuting to work. In essence, the NDIS Travel Allowance stands as a targeted support mechanism that addresses the transportation needs of participants and contributes to the achievement of their outlined plan objectives.
Transport
There are three benchmark levels of funding available for adults receiving transport funding.
Providers have the option to reclaim transport expenses, like those related to using Provider-owned vehicles, when accompanying or transporting participants within the community.
Transport assistance encompasses three distinct levels of support delineated as follows. These tiers serve to allocate a transport budget for Participants, with NDIA funded supports subject to annual indexing for adjustments.
Can Providers Costs?
Recover
Can a Provider Use a Participant’s Plan to Fund Transport Costs? Transport funding might be included in a Participant’s plan if it’s deemed reasonable and necessary. Participants receive transport funding when they face substantial difficulty using public transport due to their disability. However, this funding isn’t intended to cover transport assistance for informal carers or parents transporting the Participant for everyday commitments.
How Is the Determination Made for NDIS Participant Travel Allowances? The NDIS Travel Allowance plays a crucial role in facilitating NDIS Participants’ access to disability resources beyond their residences, enhancing their ability to achieve plan objectives more easily. This provision is especially vital in situations
Level 1: Up to $1,606 annually for Participants not engaged in work, studies, or day programs but seeking improved community access. Level 2: Participants engaged in part-time work or studies (up to 15 hours a week), attending day programs, or involved in social, recreational, or leisure activities can receive up to $2,472 per year. Level 3: For those working, seeking employment, or studying at least 15 hours a week, and unable to use public transport due to their disability, the NDIS provides up to $3,456 annually. Exceptional Circumstances: Participants may receive higher funding if they have general or funded supports in their plan specifically aimed at facilitating their employment participation. WhatsUp in Disability
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WhatsUp
Health
New Vape Laws
A Polymyalgia Story
Therapeutic Goods Administration
Steven Paull
From 1 January 2024, the importation of disposable vapes will be prohibited, subject to very limited exceptions. The ban will apply to disposable vapes irrespective of nicotine content or therapeutic claims.
Grace was a vibrant soul, always full of energy and passion for life. She was a painter, capturing the essence of the world with every stroke of her brush. However, one day, a mysterious ailment cast a shadow over her once-colourful existence—she was diagnosed with polymyalgia rheumatica.
The ban also applies to individuals who have ordered disposable vapes from overseas for therapeutic use under the personal importation scheme. A limited exception will apply to international travellers arriving in Australia to carry a small quantity of vapes for their treatment or the treatment of someone travelling with them under their care. From 1 March 2024, the importation of all non-therapeutic vapes will be prohibited. The proposed reforms will not criminalise vapers in any way. Personal possession and use of vapes is not, and will not be, criminalised by the Australian Government. The Therapeutic Goods Administration (TGA) has a list of therapeutic vapes that have been notified by importers or manufacturers to be indicated for the purposes of smoking cessation or the management of nicotine dependence, and compliant with the relevant product standards.
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At first, Grace brushed off the persistent pain and stiffness, attributing it to the stress of her artistic endeavours. Yet, as the days passed, the pain intensified, creeping into her muscles like an uninvited guest. Eventually, it became clear that this was more than just the wear and tear of a creative lifestyle. Grace found herself confined by the invisible chains of polymyalgia. Simple tasks became arduous challenges, and her once agile fingers struggled to hold a paintbrush. The vibrant hues that once danced on her canvas were replaced by the dull shades of discomfort. Grace felt defeated, her spirit dimming like a flickering candle in a gusty wind. However, Grace was not one to surrender easily. She embarked on a journey of selfdiscovery, seeking ways to reclaim her life from the clutches of polymyalgia. She delved into research, consulted experts, and
discovered a holistic approach that involved not only medical interventions but also lifestyle changes. The first step was acceptance. Grace acknowledged her condition without letting it define her. She embraced the pain as a part of her journey, a challenge to be conquered rather than an obstacle to be feared. With a newfound determination, she adopted a tailored exercise routine that gradually reintroduced movement into her stiffened joints. Yoga became Grace's sanctuary. The gentle stretches and mindful breathing not only eased her physical discomfort but also nurtured her mental resilience. Through every pose, she felt a sense of accomplishment, a triumph over the limitations imposed by polymyalgia. The mat became her canvas, and each movement painted a picture of strength and perseverance. In addition to her physical pursuits, Grace turned to nutrition as a means of healing. She cultivated a diet rich in antiinflammatory foods, nourishing her body from the inside out. Turmeric, ginger, and omega-3-rich foods became her allies in the battle against polymyalgia. As the colours returned to her palette, so did the vitality to her life.
Yet, the most transformative aspect of Grace's journey was the support she found in her community. Friends and family rallied around her, offering encouragement and companionship. They became the vibrant brushstrokes that filled her life with love and resilience. Grace's studio, once a solitary haven, transformed into a space of shared inspiration and creativity. Grace's story became an inspiration to others facing similar battles. Through her art, she conveyed not only the struggle but also the triumph over adversity. Exhibitions showcasing her journey became a source of hope, a testament to the human spirit's capacity to overcome even the most challenging circumstances. As the seasons changed in Serenity, so did Grace's life. The once-muted colours of her existence blossomed into a masterpiece of resilience, courage, and community. Polymyalgia, once a formidable adversary, became a footnote in her narrative—a chapter that shaped her, but did not define her. And so, Grace continued to paint the canvas of her life, each stroke a celebration of her victory over polymyalgia, a testament to the indomitable spirit that can emerge from the darkest of challenges.
WhatsUp in Disability
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WhatsUp in January
On Australia Day we celebrate all the things we love about Australia: land, sense of fair go, lifestyle, democracy, the freedoms we enjoy but particularly our people. Australia Day is about acknowledging the contribution every Australian makes to our contemporary and dynamic nation. From our Aboriginal and Torres Strait Islander people who have been here for more than 65,000 years, to those who have lived here for generations, to those who have come from all corners of the globe to call our country home. More than half of all Australians participate in Australia Day attending events organised by State Governments, local councils, community groups or getting together with family and friends. In addition, over 16,000 new Australians become citizens on Australia Day. Page 30
The event is called “we are not alone” and we are hoping to address isolation in the disabled community, particularly young disabled folks through an intersectional lens and see what gaps we can fill to better support our community. It will be hosted on the 19th of January 2024 at Rural Medical Education Australia (Griffith University building across from the Hooper Centre, on Hume street). If you are a young person or know a young person with a disability, chronic health condition or neurodiversity that would be interested in speaking at, participating in or attending our event please contact me through DM or email at wrna.day@gmail.com We hope to see you all there!- The WRNA team
WhatsUp in February
To spread the word about your next event contact WhatsUp on (07) 4632 9559 or email spaull@bigdogsupport.com.au WhatsUp in Disability
Page 31
WhatsUp mycommunity www.mycommunitydirectory.com.au
With Sarah Rossiter TRC Signs QLD Govt Pledge Toowoomba Regional Council (TRC) signed the Queensland Government’s Not Now, Not Ever. Together. pledge denouncing inequality and domestic and family violence. Councillors and TRC CEO Brian Pidgeon signed the pledge at the December Ordinary Meeting, which commits the organisation to working toward a Queensland where everyone is equal and free from violence. Toowoomba Region Mayor Geoff McDonald said Councillors were united in their commitment to the cause and would play an active role to ensure the ambitious goal was promoted and realised in the community. “This pledge commits Council to playing our role as leaders across the community and working wherever possible to raise awareness of inequality and all forms of domestic and family violence,” Mayor McDonald said. “Violence in any form is unacceptable and Councillors and our organisation will work with other community groups to raise awareness, improve prevention and provide practical assistance to end domestic and family violence. “Everyone deserves to live in a safe community and be an equal participant in community life.” Donaldson Law Director Adair Donaldson told the meeting he was pleased to see Council, as one of the Region’s largest employers, sign the pledge to end all forms of violence and set the scene for other employers to follow. Mr Donaldson, a member of the Queensland Page 32
Government’s Domestic and Family Violence Prevention Council, said signing the pledge showed employers were serious about playing their part in supporting people in difficult circumstances. “Workplaces can play a vital role in identifying people suffering from various forms of abuse. They can say, ‘We can see you, and we are here to help’,” Mr Donaldson said. “People in these situations feel shame, fear, isolation and can be invisible. They need to know that they are not alone and that support is all around them. “I want to see Toowoomba leading the way in preventing all forms of violence and part of this is ensuring that people feel safe and supported at work. This is in line with the new Federal laws where employees are entitled to 10 days’ paid domestic violence leave. What I would love to see is private enterprise following Council’s lead.” People in immediate danger are advised to call 000 or to speak with a counsellor, please call 1800RESPECT (1800 737 732) or DV Connect 1800 811 811. Support is available via Lifeline’s 24-hour crisis line: 13 11 14.
WhatsUp
New to Disability? First Points of Contact Centrelink Payments and Services
132 468
Carers
132 717
Disability Support Pension
132 717
Health Care Card
132 490
Family Assistance
136 150
Indigenous Call Centre
1800 136 380
Emergency Crisis Payment
132 850
NDIS General Enquiries
1800 800 110
NDIA Toowoomba Office
07 4592 4057
Local Area Coordinator
07 4646 2800
Medicare General Enquiries
132 011
Pharmaceutical Benefits
132 290
MyGov Help Desk
132 307
Queensland Government Child Safety
07 4699 4255
Toowoomba Hospital
07 4616 6000
Department Housing
07 4699 4400
Community Groups
Toowoomba Disability Information Office Open Monday to Friday (9:00am to 3.00pm) A question on disability or a service you require? Try us, most of our volunteers have a disability themselves and will be glad to assist you. If we can’t help, we will refer you elsewhere. JP services are also available
Carer Gateway
1800 422 737
Lifeline Darling Downs
1300 991 443
Relationships Australia
1300 364 277
The Good Samaritan Op Shop Bowen Street There are a number of support groups for most disabilities available in this region. Contact WhatsUp in Disability Phone: 07 4632 9559 Email: spaull@bigdogsupport.com.au
11-15 Alexander Street Toowoomba (07) 4632 9559 A volunteer disability service organisation run by people with a disability
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Page 33
WhatsUp Executive Team
PUBLISHER: Disability Media Association Inc (Australia) (DMAA) TELEPHONE: (07) 4632 9559
OFFICE:
Paul Myatt Community Centre 11-15 Alexander Street Toowoomba (open Monday to Friday 9:00am-3:00 pm)
POSTAL ADDRESS: PO Box 3621 Toowoomba QLD 4350 E-MAIL: spaull@bigdogsupport.com.au MANAGEMENT BOARD: Steven Paull (President) Courtney Carroll (Editor) Jess Wright (Secretary) Ann Paull (Treasurer) CONTRIBUTORS: Bronwyn Herbertson, Sharon Boyce, Aidan Wilcock, Dean Gill, Jess Wright, Steven Paull and many others. PUBLISHED January/March/May/July/September/November ABN: 72 821 350 911
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STEVEN PAULL President
DISCLAIMER/INDEMNITY Articles and adverts reproduced on these pages are accepted and published in good faith. It is a condition of acceptance that advertisers and article writers accept full responsibility for their advertisements and articles, and will fully indemnify the producers in the event of any claims or legal proceedings against them. Articles published are not necessarily the view of the publishers. Advertisements are also accepted on the basis that they do not conflict with any discrimination laws or other laws currently in force. ADVERTISING
COURTNEY CARROLL Editor
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JESS WRIGHT Secretary
Copyright Protected. All pages are subject to copyright law and may be copied only with the permission of WhatsUp. Copies are not to be used commercially or for profit or for personal financial gain. Permission may be granted to copy only if the purpose is to give it away to others for their personal interest but not to any other organisation or service.
DISCLAIMER All articles are accepted in good faith and are not necessarily the view of the Editorial team or Management. Articles are accepted on the understanding that in the event of any claims against WhatsUp, the writer of the article will take full responsibility and indemnify WhatsUp in the event of legislation against it. Articles are also accepted on the understanding that the contents do not breach any Disability laws or other legislation currently in use. ENVIRONMENTAL FRIENDLY/ COPYING
ANN PAULL Treasurer
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WhatsUp In Disability is provided as a Master Copy to individuals and organisations or to view online form our website. We are environmental friendly, we do not print any more copies than is absolutely necessary. We prefer and encourage the practice of passing the magazine from person to person or copying the whole magazine to pass on to others. Permission is needed to copy (see Copyright above) When copying the magazine we require that the pages be marked ‘copy’.
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