Bluegrass Care Navigators - Philanthropy Newsletter (Fall 2021)

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FALL 2021

Creating a Bright Path for Families Wylie, 2, was diagnosed with Trisomy 18, a life-threatening

chromosomal disorder that can cause serious developmental issues

leading to various medical complications, causing Wylie to come home with a feeding tube and also develop heart failure within her first few months. Her next six months were spent with a care team from Bluegrass Hospice Care, who helped her family obtain the necessary medical equipment and navigate through many challenges. “Something that was

for her first-year birthday celebration, which was so wonderful and special.” Having reached this huge milestone, Wylie made the transition from hospice to our Bright Path program, a pediatric palliative care program that provides specialized medical care for infants, children, adolescents, and young adults who are living with a serious illness. “One of the first things that the Bright Path team helped us figure out was in-home nursing for Wylie. It has been so helpful having a nurse provide care for Wylie at home,” Karla said, “Without those nurses giving us some respite, it would have

been really hard.”

really special at the end of her

Using a collaboration of care model, our Bright Path

six months with hospice was that

care team works with families to make a plan of

Wylie turned one, which is a very

care, identifying and treating symptoms, medication

big deal with her diagnosis,” said

management, establishing goals of care and

Wylie’s mom, Karla. “Our hospice

implementation, and fostering spiritual support and

team helped coordinate with a

counseling. “Bright Path helped connect us with

team in Florida, so that we could

Pediatric Home Service who provides us with durable

take Wylie to our vacation spots

medical equipment. It’s been huge for us, and they


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