Reaching out to more people living with arthritis
Annual Report 2013 Registered charity numbers 206563 and SC038693
www.arthritiscare.org.uk
Contents Chair’s Report
1
Chief Executive’s Report and Message from Jane Asher
2
Our volunteers
3
The impact of arthritis on people’s lives 4
From our Patron, The Duke of Westminster KG CB CVO OBE TD CD DL
I am delighted to be able to support Arthritis Care in the role of Patron. I have been a part of the charity for over 25 years, dating back to when I became President of the Chester branch. Over the decades, I have been honoured to support Arthritis Care as they have led the way in delivering the support that people with arthritis need. During this time, my own connection to this painful condition has become personal, as I developed rheumatoid arthritis just over two years ago. I am heartened to see that the charity’s new Strategic Plan will be reaching out to many more people living with arthritis as I can understand first hand just how difficult and painful everyday tasks can become.
The impact of Arthritis Care in 2013
5
Managing pain
6
Improving health
8
Reducing isolation
10
Living independently
12
Giving people a voice
13
Our funding
14
Looking forward to 2014
14-15
Thank you
15
Making a difference across the UK
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Finally I’d like to thank everyone who supports Arthritis Care, from the hundreds of volunteers through to those who set out to raise funds. By working together I know that over the next few years many more lives can be changed for the better.
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Chair’s Report
Welcome to our Annual Report for 2013. I was honoured to take on the role of Chair last year and am delighted to highlight to our members, friends and supporters just some of our achievements over the last 12 months. I may be new to the role of Chair but I am not new to Arthritis Care having joined my local branch six years ago. I became a Board member in 2011 and I am proud of the progress we’ve made in increasing our impact on the lives of people living with arthritis. My personal experience of arthritis means I fully understand the pain and disability this incurable condition can cause. Arthritis Care has seen some major changes during 2013. We were able to appoint a new Chief Executive, Judi Rhys, who brings with her a wealth of experience; we settled into our new offices in London, having sold our previous headquarters to allow us to free up funds to invest in our services and guarantee our viability as a charity. Both Judi and I are truly grateful to our senior management team, our staff and our hundreds of dedicated volunteers who have ensured stability for our charity whilst we both settled into our new roles. When I look back at last year, what stands out for me is the significant positive changes we
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have had on the lives of those we help – people dealing with arthritis all across the UK. We have set out detailed examples for you in this report, but the highlights for me include our new methods of reaching out to those people who are isolated, our army of Arthritis Champions who take our support out to local communities and our continued development of sports and exercise activities which make a real difference to both physical and mental well-being. Looking forward, we have just published our new Strategic Plan which will ensure that we continue to be a user-led organisation effecting real change in the everyday lives of people living with arthritis. I hope you enjoy reading about what we achieved in 2013 and look forward with me to a very positive 2014. With kindest regards
Susan Cheetham Chair
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Chief Executive’s Report Like Susan, this is my first Annual Report for Arthritis Care. My background working for several charities tackling long-term health conditions across the UK means that I understand the complexities of working alongside people in the different countries. I know just how vital each of our national teams is in addressing the problems faced by people with arthritis. Arthritis is a challenging and complex condition; it is often misunderstood and it is still perceived by many as simply aches and pains as people grow older. We know this is not the case and over the coming years, as our new Strategic Plan starts to take effect, I will be able to report back to you on the differences we have made to lives in every part of the UK. At the heart of our plan is a commitment to reach out to more people with arthritis and
have more impact. It is very clear to me that, if we are to have a greater impact and successfully deliver this plan, we will need to work in partnerships. In order to achieve this, we are looking to build many new partnerships over the next three years with new members, supporters, health professionals, charities and funders. I hope you feel as positive as I do when you read our report and please do contact me if you would like to know more about our achievements or plans for the future. With my best wishes
Judi Rhys Chief Executive
Message from Jane Asher
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As another year passes I am honoured and proud to continue in my role as President of this important and worthwhile charity. There is no question that a great deal can be done to ease the pain of arthritis and I would love to see a world where everyone who needs it can access whatever it takes to make their lives comfortable and pain-free. There’s a long way to go, but I am heartened to read some of the many success stories included within this report.
of our hundreds of volunteers in all parts of the UK. I’d like to send my own personal thank you to all of you who give us your time and commitment so generously.
Of course Arthritis Care could not achieve these tremendous results without the support
Jane Asher President
With my best wishes as always
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“I felt honoured and really pleased to be able to give something back to the young people programme that had done so much for me. I continued to grow in confidence and learned valuable skills in presentation, facilitation and group dynamics which helped me at university and at work. I began to feel really passionate about the work of Arthritis Care and ensuring that young people living with arthritis had a voice.This led to me applying for the job of Young People and Families Development Officer in Scotland which is what I do today.” Gill,Young People and Families Development Officer, Arthritis Care Scotland
Our volunteers provided 45,063 hours of their time (over 6,438 days)
The value of donated volunteering time equates to £467,000 Volunteers gave the equivalent time of “What struck me 25 full-time in training as a volunteer “The rewards was the commitment and staff
of being a volunteer are overwhelming, I have witnessed the transformation of men and women who go from having low self-esteem and are pessimistic about their arthritis to becoming confident self-managers. A lot of the participants in our programmes become friends and swap tips on how to overcome certain problems.”
enthusiasm to the project by the Arthritis Care staff, and their desire that all volunteers on the course were successful, and so ensuring that the project itself was a success.” John, Arthritis Champion volunteer
Janet, self-management trainer
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THE NUMBERS 10MILLION
8.5MILLION
in the UK affected including 25,000 children and young people
have osteoarthritis (OA) expected to rise to
17MILLION BY 2030
690,000 have rheumatoid arthritis (RA) THE IMPACT OF ON PEOPLE’S LIVES Arthritis is the biggest cause of pain and physical disability in the United Kingdom 1 in 5 people with OA give up holidays, hobbies and leisure activities
34% report feeling like they have no one to talk to
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65% of people have difficulty making a cup of tea when pain is at its most severe
71% of people with OA (6 million people) are in constant pain
One in three people with RA forced to give up work within two years of a diagnosis
THE IMPACT OF THE IMPACT OF IN 2013 IN 2013 50% started new hobbies six months after attending Arthritis 50% started new hobbies six monthsCare afterprogramme attending Arthritis Care programme
94% of callers to94% our helpline of callersgo on dohelpline something to to our go positive to change on to do something their lives as positive tosuch change altering theirsuch lifestyles, their lives as exercise diet altering theirand lifestyles, exercise and diet
39% reduction 39% in isolation reduction reported by in isolation young by reported people after young attending people after an activity attending weekend an activity weekend
We work with 800 volunteers, most of We work with whom have arthritis 800 volunteers, most of whom have arthritis
FEBRUA
RY
3,800+ people participated in 3,800+ people one of our in participated self-management one of our programmes self-management programmes
6,900 receiving 6,900 peer receiving support peer as support members as of one members of our one 170 branches of our 170 across branches the UK across the UK APRIL
2 0 31 30 31 28 31 3 8 3 0 31 30 1 1 3 3 74% increase in confidence in managing RY
JANUA
RY
JANUA
FEBRUA
RY
MARCH MARCH
APRIL
MAY
JUNE
MAY
JUNE
arthritis six months after attending Arthritis 74% increase in confidence in managing Care programme arthritis six months after attending Arthritis Care programme
Sources OA Nation Report 2012, Arthritis Hurts Survey 2010, Sources AposTherapy Research, NationalHurts Institute for Health OA Nation Report 2012, Arthritis Survey 2010, and Clinical Excellence, Rheumatoid arthritis: the managment of rheumatoid in adults AposTherapy Research, National Institute for Healtharthritis and Clinical Excellence, Rheumatoid arthritis: the managment of rheumatoid arthritis in adults
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Managing pain… Arthritis is the most common cause of chronic pain in the UK. An average of 85% of contacts to the Arthritis Care helpline concerns pain. 8.5 million people in the UK have osteoarthritis and 71% of them are in constant pain. One of the biggest problems faced by people with arthritis is the extreme levels of pain they experience on a daily basis. This pain stops them working, socialising or even being able to take care of themselves properly. Self-management works for anyone with arthritis, regardless of the severity of their condition. Self-management means taking control of living with the condition and is
Our goal: To increase the number of people with arthritis who are able to manage their pain on a daily basis.
crucial for a person’s emotional and physical wellbeing. It can be life-changing, encouraging an attitude whereby you accept that arthritis affects you, but do not allow it to control you. “It has given me the information I needed to do something about my arthritis.Three GPs have just said “Take more pain killers”. I don’t want to kill my kidneys; it’s good to know there are other steps.” Arthritis Care was the UK pioneer in delivering self-management training back in the early 1990s and in 2013 our self-management courses flourished. We didn’t sit back - we knew there were people who were unable or too hesitant to attend our face-to-face sessions. To combat this we trained over 70 new volunteers to help us extend our reach and reduce waiting times and introduced new ways to deliver our courses including telephone-based sessions to access harder to reach people. “I am now more aware of which exercises are better suited to me and that I need to look more closely at my diet and portion sizes to reduce my weight and therefore help my joints.”
In 2013 we supported 2,833 people in taking control of their arthritis; this is more than double the number helped in 2012.
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A day in the life... “Sometimes I wake up in the mornings and I say to myself “what a busy week ahead driving up and down the province delivering courses, assessing volunteers, with even more talks squeezed in between!” As always there are more deadlines and meetings, but somewhere in amongst the demands of a busy office, I get to meet the really important people, young people, mothers, farmers, students and people just like you and me, who are out there attending our courses, gaining selfconfidence and challenging their arthritis to live life to the full. I recently met a lovely woman who was just devastated when she was diagnosed with arthritis, but after a number of weeks participating on our course, she began to set goals and make plans for family events again. As she explained: ‘’I came here alone and very frightened and feeling that my life was in ruins, attending this course has encouraged me to face my tomorrows in another way that will bring me hope, happiness and laughter.” As I listened to her I realised the value of our self-management courses, they offer not just the practical ‘toolkit’ of skills to cope with a long-term condition like arthritis, but understand the importance of building selfconfidence and hope for the future. As we said our farewells she told me: “ I come away inspired, focused and determined to be the woman I can be, maybe a little slower, but strong because of this course.” I was just happy knowing that she had the skills to live her life to the full and enjoy her family again, in spite of her arthritis.
Every now and then, I am gently reminded as to why I do this job and why I love it so much. So even on a wet and windy day, when the car won’t start and the rain is pouring down and I‘ve forgotten where I left my car keys and I’m feeling ‘blue’ with the cold, I am encouraged because I know that whenever and wherever we deliver our courses, someone, somewhere in some rural parish or in some sleek city hotel, will pick up an idea or learn a new skill to help them to cope with their long- term condition and more importantly they will share what they have learned with someone new, someone they have just met on our course and have something in common. As they say “we are all just strangers until we meet.” So come along to one of our courses and have fun meeting new people and discovering how you can challenge your long-term condition too.” Anne Donnelly,Training Services Supervisor, Northern Ireland
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Improving health… 79% of people have given up or reduced an activity because of their osteoarthritis. Half give up or reduce walking or being active. People who say osteoarthritis has a large impact on their lives are three times less likely to undertake selfmanagement techniques.
Our goal: To improve the health and wellbeing of people with arthritis and ensure more have the confidence to manage their condition. Sports and exercise People with arthritis feel better physically but also mentally when they are able to be more active. A key highlight in 2013 was our FIT project in Northern Ireland. We reached out to people with arthritis across the nation and introduced exercise and sports that were suitable for all abilities – including Boccia, New Age Kurling, Tai Chi, walking groups, chair-based exercise and chair-based yoga. This project culminated in an inter-branch tournament attended by over 100 people with arthritis. This work was echoed in Scotland where participants again took part in new sports over 80% told us they learned about how to access and participate in appropriate exercise to help them manage their condition. 60% reported an improvement in their ability to cope with pain.
Over 1,100 people took part in an exercise session during 2013.
“I would really encourage people to talk to others with the same condition as you, to help you come to terms with it. In the beginning I found it very hard, but helping to set up the walking group has been magic! Setting up a group and walking with others with long-term conditions including arthritis is a great way to hear about good tips to help manage your condition and really helped me come to terms with mine. I would encourage others to do the same. I feel so much better for it and I have made lots of friends through this as well.” Carol, Ayrshire walking group
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Sam’s Story “I was diagnosed with arthritis when I was 13 and I am now 23 years old. I now use a wheelchair full time. When this happened it really did make me feel down. I used to love sport and felt that I would never be able to participate in any sporting activities again. Getting involved in the FIT Project was a real turning point for me. I qualified to be a Chair-based exercise leader and a Boccia and New Age Kurling coach. I now volunteer for the FIT Project and work with Arthritis Care Northern Ireland branches to help them get fit and active. I have also been able to bring the activities to young people with arthritis. The activities that are taught through the project have helped me to see that I can still get involved in sport and exercise but that I just have to adapt things slightly because of my condition. Not only has Arthritis Care Northern Ireland helped me to improve my physical fitness they have also helped my mental wellbeing. Arthritis Care has really given me the confidence to push myself and I am now studying for an OCN Level 2 in Youth Work. Without Arthritis Care and the encouragement and support I received I do not think I would ever have had the confidence to do this. I’m looking forward to continuing to work with people with arthritis and helping them realise that they too can still take part in exercise and fitness that will help their condition.”
Taking our message out to local communities During 2013 we also launched a new service - Arthritis Champions. We knew how good our volunteers were and wanted to widen their reach and enable them to support more people with arthritis. Our Champions scheme based in the North of England found our volunteers spreading the word about our services and what people could do to help manage their own conditions. They held talks and drop in sessions in locations ranging from doctor’s surgeries to libraries and even local supermarkets. In this pilot project we were able to reach over 1,000 people and help them find the information they needed. We received the following feedback: • 89% said they had increased knowledge about their condition • 67% of people said they would try new self-management techniques • 29% are making changes to their diet or exercise • 17% of people said they would try new methods to relieve their pain • 11% are going to join their local branch, helping to reduce isolation
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Our goal: To reduce the physical and emotional isolation felt by many people living with arthritis.
Reducing isolation… One in five people with osteoarthritis gives up holidays, hobbies and leisure activities. One in ten finds intimacy difficult; one in eight people finds socialising and meeting friends a challenge.
Over a third of contacts to our helpline were from people seeking help because they felt isolated, depressed, were living in severe pain or had mobility issues because of their arthritis.
Children and young people “If we were all robots – I’m the one with rusty joints!” We know that many perceive arthritis to be a condition solely of the elderly and we worked hard during 2013 to deliver a much-valued range of services to children and young people. One of the main issues children and young people faced was the feeling that they were the only one – we wanted to combat this. Our work ranged from “Monster Pain” workshops, to body image workshops which allowed children to express how having arthritis makes them feel about themselves. We also continued to deliver our highly regarded activity weekends, run by and for children with arthritis.
• 146 young people aged 12-25 took part in a residential activities weekend in the UK • 570 attended our children and family events across the UK Children and young people attending our activity weekends reported:
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• 39% reduction in isolation • 52% increase in feeling positive about their arthritis • 49% increase in confidence in expressing how arthritis affects them • 30% increase in having high hopes for the future • 29% increase in confidence in being themselves
“From banging bongos to jumping speed boats, Arthritis Care weekends have been the highlight of my year.The weekends provided me with an exciting escape during times of stress. I was able to live in the moment and just have fun. It was fun just being in a group with people that understand me.They understand when I feel sore, and I understand when they feel sore. On the La Mon weekend, I was shown that there are better ways to cope and that I am not the only one.They showed me how I can be assertive in my life and voice MY opinion. Arthritis Care showed me why I am a good person and why I am worth celebrating. Arthritis Care has done so much for me this year and I am so thankful.”
Another focus during 2013 was making ourselves more available to people who either couldn’t, or didn’t wish to, find support in a face-to-face setting. This may be due to difficulties travelling, remote locations or simply a lack of confidence in attending a group session. Across our nations we set up telephone befriending and mentoring schemes, increased our social media presence and even set up a community garden project as we sought out people who had not heard our messages before.
Our Branches “Everyone is so friendly and they make you feel welcome.We’re all in the same boat and that does help. Not that we always talk about our arthritis, mind! But they understand what you’re going through and that it’s with you every day.” Across the UK our 170 branches provide constant and effective support to thousands of our members. Our volunteers are our voice within their local communities, they hold talks, they fundraise; they have fun. Without them our impact would be greatly lessened. For example, in Wales our volunteers led community talks and information days reaching out to over 2,000 people.
During 2013 over 6,900 members belonged to one of our branches – these vibrant groups supported their members but also provided information and support to anyone affected by arthritis in their communities. • They hosted guest speakers including rheumatologists, dieticians and physiotherapists • They established lunch clubs and social excursions • They organised hydrotherapy sessions • They set up sports groups including Boccia and New Age Kurling • They held exercise classes including Tai Chi for arthritis, chair-based yoga and Zumba • They ran community talks and information days “I have gone from being desperate and lonely with no hope of ever achieving anything again to being part of a big family that cares for its members, giving them information and the tools they need to live life at today’s manic pace. I would like to thank Arthritis Care for being there for me in my hour of need and helping me find my way. I live my life at my pace now and if I can’t do something I either break it down into manageable pieces or it does not get done. I do not beat myself up anymore, I look after myself.”
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Our goal: To ensure more people with arthritis can live an independent life, receiving the support they are entitled to.
Living independently… One third of people with osteoarthritis retires early, gives up work or reduces the number of hours they work because of their condition. This has an impact on their independence, self-esteem and on household income. 72% of people with osteoarthritis receive no state benefits.
We know that for many people independence is about the ability to continue to work. In Scotland we launched the Joint Working project, a one-stop shop to support people with rheumatoid arthritis in the Greater Glasgow area. Our aim was to give advice on how to continue with work and also to link people with relevant services to support them in their career choices. This project was extremely timely with the changes to Welfare Benefits and in particular Employment Support Allowance and Disability Living Allowance. From our trained helpline counsellors we know that many people with arthritis are extremely distressed by the changes and feel that they are not heard or believed when they try to convey how painful their arthritis is.
The cost to the UK of musculoskeletal conditions is £7billion annually. Our helpline and website are key resources in helping people to find the support they need to continue to live the lives they want. During 2013 our helpline counsellors continued to give quality advice managing 8,745 requests for help. Our online presence, website, facebook and Twitter all continued to grow - in 2013 our website received over four million unique page views. Our booklets are distributed far and wide by our teams of volunteers. In 2013 we ensured that all our information booklets were available to download. This meant that people could access the information they wanted immediately; over 133,000 of our booklets were distributed or read online in 2013. “I had felt isolated after being diagnosed with osteoarthritis and just left to take pain killers and get on with it.The helpline team was fantastic and knew how I was feeling.” 94% of people using our helpline service go on to do something positive to change their lives such as taking their first steps into self-management by changing their lifestyle, diet and exercise.
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Our goal: To improve services and ensure the voice of people living with arthritis is heard and acted on.
Giving people a voice... Almost half of people with arthritis feel that the NHS does not see their condition as a priority. People with osteoarthritis are diagnosed on average 2.8 years after they first notice symptoms. Generally it now takes longer for someone to be diagnosed with osteoarthritis than it did in 2003. People who have a treatment and care plan agreed, who discuss self-management with their doctor and who set goals are more likely to see their treatment as being effective.Yet only 18% of people with osteoarthritis have an agreed care plan. Arthritis Care influences policy so that we can help effect change that benefits the lives of millions of people with arthritis.We work across the UK, at national and local levels and also within our regions as we know that services differ greatly depending on where you live. During 2013 we wanted to ensure greater awareness of the needs of everyone with arthritis, to improve services and to end discrimination.We represented the needs of people with arthritis to key policymakers and aimed to influence national health initiatives. By being on top of social care changes and benefits cuts we helped to ensure that people with arthritis knew what these meant to them. By working with like-minded partners we successfully influenced national policy and practice.
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Some key successes from 2013 include: • In England we expanded our Arthritis Watch project, finding out about how access to services differed across the country and then using this evidence to inform our campaigns and policy responses. • In Northern Ireland we delivered our annual Professional Lecture to over 80 health care professionals, including the Minister of Health, Edwin Poots MLA. Also in Northern Ireland we delivered a pain seminar to GPs, highlighting the physical and emotional impact of living with a long-term condition. • In Wales we were a key stakeholder in developing the Welsh Government’s “Add to your Life” health and well-being check for the over 50s. • In Scotland we planned for our first Professional Lecture at Holyrood with key speakers on early diagnosis and national standards for rheumatoid arthritis and musculoskeletal pain. • We submitted research papers to the Bone, Muscle and Joint Diseases and British Society of Rheumatology on the experience of people with comorbidities. It was found that one in 12 people with arthritis also had an additional health problem and needed more intensive support.
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Our Funding...
Looking forward
During 2013 we made great strides in diversifying our income to ensure our stability in the longer term.
As we move into 2014 we have set out a new Strategic Plan that will allow us to expand our work with confidence across all of our five goals.
Some highlights from our fundraising include: • We successfully recruited over 1,000 new supporters • We launched our new membership magazine Inspire which is now sent out quarterly to over 20,000 people • We ran national press campaigns promoting a free Arthritis Care booklet as well as information on becoming a member. Over 2,000 requested a free booklet and 1,303 people joined as members • We doubled our income from charitable trusts • New corporate partnerships were formed which will increase not only our income but awareness of our services ‘Healthspan have chosen to work with Arthritis Care as the charity offers practical help and support to people with arthritis in the UK.This resonates well with many of Healthspan’s customers who have arthritis and joint health problems; supporting Arthritis Care seemed a natural choice.’ Sophia Catton, Healthspan Ltd ‘Being aware of the impact arthritis can have on people’s lives, we are delighted to support Arthritis Care’s work.The charity’s new Strategic Plan is focused on reaching out to more people and helping them live full and active lives despite their arthritis.The Trustees are pleased to support Arthritis Care’s efforts to do this through its Arthritis Champions volunteer programme.’ Catharine Kesley,Trustee, the John Coates Charitable Trust
Our goal: To increase the number of people with arthritis who are able to manage their pain on a daily basis. • We will ensure more people living with arthritis have access to a wider range of effective self-management support. • We will ensure more and better information is available at the point of diagnosis. Our goal: To improve the health and wellbeing of people with arthritis and ensure more have the confidence to manage their condition. • We will increase the number of callers to our helpline. • We will increase the support we give to the recruitment, development and retention of our volunteers. Our goal: To reduce the physical and emotional isolation felt by many people living with arthritis.
In 2013, 70% of our total charitable expenditure was spent on providing information and support, delivering self-management training programmes, supporting volunteer run branch activities, representation and campaigning and running the charity. Our expenditure in focus (£4,355,000) Information and Training Voluntary run branch activities Representation and Campaigning Governance costs Fundraising
33%
30%
10%
26%
1%
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to 2014 • We will offer an increased range of local engagement options making it easier to engage with Arthritis Care on your doorstep. • We will increase the number of “non faceto-face” services, including telephone and online. Our goal: To ensure more people with arthritis can live an independent life, receiving the support to which they are entitled. • We will continue to produce up-to-date information on those benefits to which people with arthritis are entitled. • Through our policy and influencing work we will ensure the voice of those with arthritis isn’t lost in the welfare reforms. Our goal: To improve services and ensure the voice of people living with arthritis is heard and acted on. • We will mobilise people with arthritis to become agents for change. • We will do more to review the performance of local health providers, including by and through our supporters and people living with arthritis.
Thank you! Our work changing the lives of people living with arthritis would not be possible without the hundreds of individuals and organisations who supported us during the year. We would like to thank everyone for their contribution. Here is just a sample of the individuals and organisations that have supported our work. A special thank you to just some of those who left a gift in their will to Arthritis Care in 2013. Miss Marianne Ascher Miss Christine Margaret Brazier Miss Audrey Margaret Cooke Mrs Lucy Danby Mr Fred P Dollin Miss Janet Hamilton Mrs Elizabeth Hardie Ms Ann Joan Henderson Miss Hilda Holdsworth
Miss Irene Maguerite Lily Jarvis Dorothy and Charles McBain Mrs Vera Lilian Moore Mr David Morrison Mrs Elizabeth Roberts Mrs Madge Robinson Mr Alexander Constable Sharp Miss Lily Stewart Thompson Sylvia
Thank you to the following organisations for supporting our work. The Adint Charitable Trust
Healthspan
The Alfred and Beatrice Weintrop Charity
The John Coates Charitable Trust
During 2013, we invested in new fundraising posts and our methods of fundraising e.g. individual giving as part of a longer term strategy to diversify our income and reduce our dependency on less predictable legacy income.This investment has helped us increase our income from 2012.
Awards for All
The Jordan Foundation
Bank Workers Charity
Lidbury Family Trust
BBC Children in Need
Merck Sharp & Dohme
Belfast Health and Social Care Trust
NHS Bradford
Our income in focus (£5,932,000)
Charities Aid Foundation
Legacies Individual donations Trusts and corporates Events 20% Income from charitable activities 3% Investment income 3% 9%
City Bridge Trust
1%
* A copy of our full Annual Report and Accounts are available on request
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Big Lottery Fund Northern Ireland
The Constance Travis Charitable Trust
64%
NHS Central Lancs NHS Greenwich NHS Highland NHS Norfolk The Peacock Charitable Trust The Pilkington Charities Fund
De Puy
Pfizer UK Foundation
The Donald Forrester Trust
Roche Products Ltd
Health and Social Care Alliance Scotland
The Scottish Government
Health and Social Care Board (North) Northern Ireland
Southern Health and Social Care Trust Northern Ireland
We would like to express a special thank you to all the branches that have supported the delivery of courses and workshops this year.
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Making a difference across the UK in 2013
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Get in touch There are so many ways people can get involved with Arthritis Care on their doorstep.They can join a local Branch or Group or become an Arthritis Champion. People can fundraise in their local community or arrange an awareness raising event. They can volunteer and run a self-managing activity or can benefit from one by attending.To find out more please call the national office or email supporterservices@ arthritiscare.org.uk
Ayrshire
Pag e
Belfast
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Gateshead
Pag
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Arthritis Care has a presence across the UK through its four national offices, national, regional staff and volunteer teams alongside a network of volunteer-run branches and projects. The map below highlights some of the areas where the beneficiaries mentioned in this report have been supported by Arthritis Care in 2013.
Flint
Pag e
10
Hampshire
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How you can help
There are 10 million people with arthritis in the UK. Currently Arthritis Care reaches less than 10% of these people. With your support we can reach out to more of those who need our care and continue to empower people with arthritis across the UK. There are many ways you can help: Donate - Without financial support from donations we simply couldn’t provide many of the services that help people take control of their condition and get their lives back from arthritis. There are many ways you can show your support, such as leaving a gift in your will after you have taken care of family and friends, set up a regular gift, make a donation from your grant making trust or company. Fundraise - Take part in one of our fundraising events, arrange your own event, get your company involved.
Volunteer - without volunteers we couldn’t run our services. We have lots of volunteering opportunities across the UK helping you to make a real difference to people living with arthritis in your local community. Membership - join Arthritis Care and help us reach out to more people living with arthritis through our information, national helpline, website and Inspire membership magazine. Campaign - without active campaigners we could never get changes made to health, social care, employment and benefits. Join our campaigns on issues the matter to people living with arthritis. Fill in our Arthritis Watch survey to tell us what health services are like for people with arthritis in your area. Join your local Patient Participation Group to influence your local services. Join our Campaigns Network to get involved in local campaigns and policy work. Please call 020 7380 6540 to find out more or visit www.arthritiscare.org.uk
Can we help? Arthritis Care is the UK’s largest organisation working with and for all people with arthritis. Registered Address Arthritis Care Floor 4, Linen Court 10 East Road London N1 6AD Tel: 020 7380 6500 supporterservices@arthritiscare.org.uk www.arthritiscare.org.uk Free confidential helpline:
0808 800 4050 (10am-4pm Mon-Fri)
Registered charity numbers 206563 and SC038693 A charitable company limited by guarantee and not having a share capital. Each member of the Board and member of the charity guarantees the company the sum of ÂŁ1.
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