Page 1

n Supreme Court Decision — Page 2

Inside  Summer Events — p. 7

Volume 10, Number 7



July 10, 1999


Happy 9th Anniversary, Americans with Disabilities Act!


July 10, 1999

GOING TO WORK Minnesota Leads The Way With New Work Incentive Option by Charlie Smith, Editor


Cemetery dedication at former Faribault RTC. See story on page 3.

Supreme Court

Decisions Limit Scope OF ADA by Jeff Nygaard


n three separate rulings issued on June 22 nd, the United States Supreme Court significantly diminished the effectiveness of the landmark civil-rights legislation known as the Americans With Disabilities Act (ADA).

Civil rights workers and advocates for people with disabilities, however, saw the rulings as evidence that a majority of the justices “simply do not understand the ADA’s intent or meaning.” Three similar cases

The Court ruled that people who have physical impairments that are correctable, for example by taking medication or by wearing glasses, cannot be considered “disabled” and therefore are not eligible for protection under the ADA. The rulings were hailed by the Chamber of Commerce and other employers’ groups, which claimed that the Court’s ruling would avoid “a huge growth” in the number of lawsuits filed under the ADA.

The three cases were decided on similar grounds, that of having to “prove a disability” in order to qualify for protection under the ADA. A full understanding requires that the particulars of each case be examined. In the first case, ALBERTSONS, INC. vs. KIRKINGBURG, a man with impaired vision in one eye was hired in 1990 as a truck driver after a doctor erroneously certified

that his vision met Department of Transportation (DOT) standards for the job. In the words of the official syllabus of the Supreme Court, “When his vision was correctly assessed at a 1992 physical, he was told that he had to get a waiver of the DOT standards under a waiver program begun that year. Albertsons, however, fired him for failing to meet the basic DOT vision standards and refused to rehire him after he received a waiver.” The Court maintained in this case that, since the man could not prove that the “limitation on a major life activity caused by his impairment is substantial,” he is not technically “disabled” and therefore can-

Court - cont. on p. 4

n July 1, 1999, Minnesotans with disabilities who are on Medical Assistance (MA) will be able to go to work without the fear of losing their health care. Again our state is leading the way. There are only a few other states in the country that have the progressive benefits for people with disabilities that we have here. On July 26th, we will celebrate the ninth anniversary of the historic passage of the Americans with Disabilities Act (ADA) and now, with the passage of our state’s work incentives bill, Minnesotans can celebrate another historic milestone. Advocates have been working hard for at least five years to get this legislation passed. All of the hard work paid off this year. It appears that the time was right: extremely low unemployment, a national work incentives bill in Congress, and a slow but persistent educating of our legislators. This year, for a change, we had the united support of the Senate, the House of Representatives, the Department of Human Services, the Department of Economic Security, and the Governor. It all came together to pass a bill that will change the lives of many people with disabilities. At a press conference held at the St. Paul Midway Work Force Center on June 28th, 1999, disability advocates joined together with Michael O’Keefe, Commissionor of the Department of Human Services, Earl Wilson, Commissionor of the Department of Economic Security, and the

sponsors of the legislation, Senator Linda Berglin and Representative Kevin Goodno. Jeff Bangsberg, spokesperson for disability advocates, referenced the Americans With Disabilities Act (ADA), saying, “It is no exaggeration to say that the MA work incentive option legislation is just as important to people with severe disabilities as the ADA,” said Bangsberg. He continued, “It is important to remember that many people with severe disabilities do want to go to work, or return to work, and this legislation is key to that effort.” When Commissionor Wilson addressed the group he said, “This is a win-win situation. People with disabilities will be able to go to work and employers will benefit.” Kathy Rathcke spoke as a person who will benefit from this new law. She was a math teacher before becoming a quadriplegic. Due to her need for personal care attendant (PCA) services, which her insurance did not cover, she was unable to teach. Under this new law her hope for a return to teaching can become a reality. She stated, “My goal for life now, simply put: live the American Dream. I want to work, and give back to my community as best I can. I think being a teacher does that. Also, I want to buy a house. I want to plan for retirement and now I can.” Charles Van Heuvelin, a person with cerebral palsy, was

also there to tell his story. Van Heuvelin was hired by the St. Paul Public Schools as Educational Assistant in the Special Education Department in 1993. He has continued in that position and is currently earning $25,000 a year. But, due to his need for PCAs he has had to return 90% of his net income to the state in the form of a spenddown. When asked what he thought of the new law, Van Heuvelin said, “It is a dream come true! I was ready to quit my job; I was going in the hole each month.” He added, “This means that the students I advise in my job will not have to live in poverty. They can now look forward to a brighter future.” The new MA option will enable approximately 1,000 to 1,200 people a year, already eligible for Medical Assistance, to keep their MA benefits even if their income and assets increase with work. Individuals will be able to buy into the program by paying a premium on any income above $16,476 per year (or $1,373 per month). Income less than $16,476 will not have a premium. Individuals can apply for the new MA work incentive option by contacting their county financial worker. On page 8, we are printing a message from Michael O’Keefe, Commissionor of the Department of Human Services (DHS), and an article detailing the eligibility requirements for the new Medical Assistance work incentive bill provided to us by DHS. 


July 10, 1999


is very low. When the word spreads through the disability community that you can go to work, even on a part-time basis, keep your earnings, and your MA, people will start looking for work.

Charlie Smith Editor


innesota’s new Medical Assis-tance (MA) Work Incentive Option has gone into effect (see page 1). A number of people are already enjoying the benefits of this landmark legislation. The eligibility information is on page 8. The Department of

Human Services is estimating that 1,000 to 1,200 people will take advantage of this option each year. I think that number

People with disabilities have been forced into poverty long enough. With unemployment at a record-breaking low statewide, there are many entry level and part-time jobs available for people with disabilities. They may not be glamorous or high

paying, but they are a start and ability advocates across the the extra money certainly can nation are putting pressure on come in handy. House members to pass the WIIA bill (HR 1180) and dump **** the Ticket to Work (HR 1091). President Clinton supports HR The national work incentive 1180, and is asking Congress bill, Work Incentives Improve- to pass it before July 26, the ment Act (WIIA), passed the ninth anniversary of the pasSenate last month. The House sage of the Americans with companion bill is being held Disabilities Act (ADA). You up. A different bill, dubbed can help by calling your U.S. “Ticket to Work” is being Representative and urging pushed by some members of them to pass HR 1180. We will the House Ways and Means report on its status next month. Committee (see page 8). Dis****

Summer has arrived with a heat wave. On page 7, you will find a number of fun things to do throughout the metro area for the next few months. If you’re like me, the summer flies by too fast, so I try to pack in as many outdoor events as I can. So, tear out this page, stick it on the refrigerator, and when you’re wondering what to do some nice summer day, you’ll have a resource. 

Supreme Court Affirms“Integration Mandate” For Your Information In Olmstead Case; Questions Remain Gas Station Access by Bud Rosenfield


n June 22, 1999, the United States Supreme Court ruled that the Americans with Disabilities Act (ADA) and its implementing regulations prohibit the “unjustified institutionalization” by states of persons with mental disabilities. In Olmstead v. L.C., a case carefully watched by disability organizations and state human services departments alike, the Supreme Court concluded that unnecessary segregation in institutions is “discrimination... on the basis of disability.”

by Margot Imdieke Cross nity settings. Noting that the ADA does not require states to phase out all institutions, the Court also held that states may not be forced to serve otherwise-qualified individuals in the community where doing so would cause a “fundamental alteration” in a state’s service programs.

Case background Olmstead involved the claims of two women, who had been diagnosed with both mental retardation and mental illness, that the state of Georgia had violated the ADA by serving However, the Court stopped them in psychiatric hospitals short of requiring that states rather than in communityserve all persons in commu- based settings. The lower


The State Council is accepting applications for their annual awards. Please call for more information. 121 E. 7th Place St. Paul, MN 55101 651-296-6785 V/TTY 1-800-945-8913 V/TTY; Fax: 651-296-5935 E-mail:

courts ruled in favor of the plaintiffs. Those courts had relied specifically on the “integration mandate,” a Department of Justice regulation that requires that all qualified persons be served in “the most integrated setting appropriate” to their needs.

disabilities. Essentially, the individual must be capable of being served safely and appropriately in the community. In making this judgment, the Court noted that deference will generally be given to the reasonable assessments of a state’s own medical professionals.

Supreme Court’s Decision The Supreme Court first addressed the question of what constitutes discrimination “by reason of . . . disability” under the ADA. The Court found that Congress had explicitly identified unjust segregation of persons with disabilities as a form of discrimination. The Court emphasized that institutional placement of persons who could properly be served in the community “perpetuates unwarranted assumptions that persons so isolated are incapable or unworthy of participating in community life.” Finding further that confinement in an institution “severely diminishes the everyday life activities of individuals,” the Court emphasized that the requirement that persons with mental disabilities relinquish participation in community life in order to receive needed medical services demonstrates dissimilar treatment from persons who do not have such disabilities and are not therefore required to make a similar sacrifice.

Second, the Court noted that the ADA’s regulations require “reasonable modifications” to state programs to avoid discrimination, unless such modifications would “fundamentally alter” those programs. In response to a claim for community-based services, the state may try to show that “in the allocation of available resources, immediate relief for the plaintiffs would be inequitable, given the responsibility the State has undertaken for the care and treatment of a large and diverse population of persons with mental disabilities.” Thus, as the Court suggested, a state with “a comprehensive, effectively working plan for placing qualified persons with mental disabilities in less restrictive settings, and a waiting list that moved at a reasonable pace not controlled by the State’s endeavors to keep its institutions fully populated, the reasonable-modifications standard would be met.”

Ultimately, however, the Court’s decision in Olmstead on the scope of the ADA contained two significant qualifications. First, the Court noted that persons seeking community-based services must be “qualified individuals” with

Unresolved questions The Olmstead case itself was returned to the lower courts for further consideration of Georgia’s asserted defenses. The ultimate result in, and impact of, the case therefore remains to be seen.

ACCESS PRESS Co-Founder/Publisher (1990-1996) ................................................................... Wm. A. Smith, Jr. Editor/Publisher/Co-Founder ............................................................................. Charles F. Smith Cartoonist ..................................................................................................................... Scott Adams Production .......................................................................... Presentation Images, Ellen Houghton Editorial Assistant .............................................................................................. Donna McNamara ACCESS PRESS is a monthly tabloid newspaper published for persons with disabilities by Access Press, Ltd. Circulation is 10,000, distributed the 10th of each month through more than 180 locations statewide. Approximately 650 copies are mailed directly to political, business, institutional and civic leaders. Subscriptions are available for $15/yr. Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed. Paid advertising is available at rates ranging from $14 to $18/column inch, depending on size and frequency. Classified ads are $8.00, plus 35 cents/word over 20 words. Advertising and editorial deadlines are the 30th of the month preceding publication; special scheduling available for camera-ready art. Access Press is available on tape. Call MN State Services for the Blind, 651-642-0500 or 800-652-9000. Inquiries should be directed to: ACCESS PRESS • 1821 University Ave. W. • Suite 185N • St. Paul, Minnesota 55104 • (651) 644-2133 • Fax (651) 644-2136

Numerous questions remain. For example, what constitutes “available resources” to a state? If a state participates in a waiver program that provides community-based services but does not fully fund it, can any


s more gas stations be come self-service, an increasing number of individuals with disabilities are having difficulty getting assistance at their local gas stations.

most always be readily achievable unless there is only one attendant on duty and that attendant is required to stay in a security booth to prevent public access to the cash register.

Gas stations are covered by the Americans with Disabilities Act under Title III (public accommodations) and they are required to make their goods and services accessible to individuals with disabilities in a reasonable manner. In 1992 the Council of Better Business Bureau Foundation, the Disability Rights, Education and Defense Fund, and the U.S. Department of Justice released a booklet that specifically answered the following questions:

Q. Are attendants at service stations that offer both full service and self-service pumps required to pump gas from selfservice pumps (usually at a lower cost) for customers with mobility or manual impairments who are unable to pump gas themselves?

Q. Are service station attendants on duty at “self-service only” stations required to pump gas for customers with mobility or manual impairments who are unable to pump gas themselves? A. Yes. This service will al“waiting list” for services under that waiver be justified? What sorts of “waiting lists” are permissible? Must they be based solely on seniority, as the Court seems to assume, or can they be based on need as well? What constitutes a “reasonable pace” for moving persons off of waiting lists?

A. Yes. This is the only practical alternative to barrier removal at a gas station. Attendants are not required to provide the full array of services available at full service pumps, such as cleaning windows and checking oil. However, attendants must pump gas for people who cannot do so themselves, and they must charge the selfservice price because businesses may not assess surcharges on individuals with disabilities for alternative services under the ADA.  modifications” to Minnesota’s programs to serve persons living in other, not-fully-integrated settings (such as the family home) who are not receiving adequate services? Waiting lists for many such services are long. At the very least, the Supreme Court’s pronouncements in Olmstead make clear that the states must justify their programs. States must have an effective plan in place to ensure persons living in “segregated” settings and waiting for available, more integrated services will not be forced to wait an unreasonable amount of time to receive those services. 

Moreover, the Court’s decision in Olmstead just scratches the surface of the applicability questions surrounding the “integration mandate.” In Minnesota, efforts to lessen reliance on institutional care have long been part of state policy and practice. While questions concerning institutional care remain, an even wider issue exists: To what extent does the Bud Rosenfield is a staff attor“most integrated setting” re- ney at the Minnesota Disabilquirement require “reasonable ity Law Center.


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Cemetery Dedication by Donna McNamara


emembering with Dignity, a statewide coalition of disability groups, recently sponsored cemetery dedications at two former state institutions. At both sites, ceremonies were held honoring those who died there and were buried in numbered graves. In 1997, Remembering with Dignity was successful in securing state funds to begin replacing the numbered stones with markers that include each person’s name and date of birth and death. This came after years of organizing, educating legislators, and working with community groups in the towns where state institutions are located. On June 12, a dedication was held at the Willmar Regional Treatment Center, and on June 19, people travelled to the East Cemetery at the former Faribault Regional Treatment Center (now a minimum security prison). ACCESS PRESS attended the dedication at Faribault, which was co-sponsored by Remembering with Dignity and Arc of Rice County. As people gathered, performers Lynn Ista and Richard Cady played traditional music on bagpipe and drums. The ceremony began with an invocation by Reverend Jerry Markel, a former chaplain at the Regional Treatment Center (RTC). Hymns were sung by Carol Robinson of Remembering with Dignity and by the Harmonettes of Faribault.


July 10, 1999


IN BRIEF . . . . Employment Survey

was no treatment for him in his rural community and his family was very poor. John Manders died of the flu on December 20, 1929, at age 21. His nephew Ray, offered his thanks. “My uncle is one of 2,000 people buried here,” he said. “I’m glad he’ll be remembered with dignity.” Ron Ronning’s story was of his aunt, remembered by family members as “sweet Inez.” Born in 1911, Inez also grew up on a farm, but faced a different dilemma. At age 12, her family reluctantly placed her in Faribault to protect (sic) her from possible abuse by hired farm hands. She also died in 1929, at age 18, and is buried in plot 195. “Inez is a real person that we appreciate,” said Ronning. “Thank you for contacting us with the news that she was buried here.” Karen Larson, president of Arc Rice County, recited her poem “Independent Living” and spoke about the challenges still facing people with disabilities. She described her family’s determination to insure that their son is able to participate as fully as possible in the community. “When people say ‘he can’t come here,’ I say ‘yes here, always here,’” said Larson. It was important to be reminded that the struggles for accessibility and acceptance are not over. One of the goals of Remembering with Dignity is that we never return to a system of institutional living. But community living can be isolating, too, without continued work to remove the barriers to full participation facing people with disabilities every day.

Minnesota’s past. And for the most part, it succeeded. But there was one part of the program that was disturbing to me - and even more disturbing, in my view, is what was left out of the ceremony.What disturbed this writer was the presentation by Mavis Nienow, former volunteer coordinator at Faribault RTC. Nienow began her presentation by reminding us that July 17, 1999, marks the 120th year of the “pilot project” begun there. According to Nienow’s view, Faribault was in many ways a “success,” and she attributed the institution’s rapid growth to its effectiveness. When discussing the thousands of people with disabilities who spent their lives at Faribault, Nienow focused on the holiday celebrations, academic classes, and religious training (all of which she remembered as very positive). She recalled the variety of products (lace, baskets, canned goods) that residents were trained to make and told how much they had enjoyed working with the farm animals.

Technology Loans Available ssistive Technology of Minnesota (ATMN), will soon be offering a program to help people with disabilities acquire assistive technology. ATMN’s first program will be a financial loan project in partnership with Firstar Bank. Funding has been secured to buy down interest rates and in some cases guarantee loans to Minnesotans with disabilities. The loans can be used for any service or device that will help an individual with a disability to gain employment or to get training that will lead to employment. While Minnesota’s overall unemployment rate is very low, unemployment for people with disabilities remains extremely high. The missing piece of the puzzle for some individuals is assistive technology. ATMN was started with the assistance of the STAR (a System of Technology to Achieve Results) Program, part of the State Department of Administration. Applications will be avail-

able beginning Friday, July 16, 1999. Contact Angela at 651-296-2771 for an application. For more information on the loan program, ATMN or STAR call Toni at 651-296-9718. 

the council to improve employ- vey by calling 651-296-6785 V/ ment opportunities for people TTY, or toll-free 1-800-945-8913 with disabilities across the V/TTY. state. You can receive a sur-

GLBT Group Meets MCIL hosts a Peer Support group meets every Wednes- various activities planned. Group for people with disabili- day evening from 7-8:30 pm. MCIL is a fragrance-free facilties who are lesbian, gay, bi- The first Wednesday of every ity. For more info., 651-646sexual or transgender. The month is a social night with 8342 (voice), 651-603-2001 (tty).

Hmong ADA Video ADA Minnesota announces formation about Titles I (em- Copies are available at the ADA the availability of a videotape on the Americans with Disabilities Act (ADA), narrated in Hmong, with English subtitles. The video provides in-

ployment), II (public services), III (public accommodations) and IV (telecommunications). All of the narrators are Hmong, as are most of the actors.

Medicare has established a with an English or Spanish- tions about your health insurspeaking customer service representative. They can answer questions about Medicare, including: general information about Medicare; health plan options in your community; information about Medicare supplemental insurance (Medigap); and telephone numbers for assistance with Medicare claims or for help with ques-

ST. PAUL 651-641-1917

ance. You can request a copy of the Medicare & You handbook, or ask to receive an audiotape of the handbook in English or Spanish. And you can listen to pre-recorded answers to frequently-asked questions.

Wings Picnic from 11 am to 3 pm at 1515 East 66th Street, Minneapolis. The event is free and will feature a guest speaker, food and mu-

sic. To volunteer, make a donation, or if you need more information, contact Maynard or Mark at 612-866-0462.

Adventure Travel kayaking trips in August and September. Financial assistance is available to qualified persons. For more information, contact: Wilderness Inquiry, 1313 Fifth St. SE, Box

84, Minneapolis, MN 55414 or call 612-379-3858 or 1800-728-0719 V/TTY. They are also on the worldwide web at

Nature Center Programs Como Zoo and Conservatory ings, from 9-noon through just below Shepard road in St. announces nature programs August. Programs are held at Paul. There is a $6.00 charge for children in grades K-3, on the Crosby Park Nature Cen- for each class. For more inforTuesday and Thursday morn- ter, along the Mississippi river mation, call: 651-487-8272.



Minnesota office, c/o MCIL, 1600 University Avenue, St. Paul, MN 55104, 651-603-2015, TTY 651-603-2001, or toll-free 1-888-845-4595.

Medicare Has New 800 Number

Medicare+Choice toll-free telephone line to assist people in getting information and answers to questions. The tollfree number is 1-800-633-4227. The toll-free number for people using a teletypewriter (TTY) or telecommunications device No mention was made of the for the deaf (TDD) is 1-877policies preventing families 486-2048. If you call between from contacting or visiting their 8 am and 4:30 pm, you can talk relatives (even on holidays). Nothing was said about the crowded, unsanitary conditions, the use of restraints, or Wings, a ministry for adults the fact that the institution was with physical disabilities, is able to run as cheaply as it did holding their appreciation Day because of the forced labor of picnic on Saturday, August 21 its residents. (The large working farm at Faribault supplied it with meat, dairy products and vegetables). The legacy of Wilderness Inquiry provides lobotomies and sterilizations adventure travel for people of was not mentioned; nor was all ages and ability levels, inthe loneliness, fear and isola- cluding those with disabilities. tion. They are sponsoring four San Juan Islands, Washington sea Nienow also relayed a story of one of Faribault’s residents. A young German immigrant, this

Two people told stories of relatives who lived in Faribault and are now buried there. Ray Manders’ uncle John is buried in plot 209, near a big pine tree. Injured in a farm accident at The dedication ceremony was age 5, he was placed at intended to help bring closure Faribault in 1913 because there to a long and difficult part of Cemetery - cont. on p. 6


The Minnesota State Council on Disability is currently conducting a survey. Information gathered will be used to assist



July 10, 1999

COURT - Cont. from p. 1 not get help under the ADA. The second case, MURPHY v. UNITED PARCEL SERVICE, INC., also centers on DOT regulations. Mr. Murphy was hired as a mechanic by UPS, and all mechanics at UPS must hold commercial drivers licenses because they are required to drive large trucks in order to perform “road tests” and “road calls.” Mr. Murphy has had high blood pressure for most of his life, but is able to control it by use of medication. When not medicated, Mr. Murphy’s blood pressure exceeds DOT standards for commercial drivers. After working at UPS for 6 weeks or so, UPS fired him because his unmedicated blood pressure was too high to meet DOT standards. Similar to the previous case, the Court ruled that Mr. Murphy’s high blood pressure, when treated with medication, “does not substantially limit him in any major life activity.” Therefore, he also fails to qualify for help under the ADA. In the third case, SUTTON et al.v.UNITEDAIRLINES,INC., two nearsighted sisters applied to be global airline pilots and were rejected because their uncorrected vision did not meet the standards in the United Airlines rules. It is undisputed that, with corrective lenses, the sisters both “function identically to individuals without a similar impairment.” Again, since they can see just fine with correction, the Court ruled that “they are not actually disabled” and can get no help from the ADA. Where the courts have gone wrong By ruling that the protection offered by the ADA against job discrimination extends only to those persons who meet a fairly strict definition of “disability,” the Court has made the Americans with Disabilities Act “a very narrow law,”in the words of Matthew Diller, associate professor of law at Fordham University.

ability is a natural part of the human condition resulting from “Several years ago, we all that spectrum - and will touch started saying that disabled most of us at one time or anpeople were losing an awful lot other in our lives.” of ADA cases,” said Linda Krieger, assistant professor of It seems clear from a reading of law at the University of Califor- the Americans with Disabilinia at Berkeley. What was par- ties Act that the intent of the ticularly troubling, she said, employment section of that was that disabled people were legislation is simply to prevent losing cases in the courts of people who are willing and able judges “who were very liberal to work from being denied that on other civil rights issues.” opportunity due to bias, ignoJudges were stopping the cases rance, or other unfair reasons. before they even got started, In each of the cases decided by telling people, as the Supreme the Supreme Court on June Court recently did, that they 22nd, the Court failed to rule on weren’t “disabled” as the ADA the basic justice or fairness of defined it, “and that they there- depriving these individuals fore didn’t have a right to use employment. The Court ruled, instead, that they were not rethe law at all,” Krieger said. ally “disabled.” In the words By ruling that the ADA ap- of Georgetown University Law plies, in effect, only to certain Professor Chai Feldblum, who members of a “protected class,” helped to draft the ADA, these the Supreme Court and the rulings “create the absurd relower courts who have ruled sult of a person being disabled on these cases have exhibited enough to be fired from a job, a very serious misinterpreta- but not disabled enough to tion of the intent of the law, challenge the firing.” according to legal scholars Understanding disability knowledgeable on disability discrimination issues. Professor Robert Burgdorf of the District of Co- In contrast with the Civil Rights lumbia School of Law puts it Act of 1964, which was passed plainly: “Where the courts in the midst of a major national have gone wrong is to try to discussion on the history and first establish some ‘group’ for meaning of racial discriminawhom the ADA offers protec- tion in the United States, the tion. That’s simply not how ADA was passed “with very civil rights laws work in this little understanding of what disability discrimination really country.” is,” says Professor Krieger. Burgdorf, one of the initial fram- Like much of American sociers of the Americans with Dis- ety, the Supreme Court appears abilities Act, adds that “The to subscribe to a model of disreal goal of the ADA is to pro- ability as a “defect” or a “shortvide equal opportunities for all coming”, as something to be Americans — not to identify a “cured” or done away with. In particular group of individuals contrast, the drafters of the who are entitled to some kind ADA were operating under a more contemporary model of of special treatment.” disability under which the probBy operating on the premise lem is defined as a dominating that there are two distinct attitude by professionals and groups of human beings — others, inadequate support “disabled” and “not disabled,” services when compared with legal analysis “has proceeded society generally, as well as quite a long way down the attitudinal, architectural, senwrong road,” Burgdorf points sory, cognitive, and economic out, adding that “human be- barriers, and the strong tenings do not really exist in two dency for people to generalize sharply distinct groups of about all persons with disabilipeople with disabilities and ties, overlooking the large those without disabilities. Dis- variations within the disability

community. Such a generaliza- remedy” to override the Court’s tion seems to be at the heart of ruling, although he added “It’s the Supreme Court’s recent rul- unclear where we go from here.” ings. Time will tell if there is suffiAfter the rulings were issued, cient political support among Senator Tom Harkin, the Iowa the American public for a “legDemocrat who was one of the islative remedy” to the probchief sponsors of the ADA in lems posed by the recent Su1990, said that he would try to preme Court rulings. For disseek “some kind of legislative ability-rights activists, how-

On Mental Illness

“Can’t Find My Way Home” by Pete Feigal


n 1992, I was fighting a crippling depression that had lasted three years, and was in a partial program at AbbottNorthwestern. I would spend weekdays there from 9 a.m. till 3 p.m. and then evenings and weekends at home. The despair I felt at that time was so total, so overwhelming, so agonizing, that my “pain meter” was buried in the red, 24 hours a day. I hurt so bad that I couldn’t see color, I couldn’t hear music, couldn’t tell day from night. When people talked to me, it seemed as if their voices came from miles away, like hearing people across the lake on a still summer night. I hurt so much for so long, that I couldn’t feel anything. And what was more terrible was that I had come to think that this was my normal state, where I was supposed to be. Like Jim

by Craig Dunn


s some of you may know, Very Special Arts Minnesota has been promising the disability community here in Minnesota that an organizational name change was in the works. Well, we are ready to share with you our new name. As of June 2nd, we are VSA Arts of Minnesota and the overarching corporate name is VSA Arts. During the upcoming year, all of the 42 state affiliates and 92 international affiliates will be adopting the new name. Although not too far from our interim name and still retaining

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Morrison and The Doors sang, see the traffic rushing by, and “I’ve been down so long, it hear Steve Winwood’s sad, high voice singing “...and I’m looks like up to me.” near the end, and I just don’t I remember that I was waiting in have the time. And I’m wasted my car at the Burger King drive- and I can’t find my way home.” thru, when a song came on the And I sat and wept in my car. In radio. It was an old ‘Blind sadness that I too, had been Faith’ song of Steve Winwood lost for so long and couldn’t and Eric Clapton’s called find my way home. And in “Can’t Find My Way Home.” happiness that I could, just for It’d been so long since I’d heard a second, hear the song, smell it, and it had been such a favor- the burgers, see the clouds ite, that it somehow pierced and feel the snow. Could sense this thick cloud of pain. And my heart breaking, that I was for just a brief moment, I be- still alive, not a dead person came aware that the window like I believed I was so often. was open, and it was snowing and my arm and the window And the next day in group, controls were soaked by the when asked how I felt, I said melting flakes. I became aware that I hurt. Not why I hurt, just that it was a dark, wild Decem- simply that I hurt. And I began ber afternoon with the clouds to grieve, and let my heart conrushing across the sky like a tinue to break open, and heal. herd of gray buffalo. I could And I’m still healing, still gosmell the food cooking, and ing. 

We’re Not Special Anymore

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ever, the message is clear: The passage of the ADA, as historic as it was, is really only a small part of the job. The job of eliminating discrimination against people with disabilities, and the larger work of educating the American public about the realities of disability life and culture, is just beginning. 


the initials of our former name, VSA Arts will be the way that we will be known from now on. We are not special, much less very special anymore, but we are hoping that you will still think of us as a vital and growing organization ensuring that the arts are accessible to Minnesotans with disabilities. The new name was formally announced as the final order of business at the closing ceremonies of the Art & Soul Festival in Los Angeles on June 1. Over 1,000 festival participants

from around the world, including the 12 delegates from Minnesota, were on hand as the new name was announced and hundreds of balloons were released in celebration. The Minnesota delegates marked the occasion by donning tshirts with the new name and logo and the statement We’re Not Special Anymore! Many in the crowd offered expressions of agreement and happy surprise upon seeing the new shirts. John Kemp, the President and CEO of VSA Arts in Washington, D.C., let us know that he wanted one of the shirts to commemorate the occasion, as did many others in the crowd. (These shirts are now available by contacting the VSA Arts of MN office at 612/332-3888.) As we said early last year when this process was first announced, our name is changed but our mission remains the same. We look forward to serving our various constituencies with everimproving programs and services and with the utmost respect and dignity. Thank you for staying with us through the long process — we know you will be pleased with our new look and our  new name. Craig Dunn is the Executive Director of VSA MN


Hello Nicole: Dear Nicole, I’m in love with a woman in a wheelchair. I have known her about four months and she’s invited me to her house several times, but when I suggest we go out to dinner or a movie or a concert, she says no. She gives me tons of excuses, like she can’t stand people staring at her and she hates riding Metro Mobility, etc. She stays home an awful lot. I met her at a church event that her sister brought her to, but she normally doesn’t go to church and won’t go with me because I would have to carry her up a few stairs and she doesn’t want me to have to do that. I told her I would be happy to carry her up stairs (I really don’t mind and she’s not very heavy!) but she still won’t go. She’s been disabled about 5 years and used to be active before her accident. I think she would be a lot happier if she’d come out of her apartment more often. I told her it doesn’t matter if people stare at her and I offered to ride Metro Mobility with her. I just can’t get her to budge out that door! I see other people with disabilities out and about all the time. Is staring such a big deal to everyone? What can I do to convince her to come out with me? I’m frustrated because I think we could have so much fun. Sincerely, Dedicated Dear Dedicated, Convincing may not be quite the right word to describe what your friend needs in order to go to public places with you, understanding would be a better way to think about it. I’ll bet she’s frustrated, too, and really wishes she felt OK about going out and having fun. It’s lonesome, boring, and isolating to stay home so often. She probably remembers her active days before her accident and feels bad that she has such a hard time going out now. If you two can talk about what’s bothering her without trying to convince her to leave home, you may help her situation a lot. Probably what’s keeping your friend at home are her own hurt feelings and self-conscious thoughts that are exacerbated (or confirmed) by the usual public reaction to a person with a disability. Becoming a woman in a wheelchair is no easy passage and five years is only the beginning of time needed to touch the depth of loss and change her life must accommodate. People’s stares, the inconvenience or stigma of riding Metro Mobility, and the idea of having to be carried up stairs (especially in front of others) are all things that will call attention to the fact of her disability, which she may not be feeling

so confident about.

you to just listen and support her, the more she will open to For example, being stared at is you. a fact of life for most people with disabilities. I get stared at Although I fully understand every time I go out the door. how hard this may be, please Some days it bothers me a lot. try not to manipulate or conSome days I barely notice it. vince her to go out in public. The difference in my reaction If you are having a conversato being stared at usually has tion which she feels is denothing to do with the people signed to get her to do somewho are staring, how they’re thing she doesn’t want to do staring, where they’re staring, (i.e., go out) she will be fearful etc, etc. The difference de- and defensive. Start by repends on how I’m feeling about signing yourself to her not myself that day. When I am wanting to go out in public. feeling good I have confidence. Just expect that she is never With confidence, I can shrug going to change her mind. off, laugh about, and quickly Then focus on the care and forget even the most disgust- concern you feel about what ingly condescending stare is hurting her so much. Try because I know I’m OK and starting the conversation by someone else’s prejudice is saying something light and simply their problem, not mine! funny like, “I know you’ll In other words, I have enough never go out with me. I won’t good feelings about myself that bug you about that again. I do not fall into believing that I’m just curious, does Metro a stranger’s negativity toward Mobility smell that bad?” me is a testimony of my self- Engage her in an easy conworth. However, when I feel versation and ask her nonbad about myself, the slightest threatening, open-ended sideways glance can send me questions about the reinto a whirlwind of self-depre- sponses she gives you. I cating thoughts and depres- think it’s also important that sion or embarrassment. This is you convey your feelings to because when I feel bad about her. You could tell her, “It’s myself I’m vulnerable to be- hard not to try and get you to lieving the negativity con- come out with me. I really veyed in a stranger’s stare - it love your company. But I seems to confirm the negative understand this is a hard time feelings I already have about right now and that’s OK with myself. me, I just want to keep your friendship.” If things get At this point, your friend may tense, tell her, “I’m frustrated not be aware of feeling bad because I think you’re great about herself, she might ada- and want to see you happy. mantly believe it’s the rest of But I trust that you know the world that is keeping her what’s best for you and if home. It’s normal human stuff going out is too hurtful right to project our feelings onto now, I will try to understand.” others. When you talk to her I think it’s important that you If you are a patient, safe and just stay receptive to however supportive friend, she may she is feeling and not try to tell eventually decide to risk venher she needs to change the turing out with you. Or she way she’s feeling or that she might still choose to stay shouldn’t feel the way she home! But at least she will does. If she says, “People have had the opportunity to stare at me because I’m ugly.” share what’s bothering her You could say, “I understand with someone that genuinely why you feel that way. People cares and is trying to undercan be rude. But I don’t think stand. you’re ugly” (then tell her what you find pretty about her!). It — Nicole is a big mistake to respond to a statement like “I’m ugly” by Question? Complaint? saying, “You aren’t ugly. Don’t Comment? W r i t e to say that!” as you are only sham- Nicole: % Access Press, ing her and making her feel 1821 University Ave. W, foolish and alone with her feel- #185 N; St. Paul, MN 55104 ings. The more she can trust

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July 10, 1999

Religion and Disability

Life On A Continuum by John Schatzlein


hen we approach life on a continuum we will always get to the end of that life continuum. Death and dying is difficult to talk about. When we do talk about it, we often do so shallowly and with caution. Christians believe in life after death and that we will be free to be independent, (some will say “whole”) and able to rejoice in our God’s wonder and love. Before we get there, each of us must face loss and death. Most of us have the ability, if we choose to look at these issues, to recognize and understand what and why loss and even death, occur. What can we say or think about these issues if we have a cognitive limitation? My daughter Melissa works at a residence for persons with cognitive limitations and behavioral concerns. Recently one of the members passed away suddenly and caused her (and I am sure some of the residents, in their own way) to think about and face questions about death, readiness, loss of a friend, etc. What are some of the myths regarding persons with developmental disabilities or cognitive limits. How do these myths shape our response to people who are grieving? Nancy Kirchner, MSW, from the National Christian Resource Center in Watertown, Wisconsin put together the following myths: Myths If you have trouble dealing with your own grief, you are incapable of helping another person. Individuals with cognitive limitations do not understand death or loss. People with cognitive limitations are incapable of form-

ing attachments.

group resident’s grief process.

People with cognitive limita- “Reggie” tions forget people who die. The next person to meet with People with cognitive limita- me was Reggie. Reggie is not tions have difficult lives. Spare one who shares his feelings them stress by not discussing easily and especially not with death. someone like myself whom he did not know well. One of the People with cognitive limits do managers with whom he did not feel grief or loss. have a close relationship was present as I once again tried Only experts should talk to to determine how best to compeople with cognitive limita- fort or help this person deal tions about death. with the death of his friend. We approached Reggie in much Individuals with cognitive limi- the same manner that had tations do not communicate seemingly been effective with grief through their behaviors. the others, beginning by asking him if he understood what Individuals with cognitive limi- had happened. Reggie was tations never experience grief trying very hard not to show when a friend, staff person or any emotion as he answered family member is no longer that Peter had died. His jaw available to them. muscle was working overtime, however, and gave away his It is not a good idea for a true feelings. When asked if he cognitively limited individual felt sad, he quietly respondto attend a funeral service. ed,”yes” but he said nothing further when asked if he Unless every person who is wanted to talk or if he had any cognitively limited grieves, s/ questions to ask. After a brief he will have major behavioral silence, I asked Reggie if he and adjustment problems. needed a hug, but he responded by crossing his arms and shrugging off the offer. These issues are difficult and Another period of silence folwe may never really know an lowed and then Reggie finally individual’s feelings. It is im- turned toward his friend, the portant that care staff, families program manager, and unand the community recognize loaded a series of questions the importance of treating related to the events of the people with sensitivity during previous evening. He wanted times of loss or grief. We can- to know about the many emernot presume how they feel or gency personnel who came to grieve. We should be talking help. Who did what and why? about how to be better pre- Where did they take Peter? pared to support, understand And was he in the cemetery and see cues they send during now? these times. We should look at how we can communicate our After all of his questions were empathy for a situation that is answered, Reggie got quiet a part of our life’s continumn. again and once more his jaw muscle began to work. SensFollowing, from an article by ing his distress, the program Susan Marchesseault, a Board manager again asked him if Certified Behavior Analyst and he needed a hug and again, he Music Therapist, is an example shrugged it off. Then she reof how Susan and a staff per- membered that Reggie has a son experienced one of seven Religion - cont. on p. 6

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CEMETERY - Cont. from p. 3 woman found herself living in a town where no one else spoke her language. Unable to communicate with her, they sent her off to live at the state institution, where she stayed until her death at age 80. This story was told quite matter-of-factly, as if no tragedy had occurred, no life been forever limited by prejudice. Listening to this rendition, I couldn’t help wondering what the people lying in the numbered graves would have said, had they had the chance. What memories would they have shared. I thought of the play “Let Heaven and Nature Sing,” presented by the Minnesota History Theater a few years ago. That performance, told from the point of view of Faribault residents in the 1940s, did not have the feeling of nostalgia I heard in Nienow’s speech. Their Christmas memories were of being separated from their families, of donated


gifts that were often used and firmed in fleeing it.” broken. Many of their experiThe ceremony concluded with ences were traumatic. a responsive reading by ReI thought of the parents, advo- membering with Dignity memcates, attorneys, and others bers. The reading was a powwho fought for so many years erful reminder of what people to close the institutions, and to who lived in institutions sufforce them to treat people more fered, and what we all missed humanely. Some of those by excluding them. It called us people were in the audience to re-commit ourselves to the that day. What, I wondered, struggle for full integration and would they have said. Then full civil rights for people with too, what of the people with disabilities. After each statedisabilities in the audience, ment, the 130 audience memmany of whom have lived in bers recited the response “We institutions. Where were their remember our brothers and sisters with dignity.” voices? It seems to me that the dedication of this place is not complete without these voices. Pain, suffering, and resistance are part of the institution’s legacy. For real healing to occur, the past must be remembered in its entirety. I believe, as James Peck has said, that, “however troubling reality may be, human dignity is not af-

As the cemetery dedications continue, as the graves are finally marked with names and dates, I hope we will be able to remember all of what our brothers and sisters went through. Hearing the whole truth of their lives is essential to truly “remembering with dignity.” 

Need For Advocacy by Mark Wilde


he Hennepin County Demonstration Project for People with Disabilities (HC DPPD) planning group is looking for Medical Assistance (MA) consumers and their representatives to help create a better health care delivery management system. Community interns Julie Wegscheid and Bill Blom have been hosting a series of consumer forums to get the input of people who deal with Medical Assistance every day. The need for reliable and effective advocacy is one of the issues that frequently gets mentioned. Consumers want the best care possible, and they want someone who knows the system to help get it.

RELIGION - Cont. from p. 5 special way of showing affection for her and she asked him, “Reggie, do you want to squeeze my cheeks?” This brought a smile to his face and he got up, went over to her and gently squeezed her cheeks. Then he ever so gently placed his hand on her head and held it there for a few seconds and then tipped her head forward and touched her forebead to his. Although Reggie could not allow himself to accept a hug, his need for physical expression of comfort was met when the program manager recognized it and allowed him the dignity of offering comfort to her.

Suggestions for the future include: 1. Recognizing we may be uncomfortable, not knowing the best ways to prepare individuals for loss and death. 2. Making a concerted effort to learn about our clients’ feelings and understandings of death, life after death (heaven or hell) or other spiritual levels, and their awareness of God, a deity and/ or their religious affiliation.

State Office of Ombudsman

Under the current system, several government offices handle health care complaints and questions from consumers. The Office of the Ombudsman for Mental Health and Mental Retardation is responsible for “monitoring government-run, government-regulated, and/or government-paid for systems to ensure that services are delivered fairly . . . ,” according to its 1996/1997 annual report. Brown said the Ombudsman’s office is already working on In simpler language, Boyd setting up a network of exterBrown of the Ombudsman’s nal agencies for the DPPD office said that advocates help project. These groups will have people tell their story. His of- a formal contract with the office can help file an appeal or, fice to provide a single access in some cases, file a written point for advocacy. complaint with the health plans if the consumer feels they have By legislation, the Office is rebeen treated unfairly. sponsible for setting up this external advocacy network. In 1996/1997, the Ombudsman One of the methods is to have had contact with roughly 2500 a toll-free number for the DPPD consumers from 6 main disabil- project, a single access point ity groups. They most often that people can call. The numheard from people diagnosed ber is already being set up in with mental illness, along with the two southern projects. people who have a develop- Once Hennepin is up and runmental disability or are chemi- ning for DPPD, that number cally dependent, according to will be there for them to use as the report. well.

3. Tuning into how individuals respond to change, (e.g., sad situations other than death), and respecting their mood shifts, or needs for one or more relationships during these changes.

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In addition to working with the DPPD project, the Ombudsman office provides other advocacy services for persons with disabilities. For example, 4. Increased sensitivity to being better prepared if people are having problems to recognize each individual’s need for support with their residential provider and how we can prepare ourselves to be support or case manager, the office can members. assist them to make sure adequate services are provided. 5. Local faith communities should be contacted to encourage inclusion or for help in under- External Advocacy standing an individual’s needs for faith activities.  If the DPPD project moves forward, consumers said they John Schatzlein is Program Manager of the would also like to see more Office for Persons with disAbilities at Catholic access to external advocacy Charities in St. Paul.

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under any new healthcare initiative. Feedback from consumer forums conducted by Hennepin County so far indicates concern with only having the ombudsman and county offices as resources. What this appears to mean is that consumers want the best care possible and want options, if needed, to be represented by someone outside of the system.

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Tentatively called the “Advocacy Network Line,” the free call will make it easier for consumers and their representatives to get in touch with the Ombudsman’s office about such issues as denial, termination, or reduction of services. “There is definitely a need for more in-depth advocacy,” Brown said. “Hopefully this type of thing will help people with specific questions and concerns that they have.” When a question or concern came in, the office would refer the consumers to one of the agencies in the network, who would handle it. The only thing the Office would require of the agencies would be a uniform data collection system, so that it could analyze the nature of the contacts. Hennepin County DPPD planning team continues to collect feedback on issues including the need for external advocacy options and would appreciate hearing your views. Please contact Julie Wegscheid at 612-596-7097 (TTY 612-5966758) and give her your feedback. Questions regarding the Office of the Ombudsman should be directed to Kathy Dohmerer at 651-297-7853.  Please patronize your Access Press Advertisers — and tell them where you heard about them. They bring you your paper.



July 10, 1999

Summer Events

Summer Fun July 28-Aug 1 Twin Cities Ribfest, a barbecue bash on Mpls’ Nicollet Mall, with June 7-Sept 6 Minnehaha July 1-Sept 28 Poetry free outdoor music begin- Falls concerts, Mon.s and Readings, SASE hosts 40 ning at 11am; 612-673-0900. Wed.s @ 7:00, 612-673-2489. About Town Readings at various coffeehouses, bookstores Aug 22 Cedarfest, Outdoor June 7-July 26 Rice Park, and other venues around St. music festival on Minneapo- free Monday night concerts in Paul & Mpls, most events start lis’ West Bank, at Cedar- downtown St. Paul, across at 7 or 7:30; 612-822-2500 Riverside; 612-673-0401. from Ordway; 651-266-6400. June 24-Aug 12 Marketfest, Aug26-Sept 6 MN State June 8-July 27 Mears Park, arts, crafts, food, street perFair, billed as the “great MN free Tuesday night concerts in formers, every Thur, White get-together;” 651-642-2200. downtown St. Paul, across from Bear Lake; 651-426-2271. Galtier Plaza; 651-266-6400. Sept 4-5 Mill City Music July 16-17 Remember Rondo Festival, Labor Day live June 15-Aug 18 Northrop Days, multicultural celebramusic festival with 100- Plaza, a diverse range of free tion includes parade and fesplus acts on 6 stages in music on the plaza in front of tival, Martin Luther King, Jr. Minneapolis’ warehouse Northrop Auditorium on the Park, St. Paul; 651-646-6597. district; 612-874-0142. Minneapolis campus of the U of M; 612-624-2345. July 16-26 Mpls Aquatennial, May 23-Sept 5 Como Lakemany events including paside Pavilion free nightly June 16-Aug 11 Noon con- rades, boat races, educational concerts; 651-266-6400. certs at the St. Paul campus of events, carnival, various locathe U of M, free music in front tions; 612-331-8371. June 4-Aug 22 St. Anthony of the Student Center. Main Summer Music SeJuly 17 Anoka Riverfest and ries, free series Fri and June 20-Aug 1 free outdoor Art Fair, music, children’s Sat at 7:30, Sun at 4; 612- Sunday concerts (some also games, and more, near Hwy 673-5123. on Thursdays), Phalen Park in 169 and Main St, Anoka. St. Paul; 651-266-6400. June 6-Sept 6 Lake Harriet July 23-25 National Model concerts, almost daily free July 6-Aug 31 Music of the Railroad Assoc., Rivercenmusic performances at 7:30, MN Territory, nine nights of tre, St. Paul; 651-265-4800. 612-673-2489. free performances on Tuesdays at the MN Historical Society, July 24 Lake Street Cultural June 6-Sept 3 Nicollet Island St. Paul; 651-296-6126. Festival, marketplace of venconcerts, free concerts held dors from around the world, on various days throughout July 7-31 Viennese Sommer- music, amusement rides, etc, the summer, 7:30, 612-673- fest, free classical music con- on Lake Street between 2489. certs on Peavey Plaza, 11th & Bloomington Ave and 17th Nicollet, Mpls; 612-371-5656. Ave, Mpls; 612-722-4817.

Shakespeare in the Park presents The Tempest July 17-18 at Minnehaha Falls park and July 27-Aug 1 Anoka County “wheels as art car parade,” July 23-25 at Kenwood park. Fair, truck and tractor pulls, Lyndale Ave. between Lake Shows are free and begin at 7 rodeo, demolition derby, and 28th St, Mpls; 612-824-8198. pm. Call 612-341-0882 for info. games, music, etc. Anoka Co. fairgrounds, off Hwy 160 (old Aug 14-Sept 26 Renaissance The Cromulent Shakespeare Hwy 47) Anoka; 612-427- Festival, 16th century fetival Company present The Com4070. includes artisans, food booths, edy of Errors and As You Like demonstrations, music, 4 mi. It on Fridays and Saturdays in Aug 6-8 Uptown Art Fair, so. of Shakopee on Hwy 169; Aug at 7 pm in Kenwood park. 500 artists, food, live music, 612-445-7361. kids’ games, Lake & Hennepin, Stevie Ray’s Improv Troupe is Mpls; 612-823-4581. Aug15 Lantern Lighting doing performances at the Lake Festival, taiko drum and tradi- Harriet Rose Gardens on Sun.s Aug 7 Frogtown Festival, tional Japanese dance perfor- at 4 pm and 7 pm through Aug. neighborhood celebration, mance, origami & bonsai exhibWest Minnehaha Rec. Ctr, St. its, tea house tours, Como Park Nature Programs Paul; 651-642-2074. & Conservatory, just W of Lex- The city parks offer a wide ington Prkwy @ Horton Ave, variety of free nature programs Aug 7-8 Powderhorn Park St. Paul; 651-487-8201. throughout the season. A parArt Festival, 170 artists, food, tial list includes Garden Pharfamily entertainment, Powder- Aug 20-22 St. Paul River- macy on Sunday, July 11th, 2 horn Park, 15th Ave So. & 35th feast, entertainment, food on pm; Eloise Butler Book Club the riverfront; 651-772-9980. on Tue., July 13th, 7 pm; Tree St., Mpls.; 612-823-1141. Folklore on Sat., July 17 th at Sept 11 MN Orchestra conAug 7-8 Minnesota Irish 2 pm; Children’s Tree IdenHeritage Fair, local and na- cert & fireworks; 651-293-6860. tification on Sat., July 24th at tional musicians, theater & noon; Prairie Hike on Sun., dance performances, semFilm Events July 25th at 11 am; and Waterainars, border collies herding Music & movies on Wed. eves. color Painting in the Garden sheep, St. Thomas College cam- in Stevens Square Park, 18th St. on Sat., July 31st from 1-4 pm, all pus, Summit Ave, St. Paul; 651- & Stevens Ave, Mpls,; 612- at Eloise Butler Wildflower 690-3888. 870-0309. Garden. There will also be a Full Moon Hike at Minnehaha Aug 13-15 Highland Fest, art July 19-Aug 23 Summer Falls Park on Sat., July 31st at 9 fair, music, historic monument movies & music on Mon. eves. pm and Canoeing the Chain of tours, kids’ activities, etc., Ford in Loring Park, Willow St. @ Lakes on Sat., July 31stat 10 am. Parkway & So. Cleveland West 14th, Mpls, music at 7 pm, Programs are free, but pre-regAve, St. Paul; 651-699-9042. films at dusk; 612-375-7650. istration is required, as class size is limited. Call 612-370Aug 14 Lyn-Lake St Fair, four Minneapolis Parks 4903 to register.  music stages, poetry slam, Theatre in the Parks

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July 10, 1999

WIIA Passes Senate O n June 16, 1999, the U.S. Senate passed S. 331, the Work Incentives Improvement Act (WIIA) 99-0. The focus now shifts to the House Ways and Means Committee. The centerpiece of the bill is an extension of eligibility for Medicare and Medicaid for SSDI and SSI beneficiaries who want to work.

Perhaps the biggest barrier to employment for people with disabilities is the threat of losing health care coverage once earnings rise above strict limits in the SSI and SSDI programs. S. 331 also includes the “Ticket to Independence” proposal that would provide vouchers to adults with disabilities to purchase employment, training and rehabilitation services from private providers outside of the current public vocational rehabilitation (VR) monopoly. S 331 also contains several important beneficiary protections, including suspension of continuing disability reviews (CDRs) based on a person’s work status and a new expedited reentry to cash benefits if a person with a disability then loses their employment.

Controversy Over “Offset” Stalled Senate Action

For more than two weeks, a dispute over the “offset” revenue provision in S 331 delayed action by the full Senate. Senator Phil Gramm (R-TX) objected to inclusion of a foreign tax credit change that provided the $800 million in offsetting revenue needed to finance the cost of the bill. Senate sponsors agreed to remove the provision and pass the bill without an “offset” to pay for the bill (most of the costs associated with S 331 are related to extended health benefits for people leaving the SSI and SSDI rolls). As part of the agreement to bring the bill to the full Senate, the supporters of S 331 - including President Clinton agreed to find unspecified cuts in entitlement programs later this year. Action Now Shifts to House Ways and Means Committee The next step for the Work Incentives Improvement Act is the House Ways and Means Committee. Instead of moving forward with either the Senate version (S 331) or the version reported by the House Commerce Committee last month

(HR 1180), Committee leaders are expected to move forward with their own bill, HR 1091. Advocates are now working hard to ensure that changes are incorporated into HR 1091 to make it more responsive to the needs of people with disabilities who want to get off of SSI and SSDI. HR 1091 does not contain the 6-year demonstration extension of Medicare for SSDI beneficiaries. Likewise, HR 1091 does not contain protections for people who leave the rolls and then face a “work-related” CDR or the expedited re-entry onto cash benefits for people temporarily unable to work. However, HR 1091 does contain the same new state Medicaid eligibility options that are in both S 331 and HR 1180. HR 1091 also omits several provisions in S 331 that could allow state VR agencies to restrict access to VR services for individuals who “deposit” their “ticket” with a private provider not affiliated with VR. Disability advocates support language in HR 1091 that would prevent VR agencies from restricting access to VR services through prior written agreement requirements for private providers. 

New Work Incentive Options by Commissioner, Michael O’Keefe


on’t sell people short. Give them a chance and they will surprise even themselves.

tion will open up more than work opportunities for people with disabilities. The increase in income and asset limits may enable someone to save modestly for essential needs, such as a down payment on a house, a lift-equipped vehicle, or a retirement fund. It also opens up a tremendous untapped potential of people with valuable skills, education and experience to bring to the workplace. This is a win-win for all of us.

of Human Services are proud to have been partners in passage of this landmark legislation, and look forward to the hope and opportunities it will bring in the future. 

This credo lies at the heart of a Ventura administration proposal recently passed by the Michael O’Keefe is the ComMinnesota Legislature. The missioner of the Minnesota Medical Assistance work inDepartment of Human Services centive option opens up new work opportunities for people Work Incentive with disabilities by allowing Opportunities them to work as much as they want without sacrificing critiEligibility cal Medical Assistance (MA) Similar legislation is advanchealth benefits. ing at the federal level. The Work Incentives Improvement To qualify for the new MA The new Medical Assistance Act has passed the Senate work incentive option, an (MA - Minnesota’s Medicaid unanimously and is being heard individual must: program) work incentive op- in the House. It is being hailed tion will enable approximately nationwide as the most impor- Be certified disabled by ei1,000 - 1,200 people a year, tant legislation affecting ther the Social Security most already eligible for health people with disabilities in Administration or State care assistance, to keep their nearly a decade. Minnesota Medical Review Team MA health benefits, even if has always been in the foretheir income and assets in- front with initiatives for people Be employed (there are no crease with work. Individuals with disabilities, and we are limits on earnings or hours buy into the program by pay- proud that we have once again worked) ing a premium on any income paved the way. Not have assets exceeding above program income limits. Although some would still There is more to come. Minne- $20,000 (excludes retirement need the full MA assistance sota is one of 12 states to re- and medical expense acpackage, many would only ceive grants from the Social counts and other assets norneed MA as a supplement to Security Administration to re- mally excluded under MA, pay for personal care assis- move barriers to employment such as home, household/ tants and other long-term ser- for people with disabilities. The personal goods, vehicle, etc.) vices not covered by Medi- Minnesota departments of care or employer-based insur- Human Services and Economic Pay a 10-percent premium on ance. Security are collaborating on gross income that exceeds the $517,000 grant, which will 200 percent of federal povAn estimated 71 percent of establish a Work Incentives erty guidelines, which is: working-age adults with dis- Assistance Center to counsel $16,476/year or $1,373/ abilities in this country are people on the impact earned month for one person unemployed. Surveys tell us income will have on their health 70 percent of those adults want care and other needed ben$22,116/year or $ 1,843/ to work. We know the most efits. The center is scheduled month for a family of two. effective way to help people to open next fall. work and become independent is to assure they have access By the time you read this, the The premium option will ento adequate health coverage. new MA work incentive op- able individuals with income The MA work incentive op- tion will be in effect (July 1, beyond program limits to tion represents the best of what 1999). Counties will be receiv- “buy down” to the income we should be doing as a gov- ing bulletins describing proce- limits by paying a premium, ernmental agency to help dures. Individuals can apply based on a sliding-fee scale. people become self-sufficient for the new MA option for — remove obstacles and pro- employed people with disabili- Income and assets of a vide opportunities for people ties by contacting their county spouse are not counted. to be self-reliant and succeed. human service agency. People over age 65 do not This is how we also break the link between disability and This effort was successful only qualify for this program. poverty — providing assis- because of tremendous tance that builds on people’s collaboration among many Work incentive legislation own efforts to become self- partners; legislators, state will allow people with dissufficient. agencies, advocacy organiza- abilities to use their MA bentions and individuals with dis- efits to supplement emThe MA work incentive op- abilities. We at the Department ployer-based health coverage, Medicare or other thirdparty health coverage. Applying for the new MA option

Home Care Services Available 24 hours per day Specializing in the care of Children • Adults • Elderly

Individuals can apply for the new MA work incentive option by contacting their county human service agency.

We provide Personal Care Assistants • Home Health Aides • Homemakers • Live-in Caregivers • Nursing Our Rehabilitative Services include: Physical/ Occupational/Speech/Respiratory Therapies PCA Provider Organization MA/Waiver/Medicare Certified

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July 10, 1999


Directory of Organizations for Persons with Disabilities A A Chance to Grow, Bob DeBour, 612-521-2266 AccessAbility, Inc., Bonnie Hammel, 612-331-5958 Access Project, Lynell Lindberg, 6405-2482 V, 452-1537 TTY Access to Employment, Cynthia Newbecker, 612-870-0578V/TTY Accessible Space, Inc., Stephen Vanderschaaf, 651-645-7271 Achilles Track Club-Uptown, Richard Schwartz, 612-825-3741 ACT-UP MN, Robert Halfhill, 612-870-8026 Adult Basic Education/Special Needs, Betty Sims, 651-290-4729 Advocating Change Together, Kathy Sanders, 651-641-0297 Alliance for Mentally Ill - Wash. Co., Bob Rafferty, 651-439-3800 Alliance for Mentally Ill of MN, 651-645-2948 ALS Assoc. (Lou Gehrig's Disease), 612-672-0484 Altern. for People with Autism, Inc, John Makepeace, 612-560-5330 Alzheimer’s Association, John Kemp, 612-830-0512 Am. Behcet's Disease Assoc., 651-645-9475, 1-800-723-4238 American Cancer Soc.- MN Div., 612-925-2772, 1-800-227-2345 Am. Cancer Soc. (Ramsey Co.), 651-644-1224 Am. Council of Blind Services, James Olsen, 612-332-3242 Amer. Diabetes Assoc., Al Barton, 612-593-5333 Amer. Heart Assoc., Robin Durand, 612-835-3300 American Lung Assoc., Dorothy Berg, 651-227-8014 Anoka Metro Reg. Treatment Ctr., Judith Krohn, 612-576-5500 ARC - Anoka County, Marianne Reich, 612-783-4958 ARC - Carver County, Susan Hines, 612-448-8829 ARC - Hennepin County, Kim Keprios, 612-920-0855 ARC - MN, Bob Brick, 612-827-5641, 800-582-5256 ARC - St. Croix Valley, Dick Ulrich, 651-439-0721 (Ans. service) ARC - Suburban, Joan Fawcett, 651-890-3057 ARC - Ramsey, Marianne Reich, 651-778-1414 V/TTY ARRM, Bruce Nelson, 651-291-1086 Arthritis Foundation, Deb Dressely, 651-644-4108 Assoc. of Late-Deafened Adults, Everet Chard, 612- 871-7349 TTY, 651-297-5353 V/MRS B Blind, Inc., Joyce Scanlan, 612-872-0100 Boy Scouting for People w/ Spec. Needs, Bob Hannah, 651-224-1891 Brain Injury Assoc. of MN, Tom Goode, 612-378-2742, 800-6696442 Broken Wing Outreach, Mark Davis, 612-866-0462 C Camp for Child. & Teens w/ Epilepsy, Deborah McNally, 651-6468675, 1-800-779-0777 Camp Winnebago, Barb Cage, 507- 724-2351 Candle in the Window, Kathy Szinnyey, 1-502-895-0866 Capable Partners, 612-542-8156 Catholic Charities, Program for People with Disabilities, John Schatzlein, 651-222-3001 Center for Learning & Adaptive Student Serv. (CLASS), Sue Carlson, 612-330-1053, 612-330-1748 Chemical Injury Resource Assn. 651-643-4220 Children’s/United Hospital, 651-220-6000 Chronic Fatigue Syndrome Association of Minnesota, 612-943-2769 Client Assist. Project (CAP) MN, 612-332-1441 Climb Inc., Peggy Wetli, 612-227-9660 Closing the Gap, MaryAnn Harty, 1-507-248-3294 Commun. Action Council, Mary Ajax, 651-431-2424 (HELP Line) Communication Center for the Blind, Dave Andrews, 651-642-0513 Community Bridge Consortium, Pat Svendsen, 651-770-4744 V/TTY Comprehensive Seizure Ctr, Neurology,Regions Hosp. 651-221-3700 Cooperating Community Progs, Sherry Wolf-Halonen, 651-641-0041 Courage Center, Tony Lebahn, 612-520-0520 612-520-0245 TTY Crippled Child. Relief, Marilyn Blore, 612-520-0176, 520-0245 TTY Cystic Fibrosis Foundation, Linda Mahoney, 612-338-0885 D Dakota Co. Social Services, 612-891-7400 Deaf Blind Services MN, Mary Hartnett, 612-871-4788 V/TTY D.E.A.F., 651-296-7393 V/TTY Disability Institute, Wendy Brower, 612-935-9343 Disability Services, City of Blmgtn, Judith Hansing, 612-881-5811, Ext. 320, Ext. 409 - Nancy Schuett TTY 612-887-9677 Div. for Persons w/ Developmental Disabilities, 651-296-2160 Div. of Rehab Services, 651-296-5616 or 800-328-9095, 651-2963900 TTY Down Syndrome Assn. Of MN, Jim Belka, 612-797-0110 DRAGnet, Gordon Gillesby, 612-378-9796 V/TTY Duluth Consumer & Family Regional Resource Center, 218-728-3531 E East Suburban Resources, Sue Schmidt, 651-351-0190 or MRS 800627-3529 ELCA Committee on Disabilities, Linda Larson, 612-788-8064 Emotions Anonymous, Karen Meed, 651-647-9712 Epilepsy Found., 651-646-8675, 800-779-0777, 651-297-5353 TTY F Fraser Community Services, Diane Cross, 612-861-1688 Friendship Ventures, 651-274-8376 Functional Industries, Laurie Cameron, 612-682-4336 Gay and Lesbian Helpline, 612-822-8661 V/TTY, 1-800-800-0907 Gillette Children’s Hospital, Lynn Carpentier, 651-229-3845 Goodwill Indus./Easter Seal, Michele Heinbigner, 651-646-2591 V, 651-646-0424 TTY

H Hearing and Service Dogs of MN, Alan Peterson, 612-729-5986 V, 612-729-5914 TTY Hearing Impaired Prog., Joyce Dougaard, 651-627-2623 V/TTY Help Yourself, Sara Meyer, 612-497-2800 Helping Paws Of Minnesota, 612-988-9359 Hemophilia Foundation of MN, 612-323-7406 Henn. Co. Lib. Homebound Serv., Becky Mobarry, 612-541-8547 612-541-8604 TTY Henn. Co. Mental Health Ctr., Joel Pribnow, 612-348-4947 Health Psychology Clinic, U of M, 612-624-9646 Homeward Bound, Inc., Noel Mooneyham, 612-566-7860, I Independence Crossroads, Leah Welch, 612-854-8004 Indian Family Service, Maggie Spears, 612-348-5788 Institute on Community Integration,, Vicki Gaylord, 612-624-4848 Interact Center for Visual and Performing Arts, 612-339-5145 V, 612339-6465 TTY Interstate Rehabilitation Center, Mary Augustine, 612-338-7108 K Kaposia, Cindy Amadick, 651-224-6974 L League of Women Voters, 651-224-5445 Learning Disabilities Program (Family Services of St. Paul), Lory Perryman, 651-222-2696 Learning Exchange, Lynn Dennis, 612-885-8531, TTY 612-885-8590 Legal Advocacy for Persons with Dev. Disabilities, 612-332-1441 Legal Aid Society of Minneapolis, Laurie Moser, 612-332-1441 Leukemia Society, 612-545-3309 Longfellow HandyWorks, chore services for elderly and people with disabilities, David Fee, (Henn. & Anoka counties) 612-721-8898 Lupus Foundation of Am., MN Chapter, 612-375-1131 Lyme Disease Network - MN, Sherri, 612-441-2857 M MELD (MN Early Learning Design), Libby Johnson, 612-332-7563 V/TTY Mental Health Association of MN, Kathleen Kelso, 612-331-6840, 1-800-862-1799 Mental Health Consumer/Survivor Network, 651-637-2800, 1-800383-2007 Mental Health Law Project, Pat Siebert, 612-332-1441 Methodist Hosp. Senior Connection, Monica Carlson, 612-932-5041 Methodist Hosp. Stroke Supp. Grp., Pat Srickler, 612-932-5499 Methodist Hosp. Parkinson’s Clinic, Ruth Hagesteun, 612-932-5495 Metro Assoc. for Hearing Impaired, Mary Jean Jacobson, 651-6866479 V/TTY Metro Ctr. for Independent Living, 651-646-8342 V, 651-603-2001 TTY Metro Mobility, 651-602-1111, 651-221-0014 TTY Metro North Adult Basic Education, 612-755-6626 Metro Regional Service Ctr. for Deaf & Hard of Hearing People, Marie Koehler, 651-297-1313 TTY, 651-297-1316 V Metro Work Center, Inc., 612-729-738 Midway Training Services, Barbara Kale, 651-641-0709 Midwest Special Services, Gene O’Neil, 651-778-1000 Mpls. Advisory Commitee for People with Disabilities, Margot Imdieke 651-296-6785 Mpls Rehabilitation Center, Dave Wood, 612-879-5499, 612-8795519 TTY MN AIDS Project, Lorraine Teel, 612-870-7773, 612-870-0700 MN Assoc. for Child. Mental Health, 651-644-7333, 1-800-528-4511 MN Assoc. of Deaf Citizens, Inc., Douglas Bahl, 612-757-5998 TTY MN Bio Brain Assoc., Charlotte Burns, 612-922-6916 MN Children with Special Health Needs, 651-215-8956, 1-800-7285420 V/TTY MN Commission Serving Deaf & Hard of Hearing People, 651-2977305 TTY MN Comprehensive Health Assoc., Floyd Robertson, 612-881-6741 MN Consortium for Citizens With Disabilities, Tom Brick, 651-2963478 MN Dept. of Human Services, Traumatic Brain Injury Program, 651-297-7511 MN Depressive & Manic Depressive Assoc., 612-379-7933 MN Developmental Achievement Center Assoc, 651-647-9200 MN Disability Law Ctr., 612-332-1441 MN Foundation for Better Hearing & Speech, Sharaine Rawlinson, 612/223-5130, 800/228-2506(V/TTY) MN Gov. Council On Dev. Disabilities, Colleen Wiech, 651-296-4018 V, 651-296-9962 TTY MN Multiple Sclerosis Society, 612-335-7900, 800-582-5296 V/ TTY MN Relay Service, 1-800-627-3529 MN State Council on Disability, Margot Imdieke, 651-296-6785 MN State Services for the Blind, 651-642-0500, 800-652-9000 Muscular Dystrophy Assoc., Lisa Pachan, 612- 832-5517, 612-8325716 St. Paul office MultiplePersonality Disorder Consumer Advocacy Network Hotline 612-879-5441

N National Ataxia Foundation, Donna Gruetzmacher, 612-553-0020 Nat’l Center for Youth w/ Disabilities, Elizabeth Latts, 612-6262825, 612-624-3939 TTY National Spinal Cord Injuries Association, Roger 651-464-7559 North Suburban Consumer Advocates for the Handicapped (NSCAH), Jesse Ellingworth, 612-783-4708, 612-783-4724 TTY Northwest Hennepin Human Services Council, 612-493-2802 V/TTY O Office for Students w/ Disabilities, Mpls. Community and Technical College, Melissa Newman, 612-341-7205 V/TTY Ombudsman for Mental Health & Mental Retardation, 651-296-3848 1-800-657-3506 Opportunity Partners, 612-938-5511, 612-930-4293 TTY OUT Front MN, 612-822-0127 V/TTY 1-800-800-0350 Owobopte Industries, Inc., Anne Boie, 651-686-0405 P PACER Center, Inc., Pat Bill, 612-827-2966 V/TTY Parent Support Network (EBD/ADD/ADHD/LD), 612-783-4949 People, Inc. Epilepsy Services, Anne Barnwell, 612-338-9035 The Phoenix Residence, Judy Douglas, 651-227-7655 Pilot City Mental Health Center, Sy Gross, 612-348-4622 Pilot Parents, 651-778-0727 V, 651-778-0738 TTY POHI District Consultants-Mpls. Public Schools, Barb Reynolds or Judy Azar - District Consultants, or Jim Thomas - Anwatin Coord., 612-627-3150 Presbytery Disability Concerns Comm, Carolyn Peterson, 651-4892672 Project Compass, Adult Disability Program - Winona Comm. Educ., Helen Newell, 507-454-9450 Voice/TTY Project Enhance, Deb Clark, 612-627-2925 V 612-627-3131 TTY Project SOAR, Vaughn Krake, 612-470-2855 V R Radio Talking Book, 651-642-0500 Regional Transit Board, 651-292-8789, 651-229-2715 TTY Rehab Services Branch, 651-296-5156, 800-328-9095, 612-269-3900 TTY Rehabilitation Centers, MRCI - Burnsville, 612-894-4680 MRCI - Carver/Scott 612-445-6811 MRCI - Chanhassen, 612-474-6469 MRCI - Chaska, 612-448-2234 MRCI - Fairmont, 507-238-4388 MRCI - Industrial Operations, 507-345-5865, Steve Ditschler MRCI - Lakeville, 612-898-5025 MRCI - Mankato, 507-345-4507, Pam Year MRCI - New Ulm, 507-354-2758 Reuben Lindh Learning Center, Dorothy Mollien, 612-721-5111 Rise, Inc., 612-786-8334 S Self Help for Hard of Hearing (SHHH), Leslie Cotter, 651-772-4931 V/TTY Sight & Hearing Association, 651-645-2546 SILC-Statewide Independent Living Council, 651- 296-5085 V, 651297-2705 TTY Sister Kenny Institute, Dana May, 612-863-4622 Ski for Light, Judy Dixon, 612-827-3232 Southeastern MN Center for Ind. Living(SEMCIL)Frank 507-2851815, 507-285-0616 TTY So. MN Ind. Liv. Enterprises and Serv. (S.M.I.L.E.S.), Alan Augustin, 507-345-7139 So. Suburban Adaptive Rec., Jennifer Watson, 612-861-9360 V/TTY Spina Bifida Association of MN, Lisa Schaffee, 651-222-6395 St. Paul Advis. Comm.for People w/Disabilities, Alberto Quintela, 651-266-8510 St. Paul Rehabilitation Ctr, 651-227-8471 V, 651-227-3779 TTY STAR Program-Governor’s Council on Technology, Rachel Wobschall, 651-296-2771, 651-296-9478 TTY T Traumatic Brain Injury-TBI Metro Services, 612-869-3995 TSE, Inc., Phil Saari, 651-489-2595 Twin Cities Autism Society, 612-339-5212 Twin Cities/MN Chapter of National Sjogren’s Syndrome Assoc., Marie Miner, 463-8222 U United Blind of MN, Inc., 612-391-3699 United Cerebral Palsy of MN, JoAnn Erbes, 651-646-7588, 1-800328-4827, ext.1437 UofM Disability Services, Sue Kroeger, 612-626-1333 V/TTY UofM Disabled Stud Cultural Ctr, 612-624-2602, 612-626-7003 TTY V VSA MN, 612-332-3888 V/TTY Vinland National Center, Beth Muligan, 612-479-3555 V/TTY Vision Loss Resources West, 612-871-2222 Vision Loss Resources East, Steve Fischer, 651-224-7662 Voices for Disability Rights, Dorothy Balen, 612-973-0103 Volunteer Braille Services & Large Print, Jean Zolick, 612-521-0372 W West Hennepin Community Services, Mary Perkins, 612-988-4177 Wilderness Inquiry, Greg Lais, 612-379-3858, 800-728-0719 V/TTY

If your organization would like to be included in the Directory of Organizations, contact Access Press at Suite 185N, 1821University Ave.W.• St. Paul, MN 55104 • 651-644-2133



July 10, 1999

Sports Beat

Accessible Arts Performances

Minnesotans Compete In Swimming Championships by Craig McClellan and Luke Pedersen


he 1999 USA Swimming Championships for Swimmers with a Disability was held June 11-13 at the University of Minnesota Aquatic Center. Four Minnesota athletes were a part of a field of 140 swimmers, which this year included international athletes, who competed in internationallyrecognized swimming events. The event was sponsored by Courage Center in conjunction with the Adapted Swimming Committee of USA Swimming and the University of Minnesota Aquatic Center. The Championships were sanctioned by USA Swimming through Minnesota Swimming. The four Minnesota competitors were Amy Picht, age 21 (Unattached, meaning no team/club); Surekha Stelberg, 17 (Team Courage); Judy Mielke, 19 (Stingrays); and Dan Kelly, 22 (Unattached). Each swimmer fit a certain classification for an event, depending on certain physical criteria. For example, Picht swam as an S6, while Stelberg was S7.

In event finals from Day One, Picht took 4th in the women S6 100 Meter (M) freestyle with a time of 2:08.41. Picht also swam in the women S6 200M backstroke, finishing with a time of 5:41.37. In the women S7 100M freestyle, Stelberg took 7th place with a mark of 2:04.28. In the men S11 100M freestyle, Dan Kelly finished 2nd with a mark of 1:05.70. The Minnesota contingent was back competing in event finals on Day Two. In the women S7 50M freestyle, Stelberg finished 7th in a time of 52.95. Picht finished 3rd in the women S6 100M backstroke with a mark of 2:25.51. Kelly took 1st in the men S11 100M backstroke with a time 1:15.71. Kelly also competed in the men S11 100M butterfly clocking 1:16.57. On the final day of competition, Picht finished 4th in the women S6 200M freestyle with a time of 4:27.70. In the women S7 200M freestyle, Stelberg took 7th knocking 19 seconds

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off her preliminary time with a mark of 4:26.38. Stelberg also swam in the women S5 100M breaststroke, finishing 1st with a time of 3:31.36. Judy Mielke took 4th in the women S11 100M breaststroke clocking 2:23.24. Jason Wening from Ann Arbor, Michigan was selected as the Phillips 66 Male swimmer of the meet. Over the three day meet he won four gold medals, set two world records and four American records. Melanie Easter of Great Britain was chosen Phillips 66 Female swimmer of the meet winning five golds, and setting three world records. The second U.S. Disability Championships attracted 140 elite swimmers who are deaf and blind/visually impaired, as well as those with physical and mental disabilities. All internationally-recognized swimming events are offered. USA Swimming is the first and only national sports governing body within the United States Olympic Committee family to conduct a national-level championships for athletes from all disability populations. The 2000 U.S. Disability Championships will be held in Indianapolis and is the selection meet for the Paralympic games in Sydney, Australia.

American Sign Language * 8/7, Sat., 8:00 p.m., “Noises Performances (ASL) Off”, Park Square Theatre, St. Paul 7/16, Fri., 8:00 p.m., Picasso at the Lapin Agile, Rochester * 8/12, Thur., 9:00 p.m., “Guys Civic Theatre, Rochester & Dolls”, New Hope Outdoor Theatre, 4401 Xylon Av. N., 7/16, Fri, 7:30 p.m., The School New Hope for Scandal, Guthrie Theater, Minneapolis 8/14, Sat., 1:00 p.m., “Ah, Wilderness”, Guthrie Theater, 7/23, Fri., 7:30 p.m., “The Pi- Minneapolis rates of Penzance”, Lyric Arts Pocket Theater, Anoka (612 8/20, Fri., 7:30 p.m, “Ah, Wil422-1838 - Call relay service derness”, Guthrie Theater, first) Minneapolis * 7/23, Fri., 7:00 p.m., “The Stinky Cheese Man” SteppingStone Theatre, Weyerhaeuser Auditorium, Landmark Ctr., St. Paul

* 7/23, Fri., 7:00 p.m., “The Stinky Cheese Man” SteppingStone Theatre, 8/1, Sun., 1:00 p.m., “Samson Weyerhaeuser Auditorium, Agonistes”, Fringe Festival, Landmark Ctr., St. Paul Howard Conn Fine Arts Center, Minneapolis 8/1, Sun., 1:00 p.m., “Samson Agonistes”, Fringe Festival, 8/1, Sun., 4:00 p.m., “The Day Howard Conn Fine Arts Cenof the Lemming”, Fringe Festi- ter, Minneapolis val, Red Eye Theatre, Minneapolis 8/1, Sun., 2:00 p.m., “Independence”, Theatre in the Round, * 8/1, Sun., 2:00 p.m., Minneapolis “Rumpelstiltskin”, Stages Theatre Comp. (formerly * 8/8, Sun., 2:00 p.m., Child’s Play), Hopkins “Rumpelstiltskin”, Stages Theatre Company (formerly * 8/6, Fri., 8p.m., “The Dining Child’s Play), Hopkins Room”, Lex-Ham Theatre, Concordia College Theatre, St. Paul ***** Osseo/Maple Grove/Park Center and Humboldt-St. Paul were crowned state champions for its victories in the 1999 State Adapted Softball Tournament,

Sports - cont. on p. 11



Computerized Desktop publishing: Brochures Catalogs Direct Mailings Flyers Newsletters Newspapers Project Mgmt Resumes Scanning ... & more!

Ellen Houghton

Audio Described Performances (AD)


* 8/7, Sat., 8:00 p.m., “Noises Off”, Park Square Theatre, St. Paul 8/14, Sat., 1:00 p.m., “Ah, Wilderness”, Guthrie Theater, Minneapolis 8/20, Fri., 7:30 p.m, “Ah, Wilderness”, Guthrie Theater, Minneapolis * Asterisked performances are eligible for reduced admission prices through the Access to Theatre project. Contact the theater or VSA Arts of Minnesota (612 332-3888) for further details. Access to Theatre is a program funded through United Arts that encourages a broader participation in live theater by Deaf individuals and by people who are blind. It is a joint project of VSA Arts of Minnesota, D E A F, Inc., the Minnesota Association for Community Theatres and the Guthrie Theater. The project provides reduced priced tickets for individuals who are Deaf or Blind for selected performances by selected theater companies in Hennepin, Ramsey and Anoka counties. For listings of participating theaters and productions, contact VSA Minnesota at 612-332-3888.

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July 10, 1999


Access To Employment ACCOUNTINGMANAGER Gray Plant Mooty, a 120+ attorney law firm in downtown Mnneapolis, is seeking an accounting manager who reports to Director of Finance. Responsibilities include general ledger, month-end reporting, budget development & analysis, and supervision of staff. Four-year degree in accounting or finance, plus prior supervisory experience required. Legal or service industry experience preferred. Send resume with cover letter to: Human Resources, Gray Plant Mooty, 3400 City Center, 33 S. 6th St., Mpls, MN 55402 or fax to 612-333-0066. Equal Opportunity and Affirmative Action Employer FAMILY & CHILDREN’S SERVICE Progressive family service agency providing mental health counseling, policy advocacy & family support services, has these openings: • Branch Director • Community Builder — NW Hennepin • Community Organizer — Jobs & Housing • Policy Advocate • Psychotherapists For more information or to apply, contact HR Manager, Family and Children’s Service, 414 S. 8th St., Mpls, MN 55404 or call 612-341-1621. EO/AA Employer PROGRAM COORDINATOR VSA Arts MN seeks a 20 hr./ wk. person to coordinate a new program creating resources and training opportunities to link Twin Cities performing arts organizations and people who are blind and people who are deaf. BA or equivalent in arts or disability related area. Flexible scheduling. Submit letter & resume (with ref.) by July 16 th to Craig Dunn, 528 Hennepin Av., #305, Mpls., MN 55403.



Faegre & Benson LLP, Minnesota’s second largest law firm, is seeking an Electronic Services Librarian. This position will assume responsibility for Technical services, develop content for Intranet research pages, coordinate user education, assist with the evaluation and implementation of CD-ROM and Internet resources, perform original cataloging and act as database administrator for library catalog and related databases. Interested candidates should have a BA in Library Science, (prefer MA) or Information Management, prefer experience in cataloging and working with an automated library system and bibliographic utility. Law library or business library experience desirable. Faegre & Benson LLP offers competitive wages and an excellent benefits package. For additional information about Faegre & Benson, visit our web site at Please submit resume and salary history to: MS3979:

Courage Center, a nationally renowned rehab & resource center for people with disabilities, seeks an Accts Rec. Coord. The selected candidate will be responsible for daily collection & reconciliation of cash, credit cards, & checks in a computerized environment; and run & reconcile various acctg, sales, revenue reports, & audit trails. Req 2 yrs exp in a computerized accts rec environment. Should have strong computer skills, and ability to handle high volume of work. Must be a self-starting, mature, dependable & honest indiv. Send cover latter and resume to Edgar Johnson, Employment Rep, Courage Center, 3915 Golden Valley Rd, Golden Valley, MN 55422. FAX: 612-520-0577. EOE. We welcome diversity.

FAEGRE & BENSON LLP 2200 Norwest Conter 90 South Seventh Street Minneapolis, MN 55402 Fax: (612) 336-3846 Internet: Equal Opportunity Employer


Maple Grove Construction Company looking for a full time qualified administrative assistant. Must be proficient with Microsoft Word & Excel. Experience preferred. Benefits include leave with pay; health, dental & disability insurance; pension plan. NO PHONE CALLS PLEASE. InADVERTISING SALES terested candidates send reREPRESENTATIVE sume with past work history ACCESS PRESS is seeking a and salary requirements to: part-time advertising sales J&L STEEL ERECTORS representative. Experience Attn: Deneen Flanary selling print ads preferred. 8984 Zachary Lane North Salary plus commission. Send Maple Grove, MN 55369 resume, with cover letter, to: ACCESS PRESS, Suite AA/EOE 185N, 1821 University Ave. W., St. Paul, MN 55104

PRESCHOOL TEACHER (FT) Full-time preschool teacher needed to teach in early childhood learning center. Must be teacher qualified. Includes benefits. The idea candidate should have experience working in a team environment, process strong interpersonal skills, have a creative edge, and have an understanding of early childhood learning styles. Experience working with diverse cultures helpful. Questions contact: Sheila at 612.872.2764. Apply in person: LNB, 1925 Nicollet, Mpls., Mon-Thurs 9-4 p.m. Agency application required. EOE

University of Minnesota ASSISTANT COMMISSIONER Extension Service Agroforestry Development The Minnesota Department of Human Services (DHS) is looking for an experienced leader to manage and shape several of the Extension Educator, Agro-for- Department’s major programs. The Assistant Commissioner for estry Development, Staples Ag Economic and Community Supports serves as a member of the Center, Central Lakes College, Commissioner’s senior management team and is responsible for Staples, MN. Covering Cen- managing a variety of public programs designed to help Mintral and West Central Minne- nesotans whose financial resources are inadequate to meet their sota. basic needs. The cornerstone of these efforts is the Minnesota Family Investment Program (MFIP), the state’s welfare reform Required: A bachelor’s de- initiative. Other areas of responsibility include: child support gree; at least one degree in a enforcement; cash assistance, food programs and employment natural resources or agricul- programs for adults without children; services for people who tural field; course work or pro- are deaf and hard of hearing; the MAXIS computer system used fessional experience in agro- by state and county staff to determine eligibility for various forestry systems; professional benefits; and program assessment and quality control. experience in the design, delivery, and evaluation of educa- The best candidates will have significant experience in managtion or training programs; ex- ing public assistance or related programs, knowledge of public cellent oral and written com- and private financing mechanisms for these programs, and the munications; experience work- ability to think innovatively about how state government ing with diverse groups and should or can support low income workers and families with collaborative programs. children. The successful candidate will understand how to leverage community interests and resources, and will have Preferred: A master’s degree; expert skills in negotiation, conflict resolution, strategic planexperience, college course ning, outcome measurement and interpersonal relations. A work or training in watershed Master’s degree in a relevant field is desirable. management, agricultural production systems, business Public service is rewarding and offers the opportunity to make management, and resource a difference in the lives of thousands of people. At DHS, we economics; knowledge of mar- work with many partners to empower those in our society who kets and marketing opportuni- are most in need to achieve self-sufficiency and independence. ties relating to agroforestry For more information about us, see our website at products. For information about the benefits of state employment, see Deadline for materials: Octo- benefits.htm. ber 4, 1999. Send cover letter and resume ASAP to: Human Resources To obtain complete position Director, Minnesota Department of Human Services, 444 announcement & application Lafayette Road, St. Paul, MN 55155-3820, or fax to (651) materials, call U of MN Human 282-5340. Resources at 612-624-3717, An Equal Opportunity Employer or download from Web page: from p. 10 tension/jobs.html held June 4-5 at Champlin Park the quarter finals. They folThe U of MN is an equal oppor- High School. In the POHI lowed that with an easy 13-1 tunity educator and employer. (physical and other health im- victory in the semifinals bepairments) Division, Osseo/ fore a final, decisive 14-2 win Maple Grove/Park Center rode over Hopkins/Robbinsdale/ MEDICAL BILLER a series of close victories into Wayzata earned them the State National Billing seeks a full/ the finals, where the pressure Championship. Mounds View/ part-time medical biller. Salary stayed high. In the champion- Irondale/Roseville and North @ $46K per year. PC required. ship game, Osseo/Maple Suburban squared-off for Third No experience needed. Will Grove/Park Center required an Place. Mounds View/Irondale/ train. Call 1-888-251-7475. extra inning to defeat White Roseville proved to be too Bear Lake, winning the State much, winning 15-4 in six inChampionship 6-4 in eight in- nings.  nings. Humboldt-St. Paul and Mounds View/Irondale/Rose- Send your comments and sports ville squared-off for third place. related stories to:Craig Humboldt-St. Paul got a 9-5 McClellan and Luke Pedervictory. In the MH (cognitive sen, Phone: (612) 362-8406, impairments or mental handi- Mail: 215 Broadway St. caps) Division, eventual cham- NE, Suite 103, Minneapopion Humbolt-St. Paul over- lis, MN 55413, or Email: whelmed its opponent 19-1 in


Ramsey Cty

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July 10, 1999


Reach 10,000 Active, Interested Readers with ACCESS PRESS Classifieds. $8 up to 20 words, 35¢/word thereafter. Mail with check to: ACCESS PRESS, 1821 University Ave W, #185N, St. Paul, MN 55104; (651) 644-2133 FOR SALE 3 and 4 Wheel Mobility Scooters, Scooter lifts and ramps. New scooters from $1,975.00. Free in-home demonstration. Sales and services. FastServ Medical. (320) 654-0434 (St. Cloud) or toll free 1-888-5650434. 3 and 4 Wheel Scooter Repair. We repair Amigo, Bruno, Electric Mobility, most brands. New and used scooters for sale. Buy, sell & trade. FastServ Medical. (320) 654-0434 (St. Cloud) or toll free 1-888-5650434.

1979 E-150 Ford van, 351 windsor V-8, Crowriver rear lift, paid $1700 3 yrs. ago and has been driven 2,500 miles or less a year. Wheelchair tie-downs, motor put in at 78,000 mi., has 142,000 mi. now. Must see to appreciate! $1,700 or best offer. Ken 612-898-3587 (owner), Barb 612-898-2735, Ed 612-8984118. 1997 Ford Econoline conversion van. Hydraulic wheelchair lift. 35,500 miles, excellent condition. Lots of extras, asking $22,000. Call Mike @ 612-906-4000.

UNILIFTwheelchairlift. Works 1997 Bruno curbside wheel- great! Will fit mini or full size chair/scooter electric lift. V.G. van. $500.00. Call 612-835condition. Set up for pick-up 4174.left msg truck. $100.00 firm. Carole— 612-767-9805, Coon Rapids.

Electric Wheelchair Invacare 18x16 power 9000, 12 1/2 x 2 1/ 4 rear tires, repositioning joystick, new Feb 99 ($3,200), asking $2,300. 651-439-9507.

room units. For more information on availability call 651488-9923. St. Paul, MN Equal Opportunity Housing.

Seward Square Apartments: We are currently accepting applications for our waiting list at Seward Square Apartments in Minneapolis. Seward Square is barrier-free housing and is federally subsidized. For PERSONALS an application, please call (612) 338-2680. Equal Opportunity Responses to personal ads Housing. should be mailed to ACCESS PRESS and will be forwarded. Holmes-Greenway Housing One and two bedroom apartFOR RENT ments designed for physically handicapped persons. ConLewis Park Apartments: Bar- venient SE Minneapolis locarier free housing with wheel- tion. Call 612-378-0331 for availchair user in mind. Section 8 ability information. Equal Opsubsidized. One and two bed- portunity Housing. Full size adjustable bed with foot/head controls and massage feature. Paid $1,500, asking $750. Call Susan at 651275-9058.

DID YOU KNOW? Many people confuse Supplemental Security Income (SSI) with Social Security. SSI is not a Social Security benefit. It is a federal welfare program that Social Security administers. SSI is funded from general tax revenues, not Social Security taxes.

THE FRIENDS OF ACCESS PRESS Since the sudden death of the publisher of ACCESS PRESS in 1996, ACCESS PRESS has been struggling financially. Over the past three years, The Friends of ACCESS PRESS have kept us alive. Yet, we need your continued support to keep publishing. Your gift entitles you to a one year complimentary subscription to ACCESS PRESS.

Sponsorship levels: Basic (low income) . $5.00 Friend ......... .$25.00 & up Bronze ......... $75.00 & up

Silver .............. .$150.00 & up Gold ................ .$350.00 & up Diamond .......... $500.00 & up

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ACCESS PRESS is a 501(c)(3) non-profit. Checks should be made out to ACCESS PRESS. Your contribution is tax deductible. Please mail your sponsorship to ACCESS PRESS, 1821 University Avenue West, Suite 185N, St. Paul, MN 55104. Your help is crucial if ACCESS PRESS is to continue being the voice for people with disabilities! Thank you.

SPONSORS OF ACCESS PRESS: Thanks to the following sponsors for supporting ACCESS PRESS this year. Margaret Beier Ericka Johnson Paul W. Taylor

BASIC SPONSOR Patricia Guerrero Beth Jensen Steven McKeever Cindy Moore Kelli N-E Wysocki A.C.E. Independent Living Consultants

FRIEND SPONSOR Sue Abderholden Lynda Adams Cheryl A. Anderson Mary Andresen Susan Asplund David Baldwin Kathy Ball Don & Maggie Bania Marisa Bennett Janet Berndt Patrick Bilbrey Mike & Karen Bjorgan Susan Blaylock Bill Blom Anita Boucher Bob Brick Wendy Brower Susan Bulger Deah Cain Cathy Carlson Baya Clare Lynne Corneli Jim Cotton H. LeRoy deBoom Lynn & Tim Dennis Neil Doughty Christine N. Drew Craig Dunn Martha Egersdorf Lee Ann Erickson Tom & Mimi Fogarty Candace/David Gislason Tom Gode Robert Gregory Jimmie Hanson Anne Henry Ellen & Skip Houghton Judy Hunt Margot Imdieke Cross Beth Jensen Cindy & Gregory Johnson Ericka Johnson Linnea Johnson Hoff Daria Jmill Barb Kane Mary Kay Kennedy Beth Knutson-Kolodzne Ann Kranz Dianna Krogstad Brett Kruempel Sue Lasoff David Larson Jeff Larson Linda Larson Linda Lattin LoRene Leikind Donna Liveringhouse Dorothy McCoy Tim McMillan Senator John Marty Christopher Meyer Cliff Miller William O’Dowd Annette Pantel Dorothy Peters Barbara Proehl Virginia Puzak Julee Quarvee Peterson Mary Rapson Kim Rezek Fern Rogstad Ginger Rudberg Patricia Rydeen Art Sauter Elizabeth Smith John Smith Adele Spavin Diane Sprague Helen Thompson Gerry and Barb Tollakson Donna Warren Caryl Wattman Teri Welcher Curt Wiehle David Wood Beth Wright Accord Health Care Services All Temporaries, Inc Alliance for the Mentally Ill of MN Arc of Anoka/Ramsey Cty Arc Suburban Arc Minnesota Best Care Brain Injury Assn. of MN Consumer Council of The Alliance for the Mentally Ill Disabled Dealer Duluth Consumer & Family Regional Resource Ctr East Suburban Resources Equity Services-St. Paul Forensic Alliance of Mentally Ill Fraser Community Services Home Health Care KaposiaMankato Consumer & Family Reg. Resource Ctr MBW Company Mental Health Assoc. of MN Mental Health Consumer Survivor Network of MN Metro Mobility Service Center Staff MN Bio Brain Association MN Developmental Achievement Center Assoc. (MnDACA) New Dimensions New Ways Rise

FRIEND SPONSOR (cont.) Park Rapids Consumer & Family Reg. Resource Ctr Resource S.M.I.L.E.S. St. Cloud Consumer/Family Reg. Resource Ctr United Cerebral Palsy of MN BRONZE SPONSOR Jeff Bangsberg Scott Beers Tom Brick Rick Cardenas Stephanie Cunningham LeAnne & Larry Dahl Dawn Doering M. Therese Gockenbach Diane Greig Lori Guzman Judy Haaversen Roger A. Hoffman David and Susan Houghton James R. House Lolly Lijewski Ronna Linroth Matt Liveringhouse Paul & Corrine McNamara Joline Gitis & Steven Miles Manley & Ann Olson Louise Pattridge Mary & Henry Pattridge Rick & Debbie Ryan Dean Doering & Lisa Scribner H. Michael Sheehan Peter & Pamela Stanfiel Mary Jane Steinhagen Erica Stern Helen Thompson Julie Wegscheid Kathy & Paul West Jerrold Wood Joe & JoAnn Zwack AC Transportation Bridgeton Healthways Company Dept. of Occupat’l Therapy-U of M Div. MN Rehab. Assoc Job Placement & Dvlpmt Merrick Companies Pat Siebert, MN Dis. Law Ctr. National Results Council PACER Center SILVER SPONSOR Becky J. Bugbee-Tong Catherine Eilers David Grosvenor Martha Hage Courage Center Help Yourself Job Placement and Development Division, MN Rehab Assn Mental Health Consumer/Survivor Network Mpls. Advisory Committee Multiple Sclerosis Society Opportunity Partners Sister Kenny Institute Twin City Transportation Vinland Center GOLD SPONSOR Margaret Perryman

Shirley Larson Chris Berndt


North Memorial Health Care

Deluxe Corporation



IN HONOR Anne Henry by Karen Adamson IN MEMORY Michael Graf by E. Alexandra Gray

Bill Smith by Joe & Peg Figliuzzi


The Medtronic Foundation

July 1999 Issue  

July 1999 Issue

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