March 2017 Edition - Access Press

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THREE HONORED Page 10

Volume 28, Number 3

March 10, 2017

WWW.ACCESSPRESS.ORG

NONPROFIT ORG. U.S. POSTAGE

Mixed news with surplus, federal cuts

PAID

TWIN CITIES, MN PERMIT NO. 4766 ADDRESS SERVICE REQUESTED

by Jane McClure

MIXED NEWS page 7

FILE PHOTO

A 2016 rally outside of the State Office Building drew attention to the need for more funding for home and community-based services.

More oversight seen as needed for home, community services by Access Press staff More oversight is needed for programs that provide care and services for people with disabilities and the elderly, according to a report from the state’s legislative auditor. The 84-page report, which focused on $2.4 billion in home and community-based services spending and providers, was hailed by disability coalitions ARRM and Best Life Alliance for shedding light on key issues. The legislative auditor’s investigation found that the Minnesota Department of Human Services (DHS) doesn’t

Every morning when I wake up I can choose joy, happiness, negativity, pain... To feel the freedom that comes from being able to continue to make mistakes and choices - today I choose to feel life, not to deny my humanity but embrace it.

Kevyn Aucoin NEWS DIGEST She helps Fido look his best Page 13 They symbolized fight for rights Page 2

adequately regulate workers who go into clients’ homes. Nor does it provide adequate financial oversight of organizations that provide services. A major finding of the report is that home and community-based service as they are now don’t always equate to more independence for persons with disabilities, and that Minnesota is behind in the areas of employment and integration of housing. Nationally, 67 percent of persons with intellectual or developmental disabilities live with their families or in their own homes. In OVERSIGHT page 3

Supports, services make a difference Page 3 Without care, he cannot succeed Page 4 Save the Date: Made in the Shade Page 11

Clock is ticking

Disability issues highlighted at large rally by Jane McClure “We deserve to have our voices heard and our issues addressed.” Those words, spoken by Apple Valley parent Kelly Kausel, summed up the sentiments of this year’s Disability Matters Day at the Capitol. A large crowd packed the February 28 event, filling the rotunda and lining up two deep along the second and third floor railings. Attendees cheered and chanted, to convey a message that a variety of supports are needed for people to lead independent lives in the community. The rally drew self-advocates from around the state, family members and allies. They called for the 2017 Minnesota Legislature to support policies that promote inclusion, choice and independence for people with disabilities and their families. The Arc Minnesota, Minnesota Brain Injury Alliance, Get Up Stand Up to Cure Paralysis Foundation and Minnesota Consortium for Citizens with Disabilities organized the rally and lobbying day. State legislators also spoke, telling the crowd that they would stand with them on tough issues. Rep Laurie Halverson, DFL – Eagan, said she and other lawmakers are willing to fight for people with disabilities and their families. Citing the state’s budget surplus, she said, “We have the resources to help those in need.” Sen. Jim Abeler, R – Anoka, told the crowd that they are important and that they all make a difference in the state of

DIANE ANDERSON

Following the money at the state and federal levels has a renewed urgency for Minnesotans with disabilities and their allies. The February 28 announcement of a $1.65 billion state surplus for fiscal year 20182019 and a $743 million ending balance for the current biennium, has generated calls for more spending on caregiver programs and an array of other services and supports. While additional state funding is a potential bright spot, many advocates are wary of what is on the horizon at the federal level. Drastic cuts are proposed by Congress to Medicaid, as part of the effort to repeal and replace the Affordable Care Act. Medicaid, which is known in Minnesota as Medical Assistance or MA, ensures health care cover for Minnesotans with disabilities, the elderly, children and low-income adults. Currently the amount of MA funding Minnesota gets is based on what it actually costs the state to provide coverage. One change being considered would move MA to a block grant system. Each state would get a lump sum of funding for MA. In the event of an economic downtown, an epidemic, rise in aging population or a disaster states would either have to pick up more costs or leave people without care. Another change eyed would to be use per capita caps, with a set amount of money for each MA enrollee. Caps could be index to rise with inflation but if the Consumer Price Index is used, a concern is that it usually grows much more slowly than health care costs. Funding would likely shrink over time, and not keep up with new technology, medications or treatments. It’s not certain what Minnesota could lose under a change to the system, but estimate are at $5 billion. The changes are promoted by their advocates as providing flexibility. Disability advocates disagree and contend that changes would only shift more costs to states, and result in cuts to service. Since long-term care services make up the bulk of Medicaid expenses, changes would mean cuts to services to people with disabilities and the elderly. Groups including the Minnesota State Council on Disability and Minnesota Consortium for Citizens with Disabilities (MNCCD) are among the groups tracking the federal funding issue. MNCCD Board Chairman Randall Bachman said that the changes proposed for Medicaid need to be watched closely. “While we’re cautiously optimistic about how the legislative session has gone, and the news of a state surplus, what is happening in Congress could undo everything we’ve done here,” Bachman said. “Every state’s health and human services structure is built on Medicaid. Changes to that could

Today I choose life.

Rob Wudlick spoke on behalf of Get Up Stand Up to Cure Paralysis at the rally. Minnesota. He and other state lawmakers and advocates urged everyone to continue telling their stories to state lawmakers, and speaking for what they need. Issues including high parental fees, the caregiver crisis and needed Medical Assistance spend-down changes were addressed at the rally. Kausel was among the speakers, talking about how current state policies make life untenable for her family. Her son Noah has autism and the family pays high parental fees to get Noah the help he needs. They live paycheck to paycheck.

“Families like mine have gone through terrible hardships,” Kausel said. “I know families who have faced bankruptcy, divorce, home foreclosure and stress-related medical problems.” One repeated theme was the need to for people with disabilities to support each other on issues. “I am here to help you help yourselves,” said Jeff Bangsberg. “Let people know what the issues and needs are.” Bangsberg is working with the Complex Care Coalition, which is seeking higher wages for caregivers whose clients need a increased level of care. Citing the low wages and high number of caregiver vacancies, Bangsberg said, “We have a critical crisis out there that is affecting many people, every day.” Rob Wudlick, who has quadriplegia, is involved with Get Up Stand Up. He spoke about the need for people to get involved in legislative issues and strength in numbers. “The very act of being here shows we are motived ... Although we may be here on different causes and issues, we are working together and empowering each other.” Another large rally will be Tuesday, March 14 at the capitol. ARRM, MOHR and Rise will be bringing in a large group to show support for legislation including the Best Life Alliance campaign for caregiver wage increases. The rally is 10-11 a.m. at the rotunda. A resource room RALLY page 7


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