Issuu

L Activist

I Trail Access Page 6

SOURCES

Volume 9, Number 2

I RESOURCES

February 10, 1998

ring New Laws

9.?( 4 4

4 o w s w p' ]

MSA standard nor the Medi- DME is a critical factor in alcal Assistance standard allowing lows individuals whoareel& : abity-cnit&&&kk c4n- - _ erly orhavedisabiiitie dition to remain independent a d productive.

introduced which will improve d the lives of people with dis(a abilities. ACCESSPRESSwill be reporting on legislationthat . In determining eligjtdliiy for effect people withdisabilities. certain DME co&mge, thc Listed below are two important bills which need your help TJB$@3LUnON: Raise the standardsof many health plar &ih Assistance income companiesare based on Medi- 7 if hey we gain%to pass.

Ruth Nun- Casa Colim Shooting Stars.

Twin Cities Host National Tournament

namentisbeingheld March2-

cent below the fedkral pov-

The failure toraise kincome .allow individualswho areeld-

PROBLEM: Many Health

Minnesota has a budget SUPplus of $1.3 billion with an

Enrollees are o b asked to provide a list df what DME

forecast. The Medical Assistance income standard for

This leads to arbitrary deci-

take a look into ias ppst.

SOLUTION: Enrollees have the nation. Minnesota's own, Rolling Timberwolves, will be one of

time only men were playing, as was thecase in most sports,

covered by their health plan. HF2814&SF213Owouldrequire disclosure of benefits

sociation. .

changing benefits during a Minnesota's women's team

can history. In 1948there were

legjate level, began to ta

PROBLEM: Many Health

STATEMENT OF THE

.DIME or use out-dated defini~hfi. ---&

~n p. 3

Access L ress

February lo, 1998

**** held ac- March 2" through the 6" there tions. will be a National Womens WheelchairBasketball tournament held in the Twin Cities.

coxas Executive Director. (see page 10) This has caused a controversy amongst the disability community. At this time, there are too many ru-

on anum- letes from across the nation. nizations. This opportunity only hap-

nouncement. We have printed a few letters to the editor in

The lead article this month explains two issues which are beingdiscussedat the legislature as the paper goes to press. The first deals with

the disabled and elderly who ke are on Retirement, Survivor is

announce that Justin Dart powermentofpeoplewithand you. I will fight at your side has been awarded the Presi- without disabilities. This until the last breath. dential Medal ofFreedom -the Medal belongs to each one of nation's highestcivilian honor In accepting the award, Justin

"President Clinton has announced that he will give me the Medal of Freedom. I accept this honor not for myself, but as a symbollc representative of the fundamental

cour9

WHERE ABILITIES AND DISABILITIESBECOME POSSIBILITIES

n Thursday, January 29, society's view of disability ties become possiblllties." 1998,CourageCenterof twenty-four year sago. Atthat Rather than focus on disabiliGolden Valley unveiled their time,societyrequ~redindividu- tles, Courage Center's new new logo which was designed als to "overcome" their dis- logo and tagllne focuses to more accurately reflect abilities. Since then, society equally on abilities, possibillCourage programs and the has accepted some responsi- ties, and disabilities. That

AS part of the organization's

potential. The focus of Cour- together in acommunity based

process, Courage 2000, Cour- ways been on supporting ~ndiage Center conducted exten- viduals as they learn to make Since 1928, Couragecenter sive research on its image themost oftheir abilities while has provided comprehensive

by Justin Dart serlous eplsode of heart tory rat in a cage. fallure. The good doctors and

opportunities for people with The new logo, designed by ThinkDesign Group ofMinneapolis, consists of the word Originally adopted in 1974, "courage" in lower case letters

Of Conscience

throughout Minnesota so that they can live more independent lives. Each year,Courage Centerservesmore than 20,000 people through more than 70 Courage Center programs that

cardiology care they pretty for 11fein my home. well exhausted the resources

These are world class profes- commandofmy life. Herelam withoutdisabil~t~es to becaged

are significantly hostile to people with disabilities. I felt

Dart - cont. on p. 3

ACCESS r "ESS

.................................................................... .............................................................................. ....................................................................................................................... ............................................................................ ..................................................................................................

Co-FounderlPublisher (1990-1995) Wm. A. Smith, Jr. EditorlPublisher/Co-Founder Charles F. Smith Cartoonist Scott Adams Production Presentation Images, Ellen Houghton Editorial Assistant Cindy Bordeaux ACCESS PRESS IS a monthly tablold newspaper published for persons with disabilities by Access Prcss. Ltd. Circulation is 10,000,distributed the 1O"'of each month through more than 130 locations statcwlde. Approximately 650 coples are mailed directly to political, business, institutional and civic leaders. Subscriptions are available for $15/yr.

Get E-mail News Automatically mation on state and federal formation you are provlded legislative disability issues. and send to:majordomo@ mail. state.mn.us to confirm E-mail list: any subscriber can In ordertosubscribe to the list, you subscription request. send an E-mail message to ev- create a new E-mail message eryone who is a subscriber. addressed to:majordomo@ Forfurtherinformationorquestionscontact,Tom Brickat the State Council on Disability, For instance, if 100people are mail.state.mn.us subscribers to the list, an E- D~ not enter anything in [he 6 121296-3478V, 296-6785 V/ mail message addressed to the subject line. In the text box lTYor 1-80-945-891 3VIITY. List Server address will go to enter:subscribemndisability FAX: 6 121296-5935or E-mail all 100. The service isdesigned to: tom.brick@state.mn.us for those who want 'OmYou receive a

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Editorial submissions and news releases on topics of Interest to persons w~thdisabilities, or persons scrvlng those with d~sabilities,are welcomed.

529-5019

Pald advcrtls~ngIs available at rates ranging from $14 to $18/column inch, depending on size and lrcqucncy. Classified ads are $8.00, plus 35 cents/word over 20 words. Advcrtlsrng and cd~tor~al deadlines are the 30th of the month preceding publication; special scheduling available lor camcra-rcady art. Acccss Press 1s available on lapc. Call M N State Services for the Blind, 642-0500 or 800-652-9000. . Inqu~r~cs should bc d~rcctcdto: ACCESS PRESS 1821 University Ave. W. Suite 185N St. Paul, M~nncwta55 114 16 12) 644-2 133 Fax (612) 644-2 136

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February 10, 1998

Access Press

IOn Mental Illness

Life Goes On

Aging Brings Tough Decisions l ~ h e Invisible Disability

I by David Markusen

by LeAnne Dahl

f you read this column with any regularity, you know that I have advocated and supported independent living for persons with disabilities. Yet, with each stage of aging Ipass through, I question the wisdom af how long one can fight for or dare to adhere to this philosophy.

.,:

,. I

sible for as long as their health holds out. It allows one the freedom to come and go as they please, which often includesemploymentandsocializing.

trange as it may seem, I'm the individual and their needs. ashamed of looking Of course, I don't believe they're the answer for every- healthy. It may seem absurd, but I often seem to be penalone. ized for appearing "normal", I understand that what I'm Thecomment1frequently hear about to say will anger a lot of is "You don't look disabled." people, but I feel strongly about it. I believe that as people with First of all, I'm forced to wondisabilities, we should start a derwhatdisabled "looks" like. movement to make more nurs- I figure I'm missing the boat ing homes pursue more As- somehow because my disabilsistedLivingprograms. There ity has no outward appearance. are several issue that must be I have amental illness, I call it 'The Invisible Disability". addressed first.

Living with one's family can either be a wonderful answer or it can create animosity among familymembers. It also "If I go into a nursing home, leads to a sense of dependence I'll go there to die." I have on the part of the person with heard this comment fre- a disability. In the long range quently over the years from view, this may not prove to be several of my friends. We all a beneficial arrangement for At the topof the list is workiiig share the common concern of anyone concerned. with nursing home administrawondering what's going to happen to us as we get older While one may feel that going tors and their funders to think and less capable of caring for into Assisted Living quarters in terms of adding programs might appear to be one step that would allow people with ourselves. closer to nursing home living, disabilities to feel comfortable Ofcourse it's not easy toadmit it doesn'tseem that way to me. with their surroundings. The this is happening to us, but In fact, it would actually give next thing is to have discuswhen it does, there are at least me a sense of security. I think sion groups which will eventufour alternatives to choose itwouldeasemy mind to know ally lead to planning groups rom: 1) In-home care which that medical help is close by. involving people from thedisncludes personal care atten- There would need to be many ability community and nursing dants in an apaftment or your arrangementsworked out as to home staff, includingadminisown home;2)Living withone's PCA%etc.,but itcould bedone. trators and social workers. family; 3) Moving into an Assisted Living Program or 4) Years ago, nursinghmes were Irealize this will takeanentirely Moving into a nursing home. looked upon as the place old new way of thinking for all people go before they die. This concerned, but in the long run, lir Thefirst choice is the most is no longer true. There has it may prove to be a healthy popular since everyone wants been changes in the programs move. I inviteyourcomments. to be as indemndent-ma9'%os- and activities, de~endineon

Contrary to the popular image, you won't see me or any of my peers wandering aimlessly down the street muttering to ourselves. I hate todisappoint anyone who holds onto preconceived notions, but I've never been violent, neverraved incoherently, and only drool when I'm about to eat my favorite food.

My disability is completely internal. The chemistry of my brain is out of order. You can't see it when you look at me, or hear it when I speak. For reasons beyond my comprehension, this gives me no advantage. Occasionallywhen I try to benefit from aprogram designed to assist people with any type of disability, I am asked why a person who appears as healthy as I is trying to take advantage of somethingthat is for people "less fortunate" than myself. I then have to provide documentation ofmy illness, which is received with a shrug and a dubious look. If I sit in at a meeting ofpeople with various disabilities, I get the quizzical look; thedistrustingstare. One person actually said once "Are you sure you're one of us?"

I spend my days concentratingnoton my disability, but on all the skills and abilities that I do possess. My emphasiswith my peers is to learn to overcome the limitations our illnesses may place upon us, so that we may live in the socalled normal^ world; a world that shuns us because we are "different." As we try to find acceptance there, it is a shame that even our peers among the people with disabilities find it difficult to accept us because we "aren't like they are." Let's forget about "Us" and "Them". Let's work together to achieve equal rights and opportunities for anyone regardless of what their disability may be. Just because you can't ,see it doesn't mean it isn't there.

Profile

Brian Rogers by Cindy Bordeaux

T c c e s s i b l e Arts Performanced llp1

He built his own energy effiua& cient and accessible home on 3115, Fri 8:OO: "Thunder Knockingon theDoor9' 27 acres. He documented the 2/15, Sun 2:W: "TheBlack Snowman" Guthrie Theater, Mpls construction and hopes to SteppingStoneTheatre, WeyerhaeuserAudimarket the manuscript in the torium,Landmark Center, St. Paul future. His love ofanimals and U27, Fri 7:30: 'The Worn-Out Dancing Shoes" 2/2 1, Sat 8:OO: "Avenue X" Great Amefican the environment is evidenced by his numerous animal feedChildren's Theatre, Mpls History Theatre, St. Paul ers for birds, wild turkeys, and ters in Wisconsin; Montana, and Colorado. His member316, Fri 8:O: "Avenue X" Great American 2/22, Sun 2:OO: "The Black Snowman" deer. ship spans numerous-wgani- *3istoryTheatre, St. Paul Steppingstone Theatre, Landmark Center, Brian Rogers is a very strong z a t b n and councils throughWeyerhaeuser Auditorium, St. Paul voice about subjects of out the years. Brian stated, 318, Sun 2:00: "The Work of Water" Theater disabilitias, Americans with "people with disabilities spend in the Round, Mpls 2/27, Fri 7:30: 'The Won-0utDanein.gS h d 'Disabilities Act (ADA), and to much time backing down or Children's Theatre, Mpls the disability community. He compromising.If we were bethas seen andexperiencedmany ter consumers we wouldn't be changesin thecommunity over in this mess." Brian supports the years. The independent liv- agencies and organizations in ing movement which started which people with disabilities with Ed Roberts, in the late. are in positions of power. 60's, brought consumer con- According to Brian, that is at trol to the forefront. Brian has the root of the problems with Beginning this year Metro Mobility riders who wish to experience as Executive Direc- the disabjlity community totorofIndependentLivingCen- day. The tide in organizations obtain a standing order will be notified of standing order

AodioO-ribed

j e ,

Metro Mobility Standing Order Process

I II

availability through theMetro Mobilitv News, the quarterly newsletter distributed to Metro Mobility riders and other interested persons.

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HOME HEALTH CARE E

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~ e r f i r squarter t newsletter will be distributed later this month. The newsletter will publish the time periods that are available for standing orders and will also include a standing order request form. The upcoming issue of the Metro Mobility News will provide details about the standing order changes. .' UL

1 Please call 602-1111 if you do not currently receive the Metro Mobility News and would like to be on its mailing list.

Hame Care Services Available 24 hours per day h

Specializingin the care of Children*Adul ts*Elderly ,

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We provide Personal Care Assistants Home Health .Aides Homemakers Live-in Caregivers Nursing Our RehabilitativeServicesinclude: Physicall OccupationaVSpeech/Respiratory Therapies PCA Provider Organization

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and independent living centers have gone back to nondisabled making decisions. "People with disabilities making decisions for people with disabilities, theend result, consumercontrol.Thenwe'd have leadership; it's time for a new model." When asked about the ADA, Brian stated, the public knows it's not enforced. "If it's not an issue of structural integrate most want inclusion." What's next for Brian? Brian was just elected President of the St. Croix Falls Disability Coalition of the five rural county area. He has his o,wn company called North Star Rehabilitation Cons.ulting, which does attitudinal and architectural workshops on disabilities and ADA. Brian also will have tosee where his issue of reasonable accommodations on the Gandy-Dancer trail leads. There is little doubt he will continue to work on disability issues especially relating to recreational issues (see page 6). Brian envisions the possibility of a Freedom Ride within the next year on state trails in Minnesota and Wisconsin.

Hello Nicole: seems to come naturally for the unenlightenedmajority to treat us this way hence, "Jeny's KidsWmentality. Many disability activists see that the view of disabled-aschildlikeis basic fuel forprejudiceanddiscrimination since seeingus as childlike diminishes our equality, employability and sexuality.

ings acting assertively but calmly and without anger.

Chronic Illness Ministry: What One Faith Community Is

y friend is in his 40's and he disabled and lives at home S0meexam~leswouldbesa~ing without any s a ~ a s m :"I ith his parents. How can he undersfand why You feel You get his parents to treat him like an adult and not monitor his needto make this decision for by Cynthia Ryden me, Mom, Id0 appreciatethat every move and choice? He You care about me*but I feel can't move out because he's ust as singles are some 2 Saturday S e m i n a r s - I N ing proactive help. For exable to do this myself. Thank severely disabled and really ample, we have volunteers a.m. toNoonThesepublic youforyourinput."Or,"You're times overlooked in a sea needs their help butthey don't who provide one to one probablyright,Dad,thismight of families in a place of worsessions feature authors treat him like an adult at For these same reasons, decisupervision for an autistic speaking on coping with ship, so are many of us with sionsareoftenm&eFORthose be amistake, but I'm going to all ...he's at his wits end. ofus with disabilities, instead make my own decision any- chronic conditions and illchronic illness/conditions. preschooler SO that hisparSincerely, AFriend of allowing us the same free- way."It takesalot to beable to nesses. Why is this and how PastspeakersincludeCheri entscan worship. Thepardam in decision say something like this IOV- does it happen'? Most of us Register, author of Living ents had notmade this need able-bodied equals. This is ingly rather than defensively, can cite various reasons and with Chronic Illness: Days known until wespecifically asked how we could help of Patience and Passion especially m e when it comes ittakesalotoftimeand thought have our private theories about Unfor~unate~ya~otofpeop~e, tomedicalcarewhen"helping about the other person in a why people with chronic illand Sefra Kobrin Pitzele, evenwithoutdis&ilities, have pro~essiona~s~ are involved, compassionatelight.However, nesses and disabilities are forauthor of We A re Not 5 . Heighten visibility and Alone: Learning to Live involvement Here we trouble getting their parents but can be seen in many areas it is the only thing I know of gotten. But,moreimportantly, with Chronic Illness. what can be done about it? educate our faith commuof life even to a sales clerk that may possibly be able to to see them as equal adults. nity in topics such as identifying our gifts and talUpcoming presenters intectiveness of parenthood and As I pondered this question ents, disability etiquette, clude local conference the demeaning societal views last winter, I felt a strong urgsponsible for their children. and problem solving. At that his parents are stuck in. ing to start a Ministry for the speaker,Ted Bowman, auEven when their "children" With all ofthis in mind, along St. Anne's we have regular Chronically Ill tobetteraddress thor of the popular "Loss are 40 years old, parents can with the truth that you can't "Giftldentifieation" semiof DreamsA Special Kind Helping your friendgab comtheir needs both within our still feel responsible for their change anotherperson, I think nars and then enter these of Grief." Cathy Feste, church and in the wider comwelfare and think it is their itisgoingtobeprettydiff~cu~tpassion for his parents does du~tokeepaGod-likewa~ch~to change your friend's not mean that the way his par- munity. Ialsofelt it key togive i n ternationally known gifts into our database to be matched with needs. speaker and trainer, will adAdding adisability which re- parent'sviewofhim.However, ents are acting is good or cor- equal support to their friends dre5s "The Physician I-eCt, it iscrap thathe has to put and loved ones since they too quires the disabled person to I~in~youcanhelpyourfriend Within," which is also one 6. Increased public awarebephysical dependent on his/ cope with his dilemma by en- UP with as 10% as he feels he are often forgotten. ness Here we use various of her book titles. Cost for has "0 options buttolive with couraging him to gain a better her parents (as children are) is

sponsible parents more them withalighter heart.

of barman call7c10-5158.

one. Our facilitator, Janet Woodhull, president of the MN Gerontological

accessibility and provid- ofissaes and can Be reached at 740-5168. Y

pable, and not-as-good-asor can learn tp r q o n d to them St P a 4 MN5510.4

issues avd questions.

is seeking 10 individuals with dkbilitiesl them, she can findnore infor- adjustment to this unique dis- t ~ s e r ~ e a ~ p~ e& a~ a .d t m e m t o f u p

mtion about the stages of ability. Thc Access Press of January The Brain Injury Association coma, medical professionals 10,1998,carried aletter in the of MN (1-800-669-6442) has with expertise in brain injury, Sincerely,

- inghelpless. Your response concerns and problems and to her began with the phrase, "...I feel totally inadequate to answer your quaicm." Permit me to guide you to a resource that "Lost Mother" and other familiesand survivorsof brain

help her find solutions. There are more than 35 support groups, educational programs and a resource library available to her.

working in the field, find in- nect wi&.~tmBrain Injury Avaluable todeal withjustthese sociation o f M i a w o h . From

to20hcnmha&MCILisoff.bringa stipend of $100.

PUB-LlCMOTICE This will sene as notice appficatims now being a c c q ~ a t 2 1O O B l O O m i ~ A ~ l i b. ~ f O T benefits all qualifiedWon 8qpliicmk EligibiBiy W o n s ~ c i a l / d d h m d i c a ~ ~adlor d d&3dcd -s phr8me*ing Section 8 and sehtion criteria requirements. Applicationsacceptedktween 9:00a.m.-4:00 p.m.

If YOU are interested amtad: 603-2001

(w)to request an application.

ccess Press

February lo, 1998

;

Activist Fights For Trail Access by Cindy Bordeaux

Pe-

ight over the Minnesota .ble accommodations accord- this provides the accommoda- "Ism n d a danger to the

cornmodationshas brewed be- recreate. I'm embarrassed it's maneuverable on the rough Yellowstone are fully ,,tweenBrian Rogers and Wis- an issue." coasin state and Polk county.

( ~ e v i s eMetro d Mobility 1 Legislation heMinnesotaConsortium For Citizens With Disabilities' Transit Advocacy Sub-committeeis introducing

will cover cutrent tra@it op tions including Metro Mobility and some future options being considered such as rail.

terrain vehicle ( A m ) on the roadbed fromSt. CroixFallsto Trail commission chairman ~ t orulesforthe f individualto conduct a comprehensive as- TheTAB'smembership will be sessment of the transit needs comprised of 15membm. At

court. "He represents dis-

Trail. SOin this case he only days prior to UiaL &hereason represents himself" Johnson given Rogers was b e c a u ~the efficient manner and it will will be appointed by the Metmakerecommendationsregard- ropolitan Council's Transit ing accessible transit to the Access Advisory Committees

needs for metro area transit sota senior Federation. One which are currently not being member will be appointed by met by the Metropolitancoun- the Metropolitan Council and cil. It replaces the propoSa1 .one member by t k Commis-

relating to all hiscontacts wi@ the Americans with DisabiliDNR,w k ~ d c m g n ~ p - ties AC~,which i r e s 0 - ial@@&w&g& iwo emmnts to provide access to &~&l&erdated January 3, rcerratianal an-as fordisabled. ftom Jean A. Rygiel, W. Central RegioylTrail Coordina- Officials contend that firmits torsms,"'lhefimld&ision, can be issued to the disabled however, remains with -ha a,).,,f9g~','law-po~Wered"electric counties w h o m ths ccyP/$$w_h&l~hf$rs.and golf carts on ..tive partnom that-$%&@ the statktrails, thereby, providing $1 with theF~sconsinDe- reasonable accomtmdktiairs g ? t k e n t of Natural Re- whiuhilapmkctingh* and sources." He" prepared to go solitudeaf hikers and bikers. tojailover&eisswofreas~ .&a& npt agree that A-

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Legislative Priorities

)

February 10, 1998

Access Press

grams and also ensuring that Developmental Disabilities Wlde-Inguir~ statewide need for a MN Employment Center for Deaf MN Guide to Universal AC- the State Board of teqching EmjmmmentActA(Xisincess in the Outdoors We will require a specific number of traducing the Minnesota DeH a d of Hearing People. workalong with theMNDept. classes in disability education velopmental Disabilities EmCommunity h d c e s of Natural Resources in mak- in orderto maintain ateacher's powermentActof 1998which Support People, Inc's initia- ing a comprehensive guide license. promotes self advecacy traintive for an dditional$50,000 book of all Minnesota parks. ing programs thnrughout the for community based services Functional Behavior Assess- state. ment Pacer Center supports barforpeople whoarementally ill and deaf or h s d of hearing. Interagency Serv'ices P a c ~the elimination of the vague m-h~ntn: Center supports an improved definition of "functional be- Health Care Work towards :p HaringAidsSupportany legsystem for coordinating the havioral assessment and the increasing medical assistance -; islative initiatives t~ mandate work of various agencies that typeof trainingrequired in or- income eligibility standard Vulnerable Adult Act We Nursing Home Staffig We health insurance coverage for provide service for children der to guarantee the effective- ($420/mo.)forpersonswhoare support strong protections for support efforts to ensure ad- hearing aids. with disabilities should be de- nessof theseIDEA97required elderly or disabled. Monitor '- vulnerable adults in nursing equate public funds be appro- . veloped a ~ implemented d by assessments. and support the work incenhomesandother long-term care priated for consistent staffing 1 6 i m m the state of Minnesota. tive waiver (Medicaidbuy-in). Para-Professionals Toensure settings. Review Leg. Task and that facilities be account- Health Care We will work Force recommerrdations for able for these expenditures. towards improving coverage Special Education Services theeffective useoffundss,pent Demonstrrrtion Project Supof durable medical equipment Work with the state todevelop on para-profe~sionals,Minne port rate setting and risk addisqualification procedures and whether there should be a MNC&hby private health plans. The a streamlined system to pro- sotashould developstandards justment issues in the demonstandardized approach for all MS Society along with other vide support and assistance to and require initial and on going stration project for persons -& H . - d d H a services to vulnerablepopula- Interpreter QA Bill Initiate organizations will support school districts in learninghow training for the position in the with disabilities in managed tions. legislation to give DHS strengthening consumer pro- to access medical assistance delivery of special education care. Work with other o+ganizations to maximizeMedicaid rulemaking authority toestab- t ~ t i o n sin health care along dollars for eligible students services. I WPgibiityforNursing Homes lish quality assurance system with the creation of a health receivingrelated services. S u p dollars before projeots begin, and Home C a r e v e support for sign language and cued care consumer adwocacy of- part the funding of several pikdnrrclltiyf31.llgr i.e. for childm-and adults' the development of commu- speech interpreters and fice. Continue to monitor any lot sitestosetup Interim Altermental balthservices and DD nity services thatenablepeople transliterators. changes that might impact the native E%ucarional Settings Pedestrian Safety BHI ACT waiverwaiting list. to avoid unnecessary nursing M e d i d Assistance Demon- within schools. Support an supports thh bill which ins home placement, accessto care Teacher Licensure Loophole stration Pmjects. amendment to regarding the creases the allotted time al- Other issues Work towards - in one's own community, ad- Initiate legislation to close a funding of special education lowed at crosswalks. maintaining choice in service q u a t e clear notice whenever loophole in thecurrent licens- Transpoptation MS Society in improving the response to coordination (case managechanges in public benefits are ing law forteachersofdeaf and will workwithotherorgania- school district needs. Support Apdogy Bill ACT supports a ment). Support an increase in contemplated, and meaning- hard of hearing students con- tions to create a consumer theimprovementofMinnesota resolutionmakingapublicapol- advocacyfunding,Suppaiefhe ful, assisted opportunities for cerning sign language pfi- board to encowage consumer educationsystemby requiring ogy to all persons with devel- tran&rfrornpulbkgu&ianclients to appeal changes in ciency requirements. input intodecisions regarding institutionsof higher learning opmental disabilitieswho have ship to appropriate privatk &-

ast month the StateCouncfl on Disabilities held their Legislative Roundtable. ACCESS Press reported the legislative agendas of several organizations who presented . at theRoundtable. The followin8 is a listing of the organiza, w i o n s w h i c h were not included in last months article. e

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support approaches that will emphasize a facility's quality trnck record as key to whether they should continue to operate. We support approachthat minimize resident relocation, that provide advocacy and assistance whenever relocation is necessary, and that limittheinvoluntaryrelocation of residents outside of their hornecommunities.

(DHS) Breaking The Law

by Charlie Smith, Editor

ast year legislators, advo cates and DHS tried to ?.. - . x . find ways to save money in the Personal Care Attendant (PcA) program. One area advocates felt there could be a large savings was in the annual assessment of hours. In the past, each person who qualified forthe PCAprogram had to have a yearly assessmerit of their hours to determine how many hours the person needed each day. Years ago this assessment was done by the nurse from the PCA provider agency at a cost of approximately$100.00perclient paid for by the State of Minnesota. Two years ago, DHS decided there was a conflict of interest forthe provider agencies to be doing the assessment since they were billing for the hours needed by the clients. DHS shifted the assessment duties to the county nurses and raised the amount the county nurses would get paid toapproximately$200.00, thus removing the conflict of interest by the provider agencies. sL'

As part of the 1997 Omnibus bill passed by the Minnesota Legislature a provision was made sa-that people on the PCA program who had stable conditions would not be re-

quired to have a full annual assasment every year. Once a person had a full assessment and their condition had not changed over the past year, the County nurse would only need to cantact the person to verify that there wasn't any change in their condition and that their hours were sufficient. Ifthis was thecase, thecounty nurse could then re-authorize the persons hours. The following language appeared in theomnibus bill: "To continue to receive personal care services when the recipient displays no signijicant change, the county public nurse has the option to review with thecommissioner, or the conlmissioner's designee, theserviceplanon record and receive authorization for up to an additional 12 months atatinieforup to threeyears. "

This provision in the bill was suppose to have taken effect January 1,1998. Withthisprovision the state of Minnesota would save a large amount of money due to the fact that the majority of people with disabilities on the PCA program have stableconditions. There i.s also a provision for people with stable conditions, after their first full assessment, but

when their condition changes or worsens and are in need of more hours, the person needs to-conhct their p(=A provider agency to inform them of a changeintheircondition. The agency would in turn contact the county nurses and arrange for another assessment.

E A F Inc is please to new CD ROM learning tools (MCpO) atltSt.T&~lTechnical announce the award of a to build reading. language, College. Two Ca"ROMs, $15,00Ograntfrom AT&TLo- and computer skills of deaf "Basic Computer Skills" and cal Business Council for the adults learners. "Teachers How T o Use The Internet, " more about tech- developed for deaf and hard of Deaf Adult Education Project. need to 1AT&T1sTeresaLynchstad, nologJ't~o!Newsoftwarehearing katmers at continuing "D E A F's project demon- allow pewhers tocreatelearn- education and postsecondary slratesan innovativeapproach ing tools whichrwill enhance education level, will be availinusingtechnolog~toim~ro~e the learning Process. We are able this spring. the lifelong Process for deaf excitedaboutthis~rojmt,"said adults which holds the poten- Marilyn Dodge, Adult Educa- Formoreinformationaboutthis tial for improving individuals' tion Manager. program, or other D EAFproeconomic status." grams, contact Michael ZeleD E A F has also nearly com- don at (6 12) 297-6704 TTY, Funding for the Deaf Adult pleted amultimediacurricu- 297-6766FAXorviaE-mailat Education Project will allow D lum project funded through deafinc@deafinc.org.. E A F to purchase and use the Midwest Center for multimediasoftwaretocreate Postsecondary Outreach

Where the problem has arisen is that DHS has not implemerited the new law. 1 contactedKarenGibson,Medical AssistancePriorAuthorimtion Homecare Policy Specialistof A DHS, on why the department r o\jtm re T? had not implemented the new law? She responded "Ithink $Q &e-. the department had a p-ihkm with the language." Shethen.+uapu3h said she would askBobMeyer in theirofficeifhecouldclarify MCIL OFFERS SERWCES FOR OSOPLE WITH DISABILITIES, THEIR FAMILIESAND FRIENDS, SERVICE PROVIDERS, AND INTERESTED the question. As the paper COMM.UNITY MEMBERS IN T H E SEVEN-COUNTY METRO AREA. goes to print I have not heard from Mr. Meyer. Information and Referral p-bollirch. 612-6a~2me) 6 3 Advocacy IadepeaQent Living Slcitls Training BID Individual Peer Support Savingmoney should bea high D e a f LL. Services priority. ,With approximately suppori Groups... current&: ,-hm"& 11)i.rp m 5,000 pebple with PCAs and a

METROPOLITAN CENTER FOR INDEPENDENT LIVING

majority withstableconditions that could amount to nearly $1,000,000 in savings. I can understand that th'e people working in the policy side of the department are very busy, but with this kind of money they should have brought in out-side help to eet the directive out.

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February 10, 1998

BASKETBALL ball team in the United States and built their program from 1970-74 by playing ablebodied opponents. OnFebruary 24, 1974, the Ms. Kids played against the Southern Illinois University Squidettes inBrcountry'sfirst wheelchair basketball game between two organized women's teams.

Access Press cont. born p. I

Venezuela. The team took the silver at the 1992 paralympics in Barcelona, Spdn,andthe 1994WorldGojd cupChampionships in England. The women also captured the bronze medal at the 1996 Paralympics in Atlanta, Georgia.

Women's wheelchair basket"I don't think I realized the ball has seen slow, but steady importance of the game at the growth. There are approxitime, because there wasn't a 155 men's teams, but national tournament or much only ten official women's chance for international com- teams. RollingTimberwolves petition," said Susan Hagel, a player/coach Debra Sundermember of the Ms. Kids team man said there are a number of which played in the historic reasons for the wide gap. She game. Hagel has been a mem- said the main reason is that the ber of the Minnesota Rolling number ofmen suffering injuTimberwolvessince 1978. "As riescausingparaplegiaismuch Igotmore involved in thesport, higher than it is for women. 1 grew to realize all the good Because of this discrepancy, things that came with its the women's league is not gogrowth,includingtravelingand, ing to be quite as large, Ancompeting in national and in- other reason is that the tournament has not ternational tournaments." been around as long as the In 1975, Detroit, Michigan, men's, butwithcontinuedprohosted the first National motion of the sport, interest Women's WheelchairBasket- will undoubtedly grow. ball Tournament, and Detroit's own Motor City Wheelers be- "The first step is identifying cametheleague's first national those that would be interested champions. Through the years in playing," said Sunderman. the tournament has been domi- "Because of t h growth of nated by the University of Illi- womensports in general,more

women's athletics is at an alltime high. Media exposure is greater than it has ever been, which will undoubtedly translate to biggerand betterthings for women's wheelchair basketball in the future. "When we first startedplaying in the 1970s we weren't very skilled, and the games were low scoring. The game is a lot better now; it's faster paced and higher scoring," said Hagel. "Players are stronger, and understand the game better. Improvements in wheelchair technology have also helped better the game. It's a lot easier to play in, and maneuver a wheelchair that's 20 pounds rather than 5 0 pounds."

Sunderman served as the U.S. Women's Paralympic Basketball coach in 1996, and as an assistant coach of the U.S. Women's WheelchairBasketballTeamin 1994fortheWorld Cup Championship in England. She was co-captain of thesilvermedal U.S. Women's Basketball Team at the 1992 Paralympic Games, and was a player on the gold medal team at the 1990 World Gold Cup Championships. She also playedon thegoldmedal team at the 1988 Paralympics.

side shooting. We'll have a torofBio-Medical Services for nicely balanced offensive at- HealthEastMedHome. "We're really excited to have the tourtack." namenthere(Twin Cities)and "This tournament is a big deal want this to be the best run to HealthEast Med Home tournament to date. We hope (which is sponsoring the tour- lots of people come and watch nament),"saidKarlaPeterson, some great athletic competitournament director and direc- tion."

Hagel, as stated earlier, played in the first official women's game in 1974, and isstill going strong. She was a CO-captain on the bronze medal winning team at the 1996 Paralympic Games, and silver medal team at the 1994 World Gold Cup Championships. She served as captain of the gold medal teams at the 1990 Pan American Games, and 1988 Paralympics.

Success at international tournaments begins with strong competitiononthehome-front. T h e National Women's Wheelchair Basketball Tournament is the perfect example ofhow thehighlevel ofcompetition at the national level leads "Being able to play internato attaining international suc- tionally has been a wonderful cess. This year's tournament opportunity for competition," will not only crown a national said Hagel. "Ithas been, by far, champion, but serve as prepa- the highlight of my sports caration for futureglobalcompeti- reer." tion in the World Gold CUP The Rolling Timberwolves main competition for the na-

has been in existence, womenasgamenationally, there this point evens city the size , in Sf.Paul andlooking tocome facing, but had not seen t& away with Minnesota's sev- Grizzlies this year. Shesaid the has been an ongoing develop- ofchicago hasonly oneteam: enth title. Hap1 and Sunder- roster is similar to last year's ment to increase international

February17

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members sole responsibility would be playing basketball. d3 ?heexperknce the tgained : - at the 1980Paralympic Games

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February lo, 1998

I Volunteer Parking Patrols

MCIL Announces New Executive Director T

he Board of Directors at the Metropolitan Center for IndependentLiving(MCIL) is very pleased to announce that the position of Executive Director has been offered to David Hancox, former interim ExecutiveDirectoroftheMCIL. New ExecutiveDirector, David Hancox, is a29 year veteran of the independent livinganddisability rights movement. His experiencesincludeeightyears in direct care service, ten years in public policy and advocacy positions, five years as a lobbyist and six years in staff development and family education. His past work history includes employment with the 'World Institute on Disability workingdirectly withindependent living activist EdRoberts, administration and coordination of the MN Partners in Policymaking Program, and extensive work with the Minnesota and Ohio Planning Councils on Developmental Disabilities.

everal states have begun to people who park illegally in license tag and permit holders, taking aggressive action handicap spaces. Such pro- corresponding with drivers' against handicap parking vio- grams have been set up in a license numbers. This method Mr. Hancox is very well re- I would say that we are exlators. A recent article in Ar- dozen states so far. is being used to cut down on spected among the other seven tremely pleased that David has thritis Today (January-Februtag "trading" and to help law Centers for Independent Liv- accepted our offer. We expect ary 1998)statesthat public un- The Columbia Handicap En- enforcement flush out more of ing in Minnesota. In addition, he will continueto serve MCIL derstanding of who and what forcement Unit receives a day the cheaters. Jim Cheny, Chair he possesses the strong lead- in the same manner as he has as handicap parking spaces are of training in police proce- of the Americans with Disership, administrative, and Interim Directoy, as we have for is fairly foggy. Along with dures and conflict resolution. abilities Association says, " managerial skills needed to been more than pleased with ' the reality that many state and They receive a vest, cellular Often, family members borrow move the MCIL forward. Dur- his results." . local govenunentsarenot well- phone and Polaroid camera. the tags issued to a disabled ing the time that Mr. Hancox educated on what disability They ticket illegal parkers and relative. I hear about tags for has served as the Interim Di- BoardMembersaswell as staff, and access laws require, and businesses or facilities which sale at fleamarkets.It damages rector, great strideshave been would like to take this opportuthey may be reluctant to en- fail to provide accessiblepark- the credibility of the people made both in stabilizing the nity to welcome David Hancox force them. ing receive warnings along who rely on them." staff, addressing current and as the new ExecutiveDirector. witheducation about the ADA ongoing issues, and in pro- We invite the community to Enforcement is changing in requirements.Amajority ofthe For more information'contact actively directing theMCIL on share their excitement, enthumany cities and states and fines collected goes back into the ADA Project Coordinator an appropriate course. The siasm, and support for his curconsumergroupsare not look- programs that educate the pub- at the National League of CitMCIL is perhaps the most vis- rent and future leadership in ies 2021626-3 126; Texas ing to the local police depart- lic about disabilities issues. ible of theMinnesotaCILsand helping theMetropolitan Cenment. Robert Millage, ExecuGovernor's Committee on requires the leadership of ter for Independent Living betive Director of the Tennessee Texas also has started the vol- People with Disabilities 5 121 someone whois highly profes- come a progressive and cutAssociation for Disability unteer units with 10 cities 463-5739; Dept. ofJustice,Civil sional and who also has a very ting edge organization within Rights says, disabled people staffed thus far. "Houston's Rights Division 80015 14-0301 ; strong kyowledge and com- the independent living mcivein Tennessee had no reliable 20 volunteers, who wear spe- National Council on Independmitrpent to people with dis- ment. recourse for prosecuting park- cial caps and cany identifica- entLiving7031525-3406. abilities and the independent ing violators. That is, until the tion cards, issued 1,800tickets living movement. Mr. Hancox For more information on the disabled themselves got into in fiscal year 1996, generating Information for this article has all of these qualifications Metropolitan Center for Indetheact. They successfullylob- revenues of $135,000." camefrom the Arthritis Todcly and more. pendent Living you may call January-February 1998, bied their state legislature to the main number at (612) 646create a volunteer parking en- Otherproblems with the handi- Moving Violations, written by According to George Hall, 8342or contactDavid Hancox, forcementprogramthat allows cap parking tags are being Jill Jordan Sieder who writes Chair of the MCIL Board of ExecutiveDirector,at (6 12)603citizens, many of them dis- solved in Texas and Georgia for U.S. News and World ReDirectors, "As chair of the 2012. abled, to patrol city streets and through the creation of com- port. Board of Directors at MCIL, parking lots and issue tickets puterized indexes of handicap

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DearEditor:

lives of so many people.

In a separate article in thisedition of ACCESS PRESS, I am introduced to the readers as the new Executive Director of the Metropolitan Center for

I have been around a long time and I have never seen such injustice. Iam ashamed to have been associated with theMetro Center and I'm sure that Ed

L~IVULU

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i A L X A I k g l - . r r f i ~ c ~ ~ . I N c Hc; ru . ~ I w I m m m u n r , rtm I m l v r n n

10 ISSUE Mail to: ACCESS PRESS 1821 University Avr il8SN

St. Paul, MN 55104 F A X 644-2136

G R A Y

PLANT

NEWCAREER

LEGAL SECRETARY Due to our expandingpractice, Gray Plant Mooty is currently

MOOTY pointment is flying around so fast and furious that one could Carolyn Emerson easily get wind-burned. So, I Minneapolis thought I would take this opportunity to replace the misin- ToTheEditor:

ENTRY CLERK and resolving complex prob-

CTERICAL

extreme1y helpful. Send resume with cover letter to: Human

Resources,GrayPlant Mooty,

What you should know is we that the Board has failed to

G R A '

PLAN

:OoT' PARALEGAL

ASSISTANT PT RECEPTIONIST other activities in the future.

full-time.

ing this space

and many other persons with disabilities to assist them in

center. I urge the Independent Living now? Is the disability community going to have to depend on a non-disabled white male to look out for their interest forever? Can they tell me with a straight face that they couldn't find a qualified disabled person to fill a part-time job for $65,00Oa year? I could name

detail. MSW, Excel anddatabaseexperience helpful. Send resume with cover letter to: Human-Gray Plant Mooty, 3400 City Center; 33 S.6thSt.,Mpls,bfN55402or

secretarialusingMS Wordsoft-

Rickcardenas St. Paul

DearEditor: Opportunity Partners is grateful that Hennepin county Commissioners voted to restore partial funding for one of our programs - Extended Employment (as noted in the

G R A Y

Send confidential resume and salary requirements to:

= PLANT

RECEPT'IONISfl DOCKEI'CLERK

ave strong organizational and Accessible Space, Inc. (ASI)

CHILDREN'S ADVOCATE pendent Living Council (SILC), county's actions. Opportuwho is charged with insuring nity Partners' Extended Em-

throughout themetro area. We provide training and have great benefits for part-time employment such as Personal Time Off(PTOJ,Life Ins. Tuition Reimbursement, WellSo. MN Reg. Legal Services ness and much more. seeks Exp. Fam. Law Atty.,

vices and meet all the require- that time, the county has rernents of the law'? quested that the program be redesigned. They are seeking

available one evening per

questionable, but they fly in the face of all that independent living stands for. I challenge the SILC tocall forpublic hearings on the activities. Icall for the disabled candidates who didn't get offered the job to do what is necessary to get to the bottom of this situation. I call forjustice and fairness in making decisions that affect the

standing of issues facing battered women and their children, experienceworking with diverse populations, related lifelwork experience. Please

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