Changes to Vocational Rehab. Services - p. 2
Work Incentives Threatened Page 4
"Injustice anywhere is a threat to justice everywhere. Mmin Luther King, Jr. 79
Access Press lloCume 7, Number 04
-April 10, 199(
Success At The Capitol PCAITEFRA Bill Passes by Charlie Smith, Editor The cuts to the Personal Care ti end ant ( ~ ~ ~ j p r o g rand arn TEFRA (the program which provides PCAs and health care to children with disabilities) were restored back to 1994 levels by the House of Representatives and the Senate on Monday, April 1, 1996. As we go to press, the bill is now
then sent to the Senate where they found some technical problems which were taken care of. It then was passed. Due to the technical problems, the bill had to be sent backtothe House to be passed again, and it did.
nor has said he will now sign the legislation.
are assured of their current quality of life: families can stay together, people can stay in their homes and communities, and people can keeptheir ilidependence.
With the restoration of these
Ori@naAy, the PCAITEFRA programswere included inthe H e l h and Human Services Omnibus bill. This bill was vetoed late in March by the S U C C M DUE TO YOU! Govemor due to a part of the Anne Henry of MN Disability Law Center addresses a question at thepress conference bill he did not like. It gave "Last year the Governor proon impending cuts to the PCA/TEFRA programs held at the State Office Building on control to the counties to start posed major cuts to the PCA March 11th. Supporters packed the room and listened to testimonials of several their own HMO coverage in program and the elimination people wit11 various disabilities and who use PCAs. Speakers slrown lefl to right are: demonstration projects, and ofthe TEFRA program, and it Mory Jean Hoover, Anne Henry, Lolly Lijewski, Krista & Aaron Westendorp. delayed expansion of man- was hard to find people to aged care to people on AFDC vote for them" said Mel (this was known as P-MAP). Duncan, Executive Director The Governor had no obiec- of Minnesota Alliance for tion to the PCAITEFRA ieg- Progressive Action (MAPA). islation and communicated "This year you've got everythat to the legislators. He in- one begging to vote and pass structed them to separate out these programs, even the Govthe P-MAP legislation and ernor. That's successful attach the rest of the Health grassroots organizing." and Human Service Omnibus bill to another bill. That is what it took! People making those cans and writby Jeff Nygaard The House Democrats felt the ing those letters to the GoverOur health care system in for one. In their January 1995 "These days" the larger Min- P-Map legislationwas impor- nor and legislators telling Minnesota, as in much of the issue, they said, "...Health nesota non-profits are hold- tant enough to attempt an over- them how important these procountry, is increasingly being Partners [Minnesota's 4th ing'as much as a billion dol- rideoftheGovernor's vetoon gramsare to the independence organized accordingto a doc- largest non-profit health-care ldrs in assets, plus paying sal- Saturday, March 30th. An- of their lives. You made the trine known as'hnanagedcom- corporation] and its major aries ofhalfamillion bucks or other reason for an over-ride difference. Last yearwe startpetition". In Minnesota, un- competitors are, in every more. This is not chicken was that when the House first ed with the massive rally, the like much of the country, all meaningful sense, businesses feed. We don't know all the passed the Health and Human biggest the Capitol had seen. It forced legislators to delay companies involved in this slugging it out for profitable things they plan to do with Service Omnibus bill, it passed with strong bipartisan the cuts. Then camethe Home competition (and it is, by all accounts." The IRS seems to this money, but some things support, 110 to 24. It was Care Task Force during the accounts, very fierce) must be agree. As the Star Tribune are clear. They certainly plan only afierthe Governor's veto summer and fall. It made the "non-profit". This raises an reported in a 9 March 1995 to pay their executives large ofthe bill that the Republican Department of Human Serinterestingquestion: Ifthey're article about IRS audits of salaries. (See "Health Care House members changed their vices (DHS) re-evaluate the not competing for profit, then Minnesota health care com- In Minnesota: Bigger is Bet- position to not support the numbers and types of people what are they competing for? panies, "the audits are hap- ter? in last month's ACCESS bill. The over-ride failed. they had counted, and how Curiously enough, the answer peningbecausetheIRS recog- PRESS). Some of the big Rep. Lee Greenfield then of- much money was being spent. seems to be: They're compet- nizes that charitable commu- companies plan to diversify, fered an amendment to a bill Once this was done, DHS had nity hospitals are becoming acquire new businesses, and authored by Rep. Phyllis to admit they over-estimated ing for profit. much more corporate-style get larger; those things cost Kahn, which had all of the both the numbers andthe~ost, At least that's what somepeo- competitors these days and it money. How do these "non- Health and Human Service proving we were right; the ple seem to think; Corporate is questioning whether their profits" get all this money? It Omnibus bill minus the P- programs are cost-effective. Report Minnesota magazine, tax exemptions are valid." aealih - cant. on 3 MAP language. It passed unanimous~y. The bill was A core group of advocates
People And Prof::s
How Should We Manage Health Care?
were res~onsiblefor keeping DHS, thk legislature and the disability community updated on the issues. The group consisted of: Bob Brick of ARC Minnesota, Tom Brick from the State Council on Disabilities, Bill Blom from Freedom Healthcare, Jeff BangsbergofBecklund Home Cardenas of ACT, Tom Johnson of Alliance for the Mentally 111,Anne Henry from Minnesota Disability Law Center, Mary Jo George and Joel Ulland ofMinnesota MS Society, Cindy Johnson - a TEFRA parent, Beth Knutson-Kolodzne from Independence Crossroads, Gene Martinez of ARC Hennepin, and Bob Tracey from Minnesota Aids Project, the regular attendees of the Minnesota Consortium for Citizens with Disabilities (CCD) which met every Friday during the session, and the TEFRA parents and children who were able to show up at the Capitol at the drop of a hat to make their presence known. These people made it happen with a network of phone calls, action alerts, phone hotlines and faxes. They kept people aware ofwhat wasgoing on at any given time, when it was going on, and who needed educating. It was this constant pressure which madethis year successful. This is proofyou can make a difference when you get involved in the political process. This is an election year. Weneed to make sure all people running for office understand our issues: notjust PCA and TEFRA issues, but also transportation, affordable and accessible housing, and support for the Americans with Disabilities Act (ADA) and Individuals with Disabilities Education Act (IDEA) to list but a few.
April 10,1996 ,
Charlie Smith Editor The Legislative session is over and we had some successes (see page 1) due to your help. ThePersonal Care Attendant (PCA) and TEFRA programshave been restored, so adults and children will be able to continue to stay in the community, with their families, and be as
I isdspmd~ltas they can.
Access Press <
Mobility. Ifhevetoesthetraras- of the legislative session this ally .didn't see the reason for Representative Lee Greenportat& bill, it willmeanhigh- year, there is one item the Sen- thistypeofapology. Arethese
er rates to mainline riders and reductions of service. For Metro Mobility, the bill contains 1.6 million dollars to ' make up a deficit let3 over i from two years ago. Again, ' without this funding Metro Mobility will have further reductions in service, making a paor serviceworse, I urgeyou With the end of the session to call the Governor's offliceat you w ~ u l dthink our work 296-3391, and ask him to sign would b dans, But it isn't. the transportation bill. TheGovernoris stilI threaten*.* * ing to veto the a m s m n bill. This bill has monies in it for mainline buses and Metro Althoughsmegwdcmeout ,
Sprinu IS Here!
Free Garden Seeds
Upto ten packets of free flow- Penn Ave. (North Mpls) er and vegetable seeds will be available at the annual "Min- Doors open at 9 4 5 a.m. with neapolis Pride! DayWcelebF- the Master Gardener presen- tion on Saturday, May 4th. tation and Blooming BouleAlso featuredon Minneapolis vard award distribution at hide!Daywillbed.letopBloom- 10:30 a.m. Seed Giveaway ing Boulevard award winners begins at 1 1:OO a.m. U& This event is co-sponsored by the Neighborhood EnvironDay a& merit Committee of CUE, the 'Self Reliance Center, Garden City Seeds and Community Logan Park Broadway and Crime PreventionISAFE. Monroe (Northeast Mpls) *Wittier park -26th street For more information please andGrandAve.(South Mpls) call Kellie Jones at 673-3014.
fwld Both of them work
ate shouldbe ashamed of. The peoplejust cold-hearted orwas long and hard for issues imRemembering with Dignity resolution was sent back to the Rules Committee in the last days ofthe session. That had the effect of ending any chance of passing this year. This was a chance for the State of Minnesota to recognbx, without bbinganyone;$ratpast treatment of people in 'our state institutions was inhumane. When the resolution came up for a vote, a few Republican Senators voiced their objections sayingtheywere worried abut being sued and they re-
Rick Cardenas from Advocating Change Together (ACT) right when he said "Being a Senator means you don't have to say your sorry" ? The resolution will be back next year; let's hope they come to their senses ,by then.
ACCESS PRESS would like to give its own "LEGISLATORS OF THE Y E A R awards. This year they go to Senator Linda Berglund and
portant to people with disabilities such as the Remembering with Dignity resolution and the PCAITEFRA legislation. Thank you both for your commitmentto people with disabilities.
Spring is fmally here! With warming temperatures the outdoors is beckoning. Next monthwewillgiveyousome ideas on how to enjoy it.
Changes TO Vocational Rehab. -. Services Planned TheMinne~otaDe~arhnentof'prioritized funding for peo- dedicated to people with Economic Security (MDES) ple with severe disabilities, disabilities and use the difis planning major changes to ference to serve people in the the way services are provided. *serviceproviders specifical- general population. These changes could have a ly trained to work with peo*eliminatethe service priority major impact on people with ple with disabilities. . disabilities and their ability to for people with severe find work opportunities. Cur- *a wide m y of community disabilities. rently through the Vocational based private-for-profit and Rehabilitation Program ofthe private-non-profit service 'remove the requirement that Rehabilitation Services providing vendors. staff serving people with disabilitiesmusthavespecial Branch in the MDES you have access to: 'quality services consistently background and training. available and delivered on a 'financial resources dedicat- statewide basis. *drastically limit the commued to the employment needs nity based vendor pool by a
*drastically reduce the "due process"requirementsofcurFor more information on these proposed changes, there will beastatewidevideomeeting on vocational rehabilitation in Minnesota on April 24th from 9:Ooam - 4:Oopm in St. Paul at 'the Department of Economic Security, 390 N. Robert St., and at the Department of Human Services, 444 Lafayette Road. For outstate locations oralternativefo.rmat,call(612)
thing that I would call a maior loophole in Minnesota law that allows non-profit health-care . corporations in this state to make huge profits.
azine ~ u itt in their November 1995 issue, "Blue Cross has been able to operate with minimal to nonexistent competition andmaintain higher profit margins." Or, as an executive Here's an illustration: Blue atacompeting health carecomCross/Blue Shield Minnesota pany puts it,"Outstatehas been (Blue Cross), is owned by a their real cash COW." company called Aware Integrated, Inc. The legal loop- In summary, what we appear hole that I just mentioned to have now in Minnesota is a above allows Aware, which is few very profitable non-profit
1 ! ,
total health care budget. The Minnesota Office of the Legislative Auditor (OLA) published a study last year showing the expected changes in administrative costs that would result from six different possible reforms of our health care system. w
' Caregiver Class Offered
"What's so Funny About Caregiving? Using Humorand Creativity to Avoid Burnout" will be presented on Saturday, April 27 from 9 a.m. to noon. The program is appropriate for both clients and their families1 The possible changes ranged caregivers. from expanding on the system we have now (private HMOS
This program isoffered by The Living Room, Virginia Piper CancerInstitute's(VPC1)Cancer Resource Center, and has been specifically designed to help participants recognize causes, characteristics and p h a s e s o f burnout in
caregiving as well as how to develop strategies andan individualized plan of action. There is no charge for this program and free parking is available. To register, call Medformation at 863-3333.
1 Election Judges Wanted In Minneapolis without loss of wages to serve of time.
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"Celebrate Success" Seeks Nominations
looks like a duck, walks lihe a able "competition". duck, and quacks like a duck,
paniesareincolporatcdnanon- not. For, In an) competit~on, plans. as well as 3 versions of profii4. and the) '?\or(!~ C I ) Ing we $ + i l l hdve \v~nriersand i r e mult~ple-pa>erplanr (I~keour \ , l i l I I J \ L I L ~ W I \ 1111~1IIIV I $ ) \ prcbcril t ) ~ i c ) (in<! ! o ~ ! n ~~ li ~
This is exactly how the market is supposed to work, say proponents. Ifit actlgallydidwork out this way, that might be a good thing, but the real world
mote the public health?
In terms of numbers of peogle enrolled in its managed care plans, Blue Cross ranks third in the Twin Cities metropolitan area,. behind Allina and HalthParfners. But in the rest of the state, Blue Cross completely dominates the market, enrolligg63%ofmanagedbare members 'to its nearest Gempetitor's 12%. Due to Blue Cms'scontracts with thestate of Minnesota and with various schaol districts, which are often the two largest employers, in outstate communities, Blue Cross has in many cases been able to negatiaredx Best discounts fkom providers.
jot costs irl our current system
According to the theory, these discounts should mean savings for consumers and, to a certain extent, they do. But, in practice, these discounts have been used by Blue Cross to drive commercial insurers fiom the outstate areas campletely, Consequently,as Cor-
~ ~ l .
Even with those "extra" 400,000 people in the system, Let's assume Ehat we can't the reduction inpverheadunspendtoornwhmoreanheztlth der such a plan would be so carethan w e m a w spend- great that our total spending
argument.) Are there any ma- around $1 5 br'iliaa B l another w&, if every Minhethat we could cutback on with- sotan chipped in an extra $20 out compromising the quality peryear, we could havehealth af care? Well, yes, there are: care for all. administrative costs. It's i m p m a t @ remember . .. Administrative costs in our . rhat tkre are m a y f i k e ; current private system in Min- HeaNk - mnt. on p. 8
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Work Incentives Threatened by Toni Zachariae Watt O n February 28, 1996, the gan approving PASSes out of guarding medical benefits. Commissioner of Social Se- the Baltimore Maryland Cen- Beneficiaries and advocates
/ Religion & Disabilitv Opening To The Treasure
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I On Mental Illness
Life Goes On
A Tribute To Eunice ~ c ~ l u Recovery rg Through Wi 11 by LeAnne Dahl Eunice was my collaborator in the fust two years of this column. We worked well together. It wasn't our firstjoint effort. Back in the mid 703, we were in the midst ofwriting a book based on my life. But 1just couldn't seem to continue the project because it was too painful. She understood, as she always did. Eunice also understood my need to write this column alone. She has remained my fiiend, my teacher, and my mentor. Her love of teaching and writing was evident in everything she did. Writing had been her passion ever since she was in the sixth grade. Her biggest writing success was a book on mental retardation entitled, Your Downs Syndrome Child. She sold it and it was latertranslated into Japanese and Italian. Her life was brimful with her family and her work. She was proud of her daughter, Peggy, who now has her own law firm in Monticello. She was equal-
ly as proud ofhergranddaughter, Cindy, who has her own landscaping business. In the early years of her career, Eunice taught school. When I met her in the early 70's, she was the Executive Director of the Anoka ARC where she stayed her retirement in the mid '80's. She was always a strongadvocateforpeoplewith disabilities.
I hadn't seen Eunice since last April. Whenever she visited me, we always ordered a pizza. That was afavorite ofours. She took me to see her newest antique corner in a different shopthat day. Shewassoproud of it. That was my last visit with Eunice. Although I tried toreach hqanumber oftimes, I regret to say we were never in Eunice really never retired touch again. fiom anything. She kept up a vigorous life style until her I shall miss Eunice for her death on March 22nd. When uniqueness. I learned so much shemovedto Monticelloafew fiom her. She inspired me to years ago with her daughter keep on with my writing. and granddaughter, she began "Write about what you know renting space from various best," she told me more than antique dealers in orderto sell once. I hope to continue takher antiques. For many years, ing her advice so that my writshe taught at Metropolitan U. ing LIFE GOES ON. She had a number of students that took her correspondence Eunice McClurg - Mother, course dealing with develop- Grandmother, Writer, Teachmental disabilities. Lastspring er, ~dvocate;but most of all she taught a course in writing my Friend and Colleague. at her local community center. You will be remembered with She kept herself so busy that it love and respect. was hard to keep up with all of
I by Rita Burwell, Recovery, Inc. The lateneuropsychiatrist,Dr. Low, developed a self-help method of recovery concepts and techniques based on the management of fear, anger and nervous symptoms. Dr. Low maintained that most sustained tenseness, which produces symptoms, is caused by temper. He divided temper into anger and fear. Angry temper isjudging someonewrong and oneself right. This may take the form of resentment, disgust, impatience, indignation, and hatred. Fearful temper is judging oneself wrong; this includesdiscouragement, selfblame, embarrassment,shame, despair, and hopelessness. To quote Dr. Low, "You can't knock out tem~erwith control, but you can hold it down and create self~respectand self-confidence." This, of course, takes training.
book Mental Health Throu& Will Training. The heart ofthe training process is making the patientlconsumer realize that helshe is an apprentice. The hardest part of the training is practicing, putting into practice what has been learned, and then endorsing for the effort (self-praise). Improvement proceeds through apprenticeship and leads to health: mental and nervous health. Recovery, Inc., is a comrnunity mental health organization founded by Dr. Abraham A. Low in 1937 in Chicago, Illinois. Fifty-nine years after the founding of Recovery, Inc.,
Dr. Low's concepts are still used by mental health'professionals under the terms cognitive therapy and behaviormodification. And, an'added bonus is the price; there is only a free will offering taken for those who are able to contribute. Recovery, Inc., is having a panel for the Minnesota Bio Brain Association presenting the above view ofrecovery on April 15thfiom 7-9p.m.d the Lutheran Church of the Mmter, Edina Contact 922-6916 for more information.
Ir . SPECXU EDUCATWUWST d a y , April 30,1996
$:38 am.to 12:30 pm. Minnesota Law Qnt&
Training in the Method means regular weekly attendance at meetings where Dr. Low's concepts and techniques are learned from repetition and application to everyday life, and by reading Dr. Low's
The HCBA/NLS Awes fm People wab Q s M * 43mIlnlw presents:
A FREE trainin9;*p~idhg practical advice on'?I ' iiga case on behalf of students with special weds. IimitatEana please make you reservati Wanda Cotton at 334-8527, I f y a n&d my s accommodation, plepsc let W'snda know.
and hardship you went through gry at yourself for being an-
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Your s h o t of s o m e o n e f a m o ~ s
Pen,Bres.h, and Cameras * March 3 -May 12 THE MINNEAPOLIS IMSTITUTE OF ARTS
The Minneapolis Instiatte of Arts is barrier free and accesW to visitors with special needs. To a m w s free tour, phase call 870-3140 o~87@31+1at least 4 weeks in advance.
The Power Of To
MALU CompuDrive '96 by Gordon Gillesby Some people get it; other's don't. It'squite simple whetheryou'retalking cyberspace or poptarts. Those using the tools around them are the ones making a difference to our longterm planetary survival. Everybody elsejust whines. Those that can, do. hoke who can't, complain about those that do. Meet one of the good guys: Vince Troy is the President of MALU -that's the Minnesota Association of Life Underwriters to us mortals. It's a professional association of people selling life insurance related products. Vince is one of the good guys (no un-politically correct references intended) because he's challenged the MALU membership into sponsoring CompuDrive '96 a state-wide used computer collection and re-distributiondrive thrdugh DRAGnet. They find the computers; DRAGnet gathers, repairs and replaces them back into local communities. This isn't atoken effort,either. Vince -and, for that matter, all of MALU - really wants to help disabled and disadvantaged youth and
families from all over Minnesota. How much help? They've committedthemselves to findingamere 3300 computersby May 17. That'sawhole lot of computers to find in a very short time. When they do it, and they will succeed, DRAGnet will easily get more than 1000working computers out of that many donations. Think about it. One thousand individuals - in all likelihood, people with disabilities- who'll have their own computer by the end of 1996. People who couldn't afford one before. People whose lives will be forever changed because they started their own personal technologicaljourney for access to information, education, employment, recreation - literally, the entire world. Troy and MALU have more than helping the environment in mind. They're keenly aware that CompuDrive '96 has tremendous tax and public relations benefits for the donors. It directly supports local economical and social development throughout the whole state. Even educationally "at-risk" youth from area schools are involved with
CompuDrive '96: from pick-up to delivery throughout the summer, helping to process donations, load trucks,take computersapai-t,fix them and re-assemble them for community placement.
They ,want as many as possible of those donated computers to be restored to working condition with no environmental liabilities forthemembership or their clients. Most of all, they want people who need computers to have an opportunity get reliMALU CompuDrive '96, like able, rehrbished ones. DRAGnet, is really about people a working demonstration of how Because of Vince Troy, MALU is people help themselves, others and the first professional association in their community. Computers stay Minnesota to take an active role in out of landfills. Poisons stay out of correcting technology disparity - the water. Business gets hazardous the enormous economic empowerwaste properly handled - even to ment gap between those who have the point of not being waste at all. access to computers and those that People get technology, 'real-world' don't. I mean, they're actually DOwork, and skills training that im- ING something,not just flapping lips proves their self-esteem. Many who or generating meaningless bits of couldn't afford one before will get a processed wood pulp enshrouded in low-cost, reliable personal computer bureaucratic self-adhesive cellofortheirown education,employment, phane binding material. It's not just or independent living needs. a first in Minnesota - it's a first anywhere. This project can easily be Job-skills, education, and computers reproduced on almost any scale. It for people in disadvantaged situa- works in Minnesota and it should be tions. All from one (and, I hasten to taken to a national level! point out, the ONLY) EPA-licensed non-profit computer recycling oper- The MALU CompuDrive '96 began ation IN THE COUNTRY. Period. in early March. State-wide equipThat's why MALU is dealing with ment pickups begin the second week DRAGnet and not somebody else. of April and continue through the
end of the year. For information on donations or a schedule of pick-up dates and locations, contact Bill McCarthy at DRAGnet. One final note: DRAGnet growth continues unabated. During April we're moving (for the third time in two years) to a 10,000 square foot warehouse space (tripling what we had) - a number that will double again by the end of next summer. During this time, there may be brief interruptions to our telephone service. Wethank you for your patience and apologize in advance for any inconvenience. We appreciate your support!
Gordon Gillesby (gille027@tc. umn.edu) is the CEO of DRAGnet the Disabiliry Resources, Affiates andGroups network (612.338.2535/ voice; 338.2569/fax). The Power of To: is about computers, cyberspace, and conimzrnicationfor all people. Please share your thoughts, comnients and ideas about this column with Access Press or log on to DRAGnet lnfor~nationService with yozrr computer and modem(6 12. 753.1943; 8-n-I; ANSI emulation).
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look when talking about cutting costs, and the HMOs seem to be doing a good job on some of them (streamlining billing
Indeed, as the OLA report put it, Minnesota's current system "appears to be using most of the known methods for reducing administrative costs short of implementing a single-payer
and by that I mean the health
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Apr. 1996 issue