December 2015 Edition - Access Press

Page 1

Lights recycling, page 5

Volume 26, Number 12

www.accesspress.org

CMS changes could affect more people

Charlie Smith Award winner shares her experiences, lessons in life

by Jane McClure

by Access Press staff

Controversy continues over the competitive bidding program overseen by the Centers for Medicare and Medicaid (CMS). This time, specialized wheelchair accessories could be affected by program changes. Those who need specialized auxiliary attachments could end up paying more for the items needed for daily life, having fewer choices in what they can buy and having longer waits to obtain needed items or to have items repaired. Unless Congress can pass bills before year’s end, the changes will take effect on January 1, 2016. That is when CMS is set to expand the competitive bidding program to include specialized wheelchair accessories or attachments. The program expansion will slash reimbursement rates for seat and back cushions, power recline and tilt systems, specialty drive controls and other complex rehabilitative technologies that people with disabilities depend on to help with daily living. Many CMS changes- p. 15

Everyone has a story and was born with a purpose. While people are not born as leaders, advocates or teachers, they may take on those roles as life unfolds. They may find their purpose in life after experiencing struggles of their own, or becoming involved in the struggles of others. Those were themes of the speech 2015 Access Press Charlie Smith Award winner Jessalyn Akerman-Frank gave at the newspaper’s annual banquet November 6 in Bloomington. A low roar of conversation was dominant during social hour, along with music and the other events of the evening. The overflow crowd went silent to enjoy, watching and listening to the Charlie Smith Award winner Jessalyn Akerman-Frank used American American Sign Language Sign Language to deliver her speech. presentation of the award Photo by Erin McKee winner’s speech and the nominating speech by Darlene Zangara. At deaf LGBTQI community and founded an award the end of each speech everyone in the crowd event to promote pride among its members. shook their hands in the air in the sign lanShe has amassed a long resume of community guage of applause. It made for a very inclusive service since moving to Minnesota in 2001. spirit, having everyone with hands in the air. Akerman-Frank’s family and many friends attended Akerman-Frank is a longtime deaf commuthe banquet, as did many supporters of Access Press. nity advocate, and is committed to helping This is the newspaper’s 25th year, so the banquet those who deal with domestic violence issues. was also a celebration of its history and anniversary. Award winner shares - p. 15 She is also deeply involved in Minnesota’s

December 10, 2015 Nonprofit Org. U.S. Postage PAID Twin Cities. MN Permit No. 4766 Address Service Requested

Five percent increase

Best Life Alliance rallies to support caregivers by Jane McClure

More pay is needed for those who care for people with disabilities and elders. The Best Life Alliance, a coalition of more than 130 groups statewide, has launched its quest for $90 million from the 2016 Minnesota Legislature. Group supporters filled the State Office Building media room December 1 to

Longtime personal care attendant Sam Subah addressed the media about the campaign, while co-chairperson Pam Gonella looked on. Photo courtesy of ARRM

make their case for an increase. They were joined by legislative allies, Sen. Kent Eken, DFL-Twin Valley, and Rep. Matt Dean, RDellwood. Best Life Alliance is the new name for The 5% Campaign, which has been a presence at the capitol in recent years. The money sought by the alliance would provider a five percent increase to home and community-based service providers. The group did get a five percent increase in 2014 but fell short during the 2015 session. If state lawmakers pass an increase in 2016, it would take effect July 1. The shortage of personal care attendants has reached a critical stage, according to Best Life Alliance members. More than 90,000 Minnesotans with disabilities and elders need care, but are all too often unable to find help. Low pay and long hours mean jobs can be hard to fill. People who enjoy their work providing care must sometimes take two or three jobs to make ends meet. Pam Gonnella, campaign co-chairperson, said she recently called the home where her adult daughter Sarah lives. A staff member who was leaving cried when Rallying support for caregivers - p. 7

“Promise me you’ll always remember: You’re braver than you believe, and stronger than you seem, and smarter than you think.” — A. A. Milne

NEWS DIGEST

Many people enjoyed the 2015 Access Press Charlie Smith Award banquet. Pages 8-9 MN-CCD hosts kickoff for 2016 legislative session, seats new board members. Page 3 Assisted suicide proposal raises many troubling questions. Page 4 Attorney who files many access claims has woes of his own. Page 7 State grants provide support to an array of programs. Page 13

INSIDE Accessible Fun, pg 11 Events, pg 12 People & Places, pg 5, 10, 13 Radio Talking Book, pg 14 Regional News, pg 6


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