January 2014 Edition - Access Press

Page 1

The Arc awards, Pg 11

Volume 25, Number 1

www.accesspress.org

Facility Remembering with Dignity operated wins national attention without a license by Access Press staff

by Jane McClure

The Minnesota Specialty Health Systems facility in Cambridge operated for 10 months without a required state license and then tried to conceal that status. Those actions brought a scolding from U.S. District Court Judge Donovan Frank, who must now decide how to sanction the Minnesota Department of Human Services (DHS). Frank’s December 17 memorandum is just the latest chapter in a long and troubling saga centered on the DHS-run facility. During its years as the Minnesota Extended Treatment Options (METO) program, the Cambridge facility drew scrutiny for its treatment of about 300 residents with developmental disabilities. Use of seclusion and restraint were the major problems. Residents were restrained and at times were physically injured by staff, on top of the emotional injuries they sustained. METO settlement - p. 13

Remembering With Dignity, the initiative to properly mark graves at Minnesota institutions, has received nationwide recognition this winter. The program has been featured twice on PBS programs this winter, most recently on the News Hour December 26. It was featured earlier on the Religion and Ethics Newsweekly show. See the show at www.pbs. org/ Remembering With Dignity not only replaces old numbered stones with newshour/bb/nation/julymarkers. Artists with disabilities create portraits of those who were buried dec13/graves_12-26.html at state institutions. The painting here is by Duluth resident Bridget Supporters note that the Riversmith, a self-advocate and celebrated artist. The painting honors national publicity, coupled Gudrun Rafnson, born April 18, 1904 and died January 26, l916. with statewide coverage in Photo courtesy of Remember With Dignity Minnesota newspapers and in broadcast media, “The several hundred people buried here spent has enhanced Remembering With Dignity’s most of their lives invisible to the outside world.” visibility and has brought much-needed attenThe report centers on the family of Albertine tion to the forgotten people it honors. Articles Poitras. Her relatives had to go through historiabout the program have appeared in the Star cal archives to find her numbered grave. She Tribune and Pioneer Press. Remembering was developmentally disabled. Her family With Dignity has also been featured on stateplaced her at Faribault during the Great Depreswide broadcast media over the past few months. sion, when she was 34 years old. Family memIt is a program of the statewide self-advocacy bers believed they could no longer care for her. group Advocating Change Together (ACT). The program shows her grave with a name The PBS reports are by Fred de Sam Lazaro, marker, not a number, and family members as part of a reporting project funded by St. honoring her memory in a ceremony. The cerMary’s University. His December 26 report began emony included Poitras family members, ACT at the Faribault State Hospital cemetery. “One staff and former Faribault residents. solitary cross is all that suggests that this is a cemetery, and perhaps that’s fitting,” he said. Remembering - p. 3

Our look back at what made 2013 headlines January The merger of Courage Center and Sister Kenny Rehabilitation Institution was underway. The merger, which was completed in spring 2013, was the end of one era and the start of another for two of Minnesota’s largest and oldest disability service organizations. The merged organization took the name Courage Kenny Rehabilitation Institute under the umbrella of Allina Health.

Family caregivers, who had taken a 20 percent pay cut in 2011, celebrated a legal victory. The Minnesota County of Appeals ruled that family caregivers shouldn’t be paid less than non-family caregivers. The case, Healthstar Home Health Inc., et al, vs. Jesson, was filed in the fall of 2011. The Arc Minnesota honored three women for decades of advocacy. Jane Donnelly Birks, Sally Swallen Helmerichs and Molly Woehrlin were recognized as pioneer lobbyists and advocates. Their work at the state capitol and elsewhere began in the 1960s, at a time when it was uncommon to see women lobbyists in that arena. They were honored not only for their years of hard work, but for serving as an inspiration for many other families. The newly reorganized Minnesota Consortium for Citizens with Disabilities (MN-CCD) was starting the 2013 legislative session with its first-ever executive director, Rebecca Covington.

February

Activist Rick Cardenas celebrates with Metropolitan Council representatives, downtown residents and St. Paul Mayor Chris Coleman and Coundil Member Dave Thune at the tower groundbreaking. File photo

The 2013 Minnesota Legislature and Gov. Mark Dayton wound up an eventful first month. Dozens of bills affecting people with disabilities were introduced. Legislators and advocates were working toward their first deadline, March 15, when bills needed favorable action from the House or Senate. Dayton announced two major initiatives for people with disabilities. A package of reforms would provide better health care for 100,000 Minnesotans and lower costs for taxpayers. In an effort to further improve the state’s Medicaid program, the Minnesota Department of Human Services (DHS) partnered with six health care providers to test a new payment model. The governor also jump-started efforts toward completing Minnesota’s long2013 in review - p. 4

January 10, 2014 Nonprofit Org. U.S. Postage PAID Twin Cities. MN Permit No. 4766 Address Service Requested

“In my country we go to prison first and then become President.” — Nelson Mandela NEWS DIGEST

The Minnesota Department of Human Services presented its Circle of Excellence Awards. Page 12

Find a wide array of resources through our Directory of Organizations. Pages 7-10

The recent METO case brings back painful memories of New York’s Willowbrook institution. Page 2

Learn how to be an Access Press Issue Sponsor and enhance visibility for your organization or business. Page 3

Make a New Year’s resolution to join a support group or find a new activity. Page 14

INSIDE Accessible Fun, pg 13 Events, pg 14 People & Places, pps 11-12 Radio Talking Book, pg 15 Regional News, pg 6


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