Page 1

July 10, 2002

Inside ■ Meet Our Intern — p. 2 ■ Cancer Project — p. 3 ■ ADA Conference Workshops — p. 3

Directory of Organizations — Page 8

1

“Get into politics as if your lives depended on it, because they do.” - Justin Dart, Jr.

Non-profit Org. U.S. Postage PAID Mpls. MN Permit No. 4766

Volume 13, Number 7

SOURCES

RESOURCES

July 10, 2002

JUSTIN DART: 1930-2002 THE LEGACY OF JUSTIN DART

“To the critics who complain that ADA has not achieved total justice ... I say what about the Bill of Rights and the Ten Commandments? Have they achieved total justice? The vision of justice is an eternal long march to the Promised Land of the good life for all.”

by John Tschida

M

- Justin Dart, Jr.

Justin Dart, Jr., Completes His Mission June 22, 2002

Top Disability Legislator Will Not Run Again by Amy Farrar

N

ext year, the disability community will be losing one of its strongest advocates when State Representative Kevin Goodno retires. Goodno, 39, says he plans on spending more time with his two daughters and his wife, who is expecting a third child in August. Disability advocates and legislators alike all agree that perhaps the single most important thing Goodno did for the disability community was help pass the work incentives act in 1999. Also known as the Medical Assistance for Employed Persons with Disabilities law (MAEPD), this legislation makes it easier for people with disabilities who have personal care attendants (PCAs) to enter the workforce and still keep their state paid health insurance. “He was the bill’s chief sponsor, and without him, it never would have happened,” said John Tschida, senior director of

public affairs and research at Courage Center. MA-EPD, written by the Minnesota Consortium for Citizens with Disabilities, was guided through the legislative process by Goodno. According to Joel Ulland, public policy manager for the Multiple Sclerosis (MS) Society, MA-EPD was the only spending bill passed in the last four years that was not part of a larger spending package, “largely because of Representative Goodno’s leadership.” As a result of his efforts, Goodno, who chaired the Health and Human Services Finance Committee (HHSFC), received the Legislator of the Year Award from the MS Society in 1999 and 2001. “Now there are 6,200 people with disabilities in Minnesota who are working because of the work incentives bill,” said Ulland. Goodno received the same

award from the Minnesota State Council on Disability and from Arc Minnesota, as well as other awards. “No one has been a stronger voice for people with disabilities in Minnesota,” said Tschida, who with other advocates, credits Goodno with the success of disability programs during the last budget session—despite the $2.3 billion dollar budget shortfall. Beyond MA-EPD Another piece of legislation Goodno guided through the process was the patient protections bill, which offers better continuity of care for people who change health plans, and improves access to specialty care. Goodno also helped extend the state prescription drug program to cover people under 65 who receive Medicaid. The program takes effect this Goodno - cont. on p. 6

any writers wiser and better than I have written of the passing of Justin Dart, a leader of both human and disability rights for the last 25 years. He was a tireless supporter of the disadvantaged and the marginalized, recognizing that it was often the trifecta of public policy, and environmental and attitudinal barriers that created this secondclass social and economic status—not one’s physical or cognitive abilities. Dart was a Washington power broker, armed not only with a razor-sharp mind and knowledge of political systems and players, but with the money to make him impossible to ignore. There have been whispers about his wealth, as if this somehow compromised his status as a “true” member of the disability community. There is no doubt he was a son of privilege, inheriting great wealth and later creating it in Japan as a businessman. Wealth seems to run in families like Dart’s the way receding hairlines do in mine, passed down from one generation to the next. There are no apologies needed for this. We should all be thankful Dart chose to focus his attention and resources on improving community integration for all members of the disability community—not just wheelchair users like himself. But while wealth has a way of creating more wealth after a certain point, there are no like economic principles guiding the building and sustaining of disability advocates with the passion and skill that comprise the real crux of Justin’s legacy. Unfortu-

nately, Adam Smith’s invisible hand guiding market forces does not tap people on the shoulder and invite them into the disability fold. This we must be mindful in doing: creating a cadre of future leaders to carry the banner and fill the footsteps of those who have gone before. Dart was aware of this, and invited countless individuals with disabilities to his Washington home in a grassroots, independent living version of Ronald Reagan’s kitchen cabinet—of which Dart’s father was a member. In doing so, Justin was not only mentoring, but empowering young people, simultaneously building a knowledge base and self-esteem in each of those visitors. But this alone will not ensure the staying power of a new generation of leaders within the disability community. We need more formal programs like Partners in Policymaking, founded in 1987 by the Minnesota Governor’s Council on Developmental Disabilities. Its goal is to engage and build the skills of individuals with disabilities and the parents of young children with disabilities to become the leaders of tomorrow. Since its inception, 46 states have followed suit and close to 10,000 program graduates are scattered across the nation. (Applications for the next local program are due August 1.) Programs like these are essential capacity-building efforts. They take resources and energy, and the return on investment may take some time, but they are vital in regenerating our community. The American Association of

People with Disabilities is helping to encourage new blood as well, drawing attention each year to individuals with disabilities around the country with its Paul Hearne Awards. Recipients garner $10,000 each to aid in their efforts. These are important programs that we all should know about and support. These are people we should be forging relationships with and programs that deserve replication. We need a nationwide network of new leaders to backfill our aging mentors. Today in Washington, and scattered throughout the country in pockets from California to Colorado to Texas, is a loosely knit coalition of disability advocates and activists with disabilities, doing yeoman’s work at the state level and descending on the nation’s capital when needed to flex their political muscle on federal issues. They include the giants of the independent living movement: Judy Heumann, Lex Frieden, Bob Kafka, Becky Ogle, June Kailes, Marca Bristo, John Kemp, Fred Fay, and others who can trace their roots to the dark days when “No wheelchairs allowed” signs were not only a reality, but they were bought and paid for with public tax dollars. These folks have fought the good fight together and their collective strength has fundamentally altered the way people with disabilities are viewed by the governmental and political systems we encounter. We owe it to ourselves to look beyond our state borders and engage others in all corners Dart - cont. on p. 2


July 10, 2002

2

other Friends donation from Justin and Yoshiko. With it, they sent a photocopy of one of our recent front pages with an encouraging and supportive note. They have been longtime Access Press backers and subscribers due to Charlie Smith and his efforts to make the paper visible.

Tim Benjamin Editor With the passing of Justin Dart, we have lost another senior leader in the disability movement. There are few words that we can say to acknowledge the great things that Mr. Dart has done for us as disabled citizens. Every time we use curb cuts, we should thank Justin. Every time we slap our hand on the electric door or use a community restroom, we should thank Justin. Every time we use public transportation, we should thank Justin. Every time we enter a classroom or receive a paycheck, we should thank Justin—and on and on and on.

Thank you, Justin! His wife, Yoshiko, reports that Justin said this before his passing: “Beloved colleagues, I am the luckiest man in the world to have been associated with you. Thanks to you, I die free. Thanks to you, I die in the joy of struggle. Thanks to you, I die in the beautiful belief that the revolution of empowerment will go on. I love you so much. I’m with you always. Lead on! Lead on!”

John Tschida, who writes our culture column, submitted a piece about Justin Dart this month. I had been struggling to shorten the obituary that was written by Fred Fay and Fred Pelka at Justin’s request. It was written so eloquently that it was tough to shorten while maintaining its integrity. I decided John’s article would be a much better original tribute from Access Press. Our thanks to John for such a perfect piece.

*** We are losing a legislative leader who is retiring from his position at the Capitol to spend more time with his family. Rep. Kevin Goodno has been a leader in disability rights and complete inclusion for the disability community. He has held a very powerful seat. Before November, we need to make sure that all aspiring representatives and senators are clear on the issues that concern the disability community. ***

Our longtime desktop publisher, Ellen Houghton, took on another role this month: writing the Spirituality and Disability column. Now that we know about some of her additional talents, we can Recently, we received an- More remembrances of Justin continue to “exploit” them. Dart are printed on page 10. Thank you, Ellen, for your

extra contribution. You a real not understand that the asset to the paper. media is supposed to ask the difficult questions and print *** the truth. Maybe he doesn’t Aaron Corcoran, our summer have the answers to the intern, introduces himself and difficult questions and that his distribution project below. is why the media has turned He also makes a request for into “jackals.” It’s sad that assistance from readers re- such a man, who could have garding his project.. made more positive change, will be remembered by *** many as an embarrassment to the state of Minnesota. Governor Ventura has announced he will not run for *** office again in the coming election. Many will miss the Just a reminder to visit our governor’s antics, but I won’t. website at: www.access I’m glad to see him go. press.org. However, our cartoonist, Scott Adams, will miss Ventura. *** Scott claims: “He’s easy to draw.” In fact, he created a And don’t forget to attend cartoon to this effect, seen on the ADA Rights & Responpage 11. sibilities conference on July 26. See page 3 for more The governor is still threaten- information. ing the media for their portrayal of him. He seems to

Intern Aims To Improve Access Press Distribution by Aaron Corcoran

P

rior to becoming the summer intern here at Access Press, I was introduced to the paper through the Department of Rehabilitation Services—which partnered with the Higher Education Consortium for Urban Affairs (HECUA) to provide funding for this internship. HECUA is an organization that aims to educate youth about social justice issues, which makes an alliance with Access Press a natural. My primary contribution to the paper this summer will be seeking to improve the efficiency of its distribution—but I also hope to do some writing, as well as basically seeing how the

entire paper is put together. I have cerebral palsy and use an electric wheelchair. In 2000, I graduated from Spring Lake Park High School. After recently completing a year and a half in Courage Residence—a personally trying, but rewarding, time in my life—I am in my second year at Minneapolis Community and Technical College, looking toward studying something related to writing or small business management. My goal this summer is to make sure the paper gets to as many readers as efficiently as possible. One of the problems

Access Press faces is consistently reaching its target audience, the disability community. Above all, the paper should be at places that are accessible and are frequented by those who have an interest in it. Courage Center, for example, is a large drop site for these reasons. We are also looking to expand the delivery of our paper in greater Minnesota, to better serve the disability community in outstate areas. In order to effectively distribute the paper, it is helpful to have a contact person at each of our drop sites to tell us how many papers were taken or how many remain. This way, we

Yello w Taxi ellow Try our Super Taxi Service in the Metro Area

Call 612-824-4444 On-Call Accessible Taxi Service at taxi rate OK’d for Metro Mobility overflow if denied Reservations up to a year in advance or On-Call

Access Press Co-Founder/Publisher (1990-1996) ....................................................... Wm. A. Smith, Jr. Co-Founder/Publisher/Editor-in-Chief (1990-2001) ............................ Charles F. Smith Board of Directors ...................................................... Mary Kay Kennedy, Steve Kuntz, Lolly Lijewski, Bridget Smith, Joani Werner, and Linda Wolford Editor .............................................................................................................. Tim Benjamin Assistant Editor .......................................................................... Laurie Eckblad Anderson Summer Intern ........................................................................................... Aaron Corcoran Cartoonist .......................................................................................................... Scott Adams Production ........................................................... Ellen Houghton at Presentation Images Access Press is a monthly tabloid newspaper published for persons with disabilities by Access Press, Ltd. Circulation is 11,000, distributed the 10th of each month through more than 200 locations statewide. Approximately 650 copies are mailed directly to political, business, institutional, and civic leaders. Subscriptions are available for $15/yr. Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed. Paid advertising is available at rates ranging from $14 to $18/column inch, depending on size and frequency. Classified ads are $8.00, plus 35 cents/word over 20 words. Advertising and editorial deadlines are the last day of the month preceding publication. Access Press is available on disk. Call MN State Services for the Blind, 651-642-0500 or 800-652-9000. Inquiries should be directed to: Access Press • 1821 University Ave. W. • Suite 104S • St. Paul, Minnesota 55104 • (651) 644-2133 • Fax (651) 644-2136 • E-mail: access@mninter.net.

can evaluate the accuracy of the number of papers left at each drop site and act upon it. My goal this summer is to follow up with the contacts we already have and create more awareness of Access Press by establishing new contacts. I am also hopeful that this summer I can see a different side of the disability community. Due to my youth and the fact that I was mainstreamed most of my life, there are critical community issues that I have only viewed from one angle. Working at Access Press has challenged me to see the other sides of issues and to critically evaluate other perspectives. Just recently, we were having a discussion over lunch about the new Mary Jo Copeland orphanage, to be built in Eagan, and more than one person was taken aback because I did not see the other side of the issue. I looked at the orphanage as a good

thing—after all, an orphanage provides a home to children who need one. Unfortunately it is also an institution, as Tim Benjamin and Rick Cardenas (of ACT) pointed out. They asked me where I would rather see children grow up: in a facility with a hundred children, or in a family home with a few children. I’m not sure whether I agree or disagree with their viewpoint, but it was refreshing to have it brought to my attention. Star Tribune and Pioneer Press reports on the disability community seem to be limited to human interest stories, not dealing with the larger issues in daily life for a person with a

disability. The local disability community needs a forum such as Access Press to discuss important issues which rarely make it into the mainstream media: accessible performances, accessible taxicabs, housing, legislation, and countless other things that affect and enrich the lives of people with disabilities. Therefore, I have a request of Access Press Readers. If you know of anywhere this paper could be distributed to others who would find it interesting or useful, please call Aaron at Access Press at (651) 6442133. All of your help is greatly appreciated! ■

DART - Cont. from p. 1 of the country to not only build our numbers, but our communication network as well.

THE MINNESOTA STATE COUNCIL ON DISABILITY

KEEP UP TO DATE ! ! SUBSCRIBE NOW FOR FREE MINNESOTA DISABILITY E-MAIL

◆ Breaking Federal and State Disability News ◆ Notice of Special Events To Subscribe, E-mail MSCOD at council.disability@state.mn.us

T HE C ONNECTOR N EWSLETTER A Quarterly Publication Featuring Disability Issues and Commentaries plus Special Issues on Legislative Activities For a Free Subscription, Contact MSCOD at 651-296-6785 V/TTY ◆ 1-800-945-8913 V/TTY

651-296-5935 FAX

MSCOD, YOUR SOURCE FOR INFORMATION, REFERRAL, TRAINING AND TECHNICAL ASSISTANCE ON ACCESS, EDUCATION, EMPLOYMENT, HEALTH CARE, HOUSING AND TRANSPORTATION

An emerging class of young Turks at the national level is growing, including Henry Claypool, Andrew Imparato, Jennifer Sheehy, and Jonathan Young. Who are they? You owe it to yourself to find out. Justin Dart’s mighty and many accomplishments will endure. The void left by his passing, I hope, will not. He was fond of saying “lead on” and he said it often. It was not an idle statement. It was both an invitation and a command. We owe it to him, and those who will come after us, to heed the call. ■ [Editor’s note: For more information on Justin Dart, please visit the Justice for All website at: http://www.jfa now.org and search the Past Alert Archives for June 22, 2002 and subsequent days.] Please patronize your Access Press Advertisers. They bring you your paper.


July 10, 2002

Gaps in Breast Health Care For Women With Disabilities

ADA Conference Workshops I

by Betty Beier

W

omen with disabilities • Allowing extra time to do face great challenges. clinical exams was a conIs access to appropriate inforcern. mation and services relating to breast health one of those • There is little targeted outchallenges? reach to women with disabilities in the metro area. This question kept popping up at the Women’s Cancer • In residential settings, such Resource Center (WCRC). as group homes, policies Reports of a lack of screenrequire regular breast selfings, concerns about clinic exams—but the policies are accessibility and sensitivity of not always followed. clinic personnel, and a lack of education about breast cancer • Minnesota Medicare statisled WCRC to look further. In tics for women 65 to 75 January 2001, WCRC started show disabled women are a first-of-its-kind inquiry less likely to have had called The Breast Health mammo-grams (56.8%) than Access for Women With non-disabled women Disabilities Project. (67.2%), a significant disparity. There are also WCRC, along with four other regional differences, with Minnesota organizations (The northwest and southeast Minnesota Breast and Cervicounties showing higher cal Cancer Screening Promammography rates. Cengram; The Metropolitan Central and metro counties ter for Independent Living; report lower rates. Arc Anoka, Ramsey and Suburban, Inc.; and Stratis • For the 50 to 67 age-group, Health), undertook a yearthere’s a large disparity in long research project involvmammography rates being person-to-person intertween women with disabiliviews, questionnaires, a litties who use Medicare erature search, and user statis(56.3%) and those who have tics. Their findings concommercial health plan covfirmed most of the original erage (80% and up). suspicions. Some key conclusions are: After reviewing the research, the five project partner orga• Fewer than half of the nizations met with women women with mental retarda- with disabilities to plan action tion have any knowledge of steps. At WCRC, the first will breast cancer or how to do a be to identify clinics that are self-exam. There’s a great doing the best job in providneed for education, and ing services to women with better written or visual disabilities and disseminating information for these that information. All other women. project partners also indicated plans to remedy some of • Getting onto an exam table the concerns. or standing for mammograms is a challenge in some “We are very grateful to the clinics. Susan G. Komen Breast

HANDI MEDICAL SUPPLY

Cancer Foundation, Minnesota Affiliate, for funding this new research,” said Ellie Emanuel, WCRC codirector. “Historically, the national discussion on health care disparities has focused on ethnic and racial trends, generally leaving out women with disabilities. This is a important step in bringing these women into the discussion.” ■ This article has been reprinted with permission from Giving Voice, the newsletter for the (WCRC). For updates on this project, please contact WCRC at 612-822-4846 or wcrc@mr.net.

n the June issue of Access Press, we highlighted the two speakers, Judy Heumann and John Wodatch, who will be featured at the ADA Rights & Responsibilities conference to be held on July 26 in Minneapolis. This month we’d like to present some key information on the three morning and four afternoon workshops. Concurrent Morning Workshops Working With Personal Care Attendants (PCAs) This session will be led by Linda Wolford from the Department of Human Services (DHS) and Carol Streasick from the Metropoli-

tan Center for Independent Living (MCIL). The discussion will focus on consumerdirected options in Minnesota’s personal assistance services program, as well as on differences between self-directed care and agency-provided care. Also addressed will be tips to help consumers make their relationships with their PCAs more successful. Self-Advocacy— what to do, how to do it and is it appropriate? At press time, the moderator of this workshop had not been announced. The other participants will be a panel of three consumers who are selfadvocates: a working father, a woman employed at the U of M, and a man who currently holds a leadership role in the community. These consumers will discuss personal experiences, including significant relationships and services pertaining to self-advocacy. There will also be a Q & A period.

handling complaints and working with the Department of Justice will also be addressed. There will also be a Q & A period. Gaining Legal Protections This workshop will be led by Beverly Wolfe, Assistant County Attorney for Hennepin County, and Kathy Hagen, an attorney from the Disability Law Center. Discussion topics will include: the rights of individuals who are employed or seeking employment; the protection offered under the ADA, the MN Human Rights Act, and the Family Medical Leave Act; and the consumer’s responsibility. Attendees will also learn what constitutes a legitimate complaint and how to phrase arguments.

How to Start Working This session will be led by Sara Sundeen and Lori Gravink, both from Courage Center. One discussion topic will be how to find a job, including the process and skills needed. Other topics Q & A with Judy Heumann addressed will be: disclosure, This is a chance for confer- accommodations, benefits, ence attendees to interact with advocacy, resources availMs. Heumann after her key- able, and retention/follow-up note address. services. A third participant will share a personal success Concurrent Afternoon story. There will also be a Q Workshops & A period.

Start the fight to keep it together.

Service Animals This session will be led by Lolly Lijewski from MCIL and John Wodatch (featured speaker). It will also include a panel of handlers and providers of service animals. Information shared will include the history of service animals and what they can do, as well as a discussion of the responsibilities of a handler and ADA specifics regarding service animals. The process of

Building Access— What’s Required? Margot Imdieke Cross, from the MN State Council on Disability, and Curt Wiehle, from MN Building Codes and Standards, will lead this workshop. It will include a review of building code and civil rights requirements, as well as a discussion of technical specifications, the consumer’s responsibility in ADA - cont. on p. 6

Handi Medical Supply 2505 University Avenue West St. Paul, Minnesota 55114 At Hwy. 280 & University Avenue

ACCESS IS FREEDOM!

(651) 644-9770

National Handicap Housing Institute, Inc.

Visit Our Large, Fully-stocked showroom open to the pubic.

YOUR COMPLETE MEDICAL SUPPLY VENDOR • Wheelchairs/with complete • repair service • • Walkers/canes, crutches • • Bathroom safety aids • • Incontinent/Urological supplies

Commode & shower chairs Ostomy/and wound care Blood pressure equipment Diabetic supplies

Affordable/Accessible Housing For Mobility Impaired Physically Disabled Adults

GREAT SERVICE & PRICES We offer 24-hr. Emergency Service exclusively to our regular customers. Free UPS and deliveries to Mpls., St. Paul, & Suburbs. Community Enrichment Through Housing Diversity We bill M.A., Medicare, Blue Cross/Blue Shield, Medica and many other insurances

3

CALL 651-639-9799


4

July 10, 2002

Spirituality and Disability

The Challenges of Parenting

High Lines

by Jeni Mundl

by Ellen Houghton

D

S

ome years ago, a friend told me about a Navy procedure for passing cargo between ships at sea, and for allowing small tugboats to pull huge barges into ports. In both situations a high line is used. This connection is achieved by throwing a light line, with a weight on one end, onto the other ship. Next a heavier line is attached to the first line and this new line is pulled over. This continues until the desired line strength is stretched between the two ships. At this point, cargo can be sent between ships, or a tugboat can tow a larger ship.

the monkeys on the island of Koshima. The monkeys enjoyed the taste of the potatoes, but found the sand that stuck to the potatoes unpleasant. Eventually, one monkey solved the problem by washing the potatoes in a nearby stream. Her mother then learned the trick and the idea began to spread. The scientist later discovered that when the 100th monkey learned to wash his potato, suddenly all of the monkeys in that society were washing their potatoes. An even more surprising thing was soon observed: the habit of washing potatoes jumped over the sea. Colonies of monkeys on other islands, and the mainland troop of monkeys at Takasakiyama, began washing the potatoes the scientist had been dropping for them.

This created a wonderful analogy for me of individuals initially connecting with each other (the light line) and continually strengthening their relationship (the heavier lines) as they pass new information, emotional support, and new skills (the cargo) to each Although the exact number other. may vary, the 100th monkey In addition to this analogy, I phenomenon means that when think of energy—like in a only a limited number of power line—when I hear the people know of a new way, it term high line. We as humans may remain the conscious are made of energy, and my property of those few people. personal belief is that we each There is a point, however, have a God spark within us, in when only one more person the form of our intuition—our needs to tune into a new connection to our Higher awareness for the field to be Power. This energy and strengthened, allowing the access to God can flow freely awareness to become combetween us all when we’re mon knowledge. connected by our high lines. When I think of the 100th Another belief I hold is that of monkey theory and the idea of a Universal Consciousness of a high line, I can visualize a Knowledge. There is a theory white light (the high line) that says when a certain running between each and number of members of a every one of us—connecting society reaches a certain level us all together. I also see of consciousness, then all will different line strengths beimmediately possess that level tween different people. The of consciousness. This theory line strength of our connechas been proven to be true tions is what allows more or using several scientific ex- less access to this Universal periments, one of which is Knowledge, which allows our known as the 100th monkey. souls to grow. I further In 1952, a scientist dropped believe that as our souls grow, sweet potatoes in the sand for High Lines - cont. on p. 5

id you know that in the United States alone, more than 8 million families include at least one parent that has a disability? Millions more exist worldwide, and the numbers are steadily increasing. Whether or not a parent has a disability, raising kids is a challenge. Fortunately, for the struggles unique to parents with a disability, there are many adaptations available to make life easier. There are two different types of adaptive items for parents:

Baby B’Air Airline Safety Harness: This is a harness worn by a baby seated on a parent’s lap (when the parent is seated in an airline seat). The harness attaches to the parent’s airline safety belt. It is also possible to attach the harness to a wheelchair seat belt. Check this out on-line at One Step Ahead.

BabeeTenda Crib: One side of this crib includes a special toddler gate that is useful to parents in wheelchairs who are unable to reach over a •Adaptive Parenting Aids. standard, drop-down crib rail. These are custom-made or adaptable existing products Joey Safe: This child safety that can be fabricated on a harness is an approved alterpersonal basis for parents native to automotive safety with disabilities. seats for larger babies and small children. Some parents •Adaptive Parenting Prod- also report that this seat belt ucts. These are readily device is ideal for attaching to available baby and child care a wheelchair seat belt for lap products that can be pur- riding, or that the harness chased in retail outlets in the straps can assist with lifting a United States or elsewhere. baby from the floor. The products described are not intended specifically for The Over the Shoulder Baby use by people with disabili- Holder: This baby sling ties, but many parents have allows for natural positioning reported the helpfulness of of a baby for carrying or these products to us. The breast-feeding. It is ideal for remainder of this article will people who use canes or deal with specific products crutches, because it allows for in this category. even balancing of the baby while carrying. It is helpful to Products for Wheelchair mothers in wheelchairs as Users (and Beyond) well. For more information, visit the Baby Wearing home Advantage Bag Company page at http://members.aol. Super Pac (Model SP1000): com/ljcblue/wearinfo.htm. This wheelchair backpack makes an excellent diaper Playskool 1-2-3 High Chair: bag. It is roomy and has many This high chair adjusts to different-shaped pockets that several heights and positions. hold bottles and other baby One of the shorter heights is accessories. It has quick- great for feeding and lifting a release wheelchair handles, a baby from a seated position. carrying handle, and a shoulder strap, so any member of Other Mobility and the family can use it easily. Dexterity Helpers This bag is available at www.wheelsource.com, by Eddie Bauer Travel System: clicking on “Products,” then, This stroller (and similar “Sports Pacs,” and scrolling travel systems) are great for down to the appropriate new parents who cannot bend model number. over a stroller to lift a baby in and out. The design of the

METROPOLITAN CENTER for INDEPENDENT LIVING MCIL offers services for people with disabilities, their families and friends, service providers, and interested community members in the 7-county metro area. Information and Referral (Information hotline: 651-603-2039) Advocacy Independent Living Skills Training Individual Peer Support Deaf I.L. Services Personal Assistance Services (M.A. Subsidized) Ramp Project Transition Program ADA Information Meeting Rooms Computer Lab Resource Library Support Groups ...Chemical Dependency with Physical Disability GLBT with Disability Chemical Dependency with Traumatic Brain Injury

1600 U NIVERSITY A VE . W., S UITE 16, S T. P AUL , MN 55104-3825 651-646-8342 V OICE 651-603-2001 TTY 651-603-2006 F AX HTTP:// WWW . MCIL-MN.ORG

stroller incorporates a baby carrier that is mounted higher than a standard stroller seat. Many moms and dads who are ambulatory, but need crutches or a walker, can use the stroller for support while moving the baby from place to place.

Talking Digital Thermometer: Parents often need to take a child’s temperature. Many drugstores sell thermometers that beep and speak the readout. Temperature Bottles: When heated, these bottles will sound an alarm when an appropriate temperature is reached. It ensures that the baby will not burn the roof of his/her mouth.

E-Z Change Changing Table Pad: This changing pad has a foam cushion that is scooped out to help keep a baby in place and has a Velcro “seat belt.” This pad acts as a “third Literature on Parenting hand” while changing the with a Disability baby. (Constant parental supervision is still required.) Personal circumstances and the need for customized items TOT-Loks: This cabinet may require you to search safety lock is ideal for parents further. One book with adwith limited dexterity who ditional helpful resources is find cabinet locks impossible Adaptive Baby Care Equipto operate. It consists of a ment: Guidelines, Prototypes latch that is screwed into the & Resources by Kris Vensand, drawer front or cabinet door, Judith Rogers, Christi Tuleja, which is released when a and Anitra DeMoss. This magnet is held up to the latch. latest publication from The latch is not visible from Through the Looking Glass the outside of the cabinet, so (TLG) highlights their most only the grown-ups know the recent research and developsecret of where to place the ment of adaptive baby care magnet to release the latch. equipment. The cost is $30 ($15 for low-income). AnVelcro Disposable Diapers: other resource is Adaptive Diapers with cloth-like covers Parenting Aids Idea Book and Velcro closures are a bit One from TLG. This publicapricey, but for a parent with tion is a good start toward limited dexterity, such dia- thinking through some pospers increase independence. sible modifications or cusThese diapers allow the posi- tom-fabricated baby care tioning and repositioning of equipment. To request either the diaper tabs without rip- order form from TLG publiping the diaper. Many cations, you can call 1-800popular brands also offer 644-2666 (voice), 1-800-804reclosable tabs that are reus- 1616 (TTY), or (510) 848able. 1112 (local to San Francisco Bay Area/International/voice). Accommodations for ■ Parents with Blindness or Vision Loss Jeni Mundl is the Assistive Technology Specialist at Pip Squeakers: These ador- Courage Center. able baby shoes are ideal for a parent who is blind or has low Please patronize your vision. The shoes have little Access Press Advertisers — squeakers built into them that and tell them where the kids love—and as the you heard about them. parent, you’ll always know They bring you your where they are! paper.

HOUSING AND PERSONAL CARE SERVICES Accessible Space, Inc. (ASI) offers subsidized one and two bedroom apartments for individuals with physical disabilities. We have housing in the Twin Cities metropolitan area, St. Cloud, Brainerd, Grand Rapids, Hibbing, Austin, Marshall, Willmar, and Duluth. The apartments are fully wheelchair accessible and each building has a central laundry room, large community room, secured entry and an on-site caretaker. ASI also offers shared personal care services 24 hours a day, at most locations, for adults with a physical disability and/or traumatic brain injury who qualify for Medical Assistance. For more information call (651) 645-7271 or (800) 466-7722. For services or housing call Cami, for employment as a personal care attendant call Al or Angie.

Accessible Space, Inc.


July 10, 2002

5

Mental Illness/Brain Disorders

HIGH LINES - Cont. from p. 4

Don’t “Fix” Me! by Pete Feigal

I

’m not broken. There’s nothing wrong with me. Yes, I’ve been diagnosed with MS, depression, and bipolar disorder. Yes, it’s a struggle every day; yes it makes things tough. But it’s my struggle, my fight, my life.

by choice. I simply survive. Living with chronic illness is not this dramatic Movie of the Week experience that we see on TV. Mostly it’s a daily grind, a monotonous nag, not much different from a bodily function. I’m not a hero. I’m just me. When you make me into a brave, heroic icon or you see me as a helpless invalid, you either put me on a pedestal or see me lying broken in the road. It’s either up or down but never on an equal plane, never just you and me.

I don’t need another doctor. I’ve got doctors coming out of my glove compartment. I don’t want you to be my doctor, my nurse, my chaperone, my conscience, my priest, my confessor, my mother. I already have a doctor and a mother. Sometimes I don’t even want my Don’t try to sell me supplemother to be my mother. ments, or therapeutic machines, or crystals, or magMothers aren’t sexy. Doctors nets, or one more damn “selfaren’t fun. help” book. Don’t tell me about this amazing acupuncWhat I need is a friend, a turist, or therapist, or doctor. lover, a confidante, a buddy, Don’t tell me the amazing someone to go to the movies story of your uncle Jake who with, or have a beer with. lost his hipbone or something and was miraculously cured You don’t go out for a beer by bee-sting therapy. I don’t with your doctor. You don’t want to do bee-sting therapy. cruise the lakes on your Or fish oils or megadoses of motorcycle with your mother. vitamin C. I am so tired of You don’t make out with your talking about, thinking about, nurse. Well, OK, maybe one answering questions about time I did. my illnesses. The are a part of me, but they are not me. I know you care for me and love me and don’t want me to You know what I want to talk hurt. I know you are trying to about? Not the side effects of be kind and proactive. I know this or that med. Not how sometimes you can’t bear to brave I am in dealing with my see me hurt. And it isn’t that body and psyche. I want to your care isn’t appreciated. I talk about astronomy. The love you for your care. But new Harley V-Rod. I want to the more you to try to find talk about theater, and your answers to questions I stopped kids, and where you went on asking years ago, the harder it your vacation. I want to talk is for me. about World War II aircraft To paraphrase Joni Mitchell: you help me the most when you try the least. I’ve come to terms with my illnesses, and I’m dealing with the tough parts day by day, in my own way. If I need help or “fixing,” or advice, you will be the first to know. Like an athlete before a big game, I psych myself up in my own style. Your trying to “fix” me throws off my own rhythm, my own timing. I end up feeling that I have to deal not only with my pain, but your misery about my condition as well. I don’t have the time to deal with that, too. I don’t have the energy. I don’t want to always feel shame that I make your life harder. I am just as I am. I don’t want to feel guilty about being in your life. Guilt and shame and pity are dirty, but my diseases are clean. I don’t want to feel that you are my friend because you pity me. I don’t need pity. I’m not less than I use to be, I’m different. Don’t tell me that I’m so brave. What I do often isn’t

and my theory that Professor Moriarty was actually Captain Nemo or else Sherlock Holmes himself leading a double life. I want to talk about that crummy movie we just saw. I am mental health’ed out. I am MS’ed out. I know that in many ways it’s easier for me to live with my pains that it is for you to watch me suffer. But that’s not my fault or my responsibility. Don’t put that burden on me. I’ve already got a full plate. If I ask for help, that’s different. Sometimes I need an outside point of view. But wait for me to ask for it. Mostly I need you to listen and to care, without trying to make me better. And don’t ask me to “fix” you. Please don’t ask me for therapy. I don’t pretend to be an analyst. Go talk to your shrink, who does. For thirty years, doctors, therapists, social workers, psychologists all tried to “fix” me, too, to make me “well,” untouched, pure, unblemished by my life. They seemed so determined to change me, to “cure” me, to turn me into someone who doesn’t have sadness or blame or pain or regret. They tried to wash me, to take away any of the gritty reality that comes from being human. Instead of trying to help me rediscover the tremendous grace that lives deep inside me, they tried to

through our ability to love others unconditionally and to assist each other in the most appropriate manner, our line strength grows, enabling us to access more of this Universal Knowledge.

our discrimination. If this is the case, the irony is that they will actually grow from our negativity because they will gain new, positive skills for coping with the situation while we, in fact, shrink our line strength and deprive Unfortunately, the opposite of ourselves of this same rethis is also true. The more we source. hate, discriminate, and judge, the weaker our lines become Now imagine all the people in and the less knowledge we the world standing around will be able to obtain—and with beams of white light the slower our souls will connecting them to each grow. If you believe as I do— other. Notice how certain that we are put on Earth, in people’s beams are hacked this human form, in order to away from them—like an ax allow our souls to grow—then has come down on the end of this hating ultimately hurts the beam closest to them. only ourselves. These are the people who are spending their energy hating The person(s) our negativity others because of race, relior discrimination is directed gious beliefs, sexual orientatoward will only be affected tion, disability, and so on. to the extent of their line strengths. If their connections It is very sad that the are strong, they will have individual loses the ability to access to the Knowledge gain Universal Knowledge. which will see them through But the sadder issue is that everyone as a whole misses out. Each time there is a break rebuild me into someone who in the high line, it means a new is not tainted by suffering. connection has to be made This is impossible. It’s not elsewhere—and this takes even desirable. Because it time away from the universal ignores the majesty and dis- growth, so everyone is slowed covery that comes from just down!

What we send out to others we will, in kind, attract to ourselves. When we send hate, we break our high lines and lose our connections to this wonderful source of direction—and must then tough it out on our own, learning the hard way. But when we send out love, we get love back and connect with a wonderful travel guide who helps us to have a joyous, speedy trip. This truly says that an individual—all alone— really can make a difference. Who knows, perhaps one of us is that last bit of energy needed to create the connection that makes the breakthrough! ■ Ellen Houghton—the desktop publisher of Access Press— owns Presentation Images, a company that assists others in the selection, development, and implementation of the proper media needed to convey their messages. Additionally, she was the publisher/editor of “Stepping Up,” a former monthly tabloid newspaper designed to help others explore their spirituality.

living, just experiencing all the joys and sorrows that define life, just the way it is. It’s my life to live, my fight to fight, my joys to celebrate, my pains to endure. So that I can say at the end that I really lived. And when my time comes, I can go down swinging. ■

Martha Hage & Sam Jasmine’s RADIO SHOW Disabled & Proud, It’s Not An Oxymoron

Celebrating 30 Yrs Of RENTAL • SALES SERVICE • REPAIR

IN-HOME ASSESSMENTS TO DETERMINE MEDICAL EQUIPMENT NEEDS

(952)

July 23 Ramona Bolton, Foster Parent of Children with Disabilities

933-1126

ST PAUL (651) 641-1917 8:30 - 6:00 M-TH · 8:30 - 5:00 FRI 8564 EXCELSIOR BLVD HOPKINS FREE DELIVERY AND SET UP · MINIMUM ORDER APPLIES MPLS - ST. PAUL & ALL SUBURBS

KFAI • Every Tues. • 7:30 p.m. • 106.7 FM — St. Paul • 90.3 FM — Mpls

A Revolutionary Approach for People with Disabilitites

651-556-0865


6

July 10, 2002

Grants Available To Create PCA Consumer Networks

GOODNO - Cont. from p. 1 July. According to Ulland, Goodno secured the funding for the program and “kept fighting to include people with disabilities into the program and to make sure it included enough funding for them.”

by Linda Wolford and Ann Roscoe “My agency wants to send someone over at 8:00 p.m. on Saturday night to put me to bed. But, I don’t want to go to bed at 8:00 p.m. on Saturday night.” “Nothing else matters if I don’t have someone to come and get me out of bed in the morning.” “I want access to peer support and mentoring, not just professional advice.” These quotes from persons with disabilities indicate some of the problems with traditional agency-provided personal care assistance (PCA). Consumers have also identified other issues, including the shortage of workers, low wages, and a lack of information about other service options. The Department of Human Services has received a grant from the federal Centers for Medicaid and Medicare Services to fund consumer-directed PCA demonstration projects. Consumer-directed PCA increases the control the user has in selecting, supervising, managing, scheduling, and paying direct care workers.

contracts of up to $100,000 over two years to develop at least three demonstration projects in Minnesota. In addition to increasing consumer control, the demonstration projects will address the shortage of personal care assistance workers and low wages. The Department of Human Services is encouraging agencies and organizations serving under-represented populations to apply. The grants will be administered by Community Quality Initiatives, Continuing Care for Persons with Disabilities. The Request for Proposals (RFP) summary has been published in the state register.

Participants in the three Consumer Initiated Partnership and Support (CIPS) networks will build opportunities for consumers to work in a co-op model to access their natural support systems, such as family, friends, and neighbors. The CIPS networks may also choose to explore options for cooperative training, support, respite, service management, and group insurance policies. Community Quality Initiatives staff will develop training curriculum for consumer-directed services, as The federal grant will sponsor well as provide PCA policy

Intrepid USA offers comprehensive, quality Home Health Care services. We have the national resources and the local knowledge to provide specific solutions to your needs. Our quality of care is unparalleled, with a commitment to recruiting the best talent in today's competitive market. Our Home Health Care services encourage clients to live to the maximum level of their abilities. We have 13 locations in MN, ND, and IA. Austin 507-433-4700 Golden Valley 763-544-0315 Forest Lake 651-982-9052 Burnsville 952-894-2663 Edina 952-920-6060 Fairmont 507-238-4300

Rochester 507-281-3029 St Cloud 320-255-1882 Fargo, ND 701-271-0669 Grand Forks, ND 701-746-5822 Des Moines, IA 515-278-9920 Ames, IA 515-233-9730

Mankato 507-625-1553

and procedures for CIPS networks. Consumers will provide feedback so the materials can be improved and used statewide. In addition there will be a Personal Care Assistance Project Design Team, with representatives from both the metro area and greater Minnesota, who will provide project oversight. Members of this team include: Jeff Bangsberg, Minnesota HomeCare Association; LeAnne Dahl, PCA consumer; Sandra Foy, Ramsey County Social Services Developmental Disabilities unit; Gordon Grimm, parent of a PCA consumer; Eva Hansen, Metropolitan Center for Independent Living; Ann Kranz, University of Minnesota School of Social Work and PCA consumer; and Melvin Reinke, direct care worker.

with disabilities who testified in his committee, and he was very accommodating. He will be deeply missed by the disability community.”

Jeff Bangsberg, government relations director of the Minnesota HomeCare Association, met Goodno seven years ago. According to Bangsberg, the efforts of Goodno and Representative Fran Bradley resulted in a five-cent per hour rate increase for PCAs in 1997. And Goodno’s efforts to pass MA-EPD, said Bangsberg, “were just as important as the Americans with Disabilities Act.”

hallmark of his legislative career. According to Henry, in 1997 she was working with a group concerned about the financial eligibility limits placed on people with disabilities for receiving Medical Assistance, “which had not been raised in 15 years.” Ann Henry, an attorney who Henry said Goodno went to works for the Disability Law bat to raise the limits. Center, agrees with Bangsberg that Goodno’s work on the According to Bangsberg, Medical Assistance (MA) Goodno’s strategy for income standard was another accomplishing this was to attach the income standards to sistance Program; 651-634- the federal poverty guidelines 2282 (V), 651-585-1808 (FPG), so that when they (Fax), 711 (MN Relay Ser- increased, so would the MA vice); or ann.roscoe@state. income standard. Essentially mn.us. ■ what this did was remove the spenddown—the amount one For more information on the Linda Wolford and Ann must spend of his/her own grant project or to receive the Roscoe are affiliated with Social Security benefits on RFP, contact Ann Roscoe, Community Quality Initia- medical bills before being able Project Team Leader, Con- tives, Minnesota Department to use one’s eligibility for sumer-Directed Personal As- of Human Services. MA—for about two thirds of the population. With Goodno’s help, currently the people at or below 100% of the FPG pay no spenddown. Cont. from p. 3 The individuals that receive income over the 100% guideline must pay down to watching for and addressing violations, and reasonable 75% of the FPG. consumer requests.

ADA -

The conference will be held from 9:00 a.m. until 4:00 p.m. at the Sullivan School and Communications Center at 3100 East 28th St. If you are interested in attending and are not yet registered, please contact Cindy at ADA MN: 651-603-2015, 1-888-845-4595 (toll free), 651-6032001 (TTY), or cindy@mcil-mn.org. ■ Information for this article was provided by the ADA Rights & Responsibilities conference planning committee.

“Kevin Goodno was willing to tackle what is a very convoluted, complex matter,” said Henry. “We really appreciate the leadership he showed in the House with his colleagues on disability issues. He worked very hard to see that these matters got the attention and support they needed, and for that we are forever grateful. He also was extremely respectful of people

Diamond Hill Townhomes We are currently accepting applications for our waiting list at Diamond Hill Townhomes, a great property located near the Mpls. International Airport. We have two and three bedroom townhomes that are HUD subsidized and rent is 30% of the total household's adjusted gross income. We have a large number of mobility impaired accessible units and we are scheduling appointments for persons in need of a mobility impaired accessible unit immediately. To schedule an appointment please call (612) 726-9341

According to Bob Brick, executive director of Arc Minnesota, Goodno was instrumental in helping Arc with its Unlock the Waiting List Campaign in 1999. As a result of his and Representative Bradley’s efforts, said Brick, legislation was passed that has permitted more than 7,000 people to get waivered services through the MRRC (Mental Retardation or Related Conditions) waiver program. MRRC, a Medical Assistance funded program, provides a range of services to people with developmental disabilities, from respite care to 24-hour out of home placement. “From a developmental disabilities perspective, his efforts to unlock the waiting list will be massive,” said Brick. “We’re hoping the new chair [of the HHSFC] will follow the example set by Representative Goodno and remain committed to ensuring that people with disabilities have the same rights and opportunities as everyone else, and that funds are appropriated so that they can exercise those rights.” Praise from Peers Representative Bradley, who is chair of the Health and Human Services Policy Committee, worked with Goodno for four years. The two worked on disability legislation together, and of that, Bradley commented, “Kevin has been steadfast and persistent with his fights. I know he has built a really great relationship with disability advocates. Kevin is a rising star.” Speaker of the House Steve Sviggum is among those who will really miss Kevin Goodno. According to Sviggum, Goodno led negotiations this year between the House and Senate. “Kevin not running again this year and not being chair of the Health and Human Services Finance Committee is a loss for Minnesota, and it’s a real loss for the disability community,” said Sviggum. “He is without question one of the most caring, compassionate, and responsible persons I’ve ever met.” Sviggum agreed with Bradley, who said that Goodno’s decision to spend more time with his family reflects his commitment to others, which was one of the qualities that made him “such a great legislator.” “The chair of the Health and Human Services Finance Committee will not be easily replaced,” said Sviggum. ■


July 10, 2002 METROPOLITAN COUNCIL NOTICE OF PUBLIC HEARING ON ADOPTION OF THE HOUSING AGENCY PLAN

IN BRIEF . . . .

The Metropolitan Council’s Livable Communities Committee will conduct a public hearing to discuss the Public Housing Agency (PHA) Plan and receive public comment.

Walk For Justice

The PHA Plan is a comprehensive guide to public housing agency policies, programs, operations and strategies for meeting local housing needs and goals. Required by the U.S. Department of Housing and Urban Development, the PHA Plan includes two parts: the Five Year Plan and the Annual Plan. Both parts of the PHA Plan require PHA’s to examine their existing operations and needs and to design long-range and short-range strategies to address those needs.

The Headwaters Fund Walk for Justice will be h e l d o n September 15, 2002 from 11:30 a.m. until 3:30 p.m. at Boom Island Park in Minneapolis. Last year, $63,000 was raised by 700 walkers rep-

The public hearing will be held: 3:30 p.m., Monday, August 19, 2002 Metropolitan Council Room IA Mears Park Centre Building 230 East Fifth Street St. Paul, MN 55101

7

resenting over 70 groups.

financial support for positive change in this corner of the The Walk for Justice is a world. community event for grassroots nonprofits working for For more information, call social justice in the Twin 612-879-0602 or visit www. Cities. The walk raises WalkForJustice.org. awareness, solidarity, and

Self-Advocates Sing Out! T he second annual day of with Dignity and Advocating William Frame and Professor

The Housing Agency Plan is available for public review at the HRA administrative offices located at 230 East Fifth Street in St. Paul, and on the Metropolitan Council’s website at www.metrocouncil.org. All interested persons are encouraged to attend the hearing and offer comments. People may register in advance to speak by calling Sue Putz at 651-602-1584 or TTY at 651-291-0904. Upon request, the Council will provide reasonable accommodations to persons with disabilities. In addition to speaking at the hearing, comments may be made in the following ways: • Wnitten, faxed, e-mail and voice mail comments to:

Sue Putz Metro HRA 230 East Fifth Street St. Paul, MN 55101 Telephone: 651-602-1584 Fax: 651-602-1313 E-mail: susan.putz@metc.state.mn.us

Music for Social Change will take place from 9:30 a.m. to 5:00 p.m. on August 10, 2002, at Augsburg College in Minneapolis. The event is sponsored by Remembering

Change Together.

Vern Bloom. provided.

Lunch is

Participants can have fun singing and writing songs To register, contact Rememwith featured musicians: bering with Dignity at 651Augsburg College President 641-0297.

Resources For Child Caring T his Ramsey County agency able for a child’s special phone support and problem has a Special Needs Program that helps families find and keep quality childcare. The program helps connect families with providers, and provides both groups with information about services avail-

health and developmental solving is also available, as is needs. training tailored to the child’s or the provider’s specific Providers can receive infor- needs. mation about a specific disability and support in working For more information, contact with families. Over-the- 651-641-6616.

APSE 13th Annual Conference

• Comments must be received by Friday, August 16, 2002.

T he Association for Persons Persons with disabilities, technology, and trends in

The MemoryMinder: A Health Diary H

ealth enthusiasts, people with chronic health concerns, those who have had surgery or have been injured, or caregivers can benefit greatly from keeping a health dairy. When conditions or symptoms are written down in an organized and consistent manner, patterns can emerge, clues can be detected, and awareness and control take over. The MemoryMinder Personal Health Journal is an easy, quick, and efficient tool for keeping track of wellness patterns and goals, symptoms, responses and reactions, and any other details that define your health picture. While it might seem that keeping track of every little detail would be a timeconsuming, mind-boggling task, it’s easy with the MemoryMinder. The secret is in its remarkably simple, yet all-inclusive, checklist format. Each daily record includes prompts, boxes to check, writing lines for elaboration, and a diagram of the body (front and back). It takes just moments to record the day’s information regarding vitamins and medications, physical ac-

tivity, foods eaten, level of pain or discomfort, and any other details. It is effective when used every day or simply on the days when a change in conditions occurs. Beyond the daily records, the back matter includes forms for recording the following: Personal Medical History, Medical Tests, Insurance & Pharmacy Information, HealthCare Providers, Purchase Record, and Notes & Questions. The last section is a Symptoms Glossary to aid in completing the daily records. Those who use the MemoryMinder can get a new sense of control and awareness, and feel better able to communicate with their doctor when the need arises. Sometimes just writing things down can expose a piece of the health puzzle that was previously unrealized. In addition, the recorded information can be useful for progress reports, insurance needs, and even legal backup.

in Supported Employment (APSE) will hold its annual conference on July 24-27 at the Hilton Minneapolis & Towers.

their family members, and the field. professionals involved with supported employment will For more information, visit gather to become more www.apse.org. informed about products,

Proposals Sought For Grave Marker Placement T

he Minnesota Department of Human Services is seeking contract proposals for placement of grave markers or memorial monuments at state cemeteries where people who lived and died at state regional treatment centers are buried.

The work, to be completed by June 30, 2003, at a cost of up to $250,000 will be awarded to one or more communitybased or statewide organizations. Organizations must include members of local service or charitable organizations, members of the business community, people with mental illness or developmental disabilities and—to the extent possible—family members of deceased regional treatment center resiFor more information, call dents, and present or former 1-800-888-3392 or visit regional treatment center emwww.memoryminder.com. ployees. Services can be ■ provided to more than one

cemetery. Preference will be given to organizations in which volunteers provide primary administrative support. Cemeteries are at regional treatment centers operated or formerly operated for people with mental illness and/or developmental disabilities in Anoka, Cambridge, Faribault, Fergus Falls, Hastings, Moose Lake, Rochester, St. Peter, and Willmar. Proposals must be submitted by 3:00 p.m. Monday, July 15. For a copy of the request for proposal, contact Debbie Rielley, DHS, State Operated Services Support Division, 444 Lafayette Road, St. Paul 55155-3826; (651) 582-1882 (phone); (651) 582-1890 (fax); 1-800-627-3529 (TTY); 1-877-627-3848 (speech-tospeech relay service); or debbie.rielley@state.mn.us. ■

Disability Culture Rap AWARD WINNER Superfest XX-Best of Festival Award, Spirit Award • London Disability Film Festival • U.S. International Film and Video Festival- Silver Screen Award • Margaret Mead Film and Video Festival • Real to Reel Documentary Film and Video Festival • Contemporary Issues Film Festival, Portugal • KynnysKINO Finland Film Festival • U.S.A. Film Festival • Columbus International Film & Video Festival- Silver Chris Award • Philadelphia International Film Festival • Silver Award • TASHPositive Image Award • Doxa Documentary Film Festival For more information, contact

Advocating Change Together at 1-800-641-0059 or www.selfadvocacy.com.


8

July 10, 2002

Directory of Organizations for Persons with Disabilities Editor’s Note: Please let us know if there are any errors in your listing or if you would prefer your organization be in a different category. Thank you! ADVOCACY ORGANIZATIONS ACT-UP MN, Robert Halfhill, 612-870-8026 Advocating Change Together, Kathy Sanders, 651-641-0297 ARC - Anoka/Ramsey Co.s, Marianne Reich, 763-783-4958 ARC - Hennepin/Carver County, 952-920-0855, archennepincarver.org ARC - MN, Bob Brick, 651-523-0823, 1-800-582-5256, mail@arcminnesota.com ARC - Suburban, Marianne Reich, 952-890-3057 ARRM, Bruce Nelson, 651-291-1086 Justice for All, 202-488-7684, Justin and Yoshiko Dart MN Consortium for Citizens With Disabilities, Tom Brick, 651-296-3478 MN Developmental Achievement Ctr Assoc, 651-647-9200 North Suburban Consumer Advocates for the Handicapped (NSCAH), Jesse Ellingworth, 763-783-4708, 763-7834724 TTY Ombudsman for Mental Health & Mental Retardation, 651296-3848, 1-800-657-3506, www.ombudmhmr.state.mn.us. BRAIN INJURY SERVICES A Chance to Grow, Bob DeBour, 612-521-2266, newvisions @mail.actg.org Brain Injury Assoc. of MN, Stephanie Weiss Lake, 612-3782742, 800-669-6442, info@braininjurymn.org Traumatic Brain Injury-TBI Metro Services, 612-869-3995 COMMUNITY-LIVING SERVICES Community Bridge Consortium, Pat Svendsen, 651-748-7437 V/TTY, psvendse@isd622.k12.mn.us Community Involvement Programs, 612-362-4400 Help Yourself, Sara Meyer, 651-646-3662 Henn. Co. Lib. Homebound Serv., Becky Mobarry, 952-8478850 Metro Ctr. for Independent Living, 651-646-8342 V, 651603-2001 TTY SE MN Ctr for Independent Living (SEMCIL), 507-285-1815, 507-285-0616 TTY SILC-Statewide Independent Living Council, Bill Bauer, 651296-5085 V, 651-297-2705 TTY So. MN Independent Living Enterprises & Serv. (SMILES), Alan Augustin, 507-345-7139 West Henn. Commu. Services, Mary Perkins, 952-988-4177 EDUCATION ORGANIZATIONS Adaptive Recreation & Learning Exchange, Kristen Abel, 612-861-9361 V/TTY, kabel@ci.richfield.mn.us Adult Basic Ed/Special Needs, Betty Sims, 651-290-4729 Center for Learning & Adaptive Student Serv. (CLASS), Robert Doljanac, 612-330-1648, class@augsburg.edu Fraser Community Services, Diane Cross, 612-861-1688, diane@fraser.org Learning Disabilities Program (Family Services of St. Paul), Jan Parkman, 651-767-8321 Learning Exchange, Lynn Dennis, 952-885-8531, TTY 952885-8590 MELD (MN Early Learning Design), 612-332-7563 V/TTY, info@meld.org Mpls. Community and Technical College, Office for Students w/ Disabilities, Melissa Newman, 612-341-7000 V/TTY MN Higher Education Services Office, Sarah Beth Mueller, 651-6420533 PACER Center, Inc., Pat Bill, 952-838-9000 V/TTY, tbill @pacer.org Parent Support Network (EBD/ADD/ADHD/LD), 763-7834949 POHI District Consultants-Mpls. Public Schools, Jim Thomas- Anwatin Coord., 612-668-2450 Project Compass, Adult Disability Program - Winona Comm. Educ., Helen Newell, 507-454-9450 Voice/TTY, hnewell@isd861.luminet.net Reuben Lindh Learning Center, 612-721-5111 GOVERNMENT SERVICES Dakota Co. Social Services, 952-891-7400, www.co.dakota .mn.us Division for Persons w/Developmental Disabilities, 651-2822086 Mpls. Advisory Commitee for People with Disabilities, Margot Imdieke Cross, 651-296-6785, elizabeth.held @ci.minneapolis.mn.us

GOVERNMENT SERVICES continued MN Children with Special Health Needs, 651-215-8956, 1800-728-5420 V/TTY MN Dept. of Human Services, Traumatic Brain Injury Program, 651-582-1938 MN Gov. Council On Dev. Disabilities, Deborah Tompkins, 651-296-4018 V, 651-296-9962 TTY MN Library for the Blind and Physically Handicapped, 1-800722-0550, 507-333-4828, cfl.mlbph@state.mn.us MN State Council on Disability, 651-296-6785 MN State Services for the Blind, 651-642-0500, 800-6529000 St. Paul Advisory Commitee for People w/Disabilities, Roger Schwagmeyer, 651-266-8891 Social Security, St. Paul PASS Cadre, 651-290-0304

RECREATIONAL SERVICES continued Capable Partners, Jonathan Leslie, 763-542-8156 Ski for Light, 612-827-3232 US Electric Wheelchair Hockey Association, Craig McClellan, 763-535-4736

REHABILITATION CENTERS Courage Center, 763-588-0811, www.courage.org. Functional Industries, Don Tribyl, 763-682-4336 Lifetrack Resouces, 651-227-8471, TTY 651-227-8471 Metro Work Center, Inc., 612-729-7381, mwc@onvoy mail.com Midwest Special Services, Lyth Hartz, 651-778-1000 North Memorial Rehabilitation Services, North Memorial Medical Center, 763-520-5690 Opportunity Partners, 952-938-5511, 952-930-4293 TTY Owobopte, Inc., 651-686-0405 HEALTH ORGANIZATIONS Rehabilitation Centers, MRCI - Burnsville, 952-894-4680 Children’s United Hospital, 651-220-8000 MRCI - Carver/Scott 952-445-6811 Gillette Children’s Hospital, Lynn Carpentier, 651-229-3845 MRCI - Chaska, 952-448-2234 Health Psychology Clinic, U of M, 612-624-9646 MRCI - Fairmont, 507-238-4388 Methodist Hosp. Ctr. for Senior Services, 952-993-5041 MRCI - Industrial Operations, 507-386-5600, Methodist Hosp. Parkinson Center, 952-993-5495 mrci@mnic.net Methodist Hosp. Stroke Supp. Grp., 952-993-6789 MRCI - Lakeville, 952-898-5025 Shriner’s Hospitals for Children, Karen Boyer 612-596-6105 MRCI - New Ulm, 507-233-2700 Sister Kenny Rehabilitation Institute, Access and Referral Department, 612-863-4457, www.sisterkennyinstitute.com RESIDENTIAL SERVICES Accessible Space, Inc., Stephen Vanderschaaf, 651-6457271, www.accessiblespace.org HEARING IMPAIRMENT SERVICES Deaf Blind Services MN, Jean Greener, 612-362-8454 V/ Altern. for People with Autism, Inc, Mike Amon, 763-5605330, afpwa@mr.net TTY, info@dbfm.org Deaf & Hard of Hearing Services Metro, Marie Koehler, 651- Anoka Metro Reg. Treatment Ctr., Judith Krohn, 763-7124000 297-1313 TTY,651-297-1316 MN Assoc. of Deaf Citizens, Inc., Douglas Bahl, 763-757- Homeward Bound, Inc., 763-566-7860 5998 TTY Nat’l Handicap Housing Inst., Inc., Mike Bjerkesett, 651-639MN Commission Serving Deaf & Hard of Hearing People, 9799, nhhi74@aol.com 651-297-7305 TTY The Phoenix Residence, Darlene M. Scott, 651-227-7655 MN Relay Service, 1-800-627-3529, sprint.trscustserv@mail. sprint.com RESOURCE CENTERS Self Help for Hard of Hearing (SHHH), Leslie Cotter, 651- Access for All, Mike Chevrette, 651-481-4062 772-4931 V/TTY ALS Assoc. (Lou Gehrig’s Disease), 612-672-0484 Sight & Hearing Association, 651-645-2546 Alzheimer’s Association, John Kemp, 952-830-0512 Am. Behcet’s Disease Assoc., 1-800-723-4238 LEGAL SERVICES American Cancer Soc.- MN Div., 612-925-2772, 1-800-227Legal Advocacy for Persons with Dev. Disabilities, 612-3322345 1441, mnlegalservices.org Am. Cancer Soc. (Ramsey Co.), 651-644-1224 Legal Aid Society of Mpls, Laurie Moser, 612-332-1441 Amer. Diabetes Assoc., Lee Johnson, 763-593-5333 MN Disability Law Ctr., 612-332-1441 Amer. Heart Assoc., Betty Young, 952-835-3300, www.americanheart.org MENTAL HEALTH SERVICES American Lung Assoc., 651-227-8014, 1-800-642-5864 (in Alliance for Mentally Ill - Wash. Co., Bob Rafferty, 651-439MN), info@alamn.org 3800 Apollo Resource Center, Leah, 651-227-6321 Alliance for Mentally Ill of MN, 651-645-2948 Arthritis Foundation, Deb Dressely, 651-644-4108 Centre for Mental Health Solutions, Tamera, 952-922-6916, Catholic Charities, Program for People with Disabilities, John www.tcfmhs.org Schatzlein, 651-222-3001 Henn. Co. Mental Health Ctr., Joel Pribnow, 612-348-4947 Chemical Injury Resource Assn., 651-647-0944 Mental Health Association, 612-331-6840, 1-800-862-1799, Chronic Fatigue Syndrome Association of Minnesota, 651www.MentalHealthMN.org 644-4975 Mental Health Consumer/Survivor Network, 651-637-2800, Cystic Fibrosis Foundation, Molly Boyum, 651-631-3290, 1-800-383-2007, csnmt@uslink.net minn@cff.org Mental Health Law Project, Pat Siebert, 612-332-1441 Disability Institute, Wendy Brower, 952-935-9343 MN Assoc. for Child. Mental Health, 651-644-7333, 1-800- Down Syndrome Assn. Of MN, 651-603-0720, 528-4511, dsaxhaug@macmh.org dsam@mm.com MN Depressive & Manic Depressive Assoc., 612-379-7933 Duluth Consumer & Family Regional Resource Center, 218Pilot City Mental Health Center, Sy Gross, 612-348-4622 728-3531 Tasks Unlimited, Natalie Trockman, 612-871-3320, East Suburban Resources, Sue Schmidt, 651-351-0190 or www.tasksunlimited.org MRS 800-627-3529 ELCA Committee on Disabilities, Linda Larson, 612-788RECREATIONAL SERVICES 8064 Access Outdoors/Wilderness Inquiry, Mike Passo, 612-676- Epilepsy Found., John Thompson, 651-646-8675, 800-7799416, 800-728-0719 V/TTY, www.accessoutdoors.org or 0777, infoefmn@mr.net www.wildernessinquiry.org Hemophilia Foundation of MN, 763-323-7406 Achilles Track Club-Uptown, Kay Christianson, 612-822- Independence Crossroads, Rob Olson, 612-854-8004, info@independencecrossroads.org 7872 Boy Scouting for People w/ Spec. Needs, Jan Bovee, 651-224- Indian Family Service, Maggie Spears, 612-348-5788 KDWB Variety Family Center, Elizabeth Latts, 612-6261891 3087 www.allaboutkids.umn.edu Camp for Child. & Teens w/ Epilepsy, Deborah McNally, 651League of Women Voters, 651-224-5445, office@lwvmn.org 646-8675, 1-800-779-0777 Camp Winnebago, Kathy Geely, 507-724-2351, campwinn Leukemia Society of America, MN Chapter, 952-545-3309 Lupus Foundation of America, MN Chapter, 612-375-1131, @means.net mnlupus@aol.com Directory - cont. on p. 2


July 10, 2002

9

DIRECTORY- Cont. from p. 1 RESOURCE CENTERS continued Lyme Disease Coalition, Linn Olivier, 651-64-7239, lymenet_mn@yahoo.com Lyme Disease Network of MN, Linn Olivier, 651-644-7239 MN AIDS Proj., MAP AIDSLine 800-248-2437 or 888-8202437 V/TTY, www.mnaidsproject.org MN Resource Center, Kim Feller, 612-752-8102 MN Stroke Association, 800-647-4123, www.strokemn.org Muscular Dystrophy Assoc., Christina Van Vooren, 952-8325517 (Mpls. district), 952-832-5716 (St. Paul district) National Ataxia Foundation, Donna Gruetzmacher, 763-5530020, naf@ataxia.org Nat’l. Multiple Sclerosis Society, MN Chapter, Jill Retzer, 612-335-7900, 1-800-582-5296 V/TTY, jretzer@mssociety. com People, Inc. Epilepsy Services, Anne Barnwell, 612-3389035, www.orgsites.com/mn/epilepsy Spina Bifida Assoc. of MN, Lisa Schaffee, 651-222-6395 Stroke Center, N. Memorial Medical Center, 763-520-5900 Twin Cities Autism Society, 651-647-1083 United Cerebral Palsy of MN, JoAnn Erbes, 651-646-7588, 1800-328-4827, ext.1437, ucpmn@isd.net SERVICE DOGS Hearing and Service Dogs of MN, Alan Peters, 612-729-5986 V, 612-729-5914 TTY, hsdm@bitstream.net Helping Paws Of MN, 952-988-9359, helpingpaws@ens.net SOCIAL SERVICES Capella Management Group, Gerald Glomb, 651-641-0041 NW Henn Human Services Council, 763-493-2802 V/TTY SUPPORT American Syringomyelia Alliance Project Inc. (ASAP), 1800-ASAP-282, www.asap4sm.org Brain Injury Support Group, North Memorial Medical Center, Susan Keeney, 763-520-5090 Emotions Anonymous, 651-647-9712, eaisc@mtn.org Gay and Lesbian Helpline, 612-822-8661 V/TTY

SUPPORT continued VISION IMPAIRMENT SERVICES continued Spinal Cord Support Group, North Memorial Medical Center, United Blind of MN, Inc., 763-391-3699 Twyla Misselhorn, 763-520-1449 Vision Loss Resources, 612-871-2222 Spinal Cord Injuries Help Line, Roger Hoffman, 651-464- Volunteer Braille Services & Large Print, 763-971-5231 7559 VISUAL/PERFORMING ARTS TECHNOLOGY Interact Center for the Visual and Performing Arts, 612-339Closing the Gap, MaryAnn Harty, 1-507-248-3294, 5145 V, 612-339-6465 TTY, interactcenter@aol.com info@closingthegap.com VSA MN, 612-332-3888 V/TTY, info.mn@vsarts.org TRANSPORTATION Metro Mobility, 651-602-1111, 651-221-0014 TTY U of M AFFILIATED PROGRAMS Institute on Community Integration, Vicki Gaylord, pub lications@icimail.coled.umn.edu, 612-624-4512 U of M Disability Services, 612-626-1333 V/TTY, web master@disserv.stu.umn.edu U of M Disabled Stud Cultural Ctr, 612-624-2602, 612-6267003 TTY VISION IMPAIRMENT SERVICES Am. Council of Blind Services, James Olsen, 612-332-3242 BLIND, Inc., Joyce Scanlan, 612-872-0100 Candle in the Window, Kathy Szinnyey, 1-502-895-0866 Deaf Blind Services MN, Jean Greener, 612-362-8454 V/ TTY, info@dbfm.org Sight & Hearing Association, 651-645-2546 State Services for the Blind: Aids & Devices (The STORE), Duane Troff, 651-642-0777 Audiotape Transcription Services, Ellie Sevdy, 651-6420849 Braille Transcription Services, Mary Archer, 651-642-0852 Employment Services, Joe Pattison, 651-642-0515 Radio Talking Book and Dial-In News, Stuart Holland, 651642-0503 Self-Sufficiency Services, Linda Lingen, 651-642-0504

VOCATIONAL SERVICES AccessAbility, Inc., Darren Mack, 612-331-5958, dmack@accessibility.org Access to Employment, Lori Sterner, 763-543-6980V/TTY Goodwill Industries/Easter Seal, Lynette Bergstrom, 651-6462591 V, goodwilleasterseals.org Hennepin County Vocational Services Program, Shanna Melton, 612-348-8370, shanna.melton@co.hennepin. mn.us Kaposia, Inc., Jon Alexander, 651-224-6974, jalexander @kaposia.com Lifeworks Services, Susan Sczcukowski, 651-365-3732, sks@lifeworks.org Midway Training Services, Barbara Kale, 651-641-0709 Minnesota AgrAbility Project/Rural Rehab Technology, Beth Zabel, 507-354-5380, rrt@newulmtel.net MN Work Incentives Connection, 651-632-5113 or 1-800976-6728 (voice), 651-632-5110 (TTY) Rehab Services Branch, 651-296-5616 or 800-328-9095, 651296-3900 TTY Rise, Inc., 763-786-8334, bdepoint@rise.org TSE, Inc., Phil Saari, 651-489-2595 Vinland Center, Carol Jackson, 763-479-3555 V/TTY, vinland @vinlandcenter.org Wings, Debbie Atterberry, 612-752-8844, djatterberry @juno.com

If your organization would like to be included in the Directory of Organizations, contact Access Press at Suite 104S, 1821 University Ave. W. St. Paul, MN 55104 • 651-644-2133 • access@mninter.net

What if you could coordinate all of your health care and support services with a single source? Now you can. UCare Complete is designed by and for people with disabilities. It connects you with health coordinators who can help you with dentist appointments, doctor visits, home-based services and more. You can take advantage of UCare Complete if: you're a person with a physical disability, are eligible for Medical Assistance with or without Medicare, live in Hennepin, Ramsey, Anoka or Dakota Counties and are between 18 and 64. For a free information packet call 612-676-3500 or toll free 1-877-523-1518. Hearing Impaired 612-676-6810 or toll free 1-800-688-2534. Or visit our web site at ucare.org.

Health care that starts with you.


July 10, 2002

10

Recollections of Justin Dart

Justin Dart Remembered

by Tim Benjamin, in collaboration with Mary Ellen Tisdale

by Wendy S. Brower

M

F

ary Ellen Tisdale, a local lawyer, was an activist in the disability community even before she found herself with chronic fatigue syndrome (CFS), and secondary disabilities due to the CFS. She has since worked to get CFS recognized as a disability by Social Security. She has also worked locally and nationally on political issues, especially in promoting voter registration during election years. Tisdale worked with Justin Dart on voter registration in Minnesota and Florida in an effort to influence public policy.

Justin truly realized the necessity for people with disabilities to be involved as citizens in the political process at all levels. He continually stressed that people with disabilities should make their needs and desires known. To do this, he made voter registration a major goal, as well as working to make the disability community a player among minority voter groups. Justin knew that influencing public policymakers would ensure that legislation is effectively implemented so as to positively affect the lives of people with disabilities. Tisdale states, “I think over the years, particuShe had this to say about larly at the national level and Justin Dart: in the last ten years, people with disabilities have made an Due to his deep personal enormous impact on disabilcommitment and early finan- ity issues.” cial resources, he was able to influence legislators—by con- He took a personal risk as a tributing to their campaigns— lifelong Republican, possibly to make positive decisions alienating himself from some about laws and their effects on disability rights advocates, in the lives of people with becoming involved in the disabilities. Then, and after Clinton campaign. Bill his financial situation changed, Clinton made the commithe traveled the country to ment to Justin Dart that, as recruit supporters to start president, he would further grassroots organizations fo- the rights of children and cused on issues of importance people with disabilities durto the disability community. ing his administration. Justin

urged people with disabilities to support the Democratic Party rather than supporting George Bush, Sr., who had signed the Americans with Disabilities Act. Justin then continued his commitment to the Democrats by supporting Al Gore for president—and by identifying at least two people with disabilities in each of the fifty states to coordinate the election campaign of Al Gore. The ongoing legacy of Justin Dart would be the unprecedented voter registration of people with disabilities in all 50 states. He pushed to ensure that there would be a visible disability vote in the election of 2002, and beyond. This year the election is critical. Due to census redistricting and the two-year election cycle, the entire House of Representatives will be up for election. Furthermore, one-third of the Senate will be campaigning for reelection. In Justin’s memory, every candidate for Congress must be committed to the passage of legislation concerning the rights of children and people

or more than thirty years, Justin Dart was an uncommon leader of all people with disabilities. He believed the fight for civil rights, equality, and justice was truly a patriotic duty for each and every American. The “politics of inclusion” were fundamental to all of his work. He genuinely valued every human being, regardless of disability condition. Justin Dart will always be remembered as the father of the Americans with Disabilities Act (ADA). He helped shape the ADA and traveled to all fifty U.S. states to inform, educate, and organize grassroots support for the

historic 1990 civil rights law. I recall the excitement of just seeing him, in person, on the dais at the White House signing. He, however, wanted to share the limelight and believed that hundreds of other disability rights activists should have been on the podium, too.

the halls of Congress, leading presidential forums, or protesting at rallies and marches.

The passing of Justin Dart on June 22, 2002, was a sad day for people with disabilities. We have lost one of our great leaders. However, Justin’s wife, Yoshiko—on behalf of both of them—wants us to As a gentle giant who knew celebrate his commitment, how to make change happen, vision, and life. Justin Dart knew everyone’s advocacy was needed in “the I can hear Justin’s words: “I revolution of empowerment.” am with you. I love you. Lead I recall that he often referred on.” ■ to the nation’s disability rights activists as “friends and Wendy S. Brower is the colleagues.” He was comfort- Executive Director of The able fighting for our rights— Disability Institute whether he was testifying in

with disabilities, and take a public stand in 2003 supporting the adoption of the Medical Assistance Community Attendant Service Act (MA-CASA), which would allow individuals with disabilities in every state to spend the equivalent of nursing home costs on in-home care. ■

Professional Directory Guzmán & Associates, P.L.L.C. Attorneys and Counselors at Law

Disability Law Conservatorships Guardianships Special Needs Trusts 14800 Galaxie Avenue, Suite 103 Apple Valley, Minnesota 55124

A GREA T RESOURCE! GREAT

DirectAbility.com DirectAbility is a comprehensive, ever-expanding, award-winning, Internet directory devoted to disability-related products, services, resources and information throughout the state. Online at www.directability.com.

Tel: 952-432-0648 Fax: 952-431-2491

KEEP YOUR LOVED ONES AT HOME LET “SPECIAL CARE OF MINNESOTA” SHOW YOU HOW PCA’s & Home Healthcare Workers We provide state licensed, supervised, dedicated, reliable, well-educated workers. Enjoy the comforts of your home with a companion from our well-trained workers. Live-ins available. Short or long-term. On Call 24 Hours, 7 days a week.

Phone: 763-572-0149

INDEPENDENCE CROSSROADS, INC. Serving people with disabilities since 1976. In-Home Counseling

Community Support Groups

Information & Referral

Advocacy

Public Education

NO FEE REQUIRED www.independencecrossroads.org 8932 Old Cedar Ave. So., Bloomington, MN 55425 Office (952) 854-8004 Fax (952) 854-7842

R.C. SALES AND MFG., INC. 14726 Wake Street NE · Ham Lake, MN 55304 · (763) 786-6504

www.rcsalesmfg.com

DISABILITY BASICS CONSULTING INC. Ron Lynaugh • Creating/delivering presentations on issues affecting the disabled • Educating clients to successfully interact/work w/disabled • Serving as a group home advocate for change • Leading support/mentoring groups for the disabled

P.O. Box 65266 St. Paul, MN 55165-0266

Phone (651) 735-2253 Fax (651) 735-3374

Access for All The Minnesota Travel Guide for Persons with Disabilities www.accessminnesota.org 3680 Victoria St. N. • Shoreview, MN 55126 Office: (651) 481-4062 • Fax: (651) 787-2790 mike.chevrette@efunds.com


July 10, 2002

Classifieds Reach 11,000 Active, Interested Readers with ACCESS PRESS Classifieds. $8 up to 20 words, 35¢/word thereafter. Must be prepaid. Mail with check to: ACCESS PRESS, 1821 University Ave W, #104S, St. Paul, MN 55104 (651) 644-2133 VOLUNTEER OPPORTUNITIES Free Arts Minnesota is looking for volunteers to work with abused, neglected and at-risk children using art. Time commitment of 1 ½ to 2 hours weekly or biweekly. For more information contact Kristin at 612-824-2787. PERSONAL CARE NEEDED Personal care attendant to assist handicapped male. Must have driver’s license. Female P.C.A. preferred. Live-in possible. Good pay. Maplewood. 651-731-3610.

Art Show W

orks by six artists with disabilities is on display through October at the Vision Loss Resources Lobby Gallery in Minneapolis. Coordinated by VSA arts of Minnesota, the exhibit includes watercolors by Jean Watson of Duluth, Rita A. Soeffner of Clearwater, and Paul Hanson of Mankato; works in brush marker by Char Coal of Minneapolis; and tactile mixed media by Carol O’Connor of Apple Valley and Suzyn Lundgren, Minneapolis. Vision Loss Resources is located at 1936 Lyndale Ave. S. (at Franklin). Most of the artwork is available for sale. The exhibit will run through October 31. For more information, contact VSA arts of Minnesota, 612-332-3888 voice/tty; jon.mn@vsarts.org; or http://mn.vsarts.org. For directions, call Vision Loss Resources at 612-871-2222.

FOR SALE 1989 Dodge conversion van with fully automatic wheelchair lift. V6 engine; automatic; 135,000 miles. New tires & tabs. Looks sharp, runs good. $1795 B.O. 651731-3610. MISCELLANEOUS “Words of Love” is a CD by Snoopi Botten, a musician with cerebral palsy who writes and performs inspirational songs using a synthetic speech system. To order, call (612) 872-7233 or visit Snoopi’s website at http:// hometown.aol.com/dectalk/ myhomepage/index.html.

11

Access To Employment

Employment ads are $14 per col. inch; July 31 is the deadline for the Aug. 10 issue. Mail to: ACCESS PRESS • 1821 University Ave. • #104S • St. Paul, MN 55104 FAX 651-644-2136 • E-mail: access@mninter.net

Women Against Military Madness seeks FT CODIRECTOR committed to peace & justice. Responsibilities include fundraising, financial and office management. $29,000, 100% health. Application review begins July 22, 2002. Women, people of color, GLBT people, and persons with disabilities Holmes-Greenway Housing: encouraged to apply. One and two bedroom apartFull job description ments designed for physically available: handicapped persons. Conve612-827-5364 nient SE Minneapolis locawamm@mtn.org tion. Call (612) 378-0331 for availability information. Equal www.worldwidewamm.org Opportunity Housing. FOR RENT Lewis Park Apartments: Barrier free housing with wheelchair user in mind. Section 8 subsidized. Oneand two bedroom units. For more information on availability call (651) 488-9923. St. Paul, MN Equal Opportunity Housing.

HOUSING COORDINATOR AXIS Healthcare, is seeking a staff member to champion the housing needs of our members. The position will develop and manage relationships with a full range of housing providers, towards the goal of ensuring all members have choice and support in housing alternatives. The position requires a bachelor’s degree in a related field or comparable professional experience working with persons with physical disabilities, a commitment to improving the health care delivery system, and a creative, problem-solving approach to all job tasks.

We are seeking a diverse and flexible staff, motivated by a belief that the health care system must be redesigned. If you believe you have a contribution to make as part of the AXIS team, please call (651) 556-0865 for further information, or fax/email/mail your resume to (651) 646-1887, dmaclennan@axishealth.com, or 2356 University Ave. W. Seward Square Apartments: We are currently accepting EXECUTIVE DIRECTOR Suite 405, St. Paul, MN 55114. ITEMS SOUGHT Arc Minnesota Seeking a van with good applications for our waiting working lift and hand con- list at Seward Square Aparttrols. Prefer under 100,000 ments in Minneapolis. Seward Arc Minnesota, the state’s miles. Call Jeffrey, 612-333- Square is barrier-free housing oldest and largest disability INFORMATION AND CONGREGATIONAL and is federally subsidized. rights organization represent2114, daytime hours. COMPUTER SCIENCE ORGANIZER ing people with developmenFor an application, please call tal disabilities and their fami(612) 338-2680. Equal Oplies, seeks an Executive Di- Metropolitan State University position available with the portunity Housing. rector. Celebrating its 50th invites applications for a one- Saint Paul Area Council of anniversary, Arc Minnesota year, fixed-term Information Churches. Position to recruit remains a strong and stable and Computer Science faculty congregations to partner with force in carrying on its position beginning Fall 2002. housing and mentoring orgamission. Arc Minnesota is Qualifications: master’s de- nizations. B.A. and expericomprised of 25 local and gree in computer science or an ence or skills in faith-based regional chapters and has equivalent degree, successful organizing. Salary DOQ. about 9,000 members and college level teaching and Good fringe benefits. AA/ thousands of other support- curriculum development ex- EEO. People of color are The following performances will be Audio Described (AD) for ers. During the course of its perience. Position is open encouraged to apply. Send people who are blind or have low vision, or interpreted in American Sign Language (ASL) for people who history, Arc Minnesota has until filled with review of resume by July 26 to Saint are deaf or hard-of-hearing. been instrumental in the applications beginning July Paul Area Council of For complete Churches, Attn: Bob Walz, passage of virtually every 15, 2002. You Can’t Take It With 7063; $8; www.jungletheater. major state law affecting description of position and 1671 Summit Avenue, St. persons with developmental qualifications, go to http:// Paul MN 55105 or fax to You; runs 7/12-28; ASL Sat., com. db.metrostate.edu/jobs.asp or (651) 646-6866. For more disabilities. 7/13, 8:00; Rochester Civic call (612) 341-7435, TTY information call (651) 646Theatre; 507-282-8481; Resurrection Blues; runs 8805, ext. 19. www.rochcivictheatre.org. 8/9-9/8; ASL Thurs., 8/29, The Executive Director takes users (651) 772-7687. AA/EEO 7:30 & Fri., 9/6, 7:30; AD a leadership role in the Minnesota Fringe Theatre Fri., 8/30, 7:30 & Sat., 9/7, development and implemen& Performance Festival; 1:00 (tactile tour 11:00); tation of Arc Minnesota’s runs 8/2-11; AD/ASL; Loring/ Guthrie Theater; Mpls.; 612- governmental affairs activiNicollet Theatre District; 612- 377-2224, TTY 612-377- ties. The position is respon872-1212; www.fringefestival 6626; www.guthrietheater. sible for implementing the organization’s strategic plan, .org. Program to be an- org. $15. supervising a staff of 10 FTEs nounced. Ramsey County invites you to join us in building a better For updates by phone, call in the main office and two community through public service in the following fields: Orange Flower Water; AD VSA arts of Minnesota at 612- regional offices, representing Thurs., 8/15, 7:30; Jungle 332-3888 or statewide 800- the organization to the media, • Administrative, Management and Technical Services collaborating with other orgaTheater; Mpls.; 612-822- 801-3883 (voice/TTY). • Building and Facility Services nizations, managing an an• Clerical and Secretarial Services nual budget of $870,000 and • Community and Social Services providing technical assistance • Court, Legal and Law Enforcement Services to local and regional chapters. • Property Records/Revenue Services The Executive Director works • Public Works and Transportation Services • Parks and Recreation Services closely with a volunteer Board of Directors, consistContact our Job Hotline for a recorded list ing of chapter representatives, of current job openings at: Arc members and community members.

Accessible Performances

Ramsey County

(651) 266-2666

To request the position description and other application materials, contact Dennis Theede, at dennist@hco.org, 507-452-1021 or Arc Minnesota, 770 Transfer Road, Suite 26, St. Paul, MN 55114. Further information about the organization can be found at arcminnesota.com and thearclink.org.

Ramsey County Human Resource Dept. 430 RCGC West 50 West Kellogg Boulevard Saint Paul, Minnesota 55102 (651) 266-2700 or (651) 266-2728 (TDD) You may also view a list of current job openings and other useful Information, or download application materials, on internet at: www.co.ramsey.mn.us


July 10, 2002

12

Don't Miss An Issue! Subscribe Today! $15 Buys A Full Year (12 Issues) Of Access Press Name ________________________________________________ Street ________________________________________________ City _______________________________ State ______________ Zip

__________________ Telephone _____________________

Are you UNSURE of your current home care provider? If so, Make a Change for the Better. Call 952-929-5757 or visit www.inhomepersonalcare.com Services we offer: • Personal Care Attendants/Home Health Aides • On-Call Staff • Loaner Car for PCAs with . . . “Car Trouble”

Limited income subscription: $5 I have an idea for editorial coverage. Please call me. I’ve enclosed my check for $15. Start my subscription. Send your advertising rates.

$10 $50 0 0 clie for refe nt rral

IN HOME PERSONAL CARE 5707 Hwy. 7 • Suite 104 • St. Louis Park, MN 55416

MAIL TO: ACCESS PRESS 1821 University Ave. W. • #104S • St. Paul, MN 55104 Phone: (651) 644-2133 • Fax: (651) 644-2136 • e-mail: access@mninter.net Kevin Sullivan, Director

Assisting individuals with disabilities to achieve their maximum independence since 1991.

THE FRIENDS OF ACCESS PRESS Thanks to the following sponsors for supporting Access Press this year. ------------------------------------- BASIC SPONSOR ------------------------------------Margaret Beier LeAnne Dahl Patricia Guerrero John Hartson Beth Jensen Debra Johnson Lucy Kennedy Rosanne Kramnicz Steven McKeever Kathleen M. Miller Cindy Moore Jane & Albert Olson Carla Reichenberg Gary & Leann Taylor Paul W. Taylor Kelli N-E Wysocki ----------------------------------- FRIEND SPONSOR ($25 and above) ----------------------------------Lynda Adams Mary Andresen Steven Anderson Marisa Bennett Patrick Bilbrey Mike & Karen Bjorgan Susan Blaylock Bob Brick Carlyn Bryngelson Deah Cain Carol Jo Cochran Marty Cushing Justin & Yoshiko Dart Jolene Davis LeRoy deBoom Barbara Droher Neil Doughty Craig Dunn & Candy Hart Mel & Georgia Duncan Will & Mary Englund Peg & Joe Figliuzzi Mary Frank-Wawokiyawin Candace & David Gislason Tom Gode Rep. Kevin Goodno John Hoffman Bradley J. Holmes Judy Hunt Cindy & Greg Johnson Deb Johnson Ericka Johnson The Joyce Family Linnea Johnson Hoff Roger A. Hoffman Barb Kane Mary Kay Kennedy Diah Kinion Beth Knutson-Kolodzne Eugene Kook Sherry Lampman Sue Lasoff Bruce Larson Linda Larson John Marty Dorothy McCoy Kelly Matter Desiree Menuey Robert & Ardis Meyer Sara & Gary Meyer Kathy Moran David & Judona Musselman Jim & Cindy Musselman Joe & Maureen Musselman Bill & Joan Overby Mary & Henry Pattridge Richard Peterson Margery Pilhofer Robert J. Geldert & Roberta Pinkosh Barbara Proehl Virginia Puzak Julee Quarve-Peterson Kelly Rathcke Kim Rezek Brian Rogers Stuart Rosen James Ross Scott Rostron Ginger Rudberg Patricia Rydeen Arthur Sauter Elizabeth Smith Adele Spavin Diane Sprague Gerry & Barb Tollakson Candace Warne Teri Welcher Curt Wiehle Joani Werner David Wood Accommodating Care, Inc. Accord Health Care Services All Temporaries, Inc Alliance for the Mentally Ill of MN Arc of Anoka/Ramsey Cty Arc Suburban Arc Minnesota Assistive Speech Technology Research Labs Axis Healthcare Best Care Blue Sky Designs, Inc. Brain Injury Assn. of MN Consumer Council of The Alliance for the Mentally Ill Disabled Dealer East Suburban Resources Franciscan Sisters of St. Paul Forensic Alliance of Mentally Ill Fraser Community Services Home Health Care JQ-P, Inc. Kaposia MBW Company Metro Mobility Service Center Staff MN Bio Brain Assoc. NAMI Northeast Contemporary Services Resource S.M.I.L.E.S. United Cerebral Palsy of MN

---------------------------------- BRONZE SPONSOR ($75 and above) ---------------------------------Sue Abderholden Steve Alarik Anonymous Susan Asplund David Baldwin Kathleen Ball Jill Bedow Janet Berndt Michael Bjerkesett Sandi Lane & Monte Blair Bill Blom Tom Brick Wendy Brower Deb Bryan Susan Bulger Rick Cardenas Mike & Jan Chevrette Margot Imdieke Cross Stephanie Cunningham Robert Gregory Diane Greig Luther Granquist Martha Hage Ellen & Skip Houghton Dianna Krogstad Carol & David Larson Linda Lattin LoRene Leikind Lolly Lijewski Joel McGuiggan Christopher Meyer Cliff Miller Jim Morse Paul Mueller William O’Dowd & George Zilligen Ann & Manley Olson Louise Pattridge Catherine Reid & Liddy Rich Patricia L. Rogers Ann Roscoe Rick & Debbie Ryan Patricia Siebert Barb Smith John Smith Peter & Pamela Stanfiel Mary Jane Steinhagen Erica Stern Eric & Caroline Stevens J. Quinn Tierney Helen Thompson Jerry Wood Joe & JoAnn Zwack The College of St. Catherine Dept. of Occupat’l Therapy-U of M Div.MN Rehab. Assoc Job Placement & Dvlpmt Equity Services-St. Paul FastServ Merrick Companies Minnesota Work Incentives Connection Pat Siebert, MN Dis. Law Ctr. National Results Council New Dimensions Home Health Care New Ways ---------------------------------- SILVER SPONSOR ($150 and above) ---------------------------------Karen Adamson Jamie Becker Scott Beers Lou Burdick Robert E. Buuck Chris Duff Catherine Eilers M. Therese Gockenbach Paula Goldberg Doris & John Groven Lori Guzman Judy Haaversen David & Susan Houghton Ronna Linroth Lynn Noren Michael Otubushin RISE Inc. Dean Doering & Lisa Scribner Kevin Sullivan Kay Willshire Arc Hennepin County Help Yourself Job Placement & Development Division, MN Rehab Assn Lottsa Tax & Accounting Services Mental Health Consumer/Survivor Network MILS Mpls. Advisory Committee MN Developmental Achievement Ctr Assoc. (MnDACA) PACER Center St. Paul Mayors Advisory Committee on People with Disabilities Twin City Transportation UCare Minnesota Vinland Center ----------------------------------- GOLD SPONSOR ($350 and above) ----------------------------------Shirley Larson Margaret Perryman Bridget & Diane Smith In Home Personal Care, Inc. -------------------------------- DIAMOND SPONSOR ($500 and above) -------------------------------Case Management Systems, Inc. Rapit Print ------------------------------- BENEFACTOR SPONSOR ($1000 and above) ---------------------------HECUA Medtronic Foundation

-------------------–------------------------------------- IN HONOR----------------------------------------------------Anne Henry by Karen Adamson • Cecelia Bilbrey-Baer by Patrick J. Bilbrey • Charlie Smith by Tom & Mimi Fogarty • Charlie by Fern Rogstad • Jaehn Clare by Candice Warne Kyle by Joe & JoAnn Zwack • College of Saint Catherine’s Occupational Therapy Masters Program by Steven Anderson • U of M Occupational Therapy Education Program by Erica Stern -------------------–------------------------------------- IN MEMORY----------------------------------------------------Charlie Smith by Anita Boucher & Jeff Bangsberg • Grandma & Grandpa Laughlin, Shamma & Frank Haas, & Fred Benjamin Jr. by Phyllis & Fred Benjamin III Bill & Renee Smith by Becky J. Bugbee-Tong • Troy Fahlenkamp & Valerie Birosh by David Dreier • Mabel Heuer by Dawn Doering • Charlie Smith by Lee Ann Erickson Bill Smith by Joe & Peg Figliuzzi • Charlie Smith by Andrew Groven • John Hardy by Martha Hardy • Miss Irene MacKaloney by Roger Hoffman Charlie Smith by Barbara Kane • Ruth Riggs by Corbin Kidder • Charlie Smith by Tracy Kochendorfer • Charlie Smith, our cousin, by Henry Pattridge & family Uncle Bill & Aunt Renee Smith by Mary & Henry Pattridge • Charlie Smith by Sister Kenny Institute • Bill & Renee Smith by Helen Thompson Bill, Renee, & Charlie Smith by Kathy & Paul West • Charlie Smith by Linda Wolford • Tony Lebahn by Linda Wolford -------------------–------------------------------------- IN KIND (time & services)----------------------------------------------------• Wendy Brower • Ellie Emanuel • Pete Feigal • Ellen Houghton • Lynda Milne • Jeni Mundl • Deb Olson • Ann Roscoe • John Schatzlein Jon Skaalen • Mary Ellen Tisdale • John Tschida • Linda Wolford Disability Health Options Committee Members • Disability Law Center • Justice for All • Minnesota Consortium for Citizens with Disabilities • St. Paul Social Security PASS Cadre Betty Beier

Your help is crucial if Access Press is to continue being the voice for people with disabilities. Your tax deductible gift entitles you to a one year complimentary subscription. Please mail your donation to Access Press, 1821 University Avenue West, Suite 104S, St. Paul, MN 55104. Thank you.

July 2002 Issue  

“To the critics who complain that ADA has not achieved total justice ... I say what about the Bill of Rights and the Ten Commandments? Have...

Advertisement