Accessia Health 2022 Impact Report

person centered

A Year of Transformation

As we reflect on our achievements and milestones, we are incredibly grateful to each of you for your continued support, trust, and belief in our organization.

From the outset, our mission to alleviate the financial burdens of healthcare on individuals has remained steadfast. Yet, the reality of affording healthcare remains a significant challenge. In fact, a staggering 112 million Americans find themselves grappling with the challenges of healthcare expenses.

Navigating the healthcare system creates a formidable obstacle, from financial constraints to understanding complex processes.

Navigating the healthcare system creates a formidable obstacle for individuals, encompassing everything from financial constraints to understanding complex processes. Delving into the intricacies of health insurance and healthcare itself can be a daunting task, but Accessia Health remains committed to providing patients with a clear path to success. In an ever-evolving healthcare landscape, we continually adapt to meet the evolving needs of those we are serving.

Year after year, our array of services provides crucial assistance to patients on their healthcare journeys. However, 2022 stands as a pivotal year for our organization, marked by deliberate efforts to establish partnerships aimed at supporting community-based initiatives and addressing health equity through our

Healthy People, Healthy Communities. initiatives. When community programs and resources are seamlessly integrated into structured healthcare, individuals with chronic conditions can experience substantial improvements in their healthcare outcomes.

Forming several collaborations allows Accessia Health to harness new resources and jointly address complex challenges in communities. Through these partnerships which include the Virginia Association of Free and Charitable Clinics, Louisville Community of Care, and the Rare Disease Diversity Coalition, and the Global Genes Advocacy Alliance we are positioned to make a lasting difference for the patients and families we serve.

bringing together thought leaders and industry experts to provide invaluable insights to patients, caregivers, and the community.

Continuing to enhance our patient education offerings, we successfully launched our webinar series, Amplify Your Voice. Control Your Care.,

In an ever-changing healthcare landscape, we continually adapt to meet the evolving needs of those we are serving.

When we say we are here for good, we are affirming our unwavering commitment to our mission and, most importantly, to the individuals we serve. We stand resolutely for the betterment of all people, embracing the responsibility to make quality healthcare accessible and affordable for everyone. With your continued support, we will continue providing hope and help to anyone facing a chronic medical condition or disability.

Tiara Green Interim CEO Mitch Mula Board Chair

Healthy People. Healthy Communities.

Accessia Health is taking a transformative step forward, evolving from the conventional patient assistance model to a dynamic approach aimed at enhancing health literacy and fostering better outcomes.

In our last impact report we introduced Healthy People. Healthy Communities., a nationwide endeavor that aligns with the Health and Human Services’ Healthy People initiatives.

We’ve seen outstanding engagement with this program and through community partnerships, our mission remains clear: bridge health disparities, community by community, by embracing a holistic perspective that engages individuals at every level.

INITIAL PROJECTS

• Amplify Your Voice, Control Your Care

• Louisville Community of Care Project

• Healthy People. Healthy Virginia.

• Indiana Oral Health Fund

Meet James

Accessia Health has dramatically taken the stress out of my life - otherwise I’m not sure how I could pay for my Gaucher ERT.

Being over 65 and having to go to Medicare from private insurance, they walked me through the process when I was beside myself with the thought of making a decision to have my medication or take my chances with my chronic disease.

The organization’s staff are true professionals that care for their patients!

Impact of your dollars.

UNIQUE PATIENTS SERVED = 8,140

OVER 50% of our patient population utilizes their assistance for more than just copays.

AVERAGE PATIENT AGE = 65

AVERAGE HOUSEHOLD SIZE = 2

AVG CALL DURATION = 5:43

Our team invests time and attention to each call, ensuring thorough and meticulous handling.

TOP STATES

Florida Texas California Pennsylvania Ohio

Illinois

79 ESTABLISHED DISEASE FUNDS COVERING 389 DIAGNOSES

ACCESS Program

Advocating for Chronic Conditions, Entitlements and Social Services (ACCESS) is a patient assistance program that operates a free legal service for patients seeking Social Security Disability Benefits.

Our ACCESS team has a 61% APPROVAL RATE (compared to US rate of 35%)

More than copays.

“Assisting patients and caregivers with navigating the complexities of health insurance is rewarding because ultimately, they are gaining access to the services they need to manage their health. Serving as an advocate for patients in this way helps ensure that no matter where they are in the process of understanding how health insurance covers their condition, they are not alone.”

At Accessia Health, our commitment goes far beyond the conventional scope of copay assistance. We take immense pride in providing an extensive range of services designed to empower patients with holistic healthcare support. At the heart of this effort are our dedicated case management specialists, who serve as a bridge between patients and essential healthcare resources. Our role involves assisting patients with understanding and obtaining health insurance coverage to meet their healthcare needs. This includes educating patients on Medicare, ACA, Group, COBRA, and Medicaid; assisting patients by investigating their health insurance benefits to ensure they are billed correctly and understands those costs; Educate and empower patients on healthcare topics that could have an impact on their coverage and benefits. Additionally, we empower patients by

Amy Jackson, BSW,CCM Case Management Specialist

offering insights into healthcare topics that impact their coverage. Our comprehensive case management becomes even more intensive in some programs, necessitating vigilant oversight.

This approach is pivotal in achieving the overarching goal of improving a patient’s well-being. Through advocacy, assessment, collaboration, communication, education, and service, case management equips patients and caregivers with the tools for informed health decisions, averting instances of being uninsured, underinsured, or overinsured.

Meet Lori

After receiving my Fabry diagnosis, I embarked on the journey to find treatment options. I soon discovered that bi-weekly infusions were very successful. However, the associated costs were astronomical. That’s when I sought assistance through Accessia Health.

I would be making payments that would never allow me to save a penny if it wasn’t for Accessia

Health and I can’t express how significant their help has been.

Having lived with Fabry for most of my life, I make it a priority to urge others with a chronic medical condition to advocate for themselves and their health journey.

It’s important to take control of your care and amplify your voice as you make decisions for your health.

Meet Amy

I was diagnosed with Hereditary Angioedema a few years ago after my tongue and throat were swelling to the point where I was on a ventilator in the hospital every few months. Thankfully once I started treatment for HAE, my hospitalizations have been less frequent. Accessia Health has been an amazing support to me throughout my HAE journey! They have eliminated the stress of how to pay for my medication, hospital visits, doctor visits, and travel expenses to see HAE specialists. It’s obvious they truly care about patients.

Living with and managing this rare disease can often feel like a roller coaster. Some days I feel like a warrior. Some days I feel like a broken mess. Many days I feel like a combination of both. But every day I will get up, fight, and try for this beautiful gift of life.

Leadership Team Board of Directors

Tiara Green, MSEd

Interim CEO

Mike Holdren

Chief Information Officer

Lamont Brown

VP, Finance & Administration

Dave Griffiths

VP, Development

Anna Brown

VP, Marketing & Communications

Heather Reinecke

Director, Human Resources

Jennifer Noonan, MSN, RN

Sr. Director, Clinical Programs & Compliance

Ashley Lee

Executive Project Manager

Mitch Mula Chair

Brian Landry Vice Chair & Secretary

Russell E. Phillips Jr., CPA, CVA, MAFF

Treasurer

Brian L Fink, JD

Lud Kimbrough, MBA

Lee Smith

Jessika Acosta Foundation Board Chair

Mark Harris Foundation Board Vice Chair & Secretary

Caitlin Donovan Foundation Board Treasurer

Jenn Kerfoot Foundation Board Member

Donors

Abbvie/Blackbaud Giving Fund

Alison Quinn

Amazon Smile

Amicus Therapeutics, Inc

Amy Jackson

Anna Brown

Anne Foster

Ashley Lee

Benevity

Blue Cross/Blue Shield

Boehringer Ingelheim (BI)

Brian Graham

Carol Hume

Centene Management Company

Daniel Wise

Dave Griffiths

Deanna Callahan

Deciphera

Delta Dental Foundation

Deponte Jr.

Diane Reed

Don Smith

Elaine Brown

Emmanuel Ramos DeAlba

Eric Conners

Fidelity Charitable

Kristin Shifflett

Kyle Nelson

Lamont Brown

FrontStream Workplace Philanthropy

G & K Fournier

Gary Wallace

Gene & Mary Lou Balog

Grace Hooley

Grifols USA, LLC

Gwen Cooper

Heather Reinecke

Jane Zeller

Jeannette Nurse

Jeengle

Jessica Richardson

Jim Berko

John Stevenson

Joseph Taylor

Julie Denton

JustGive

Karen Williams

Katherine Wilson

Kathy Macken

Laurie Erickson

Leadiant Biosciences, Inc.

Linda Williamson

Linda Yamada

Lisa Perry

Lisa Purvis

Lud H Kimbrough, III

Maria Stariha

Marita Mathews

Marta Ulloa

Mary Acquino

Michael Brown

Michael Johnson

Mitch Mula

Network For Good

Novartis

Omosalewa Akintilo

Optum

PayPal Giving Fund

Peter Ledwedge

Pharming Healthcare, Inc

Plasminogen Deficiency Fund

Ray & Mary Lawson

Richard Jones

Robert & Peggy Trent

Robert Glasser

Ronald Trimble

Rosanne Findon

Russ Phillips Jr.

Sanofi Genzyme

Scott & Terri Pease

Shannon Moseley

Sherry Leo

Spark Therapeutics, Inc

Sunny Graham

Takeda

Team Kentucky NonProfit Assistance

Fund Program

Teresa Pistolessi

Terrie Glass

The Phillips Organization

Theresa A. Eirich

Thomas Marx

Tiara Green

Tracy Stewart

Travere Therapeutics

Truist

UKOGF Foundation

Unbridled Charitable Foundation

United Way

United Way of Dallas

Vanda Pharmaceuticals, Inc.

Vanguard-George Crozier

Vernon Kingsbury

William Foster

William Northcott

YourCause

Yulonda Kee

Yvonne Neely

IN HONOR OF

Amy Smith

The Berko Family

Brian Barry

Diane Reed

Kelli O’Reilly

Onyebuchi Maureen Akintilo

Tammy Martin

IN MEMORY OF

Alan Larese

Ann Lawman

Grace Patterson

Josephine Berko

Tucker Brubaker

Wanda Dianne Lacher White

Wendi Krappes

List represents donations received Jan-Dec 2022

With gratitude.

A heartfelt thank you to each of our donors for their generosity in 2022. Your contributions allow us to support patients and their families living with chronic medical conditions.

The compassion you have for our organization fuels our mission, and we are deeply grateful for your unwavering commitment.

2022-23 CONSOLIDATED STATEMENT OF FINANCIAL POSITION*

ASSETS

Total Current Assets 76,004,817 Total Property and Equipment 1,722,071 Total Other Assets 9,049,208

Total Assets 86,776,096

Total Liabilities 1,331,910

NET ASSETS Without Donor Restrictions 20,790,267 With Donor Restrictions 64,653,919

Total Net Assets 85,444,186 Total Liabilities and Net Assets 86,776,096

*Data is for the 15-month period: January 1, 2022 through March 31, 2023. Full IRS 990 and Financial Statements will be available on AccessiaHealth.org in October 2023

Meet Helen

Twice a day I use The Vest machine that percusses me, helping my lungs stay as clear of sputum as is possible. My alpha-1 antitrypsin deficiency is kept fairly well under control with the added benefit of a weekly infusion.

Due to my post-polio fatigue, a nurse comes to my home to administer this infusion.

Without the financial help of Accessia Health, this treatment would not be possible.

Our Commitment

Accessia Health is committed to fostering, cultivating, and preserving a culture of diversity, equity, inclusion, and belonging amongst our employees, partners and those that we serve. In 2022, we launched our internal DEIB committee, comprised of employees from all levels of the organization that share an interest in proactively supporting the organization’s diversity efforts. The goal of the Committee is to enhance the work environment by empowering communication and building trust as it relates to diversity and inclusion.

“Being on the committee means I have the opportunity to engage with diverse ideas and gain exposure to different individuals and cultures; laying a foundation that creates an exceptional working environment, and ultimately leading to productivity and sustainability. I’ve learned it’s good to ask questions because it can spark great conversations.”

- Jeannette Nurse, Controller

“The most important thing I’ve learned from my committee experience is that I always have more to learn about how to be more inclusive and thoughtful of others. For me, it’s about learning, respecting and appreciating what is diverse about others – and having this guide my interactions thoughtfully.”

- Jennifer Noonan, Sr. Director, Clinical Programs & Compliance