Vol. No. Vol. 2118No. 47 27
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Bid for brave Brax L
BY COLIN MacGILLIVRAY
ife has no pause button – a lesson Horsham boy Braxton Williams’ family learned in devastating fashion in January when he was diagnosed with a brain tumour. What had begun with concerning symptoms for the five-year-old – headaches, a loss of balance, blurred vision in his left eye – quickly turned gravely serious after a visit to Wimmera Eye Clinic. An optometrist referred Braxton to Melbourne’s Royal Children’s Hospital where his mother, Sarah Lee, was given heartbreaking news; he had a slow-growing glioma at the base of his brain that had damaged nerves in his left eye and spread to his spine. Neurosurgeons attempted to remove the tumour, but found it was too vascular and the risk of bleeding too high. Instead, Braxton started a course of chemotherapy to try to reduce the size of the tumour and preserve the vision in his right eye. Braxton is now prone to seizures and has endured three emergency flights out of Horsham. A worrying build-up of fluid on his brain necessitated a VP shunt in his head to help with drainage. Braxton also receives ongoing physiotherapy and occupational therapy care to help him maintain his mobility. Through it all, Braxton has maintained a remarkably strong spirit. His father, Josh Williams, said Braxton was even able to joke about his appearance after undergoing chemotherapy and losing his hair. “He said, ‘I look like grandpa now’,” Mr Williams said.
Five-year-old Horsham boy Braxton Williams is in the fight of his young life. Braxton was diagnosed with a brain tumour in January, forcing his mother to relocate to Melbourne and sell her home to fund his treatment. The Wimmera community has rallied around Braxton and his family, organising a 'Beers and a Bid for Brax' charity auction at Horsham's Victoria Hotel on Sunday, June 16.
Life on hold
With Braxton requiring constant care in Melbourne, Ms Lee and her partner Jayden Clugston made an extremely difficult decision; they would put their life on hold and relocate to an apartment in Footscray to be near the Royal Children’s Hospital. “It’s definitely tough because we’re threeand-a-half hours away from family and friends,” Ms Lee said. “You feel a little bit isolated, but we try to
go to different events that the hospital might have on. “We went to a playgroup so Braxton could meet some other kids and I could meet some other mums, just so you’ve got someone you can talk to who is going through a similar thing. “We had the option of going to the Ronald McDonald House, but it’s not really a home environment for Braxton. “Being in a share house would be okay for a couple of weeks at a time, but to call it home just wasn’t something I thought would work for us, especially because Braxton’s immune system is down after treatment and I can’t afford to have him around anyone who is sick.” It was the right move for the family, but it came with ramifications. Ms Lee owned a property in Horsham, while Mr Clugston was in the process of building a new house. With the cost of living in Melbourne much higher than in Horsham and Braxton’s medical expenses skyrocketing, Ms Lee did the only thing she could do and sold her property. “I had to sell my house just to take off the strain there and we’re still trying to figure out what we can do with the other house when that’s finished,” she said. “Not only that, I was working part-time before all of this happened, so we were used to two incomes and now we’re living off one. You definitely feel the pinch after a while.”
Community rallies
When Ms Lee approached Horsham real estate agent Rob Dolan about selling her house to fund Braxton’s treatment, he knew he had to do something. “When Sarah told me what was happening, I was in tears,” he said. “I’m a big softie when it comes to kids – I’ve got two boys of my own – and it still brings tears to my eyes. “I said, ‘let’s do something and form a committee,’ and there have been some amazing people who have jumped on board.” Mr Dolan’s idea was to organise a charity auction to support Braxton’s family through volunteer group Wimmera Against Cancer in Kids, WACK. Ms Lee’s friends and family and the wider Wimmera community enthusiastically embraced the plan. Continued page 3
IN THIS ISSUE • Confidence in solar farm project • Rail freight insight • Junior motocross event Phone: 03 5382 1351 Read it online: www.theweeklyadvertiser.com.au
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