NZ Dementia Cooperative Newsletter July 2018

NEWSLETTER – July 2018 NZ Dementia Cooperative Charitable Trust We are currently seeking to add members to our board of trustees, and we particularly need expertise in fundraising and marketing to add to the expertise of current board members. If you are interested in joining the board we’d love to hear from you. For more information please contact me at director@nzdementia.org or call me on 021 409 909.

Web Portal We’re working to establish a database of NZ research and researchers on the web portal https://nzdementia.org/.

When you log into the portal and click on your profile, in the drop down box you’ll see where NZ researchers can post their research, both published and underway. Researchers can also join the database of NZ researchers by listing their contact details, interests and research planned and underway. The aim is for researchers to be able to see what is happening around NZ and to be able to contact each other to discuss, share ideas and collaborate.

Education & Training Online Dementia Education Improves Patient Care This story on the NZ MOH digital health site is about the eLearning Dementia Education Resource for GPs and Practice Nurses.Dementia Education Module Improves Patient Care Understanding Dementia - MOOC University of Tasmania Wicking Dementia Research & Education Centre. This very popular free, online, 7 week course is open for registration, although registration closes at 7.00pm on the 31 july, so you’ll have to act quickly. Register here: Understanding Dementia MOOC Dementia Training Australia This is an Australian government sponsored online education site. Free online courses in August 2018 include a new eLearning course to provide General Practitioners with guidance on recognising dementia. All these courses start on 2 August and end on the 17 or 24 August. DTA courses are short, mobile-friendly, and cost free to the learner.

Understanding Dementia Care Community Care and Dementia: Understanding the Condition Community Care and Dementia: Responsive Behaviours Recognising, Diagnosing and Managing Dementia in General Practice The Timely Diagnosis and Improved Management of Dementia in Primary Care Management of Antipsychotic Medications for Responsive Behaviour in Residential Aged Care Caring for LGBTI People with Dementia Bedtime to breakfast: caring at night for people with dementia 3SpiritUK 3SpiritUK is a UK based organisation lead by Managing Director and New Zealander Caroline Bartle, providing training over the health and social care sector. Caroline also visits NZ to deliver popular dementia training courses

here. See their website here: 3SpiritUK. This is the current course booklet, which has a number of resources included: See our range of dementia courses 3SpiritUK produces free info graphics aimed at shifting the culture of care and challenging and engaging the health workforce. They have recently produced a graphic to promote urinary continence. The aim of the graphic is to challenge poor practice, or to simply get conversations going. NEW_PromotingUrinaryContinence_print.pdf Care Search CareSearch is an Australian based online source for evidence on palliative care. CareSearch does the work of continuously identifying, evaluating, synthesising and disseminating trustworthy information and best available evidence on palliative care.

Care Search general dementia information – CareSearch: Dementia Care Search Dementia Education Online - this is a set of six educational modules on dementia. The topics cover: Care Search Dementia Education Online • What is dementia • Recognising dementia • Communication in dementia care • Care partnerships with families across dementia care settings • Younger onset dementia • Dementia within culturally and linguistically diverse (CALD) communities Care Search Dementia Education Online Care Search resource booklet – DEMENTIA: A discussion Tool for Aged Care Residential Facility Staff

Resources New Allied Health data set standard for NZ DHBs eHealthNews.nz reports that District Health Boards can start implementing a new Allied Health data set standard published by the Ministry of Health. The Standard defines the minimum data set to be captured by allied health staff in DHBs to record patient-related clinical activity. It is designed to support greater information sharing to improve workforce planning and service delivery. While still an interim standard, DHBs can start implementing it for the five professions included at this stage: occupational therapy, physiotherapy, social work, speech and language therapy, and dietetics/nutrition. You can find the eHealthNews.nz report here: New Allied Health Data Set Standard for DHBs You can find information on the Standard on the MOH website here: Allied Health Data Standard Song for Rosaleen Song for Rosaleen is a book written by established New Zealand writer Pip Desmond , about her family’s experience of caring for their mother after she got dementia. It is published by Massey University Press. MUP describe it as “A beautifully crafted memoir of a family coping with their mother’s dementia, Song for Rosaleen is both a celebration of Rosaleen Desmond’s life and an unflinching account of the practical and ethical dilemmas that faced her six children. Told with love, insight, humour and compassion, it raises important questions about who we become when our memories fail, how our rapidly ageing population can best be cared for, and what this means for us all.” It can be purchased for $29.99 on the MUP website here: Song for Rosaleen

Reports & Papers Dementia: Supplementary Findings from LiLACS NZ for Section Five, ‘Service Use and Common Health Conditions’ The University of Auckland released this report in the report ‘Health, Independence and Caregiving in Advanced Age’ on the 10th of May 2017. This report, funded by the Ministry of Health, establishes how the presence of dementia affects older Māori and non-Māori (aged 80 years and above), and the services they use when the dementia patients also have cardiovascular disease, chronic lung disease and diabetes mellitus.

The study found that dementia was associated with lower functional status, higher frailty, poorer mental and physical health-related quality of life and higher health service use and cost. The combination of dementia with any

of the physical health conditions studied in the report (cardiovascular disease, chronic lung disease, and diabetes mellitus) worsened health status and increased health service use and costs. You can find the report here: LiLACS NZ Dementia Supplement Research Report (The project Te Puāwaitanga O Ngā Tapuwae Kia Ora Tonu/ Life and Living in Advanced Age, a Cohort Study in New Zealand (LiLACS NZ) is a longitudinal cohort study of New Zealanders in advanced age. LiLACS NZ is the world’s first longitudinal study of an indigenous population aged 80 and over.)

OECD Report June 2018: Care Needed - Improving the Lives of People with Dementia For the first time the OECD included NZ in their report on the state of dementia in OECD countries. The NZDC worked with the Ministry of Health to contribute information on current dementia care in NZ for this report. You’ll find the report here: OECD Report 2018. Care Needed: Improving the Lives of People with Dementia Other OECD reports relating to dementia can be found here: OECD Dementia Resources

Research & Surveys Exercising Choice in Long-Term Residential Care Source: Canadian Centre for Policy Alternatives "Our research indicates that strategies intended to support choices for long-term care residents must be based on the understanding that care is a relationship involving residents, their families and workers. It also means understanding that appropriate conditions of work are central to care as a relationship that allows residents and their families to exercise choices. Included in those conditions are provisions that allow staff to know residents and families, that give them the time they need to devote to resident care and that encourage staff to use their judgement in responding to the preferences of residents and families. Although what makes up appropriate conditions varies from place to place, we have identified some that are essential to supporting choices.” CCPA: Exercising Choice in Long Term Residential Care

Conferences & Knowledge Exchanges InteRAI NZ InterRAI NZ is holding a series of meetings throughout the country in the later part of 2018: • 14 August 2018 in Rotorua: Integrating interRAI in your facility workshop • 11 September in Dunedin: Integrating interRAI in your facility workshop • 12 September in Invercargill: Integrating interRAI in your facility workshop • 11-13 September 2018 in Auckland: See InterRAI NZ at their stand and come to their presentation How we are all doing: interRAI and quality at the NZACA Conference 2018. The presentation is scheduled for 11 September 4.25pm.

• 19-21 September 2018 in Auckland: interRAI Educators Karyn Foley and Karen Goymour present about the interRAI Palliative Care assessment at the Hospice NZ Palliative Care Conference.

• 5-6 November 2018 in Hamilton: Visit the InterRAI NZ stand and hear General Manager interRAI Services Michele McCreadie speak at the NZNO Section of Gerontology Nursing Conference.

• 19-21 November 2018 in Wellington: See InterRAI NZ at their stand at the Health Informatics New Zealand Conference.

To join these Integrating interRAI workshops contact John McDougall (NZACA) at john@nzaca.org.nz You can access the June issue of the InterRAI newsletter, the InterRAI Informer here: InterRAI Informer June 2018 Alzheimers NZ Conference 2018 The conference is being held in Auckland 25 – 27 October. Early bird registration is now open until 23 August at a cost of $720 for the full conference. You’ll find the programme outline here: Alzheimers NZ Conference 2018 College of Gerontology Nursing The College of Gerontology Nursing NZNO is holding its inaugural conference on 5 & 6 November, 2018 in Hamilton.

The theme of the conference is ‘Coming into Age’. Early bird registration is open until 26 September. You’ll find conference information here: College of Gerontology Nursing Conference 2018 The Future of Home and Community Care: Proceedings from The Centre for the Future of Health Meeting.

Source: Conference Board of Canada.

“This briefing presents the highlights of the Centre for the Future of Health’s November 2016 meeting on the future of home and community care and how design, delivery, and support could evolve to suit Canadians’ changing needs.

Meeting delegates: • explored how home and community care is rapidly growing and transforming and is a critical component of an effective health care system • discussed innovative approaches to optimal care and how innovation and technology can help Canadians live longer, healthier lives in their communities • provided examples of innovation through collaboration to further advance home and community care” You will need to sign up for a free account to download the document. This is an easy, standard process. The Future of Home and Community Care: Proceedings from The Centre for the Future of Health Meeting

Newsletters Alzheimers NZ - Alzheimers News Alzheimers NZ newsletter June

Media This is an Insight report on Dr Matthew Croucher’s discussions with South Island District health Boards in 2018: Insight: The Earlier the Better - Experts Call for Timely Diagnosis And this is Radio NZ’s interview with Matthew: Radio NZ I/V Matthew Croucher: Radio NZ I/V Matthew Croucher: Yes, you can live well with dementia

Please Note NZDC Newsletter: The NZDC has around 1000 members who work across the dementia sector, and we are happy to share dementia information through our bi-monthly newsletter. So if you have something you would like people to know about email me at director@nzdementia.org .

Shereen Moloney Executive Director NZ Dementia Cooperative MOB: 021 409 909 Email: director@nzdementia.org Web portal: nzdementia.org