DCI Harvard ePI Retreat - BOSTON, 23 June 2023

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Reimagining the future of electronic medication information and patient engagement ONE SIZE DOESN’T FIT ALL Harvard DCI Retreat Cabot Science Library Cambridge MA 23 June 2023 www.dcinetwork.org Retreat Program & Information

Our Mission Why does this matter

Medication information can be complex, and many patients struggle to understand the printed medication package inserts currently available. The one-size-fits-all approach does not effectively address diverse health literacy needs, leaving some patients without the necessary understanding to take their medications safely.

Providing all patients with accurate, up-to-date, and comprehensible medication information is essential to ensure patient safety and promote equity. Collaboration among stakeholders within the healthcare ecosystem, including non-profit organizations, patient advocates, healthcare providers, pharmaceutical companies and policy makers, is crucial to address this concern.

By working together, we can generate the best ideas, harness the potential of digital health technologies, and standardize display formats and distribution methods. Creating accessible, comprehensible, and culturally sensitive medicine information resources through joint efforts is vital in guaranteeing that no patient is left behind.

“The worst thing about the information leaflet is that it doesn’t give any useful information – it just covers everything.” Patient
Join the convening of thought leaders and innovators in an interactive discussion. Register now.

Workshop outline and objectives

How to... Our Vision

expand the accessibility and effectiveness of unbiased, up-todate, regulator-approved electronic medication information by making them available to patients in plain language at the point of need through the advancement of digitally interoperable healthcare environments for more active health management and medication adherence?

To pioneer and develop world-class leadership in the application, exchange, and integration of electronic medication information for patients, with the ultimate goal of improving understanding of medication labels thus promoting safe and appropriate use of medication based on a patient’s health literacy, equity, technical abilities, access, and Social Determinants of Health (SDoH).

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Friday, 23 June 2023

09:00AM - 09:30AM

WELCOME Networking and introductions

Meet top thought leaders and decision-makers from major biopharmaceutical companies, high-tech companies, government, healthcare providers, patients and advocates, academic centers, and non-profit groups.

WHY ARE WE HERE? Shared purpose

Co-create a challenge statement and establish objectives for the day.

WHAT REAL-LIFE PROBLEMS ARE WE TRYING TO SOLVE? Patient POV

Interviews with the Patient Panel (Q&A). Getting to know the patient experience, patients’ needs and day-to-day challenges. Generating empathy map as our guide through out the workshop. Identify bright spots and pain points for ideation.

10:50AM - 11:00AM COFFEE BREAK

09:30AM - 09:50AM 09:50AM - 10:50AM 11:00AM - 12:30PM

WHAT EXPERIENCE ARE WE TRYING TO CREATE? Ideation Session 1

Ideation, voting and prioritization. Team presentations and group discussion.

12:30PM - 01:30PM LUNCH

01:30PM - 03:30PM 03:30PM - 04:00PM 04:00PM - 04:30PM

HOW CAN WE BRING THE BEST IDEAS TO LIFE? Ideation Session 2

ROADMAP CO-CREATION Reimagining the future

WRAP UP Bringing ideas to life

Generate case studies and criteria for implementation. Identify top requirements and success criteria. Team presentations and group discussion. Prioritize activities, discuss feasibility and shape execution. Looking forward and next steps.

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02 Agenda

About the Retreat

Shared purpose

01. 02. 03. 04. 06.

Hear Patients’ perspectives and co-create opportunities

Join patients in co-developing electronic medication information use cases and co-designing solutions ensuring that no patient is left behind.

Discover expert insights from top thought leaders and decision-makers

Talk to experts from major biopharmaceutical companies, high-tech companies, government, academic centers, patients and advocates and nonprofit groups dedicated to collaborative approaches to medicine and science.

Collaborate and network to discuss, ideate and explore innovative initiatives

05.

Recognize the opportunities

With a multi stakeholder roadmap approach, explore pathways towards improving medication information and building the evidence base for digitalfirst solutions that comply with regulations. Define the problem, identify promising ideas and gather evidence needed for conducting small tests of change.

Be a part of the path forward

Shape the outcomes by co-creating a roadmap for the electonic medication information Working Group with patients and multi-sectoral stakeholders.

Rise to the challenge

Evaluate execution dimensions and shape direction of the Working Group.

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About this event

The Retreat is part of a Working Group dedicated to reimagining the potential for enhanced medication information which recognizes that not all patients are the same and aims to deliver person-centered solutions. We encourage open discussions and interactive ideation. This is an invitation only event.

How to book

About DCI Network

The Division of Clinical Informatics (DCI) at Beth Israel Deaconess Medical Center (BIDMC) is a leading centre for developing scalable models, informatics research, and policymaking since 1970. Launched in September 2022, the DCI Network aims to accelerate solutions to complex healthcare problems by creating new multi-stakeholder alliances and consortia, and creating strategic roadmaps to implement solutions that scale.

STEP 01

Please contact Gyana Srivastava at gsrivast@bidmc.harvard.edu to RSVP.

STEP 02

RSVP by email About

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DCI Network
the Event
About
Learn more about the event

Location Where to go 05

Location and facilities

Accessibility

All Science Center entrances are accessible via ramps and automatic doors.

Refreshments

Tea, coffee and snacks will be provided. Please email your dietary requirements to Gyana Srivastava: gsrivast@bidmc.harvard.edu

Getting here

Metered parking is available near Harvard Square. The library is accessible by public transportation.

Address

THE GODFREY LOWELL CABOT SCIENCE LIBRARY

The Harvard University Science Center

1 Oxford Street

Cambridge, MA 02138

United States

For further information contact:

Gyana Srivastava

Research Asssitant II

Division of Clinical Informatics, BIDMC

E-mail: gsrivast@bidmc.harvard.edu

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Thank you Yuri Quintana, Ph.D. Chief of the Division of Clinical Informatics, 133 Brookline Avenue, HVMA Annex, Suite 2200, Boston, MA 02215 United States For further information contact: Gyana Srivastava Research Asssitant II Division of Clinical Informatics, BIDMC E-mail: gsrivast@bidmc.harvard.edu

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