Spring/Summer 2015 Utah Cancer Connections Magazine

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P R E V E N T I O N • S C R E E N I N G • T R E AT M E N T • S U R V I V O R S H I P 2015 VOLUME 5 ISSUE 2

UtahCancerConnections.com

A Life Worth Living Caffeine-Free ENERGY TIPS THE DOV EFFECT 5K Memorial Run

RIGHT TO TRY Bill Passes Cancer Killing FOODS & RECIPE INNOVATIONS In Treatment


Sometimes, f ighting is the answer.

W hen it comes to beating cancer, you need a team of experts by your side. Our skilled caregivers work together with you to develop a strategic

treatment plan. So you’ll have the best chance to fight cancer and win.

HealingForLife.com LDS Hospital  Intermountain Medical Center  Primary Children’s Hospital McKay-Dee Hospital  Utah Valley Regional Medical Center  American Fork Hospital Dixie Regional Medical Center  Valley View Medical Center  Logan Regional Hospital


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WELCOME I am the master of my fate. I am the captain of my soul. - William Ernest Henley

Choose Wisely Above and Cover Photo: Ryan and Jennifer Berube Photo Credit: Kenny Worland

4 5 6 7 8 9 10 12 14 15 16 19 20 21 23

Melanoma Monday Cancer Fighting Spices with Recipe Fighting For The Right To Try Setting a Meaningful Goal Breast Cancer Supplies Under One Roof Bowling For Breast Cancer | Image Reborn The Power of Exercise for Cancer Patients World No Tobacco Day 2015 Innovations in the Treatment of Acute Leukemia Caffeine-Free Tips for Increasing Energy A Life Worth Living The Importance of Nurse Navigators Shifting From Fear To Peace (Part 3) Run for Dov Memorial Details Local Cancer Resources

www.UtahCancerConnections.com PUBLISHER Ginger Johnson ginger@utccmag.com

EDITOR Geri Taylor geri@utccmag.com

ADVERTISING INQUIRIES advertise@utccmag.com or 801.388.1699 Utah Cancer Connections 265 N Main St. #D252 Kaysville, UT 84037

UTCC is delivered state wide to cancer treatment centers, pharmacies and other health-related businesses.

A very wise man recently said, “Decisions determine destiny.” I couldn’t agree more. Sometimes it may feel as if the outreach of our actions is limited to the small sphere of society that we interact with on a daily basis. As if the decisions made that day are somehow limited to the time frame in which they were created. The truth is that our daily decisions ripple throughout time and have lifelong impact not only on our surroundings, but on others as well. This ripple effect was validated in my life (again) as I was recently invited to speak in Trinidad, Tobago for a cancer event. Thanks to a choice I had made years ago to write for a friends blog (SmittenBy. net), my information was discovered by the event planner who tracked me down and secured my services. I now have the opportunity to speak internationally to hundreds of men and women on the southernmost island in the Caribbean. Ripples, my friends. Big ripples. My dear friend, Dov Siporin, was a shining example of how one persons actions can affect thousands. During his almost eightyear experience with stage 4 colorectal cancer, Dov made the conscious decision to reach out to others to share happiness, hope and laughter. During his time at the Huntsman Cancer Institute, he diligently made an effort to bring joy to those he met - often getting applause from patients as he walked through the building wearing nothing but a cloth diaper and painted red hearts on his chest (Chemo Cupid, of course). Even though Dov is no longer physically with us, ‘The Dov Effect’ is still moving across the globe. Stories of his escapades have rippled throughout the community (and the nation) providing gut-busting laughter and a brief, but highly enjoyed, interruption for those facing cancer. These ripples of love will never end. I strongly encourage each of us to consider our actions and the decisions we make each day. We may not know where they will go, but we can be sure they will have an effect. What will you decide to spread across the world? Choose wisely.

Ginger

CONTRIBUTING WRITERS Finn Bo Petersen, MD Jamie Jensen Geri Taylor Angelina Padilla, RN, BSN, OCN Kathy Truman Dr. Todd Cameron Anne Kieryn, MD Magazine Delivery by the Happy Chemo! Mobile

Proudly Sponsored By Nate Wade Subaru 1207 South Main in Salt Lake City Over 40,000 copies delivered to cancer patients across Utah since 2010.

www.utahsubaru.com

THANK YOU!!! PHOTO: GINGER JOHNSON & DOV SIPORIN

PHOTO CREDIT:ANNA POCARO MANLEY | PIXELHUGS.ORG

Information presented herein is not intended as a substitute for the advice given by your health care provider. We are not liable or responsible for any loss, injury, damage or harm that you may suffer as a result of the information contained in any advertisement or goods or services contained herein. Reader discretion is advised. Receipt of this publication does not imply endorsement of specific companies, products or services of any kind by your physician, cancer treatment center or by the publisher. If medical or other expert assistance is required, the services of a competent professional person should be sought. We reserve the right to refuse advertising. Reproductions of any information appearing in this publication in whole or in part cannot be made without the express written permission of the publisher. ‘We’ refers to the name of this Magazine and Real Intent Media LLC. Graphic Credit: www.freepik.com. Copyright 2015 - Happy Chemo! LLC. All rights reserved.


PREVENTION

By Geri Taylor | Contributing Writer

MORE THAN 100 TYPES OF CANCERS HAVE BEEN IDENTIFIED,

with the most common being carcinomas, or those that originate in tissues which either cover surfaces or line internal organs. Carcinomas account for 80 to 90 percent of all cancer cases and are divided into two major subtypes: adenocarcinoma, which develops in an organ or gland, and squamous cell carcinoma, which originates in the epithelium (surface layer of cells), often the skin. Examples of carcinomas include cancers of the breast, prostate, lung, intestine, skin, pancreas, liver, kidneys, and bladder. Skin cancer is the most common cancer, with 1 million people in the U.S. diagnosed each year with some type of the disease. Skin cancer is broken down into three major types: basal cell carcinoma, squamous cell carcinoma and melanoma, the first two being grouped together as non-melanoma skin cancers. Basal and squamous cell carcinomas may

Utah has the highest rate of new melanoma skin cancer cases in the country, according to the Utah Department of Health 4 UtahCancerConnections.com

be malignant but are unlikely to spread to other parts of the body, and may be locally disfiguring if not treated early. According to WebMD, a small but significant number of skin cancers are malignant melanomas, a highly aggressive cancer in which cells within moles become malignant and tend to spread to other parts of the body. Melanoma is the most deadly type of skin cancer and accounts for about 75% of all skin cancer fatalities. The American Academy of Dermatology sponsors Melanoma Monday and seeks to educate the public on the warning signs of a possible malignant melanoma. The aim is to raise awareness about melanoma and encourage people to examine their skin regularly and seek medical advice if signs of a malignant mole are found. Melanoma is more common in people with white, fair skin and those who have experienced high levels of UV exposure. Sun burns, often experienced during childhood, and the use of sun beds are two risk factors associated with

melanoma, however, early detection and treatment is associated with a much higher rate of survival. While melanoma was thought to be less common among the skin cancers, there seems to be an increase in the incidents of melanoma in recent years. It is estimated that one in five Americans will develop skin cancer in their lifetime, but it is highly treatable when caught early. The five-year survival rate for people whose melanoma is detected and treated before it spreads to the lymph nodes is 98%. Yet, sadly, one American dies from melanoma, the deadliest form of skin cancer, almost every hour. To reduce the risk of skin cancer, the Centers for Disease Control and Prevention recommends wearing a hat, sunglasses and protective clothing and using sunscreen with an SPF of at least 15 Help make a difference. Wear orange for Melanoma Monday – May 4th and make sure you, your family and friends know the warning signs of a deadly but preventable disease.

WATCH FOR THESE WARNING SIGNS AND REMEMBER: ABCDE

A

D

B

E

Asymmetry: is the mole asymmetrical? If you imagine a line drawn across the center of the mole, if the two halves do not match then they are considered asymmetrical. If you have an asymmetrical mole, seek medical assistance.

Border: does the border or edge of the mole look uneven? If so, please seek medical advice.

C

Color: is the mole one uniform color? If there are several colors or shades of a color within a mole this could be a warning sign. Seek medical assistance.

Diameter: how big is the mole? Melanomas often have a diameter of 6mm (1/4inch) or more (diameter is the length across the mole). Evolving: has the mole changed in shape, size or color? Have you noticed any other changes such as bleeding, itching or puss coming from the mole? These may be signs of a malignant mole so seek medical advice.


Food For Thought

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A 2012 study listed on the National Center for Biotechnology Information website shows that when 6-gingerdiol was metabolized inside lung cancer cells, it killed up to 76% of the cancer cells tested. Researchers also indicate that testing shows ginger extract is extremely toxic to prostate cancer, pancreatic cancer, breast cancer and leukemia in lab studies. While addional research is needed to determine the role 6-Gingerol will play in future cancer treatments, many reputable cancer treatment facilities recommend the use of ginger as a food source due to its proven function as an anti-inflammatory agent. A study carried out by Suzanna M. Zick, N.D., M.P.H. at the University of Michigan Medical School found that Ginger Root Supplement administered to volunteer participants reduced inflammation markers in the colon within a month. Inflammation of the colon is a precursor to colon cancer. Dr. Zick explained that by reducing inflammation in the colon a person reduces their risk of developing colon cancer. Another study by the University of Rochester Medical Center found that ginger supplements administered alongside anti-vomiting medications can reduce chemotherapy-induced nausea symptoms by 40%. Ginger is available in the form of tablets, crystals, and powder. It is also made into tea and is available as dried or fresh root. While there are no known significant food or drug interactions associated with ginger, heartburn and bloating has been reported by some individuals. Sources: http://www.ncbi.nlm.nih.gov http://medicalnewstoday.com

Ginger Honey Lemon Tea Prep Time: 5 mins • Cook Time: 5 mins • Serving Sz: 1 cup INGREDIENTS Serves 1 1 cup water 1-inch piece ginger root (or more, to taste), peeled and sliced into thin slices 1/2 whole organic lemon 1 teaspoon honey, or to taste Method Peel the ginger root and slice it into thin slices. Bring the water to a boil in a saucepan. Once it is boiling, add the ginger and organic lemon. Cover saucepan and reduce to a simmer for 15-20 minutes. Strain the tea. Add honey and and additonal lemon to taste. UtahCancerConnections.com 5


Fighting for the

RIGHT TO TRY By Geri Taylor | Contributing Writer

The recent passage of HB94 was a bittersweet victory for Jonathan Johnson, initiator of Utah’s ‘Right to Try’ bill. After losing his father to leukemia, Johnson learned about Colorado’s recently passed bill that addressed the very matter he had been dealing with – obtaining investigational drugs for the terminally ill. Johnson’s father was diagnosed with leukemia three and a half years ago and after going through chemotherapy, was pronounced cancer free. Six months later the cancer returned and he opted not to do another round of chemo. Johnson senior had heard of an experimental drug being tested for leukemia patients and asked his oncologist to help him obtain the drug. He was hoping to not only help the pharmaceutical company in its testing, but possibly extend his own life. The doctor denied his request. It is understandable why doctors are hesitant to spend approximately 100 hours it takes just to process the application paperwork, particularly with the high possibility the FDA will not approve the application. This experience, coupled with Colorado’s ‘Right to Try’ law, gave Johnson the inspiration and momentum to craft a similar bill in Utah, a personal journey that was motivated by offering an option to terminally ill patients his father didn’t have during his own battle with cancer. Representative Gage Froerer (R-Huntsville) sponsored the bill and Senator Evan J Vickers (R-Cedar City) sponsored it on the Senate floor. The general description of the bill reads: “This bill amends provisions related to investigational drugs and devises and provides that a terminally ill patient may 6 UtahCancerConnections.com

obtain an investigational drug or device from the drugs or device’s manufacturer under certain circumstances. It exempts certain conduct from the definition of unlawful and unprofessional conduct or a physician who administers an investigational drug or uses an investigational device to treat a terminally ill patient; allows an insurance company to deny, under certain circumstances, coverage to an individual who is treated with an investigational drug or device; and provides that certain health care providers are not subject to civil or criminal liability or licensure sanctions for treating a patient with an investigational drug or device.” In essence, this bill allows an eligible patient, meaning someone who has been diagnosed with a terminal illness by a physician, to deal directly with a pharmaceutical company without FDA clearance. The investigational drugs must have already passed the first phase of testing, which proves the drug will not kill the patient. However, they need not have been through the often decade-long approval process or proven to be effectual. The law also has a provision to make experimental drugs more accessible by requiring that pharmaceutical companies can’t make a profit on them. Those opposing the bill have criticized it for being a solution out of reach to the poor. Johnson states there is a little known program available through the FDA called Expanded Access, or

“compassionate use”, which provides availability of investigational drugs outside of clinical trials. (For more information go to www.fda.gov) He has also created his own funding operation under the Right to Try Foundation, which will help those in Utah who lack the needed funding to purchase experimental medications. As stated on their webpage, the foundation’s purpose is “to provide financial assistance for terminally ill patients purchasing lifesaving drugs still in the FDA approval process. All money raised at the event will help families unable to cover the cost of these drugs.” Learn more about Utah’s ‘Right to Try’ bill at www.righttotryfoundation.com. A fundraising event supporting the Right To Try Foundation is scheduled for May 8th from 6:30-8:30, 1509 Military Way in Salt Lake. For more information visit their website at www.righttotryfoundation.com.


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Setting a Meaningful Goal

Each year I schedule a physical and mammogram around my birthday – a gift that helps me stay on top of the game. By the time this is published I will have these basic maintenance chores behind me. No matter what they find, I will be better off knowing and moving forward, with an understanding of what actions I need to take to stay healthy. If I’m able to accomplish all that is asked of me, then I have made a difference for the good.

I now have my mother’s doctor visits on the calendar as well, which is actually beneficial to her and me. I think as we age and changes occur, our good habits become a blessing to us. We take for granted the well-care we have in this country and perhaps the sick patient care as well. I didn’t have health insurance for a few years but I had a wonderful doctor who charged me base rates the few times I had to visit him. What a wonderful gift that was – good people who are not just there for the dollar. It is time to bless and pay it forward.

When I have the opportunity to help someone, it is such a boost for I truly enjoy serving my fellowman. Often when we make choices, the first choice is to do what is right. As a business owner, it wouldn’t be wrong to price my merchandise with higher mark-ups, however, it just feels wrong. I may never be rich because of my standard to give the most honest price I can afford, but my goal is a little different. I recently read this statement that hit home: “ To live content with small means; to seek elegance rather than luxury, and refinement rather than fashion; to be worthy, not respectable, and wealthy, not rich; to listen to stars and birds, babes and sages, with open heart; to study hard; to think quietly, act frankly, talk gently, await occasions, hurry never; in a word, to let the spiritual unbidden and unconscious, grow up through the common – this is my symphony.” William Ellery Channing. We all fall short of our moral goals at times, but knowing what you aspire to

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be will help you reach to become your best self. Over the years I have studied and gleaned from the old and young. From the understanding of the mind and heart I have changed and developed into who I am right now and believe improving ourselves is a life-long quest. Our human nature is to protect rather than right ourselves, to be right instead of sure, and to get ahead in spite of the hurt it may cause others. I have learned that we prideful humans will ultimately be affected by our negative behaviors. My challenge is to make your goals moral this year. Choose to be better each day and let pride be squashed and humility thrive, for this will create a happier, freer you. This year give your morals a physical and make sure you are healthy inside and out. Good luck. Good karma. God bless, strengthen and build your health in 2015. Melanie Call Owner/Operator Roberts Wigs and Fresh Hair I’m here for you. UtahCancerConnections.com 7


Local Support

Breast Cancer Supplies Under One Roof By Jamie Jensen | Contributing Writer

When you open the door to Women ReStore, you are quickly greeted by Misty or Nola, the co-owners of the only post-mastectomy shop in Utah County. After a quick chat to assess your specific needs they will direct you to the right products for you. Their approach is very friendly and knowledgeable and while their store is a cozy boutique, you will find many different items to satisfy all categories of post-mastectomy need. Beauftiful Bras: If you are in need of a postsurgical pocket bra, sports bra, nursing or larger size bra, Women ReStore offers a selection of Anita bras to meet your needs. Chemo Care Kits: When a loved one is diagnosed with cancer, it is often confusing to know how to help and what products will be beneficial to them. Misty has put together a kit that contains multivitamins, probiotics, barley grass supplements, Shakeology protein powder mix, vitamin D3, vitamin B-12, Tom’s Toothpaste, Biotene mouthwash, Pepto-Bismol, Alka-Seltzer Fruit Chews and Bert’s Bees Beeswax Lip Balm. Health and Beauty: Women ReStore carries the most popular oils by Butterfly Express including Tranquility, Paine and Breezy. Take a look in the comprehensive guide to see what might work for you. Several lotions are available that help with scar reduction, skin firmness and post-radiation burns and irritation.

Breast Prosthesis: Women ReStore carries full and partial breast Anita and Amoena forms and also now offers brand new custom forms by Virage breast forms. These form are custom handcrafted, complete or partial breast prostheses made from a digital scan of your chest wall. The Virage forms come in various styles and colors to fit the individual. Ask for details. Bathing Suits: Mastectomy bathing suits that combine both ease of use and fashion fun can be hard to find. There are many online choices but it is nice to come into the store, try on the adorable suits Women Restore carries and find the best one for you. Custom Handmade Items: Women ReStore carries custom chemotherapy robes and hats, both in a variety of colors and prints. The robes allow easy port access while helping the patient to feel modest and comfortable during treatments. Pink ribbon print kitchen aprons and fashion scarves are also available.

Breast Cancer Detection: To aid in your self-exams, Women ReStore sells the Breast Angel, an innovative hand-held device for self-examination and self-therapy of the breast. According to their website, Breast Angel sends out a bright-red beam, shown to be effective in detecting breast tumors and other breast abnormalities, achieving prevention of breast disease. 8 UtahCancerConnections.com

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The Power of Exercise for Cancer Patients in Treatment By Anne Kieryn, M.D. | The Breast Care Center at Jordan Valley Medical Center

Cancer treatment is tough on the body and anyone who has experienced it firsthand will likely attest to that. Although many types of treatment can leave you feeling rundown, maintaining some form of physical activity during and after treatment can improve your physical abilities and overall quality of life. While it is important to listen to your body and limit activity on days you are feeling especially fatigued, inactivity over a long period of time can lead to muscle loss and reduced range of motion. Above all, it is imperative to discuss any new exercise and nutrition plans with your doctor. He or she can provide recommendations based on your specific type and stage of cancer, your cancer treatment plan, and your current strength and fitness level. Beginning An Exercise Program During Treatment Determining the type of exercises and level of intensity depends on your personal stamina and health. In general, if you begin an exercise program during cancer treatment, you may need to start at a lower intensity for a shorter amount of time, working up from that baseline. For patients who were fairly sedentary before beginning cancer treatment, low-intensity exercises such as light walking, beginner’s yoga, and light stretching routines may be the ideal place to start. If you are having a difficult time finding the right activity for you, it may be helpful to discuss your fitness goals with a physical or occupational therapist. These healthcare professionals can work with you to establish a safe and enjoyable exercise program and provide guidance when you are ready to increase intensity or need adaptations based on problem areas and side effects. Remember, before beginning an exercise program: • • • •

Talk to your doctor Assess your current energy level and strength Match an exercise to how you are feeling Aim for exercises that help you feel energized and not drained afterward

10 UtahCancerConnections.com

Potential Benefits Of Exercise During Cancer Treatment Studies show that maintaining your fitness level through regular exercise during cancer treatment yields both physical and emotional health benefits, which may include: • • • • • • • • • •

Maintaining or improving physical abilities Decreasing the likelihood of muscle atrophy Improving core strength and balance Decreasing the risk of heart disease Improving circulation Lessening symptoms of nausea and fatigue Decreasing the risk of neuropathy Controlling weight Reducing anxiety and depression Improving overall quality of life

Yoga And Cancer Treatment Practicing yoga before, during, and after cancer treatment can be a useful tool to relieve some symptoms and side effects. Although there are many different types of yoga, the most common form practiced in the U.S. combines physical movements, breathing exercises, and meditation. Some evidence shows that a structured yoga practice can alleviate stress and anxiety, achieve relaxation, boost mood, improve sleep, increase core strength and flexibility, and provide an appropriate amount of exercise. Additionally, there are some yoga classes available that are designed around the specific needs of people with cancer. Whether you decide to seek out cancerspecific yoga classes or a regular studio in your area, many people enjoy the sense of community and emotional support that come with this type of exercise.

Precautions For Patients In Cancer Treatment Recovering from exercise can be difficult if the body is overworked, so it is important stick to your doctor’s recommendations. While regular exercise can benefit patients in treatment, there are several precautions you must consider before starting or continuing an exercise program. • • • • • •

Limit or halt exercise if you have a low red blood cell count Stay away from public gyms if you have a weakened immune system Do not exercise if you experience pain or nausea Do not overload your body if you feel extremely fatigued Avoid using heavy weights or exercises that place a great deal of stress on your bones Speak with your doctor if you experience shortness of breath at rest or during low-intensity exercise, become dizzy, notice pain or swelling, or notice unexplained weight loss

The Breast Care Center at Jordan Valley Medical Center Centrally located in a convenient and comfortable environment, the Breast Care Center provides a full range of preventive, diagnostic, and treatment services. The Breast Care Center features a multidisciplinary team of physicians, nurses, technicians, counselors, and educators combined with the latest advancements in medical technology to ensure the highest quality in care. For more information about the Breast Care Center at Jordan Valley Medical Center, call 801-562-3171 or visit jordanvalleymc.com.


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WORLD NO TOBACCO DAY MAY 31, 2015 By Jamie Jensen | Contributing Writer

Tobacco Use Causes More Than 6 Million Deaths Each Year Every year on May 31st, the World Health Organization and their partners promote World No Tobacco Day in hopes of raising awareness of the numerous health risks associated with using tobacco products and to push for policies that will reduce tobacco use across the world. While smoking in the United States has declined 3 percent from 2013-2014, the statistics for tobacco related deaths are shocking. Worldwide, tobacco use causes more than 6 million deaths per year, and current trends show that tobacco use will result in more than 8 million deaths annually by 2030. In the United States, tobacco use is the leading cause of preventable death, contributing to more than 480,000 deaths per year, including 41,000 deaths from secondhand smoke exposure. This translates to about 1,300 deaths every day. Approximately 14 million major medical conditions are attributed to smoking, including heart disease, stroke, cancer, preterm birth, low birthweight, and premature death. In the midst of all this available information, youth are still tempted to pick up their first cigarette. If smoking persists at the current rate among youth in this country, 5.6 million of today’s Americans younger than 18 years of age are projected to die prematurely from a smoking-related illness. The Center for Disease Control explains this represents about one in every 13 Americans aged 17 years or younger. 12 UtahCancerConnections.com

To combat these numbers, The WHO has stated that for World No Tobacco Day 2015, they are calling on countries to work together to end the illicit trade of tobacco products. This illegal trade of tobacco products is a major global concern, causing problems in many areas including health, legal and economic, governance and corruption. The illicit tobacco market may account for as much as one in every 10 cigarettes consumed globally, according to studies, including information supplied by the global customs community. What does this mean for us?

young users by not displaying health warnings, and sometimes involve children in illegal selling activities. By highlighting this illicit area of tobacco production, the WHO is hoping members of the public will join the WNTD awareness-raising campaign, including through social media, to amplify messages and advice that governments and the WHO will be issuing to curb the illicit trade of tobacco products. Get support and resources to quit smoking at WayToQuit.org

In December, Utah was announced as the fifth healthiest state by America’s Health Rankings®, a state-by-state analysis performed by the United Health Foundation. Since 1990, America’s Health Rankings has been analyzing the health of our nation by focusing on four categories: behaviors, community and environment, clinical care and policy. Utah received high marks for having the lowest prevalence of smoking in the nation. In the last two years, smoking decreased by 13 percent from 11.8 percent to 10.3 percent of adults, the lowest rate in the nation. However we still need to be diligent and informed when it comes to the problems with illicit tobacco products in and around our communities. Illicit tobacco products hook young people and low-income groups into tobacco experimentation and use because they are more affordable. They also mislead

2015 LUNG FORCE Walk

will be held in Salt Lake City on Saturday, June 13 at Sugar House Park (1400 East, 2100 South, Salt Lake City, UT 84106). The funds raised at these events are used for research, advocacy, education and awareness. Register and learn more about the Utah LUNG FORCE Walk online at: www.lungforce.org/walk


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Many women are unsure of their options and future needs after having a mastectomy. Carol’s Mastectomy Shoppe has been serving women in the intermountain area as a family owned business for 32 years and understands all aspects of post mastectomy recovery. Each of our ABCOP Certified mastectomy fitters, who are breast cancer survivors themselves, can personally relate to the breast cancer journey. Whether you have had a single or double mastectomy, or lumpectomy, our helpful

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staff will provide direct insight into healing tips, the best bras, breast forms, support garments, swim wear, how frequently bras and forms need to be replaced, and much more. Carol’s extensive relationships with quality suppliers like Amoena, American Breast Care, Anita and TruLife, to name a few, means that customers are able to choose between a wide variety of products to ensure the best fit, style and comfort level for each woman. Thanks to The Women’s Health and Cancer Rights Act (WHCRA) signed into law on October 21, 1998, any external

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Nominate a survivor (or yourself) by submitting a close-up photo and survivor story (please limit to one page). Applications can be dropped off to 4046 Highland Dr. #115 Salt Lake City, UT 84124 or emailed to nomination@survivorbrightsmiles.com. Get official rules and details online at www.surviviorbrighsmiles.com

Submit Nominations Before May 31, 2015!

breast prostheses (breast forms that fit into your bra) that are needed before or during the reconstruction process are covered by most insurance providers. As an Medicare accredited facility, Carol’s holds over 12 contracts with major and minor insurance companies and can file insurance claims on post-mastectomy supplies for customers. A co-pay may be required by some insurance companies, but Carol’s friendly staff walks each customers through the entire process to make sure individual needs are met. The focus of Carol’s always has been and always will be to provide ladies with high quality products and service that will enhance their lives during a difficult time. With two independently owned and operated stores in Utah, customers are close to the support they need. Visit our store on 3165 S. Main Street in Salt Lake City or swing by our St. George store located at 330 E. 600 So. next to the Dixie Regional Medical Center.

Before

Before

After

After

Highland Heights Dental provides free consultations or second opinions for cancer patients needing to discuss oral care needs. Call 801.277.1412 for details.

www.highlandheightsdental.com

801.277.1412 Proud Sponsor of the

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www.survivorbrightsmiles.com UtahCancerConnections.com 13


KNOWLEDGE

Innovations in the

TREATMENT

of Acute Leukemia By Finn Bo Petersen, MD

Intermountain Healthcare’s Blood Cancer Center and Bone Marrow Transplant Program at LDS Hospital are innovating and elevating the treatment for acute blood cancers Being diagnosed with cancer is stressful to anyone. The ambulatory nature of treating an acute leukemia diagnosis only adds to that difficulty. Advanced blood cancers, like acute leukemia, often present themselves as medical emergencies. They require immediate and profound treatments in order to be successfully managed. I often describe acute leukemia treatment similar to that of a serious auto injury. Intermountain Healthcare’s Blood Cancer Center at LDS Hospital functions like an emergency department for newly diagnosed acute leukemia patients. It’s open 24/7, 364 days a year. Patients are often urgently transferred to the Center from emergency rooms or urgent care facilities throughout the Intermountain West. The Center is staffed with a highly specialized team of physicians, nurses, pharmacists and hemato-pathologists (pathologists specializing in blood, lymph node and bone marrow disorders). The team uses specialized molecular testing of the cancer cells to determine the unique sub-type of acute leukemia the patient has and then designs a treatment just as unique for each patient. 14 UtahCancerConnections.com

Many patients with blood cancers will ultimately need a blood or bone marrow transplant to be cured. The treatment and care of acute leukemia is very similar to the care of any patient in need of bone marrow transplantation (also called peripheral blood stem cell transplantation). This similarity led Intermountain Healthcare in integrating its Blood Cancer Center with its Blood and Marrow Transplant Program. This integration has made it possible for a patient who starts treatment for their blood cancer with the Blood Cancer Center team to continue their treatment with the same doctors and nurses they started their treatment with. Intermountain Healthcare’s Blood and Marrow Transplant Program is finding new ways to match bone marrow donors and recipients. This new research is increasing the chance of finding a matching donor. Previously it was thought that a donor had to be perfectly matched for the transplant to be successful. Intermountain, along with a few of the nation’s other leading transplant centers, has been able to safely use half-matched siblings, a biological child or parent, as a donor with similar outcomes as when using a fully matched donor. These half-matched transplants, called haplo-identical, are revolutionizing access to transplantation. Before safe

haplo-identical transplants, a patient in need of a blood or marrow transplant treatment would only have 30-70% chance of finding a perfectly matched donor. If the patient was in an ethnic minority the chance was even lower. Haplo-identical transplants make it so that nearly 100% of those in a need of blood and marrow transplant will have a donor and be able to receive safe transplants. The Intermountain Blood and Marrow Transplant Program and the Blood Cancer Center are steadily growing. It currently treats more than 100 patients a year for acute leukemia, and performs more than 100 blood and marrow transplant treatments per year. This number is expected to rise steadily in the coming years as the reputation of the state-of-the-art treatments able to be provided by the Center continues to expand. Dr. Finn Bo Petersen is a hematologist in Salt Lake City, Utah and is affiliated with multiple hospitals in the area, including Intermountain Medical Center and LDS Hospital. He received his medical degree from University of Copenhagen Medical School and has been in practice for 36 years. He is one of 12 doctors at Intermountain Medical Center and one of 7 at LDS Hospital who specialize in Hematology.


Caffeine-Free

TIPS for increasing ENERGY By Dr. Todd Cameron | Cameron Wellness Center

Use The 50/10 Rule: For every 50 minutes of sitting get AT LEAST 10 minutes of movement. Walk around, stretch, run or dance to get the blood flowing. Play In The Dirt: Getting your hands in the dirt can help you relax and let go of stress. Touching the earth literally grounds you (electrically!).

Almost 90% of Americans drink some form of caffeine every day, usually in the form of energy drinks and coffee, looking for a boost in energy. Research shows, however, that small amounts of caffeine does not make a significant difference in energy production or utilization. The truth is, consistent and high levels of caffeine can produce insomnia (and reduced growth hormone production), increased muscle tension, digestive problems and mood swings. Here are a few caffeine-free tips for energy that will keep you from grabbing the next cup.

Drink More Water: Without proper hydration our organs, glands and tissues (including our BRAIN!) suffer. The world becomes hazy and we become lazy.

Eat A Good Breakfast: Fuel your body within the first 1/2 hour of waking. Even apple slices or a small amount of yogurt can boost your energy. Excite Your Brain: Got something you’ve always wanted to do? Surprise yourself! Put it on your calendar, start planning, and make it happen. Sing A Favorite Song: In the shower or while you’ re being active… there’s nothing like belting out your favorite tune to bring your mood up!

Laugh Out Loud: Boost your endorphines and your mood by lauging at your favorite comedy, keep them around in case you need a lift! Laughter and tears are BIG medicine!

Just Add Spinach: This is an old-time remedy for relieving fatigue, and we all know what it did for Popeye! Spinach is packed with amazing nutrients, therefore it was chosen as Popeye’s strength enhancer in 1932.

Eat Throughout The Day: Eating large amounts and getting too hungry in-between meals leads to highs and lows in our moods that are unnatural. It’s much better to eat small amounts throughout the day.

Go Easy On Carbs: Processed carbs tend to shoot blood sugar sky high. Mood, energy and health in general suffer when sugar and starch are regularly consumed.

Additional health tips can be found at CameronWellnessCenter.net

UtahCancerConnections.com 15


A Life Worth Living

Take a microscope to Ryan and Jennifer Berube and you will view evidence of hardship and disease, but step back and you will see nothing but enduring love, laughter and unbreakable spirits.

A couple both battling illness find strength in each other By Jamie Jensen | Contributing Writer

Jennifer, who grew up in Midvale, admits that dating when you are a little older and have kids to bring into a relationship, can be difficult. For her, she also had a health history to add into the mix. In January, 2011, at the age of 30, Jennifer was diagnosed with stage 2A ER positive, invasive ductal carcinoma breast cancer, just after giving birth to her third child Brynlee.

Jennifer endured four rounds of chemo and nine surgeries which also included a hysterectomy. Recovery, as one can imagine, was difficult for Jennifer and her three small children, but her mother was an amazing help. She would fly in every two weeks for Jennifer’s chemo treatment and came into town when she faced going through her double mastectomy.

She credits Brynlee for saving her life, convinced if she had not gone through pregnancy and childbirth she might not have caught her breast cancer as early as she did.

Another blessing in her life was a group of friends, more like sister-warriors, who kept her spirits high. The Young Survivor Sisters, a non-denominational breast cancer support group in Utah for women who are diagnosed in their twenties, thirties and forties, have been a rock in her life.

Now divorced and taking care of three young children, Jennifer faced the most difficult challenge of her life, breast cancer. 16 UtahCancerConnections.com


“We knew the struggles we were going to have as a couple with Jen’s issues from the cancer and with my disability, but we knew the rewards that would come with it as well.”

She would go on to serve as the YSS president from 2013-2014. “To know that these amazing women are all in your corner and can relate emotionally and physically to what you have gone through was a life saver for me. They are the ones who would bring my spirits up when I was down during the process of cancer. I have not only friends for life but I have sisters for life,” Jennifer explains. Fast forward to 2015 and you will now see a strong, vibrant survivor. “My status now is almost four years cancer free and I am trying to keep it that way,” Jennifer says. With the addition of Ryan to her life, she is not alone in that journey. Ryan and Jennifer met in September 2013 on an online dating site, ldssingles. com. It was a meeting that almost didn’t happen. Jennifer had decided to give the website one more month and then was going to cancel her membership. Ryan had wanted to cancel but missed the deadline and got an automatic renewal for six months. Two weeks after his renewed membership started the two started talking. Jennifer wasn’t even aware that Ryan was in a wheelchair until halfway into their conversation. “I heard a noise in the background, asked what it was and he told me it was his wheelchair. I just continued on with the conversation. I have never seen Ryan as the man in the wheelchair, he has always been an amazing person regardless of the chair or the trials he has been given,” she shares. That next week the two went on their first date. Jennifer said that right away she knew it was meant to be. On May 3, 2014 the two were married in the LDS Temple in Bountiful, Utah and their story of strength began.

“I think we strengthen each other through the trials we have been through separately,” Jennifer explains. “We have both been blessed to be able to keep positive attitudes through it all and inspire others because of it. I could not imagine life without Ryan and the lessons he has taught me - that everything could be worse and to stay positive. No matter what, he always has a smile on his face and has the best attitude.” Ryan, an Odgen native, was born with Duchenne Muscular Dystrophy, a recessive X-linked form of muscular dystrophy that affects around 1 in 3,600 boys. This disease results in muscle degeneration and eventual death, usually by age 25. But Ryan has defied those odds. Ryan was diagnosed when he was three when his mom realized how hard it was for him to go up the stairs. With time the disease worsens, but Ryan’s attitude is still positive. He shares that it is his family and friends who have helped him keep this positivity the whole way through. “My parents were originally told that I wouldn’t live past my early twenties and I am now going on 34,” Ryan explains. “I don’t think it has really held me back in life. Everyone around me treated me like I was normal regardless of my inabilities to do things and being in a wheelchair.” A typical morning for Ryan is a lot more time consuming than it is for the average person. Ryan tries to get as much sleep as possible to minimize symptoms of the disease. He also works part-time for Associated Foods, so depending on if he is working that day, getting ready to face the day can take anywhere from two to four hours for Ryan and his family.

Jennifer shares that the kids continually ask him if he would rather walk, and Ryan’s reply is that he is just fine with where he is at. What an amazing answer from someone who has to have so many things done for him on a daily basis. “I admire that he took on someone who had been through such a hard time and needed to find herself again, that he took on three kids that are biologically not his but loves and treats them like they are his own,” Jennifer says. The two are raising Jennifer’s three children, eight-year-old Nicole, Carter, who is six and Brynlee, who is now four years old, together in a house full of love and laughter. “When Jen came into my life I felt grateful. It felt like a dream had come true and that she was the one for me. I felt that the empty hole that was in my heart was filled as I now get to be a husband and a father,” Ryan shares. As with many married couples, Ryan and Jennifer face the daily duties of parenthood, work, church callings and personal pursuits while diligently striving to maintain a pleasant environment in their home. Ryan swears they don’t have a secret to happiness, yet he is confident that the struggles they’ve faced in life have provided a deeper understanding of what is truly important and how to let go of minor irritations. “I think we are so happy because we came into each other’s lives at the right time and knew the struggles we were going to have as a couple with Jen’s issues from the cancer and with my disability,” Ryan continues, “but we knew the rewards that would come with it as well, and that is what makes it all worth it.” UtahCancerConnections.com 17


Then, Now & Moving Forward

Caring for You

Comprehensive Healthcare for Women of All Ages Davis Hospital and Medical Center offers high-quality, personalized care for women of all ages. Our hospital has served our community for 40 years, and we would consider it a privilege to care for you and your future family members. Whether you need a routine exam or specialized maternity services, we’re here to make your experience as positive as possible in a comfortable and safe environment. Our women’s services include breast care, cancer treatment, maternity care, pelvic floor disorders, gynecology, bone density screenings, community education and more.

For more information visit us on line at DavisHospital.com or call 866-431-WELL (9355).

DavisHospital.com | 1600 West Antelope Drive, Layton, UT 84041

Find, follow and watch us:


According to the American Cancer Society, breast cancer is expected to account for 29 percent of all new cancers among U.S. women in 2015. If you or a loved one receive a breast cancer diagnosis, it can be an extremely emotional, confusing, and frightening time that will likely prompt a host of questions and concerns. However, no one should navigate the cancer care journey alone. When a woman faces the uncertainty of a cancer diagnosis and treatment, having an experienced advocate by her side throughout the entire process can make a world of difference. This is the fundamental job of a cancer patient nurse navigator. Across the board, Davis Hospital and Medical Center considers the hospitalbased nurse navigator program an important component in the patient care continuum. Each nurse navigator is a trained and licensed professional who is connected to the multidisciplinary team of surgeons, radiologists, oncologists, physical therapists, pain management specialists, and financial specialists. As liaisons, nurse navigators have the unique ability to refer patients to the appropriate specialists—minimizing wait times between biopsy, diagnosis, treatment, and adjuvant therapy—and ensure continuity and coordination of care. Additionally, nurse navigators function as an emotional support system for the patient and her family, mobilizing resources and educational material and assessing a patient’s necessary level of overall support.

With every breast cancer diagnosis at Davis Hospital and Medical Center, a nurse navigator steps in to provide a wide range of services including but not limited to: • • • •

Scheduling and managing appointments Explaining test results and terminology Helping patients make informed medical decisions Assisting with financial and insurance issues Communicating with all members of the health care team Providing emotional support and counseling Discussing treatment and care options Minimizing wait times between diagnosis to treatment and beyond

Breast Care Services at Davis Hospital and Medical Center Davis Hospital and Medical Center maintains a community-centric approach to comprehensive breast cancer care. Women in northern Utah have access to advanced screening and treatment options in a comfortable and convenient location. As a full-service breast care center, Davis Hospital and Medical Center’s facilities include: •

3D mammography

Digital mammography

Breast ultrasound

Breast MRI

Minimally invasive breast biopsy

DEXA scan (bone density scan)

Multidisciplinary approach to breast cancer treatment

Essentially, nurse navigators try to eliminate the gaps in cancer care, improving patient satisfaction and confidence.

Certified breast cancer nurse navigators

Genetic BRCA testing

Since the 1990s, nurse navigator and patient advocacy programs have developed and improved, changing the delivery of cancer-related health care. Many hospitals around the country offer some degree of patient navigation, and studies show that patients who work with navigators are more likely to rate their care higher, adhere to follow-up care recommendations, and report fewer problems.

For more information about Davis Hospital and Medical Center’s breast care services and nurse navigator program, please call 801-807-7770 or visit DavisHospital.com.

• • • •

By Angelina Padilla, RN, BSN, OCN Patient Navigator for Oncology Services at Davis Hospital and Medical Center

UtahCancerConnections.com 19


Shifting from Fear to Peace By Kathy Truman | Contributing Writer

By Kathy Truman | Contributing Writer

Emotions play a primary role in our body’s response to fear. We all experience emotions, even yucky ones, so we need to decide if we are a toilet or an outhouse. Do we let emotions pile up until we feel like we’re in an outhouse, or do we flush them away and replace them with something clean and new. Today I will introduce you to ways you can flush away negative emotions and replace them with new, positive ones. In the first 17 seconds that our brains receive stimuli and experience a corresponding emotion, there is an involuntary response to that emotion. We can then choose to continue to feel that emotion or shift into a different way of feeling. This is a vitally important skill because we can experience what is referred to as an ‘emotion addiction.’ Whenever the brain experiences a particular emotion, it concocts a specific ‘cocktail’ of brain chemicals, which then bathes the brain. Our brain is a creature of habit and If it continues to be bathed in the same cocktail day after day, it becomes very comfortable. This is referred to as ‘homeostasis’ – it feels like a normal way 20

UtahCancerConnections.com

of being. If the brain is continually fed with the chemical cocktail of fear, it will actually crave things to fear so it can get its ‘fix’. When you are not in the emotional state of fear, you will actually have a brain chemical withdrawal! Have you experienced the feeling of being flooded, like you’re being drowned by your feelings? This can make a difference in how you react to people or situations; with anger or with a calm response. If your anger tank is filled to an 8 out of 10, without ever flushing, then you are more likely to explode with rage when experiencing an irritation, than if you are at a 1 or 2. What can we do to flush away piled-up negative emotions? If emotions aren’t processed and lessons learned from the experience that created them, they merely show up later in different ways. Life is a growing, strengthening, and refining process that requires effort to understand the inner workings of our emotions. We can talk about our emotions and likely feel better, but if we don’t go to the root of the emotion it’s like mowing down a field of weeds – it looks fine today, but sooner or later the weeds pop back up since they haven’t been pulled out by their roots.

Emotions have energy in our bodies and need to be acknowledged. The more we discover the how’s and whys of our emotions, in addition to the relationships involved, the more power we gain to overcome and control the emotional flooding that occurs. Emotional traumas experienced as a child are like returning to one’s childhood home and realizing it’s much smaller than remembered. As an adult this might be totally dismissed, but to a child, an emotional upset can be devastating and they have to make a decision as to how they will survive it. Decisions made in times of high emotion become our rule of thumb from then on. Look back at your own childhood emotional traumas. Did you react by withdrawing, crying and pouting, attempting to please, or rebelling? Chances are you react to your present-day traumas in exactly the same way. Ask yourself how it served you since we all do what works for us. Then evaluate what it has cost you. With this knowledge you can decide if your way of reacting to emotional crises is still working or if you would like to make another choice. (Continued on page 22)


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Cut out this card and present it at your pharmacy for discounts on brand and generic drugs.

My prescription varies from $8 – $32 at pharmacies within 5 miles of my home. By using LowestMed, I have an extra $288 a year in my Health Savings Account. -Laura UtahCancerConnections.com 21


Shifting From Fear to Peace Continued From Page 20

P R E V E N T I O N • S C R E E N I N G • T R E AT M E N T • S U R V I V O R S H I P

Often the roots of our negative emotions are entangled with close family relationships, most likely a parent. We can live the rest of our lives retelling our story of victim-hood or we can visualize going back to our wounded child-self and bringing the situation to resolution so we can emotionally move forward. I recommend going back to your child-self as the adult you are today. Look into the eyes of your inner, wounded child and give him or her love and compassion. Let her know that she is going to survive and overcome and that you have come back to help heal her past pain. Let her know this chapter of her life is complete and that she doesn’t have to remain alone in the past any longer. Give your inner child permission to speak her truth to whoever had offended or hurt her. Allow her the opportunity to see the situation from your adult perspective. Encourage her to set herself free by forgiving. Then, the most important part, watch her stand tall and reclaim her personal power and all broken pieces of her heart. We can’t change the past, but we can change our perception of the past, and that is powerful. If you were imprinted with false beliefs as a child such as: ‘you aren’t good enough’; ‘if something bad happens to you, you deserve it’; or ‘the world is a scary place’, ask yourself if these beliefs are really true, and if not, why let them control your emotions? When you have spoken your truth, forgiven and freed yourself, reclaimed your personal power and confronted your false beliefs, you are ready to flush away all the negative emotions. Remember that the toilet doesn’t stay empty, but is refilled with fresh, clean water. Always fill the void with love and light when releasing negative emotions. The body responds quite easily to symbolism. •

Hike to the top of a hill with a backpack filled with rocks. Assign each rock a negative emotion or burden and throw it as far as possible.

Write down your negative emotions and burdens on a piece of paper and shred or burn it.

Buy balloons, write your emotions on them, release them and watch them float away.

These are effective ways of releasing negative emotions, but I find they lack the power of surrendering your burdens to the Savior, Jesus Christ or to your higher power. In this way, they are not only released, but redeemed.

Cut out the LowestMed card above and present at your next pharmacy visit to get discounts on all FDA approved drugs. No enrollment forms or membership fees required. No limitations on times used.

22 UtahCancerConnections.com

Shifting your emotions from fear to peace will lighten your load. May you feel the transformative power of flushing away the negative and refilling with the positive and truly feel free of your emotional burdens. Kathy Truman is an energy worker, life coach, and an emotional & spiritual counselor. As the founder of Warriors at the Gate (an addiction support group), Kathy has empowered hundreds of individuals to regain strength and triumph over adversity. Kathy is the author of inspirational CD’s and is a highly requested speaker at healing conferences and retreats.


Cancer Support

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Young Survivor Sisters Breast Cancer Support Group

Where Support is Guaranteed and Boobs are Optional Young Survivor Sisters is a free, non-denominational breast cancer support group for women living in Utah who were diagnosed in their 20's, 30's and 40's. To learn more visit youngsurvivorsisters.blogspot.com or call 801.732.2707

“I’ve felt so welcome in this group and together we’re figuring it out.” - Shayla Lifting Hearts Breast Cancer Support Group (Located in Utah Valley, UT)

A non-profit organization dedicated to providing support and wellness programs for individuals and families affected by breast cancer. In our efforts to better help and mentor those who join this group, we provide… Monthly support meetings (2nd Thursday), Quarterly activities, Service projects, fundraising opportunities, Bosom Buddies one-on-one Mentoring Program Contact Us: liftinghearts2011@gmail.com Phone: 801-376-7377 Blog: liftinghearts.blogspot.com Website: lifting-hearts.com

ThyCa Salt Lake City meets on the third Saturday of each month from 11:00 to 12:30 at the IMC Jon and Karen Huntsman Cancer Center ( 2nd Floor, South Conference Room, 5121 Cottonwood St. Murray, UT 84107) Questions? Contact Chris Prestano 801-382-7THY (7849) or e-mail: saltlakecity-ut@thyca.org

“Triunfadoras”

Hispanic Breast Cancer Support Group Support group meetings are held the SECOND TUESDAY OF EACH MONTH AT 6:00 PM at the Intermountain Medical Cancer Center, 5121 Cottonwood Street, Bldg. 3 on the 2nd Floor. For more information please call: Sara Carbajal, Program Coordinator 801-265-1111 OR 801-597-1159

Young Chicks Support Group (St. George) Southern Utah Survivors are welcome to attend the Young Chicks Support Group held the 2nd Thursday of each month at Carol’s Personal Mastectomy located at 330 E. 600 S. in St. George, Utah. This group is for women diagnosed in their 20’s, 30’s and 40’s. To learn more call (435) 688-0452.

UTAH CANCER FOUNDATION OFFERS

MEN’S CANCER SUPPORT GROUP This is an open discussion group providing support, education and information for men experiencing and living with all types of cancer. The group meets the second Wednesday of each month from 5 – 6:30 p.m. at the Utah Cancer Specialists’ Cancer Center, 3838 South 700 East (northwest corner 39th South and 7th East in the big building immediately west of Zions Bank). The group frequently has a speaker, but time is always given to conversation with new members, those who have questions or needs and those who have experienced a change in their cancer or treatment. You will certainly find the support and friendship you need. Pizza and sodas are provided. Utah Cancer Foundation is a 501©-3 providing programs and services to support and assist cancer patients and their caregivers. All of our services and programs are offered free of charge.

FOR INFOMRATION ABOUT ADVERTISEMENT OPPORTUNITIES CALL 801-388-1699 UtahCancerConnections.com 23


IN LOVING MEMORY OF

Dov Siporin May 21, 1974 - March 26, 2015

“Do something you love and tell someone you love that you love them” ~ Dov Siporin

A Memorial Service 5K Color & Costume Fun Run/Walk for Dov will be held on Thursday May 7th from 7-9pm at Sugarhouse Park. Visit RunForDov.com for more details.

Photo Credit: HealCourageously.org, Jackelin Slack