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P R E V E N T I O N • S C R E E N I N G • T R E AT M E N T • S U R V I V O R S H I P UtahCancerConnections.com

2015 VOLUME 5 ISSUE 3

Making A House

A Home

See the NEW Cancer Wellness House

Also Inside: MONITORING Emotional Health

SHIFTING

REGAINING

COMPASSIONATE

What Is

From Fear To Peace Care & Guidance

An Active Lifestyle

BRACHYTHERAPY? UtahCancerConnections.com 1


Then, Now & Moving Forward

Caring for You

Comprehensive Healthcare for Women of All Ages Davis Hospital and Medical Center offers high-quality, personalized care for women of all ages. Our hospital has served our community for 40 years, and we would consider it a privilege to care for you and your future family members. Whether you need a routine exam or specialized maternity services, we’re here to make your experience as positive as possible in a comfortable and safe environment. Our women’s services include breast care, cancer treatment, maternity care, pelvic floor disorders, gynecology, bone density screenings, heart care, community education and more.

For more information visit us online at DavisHospital.com or call 866-431-WELL (9355).

DavisHospital.com | 1600 West Antelope Drive, Layton, UT 84041 2 UtahCancerConnections.com

Find, follow and watch us:


C H A N G I N G H O W YO U FEEL ABOUT HOSPICE

Hospice care assists individuals, their families, and/or caregivers achieve the best quality of life during a life-limiting illness. Learn how our team addresses physical, emotional, and spiritual needs.

SIMPLY THE BEST CARE; WHEN EVERY MOMENT COUNTS.

8 0 1 . 5 7 4 . 7 6 6 6 | W W W. R M C A R E . C O M UtahCancerConnections.com 3


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WELCOME “It ain’t about how hard you hit; it’s about how hard you can get hit, and keep moving forward. It’s how much you can take, and keep moving forward. That’s how winning is done.” - Rocky Balboa

Ding. Ding. Round Two. Greg Adamson, Tiffany Berg Coughran, Rachael Newkirk, Kendra Baum, Mrs Utah 2014 Lauren Kirton, Alishia Nelson, Polly Strother Alles.

4 6 8 9 10 11 13 15 16 17 19 20 21 22 23

LLS Man & Woman of the Year Pleasant Grove Senior Fights Cancer Self Care: The Big Picture Free Local Retreats for Breast Cancer Survivors Monitoring Emotional Health

The announcer takes the stage as the lights dim and the crowd roars. Two stand in the ring, bouncing with anticipation as energy flows into prepared muscles. Lights shine around the arena and the center mic drops from the ceiling. The energy in the room elevates as the announcer yells, “Are you ready to rumble!?” Shortly thereafter, the opponents take their places and the bell rings. The fight has begun, and the one who keeps getting up is the one who will win.

Regaining an Active Lifestyle After Surgery

Keep getting up.

Making A House A Home What is Brachytherapy?

When the round bell dings, take a seat, listen to your coach, wipe off the sweat, take deep breaths, then stand. Stand and go forward in confidence and determination that you will win and stand triumphant no matter what happens.

A Letter to Cancer

Leave it all in the ring.

Local Candidate Walks For Multiple Myeloma

Compassionate Care & Guidance Shifting from Fear to Peace (Part 4) Food For Thought Letter to the Editor Local Cancer Resources

www.UtahCancerConnections.com PUBLISHER Ginger Johnson ginger@utccmag.com

EDITOR Geri Taylor geri@utccmag.com

ADVERTISING INQUIRIES advertise@utccmag.com or 801.388.1699 Utah Cancer Connections 265 N Main St. #D252 Kaysville, UT 84037

UTCC is delivered state wide to cancer treatment centers, pharmacies and other health-related businesses.

CONTRIBUTING WRITERS Marsha Fetzer Geri Taylor Jodi Holmgren Kathy Truman Anne Kieryn, MD Angelina Padilla, RN Liz Nielsen Magazine Delivery by the Happy Chemo! Mobile

Proudly Sponsored By Nate Wade Subaru 1207 South Main in Salt Lake City Over 160,000 copies delivered to cancer patients across Utah since 2010.

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THANK YOU!!!

There are people who are cheering for you and want you to win. There are local organizations who provide amazing free services to help restore your body and mind; support groups that understand the journey; and nurses, family, and neighbors who will rally around you and extend a helping hand. You are not alone in the fight. In these pages, you’ll find information meant to support you and help you through the journey - mentally, physically, spiritually, financially, and emotionally. Help is available. Those who have stepped out of the ring are on the sidelines cheering for you. Those, like myself, who are reentering the ring for Round Two stand confident in our abilities (and in yours) to overcome. This too shall pass. There may be days when the fight seems too difficult, the opponent too strong, the rounds too long-- when you’re not sure you can make it. The secret is not how long you stay down, or take a break and regain your strength... but to rise each time you fall. With much love,

Ginger

Information presented herein is not intended as a substitute for the advice given by your health care provider. We are not liable or responsible for any loss, injury, damage or harm that you may suffer as a result of the information contained in any advertisement or goods or services contained herein. Reader discretion is advised. Receipt of this publication does not imply endorsement of specific companies, products or services of any kind by your physician, cancer treatment center or by the publisher. If medical or other expert assistance is required, the services of a competent professional person should be sought. We reserve the right to refuse advertising. Reproductions of any information appearing in this publication in whole or in part cannot be made without the express written permission of the publisher. ‘We’ refers to the name of this Magazine and Real Intent Media LLC. Graphic Credit: www.freepik.com. Copyright 2015 - Happy Chemo! LLC. All rights reserved.

UtahCancerConnections.com 5


Pleasant Grove Senior Fights Cancer With Positive Attitude By Geri Taylor | Contributing Writer

A lump in the armpit of her catching arm became an irritant for Sarah Hicken, a recent graduate from Pleasant Grove High, but she was assured it was nothing to worry about. After six months the lump was still present and again she was told it only needed to be drained. During this time she and her parents, Randy and Kerry Hicken, visited two of the four colleges that had accepted her into their softball program - an experience she refers to as perfect timing. With an excellent dental hygienist program, coupled with the offer of a softball scholarship, Sarah decided to sign with Colorado Northwestern Community College in Rangely, Colorado. Not long after the trip Sarah became ill and for two months suffered the pain of an unusually swollen neck, accompanied by severe headaches. She was taken to a specialist where they learned her symptoms were indicative of Hodgkin’s Lymphoma, a rare cancer of the lymphatic system. It would be several weeks before results from numerous tests would confirm or dismiss the doctor’s suspicion. After the initial shock of a possible cancer diagnosis, the Hicken’s quickly regained their perspective and knew they would do everything in their power to fight the unseen monster that was probably ravaging Sarah’s body. When the results came back positive, the Hicken family was armed with a new strength – they had been given time to get their heads and hearts wrapped around this sudden change in their lives before they announced it publicly. 6 UtahCancerConnections.com

Live life to the fullest, one day at a time because you never know what is coming around the next corner. The diagnosis of stage IV cancer resulted in immediate chemotherapy, with the vague warning that it might make her very sick – or not. She was also told that of all the cancers, this was the best one to get because of its 87-90% cure rate - a strange statistic to take comfort in. Sarah’s parents say they were amazed at the positive attitude their daughter conveyed. She was upbeat, outgoing and fun loving, and not about to let cancer change who she was. She had cancer – cancer did not have her. This has made it easier for her family, friends and others to have that same positive attitude. Dad Randy said one thing they’ve learned from this experience is how positive their family is –a true gift when facing a deadly opponent. With faith in the doctors, and especially in her Heavenly Father, Sarah knows she can handle anything and that all will be well. After only two rounds of chemo, a scan showed the tumors had shrunk more than 50%, giving hope that the treatments would be successful. Her latest scan indicated there has been a shrinkage of 72%, and her bone marrow biopsy was clear, meaning no cancer in the bones. The aggressive treatments seem to have paid off.

Softball has been an important part of Sarah’s life since she was in 5th grade and amazingly, she continued to play with her High school team, only missing a couple of games the entire season. She didn’t want to let cancer take away her one true love. She is especially grateful that her new college was willing to put her scholarship on hold pending the outcome of her treatments. Through all the trips to Primary Children’s Hospital, chemo treatments and the after effects, with the help of her teachers, Sarah managed to maintain a 3.8 GPA and walked with her class at graduation. The Hicken’s have learned some valuable lessons through this trying situation and have realized that spending more time with family must remain a top priority. They have also become more sensitive to other’s trials and Sarah notes she has learned a new dimension of compassion as well as patience. The family hasn’t looked back since starting on this cancer journey, and intend on staying upbeat and positive until the cure is complete. Sarah’s message is to live life to the fullest, one day at a time because you never know what is coming around the next corner.


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The Comfort Of Normal

It is natural to desire to live within one’s comfort zone – or what we would call “normal” – and while everyone’s standard is different, when that way of life is interrupted it is often hard to adjust.

Whether we have created that world, or have just learned to adapt, the truth is, we grow into our “normal”. What was once difficult and resented can become tolerable, manageable and doable over time. And yes, very much “normal”. When times of challenge arise I think the key is to allow yourself to fall into the new and necessary, just so you can survive. While I don’t like reality shows in general, I have seen enough to ask myself why someone would go naked out into the wild, or submit themselves to all manner of torments, to prove what? Yet in the end most contestants adapt naked, barefooted, and basically unprotected from the elements – and survive! I liken this to a doctor pronouncing some disease on you, and then all manner of

treatments to help you overcome it. What you don’t anticipate is the body’s reaction and the side effects of what is supposed to be the cure – not the problem. I’ve been told it’s like being whacked with a bat, and just as you get your balance back, up pops something else to knock you down. I personally don’t know how anyone goes through these challenges without their Higher Power. After all, He created us to endure, overcome and to actually find purpose in the most miserable of times. None of us would willingly participate in something that is hard unless there is a prize at the end of the test. Sometimes in our existence we have to find or even create the prize that will encourage us to push forward to survive. There may come days when you want to just give up or take a time-out of sorts, but something will cause you to refocus on the prize. Barefoot, naked, and with little or no protection from the elements, you will fight. You will also find the energy and inspiration to go forward. Every

Walk-imn’es! Welco By Melanie Call, Owner, Roberts Fresh Hair

step forward and every success makes the difference. The day will finally come when peace is restored and you can revel in the prize you have won. Your world will never be the same, but you have met the challenge and survived. This came forcefully to me last year when we realized that a move to where we were more accessible to our customers was not only necessary but vital to our existence. Small businesses are failing all around us, but I know my services are much needed and I must fight to survive. This is my calling – to give up my “normal” safe haven and fight to be remain a viable business in our community. I look forward to serving you in our new location at 1170 W Riverdale Road. Yes, I feel barefoot, naked and unprotected from the elements as I move to a new store, but I also know it will be better, and in time it will become our new “normal”, able to lift, love and bless many more who need our services here at Robert’s Wigs and Fresh Hair. Stop in and see us! UtahCancerConnections.com 7


LOCAL SUPPORT

Self Care: The Big Picture By Marsha Fetzer | Director, Utah Cancer Foundation

Every one of us has had the experience of leaving the doctor’s office thinking, “Shoot! I meant to ask about …” or “Gosh, I wish we had more time to talk about…” There is so much to cover in a visit with your physician. The clinic may be crowded, the staff may seem rushed or – you might just forget all you meant to cover. Utah Cancer Foundation, in partnership with Cancer Rehabilitation Centers recognizes that having cancer and undergoing cancer treatment comes with many challenges. Every patient will experience physical and emotional impacts. There will be treatment responses ranging from mild to severe. They may be immediate or delayed over time. The advice you get from your neighbor, co-worker or loved one will always be well-meaning, but not always the best advice for you.

With all these considerations in mind, THE BIG PICTURE, our self-care series is designed to provide support, relief, dependable resources and viable education that can help make this process a little easier. Utah Cancer Foundation now offers weekly, on-going and repeating curriculum on self–care, addressing topics such as: • • • • • • •

symptom management nutrition during and after treatment energy conservation and the benefits of moderate exercise understanding and managing lymphedema pain management and alternative therapies stress management community resources and more

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We’ve called on community experts to help guide this program. Classes are held every Wednesday, 5 pm at the UCS Cancer Center, 3838 South 700 East, 3rd Floor with the same topic repeated again on the following Monday at noon at Utah Cancer Specialists, Intermountain Medical Center, 5131 S Cottonwood St. -- 2nd floor south conference room. You will find something valuable and interesting in a new weekly topic. The rotating class schedule can be found online at utahcancerfoundation.com or by calling 801.281.6861. PRE-REGISTRATION IS REQUIRED for every session: 801.281.6861. All sessions are free. You will be made welcome. We hope you will join us.

The Big Picture Self Care Classes SAMPLE SCHEDULE ONLY presenters are subject to change):

(Topics

and

WEDNESDAYS AT 5 pm UCS Cancer Center 7/ 8 7/15 7/22 7/29 8/ 5 8/12 8/19

Rebuild! Renew! Resilient! Pain Management & Alternative Therapies Nutrition During & After Treatment Stress Management Energy Conservation & Exercise Symptom Management Lymphedema Defined & Managed

MONDAYS AT NOON Intermountain Medical Center Campus 7/13 7/20 7/27 8/3 8/10 8/17 8/24

Rebuild! Renew! Resilient! Pain Management & Alternative Therapies Nutrition During & After Treatment Stress Management Energy Conservation & Exercise Symptom Management Lymphedema Defined & Managed


Free Local Retreats For Breast Cancer Survivors Everyone has a story about someone that has been affected by breast cancer. Navigating the journey to health and wholeness after a breast cancer diagnosis can take a toll on women financially and emotionally. Image Reborn, a local non-profit organization, provides no-cost renewal retreats as a continuum of care to empower women to live beyond a breast cancer diagnosis. More than 3,000 women with different stages of cancer have attended Image Reborn retreats to date, including the Foundation’s Executive Director, Jodi Holmgren. “I attended a retreat seven years ago, and it was life changing,” said Jodi. “Breast cancer can be a very lonely place. Spending time in a beautiful and relaxing setting with other women on a similar journey, I was given tools and clarity to focus on my wellness going forward with a new circle of support.” Survivor and attendee, Disarea, agrees. “When I was diagnosed with cancer at the age of 33, I found myself trudging through one of the darkest times of my life. Along the way, I was blessed to have my pathway brightened by a number of opportunities, one of which was attending an Image Reborn retreat.

There is something about spending time with other breast cancer survivors that promotes healing in your life. Things that have become broken because of cancer’s cruelty are able to be mended with laughter, tears, and empathy. I count my experience with Image Reborn as one of the greatest weekends of my life and I highly recommend attending a retreat to every breast cancer survivor I meet.” Retreats are designed and facilitated by a highly professional staff with backgrounds and experience in addressing the special concerns of women with breast cancer. The retreats are offered almost every month at no charge to participants, and address body image issues, stress reduction and coping strategies. In addition to education, nutritional coaching and camaraderie, the women are treated to much needed pampering. The setting provides an opportunity for participants to share experiences, kindling courage and understanding, allowing them to rediscover a sense of personal power. Most women stay in touch through email, social media or even coffee meetups, and then become a circle of support for newly diagnosed women.

No-Cost Renewal Retreats for Women Diagnosed with Breast Cancer Relaxation . Camaraderie . Pampering . Education

Sign-up Today! (435) 649-0066 • www.ImageRebornFoundation.org

The Image Reborn program is customized to address specific needs including: Stage IV retreats, and Hispanic retreats for women with limited English language skills, and are open to any woman that has been impacted by breast cancer. Weekend retreats can accommodate 8-10 women and take place in private luxury residences and hotels in the Park City area. Convenient one-day retreats for up to 14 women also take place throughout the year at a luxury hotel in Salt Lake City with access to public transportation. Retreat registration is available on-line on a first come first served basis. For out of state participants, Image Reborn offers a stipend to assist with the cost of airfare, and arranges for transportation from the airport to the mountain retreat location. This program is made possible through generous individual donations, various grants, and an annual fundraising gala that is scheduled to take place on October 10, 2015 at Stein Eriksen Lodge. The public is invited to attend this festive celebration that includes delicious fare, dancing to the Joe Muscalino orchestra, live and silent auction opportunities, and entertainment – all to directly benefit women with breast cancer. For a complete schedule, registration details or volunteer opportunities please call (435) 649-0099 or visit: www.ImageRebornFoundation.org UtahCancerConnections.com 9


Monitoring Emotional Health How education and support from a professional team can diminish the fear, anxiety and depression associated with cancer. By Anne Kieryn, M.D. | The Breast Care Center at Jordan Valley Medical Center

The word cancer naturally evokes feelings of fear and anxiety in most people. It is a normal response to feel confused, afraid, and even angry if you or a loved one is diagnosed with cancer. The uncertainty of how life may change is difficult to face, and grieving over these life changes may be part of that process. However, if feelings of distress and deep sadness become an everyday battle and a roadblock to your treatment, you may be dealing with another disorder—clinical depression. According to The American Cancer Society, approximately 1 in 4 people with cancer develop clinical depression. Monitoring emotional health following cancer diagnosis, through treatment, and even into recovery is just as crucial as supervising a patient’s physical health. The power emotions have over our health is astounding, so it is important to seek outside help if you believe you are depressed. SIGNS AND SYMPTOMS CLINICAL DEPRESSION

WHAT IF I HAVE THESE SYMPTOMS? The first step to take if you suspect you may be depressed is speaking to a healthcare provider. He or she can evaluate your mental health and make recommendations accordingly, which may include incorporating a mental health professional into your cancer care team. • • • • •

OF

• •

Although certain cancers and cancer treatments cause a variety of side effects and body changes, some symptoms could be a sign of depression.

• • • • • • • • •

Feelings of hopelessness or consistent sadness Loss of interest in daily activities or favorite hobbies Weight loss or weight gain (not associated with cancer treatment) Irritability and anxiety Feelings of guilt or worthlessness Fatigue or loss of energy Trouble sleeping or sleeping too much Trouble with concentration or decision making Thoughts of death or suicide

If you are experiencing a combination of these symptoms, talk to your doctor or a member of your cancer care team. Even if you do not have clinical depression, keeping negative feelings and stress to yourself can have serious consequences on your mental and physical health. 10 UtahCancerConnections.com

Reach out to family, friends, and people you trust for support Communicate with your cancer care team about your fears Consider joining a cancer support group Get help through counseling or therapy Stay on course with your cancer treatment Try to remain as active as you can Take care of yourself and practice a healthy lifestyle Remember that it is okay to grieve

Through all of these changes, both physical and mental, try to focus on the parts of life you can control rather than those you cannot. SUPPORTING A LOVED ONE WHO HAS CANCER If you find yourself in the position where a loved one has been diagnosed with cancer, you may experience similar feelings of sadness and grief. However, you can potentially play a vital role in their mental and emotional wellbeing by providing support and encouragement throughout treatment. For some people with cancer, knowing they have a social support system can help them overcome the anxiety and emotional stress associated with their diagnosis. It is important to remember that not every person copes in the same way, so opening up a conversation about your loved one’s needs may be the best starting point.

If you are close to the person with cancer, being involved with their treatment process may be conducive to a positive outlook and an improved quality of life. Some valuable ways to show support might include: • • • • • • •

Offering to go with your loved one to their medical appointments Listening to their fears and concerns Helping them keep track of their treatment and appointment schedule Encouraging them to continue cancer treatments Promoting physical activity and participating in their favorite hobbies Paying attention to their mental and emotional health Checking in with your own emotions and recognizing if you need outside help

Not only does cancer affect the person who is diagnosed, but it also involves the people surrounding the patient. Cancer changes lives and coping with these changes can be overwhelming, but no one has to manage it alone. Through a combined effort, the person diagnosed with cancer, their cancer care team, and their social support system can share in the hardships and triumphs of the entire process. About The Breast Care Center at Jordan Valley Centrally located in a convenient and comfortable environment, the Breast Care Center provides a full range of preventive, diagnostic, treatment, and after-care services. The Breast Care Center features a multidisciplinary team of physicians, nurses, technicians, counselors, and educators combined with the latest advancements in medical technology to ensure the highest quality in care. For more information about the Breast Care Center at Jordan Valley Medical Center, call 801562-3171 or visit jordanvalleymc.com.


Regain An Active Lifestyle After Breast Surgeries Breast cancer survivors often wonder if they’ll ever be able to enjoy an active lifestyle after undergoing mastectomy or lumpectomy surgeries.

Carol’s Mastectomy Shoppe. Comfortable bras, breast forms, lumpectomy supplies, support garments and much more are available.

Carol’s Mastectomy Shoppe has been building women’s confidence for over 32 years while providing stylish swim wear, breast forms and pre- and post surgery cami’s that offer support, shape and options to empower women.

Carol’s extensive relationships with quality suppliers like Amoena, American Breast Care, Anita and TruLife, to name a few, means that women are able to choose between a wide variety of products to ensure the best fit, personal style and comfort level.

“I had no idea how I was going to feel in swim wear after losing both breasts,” shares a survivor. “But after being fitted for breast forms and trying on pocketed swim wear, I felt so much better. No one knows that I’m wearing swim forms and I can be active again. It’s great!” Stylish swim wear is only one of the amazing options in store for survivors at

Worried about insurance coverage? Simply bring in a doctor’s prescription order for breast forms or surgical garments with a valid insurance card and Carol’s knowledgeable staff will do the rest. Their helpful staff will walk you through your options for coverage and do their very best to make the experience as pleasant as possible. Stop in today!

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3D Mammography is

Here

Take Comfort in Earlier Detection

Jordan Valley Medical Center is proud to now provide 3D mammography. This advanced procedure offers more accuracy and is administered by certified mammography technologists and interpreted by fellowship-trained breast radiologists. In order to provide our community with excellent breast care, Jordan Valley Medical Center offers 3D mammograms at no additional cost. Who Should Get a 3D Mammogram? A yearly mammogram is recommended for all women over the age of 40. If you have any of the following risk factors, we recommend a 3D mammogram: • • • •

Baseline Prior history of breast cancer High risk of breast cancer Dense breast tissue

Hologic 3D Mammography is over 41% more accurate than traditional digital mammograms, which means earlier detection and fewer false alarms.* *Data on file with Hologic, Inc.

In addition to 3D mammograms, our Breast Care Center provides: • Minimally invasive biopsy • Breast MRI • Osteoporosis screening

• High-risk assessments and counseling • Genetic testing • Cancer patient navigator

We are conveniently located just off of I-15 and Bangerter Highway with close parking and easy access.

Schedule Your 3D Mammogram Today CALL 801-617-1919

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12 UtahCancerConnections.com


Making A House

A Home

See the NEW Cancer Wellness House

Before

After

Excitement fills the air as Kendra Baum, Executive Director of the Cancer Wellness House, waits outside while volunteers from over 25 companies complete the finishing touches on a week long home makeover facilitated by the Heart 2 Home Foundation. “I can’t wait for our members to see the changes,” shares Kendra. “This means so much to us.” Volunteers arrived on Monday, June 8th to begin tearing up flooring, smashing down walls and pulling out old, broken furniture. With less than seven days to transform two adjacent homes located at 59 S. 1100 E. in Salt Lake City, it’s no small task.

“We are so grateful to everyone who has come together to make this happen,” states Tiffany Berg Coughran, co-founder of the Heart 2Home program. “So many people donated items and gave their time to make the Cancer Wellness House more comfortable for the survivors and families that come here.” For the past 18 years, the Cancer Wellness House has been a source of comfort and support for hundreds of cancer survivors in the Salt Lake City area, providing a myriad of holistic and integrative socioemotional survivorship and quality of life focused programs for people with cancer and their families, free of charge.

UtahCancerConnections.com 13


This is the Home love built.

Scheduled activities are designed to help members become proactive in their quest for wellness, while providing easy access to those programs and services that can help them most in their pursuit for happiness and acceptance. Complimentary programs are offered throughout the week and range from yoga and family counseling to massage and acupuncture sessions - all 100% free of charge to those facing cancer.

“We want everyone to feel comfortable here,” adds Kendra. “Our door is always open for those who need support.” As the final touches are completed and Kendra is allowed into the home, smiles and tears flow freely as hugs are exchanged. “Being able to support cancer patients in this way is an honor,” shares a volunteer. “It’s something we’ll never forget.”

Learn more about free services for those facing cancer at www.cancer-wellness.org Thank you to the following companies who donated and volunteered: • • • • • • • • • • • • • • • • • • • • • •

Equity Real Estate Absolute Compassion Home Health & Hospice Harper Concrete Wilson Construction Services Independent doTerra Distributors Keller Williams RedSign.com Sherwin Williams RC Willey Title West Mrs. Utah United States Pageant Jenkins-Soffe Sean Foote Construction MyPreDiabetes.com Ashley Furniture Tai Pan Trading Queen Mother Design Exodus Healthcare Magna Xaviar Painting Upper Country Electric Lowes Jones Paint and Glass

14 UtahCancerConnections.com

To learn more about the Heart2Home Foundation or to get involved visit: http://heart2homeutah. blogspot.com

cancer wellness house

Get connected. Find support.


Local Candidate Aims To Raise Funds To Cure Multiple Myeloma While Building A Stronger Community Bill Conley, candidate for Lehi City Council, has decided to walk every major neighborhood in the city before Election Day meeting residents and business owners. But this campaign trail is not just for election, it goes much deeper. Conley’s fiancé, Lizzy, is a patient at Huntsman Cancer Institute undergoing treatment for a currently incurable disease and this walk is also for her.

MYELOMACROWD

TM

C R O W D C A R E F O U N D AT I O N

Patient-driven initiatives to find and fund curative research happening now,myeloma totally transparent, and its for multiple

progress is trackable,” says Lizzy. “Typically, www.myelomacrowd.org/mcri cancer research donations go into a big bucket and donors have almost no way of knowing if their generosity makes any difference. But the MCRI is potentially a game-changer. We want a cure now. As a patient, I am not satisfied with hoping someone else cures me. I need to be part of finding that solution.”

Lizzy was diagnosed with multiple myeloma in January 2012 and, though doing well, there is no cure. This means endless monitoring, infusions, and exams. As Bill began wondering how he could support Lizzy in a bigger way while also campaigning, an idea was born that included long walks, lemonade stands, donations and talking. All right up his alley.

It wasn’t long before Lizzy and Bill were walking neighborhoods together wearing neon T-shirts and talking to residents about cancer and Bill’s campaign. Lizzy also put her two daughters to work-- nineyear old Siena and 15-year old Morgan. They designed posters and began running lemonade and cookie stands on select walks, accepting donations for cancer research.

“I have owned several businesses in my past professional career,” says Bill. “My success involved thinking outside the box coupled with a willingness to talk to people.”

“This effort is a family affair, shared Lizzy. “My dad even joined us on a walk.”

Lizzy was excited for this community outreach as she has already been working with a fellow myeloma survivor, Jenny Ahlstrom, on launching and growing the Myeloma Crowd (www.myelomacrowd. org), a patient-driven web site with information for the myeloma community, tips for navigating treatment, and new medications and treatments available to patients. In addition, Jenny and Lizzy helped launch the Myeloma Crowd Research Initiative (MCRI), which aims to find a cure for the disease. In August, they will begin crowdsource funding to sponsor a potentially curative clinical trial. “What makes the Myeloma Crowd Research Initiative unique is that it is

Lizzy believes a cure is close. Myeloma is treatable and new drugs and combinations have made life expectancy far better and brighter. But while a cure is possible, it won’t happen on its own. “I will be a dedicated and tireless member of the Lehi City Council if elected,” says Bill. “I live in Lehi and have a vested interest in making this city an amazing place to live. But all funds raised go straight to the Myeloma Crowd Research Initiative. Not one single penny goes to my campaign. We are doing this for the right reasons—to make a difference in the world.” Bill’s walks are going extremely well. People are willing and eager to talk about Lehi issues and health. He has met many cancer survivors or those whose loved ones have

been affected by the disease. “Working to help cure this disease is incredibly empowering as a cancer survivor,” says Lizzy. Bill agrees. He shares how one afternoon he met a resident whose daughter was diagnosed with multiple myeloma. Another resident had a husband who passed away from the disease a decade prior. Conversations and connections are what Bill hopes will build a greater community. “Utahns are incredibly kind and charitable people,” says Bill. “I’ve lived in several parts of the country and am welltraveled. I really believe that Utahn’s are unique. They want to do the right thing and help others.” On many walks Bill encourages people to join him. He feels that exercise is an important part of staying healthy and a great way to heal and stay emotionally, mentally and spiritually strong. “Supporting Lizzy in this way makes me feel useful in much the same way that running for public office does,” states Bill. “I no longer feels helpless, sitting on the sidelines hoping and praying good things will magically happen. We’re out working to make them happen and hope others will join with us.” To learn more about the Myeloma Crowd Research Initiative or to make a tax deductible donation towards this critically important effort, please visit: www.myelomacrowd.org/mcri. To learn more about Bill Conley, visit: www.bill4lehi.com.

UtahCancerConnections.com 15


KNOWLEDGE

Photo credit: Pacific Northwest National Laboratory, pnl.gov

What is Brachytherapy? By Geri Taylor | Contributing Writer

As modern medicine advances by leaps and bounds, it is interesting to note that many therapies had their beginnings more than a century ago. Such is brachytherapy, the treatment of cancer by the insertion of radioactive implants directly into the tissue. Not long after the discovery of radioactivity in 1896, Pierre Curie pursued the concept that a radioactive source could be inserted into a tumor. His suggestion to Henri-Alexandre Danlos, a French Dermatologist, became the catalyst for Danlos to apply radium on tuberculous skin lesions. The findings have reverberated throughout the past 120 years as radiation was found to shrink tumors. As with all areas of medicine, research and trial testing have continually produced new and improved ways of treating and curing disease. Brachytherapy has evolved over the years to take its place as one of the most effective and least invasive treatments for many types of cancer, including prostate and breast. From the Cancer Treatment Centers of America we find this explanation of brachytherapy as an advanced cancer treatment. “Radioactive seeds or sources are placed in or near the tumor itself, giving a high radiation dose to the tumor while reducing the radiation exposure in the surrounding healthy tissues. The term ‘brachy’ is Greek for short distance. Brachytherapy is radiation therapy given at a short distance: localized, precise, and hightech. “With High-Dose Rate (HDR) Brachytherapy, thin catheters are first placed in the tumor. The catheters are then connected to an HDR afterloader. This machine contains a single, highly 16 UtahCancerConnections.com

radioactive iridium pellet at the end of a wire. The pellet is pushed into each of the catheters one by one under computer control. “The computer controls how long the pellet stays in each catheter (dwell time), and where along the catheter it should pause to release its radiation (dwell positions). With a few wellplaced catheters in the tumor, HDR brachytherapy can provide a very precise treatment that takes only a few minutes. After a series of treatments, the catheters are removed, and there are no radioactive seeds left in the body.” One of the benefits of brachytherapy in breast cancer patients is treatments being completed in five to seven days compared to six to seven weeks of standard external radiation. According to Pam Stephan, breast cancer expert, “the breast will have a surgical scar, but otherwise none of the skin burn or tissue thickening that may occur with standard radiation.” Stephan also notes that “a very small portion of your breast will be treated by the radiation, and healthy tissue will be unaffected.” With all the benefits of brachytherapy, potential disadvantages might include a long-term (5-6 days) catheter inserted into the site that may cause infections; avoiding showers for a week, and adjusting ones sleeping position for comfort. However, the shortened therapy time means less disruption in one’s daily routine, less travel time and fewer co-payments. Dr. John K. Hayes, founder and Medical Director of Gamma West Cancer Services, also explains that “one of the benefits of using localized radiation is that it preserves options

for the patient in the future. If she has already had whole breast radiation therapy and something was to happen in the future, whether it’s a recurrence or a second cancer, her options become more limited.” Men with prostate cancer can benefit from brachytherapy as well. While traditional external beam radiation therapy treatment is delivered from outside the body using a high energy x-ray machine and requires careful treatment planning and delivery to limit the dose to surrounding organs, brachytherapy treatments deliver a higher dose of radiation to the cancer while the dose to the surrounding tissues is minimized. In addition, the patient is not radioactive after treatment with HDR brachytherapy. Dr. David K. Gaffney, MD, PhD is vicechair, medical director, and professor of radiation oncology at the University of Utah School of Medicine and Huntsman Cancer Institute. He recently wrote about the ASCENDE trial which he says, “demonstrated dramatic improvements in biochemical-free survival for men [with prostate cancer] treated with beam and seed compared to beam alone. This was a well done randomized trial with modern radiotherapy yielding a dramatic outcome in favor of brachytherapy.” His assessment is that “Brachytherapy continues to prove itself as an instrumental component of the armamentarium against cancer.” Talk with your medical team to learn more about the potential of utilizing brachytherapy in treatment. Individual treatment plans may vary depending upon cancer type. Speak with your oncologist or medical team for details.


A Letter to Cancer It may seem like you have control in my life right now, but you really don’t. Your presence only makes stronger, braver, kinder, wiser. I choose how I think, what I speak and how I love. You will never be able to touch those things. Never. The fear of your name no longer haunts my soul because I know that my soul belongs to me and to God. You may take your claim on this frail outer shell but never on my divine spirit that cries out: “I am not my body.” My soul will run, leap and tower over your attempts to pull me down into despair. Those who surround me will fight with me to let it be known that we will not surrender. Our hearts and souls are tied together in a lasting bond that no amount of your impeding growth can break. You see cancer, you do NOT own me. I own myself. And I will survive. By Ginger Johnson | Founder, HappyChemo.com | Publisher, Utah Cancer Connections Magazine

UtahCancerConnections.com 17


Then, Now & Moving Forward

Caring for You

Comprehensive Healthcare for Women of All Ages Davis Hospital and Medical Center offers high-quality, personalized care for women of all ages. Our hospital has served our community for 40 years, and we would consider it a privilege to care for you and your future family members. Whether you need a routine exam or specialized maternity services, we’re here to make your experience as positive as possible in a comfortable and safe environment. Our women’s services include breast care, cancer treatment, maternity care, pelvic floor disorders, gynecology, bone density screenings, community education and more.

For more information visit us on line at DavisHospital.com or call 866-431-WELL (9355).

18 UtahCancerConnections.com

DavisHospital.com | 1600 West Antelope Drive, Layton, UT 84041

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According to the American Cancer Society, breast cancer is expected to account for 29 percent of all new cancers among U.S. women in 2015. If you or a loved one receive a breast cancer diagnosis, it can be an extremely emotional, confusing, and frightening time that will likely prompt a host of questions and concerns. However, no one should navigate the cancer care journey alone. When a woman faces the uncertainty of a cancer diagnosis and treatment, having an experienced advocate by her side throughout the entire process can make a world of difference. This is the fundamental job of a cancer patient nurse navigator. Across the board, Davis Hospital and Medical Center considers the hospitalbased nurse navigator program an important component in the patient care continuum. Each nurse navigator is a trained and licensed professional who is connected to the multidisciplinary team of surgeons, radiologists, oncologists, physical therapists, pain management specialists, and financial specialists. As liaisons, nurse navigators have the unique ability to refer patients to the appropriate specialists—minimizing wait times between biopsy, diagnosis, treatment, and adjuvant therapy—and ensure continuity and coordination of care. Additionally, nurse navigators function as an emotional support system for the patient and her family, mobilizing resources and educational material and assessing a patient’s necessary level of overall support.

With every breast cancer diagnosis at Davis Hospital and Medical Center, a nurse navigator steps in to provide a wide range of services including but not limited to: • • • •

Scheduling and managing appointments Explaining test results and terminology Helping patients make informed medical decisions Assisting with financial and insurance issues Communicating with all members of the health care team Providing emotional support and counseling Discussing treatment and care options Minimizing wait times between diagnosis to treatment and beyond

Breast Care Services at Davis Hospital and Medical Center Davis Hospital and Medical Center maintains a community-centric approach to comprehensive breast cancer care. Women in northern Utah have access to advanced screening and treatment options in a comfortable and convenient location. As a full-service breast care center, Davis Hospital and Medical Center’s facilities include: •

3D mammography

Digital mammography

Breast ultrasound

Breast MRI

Minimally invasive breast biopsy

DEXA scan (bone density scan)

Multidisciplinary approach to breast cancer treatment

Essentially, nurse navigators try to eliminate the gaps in cancer care, improving patient satisfaction and confidence.

Certified breast cancer nurse navigators

Genetic BRCA testing

Since the 1990s, nurse navigator and patient advocacy programs have developed and improved, changing the delivery of cancer-related health care. Many hospitals around the country offer some degree of patient navigation, and studies show that patients who work with navigators are more likely to rate their care higher, adhere to follow-up care recommendations, and report fewer problems.

For more information about Davis Hospital and Medical Center’s breast care services and nurse navigator program, please call 801-807-7770 or visit DavisHospital.com.

• • • •

By Angelina Padilla, RN, BSN, OCN Patient Navigator for Oncology Services at Davis Hospital and Medical Center

UtahCancerConnections.com 19


SPIRITUALITY

Shifting from Fear to Peace In previous installments, I have discussed the physical, mental and emotional tools and techniques, which can be used to shift from fear to peace. The spiritual aspect is by far the most important area of our lives to help us shift to peace. By Kathy Truman | Contributing Writer

When we are suffering, we may ask, “Why God, why me?” We pray and plead for healing and relief. There is another kind of prayer. This is the prayer of praise to God. We may think of Praising God as ‘Hallelujah’ or ‘Rejoice’ and it is, but it is also a deep surrender and trust in the path God has chosen for our life. It is in our darkest hour that praising God has its greatest power. Praising God is based on accepting our present circumstances as God’s loving and perfect will. It is not a prayer asking for what we want or hope for the future. We don’t praise God out of our expectations, however, it is a fact that praising Him invites His Power to flow into our situation. For most of my life, when I have been faced with great adversity and pain, I have immediately gone into a place of doubt and fear. In so doing, I have invited more darkness into my situation. In a period of great financial difficulty, we were in imminent danger of losing our home. Initially, I grieved the potential loss with sorrow and despair. I then made the decision that I had to let nothing deter me from praising God in ALL things, even in this. I surrendered my will to God’s and said a prayer of trust and faith in the path that He had chosen for me. I said aloud, “I will go where you want me to go, Dear Lord.” I felt such an overwhelming peace come over me. I knew that no matter what was going to happen in my future, I was in the Lord’s hands. We tend to think of ‘surrendering’ to God as bowing our heads in defeat. Instead, surrendering to God is opening our arms wide to the heavens in a gesture of receiving His will for us. He has so much more in store for us than we can possibly imagine. It is only for us to be willing to receive. 20 UtahCancerConnections.com

Praising God in our adversity and not in spite of our adversity can take teethgritting willpower. Initially, you will be praising Him with a heavy heart. Praising Him is an act of obedience and sacrifice. The words may feel hollow and empty at first, but as you persist in your humble offer of praise, you will begin to feel a shift. Your circumstances may not change, but you will. You will feel strengthened and supported. You will feel God’s love for you. Your deepest hurts will lift and your tears will dry. Even Paul was told concerning his ‘thorn in the flesh’ that God’s grace was sufficient for him. When the sacrifice of praise is made, even when all is darkness around us, His Holy Spirit begins to fill our being. We come to experience a real joy and happiness in the midst of what once appeared to be a tragic situation, or our situation may be completely changed. This knowledge of the blessings of praise is motivation for praising God, not a bargaining position. “Ok, now I’ve praised you, where is my miracle?” As we persist in our prayers of praise, even if we don’t have our heart in it, we are strengthened in our trials. We may actually need to pray in humility to plead for the presence of His Spirit to make it possible to praise Him. As we are obedient, though, it will create a mighty change in our soul and we will increase our trust in a loving God. It strengthens our relationship with Him and provides an intimacy that we can lean on in our times of deepest trouble and hardship. Praising God actually becomes a conduit for miracles and blessings. We don’t praise God because He needs our praise, but because we need it. He knows that when we surrender our will in praise it opens our path to light, peace and happiness. Praising God is really a gift we

give ourselves as it allows us to receive His will for our life’s journey and to let go of our resentment and fear. It opens the way for us to feel the presence of God and to feel joy in the midst of whatever kind of pain we may be experiencing. The prayer of praise builds our faith. It gives us a whole-souled, unshakable faith as we feel his presence with us in answer to our prayers. Praise combined with faith is a causative force in the universe with which miracles are wrought. It is a source of inner strength through which we will find peace, comfort and the courage to cope with our adversities. The deepest level of our worship for God is to praise Him through our pain and to believe in Him. He is our solace in our sorrows, He is our strength when we are weak, He lifts us when we fall, He is our light when we feel lost in darkness. He suffered for us – not just for our sins, but for our sicknesses, our burdens and for our pain. He alone, will bring us comfort when we feel that all is lost. Hope grows out of our faithful prayers of praise which gives meaning and purpose to our suffering. It will give us peaceful assurance. ‘Peace I leave with you, my peace I give unto you: not as the world giveth, give I unto you. Let not your heart be troubled, neither let it be afraid’ (John 14:27).” May we anchor our souls in He who is love; in He who is peace. May we praise His name in ALL things.

Kathy Truman is an energy worker, life coach, speaker and an emotional & spiritual counselor. Learn more about her programs at KathyTruman.com or by calling 435-512-5026


Food For Thought Fight Inflammation with Omega 3’s Omega 3 fatty acids are powerful inflammation fighters, essential to an anti-cancer/pro-wellness nutrition plan. They’re found in robust amounts in salmon and other cold-water fish, walnuts and flaxseeds, and certain types of algae. But have you wondered if there was a FUN way to get your omega-3s? Here it is. The mighty chia seed contains even a higher ratio of omega3s than super-protective flaxseeds. By adding just two tablespoons of chia seeds to your daily diet you get approximately seven grams of fiber, four grams of protein, 205 milligrams of calcium, and a whopping five grams of omega-3’s! When added to liquid, it forms a gel that makes it a natural base for pudding. Enjoy this super-simple treat…and know that your body is enjoying it, too!

EXTRA-EASY CHIA PUDDING 1/2 cup organic chia seeds 1 1/2 cups unsweetened almond milk (can substitute rice, oat or soy milk) 1-2 tablespoons honey 1/2 teaspoon natural vanilla extract Dash sea salt Optional add-ins: 1/2 teaspoon cinnamon Berries Chopped peach or mango Warm almond milk and honey in small saucepan just until honey melts. Remove from heat and stir to fully blend in honey. Add chia seeds, vanilla, salt and cinnamon, if desired. Stir to combine all ingredients. Stir in berries or chopped fruit, if using. Transfer to individual pudding dishes or into a single glass container. Allow to cool to room temperature, about 1 hour. Enjoy as soft pudding at room temperature, or refrigerate 1 hour for a firmer texture.

P R E V E N T I O N • S C R E E N I N G • T R E AT M E N T • S U R V I V O R S H I P

Attention pharmacy: This card provides special contracted rates to our members. Please use the BIN, PCN and Group numbers below to process.

Cut out this card and present it at your pharmacy for discounts on brand and generic drugs.

My prescription varies from $8 – $32 at pharmacies within 5 miles of my home. By using LowestMed, I have an extra $288 a year in my Health Savings Account. -Laura UtahCancerConnections.com 21


Letter to the Editor P R E V E N T I O N • S C R E E N I N G • T R E AT M E N T • S U R V I V O R S H I P

The following email correspondence was received on May 8th, 2015 in response to the back cover memorial photo of Dov Siporin in which he was wearing a black t-shirt with the words ‘F*ck Cancer’. For other readers who may have had similar concerns about the image, our response is below. Re: Back Cover Photo I felt that I needed to have my “voice heard” concerning the back cover of your recent magazine, Vol 5, issue 2. I found the open display of THAT vulgar word was offensive and in poor taste. Your magazine is always full of wonderfully uplifting, positive and encouraging stories that make me smile and feel good. Thank you for that! No thanks to the negative and degrading vulgarity that is so common place now but still inappropriate for a magazine. Poor editing on that one. I wish I could “unsee” it. - Ellen B. Hi Ellen, Thank you for sharing your voice. It is greatly appreciated. We debated for a long time as to whether or not to use the photo presented by Dov’s family for the memorial picture. It is not our normal practice to promote words of that nature, nor do we use them ourselves. As Dov Siporin was known for his brash stance against cancer and was seen wearing that shirt at the Huntsman Cancer Institute for the 8 years he battled stage 4 colorectal cancer, we felt that the photo represented his life and cancer journey. We apologize for any offense that may have been caused. Our only intention was to accurately reflect the life of a man that affected hundreds of thousands of patients, caregivers and providers and who Mr. Huntsman himself said ‘was his hero’. Thank you for sharing your voice and for finding value in the previous issues. We hope to serve you better in the future. Warm regards, Ginger Johnson Publisher | Utah Cancer Connections Magazine

Cut out the LowestMed card above and present at your next pharmacy visit to get discounts on all FDA approved drugs. No enrollment forms or membership fees required. No limitations on times used.

22 UtahCancerConnections.com

Got something to say? We welcome your feedback. Please email your thoughts to Ginger@utccmag.com or Geri@ utccmag.com.


Cancer Support

NO ONE

GOING THROUGH CANCER NEEDS TO FEEL ALONE. PANCREATIC CANCER SURVIVORS Join us to learn more about the Pancreatic Cancer Action Network and what you can do to make an impact locally. For more information please visit: www.pancan.org/saltlakecity Survivors, friends, family and supporters welcome!

Young Survivor Sisters Breast Cancer Support Group

Where Support is Guaranteed and Boobs are Optional Young Survivor Sisters is a free, non-denominational breast cancer support group for women who were diagnosed in their 20's, 30's and 40's. Join our group on Facebook: http://facebook.com/groups/yssutah

Lifting Hearts Breast Cancer Support Group (Located in Utah Valley, UT)

A non-profit organization dedicated to providing support and wellness programs for individuals and families affected by breast cancer. Monthly support meetings (2nd Thursday), quarterly activities, service projects, fundraising opportunities, Bosom Buddies oneon-one Mentoring Program. Contact Us: liftinghearts2011@gmail.com Phone: 801-376-7377 Blog: liftinghearts.blogspot.com Website: lifting-hearts.com

MYELOMACROWD

TM

C R O W D C A R E F O U N D AT I O N

Patient-driven initiatives to find and fund curative research for multiple myeloma www.myelomacrowd.org/mcri

ThyCa: Thyroid Cancer Survivors’ Association ThyCa Salt Lake City meets on the third saturday of each month from 11:00 to 12:30 at the IMC Jon and Karen Huntsman Cancer Center ( 2nd Floor, South Conference Room, 5121 Cottonwood St. Murray, UT 84107) Questions? Contact Chris Prestano 801-382-7THY (7849) or e-mail: saltlakecity-ut@thyca.org

“Triunfadoras”

Hispanic Breast Cancer Support Group Support group meetings are held the SECOND TUESDAY OF EACH MONTH AT 6:00 PM at the Intermountain Medical Cancer Center, 5121 Cottonwood Street, Bldg. 3 on the 2nd Floor. For more information please call: Sara Carbajal, Program Coordinator 801-265-1111 OR 801-597-1159

Young Chicks Support Group (St. George)

Southern Utah Survivors are welcome to attend the Young Chicks Support Group held the 2nd Thursday of each month at Carol’s Personal Mastectomy located at 330 E. 600 S. in St. George, Utah. This group is for women diagnosed in their 20’s, 30’s and 40’s. To learn more call (435) 688-0452.

Visit our website for: • Exclusive Discounts • Cancer Resources • Community Support

HappyChemo.com

UtahCancerConnections.com 23


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24 UtahCancerConnections.com

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Summer/Fall 2015 Utah Cancer Connections  

See the NEW Cancer Wellness House, Learn about emotional health, brachytherapy and shifting from fear to peace.

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