More Life Magazine: 2025 Black Health Issue

A CURATED GUIDE FOR BETTER BREAST HEALTH AND WELLNESS FOR ALL

THE BLACK BREAST HEALTH ISSUE

200+ Resources for breast health and cancer survivorship

Patient stories, expert advice, creative healing activities

Wellness tips to reduce risk and thrive beyond breast cancer

From the editor

If breast cancer knows no boundaries, why should we?

After the success of the first issue of More Life Magazine, I started exploring ways we could make a greater impact. With the understanding that the best experts on communities are the people who live and serve in those communities, I decided to take a different approach to this issue.

The 2025 Black Breast Health Issue was crafted in partnership with grassroots organizations and advocates from across the country taking different approaches to serving similar communities. Covering everything from clean beauty and patient navigation to holistic health and beyond, this dynamic resource highlights the strength of collaboration, empowering leaders to uplift Black communities both locally and nationally.

My desire is to adapt this approach to various communities like metastatic breast cancer, the young breast cancer community and more. I’m excited to see the evolution of this resource come to life and I’m looking forward to seeing the impact that’s made when we work better together.

Contributors:

Lived-Experience Expert Editor: Jasmine Dionne Souers

Layout and Design: Kulur Group

Cover Photo: Bracy Photos

Writers:

Ashley Dedmon

Deltra James

Bernice Mason

Thandi Montgomery

Valencia Robinson

Ann-Marie Swatson

Jasmine Dionne Souers

Featured Partners:

Celebrate Life Cancer Ministry

Male Global Breast Cancer Alliance

Painted Pink

Pink Legacy 50/50

Sista’s Daughters

The Light Collective

Jasmine Dionne Souers Breast Cancer Survivor since 2017 Editor, More Life Magazine President and CEO, The Missing Pink Breast Cancer Alliance

Presented by:

A Survivor’s Perspective on Self-Breast Awareness and Self-Advocacy

Written by Jasmine Dionne Souers

Did you know 80% of young women diagnosed with breast cancer find their breast abnormality themselves according to the Young Survival Coalition1? At the age of 25, I was one of those young women. I was well below the screening guideline recommendations, unsure of what it meant to be high risk, and completely unaware of the best screening options for women under 40.

By now, I’m sure you’ve seen the headlines: “American Cancer Society (ACS) No Longer Recommends Clinical Breast Exams or Breast-Self Exams.” Their reasoning? According to ACS2, “There is very little evidence that these tests help find breast cancer early when women also get screening mammograms.” This is the best guidance for women with average risk; however, ACS encourages women to “be familiar with how their breasts normally look and feel.”

Earrings by: Imani Cowrie

I’m not a big champion of further lowering the mammogram screening age as much as I champion earlier risk assessments and access to more effective screening methods for young women. According to Mayo Clinic3, young women are more likely to have dense breasts, meaning their breast tissue looks solid white on a mammogram. Having dense breasts can sometimes cause breast cancer to go undetected on mammograms – unfortunately, I happened to be in that number as well.

But when I didn’t receive additional screening and instead received an inaccurate diagnosis, breast-self exams helped me advocate for better care.

Knowledge of self is power

After a couple months of experiencing breast pain that seemed to be in sync with my menstrual cycle, a breast self-exam revealed additional symptoms, such as swelling and nipple discharge.

I didn’t know you could have breast cancer and not feel a lump or that people could have variations of symptoms.

I knew breast cancer “ran in my family,” but I didn’t know what that meant for my personal breast cancer risk.

I didn’t know I had dense breasts until after I had my first mammogram, which under normal circumstances, I wouldn’t have received until many years later.

And I didn’t ask about additional screening methods like a breast MRI because I didn’t know there were more options beyond a mammogram or ultrasound.

In a situation where there was so much I didn’t know, I did know what I was feeling and seeing in my body wasn’t normal for me – even when nothing else could confirm it.

About 6 months after I was misdiagnosed, I brought up my concerns to a different provider. This provider felt my observation of persistent symptoms was enough to warrant further testing. It was her belief in my understanding of my body that started me on the road to an accurate diagnosis.

How to Advocate for Yourself Against all Odds

Knowing what I know now, I am much better equipped to advocate for my health. Here are three tips that have helped me along the way:

Seek clarity and ask questions.

When the test results from my first mammogram revealed I had dense breasts and additional screening may be needed, I assumed many things.

I assumed that if additional screening was needed, my primary care physician would suggest it. I assumed the additional screening would be a repeat of the mammogram I had just passed because it was the only screening tool I knew of. And because I assumed mammograms were the only screening tool, I also assumed it was always accurate.

Instead of making assumptions, this would have been a great opportunity for me to seek clarity regarding the test results and her suggested diagnosis with questions like:

• What does “dense breasts” mean?

• What are my options for additional screening?

• What do I do if the symptoms don’t improve?

• What factors have led to your suggested diagnosis?

• If my family history makes me high-risk, what should we do differently moving forward to monitor this?

(Bonus tip: If you’re ever unsure about something your doctor says, try repeating back the information to your provider in your own words. This will give them the opportunity to affirm or correct your understanding).

Do your own research.

Everyone told me I was “too young” to have breast cancer – the scary thing is I almost believed them. If I had known 4% of women diagnosed with breast cancer in the U.S. are under the age of 40 and Black women are more likely to be diagnosed under the age of 354, I would have known there was no such thing as “too young to have breast cancer” because someone has to be in that 4%.

Unlikely doesn’t mean impossible and that’s something you have to remember when you don’t feel heard by your providers. Doing your own research can help you have more productive conversations with your provider.

Here are some questions to consider during your research:

• What does normal look and feel like for you?

• What symptoms are you having?

• What conditions are aligned with your symptoms?

• What screenings or tests are typically used to diagnose those conditions?

• Are these tests typically performed by a primary care physician or is there a specialist better suited to help you move forward?

• What are the latest treatments for the condition?

• Does your provider seem knowledgeable in your condition or should you seek a second opinion?

• Are there any barriers to you seeking treatment?

WARNING: Know when it’s time to log off. Please do your best to arm yourself with information to make informed decisions without creating unnecessary anxiety around unknown possibilities.

Build a team you can trust.

Breast cancer wasn’t the first diagnosis my first primary care physician missed, but growing up, I never saw my parents “shop” for healthcare. We went to the doctors that were available and covered by our insurance, but we didn’t speak up when we disagreed with the treatment.

We actually laughed when we realized we were all being prescribed the same medication for various conditions. Our shared provider, instead of conducting thorough examinations, often dismissed every concern as “inflammation.”

We didn’t see these experiences as receiving poor healthcare; we accepted them as normal. Unfortunately, while these experiences might be normal for many people, they certainly shouldn’t be accepted.

What does a trustworthy provider look like to you?

For me, a trustworthy provider is someone who listens to me and is willing to explain what I don’t understand.

I trust providers who aren’t angered by my questions and seek answers for the questions they don’t have immediate answers to.

I trust providers who balance the latest research with their experience.

I trust providers who give me all the information, especially the benefits and risks of their recommendations.

I trust doctors who want to know how I feel about their recommendations and care about what I want beyond being treated for a condition.

Determine what a trustworthy provider looks like to you and be willing to make trades until you build the right team.

Start Feeling Yourself

And I mean this literally and figuratively. If you’d like to learn how to do a breast-self exam, it’s pretty easy and Know Your Lemons has a great app that can walk you through it step-by-step.

But if you’d like to be the boss of your body, the decision is yours. From the White House to the white coats, when you know your body and what you need, you have the power to advocate for yourself and the care you deserve.

### Sources

1. [Young Survival Coalition] - Tit Check (https://titcheck.org/)

2. [American Cancer Society] - Key Statistics for Breast Cancer (https://www.cancer.org/cancer/types/breast-cancer/ about/how-common-is-breast-cancer.html)

3. [Mayo Clinic] - Dense breast tissue: What it means to have dense breasts (https://www.mayoclinic.org/tests-procedures/mammogram/in-depth/dense-breast-tissue/art-20123968)

4. [Susan G. Komen - Breast Cancer Risk Factors Cancer] (https://www.komen.org/breast-cancer/risk-factor/age)

Life Beyond the Bell: Embracing Whole Person Care and Survivorship

Written by Thandi Montgomery

“EVERYTHING will go back to normal if I can just push through, be optimistic, and ring the bell.”

Those words took residence in my head guiding me through 12 long months of 4 surgeries, 16 rounds of chemo, and 30 radiation treatments at 38 years young. The moment I rang the bell, there was an overwhelming sense of gratitude.

“We did it, now everything is behind me,” I thought with naivety. But, just as the phrase “you have cancer” caused a tsunami of thoughts to flood my mind, a new wave of uncertainty overtook me after the bell’s final echo.

“What now?”

“Who am I?”

“What should I do to keep ‘it’ from coming back?”

Focused on treatment, managing medical bills, keeping up with appointments, and balancing life as a wife, a mother of two young children and a marketing executive–I wasn’t prepared for the mental, physical, and spiritual challenges of the next phase of the journey.

Survivorship: A New Chapter

“It’s going to take your mind twice as long to catch up with what has happened over the past year,” my doctor said. I realized that just like the treatment phase, this new journey would require time, support, faith and resilience. Nona Jones once said, “Rising from the pain that lies behind us requires focusing on the purpose that lies within us.”

The morning after my last radiation treatment, instead of my usual 30-minute drive to the cancer

center, I sat and began to process the past 365 days. Though I lost my hair, my 34C breasts, and sometimes my hope, I gained a profound sense of purpose and clarity about who I am. I started to reflect on my why. Why did I fight so hard to survive? Why did I continue to push past the unknown and show up to every appointment?

Weeks later, I declined the invitation to my own pity party, and realized I didn’t want to go back to “normal.” I began to slowly rebuild. I began to redefine Thandi 2.0–channeling my second chance into helping women shift from merely existing to truly living through my expertise in marketing, health and wellness, and coaching.

Healing For Every Part of Me

Navigating survivorship presents unique challenges, requiring not just physical healing, but mental and spiritual healing too.

Physical healing varies based on your diagnosis, requiring a tailored approach with specialized treatments, therapies, and lifestyle adjustments. Here’s what continues to work for me:

• Accept and appreciate my new body, scars and all.

• Listen to my body and keep up with doctor appointments.

• Follow a workout routine five days a week.

• Clear out unhealthy foods, toxic relationships, and things that no longer serve me.

• Replace harmful products with environmentally safe alternatives.

• Continue taking natural supplements to aid in the healing process.

Equally important are the emotional and spiritual aspects of my healing journey. These steps have been crucial:

• Admit when I need help and seek support from family, my therapist, and cancer advocacy groups like Tigerlily Foundation, DoCancer, and the Young Survivors Coalition.

• Write in my journal weekly.

• Create a “positive toolkit” with affirmations, music, and scriptures to combat negative emotions and fears.

• Pray, meditate and practice breathwork techniques.

• Give myself space to reflect, find meaning, feel EVERY emotion, and reframe my thoughts.

• Share my experience and story on stages, podcasts, social media, and other platforms.

The path to healing can be painful, but it’s worth it. As you heal, challenge yourself to find meaning and share your story to inspire others. Dr. Viktor Frankl said, “When we are no longer able to change a situation, we are challenged to change ourselves.” A traumatic experience can either make you bitter or better. It’s YOUR choice.

Who do you want to become?

How will you make the rest of your life the best of your life?

Reflect, rebuild, and redefine. Embrace this new chapter with courage, knowing that your journey doesn’t end with the ringing of a bell, but begins with it. Take the time you need to heal fully. Let your journey be a testament to resilience and transformation–guiding and inspiring those who will face similar challenges in the future.

California Pastor Builds Faith and Community For Cancer Survivors:

A Q &A With Pastor Rhonda Holbert

Let’s begin with your story. How did your breast cancer diagnosis and treatment journey unfold?

In 2001, after my friends received free mammograms at a health fair, I decided to join the “big girls’ club” and get my first mammogram, too. Shortly after, I received a letter saying the doctor wanted me to come in for an ultrasound.

During the ultrasound, they checked my left breast due to an undetermined mass. Though I asked them to check the right breast (since I was already there), they declined because I didn’t have any symptoms. The ultrasound determined the mass on my left breast was only a cyst, and I later received a letter saying all was well on both sides.

Strangely, a few weeks later, I noticed my right breast was red and hot to the touch. I felt a small mass on my right breast. Unlike what most ladies are told to look for, the mass did not feel like a pea, it felt like a small muscle, and it felt hot. It felt like wearing a tight bra that leaves a red ring around your rib cage, except the discomfort never went away.

I made an appointment to go back to the doctor on what turned out to be a historical tragic day – September 11, 2001. The streets of Los Angeles were strangely quiet. There were no airplanes in the sky, and living in Inglewood, the sound of airplanes is part of the city sounds.

Despite advice from a friend to not go to the appointment, I thought, “If anything else happens in the world today, I would be closer to the doctor than they would be.”

Eventually, I was diagnosed with inflammatory breast cancer (IBC) at the age of 40. The initial shock and fear were overwhelming, but I quickly realized that I had a fight ahead of me. The diagnosis came with hard treatment plans, including chemotherapy, surgery, and radiation.

Each step of the journey was challenging, but my faith, family, and community provided me with the strength to persevere. The experience was a turning point in my life, transforming my

perspective and deepening my commitment to helping others navigate their own cancer journeys.

Many people find it challenging to move forward after a diagnosis. What motivated you to transform your experience into something that helps others?

Before my appointment to discuss the results of the screening, I had time to pray and talk to God about what the conversation would be. Since I was not aware of breast cancer in my family, the possibility of the diagnosis was not on my radar. So, I had peace when I arrived to the appointment.

My initial motivation was not giving cancer authority over my life.

While on the journey, the friends and I brought joy and laughter to every chemo treatment which lit up the room each time. Don’t get me wrong, cancer is a serious matter, but having a positive attitude and perspective helped me and others that I met on the journey.

I felt a profound sense of gratitude for the support I received. I realized that many people facing similar diagnoses did not have the same network of support, leading us to exchanging phone numbers and support one another.

When I finished my treatment, it was time to celebrate and encourage those I met along the way. I hosted a dinner and the party theme was “Let your hair down or take it off.” This event inspired me to create Celebrate Life Cancer Ministry. My motivation came from a desire to turn my pain into purpose, and ensure that no one has to face the cancer journey alone.

We’re eager to hear about your current projects at Celebrate Life Cancer Ministry. Tell us about the work you do to improve health and wellness for others.

At Celebrate Life, our goal is to create a community of care that fosters healing and resilience. We offer a variety of programs aimed at supporting cancer survivors and their families. We provide patient navigation services, educational workshops, and wellness programs that focus on holistic health. Our initiatives include support groups, fitness classes, and nutrition seminars – all designed to empower individuals to take charge of their health.

Additionally, we host family fun nights and an annual Caravan of Hope, a mini-parade that celebrates all cancer survivors. We collaborate with local organizations to raise awareness about cancer prevention and early detection.

How do you feel your work is impacting those affected by breast cancer, whether by providing support, raising awareness, or creating resources?

The impact of our work is evident in the stories and feedback we receive from the community. Many survivors have shared that the support from Celebrate Life has been a lifeline during their treatment and recovery. By providing practical resources and emotional support, we help individuals feel less isolated and more empowered to manage their health. Our awareness campaigns and educational programs have also contributed to increased screening and early detection, which are crucial in improving cancer outcomes. The ripple effect of our efforts extends beyond individual survivors to their families and the broader community.

Many people affected by cancer want to give back. What advice or guidance can you offer to those who wish to use their journey to make a positive impact on others?

My advice to those wanting to give back is to start with their personal strengths and passions. Whether it’s sharing your story, volunteering, or starting a support group, there are countless ways to make a difference. It’s important to remember that every act of kindness, no matter how small, can have a significant impact on someone’s life. Connecting with local cancer organizations like Celebrate Life Cancer Ministry and exploring opportunities to get involved can be a great first step. Most importantly, stay authentic to your journey and let your experiences guide your contributions.

Continuing to help others while managing personal challenges is admirable. How do you keep yourself motivated and energized in your mission?

Staying motivated and energized comes from seeing the positive changes and hope we bring to others’ lives. My faith is a constant source of strength, reminding me that I am part of a greater purpose. Additionally, taking care of my own health and well-being is crucial. I practice selfcare through regular exercise, healthy eating, and taking time to rest and reflect. Surrounding myself with a supportive community and staying connected to my passion for helping others also keeps me inspired and driven.

Looking ahead, what future goals or projects are you planning to pursue to keep making a meaningful impact in the breast cancer community?

In the future, I aim to expand our outreach programs to underserved communities, ensuring that everyone has access to the support and resources they need. We are also developing new initiatives focused on mental health and wellness, recognizing the importance of holistic care in cancer recovery.

Shepherd’s Manor is a day-stay for cancer survivors and caregivers who simply need a place to chill and breathe. We look forward to allowing cancer patients to come the day of chemo and go home in 5 to 7 days when they feel better. One of the things we have noticed is many supporters are available the day of chemo; however, that is not always the “bad” day. Shepherd’s Manor will bridge that gap of time.

Additionally, I hope to collaborate with more organizations to advocate for better cancer policies and funding for research. Our goal is to create a comprehensive network of support that addresses all aspects of the cancer journey.

As we wrap up, do you have a message or lesson you’d like to share about perseverance, healing, and maintaining hope through adversity?

My message to anyone facing adversity is to: hold onto hope and never underestimate the power of community.

Healing is a journey that requires patience, faith, and the willingness to seek and accept help. Perseverance comes from believing in your own strength and the support of those around you. No matter how difficult the path, remember that you are not alone and that there is always light at the end of the tunnel.

For those who feel inspired, how can people support or get involved with your work at Celebrate Life?

Those who feel inspired to support Celebrate Life can get involved in various ways. Volunteering your time, donating to our programs, or participating in our events are all impactful ways to contribute. You can also help by spreading awareness about our mission and the resources we offer. We welcome anyone who wants to join us in creating a supportive and empowering community for cancer survivors.

For more information, please visit our website at celebratelifecm.org or contact us at 424-258-5433 (LIFE)

Finding Your Footing After a Breast Cancer Diagnosis

Written By Bernice Mason

When I was diagnosed with breast cancer, understanding medical insurance helped me solve problems in getting care and focus on healing. After I finished my treatments, I made a promise to God to devote my time, energy, and compassion to serving others in the community.

I kept my promise by starting an outreach organization in honor of my mother called Sista’s Daughters Inc. Sista’s Daughters Inc. provides community health fairs, food distributions, and educational resources to people affected by cancer in Philadelphia. It also allows me to use my 20+ years of experience in medical insurance to help people understand their policies and advocate for the care they deserve.

Here are some of my most sought after tips to better navigate healthcare after a diagnosis:

How to have effective doctor appointments

DO YOUR RESEARCH

• Use trusted medical sites to research information about your diagnosis, possible treatments and potential side effects.

• Prepare your questions before your appointment.

TAKE NOTES

• Use a note-taking app on your phone or bring a pencil and notebook to keep track of important details.

• You can also ask for permission to record the conversation.

Here are some questions to ask about your doctor about your diagnosis:

• What is my diagnosis (the identification of the disease) and prognosis (a prediction of how the disease will affect you)?

• What is the recommended treatment plan and why?

• How long will I be in treatment?

• What kind of side effects should I expect from treatment?

• How might the treatments affect my quality of life?

• What happens after treatment is completed?

• What happens if I cannot tolerate the treatments?

• Will I need to take medications after the initial treatments are completed?

• How often will I need to see the oncologist or specialists?

• Is there a professional support partner I can speak with during my journey?

• How do I prepare my family for cancer treatment?

BRING A FRIEND

• Invite a friend or family member to the appointment to serve as a second set of ears. They can also help you think of additional questions.

SPEAK UP

• Don’t be afraid to ask questions. Ask your doctor to explain medical terms in plain language.

KEEP IN TOUCH

• Ask about the best way to contact your doctor outside of appointments.

Voicing your concerns with your doctor

Your concerns, questions or comments should never be overlooked. However, if that happens, here’s some tips to address it:

• Let your doctor know you feel misunderstood or that your concerns weren’t completely addressed.

• Repeat back your understanding to the doctor and ask for clarification on anything you may have misunderstood.

• Ask if there’s someone like a nurse, nurse navigator or patient advocate who can better assist you.

• Consider seeking a second opinion with a different doctor.

• What support services (support groups, nutritionist, therapy, social worker, nurse navigator, etc.) do you offer?

• Who can I talk to if I’m having trouble getting to appointments or covering the costs of care?

What to know about your health insurance policy

Best case scenario, you want to have comprehensive medical insurance, also called major medical insurance. Comprehensive health insurance covers a broad range of services like doctor visits, hospitalization, and emergency room visits.

Here are some questions to ask about your health insurance policy:

• Are there coverage limitations for my policy? If so, what are they?

• Will my insurance plan cover the costs of specialists, hospital procedures, surgeries and outpatient treatments?

• Does my insurance cover all types of chemotherapy, including experimental and prescription medications? Also known as investigational drugs, according to the National Cancer Institute, an experimental drug is a drug that has been tested in the lab and with animals and approved for human testing from the FDA. But, the drug can’t be advertised, sold, or prescribed yet.

• What is the maximum out-of-pocket expense, the most you pay during a policy period (usually a year) before your health insurance or plan begins to pay 100% of the allowed amount?

• Is there a waiting period before certain procedures or treatments are covered?

• Can I choose my own doctors and hospitals, or do I have to use providers within a specific network?

• How are claims, a request for a benefit, processed and paid? Will I need to pay upfront and submit for reimbursement, or will the provider bill my insurance directly?

• If I need in-home care such as nurses, aides or therapists will it be covered?

• Does my plan cover transportation to and from hospital treatments?

• Will I need to obtain referrals and pre-authorizations for services provided?

• If chemotherapy weakens me, does my insurance cover walking aides like crutches or leg braces?

• Are compressions pumps and sleeves for lymphedema covered?

Hope for the healed and the healers

• If there is hair loss, does my plan cover wigs? If so, how often?

• Will this diagnosis increase my premiums?

• If I receive denials for services, what is my next step?

Tips for talking to insurance representatives

KNOW NAMES

When speaking to a representative from your insurance company, make sure you get their first name, the first initial of their last name and the name of their department, which is usually member services.

KEEP TRACK

• Make sure you keep a list of everyone you speak to, including the date and time you spoke to the representative.

• Always ask for a call reference number. This number will help the insurance company pull up a record of your previous calls.

BE PREPARED

Make sure to get all the details you can from your doctor to have handy when you reach out to member services. Some key things to ask for are:

• CPT® codes, also known as Current Procedural Terminology codes. The CPT terms and code numbers are like the go-to language in the medical field. They’re used to report procedures, process claims, do research, check healthcare use, and create medical guidelines and other healthcare documents.

• ICD-10-CM codes, also known as International Classification of Diseases, Tenth Revision, Clinical Modification codes. ICD-10-CM is like a standardized system for coding diseases and medical conditions data. Healthcare providers rely on ICD-10-CM codes for diagnosing patients.

• They might also need the doctor’s name and their NPI number, also known as National Provider Identifier, a 10-digit number that’s unique to the provider.

Have your questions written down so you are prepared and ready for the answers. If the representative seems hesitant or not confident in their responses, ask to speak to a supervisor.

If you’ve been diagnosed with cancer, I encourage you to stay focused on what matters. Take time to heal and reflect on everything you’ve gone through. Create a vision for the rest of your life and think about if you’d like to help others affected by cancer in the future.

To caregivers, know that you are irreplaceable. Continue to provide an environment of care, compassion, and concern for your loved ones. There are not enough words to express gratitude for all the comforts you provide. You are appreciated.

Sista’s Daughters is one of many great organizations supporting people affected by cancer in the Philadelphia area.

For more great resources check out:

• Fox Chase Cancer Center

• American Cancer Society

• Women of Faith and Hope

• African American Breast Cancer Alliance

• Mary’s Place by the Sea

“I Survived It.”

Award-winning

hair

stylist shares journey with male breast cancer

Interview by Jasmine Dionne Souers

When we think about breast cancer, the image that typically comes to mind is a woman undergoing treatment. However, breast cancer does not discriminate, and men, too, are at risk. Travis Douglas, an award-winning hair stylist, was living a fulfilling life filled with love, laughter, and a passion for his work when his life took an unexpected turn in 2023.

“I noticed a lump in my right breast while taking a shower. It seemed like it magically appeared because I promise you I hadn’t felt it before,” he recalls. At the time, breast cancer was the furthest thing from his mind. Travis knew breast cancer could occur in men, but it never crossed his mind that he could be one of the rare cases.

appointment. It wasn’t until a month later, when his partner nudged him and caused pain, that he remembered the lump and scheduled another appointment. This time, he underwent an ultrasound and mammogram, which led to the shocking revelation: Travis had breast cancer. “It was like a big door with hollow walls had shut,” he says, describing the moment he received the news. “I was in shock because, in the back of my mind, I couldn’t believe it was happening to me.”

1 IN 726 MEN WILL DEVELOP BREAST CANCER IN THEIR LIFETIME.

Male breast cancer is indeed rare. According to the American Cancer Society1, about 1 in 726 men will develop breast cancer in their lifetime. For Black men, the statistics are even more concerning, as studies have shown they are more likely to be diagnosed at a later stage, making treatment more challenging and outcomes less favorable. The lack of awareness and education around male breast cancer contributes to this disparity.

For Travis, the journey to diagnosis was not straightforward. He initially mentioned the lump to his doctor, but it slipped his mind during his

Travis’s treatment journey began with a mastectomy followed by chemotherapy. The physical toll of chemotherapy was difficult. He faced side effects that many associate with female breast cancer patients, such as hair loss, fatigue, and weight changes. “Watching my beard literally come out one morning in my hand was heartbreaking. My beard was my pride and joy,” Travis shares.

Beyond the physical, the emotional impact was profound, particularly around body image and intimacy. As a gay man, Travis also navigated concerns about how his changing body would affect his relationship with his partner, a topic that is often overlooked in discussions about male breast cancer.

Despite these challenges, Travis’s faith and support system have been his anchors. He speaks passionately about how his family, friends, and

clients have rallied around him, providing not just emotional support but also financial assistance during his time of need. “I used to be the one always helping others, so it felt strange and humbling to be on the receiv-

ing end,” Travis reflects. His best friend even set up a GoFundMe, raising $5,000 to help cover expenses during his recovery.

While Travis’s story is one of survival, it is also one of advocacy. He has become a vocal advocate for male breast cancer awareness, particularly within the Black community. He emphasizes the importance of early detection, self-examinations, and understanding one’s family health history. “Dis-

pel the stigma around men experiencing breast cancer at different ages,” he advises. “Perform self-examinations for early detection. Familiarize yourself with your family’s health history for better awareness and prevention.” Travis’s experience highlights the critical need for more education and resources tailored to men facing breast cancer. The medical community often overlooks the unique challenges men face during breast cancer treatment, from body image issues to the impact on relationships. Moreover, the lack of representation in breast cancer support groups can leave male patients feeling isolated. Travis found solace in the Male Global Breast Cancer Alliance Facebook group. He also connected with a local chapter of The Breasties where he became the first male member. These women provided invaluable support and information, helping him navigate the complexities of treatment and recovery.

As we continue to raise awareness about breast cancer, it’s crucial to include the voices of male survivors like Travis Douglas. His story is a powerful reminder that breast cancer affects everyone, regardless of gender. It also underscores the importance of inclusive health care that addresses the needs of all patients, ensuring that no one feels alone or unsupported in their journey.

In Travis’s words, “I survived it.” His survival is not just a personal victory but a beacon of hope and a call to action for more inclusive breast cancer education and support. As we move forward, let us remember that breast cancer does not discriminate, and neither should our efforts to fight it. Let Travis Douglas’s story inspire us to advocate for better awareness, education, and resources for all men affected by breast cancer, particularly within marginalized communities where the need is greatest.

The Light Collective:

PROTECTING THE RIGHTS AND PRIVACY OF PATIENTS

Written by Valencia Robinson

n March 2018, Andrea Downing, a moderator for a Facebook support group for cancer survivors and those at risk for cancer, started worrying about how private their information really was. After a big data breach at Facebook, she began digging into how Facebook handles data in groups. She discovered a security problem that could potentially expose personal information in closed groups, like the one she managed. Concerned, she reached out to cybersecurity expert Fred Trotter, who confirmed that this issue could affect many support groups on Facebook and could be dangerous if not fixed.

Andrea and Fred then gathered a team of cybersecurity experts and patient advocates to protect not just their group, The BRCA Sisterhood, but other online support groups as well. They were worried that if people’s private health information was leaked, it could lead to serious consequences, like losing jobs or health insurance. They also feared that this information could be misused

to harm people.

To address these concerns, they organized a meeting in 2019 with leaders from various support groups and healthcare experts. This meeting led to the creation of The Light Collective whose mission is to advance the collective rights, interests, and voices of patient communities in health technology. They seek a future where the role of patients is recognized, valued, and supported on equal footing with technology developers. at

What are your digital patient rights

Your digital patient rights are essential to ensure that your personal health information (PHI) is protected and used responsibly. Here are some key things to know about your digital patient rights:

• Access to Medical Records: You have the right to access your medical records and history. You can request copies of your digital health records, such as test results, treatments, and doctor’s notes, in both paper and electronic formats.

• Privacy and Confidentiality: Your medical records are protected by laws like HIPAA (Health Insurance Portability and Accountability Act), which ensure that your PHI is kept confidential and cannot be shared without your explicit permission, except in specific cases required by law.

• Control Over Your Information: You have the right to control who sees or uses your medical information. You’ll often need to give consent before your information is shared with healthcare providers or insurance companies, so it’s important to read these consent forms carefully.

• Sharing Data for Research: Your health data may be shared for research or to improve healthcare services, but only with your explicit consent. Again, it’s important to read these requests thoroughly before agreeing.

• Security of Digital Health Portals: Many healthcare providers offer digital portals for accessing records, scheduling appointments, and communicating with doctors. These portals are secure, but you are responsible for protecting your login information to safeguard your PHI.

• Responsibility to Protect Information: You play a role in protecting your digital health information. This means using strong passwords, logging out of portals after use, and being cautious about sharing personal information online.

How to share your story online safely

With more patients sharing their health journeys online, it’s important to be aware of the risks:

• Persistence of Online Posts: Even if deleted, posts may be archived, screenshot, or saved, and could remain accessible in the future.

• Search Engine Indexing: Over time, posts may be indexed, making them discoverable by future employers, insurers, or others.

• Potential Misuse: Companies or malicious actors could misuse publicly shared health data, leading to targeted ads, scams, or even discrimination.

• Platform Privacy Settings: Familiarize yourself with privacy settings on social media platforms and restrict who can see your posts to reduce the risk of your information being accessed by unintended parties.

Artificial Intelligence (AI) in Healthcare

As AI becomes more common in healthcare, it’s important that patients are aware of the use of it in their healthcare. AI tools can help

doctors and improve healthcare, but if patients’ voices are not heard, these tools may not meet patients’ needs or could even make existing problems worse.

The Light Collective works to ensure that AI systems are safe, fair, and respect patients’ rights. As we are working with technology developers, we are asking for the following terms to be considered:

• Data Transparency: Patients should be informed about how their data is used in AI systems, including who has access, how personal identifiers like names, addresses, and social security numbers are removed to protect privacy, and for what purposes the data is used. This would establish the requirement for clear, understandable explanations about AI’s role in decision-making processes that affect patient care.

• Auditing for Safety and Fairness: AI systems should be regularly audited to ensure they are accurate, safe, and fair. Patients and patient advocacy groups should demand ongoing oversight, ensuring that AI tools continue to meet ethical standards throughout their use in healthcare.

• Patient Involvement in AI Design: Patients should be involved in the design and testing of AI tools to ensure they reflect patient priorities and values. By engaging patient advocacy groups and individuals with lived experiences, AI developers can ensure that tools are designed with patient priorities in mind, respecting their values and needs.

• Rigorous AI Testing: AI tools must be thoroughly tested in real-world scenarios to ensure they perform safely and effectively across diverse patient populations.

• Equal Access to AI: AI technologies should be accessible to all patients, regardless of location, income level, or digital literacy.

• Human Oversight of AI: AI should enhance, not replace, human decision-making, with clinicians involved in interpreting AI outputs and making final care decisions.

How to Advocate for Your Digital Rights

You can protect your digital rights by staying informed about how your health information is being used, especially when introduced to new technologies. Ask questions, demand transparency, and get involved in discussions about how your data is used. By working together, patients and patient communities can help shape a future where health technologies are used responsibly and for the benefit of everyone.

The Light Collective is building a network of support groups and patient communities, all working together to ensure that health technologies are safe and fair for all. You’re invited to join this important work, helping to create a healthier, safer environment for everyone who relies on online support groups for their health and well-being. To learn more visit lightcollective.org

Knowing What Your Skin Needs

Written by Ann-Marie Appiah Swatson

The beauty industry has experienced rapid growth in recent years, becoming a billion-dollar powerhouse. Communication and networking, especially among women, are essential for effectively navigating the clean beauty space. These connections facilitate the sharing of knowledge and the discovery of new insights.

In line with this, Painted Pink Prevention interviewed Eunice Cofie-Obeng, President and Chief Cosmetic Chemist of Nuekie. Eunice is a recognized expert in the cosmetic and pharmaceutical industries, with a background in chemistry and molecular biology, focusing on common skin disorders, particularly among people of color.

Nuekie, a clean beauty company inspired by Eunice’s Ghanaian heritage, specializes in skincare for people of color. The company plans to release nine new products targeting acne and hyperpigmentation, tailored to meet specific demographic needs.

Understanding Ingredients and Preservatives

Eunice emphasizes the importance of understanding skincare ingredients, particularly when it comes to commonly debated ingredients like parabens. Parabens are a group of chemicals used as preservatives in cosmetics and skincare products. Their primary role is to prevent the growth of harmful bacteria and mold, extending the shelf life of products and ensuring they remain safe to use over time.

Although studies suggest parabens don’t directly cause breast cancer, parabens are known to interfere with the body’s hormonal system. According to breastcancer.org, parabens can act like estrogen which has raised concerns about their potential impact on hormone-related health issues, such as breast cancer and reproductive health problems. Because estrogen can make hormone-receptor-positive breast cancer develop and grow, some people choose to limit their exposure to the chemical.

Eunice advises consumers to explore natural alternatives and rely on trustworthy resources, such as the Cosmetic Ingredient Review, for making informed decisions about personal care products. She clarifies the distinction between stable preservatives, which are safe for use, and carcinogens, which are substances that may increase the risk of cancer. Eunice specifically mentions ultraviolet (UV) radiation as a potential carcinogen that can lead to skin cancer, explaining that UV rays are a form of energy emitted by the sun.

Critical Ingredients and Considerations

Eunice advises against using harsh exfoliants for people with acne-prone skin and recommends avoiding fragrance-heavy products for cancer patients with compromised immune systems, as these can increase sensitivity. She also highlights the potential impact of certain

medications and treatments, such as radiation and chemotherapy, which may cause changes to the skin and nails.

Vitamin D deficiency is a common issue for Black women and often comes up in discussions about sun protection. For people of color, Eunice encourages the use of physical sunscreens over chemical ones, particularly for people of color. Physical sunscreens are generally less irritating and provide effective protection without causing skin sensitivity, making them a better choice for maintaining both skin health and overall well-being.

Creating a Skincare Routine

When creating a skincare routine, Eunice emphasizes the importance of knowing your skin type to choose suitable products. She recommends a basic routine: “Many people like to do the Korean skincare that’s 12 steps, but you really don’t need all of that. I like to keep it simple – you just need a cleanser, a toner, a treatment serum, and a moisturizer.” Chemical exfoliants and gel-based cleansers are ideal for combination and oily skin, while cream-based cleansers suit dry skin.

Skincare routines can also vary across age groups. In the 20s, the focus is on acne prevention, transitioning to anti-aging in the 30s. Adjustments should be made based on hormonal shifts and seasonal changes, with specific recommendations for mask-wearing scenarios, like during the COVID-19 pandemic. “You want to create a barrier, and using Vaseline actually protects the skin’s barrier from outside elements.”

Final Tips on Skincare

Double cleansing is crucial, especially for makeup wearers. It involves

using an oil-based cleanser first to dissolve makeup, followed by a regular cleanser. This method effectively removes makeup, dirt, and debris, reducing the risk of breakouts. Aestheticians typically employ this technique during facials for thorough cleansing.

“Tretinoin is a prescription drug, basically vitamin A or retinoid prescribed for those dealing with acne, and I highly recommend it.” However, it can cause dryness and mild scaling. It is crucial to use plenty of hydrating products alongside tretinoin to mitigate these effects and ensure optimal results in the skincare routine.

Vitamin C is versatile and suitable for everyone. It excels in addressing hyperpigmentation, making it highly recommended for those focusing on anti-aging or dealing with skin discoloration.

For more tips on clean beauty and breast cancer prevention, check out the rest of our blogs. If you need additional support, the team behind Painted Pink is always at your service.

Source: Breastcancer.org - Exposure to Chemicals in Cosmetics (https://www.breastcancer.org/risk/risk-factors/exposure-to-chemicals-in-cosmetics)

The Importance of Caregiving: A Personal Journey to Purpose

Written by Ashley Dedmon

Caregiving is a role that many people find themselves suddenly thrust into. I became a caregiver at the age of 18. As I was starting my college journey with a full volleyball scholarship, my world was turned upside down with my mother’s stage four metastatic breast cancer diagnosis.

Like most teens at this time in their lives, I was eager to embrace independence and explore new opportunities, but my priorities shifted drastically. The time I spent with my mother during her illness was not a sacrifice, but a blessing. I never saw it as missing out on my college experience; rather, it was a precious opportunity to be with her, to honor her, and to support her in every way I could.

Honoring my mother as her caregiver

I remember the moment I decided to serve my mother as her caregiver. I was at volleyball practice, pushing through the weekend drills, when the Holy Spirit came over me and I asked myself “What are you doing here? You should be at home.” The decision to quit volleyball and focus on my mother’s care was instantaneous. It wasn’t a difficult choice because, in that moment, nothing mattered more than being with her.

Most of my father’s weekends were consumed by his job as a high school football coach. I wanted him to focus on his job while I took care of my mom because he was the sole provider at the time. I spent Fridays at her chemo sessions, staying with her while my dad worked. The relief he felt knowing that I was there, caring for her, allowed him to focus on his responsibilities without worry.

Caregiving for my mother involved many tasks—accompanying her to chemo, picking up food, running errands, and simply lying in bed with her, watching TV or talking about life. As her illness progressed, my role expanded to helping her with basic necessities like bathing and using the restroom. These were moments of deep connection where I could honor her in the most intimate ways.

Cancer affects the whole family

But caregiving wasn’t just about my mother; it also meant caring for my father, who was struggling with his own grief. Shortly after my mother passed away, my father was diagnosed with prostate cancer. His diagnosis felt like another blow, as if cancer was intentionally targeting my

family. I was just about to graduate from college, but I knew I needed to move back home to help him through his own journey. His health improved after treatment, and today, he is a thriving prostate cancer survivor.

The emotional and mental toll of caregiving is significant. For me, grieving was a delayed process, overshadowed by the immediate need to support my father and navigate my own fears about my health. The weight of caregiving can lead to a range of emotions, including anger and frustration. Only recently have I realized how much resentment I harbored towards cancer for tearing my family apart. This emotional journey is ongoing, as the experiences of caregiving continue to shape who I am.

Being a caregiver taught me the importance of self-education. Both of my parents were educators, and I followed in their footsteps, becoming a teacher for 10 years. In this role, I learned to ask the right questions and seek out the information I needed to protect my own health.

Having a BRCA2 gene mutation makes me more likely to develop breast and other cancers. So, in December 2016, I chose to have a bilateral prophylactic mastectomy or double preventative mastectomy, after years of early breast cancer screening. This preventive surgery was a response to my high genetic risk, considering my family’s history of breast and related cancers on both sides.

Making tough conversations easier for kids

During my recovery, I struggled to explain my surgery to my 2-year-old daughter. I realized there were few child-friendly resources for high-risk, undiagnosed individuals like myself. This gap inspired me to write “The Big Discovery,” a children’s book to help families navigate the difficult conversation about breast cancer.

“The Big Discovery” addresses the information gap for Black families facing a breast cancer diagnosis, offering culturally relevant resources. It includes stories from Black mothers, conversation starters, and educational activities, empowering families to face this challenge together.

As a mom, educator, author, and public health professional, I recognize the importance of health education tailored to Black and brown children. By providing resources that reflect their identities, we can bridge gaps in knowledge and promote health equity. I’m grateful to my parents for their openness and the safe space they provided during their cancer journeys, allowing me to cherish our time together. Additionally, I have authored “The Big Family Trip” to encourage families to discuss health history, empowering informed lifestyle and medical decisions.

Words of wisdom for caregivers

My mother’s passing was incredibly difficult and continues to be. My faith in Jesus, my family, friends, and bibliotherapy helped me navigate the grief that followed. Bibliotherapy, or therapeutic storytelling, uses literature to help individuals cope with emotional challenges. For me, it provided comfort, encouragement, and a way to process my emotions.

For young caregivers, my advice is simple yet vital: It’s not your fault. You didn’t cause the diagnosis, and while you can’t cure the illness, you can offer love, support, and presence. It’s equally important to have someone who can care for you—a caregiver for the caregiver.

There will be times when you need to step back, take a mental and emotional break, and check in with yourself. I learned that I couldn’t take my mother’s actions personally when she tried to push me away; it was her way of protecting me from the pain of watching her slowly die. In those moments, I had to love her even more fiercely.

My fellow caregivers, don’t be afraid to ask for help. Whether it’s from family, friends, church members, coworkers, or the community, it’s okay to reach out and accept support. Caregiving is not a solitary journey; it’s a collective effort that can bring strength, comfort, and healing to both the caregiver and the one receiving care.

Written by Deltra James

Long before Phyllis Wheatley, the first published African American female poet, dipped her quill in ink, black folks used creative expression to cope with hardships. In those moments in life where I’ve felt the most helpless and hopeless, I’ve always reached for a pen. I knew I didn’t always hold the power to change my story, but I could tell it and that was important and healing.

I’se still climbin’, And life for me ain’t been no crystal stair.“

- Langston Hughes, An excerpt from “Mother to Son”

This wasn’t a discovery I made so much as it is a long held, time tested tradition passed down from our ancestors. Whether stroking a brush against canvases or sewing them into patches, stories were told.

From Silent Suffering to Vocal Healing

Our stories create survival guides for others who find themselves walking a similar path. A cancer diagnosis evokes many emotions. Within our communities it’s been normalized to keep those emotions to ourselves, and it’s regarded as standing strong and not burdening our loved ones. Paul Laurence Dunbar referred to this as wearing a mask, in his poem “We Wear the Mask.”

“We wear the mask that grins and lies, It hides our cheeks and shades our eyes,— This debt we pay to human guile; With torn and bleeding hearts we smile And mouth with myriad subtleties, Why should the world be over-wise, In counting all our tears and sighs? Nay, let them only see us, while We wear the mask.”

Removing the mask we hide behind is the first step to putting ourselves and our stories out there. As the mother in Langston Hughes’ poem admits, life was a challenge. Yet, she kept going and she wasn’t ashamed of what she’d been through.

What is it you want to say about your trials and triumphs? What parts do you need to release to be fully seen?

If you find being creative challenging because you don’t feel creative or artistically blessed, remember that it’s more important that what you do feels good to you. Don’t focus on whether or not you think it’s aesthetically pleasing or the words flow well. Maybe it’s just for you, for now.

A distraction, a release of bottled up experiences and the emotions associated with them. Maybe you’ll share when you’re ready and others will feel less alone in their own experiences.

If writing poetry doesn’t come naturally to you, start reading more poetry. Seek out works that you can relate to. Immerse yourself in the words other’s have found to express a shared trial or that which you struggle to emote. You may find yourself inspired.

- Paul Laurence Dunbar, An excerpt from “We Wear The Mask”

We suffer in silence, but when we start to express our experiences and emotions, be it vocally or for creative interpretation, we begin to heal. And we draw community to ourselves when others have a “me-too” moment witnessing what we’ve lived.

“So boy, don’t you turn back. Don’t you set down on the steps ’Cause you finds it’s kinder hard. Don’t you fall now— For I’se still goin’, honey,

Many cancer centers offer art therapy and journaling workshops for patients and caregivers. There are also virtual options for added accessibility. These offerings can be a great place to begin practicing coping through creativity.

Finding What Helps You Heal

Picking up a pen is my healing weapon of choice.

Maybe you need to do more with your hands. Painting, photography, beading, pottery and other forms of crafting can often help you get out of your head. These activities can easily be done in community and offer opportunities for connection as well.

However you choose to create, you’ll be freeing yourself and those who come after you.

…but when we are silent we are still afraid

So it is better to speak remembering we were never meant to survive.

- Audre Lorde, An excerpt from “A Litany of Survival”

This is your reminder of the importance of your story, the importance of you taking up space and how you facing your hardships head on can help ease the burden of someone else walking through the same hardship. None of us experiences anything exactly the same way, just as we don’t cope the same way. This is why every story matters.

Someone needs to hear of the silver linings you sought out in the darkest moments and someone else will benefit from hearing about days when the darkness took over…and how you carried onward when you were ready.

Creating has been a constant companion through my cancer journey. A notebook in my purse has helped settle my nerves as I sat in waiting rooms before a scan. Stringing beads of colors that represent different parts of who I am has taken my mind off of the “what ifs.” Speaking my story in poetic stanzas has allowed me to feel seen while saying to others that I see them too.

You should write the poem. The one settled at the bottom of your heart, underneath the debris of the wars you survived to be standing here. Someone needs that poem. To serve as a shield. To strategically battle their way through lands you’ve already walked.

Creative Healing Activity

Poem Prompt: Finding Your Voice Amidst the Storm

In the quiet after the storm, where do you find your strength? What words rise from the depths of your soul when you think of your journey? Let your voice be the beacon that guides you through. Write a poem that expresses your truth, your resilience, and your story of hope and healing.

Example 1: Free Verse

• Write without a specific rhyme or rhythm. Let your words flow naturally, like a conversation with yourself. Focus on the emotions and thoughts that surface when you reflect on your experience.

Example 2: Haiku

• A three-line poem with a 5-7-5 syllable structure. Use this concise form to capture a powerful moment or feeling from your journey.

Prompt for both structures:

• Free Verse: “In the silence, I find my voice...”

• Haiku: “Rising from the pain, / A voice clear as morning light, / I speak, I am here.”

This is a space for you to reclaim your voice, to let it soar and be heard, as you write your story, your way.

Share your poem on social media by tagging @thebeatnikboob and @themorelifemag.

Reference: Dunbar, Paul Laurence. “We Wear the Mask.” The Complete Poems of Paul Laurence Dunbar, Dodd, Mead and Company, New York. Hughes, Langston. “Mother to Son.” The Collected Works of Langston Hughes, edited by Arnold Rampersad, University of Missouri Press, 2002. Copyright © 2002 by Langston Hughes. Lorde, Audre. “A Litany for Survival.” The Collected Poems of Audre Lorde, W. W. Norton & Company, 1997. Copyright © 1978 by Audre Lorde and © 1997 by the Audre Lorde Estate.

Resource Directory

From financial assistance and opportunities to advocate for others to family and legacy planning, this collection of resources will help you navigate all aspects of life after a breast cancer diagnosis.

Services are available nationally unless indicated by a *.

Resources by Need and Interest

Advocacy Trainings

Alamo Breast Cancer Foundation

Alamo Breast Cancer Foundation assists patients, and expands knowledge through education and community outreach

HQ: San Antonio, TX

PH: 210-692-9535

Web: alamobreastcancer.org

American Association for Cancer Research

Mission is to prevent and cure cancer through: research, education, communication, collaboration, science policy advocacy, and funding for cancer research.

HQ: Philadelphia, PA

PH: 215-440-9300

Web: aacr.org

Breast Cancer Action

Mission is to achieve health justice for all people at risk of and living with breast cancer by focusing on systemic interventions, which includes policies, institutions, and practices, and by centering people with the furthest relationships to power.

HQ: San Francisco, CA

PH: 415-243-9301

Web: bcaction.org

Breast Cancer Prevention Partners

BCPP is the leading science-based advocacy organization working to prevent breast cancer by eliminating our exposure to toxic chemicals and radiation.

HQ: San Francisco, CA

PH: 866-760-8223

Web: bcpp.org

Escape to Thrive, Bag It

Escape to THRIVE supports advocates to continue their work effectively – all with the ultimate goal of improving cancer patient education and outreach.

HQ: Tucson , AZ

PH: 520-575-9602

Web: bagitcancer.org

Facing Our Risk of Cancer Empowerment (FORCE)

FORCE improves the lives of the millions of individuals and families facing hereditary cancer.

HQ: Tampa, FL

PH: 866-288-RISK (7475)

Web: facingourrisk.org

Living Beyond Breast Cancer

Mission is to connect people with trusted breast cancer information and a community of support.

HQ: Bala Cynwyd, PA

PH: 855-807 6386

Web: lbbc.org

National Breast Cancer Coalition

NBCC combines the power of advocacy, education, policy, and research to unite around one goal: ending breast cancer.

HQ: Washington, D.C.

PH: 800-622-2838

Web: stopbreastcancer.org

Rare Patient Voice

Rare Patient Voice, LLC connects patients and family caregivers of rare and non-rare diseases with opportunities to share their opinions with companies and researchers by participating in all types of research studies.

HQ: Townson, MD

PH: 443-986-1949

Web: rarepatientvoice.com

Society for Integrative Oncology

SIO is the premier multi-disciplinary professional organization for integrative oncology.

HQ: Pepper Pike, OH

Web: integrativeonc.org

Social Health Network

A community for patients, caregivers & healthcare professionals with the goal of bringing empathy & humanity to healthcare.HQ: Philadelphia, PA

PH: 484-985-9715

Web: wegohealth.com

Susan G. Komen

Mission is to save lives by meeting the most critical needs in our communities and investing in breakthrough research to prevent and cure breast cancer.

HQ: Dallas, TX

PH: 877-465-6636

Web: komen.org

The Light Collective

Mission is to advance the collective rights, interests, and voices of patient communities in health tech.

Web: lightcollective.org

Tigerlily Foundation

Mission is to educate, advocate for, empower, and support young women (15-45), before, during and after cancer.

HQ: Stone Ridge, VA

PH: 1-888-580-6253

Web: tigerlilyfoundation.org

Young Survival Coalition

Young Survival Coalition is an international organization focusing on women ages 40 and under who are diagnosed with breast cancer.

HQ: New York, NY

PH: 877-972-1011

Web: youngsurvival.org

Blogs

Breastcancer.org

Mission is to help people make sense of the complex medical and personal information about breast health and breast cancer, so they can make the best decisions for their lives.

Web: breastcancer.org

Cure

For patients with cancer, survivors and their caregivers, CURE® Media Group’s flagship magazine and online resource curetoday.com provide access to leading resources and information that serve as a guide to every stage of the cancer experience.

Web: curetoday.com

For the Breast of Us

Mission is to empower women of color affected by breast cancer to make the rest of their lives the best of their lives through education, advocacy and community.

Web: breastofus.com

Living Beyond Breast Cancer

Mission is to connect people with trusted breast cancer information and a community of support.

Web: lbbc.org

The Peak, The Breasties

Mission is to help you reach your peaks and navigate your valleys through elevated cancer resources, impactful stories, and support.

Web: thepeak.thebreasties.org

This is Living with Cancer

Mission is to help inspire and encourage others who have been affected by cancer.

Web: thisislivingwithcancer.com

XRAY, FORCE

Provides reliable information on the latest cancer research.

Web: facingourrisk.org

Body Image, Intimacy and Sexual Health

Intimate Rose Women’s Health Products

HQ: North Kansas City, MO

PH: 888-534-7673

Web: intimaterose.com

Reclaiming Intimacy

HQ: Wayne, IN

PH: 844-407-HOPE(4673)

Web: reclaimingintimacy.org

Scientific Network on Female Sexual Health and Center

HQ: Madison, WI

PH: 952-683-9044

Web: cancersexnetwork.org

Bra, Prosthesis, Clothing and Swimwear Suppliers

Amoena

PH: 888-900-8998

Web: amoena.com

AnaOno

PH: 866-879-1744

Web: anaono.com

Busted Tank

PH: 860-248-0010

Web: bustedtank.com

Cherry Blossom Intimates

HQ: Glenarden, MD

PH: 310-580-0059

Web: cherryblossomintimates.com

*In the Pink Local

HQ: Jacksonville Beach, FL

PH: 904-372-0029

Web: jaxinthepink.com

Jodee

PH: 1-800-821-2767 Web: jodee.com

Knitted Knockers Web: knittedknockers.org

Nikola Jane

Web: nicolajane.com

*Second to Nature

HQ: Roanoke, VA

PH: 336-274-2003

Web: secondtonatureva.com

TLC, American Cancer Society

PH: 1-800-850-9445

Web: tlcdirect.org

Breast Surgery Support

Alliance in Reconstruction Surgery

Mission is to be a resource and a support system for the women who have had mastectomies as a result of breast cancer or BRCA+ genetic mutations, educating them on reconstruction options, and ultimately assisting them with the cost of reconstructive surgery.

HQ: Dallas, TX

PH: 866- 376-6153

Web: airsfoundation.org

My Hope Chest

My Hope Chest is the only national 501(c)(3) social service organization focused on providing reconstructive surgery for uninsured and underinsured breast cancer survivors.

HQ: Tampa, FL

PH: 727-642-4243

Web: myhopechest.org

Not Putting On a Shirt

Mission is to advocate for satisfactory aesthetic outcomes – as agreed upon by the mastectomy patient and surgeon(s) – for those who choose to go flat.

HQ: Pittsburgh, PA

PH: 412-407-5997

Web: notputtingonashirt.org

United Breast Cancer Foundation

Mission is to make a positive difference in the lives of those affected by breast cancer.

HQ: Huntington, NY

PH: 877-822-4287

Web: ubcf.org

Care Packages

2Live2Cure

HQ: Hood River, OR Web: 2live2cure.org

*Bella Luve’ Goes Pink, Inc.

Local

HQ: Atlanta, GA

PH: 678-824-5883

Web: BellaLuve.org

Beloved Foundation

HQ: Redlands, CA

PH: 909-792-3191

Web: belovedfoundation.com

Boxes of Hope

HQ: Mill Hall, PA PH: 570-502-2524

Web: boh4bc.org

Chemocessories

HQ: Manhattan Beach, CA Web: chemocessories.org

Chemo Comfort

HQ: New York, NY PH: 212-675-3744

Web:chemocomfort.org

Dear Jack Foundation

HQ: Littleton, CO PH: 303-579-7287

Web: dearjackfoundation.org

Do Cancer

HQ: Rancho Santa Fe, CA Web: docancer.org

Fighting Pretty HQ: Portland, OR Web: fightingpretty.org

*Painted Pink

HQ: Atlanta, GA Web: paintedpink.org Pinked Perspective

HQ: Arnold, MD

Web: pinkedperspective.com

Stronghold Ministry

HQ: Dallas, TX PH: 214-221-7007

Web: mystronghold.org

Tenaciously Teal

HQ: Oklahoma City, OK PH: 405-753-4496

Web: tteal.org

*United in Pink Local HQ: Macon, GA

PH: 478-254-5247

Web: unitedinpink.org

Clinical Trials and Research

All of Us Research

The All of Us Research Program is an ambitious effort to gather health data from one million or more people living in the United States to accelerate research that may improve health.

PH: 844- 842-2855

Web: allofus.nih.gov

Breast Cancer Trials.org

BreastCancerTrials.org (BCT) is a non-profit service that encourages individuals affected by breast cancer to consider clinical trials as a routine option for care.

HQ: San Francisco, CA

PH: 888-282-7099

Web: breastcancertrials.org

Count Me In

Count Me In is a nonprofit research initiative that enables patients to accelerate cancer research by sharing their samples, their clinical information, and their voices.

PH: 651-403-5315

Web: joincountmein.org

Dr. Susan Love Foundation

Mission is to end breast cancer.

HQ: West Hollywood, CA

PH: 310-828-0060

Web: drsusanloveresearch.org

National Cancer Institute

NCI leads, conducts, and supports cancer research across the nation to advance scientific knowledge and help all people live longer, healthier lives.

PH: 1-800-4-CANCER

Web:cancer.gov

When We Trial, TOUCH, The Black Breast Cancer Alliance

A movement to advance breast cancer science for Black women.

HQ: Annapolis, MD

PH: 443-758-1924.

Web: whenwetrial.org

Estate and Legacy Planning

American Cancer Society

HQ: Atlanta, GA

PH: 1-800-227-2345

Web: cancer.org

*Atlanta Legal Aid Society, Inc.

Local: Fulton, Dekalb, Cobb, Gwinnett, and Clayton counties

HQ: Atlanta, GA

Web: atlantalegalaid.org

Cancer Legal Resource Center

HQ: Los Angeles, CA

PH: 866-THE-CLRC (843-2572)

Web: thedrlc.org

Cancer Linc

HQ: Richmond, VA

PH: 804-562-0371

Web: cancerlinc.org

*City Bar Justice Center

Local

HQ: New York, NY

PH: 212-626-7383

Web: citybarjusticecenter.org

Judges And Lawyers Breast Cancer Alert (JALBCA)

Web: jalbca.org

Magnolia Purpose in Planning

HQ: Nutley, NJ

Web: magnoliapurposeinplanning.com

Triage Cancer

HQ: Chicago, IL

PH: 424-258-4628

Web: triagecancer.org

Financial Assistance

African American Breast Cancer Alliance

HQ: Minneapolis, MN

PH: 612-462-6813

Web: aabcainc.org/programs

Allyson Whitney Foundation HQ: Fort Myers, FL

Web: allysonwhitney.org/grants

*Angels of Hope

Local: Michigan HQ: Shelby Township, MI Web: angelsofhope.org

Cancer Care

HQ: New York, NY

PH: 800-813-HOPE (4673)

Web: cancercare.org

Cancer Financial Assistance Coalition

HQ: Bethesda, MD

Web: cancerfac.org

Do Cancer

HQ: Rancho Santa Fe, CA Web: docancer.org

Donna Foundation

HQ: Atlantic Beach, FL

PH: 1-877-236-6626

Web: thedonnafoundation.org

*Ellie Fund

Local: Massachusetts HQ: Needham, MA

PH: 781-449-0100

Web: elliefund.org

Expect Miracles Foundation

HQ: Boston, MA

PH: 617-938-3484

Web: expectmiraclesfoundation.org

Good Days

HQ: Frisco, TX

PH: 972-608-7141

Web: mygooddays.org

Infinite Strength

HQ: Madison, CT

PH: 203-812-0549

Web: infinitestrength.org

Keep A Breast

HQ: Yucca Valley, CA

Web: keep-a-breast.org

Living Beyond Breast Cancer

HQ: Bala Cynwyd, PA

PH: 855-807-6386

Web: lbbc.org

Needy Meds

HQ: Gloucester, MA

PH: 800-503-6897

Web: needymeds.org

*One Catalyst Foundation

Local: NJ, NY, PA, CT

HQ: New Jersey

PH: 609-759-0401

Web: onecatalyst.org

PAN Foundation

HQ: Washington, D.C.

PH: 866-316-7263

Web: panfoundation.org

Remember Betty

HQ: Tukwila, WA

Web: rememberbetty.com

Sisters Network Inc

HQ: Houston, TX PH: 866-781-1808 Web: sistersnetworkinc.org

Susan G. Komen HQ: Dallas, TX PH: 877-465-6636 Web: komen.org

The Pink Fund HQ: Southfield, MI Web: pinkfund.org

Unite for Her HQ: West Chester, PA PH: 610-883-1177 Web: uniteforher.org

Wish Upon a Wedding HQ: Chicago, IL Web: wishuponawedding.org

Holistic Health and Integrative Therapy

*Ballet Austin Local Austin, TX PH: 512-501-8704 Web: balletaustin.org

Do Cancer HQ: Rancho Santa Fe, CA Web: docancer.org

Healing Works Foundation Web: healingworksfoundation.org

Roots & Wings HQ: Wilmette, IL Web: rootswingsfoundation.org

Society for Integrative Oncology HQ: Pepper Pike, OH Web: integrativeonc.org

*Still Rise Farms Local HQ: Berks County, PA Web: stillrisefarms.com

*Team Survivor Austin Local HQ: Austin, TX PH: 512-630-0498 Web: teamsurvivoraustin.org

Yoga 4 Cancer HQ: Fresno, CA Web: yoga4cancer.com

Insurance

Medicare

Federal health insurance program that provides coverage to people age 65 and older and to people of any age who have been getting Social Security Disability Insurance (SSDI) benefits for at least two years.

PH: 1-800-MEDICARE (1-800-633-4227) Web: medicare.gov

Medicaid

Medicaid provides free or low-cost health insurance coverage to eligible low-income adults age 64 and under and those with disabilities.

PH: 877-267-2323 Web: medicaid.gov

Health Insurance Marketplace

A service that helps people shop for and enroll in health insurance. The federal government operates the Health Insurance Marketplace®, available at HealthCare.gov, for most states. Some states run their own Marketplaces.

PH: 1-800-318-2596 Web: healthcare.gov.

Cancer & Health Insurance, Triage Cancer Legal and practical materials and resources to help you understand and compare your options, what to do when you lose your insurance at work, and appeal denials of coverage.

PH: 424-258-4628 Web: triagecancer.org

Fertility Preservation and Family Planning

Alliance for Fertility Preservation HQ: Lafayette, CA Web: allianceforfertilitypreservation.org

Angels of Hope

Local: Will and Grundy Counties HQ: Coal City, IL angelsofhopeinc.org

Aneden Gives

Local: Pacific NW and Nigeria HQ: Seattle, WA Web: anedengives.com

Baby Quest Foundation HQ: Los Angeles, VA Web: babyquestfoundation.org

Cade Foundation Grants HQ: Owings Mill, MD PH: 410 - 998-1000 Web: cadefoundation.org

*Chicago Coalition for Family Building Local HQ: Chicago, Illinois Web: coalitionforfamilybuilding.org

*The Chick Mission Local: CA, CO, IL, NJ, NY, TX HQ: New York, NY Web: thechickmission.org

Footsteps for Fertility Grant Foundation HQ: Draper, UT Web: footstepsforfertility.org Gift of Parenthood HQ: Spring House, PA Web: giftofparenthood.org

Heartbeat, Ferring Pharmaceuticals HQ: New York, NY PH: 1-888-347-3415 Web: ferringfertility.com

Journey to Parenthood HQ: Norwood, MA Web: journeytoparenthood.org

Livestrong HQ: Austin, TX PH: 855-220-7777 Web: livestrong.org

Nest Egg Foundation Local: NY, CT HQ: Westport, CT Web: nesteggfoundation.org

Parental Hope Family Grant HQ: Cincinnati, OH Web: parentalhope.org

Reprotech: Verna’s Purse Web: reprotech.com/vernas-purse

Samantha’s Gift of Hope Web: samanthasgiftofhope.org

Team Maggie’s Dream HQ: Roswell, GA Web: teammaggiesdream.org

*The Samantha and Kyle Busch Bundle of Joy Fund

Local: NC and SC

HQ: Charlotte, NC

Web: bundleofjoyfund.org

Meal Services and Nutrition Education

American Cancer Society

HQ: Atlanta, GA

PH: 1-800-227-2345

Web: cancer.org

Cancer Nutrition Consortium

HQ: Boston, MA

PH: 844-262-4636

Web: cancernutrition.org

*Celebrate Life Cancer Ministry

HQ: Hawthorne, CA

PH: 424-258-5433 (LIFE)

Web: celebratelifecm.org

Cook For Your Life

HQ: Seattle, WA

Web: Cookforyourlife.org

Feeding America

HQ: Chicago, IL

PH: 1-800-771-2303

Web: feedingamerica.org

*God’s Love We Deliver

Local

HQ: New York, NY

PH: 212-294-8100

Web: glwd.org

Lasagna Love

Web: lasagnalove.org

*Magnolia Meals at Home

Local: NH, NY, NJ, CT, MA

Web: magnoliamealsathome.com

Meals on Wheels America

HQ: Arlington, VA

PH: 1-888-998-6325

Web: mealsonwheelsamerica.org

Meal Train

HQ: Burlington, VT

Web: Mealtrain.com

Mom’s Meals

HQ: Ankeny, IA

PH: 1-877-508-6667

Web: momsmeals.com

National Breast Cancer Foundation

HQ: Dallas, TX

PH: 972-248-9200

Web: nationalbreastcancer.org

*Painted Pink

HQ: Atlanta, GA

Web: paintedpink.org

*Pink Ribbon Good

Local: Dayton, Cincinnati and Columbus,OH, St. Louis, MO, San Francisco, CA and Buffalo, NY

HQ: Dayton, OH

PH: 877-269-5367

Web: pinkribbongood.org

Surviving Breast Cancer Org

HQ: Boston, MA

Web: survivingbreastcancer.org

*TurningPoint Breast Cancer Rehabilitation

Local

HQ: Atlanta, GA

PH: 770-360-9271

Web: myturningpoint.org

Unite for Her

HQ: West Chester, PA

PH: 610-883-1177

Web: uniteforher.org

Why Hunger

HQ: New York, New York

PH: 212-629-8850

Web: networks.whyhunger.org

Mental Health

4th Angel

HQ: Cleveland, OH

PH: 866-520-3197

Web: 4thangel.ccf.org

American Cancer Society

HQ: Atlanta, GA

PH: 1-800-227-2345

Web: cancer.org

Can Care

HQ: Houston, TX

PH: 713-461-0028

Web: cancare.org

Cancer Care

HQ: New York, NY

PH: 800-813-HOPE (4673)

Web: cancercare.org

Cancer Hope Network

HQ: Chester, NJ

PH: 877-HOPENET (877-467-3638)

Web: cancerhopenetwork.org

Cancer Support Community Helpline

HQ: Washington, D.C.

PH: 888-793-9355

Web: cancersupportcommunity.org

Do Cancer

HQ: Rancho Santa Fe, CA

Web: docancer.org

Flatwater Foundation

HQ: Austin, TX

PH: 512-553-2010

Web: flatwaterfoundation.org

*Forge Breast Cancer Survivor Center

Local: Alabama

HQ: Birmingham, AL

Web: forgeon.org

Friend 4 Life

HQ: Louisville, KY

PH: 502-893-0643

Web: friend4life.org

Imerman Angels

HQ: Chicago, IL

PH: 866-IMERMAN (463-7626)

Web: imermanangels.org

Inova Life with Cancer

Local: Northern VA

HQ: Fairfax, VA

PH: 703-206-5433 (LIFE)

Web: lifewithcancer.org

*Latinas Contra Cancer

Local: Santa Clara County

HQ: San Jose, CA

PH: 408-280-0811

Web: latinascontracancer.org

Living Beyond Breast Cancer

HQ: Bala Cynwyd, PA

PH: 855-807-6386

Web: lbbc.org

*Nueva Vida

Local: Washington, D.C. metropolitan area

HQ: Alexandria, VA

PH: 202-22-9100

Web: nueva-vida.org -

Pink Lemonade Project

HQ: Vancouver, WA

PH: 360-952-3814

Web: pinklemonadeproject.org

Pink Lotus HQ: Santa Monica, CA Web: pinklotus.com

Share Cancer Support

HQ: New York, NY

PH: 844-ASK-SHARE (844-275-7427) Web: sharecancersupport.org

Sharsheret

PH: 866-474-2774 HQ: Teaneck, NJ Web: sharsheret.org

Susan G. Komen HQ: Dallas, TX PH: 877-465-6636 Web: komen.org

*TurningPoint Breast Cancer Rehabilitation

Local HQ: Atlanta, GA PH: 770-360-9271 Web: myturningpoint.org

*Walking Miracles Family Foundation

Local HQ: Hurricane, WV PH: 304-990-8624 Web: walkingmiracles.org

Women’s Cancer Resource Center HQ: Berkeley, CA PH: 510-601-4040 Web: wcrc.org

Young Survival Coalition HQ: New York, NY PH: 877-972-1011 Web: youngsurvival.org

Non-Toxic Living

My Style Matters HQ: Atlanta, GA PH: 804-400-6082 Web: mystylematters.org

*Painted Pink HQ: Atlanta, GA Web: paintedpink.org

Think Dirty App Web: thinkdirtyapp.com

EWG’s Healthy Living App Web: ewg.org

Podcasts

Aya Cancer: Unfiltered, Elephants and Tea elephantsandtea.com

Baddie 2 Baddie Breast Cancer Podcast, For the Breast of Us

Check your favorite streaming service.

Breast Cancer Action bcaction.org

Breastcancer.org breastcancer.org

Bustin’ out of Cancer

Check your favorite streaming service.

Center for Disease Control and Prevention cdc.gov

Investigating Breast Cancer bcrf.org

Our MBC Life ourmbclife.org

Real Pink Podcast, Susan G. Komen realpink.komen.org

Surviving Breast Cancer survivingbreastcancer.org

The “Don’t Call it a Journey” Podcast Check your favorite streaming service.

The Breast of Everything compbreastcare.com

The Burn Podcast, Wildfire Community wildfirecommunity.org

Too Young For this Shit tyftspodcast.com

Retreats, Camps and Getaways for Self Care

Base 2 Summit, The Cassie Hines Shoes Cancer Foundation HQ: Washington Township, MI PH: 586-322-0991 Web: cassiehinesshoescancer.org

Big Sky Yoga Retreats HQ: Bozeman, MT Web: bigskyyogaretreats.com

Brave Hearts Camp HQ: Albany, NY PH: 570-852-3125 Web: braveheartscamp.org

Breast Cancer Recovery HQ: Madison, WI Web: bcrecovery.org

Casting for Recovery HQ: Bozeman, MT PH: 406-624-6583 Web: castingforrecovery.org

Fight through Flights HQ: Washington, D.C. Web: fightthroughflights.org

First Descents HQ: Denver, CO PH: 303-945-2490 Web: firstdescents.org

Image Reborn HQ: Salt Lake City, UT Web: imagerebornfoundation.org

Little Pink Houses of Hope HQ: Burlington, NC PH: 336-213-4733 Web: littlepink.org

Mary’s Place by the Sea HQ: Ocean Grove, NJ PH: 732-455-5344

Web: marysplacebythesea.org

Project Koru HQ: Hood River, OR Web: projectkoru.org

Send it Foundation HQ: Truckee, CA Web: senditfoundation.org

Stowe Weekend of Hope HQ: Stowe, VT PH: 309-779-8340

Web: stowehope.org

Camp Breastie, The Breasties HQ: Metuchen, NJ Web: thebreasties.org

True North Treks HQ: Evanston, IL Web: truenorthtreks.org

Wellness Retreats, Young Survival Coalition

HQ: New York, NY

PH: 877-972-1011

Web: youngsurvival.org

Support Apps

Check your smart phone’s app store for availability.

B4BC- Boarding for Breast Cancer B4bc.org

B-there App b-present.org

BC Navi App bcnavi.com

BELONG Beating Cancer Together cancer.belong.life

Cancer Community App, The Breasties thebreasties.org

CaringBridge caringbridge.org

Healthline Media: Bezzy Breast Cancer bezzybc.com

Know Your Lemons App knowyourlemons.org

Living With thisislivingwithcancer.com

OWise - Breast Cancer Support owise.us

Outcomes Me outcomes4me.com

Support Groups and Online Communities

Breast Cancer Resource Center

HQ: Austin, TX

PH: 512-524-2560

Web: bcrc.org

Breastcancer.org

HQ: Ardmore, PA

PH: 610-642-6550

Web: breastcancer.org

*Celebrate Life Cancer Ministry

HQ: Hawthorne, CA

PH: 424-258-5433 (LIFE)

Web: celebratelifecm.org

Facing our Risk of Cancer Empowered (FORCE)

HQ: Tampa, FL

PH: 866-288-RISK (7475)

Web: facingourrisk.org

For the Breast of Us

HQ: Atlanta, GA

Web: breastofus.com

*Forge Breast Cancer Survivor Center

Local: Alabama

HQ: Birmingham, AL

Web: forgeon.org

I Had Cancer

Web: ihadcancer.com

Imerman Angels

HQ: Chicago, IL

PH: 866-IMERMAN (463-7626)

Web: imermanangels.org

Inova Life with Cancer

Local: Northern VA

HQ: Fairfax, VA

PH: 703-206-5433 (LIFE)

Web: lifewithcancer.org

Living Beyond Breast Cancer

HQ: Bala Cynwyd, PA

PH: 855-807-6386

Web: lbbc.org

Pink Ribbon Good

Local: Dayton, Cincinnati and Columbus,OH, St. Louis, MO, San Francisco, CA and Buffalo, NY

HQ: Dayton, OH

PH: 877-269-5367

Web: pinkribbongood.org

Project Life

HQ: Central Point, OR Web: Projectlifembc.com

*Reconstruction of a Survivor

Local: TX and LA

HQ: Houston, TX

PH: 713-741-4422

Web: reconstructasurvivor.org

Share Cancer Support

HQ: New York, NY

PH: 844-ASK-SHARE (844-275-7427)

Web: sharecancersupport.org

The Breasties

HQ: Metuchen, NJ

Web: thebreasties.org

*TurningPoint Breast Cancer Rehabilitation

Local

HQ: Atlanta, GA

PH: 770-360-9271

Web: myturningpoint.org

Triple Negative Breast Cancer Foundation

HQ: Norwood, NJ

PH: 646-942-0242

Web: tnbcfoundation.org

Young Survival Coalition

HQ: New York, NY

PH: 877-972-1011

Web: youngsurvival.org

Transportation

American Cancer Society

HQ: Atlanta, GA

PH: 1-800-227-2345

Web: cancer.org

Cancer Care

HQ: New York, NY

PH: 800-813-HOPE (4673)

Web: cancercare.org

Pink Ribbon Good

Local: Dayton, Cincinnati and Columbus,OH, St. Louis, MO, San Francisco, CA and Buffalo, NY

HQ: Dayton, OH

PH: 877-269-5367

Web: pinkribbongood.org

Wigs and Hair Coverings

4women.com

HQ: Charlotte, NC

PH: 941-362-0250

Web: 4women.com

Coils to Locs

HQ: Dorchester, MA

Web: coilstolocsstore.com

Ebeauty Community Inc

HQ: Buckeye, AZ

PH: 612-963-0701

Web: ebeauty.com

Headcovers Unlimited

HQ: League City, TX

PH: 1-800-264-4287

Web: headcovers.com

*In the Pink Local

HQ: Jacksonville Beach, FL

PH: 904-372-0029

Web: jaxinthepink.com

Sharsheret

PH: 866-474-2774

HQ: Teaneck, NJ

Web: sharsheret.org

Style/Esteem Shop

Web: styleesteemshop.com

*The Gathering Place

Local: Ohio

HQ: Beachwood, OH

PH: 216-595-9546

Web: touchedbycancer.org

TurbanPlus

HQ: Garden Grove, CA

PH: 714-530-9590

Web: turbanplus.com

Verma Foundation

HQ: Lakeway, TX

PH: 512-582-0171

Web: vermafoundation.org

Wigs and Wishes

HQ: Sewell, NJ

PH: 856-582-6600

Web: wigsandwishes.org

Work and Career

American Cancer Society

Mission is to improve the lives of people with cancer and their families through advocacy, research, and patient support, to ensure everyone has an opportunity to prevent, detect, treat, and survive cancer.

HQ: Atlanta, GA

PH: 1-800-227-2345

Web: cancer.org

Cancer and Careers

Empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events.

HQ: New York, NY

PH: 646-929-8032

Web: cancerandcareers.org

*City Bar Justice Center

The City Bar Justice Center increases access to justice for New Yorkers struggling with poverty and systemic socioeconomic barriers by leveraging the volunteered time and expertise of the New York City legal community.

Local

HQ: New York, NY

PH: 212-626-7383

Web: Citybarjusticecenter.org

Triage Cancer

Triage Cancer is a national, nonprofit organization that provides free education on the legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources.

HQ: Chicago, IL

PH: 424-258-4628

Web: Triagecancer.org

U.S. Department of Labor

The Department of Labor (DOL) fosters and promotes the welfare of the job seekers, wage earners, and retirees of the United States by improving their working conditions, advancing their opportunities for profitable employment, protecting their retirement and health care benefits, helping employers find workers, strengthening free collective bargaining, and tracking changes in employment, prices, and other national economic measurements.

HQ: Washington, D.C.

PH: 1-866-4-USA-DOL (1-866-487-2365)

Web: dol.gov

U.S. Equal Employment Opportunity Commission

The U.S. Equal Employment Opportunity Commission (EEOC) is responsible for enforcing federal laws that make it illegal to discriminate against a job applicant or an employee because of the person’s race, color, religion, sex (including pregnancy and related conditions, gender identity, and sexual orientation), national origin, age (40 or older), disability or genetic information

HQ: Washington D.C.

PH: 1-800-669-4000

Web: eeoc.gov

Resources for Specific Demographics

Black and African Americans

2for2Boobs

Web: 2for2boobs.org

African American Breast Cancer Alliance

HQ: Minneapolis, MN

PH: 612462-6813

Web: aabcainc.org

Black Doctor.Org

HQ: Chicago, IL

Web: blackdoctor.org

Black Health Matters

HQ: Ringwood, NJ

PH: 973-333-9541

Web: blackhealthmatters.com

Black Women’s Health Imperative

HQ: Washington, D.C.

PH: 888-834-8451

Web: bwhi.org

Carrie’s Touch

HQ: Sacramento, CA

PH: 916-307-2419

Web: carriestouch.org

Center for African American Health

HQ: Denver, CO

PH: 303-355-3423

Web: caahealth.org

My Sister My Friend

HQ: Long Beach, CA

PH: 855-778-1600

Web: mysistermyfriendbcs.net

My Style Matters

HQ: Atlanta, GA

PH:804-400-6082

Web: mystylematters.org

Sisters Network, Inc

HQ: Houston, TX

PH: 866-781-1808

Web: sistersnetworkinc.org

Susan G. Komen

HQ: Dallas, TX

PH: 877-465-6636

Web: komen.org

Thelma D. Jones Breast Cancer Fund

HQ: Washington D.C.

PH: 202-251-1639

Web: tdjbreastcancerfund.org

TOUCH, The Black Breast Cancer Alliance

HQ: Annapolis, MD

PH: 443-758-1924

Web: touchbbca.org

Women’s Cancer Resource Center

HQ: Berkeley, CA

PH: 510-601-4040

Web: wcrc.org

Caregivers and CoSurvivors

American Cancer Society

HQ: Atlanta, GA

PH: 1-800-227-2345

Web: cancer.org

Cancer Care

HQ: New York, NY

PH: 800-813-HOPE (4673)

Web: cancercare.org

Cancer Support Community

HQ: Washington, D.C.

PH: 888-793-9355

Web: cancersupportcommunity.org

*Celebrate Life Cancer Ministry

HQ: Hawthorne, CA

PH: 424-258-5433 (LIFE)

Web: celebratelifecm.org

*Forge Breast Cancer Survivor Center

Local: Alabama

HQ: Birmingham, AL

Web: forgeon.org

National Breast Cancer Foundation

HQ: Dallas, TX

PH: 972-248-9200

Web: nationalbreastcancer.org

Triage Cancer

HQ: Chicago, IL

PH: 424-258-4628

Web: triagecancer.org

Young Survival Coalition

HQ: New York, NY

PH: 877-972-1011

Web: youngsurvival.org

Genetic Breast Cancer

BRCA Strong

Web: brcastrong.org

Facing our Risk of Cancer Empowered (FORCE)

HQ: Tampa, FL

PH: 866-288-RISK (7475)

Web: facingourrisk.org

Kin Talk

HQ: San Francisco, CA

Web: kintalk.org

Pink Legacy 50/50

HQ: Houston, TX

Web: pl5050.com

Sharsheret

PH: 866-474-2774

HQ: Teaneck, NJ

Web: sharsheret.org

The Breasties

HQ: Metuchen, NJ

Web: thebreasties.org

Healthcare Providers and Institutions

American Academy of Family Physicians

HQ: Leawood, KS

PH: 800-274-2237

Web: aafp.org

American Medical Association (AMA) Ed Hub

HQ: Chicago, IL

PH: 312-464-4782

Web: ama-assn.org

Academy of Oncology Nurse and Patient Navigators

HQ: Cranbury, NJ

PH: 732-992-1532

Web: aonnonline.org

American Society of Clinical Oncology

HQ: Alexandria, VA

PH: 888-282-2552

Web: asco.org

Chrysalis Initiative

HQ: Philadelphia, PA

PH: 800-929-4979

Web: thechrysalisinitiative.org

Ethnomed HQ: Seattle, WA Web: ethnomed.org

Just Ask, Duke CTSI

Web: ctsi.duke.edu/just-ask-program

Living Beyond Breast Cancer HQ: Bala Cynwyd, PA

PH: 855-807-6386

Web: lbbc.org

Oncolink HQ: Philadelphia, PA Web: oncolink.org

Oncology Nursing Society HQ: Pittsburgh, PA Web: ons.org

Teen Cancer America

HQ: Los Angeles, CA PH: 310-208-0400

Web: teencanceramerica.org

The Fenway Institute

HQ: Boston, MA

PH: 617-927-6400

Web: fenwayhealth.org

The Right Dose Web: therightdose.org

Welcoming Spaces, National LGBT Cancer Network

HQ: Providence, RI

PH: 212-675-2633

Web: cancer-network.org/welcoming-spaces

Inflammatory Breast Cancer

The IBC Network HQ: Sealy, TX

PH: 832-481-3552

Web: theibcnetwork.org

Inflammatory Breast Cancer Research Foundation

HQ: Broadway, VA

PH: 1-877-786-7422

Web: ibcresearch.org

LGBTQ+ Community

Escape HQ: Lansing, MI Web: escapeayac.org

The Fenway Institute HQ: Boston, MA PH: 617-927-6400

Web: fenwayhealth.org

LGBTQ+ Health Service Providers, CDC PH: 800-232-4636

Web: cdc.gov/lgbthealth/health-services

National LGBT Cancer Network HQ: Providence, RI

PH: 212-675-2633

Web: cancer-network.org

Transgender Cancer Patient Project Web: transcancerzine.com

Lobular Breast Cancer

The Lobular Breast Cancer Alliance PH: 800-977-4121

Web: lobularbreastcancer.org

Male Breast Cancer

Cancer Dudes Web: cancerdudes.org

HIS Breast Cancer Awareness HQ: Margate City, NJ Web: hisbreastcancer.org

Livestrong HQ: Austin, TX PH: 855-220-7777 Web: livestrong.org

Male Breast Cancer Global Alliance HQ: East Hanover, NJ PH: 866-540-8722 Web: mbcglobalalliance.org

Male Care HQ: New York, NY PH: 212-673-4920

Web: malecare.org

Reel Recovery HQ: Needham, MA

PH: 800-699-4490

Web: reelrecovery.org

Metastatic Breast Cancer

Infinite Strength HQ: Madison, CT PH: 203-812-0549

Web: infinitestrength.org

Metastatic Breast Cancer Alliance HQ: New York, NY Web: mbcalliance.org

Metastatic Breast Cancer Network (MBCN) HQ: New York, NY PH: 888-500-0370 Web: mbcn.org

METAvivor HQ: Annapolis, MD Web: metavivor.org

*Pink Ribbon Good Local: Dayton, Cincinnati and Columbus,OH, St. Louis, MO, San Francisco, CA and Buffalo, NY

HQ: Dayton, OH

PH: 877-269-5367

Web: pinkribbongood.org

Project Life

HQ: Central Point, OR Web: projectlifembc.com

Roots & Wings HQ: Wilmette, IL

PH: 973-453-6668

Web: rootswingsfoundation.org

Twisted Pink HQ: Louisville, KY

PH: 502-890-2662

Web: twistedpink.org

Parents

*A Small Miracle Foundation Mission is to to reduce barriers to beating cancer by providing quality child care. Local

HQ: Richardson, TX

PH: 469-426-7727

Web: childcareforcancerpatients.org

Bright Spot Network

Bright Spot Network provides young cancer survivors who are parents of small children with a safe space for individual and familial healing, recovery, and reconnection.

HQ: Almeda, CA

Web: brightspotnetwork.org

Camp Kesem

Supports children through and beyond their parent’s cancer with free, fun-filled creative programs and a lasting community.

HQ: Covina, CA

PH: 253-736-3821

Web: kesem.org

Camp Mak-A-Dream

Mission is to empower survivors and their families to live with and beyond cancer through life-changing Montana experiences where they strengthen life skills, gain resilience, and develop lasting relationships.

HQ: Missoula, Montana

PH: 406-549-5987

Web: campdream.org

Cancer Support Community

CSC uplifts and strengthens people impacted by cancer by providing support, fostering compassionate communities, and breaking down barriers to care.

HQ: Washington, D.C.

PH: 888-793-9355

Web: cancersupportcommunity.org

CancerCare

CancerCare is the leading national organization providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.

HQ: New York, NY

PH: 800-813-HOPE (4673)

Web: cancercare.org

Eagle Mount

Eagle Mount Bozeman is committed to provide quality adaptive recreation and sport opportunities for people with disabilities and young people impacted by cancer, and to provide support for families of participants, so that “they shall mount up with wings as eagles.”

HQ: Bozeman, MT

PH: 406-586-1781

Web: eaglemount.org

Help With Hope

Help with Hope’s goal is to support every child whose parent has been affected by cancer with compassion and understanding.

HQ: San Marino, CA

PH: 310-596-6168

Web: helpwithhope.org

*Inova Life with Cancer

Inova Life with Cancer, a program of Inova Schar Cancer, is Northern Virginia’s leading non-profit organization providing education and psychosocial support to all individuals impacted by cancer through evidence-based holistic care at no cost, no matter where treatment is received.

Local: Northern VA

HQ: Fairfax, VA

PH: 703-206-5433 (LIFE)

Web: lifewithcancer.org

Living Beyond Breast Cancer

Mission is to connect people with trusted breast cancer information and a community of support.

HQ: Bala Cynwyd, PA

PH: 855-807-6386

Web: lbbc.org

*Mommies in Need

Mommies In Need is a first of its kind nonprofit organization that supports families by providing safe, loving childcare from expert staff so family members can get the medical care they need.

Local

HQ: Dallas, TX

PH: 214-442-1614

Web: mommiesinneed.org

Well Beings Studio

Well Beings Studio engages the arts to support emotional well-being and open conversation with children, teens, and families.

HQ: Fullerton, CA

PH: 714-264-4612

Web: wellbeings.studio

Triple Negative Breast Cancer

Tigerlily Foundation

HQ: Stone Ridge, VA

PH: 888-580-6253

Web: tigerlilyfoundation.org

Triple Negative Breast Cancer Foundation

HQ: Norwood, NJ

PH: 646-942-0242

Web: tnbcfoundation.org

Young Breast Cancer Community (Under 45)

Cactus Cancer Society

Mission is to provide a safe space where young adults (ages 18-45) facing cancer can connect, cope, and thrive with one another in an online community through creativity and expression.

HQ: Oakland, CA

PH: 636-795-3617

Web: cactuscancer.org

Dear Jack Foundation

The Dear Jack Foundation provides impactful programs benefiting adolescents and young adults (AYA) diagnosed with cancer and their families to improve their quality of life from treatment to survivorship

HQ: Littleton, CO

Web: dearjackfoundation.org

Early Menopause

Mission is to make sure no woman suffers an early menopause or premature ovarian failure (POF) in silence.

Web: earlymenopause.com

Elephants and Tea

Elephants and Tea is a magazine for and by adolescent and young adult (AYA) cancer patients, survivors and caregivers telling their stories.

HQ: Avon Lake, OH

Web: elephantsandtea.com

Living Beyond Breast Cancer

Mission is to connect people with trusted breast cancer information and a community of support.

HQ: Bala Cynwyd, PA

PH: 855-807-6386

Web: lbbc.org

Red Door Community

Mission is to create a welcoming community of free cancer support, to bring knowledge, hope and empowerment to anyone and everyone impacted by cancer and their families.

HQ: New York, NY

PH: 212-647-9700

Web: reddoorcommunity.org

Stupid Cancer

Mission is to help empower everyone affected by adolescent and young adult (AYA) cancer by ending isolation and building community.

HQ: New York, NY

PH: 212-619-1040

Web: stupidcancer.org

The Cassie Hines Shoes Cancer Foundation

Mission is to guide young adults with cancer, to social support programs and services that can help them manage their mental healing as well as their physical battle.

HQ: Washington Twp, MI

PH: 586-322-0991

Web: cassiehinesshoescancer.org

The Ruth Cheatham Foundation

TRCF bridges the educational opportunity gap and provides the gateway to economic opportunity and a higher quality of life for young cancer survivors.

HQ: Dallas, TX

PH: 972-897-3371

Web: ruthcheathamfoundation.org

Ulman Foundation

Mission is to change lives by creating a community of support for young adults, and their loved ones, impacted by cancer.

HQ: Baltimore, MD

PH: 888-393-3863

Web: ulmanfoundation.org

*Walk with Sally Walk With Sally supports children impacted by cancer by providing care-centered one-toone fellowships and additional programs and services to uplift the family unit and lessen the burden of cancer.

Local

HQ: El Segundo, CA PH: 310-322-3900 Web: walkwithsally.org

*Walking Miracles Family Foundation Mission is to assist pediatric, adolescent and young adult cancer survivors to thrive throughout and beyond the cancer experience.

Local HQ: Hurricane, WV Web: walkingmiracles.org

Wildfire Community

The only magazine and writing community for the ones “too young” for breast cancer. Web: wildfirecommunity.org

Worth the Wait

Mission is to ease the burden for young adult cancer survivors pursuing parenthood by providing financial support for fertility treatments, adoption and surrogacy.

HQ: Westerville, OH

Web: worththewaitcharity.com

Young Adult Survivors United YASU helps young adult cancer survivors and caregivers/co-survivors cope and thrive by providing emotional, social, and financial support; the comprehensive care model that enhances their quality of life.

HQ: Gibsonia, PA

PH: 412-715-9700

Web: yasurvivors.org

Young Survival Coalition

Young Survival Coalition (YSC) strengthens the community, addresses the unique needs, amplifies the voice and improves the quality of life of young adults affected by breast cancer, locally, nationally and internationally.

HQ: New York, NY

PH: 877-972-1011

Web: youngsurvival.org

Additional Resources

Bag It

Provides a take-everywhere binder filled with reliable cancer information, coping tips and more, designed to organize information, appointments, and records.

HQ: Tucson, AZ

PH: 520-575-9602

Web: bagitcancer.org

Cancer.net

Provides comprehensive information for people with cancer, families, and caregivers, from the American Society of Clinical Oncology (ASCO), the voice of the world’s oncology professionals

HQ: Alexandria, VA

PH: 888-651-3038

Web: cancer.net

*Cancer Support Team

Mission is to enhance the quality of life of patients and families who live in southern Westchester and are affected by cancer.

Local

HQ: Purchase, NY

PH: 914-777-2777

Web: cancersupportteam.org

Chrysalis Initiative

The Chrysalis Initiative exists to counteract breast cancer disparities and breast health inequities using patient activation, provider education, and barrier intervention to reduce the impact of disparities in breast cancer outcomes.

HQ: Philadelphia, PA

PH: 800-929-4979

Web: thechrysalisinitiative.org

*Equal Hope

Provides access to high quality care so everyone can have the best chance at survival.

Local Chicago, IL

PH: 312-942-3368

Web: equalhope.org

National Breast Cancer Foundation

Mission is to help women now by providing help and inspiring hope to those affected by breast cancer through early detection, education and support services.

HQ: Dallas, TX

PH: 972-248-9200

Web: nationalbreastcancer.org

Pet Assistant & Wellness Program (PAW), CancerCare

Assists people undergoing cancer treatment with the challenges of keeping their cat or dog at home.

HQ: New York, NY

PH: 800-813-HOPE (4673)

Web: cancercare.org/paw

The Missing Pink Breast Cancer Alliance

Mission is advance health equity for people of color affected by breast cancer through community and collaboration.

HQ: Jacksonville, FL

PH: 904-370-3607

Web: themissingpink.org