TASCA Newsletter March 2024

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ISSUE 3 MARCH 2024 PAGE 01 Connect with TASCA: Latest News and Updates TASCA acknowledges Australia's first people as the traditional and custodians of the land on which we meet and provide our services to those effected by genetic haemoglobin conditions. We pay our respect to them and their cultures, and to elders both past and present. Stay connected, stay informed, and look forward to our monthly newsletters! 1. Bunnings Fundraiser 2. Website Update 3. Kiwanis Project 4. Thalassaemia International Federation 5. University Stalls 6. School Presentation CONTENTS Phone: (03) 7015 5637 Email: Info@tasca.org.au Address: Room 44, Barry Neve Wing Moorleigh Community Village Bentleigh East, Vic 3165 Australia

TASCA MONTHLY

FromtheChair

PatBollard

ThalassaemiaandSickleCellAustraliaChairperson

Welcome to the March edition of our newsletter! We're thrilled to share updates and highlights from recent endeavours aimed at supporting those affected by haemoglobin conditions. In this edition, we cover our successful Bunnings Fundraiser, Website update, promising collaborations with Kiwanis, and insights from the Thalassaemia International Federation. Plus, catch up on our Health Promotion Officer Sally’s impactful efforts in educating students and communities on haemoglobin conditions and the significance of blood donations. Stay connected with us for more updates and insights into our mission and progress at TASCA.

BUNNINGS FUNDRAISER

During the Labour Day long weekend, a group of dedicated committee members, volunteers and friends helped run this annual event at Bunnings Heatherton.

A hot, windy day saw us cook and serve nearly 40kgs of sausages to the many people who braved the weather, making this a successful fundraiser for TASCA. We answered questions about our work, spread awareness about both Thalassaemia and Sickle Cell Anaemia and had a great time engaging with the broader community.

A heartfelt thank you to everyone who gave their time and effort.

info@tasca org au Phone (03) 7015 5637

Email:

Address:

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TASCA MONTHLY

WEBSITE UPDATE

For the past few months we have worked with BlueShield Technologies on a revamped and updated website. I am excited to announce that our new website will be completed in the next few weeks, so please ensure you follow us on our social media for news and the launch.

We will continue to develop the functionality of our site in order to keep everyone updated and informed about our work, projects and events. Thank you to the team at BlueShield Technologies for their support, patience and diligence in helping us with this project.

KIWANIS PROJECT

Last week we met with Ian Randall, Governor of Kiwanis Australia and Angela Randall, President of Kiwanis Club Moorabbin.

Kiwanis Clubs organisations raise funds for programs focused on enhancing the health and well-being of children in the community. TASCA has had a long association with Kiwanis and our focus at this meeting was to explore ways in which we can partner to provide some exciting opportunities for our young patients and their families.

Please stay tuned for more information on our social media, our Facebook Patient Support Group page and our website.

THALASSAEMIA INTERNATIONAL FEDERATION

TIFisanot-for-profitorganisationbasedinCyprusbut affiliatedwithThalassaemiaorganisationsglobally TASCA hasanongoingconnectionwithTIFandweoftenshare newsandupdatesfromthemonresearch,innovationsand events.

LastweektheyannouncedthethemeforInternational ThalassaemiaDay,May82024.Thethemeis: “Empowering Lives, Embracing Progress: Equitable and AccessibleThalassaemiaTreatmentforAll.”

TIFalsohasalibraryofhelpfulandinformativevideoson theirwebsite.IencourageallourmemberstoexploreTIF’s work&subscribetotheirnewsletter

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TASCA MONTHLY

UNIVERSITY STALLS

In March we attended a number of university events, including Deakin University, Federation University Berwick, La Trobe University Bundoora and Bendigo.

We were able to educate students on haemoglobin conditions, carrier testing and the importance of blood donations.

SCHOOL PRESENTATION

Our Health Promotions Officer, Sally, presented to the Year 10 Biology cohort at Gladstone Park Secondary College.

Thalassaemia and Sickle Cell Australia offers schools in Victoria a free genetics presentation The presentation is meant as an introduction or revision to genetically acquired blood disorders, focusing on Thalassaemia and Sickle Cell Anaemia.

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