Declan’s Diary

17 years ago I was told my seven year old son, Declan, would be unlikely to make his 18th birthday as he was diagnosed with Duchenne Muscular Dystrophy

Since then he has lost the ability to walk, stand, use of his arms, ability to turn his head, fought pneumonia several time, survived sepsis twice, had a seven hour operation to insert spinal rods to protect his vital organs and got through the Covid pandemic unscathed, all with a smile and grace.

In May we found out his body is now too weak to fight, too weak to cope with the harsh heart medication that was helping him stay alive, too weak to see 2024.

Just like the last 17 years, Declan is dealing with this news with an inspirational outlook and grace. He is determined to make these last few months his best and to raise money for Loros Hospice along the way as his legacy.

I know that many of you hold Declan close to your hearts and will be saddened by this news. We would both like to thank everyone that has shown us both kindness over the years. Every door opened,smile given, kind words said have been much appreciated. Alex and Declan