The Sussex Heart Charity 18-19 Report

Sussex Heart Charity

Charity Report 2018 - 2019 1

The Team Terry Ayres Chief Executive Officer Matt Denison Head of Media & Development Phillip Williams Administrator Chairs Dr Rachael James - Consultant Cardiologist Mr Michael Lewis - Consultant Cardiac Surgeon Trustees Mr Ishtiaq Ahmed - Consultant Cardiac Surgeon Mrs Angela Brinkhurst - Trustee Mrs Heidi Caisley - Advanced Clinical Project Lead Dr James Cockburn - Consultant Cardiologist Mr David Fraser - Trustee Mr Arionilson Gomes - Chief Cardiac Physiologist Mr Mike Long - Trustee Dr Marco Maccario - Consultant Anaesthetist Mr JonPaul Miller -Trustee Mr Jason Palmer - Trustee and Vice Chair

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Contents A message from our CEO................................................. 5 Financials ...................................................................... 7 Railway AED Project ...................................................... 9 Advanced Clinical Practitioners .................................... 11 Enhanced Recovery After Surgery ................................ 13 Professional Development Bursaries ........................... 15 Automated External Defibrillator Grants .......................17 How you can help the SHC ............................................18

Chairs Dr Rachael James (left) and Mr Michael Lewis (far right) with Stefano and Julia Sebastianelli from Hurley Partners

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A message from our CEO We are an independent local charity that supports cardiac patients across Sussex.

Our aims and objectives are to promote the care, treatment, rehabilitation of people suffering from cardiac related illnesses and conditions.

I have been with the charity since 1996 and during this time I have seen considerable changes to patient care. I am very proud to be able to say that we have played a key role in supporting the evolution of heart care for the people of Sussex.

We have supported innovative ways of working and funded new equipment over the years. Many of these developments have now become standards of care for heart patients around the country.

My aim as CEO has been to ensure that we use the generous support we receive wisely.

We have funded major advancements in cardiac healthcare, working with some of the most qualified and experienced medical professionals in Sussex.

This booklet details some of our successes from recent years in both local communities and the Sussex Cardiac Unit.

Terry Ayres Chief Executive Officer

What we do...

Purchase innovative equipment Support Phase 4 Cardiac Rehabilitation Classes Support staff education and training Fund research and development Support and develop community projects Support the development of new services for heart patients Fund Community AED and Resuscitation Training programmes Fund provision of patient information prior to cardiac treatments

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Financials

ÂŁ1.5m ÂŁ1.3m Spent *

*

Income

91% Of our income, on average, is spent directly on charitable activities.

Current Division of Spending Small Grants

Education

ERAS Programme

ANP Programme

Division of Commitments

Community Projects 37%

Development of new services 63%

Community Projects

*Based the last five years Values are approximated for illustration purposes

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ALDRINGTON · AMBERLEY · ARUNDEL · BALCOMBE BARNHAM · BATTLE · BERWICK · BEXHILL BISHOPSTONE · BOSHAM · BUXTED · CHRIST’S HOSPITAL · COLLINGTON · COODEN BEACH COOKSBRIDGE · CRAWLEY · CROWBOROUGH CROWHURST · DOLEHAM · EAST GRINSTEAD · EAST WORTHING · EASTBOURNE · EMSWORTH · ERIDGE ETCHINGHAM · FALMER · FAYGATE · FISHBOURNE FISHERSGATE · FORD · GLYNDE · HAMPDEN PARK HASTINGS · HORSHAM · HOVE · IFIELD · LANCHING LEWES · LITTLEHAVEN · LONDON ROAD BRIGHTON MOULSECOOMB · NEWHAVEN HARBOUR NEWHAVEN TOWN · NORMANS BAY · NUTBOURNE ORE · PEVENSEY & WESTHAM · PEVENSEY BAY PLUMPTON · POLEGATE · PORTSLADE · PRESTON PARK · PULBOROUGH · REDHILL · ROBERTSBRIDGE RYE · SEAFORD · SOUTHBOURNE · SOUTHEASE SOUTHWICK · ST LEONARDS WARRIOR SQUARE STONEGATE · THREE BRIDGES · THREE OAKS WADHURST · WARNHAM · WEST ST LEONARDS WEST WORTHING · WINCHELSEA · WIVELSFIELD

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70+

Stations with SHC funded

AEDs

Railway AED Project We have pledged in excess of £100,000 for the purchase of Automatic External Defibrillators (AEDs) to be installed at rail stations across the Southern Railway network. We worked in partnership with Southern Railway purchasing and installing over 70 AEDs, making this one of the largest concentrations of AEDs on any railway network – certainly in the UK. March 2016 saw the unveiling of the first AED and since then devices have steadily been introduced, to make the Sussex railway network one of the safest, should anyone suffer a cardiac arrest.

SHC is proud to know that our work is actively saving lives. A rail passenger at East Grinstead station in late 2018 was successfully resuscitated. This proves that the project has brought real benefit and helps to safeguard railway passengers throughout the Southern Rail network.

The Rt Hon Sir Nicholas Soames MP, Maria Caulfield MP and the Rt Hon Amber Rudd MP have all expressed their interest and admiration for the project.

“This is a fantastic partnership that has the potential to save lives right across the county.

Our railways are at the heart of our communities and it’s only right that they have the machinery to aid the hearts of an unfortunate passenger who may suffer a heart attack.”

- Govia Thameslink Railway Chief Operating Officer - Nick Brown

Sussex Heart Charity and Soutern Railway staff joined by The Rt Hon Sir Nicholas Soames MP at East Grinstead station

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Advanced Clinical Practitioners In 2016 the Sussex Heart Charity agreed to work in partnership with the Brighton and Sussex Universities Hospital NHS Trust to invest £500,000 to support the development of the Advance Clinical Practitioner programme at the Sussex Cardiac Centre.

Advanced Clinical Practitioners (ACP) are highly trained specialist nurses and allied health professionals who are able to fulfil the roles previously provided by junior doctors. The clinical practitioner team will be able to fully assess patients, request and review investigations and formulate patient management plans in conjunction with the surgical and anaesthetic teams.

“These practitioners are highly experienced and educated members of the team who are able to diagnose and treat patients who are undergoing cardiac surgery. They are offering an advanced level of care for patients on the Cardiac Intensive Care Unit and on the ward.”

- SHC Chief Executive Officer - Terry Ayres

The Sussex Cardiac Centre is the first cardiac surgery unit in the country to move to a standalone Advanced Clinical Practitioner care service. This model of care has been shown to improve patient safety and quality of care. ACP teams will improve patient flow through the cardiac unit and reduce length of stay.

In addition the ACP teams will maximise junior doctors’ training opportunities. This will ensure high quality trainee applications going forward, further enhancing patient care.

We will continue to support this project until the expected completion period towards the end of the financial period 2019/20.

£ £500,000 pledged

Enhancing the quality of care

Multidisciplinary Team Working

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Enhanced Recovery After Surgery The aim of the Enhanced Recovery After Surgery (ERAS) programme is for patients to return to full health as soon as possible after their operation. Research has shown that the earlier a patient gets out of bed and starts eating and drinking, the quicker their recovery. The programme begins before the operation, progresses whilst in hospital and continues when they are back at home. There are many ways a patient can speed up their recovery and the ERAS programme enables the patient to take an active role in the preparation for surgery and recovery.

Enhanced Recovery has been shown to reduce length of stay and improves patients’ and families’ satisfaction. However, only a minority of centres in the UK have ER pathways.

Benefits

Better patient experience – patients will not be spending unnecessary days in hospital before and after surgery.

Patient safety- a shorter length of stay in hospital can potentially reduce the incidence of hospital acquired infections.

Potential early return to work and reduced social & financial impact.

Bed management is easier to predict. This in turn may reduce waiting times for other patients.

Our prediction was for 10% of the patients to be eligible for the ERAS programme based on 650 patients per year. Our ERAS nurse has already exceeded this number and by May 2019 over 150 patients will have completed the programme during the 12 month period saving an estimated 150 bed days.

Faster patient recovery

Big savings for the NHS

150 Patients by 4/19

Hospital stays reduced from 7 to 4 days

Fewer readmissions

Fantastic feedback from patients

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Professional Development Bursaries We continue to support education for cardiac staff at BSUH. This allows the award of a maximum of £400 per annum, per cardiac centre staff member e.g. nurses, physiologists, perfusionists and ODPs seeking funding to attend a course or conference which will benefit patient care. We allocate £25,000 each year to support the ever increasing demand to enable the best quality of education and professional development.

13 attended the Society for Cardiothoracic Surgeons Conference 7 attended the British Association of Cardiovascular Prevention and Rehabilitation (BACPR) 7 attended Cardiac Adult Life Support ‘Train the Trainer’ Course 6 were funded for 12 Lead ECG Course 4 attended European Association for Cardiothoracic Surgery Conference 4 attended Enhanced Recovery after Surgery Conference 4 attended the ICU Symposium Course 3 attended British Society of Echocardiography Conference 3 attended British Society of Heart Failure Conference 3 attended the Heart Rhythm Congress 3 funded for Advanced Airway Management Course 3 funded for Acute Coronary Syndromes Course 3 attended the Heart Rhythm Congress 2018 2 attended Annual London Ventricular Tachycardia Symposium Conference 2 attended Society for Minimally Invasive Cardiac Surgery Society Conference 2 attend Cardiac Basic Surgery skills Course 2 attended Association of Anaesthetists Trainee Conference 2 attended the SCTS Examination Revision Course 13 were awarded for other various cardiac based courses or modules

During 2018/19 we awarded 86

Bursaries 15

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Automated External Defibrillator (AED) Grants In addition to the Southern Rail AED project, we have set aside £20,000 (£40,000 over 2 years) to fund small equipment requests from various groups throughout Sussex.

1 x AED Royal Oak Public House Haywards Heath 1 x AED East Brighton Park – ParkRun - Brighton 1 x AED Beechwood Hall Trust - Hamsey - Lewes 1 x AED Hollingdean Centre - Brighton 1 x AED Angmering Baptist Church – West Sussex 1 x AED Bevendean Park Run - Brighton 1 x AED Southwick Community Church - Portslade 1 x AED Cleveland Arms Community - Brighton 1 x AED The Drive Bowls Club - Hove 1 x AED East Chilitington Village Hall - Lewes 1 x AED Cornerstone Community Centre - Hove 1 x AED The Black Swan Village Pub- Pease Pottage 2 x AED for community group in Battle and Hastings 1 x AED St Michaels RC Church - Worthing 2 x AED Whitemans Green sport field and village store - Cuckfield 1 x AED St Michaels Hall- Chichester 1 x AED Midhurst Community Club – Midhurst- West Sussex 1 x AED F45 Health and Fitness Club – Brighton 1 x Rainbow Hub - Brighton 8 x AED in various locations in the Adur District Council

During 2018/19 we funded

AEDs

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How to help the SHC Donate Regularly

One-Off Donation

Fundraise

£35

£3

£20 £50,000 £40 £1,000

£50 £5 £10

£30 £25 £100 £75 £10,000 £15 £60 £80 £45 £12 £7 £2,000

Spread the financial impact of your giving throughout the year.

Regular donations help us plan and budget more effectively, maximising the impact of your donations on our work.

Your donation, however big or small will help us continue with our work.

Fundraising allows you to raise funds with friends, family and colleagues.

One-Off donations can either be directed to our General Fund or restricted for use for a specific project.

Track your progress against your own fundraising goals and post updates to your own fundraising page.

For less than the price of a cup of coffee, you could be part of something which saves countless lives across our county.

Donations will automatically get sent to us, including GiftAid if applicable.

Corporate Partnerships

Corporate Partnerships are collaborative agreements between a business and a charity.

Corporate Partners help us to maximise our capacity to fund bigimpact and innovative campaigns.

Brand Alignment will mutually boost exposure throughout the county, helping us reach more supporters whilst helping your business reach more customers.

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Research shows that when faced with a choice between two companies that offered products and services for the same price, UK consumers are more likely to base their decision to purchase on whether a company is engaged with charities and its local community.

82% of 1,100 customers surveyed

Great PR Brand awareness Staff engagement Creative opportunities Increased credibility A rise in profits Client loyalty

Yet more ways to help Social Media

If you use Social Media, Like, Follow and Share our pages.

By engaging with us you can be sure that we will reach new people who could benefit from the work that we do.

A simple Like or Share could save a life, it’s quick and easy to do and is the most cost effictive way to help boost our exposure.

A lasting gift

Make a donation to the SHC in lieu of floral presents or tokens of rememberance.

Floral presents don’t last forever but your donation could go towards funding life saving equipment or services which could change the standard of cardiac care for years to come.

Leave a Legacy

After you have considered your loved ones, you may wish to leave a gift in your Will and pass on something wonderful to future generations.

The donation can be as small or large as you like – every gift makes a big difference.

It’s a little-known fact that many smaller charities wouldn’t survive without gifts in Wills.

How much does our work cost?

£10

£50 to

£500

Could buy 10 printed patient information handbooks

Could send a member of nursing staff to an educational conference

Could buy 23 portable Heart Rate Monitors for heart patients

£1,480

£3,670

£10,000

Could buy a Public Access Defibrillator for a local community

Could train an Advanced Nurse Practitioner for a one month

Could fund innovative equipment for heart patients

£400

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Sussex Heart Charity

Saving lives in Sussex www.sussexheartcharity.org info@sussexheartcharity.org Tel: 01273 523 026 Southpoint, 8 Paston Place Brighton East Sussex BN2 1HA Find us on: Facebook JustGiving Amazon Smile Give As You Live 20

THE SUSSEX HEART CHARITY IS A REGISTERED CHARITY NO. 1120998 REGISTERED AS A COMPANY LIMITED BY GUARANTEE IN ENGLAND & WALES NO. 6339790