Affiliate Leadership Conference 2016 Empowering Our Communities
DETROIT, MI
November 13 to November 16, 2016 at the Detroit Marriott at the Renaissance Center, Detroit, Michigan
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THANKS TO OUR SPONSORS! diamond sponsors
platinum sponsors
gold sponsors
silver sponsors
bronze sponsors Agios
Helsinn
Taiho Oncology, Inc.
Biotechnology Innovation Organization
ImpediMed
Takeda Oncology
Janssen Oncology
Gilead Sciences, Inc.
TESARO, Inc.
Medivation, Inc. SPONSORS AS OF OCTOBER 30, 2016
Dear Colleagues,
TABLE OF CONTENTS
WELCOME TO THE 2016 AFFILIATE LEADERSHIP CONFERENCE!
Funny story… I put Gilda’s Club Metro Detroit’s name in the hat for conference consideration as a way to show team spirit. I was hoping in the next four years or so, we’d be chosen to host. Well, imagine our surprise! That surprise has become a delight and source of pride for us at Gilda’s Club Metro Detroit.
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The theme this week, “Empowering Our Communities,” makes Detroit a perfect location. For any organization—any city to perform at its best—each stakeholder must feel connected. This week connects us all in the most amazing way possible. We connect so no one faces cancer alone® Ever! Welcome, and enjoy this empowering week together.
Laura Varon Brown Executive Director & CEO Gilda’s Club Metro Detroit
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4-5 Conference Information 13-21 Speakers 22-23 Attendees 24 Notes
Affiliate Leadership Conference 2016
On behalf of myself, our staff and Board of Directors and of course our extraordinary ALC planning committee, welcome to Detroit! You’ll see deep rooted pride throughout our city. You’ll see beauty, grit and humor—like our passionate visionary, Gilda Radner. Gilda was raised in Detroit, making our affiliate roots deep and storied.
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Conference Information
ABOUT THE CANCER SUPPORT COMMUNITY As the largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community (CSC), inclusive of its Gilda’s Club Affiliates, is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. CSC achieves its mission through three areas: direct service delivery, research, and advocacy. The organization includes an international network of Affiliates that offers the highest quality social and emotional support for people impacted by cancer, as well as a community of support available online and over the phone. The Research and Training Institute conducts cutting-edge psychosocial, behavioral and survivorship research. CSC furthers its focus on patient advocacy through its Cancer Policy Institute, informing public policy in Washington, D.C. and across the nation. For more information, please call the toll-free Cancer Support Helpline at 888-793-9355, or visit www.CancerSupportCommunity.org. So that no one faces cancer aloneŽ
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Conference Goals
1. To increase the capacity of attendees to develop, implement and advocate for effective, evidence-based psychosocial care for people affected by cancer in their communities. 2. To bring together leaders to promote and enhance affiliate collaborations to more effectively address national and local responses to take on cancer together. 3. To provide a space for affiliate leaders to network, share best practices and hear from experts, thereby furthering their knowledge and expertise regarding development, program, media relations, policy, and research.
2016 CONFERENCE PLANNING COMMITTEE Laura Varon Brown Conference Chair — Executive Director, Gilda’s Club Metro Detroit
Eric Richards President/CEO, Cancer Support Community Central Indiana
Stacey Balkanski, LCSW Program Director, Gilda’s Club South Florida
Bev Soult President/CEO, Cancer Support Community Central Ohio
Donetta Behen Board Chair, Gilda’s Club Detroit Meghan Mair Crosslin Marketing Director, Gilda’s Club Detroit Alyson Hartsock Development Director, Cancer Support Community Arizona LauraJane Hyde CEO, Gilda’s Club Chicago
Daniela Cracolici Coordinator, Affiliate Relations, Cancer Support Community Victoria Kennedy VP, Program Development & Delivery, Cancer Support Community Jay Lockaby SVP, Affiliate Relations & Strategic Growth, Cancer Support Community
Rosie Morrison, LLMSW Program Director, Cancer Support Community Greater Ann Arbor Gretchen Ramstetter Development Director, Cancer Support Community Greater Cincinnati- N. Kentucky
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Course Descriptions Sunday, November 13, 2016 12:00pm – 4:00pm
Conference Registration Brule A
12:00pm – 4:00pm
Affiliate Council Meeting (open to Affiliate Council Members only) Brule A
5:00pm – 6:30pm
Welcome Reception ilda’s Club Metro Detroit G Buses will be available for transportation at 4pm. Please arrive promptly in the hotel lobby.
7:00pm Local Board Chair Dinner Andiamo Detroit Riverfront- 400 Renaissance Center Suite A-403
osts: Kim Thiboldeaux, CEO H Jill Durovsik, Chairman of the Headquarters Board
Monday, November 14, 2016 7:30am – 8:45am Conference Registration Ambassador 1 7:30am – 8:45am
Breakfast Ambassador 1
7:30am – 8:45am Affiliate Council Breakfast
(open to incoming and outgoing AC Members) Ambassador 1; move to Marquette A & B
8:45am – 9:30am Conference Opening Remarks: Empowering Our Communities Ambassador 1
Presenters: Kim Thiboldeaux, CEO, and Jay Lockaby, MSS, MLSP, SVP, Affiliate Relations & Strategic Growth 9:30am – 10:45am Plenary: Implications of the 2016 Election Ambassador 1
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Monday, November 14, 2016 (Continued) resenter: Peter D. Jacobson, JD, MPH, Professor of Health Law and P Policy, Director, for Law, Ethics, and Health, University of Michigan School of Public Health 9:30am – 10:45am CSC Affiliate Advocates in Action Ambassador 1
Moderator: Libby Mullin, Policy Consultant Panelists: Christy Andrews, Executive Director, CSC Atlanta; Bev Soult, CEO, CSC Central Ohio; Lannia Stenz, Executive Director, Gilda’s Club Madison; Becky Franks, Executive Director, CSC Montana 10:45am – 11:00am
BREAK
11:00am – 11:45am Plenary: Welcome to Detroit: Strong and Getting Stronger Ambassador 1
Presenters: Mitch Albom, Author, and Dr. Joneigh S. Khaldun, MD, MPH, Medical Director of Detroit Health Department 11:45am – 12:15pm
BREAK
12:15pm – 1:15pm Lunch Plenary: Your Brand’s Health—How to Leverage Your Brand for Better Marketing & Sponsorship Results Ambassador 1
Presenter: Craig Lerner, Founder of Involve & Board Member, CSC Central Ohio Marketing and branding are part art and part science – distinctive and symbiotic tools. Understanding and learning to correctly and effectively use branding, marketing, advertising and selling principles will help you look like a rock star within your organization and, more importantly, will maximize the return on your marketing efforts. We will explore more than definition, but practical use and application of fundamental branding and marketing principles. Today, every brand and organization is faced with pressure to market and pressure to sell so we can have successful, thriving organizations. On the outside, we are facing tougher, and more competitive environments everyday. And on the inside, well, those environments can be even tougher. Branding and marketing are essential to the health of any business. You want your constituents to think of your brand as filled with vitality, brimming with wellness – you want others to see it as active. This plenary covers your journey to vitality and becoming a well brand. Branding and Marketing are key pillars in your organizations wellness. You’ll learn how to optimize when it comes to branding and marketing, how to know if you are looking at brand the right way and how to leverage your brand to achieve your objectives.
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Course Descriptions (Continued)
Monday, November 14, 2016 (Continued) 1:15pm – 2:15pm Plenary: CSC Shared Marketing Initiative: Network Collaboration at its Best Ambassador 1
Presenter: Jay Lockaby, MSS, MLSP, SVP, Affiliate Relations & Strategic Growth, and Maggie Bahler, Marketing Director, Gilda’s Club Chicago Panelists: Debbie Beyer, Development Director, CSC Central Ohio and Christy Andrews, Executive Director, CSC Atlanta Come and learn how we TAKE ON CANCER TOGETHER® in this Affiliatedriven initiative as we work collaboratively to optimize our marketing impact across the network.
2:15pm – 2:30pm
BREAK
2:30pm – 3:45pm
Plenary: Macro Trends In Philanthropy and What They Mean to You! Ambassador 1
Presenter: Dave Sternberg, Loring, Sternberg, & Associates Just what is happening in our sector? What does giving look like and what are the environmental factors worth knowing? Learn the most current trends and issues and see how they impact your ability to raise money annually or for that capital campaign!
3:50pm – 5:15pm BREAKOUT SESSIONS EDs/CEOs & Development: Media Relations 101 Brule A & B
Moderator: Laura Varon Brown, Executive Director, Gilda’s Club Metro Detroit Panelists: Karen Bouffard, Health Care Writer, The Detroit News; Kristen Jordan Shamus, Columnist, writer, editor, Detroit Free Press; Nima Shaffe, Reporter/Anchor, WXYZ-TV Detroit uring this interactive session, a panel of Detroit media representatives will D share their perspective on the art of effective media relations, and provide best practices on obtaining earned media opportunities. Enhance your ability to build relationships with media representatives, create a media plan, pitch stories, write press releases, and create media kits that will catch the interest of your outlets.
Program: Self-Care & Managing Compassion Fatigue Richard A
Presenter: Michelle Warren, LMSW, Women’s Wellness Director, Relationship Institute Compassion fatigue is considered a natural consequence and by-product of caring for, listening to, and helping those traumatized by life circumstances including illness. Michelle Warren, LMSW, will discuss strategies to manage symptoms of compassion fatigue and vicarious trauma along with how to care for yourself and your staff to avoid burnout.
Board: Dedicated Session Richard B
Presenter: Dave Sternberg, Loring, Sternberg, & Associates Join us for a dedicated session with Dave Sternberg, to engage and ask questions about philanthropic trends and tendencies and more! 8
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Monday, November 14, 2016 (Continued) 5:30pm – 6:15pm
Optional Networking Happy Hours (on your own)
6:15pm
Optional Networking Dinners Groups will meet in the hotel lobby at 6:15pm to depart
ED/CEO Dinner: Townhouse, Whiskey Lounge: 500 Woodward Ave. Program Dinner: Small Plates: 1521 Broadway St. Development Dinner: Grand Trunk Pub: 612 Woodward Ave. Board Chair/Member Dinner: Townhouse: 500 Woodward Ave.
Tuesday, November 15, 2016 7:30am – 8:45am Breakfast Ambassador 1
8:30am – 8:45am Tribute to Gene Wilder Presenter: Joanna Bull, Founder, Gilda’s Club 8:45am – 9:45am Plenary: Program Innovation: Psychosocial Support in a New Era of Cancer Care Ambassador 1
resenters: Vicki Kennedy, LCSW, VP, Program Development P & Delivery, and Amy Sutton, Executive Director, CSC Central NJ Cancer treatment, payment reform, and how care is being delivered is changing at breakneck speed. There has never been a more important time or better oppportunity to position CSC programs and services as a pivotal solution not only for people impacted by cancer but for the health care system itself. Learn about the progress CSC is making in the implementation of distress screening and how our comprehensive program model is evolving as we explore new models of integration with providers testing alternative payment models. Through collabrative partnerships between headquarters and affiliates, exciting new models are emerging that will not only enable CSC/GC to reach more people at the time of greatest need but could lead to new revenue models for CSC.
9:45am – 10:45am Plenary: News You Can Use! Cancer Experience Registry and RTI Update Ambassador 1
Presenter: Joanne Buzaglo, PhD, Sr. VP, Research & Training This session is designed to familiarize Affiliates with cutting-edge CSC research in relation to the human experience with cancer, cost effectiveness, value and other exciting initiatives. Attendees will gain insight into how this data and the research arm of CSC can be a beneficial asset as it relates to Affiliate clinical program planning and delivery, development, marketing and communications.
10:45am – 11:00am
BREAK
11:00am – 12:00pm
BREAKOUT SESSIONS
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Course Descriptions (Continued)
Tuesday, November 15, 2016 (Continued) EDs/CEOs: Dedicated Session Richard B
Presenter: Jonathan Schick, President of GOAL Consulting Join us for a facilitated discussion around effective Board/CEO partnerships.
Program: Role of Individual Counseling at CSC: Best Practices Richard A
Facilitator: Sara Goldberger, LCSW-R, Senior Director, Program Sara Goldberger, LCSW-R, will facilitate a discussion on the findings of the GC/CSC workgroup tasked with studying how individual counseling is being implemented across the network. Information, guidelines, and templates for this optional segment of the CSC Program model will be provided.
Development & Board: How to Create & Implement an Effective Donor Retention Plan Brule A & B
Presenter: Brian Lauterbach, CFRE, Vice President, Impact & Capacity Building at Network for Good In this special workshop Brian Lauterbach will guide us through how creating a no-cost, high-impact donor retention plan that will help you not only retain donors, but set the stage for them to increase their support or enter into a monthly giving program. Learn how to identify, overcome and prevent the organizational behaviors that lead to donor attrition donor attrition. Attendees will be able to download, customize and implement a 12-month donor retention plan that can be put to immediate use.
12:00pm – 1:30pm Box-Lunch (Provided for all) Ambassador 1
CHOOSE ONE OF THE FOLLOWING:
Until20 Film Ambassador 1 Until20 is an award-winning, powerful documentary about the pursuit of a good life. It tells the inspirational story of James Ragan - a pediatric cancer patient and a promising NCAA Division One golfer who dedicated his life to trying to save the life of the next kid with cancer before his time ran out. This documentary chronicles how this extraordinary teen turned devastating odds into a personal mission to live an audaciously good life. James’s story will encourage you to make the most of every day.
Brule A & B
Richard A
Richard B
1:40pm – 2:40pm
BREAKOUT SESSIONS
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Capitol Hill Visit Training Development Mentorship Mixer Open Seating
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Tuesday, November 15, 2016 (Continued) EDs/CEOs & Board: Principles of Successful Board/CEO Partnerships Brule A & B
Presenter: Jonathan Schick, President of GOAL Consulting Nonprofit boards are often riddled with political and functional challenges that creep into the running of the organization, conflicting with operations and inhibiting effectiveness, despite everyone’s devotion to the same set of goals. In this session, you will discover the simplest, but often overlooked, keys to strong Board/CEO relationships, uncover strategic ways to empower all members of your board, and develop skills to effectively set achievable goals and evaluate performance.
Program: Demonstrating Program Impact—Methods & Analysis Richard A
Presenter: Brad Zebrack, PhD, MSW, MPH, SAPOS, University of Michigan School of Social Work Brad Zebrack, PHD, MSW, MPH, SAPOS professor at the University of Michigan School of Social Work and expert in health behaviors and outcomes research, will discuss strategies for quantifying social services and their outcomes for the purposes of program evaluation, reporting, grant-writing and more.
Development: Creating Impact Reporting with Compelling Messaging Richard B
Presenter: Tiffany Boyles, Corporate Social Responsibility, Engagement and Philanthropic Giving, Western Union Foundation This exciting session will provide attendees with tools and strategies to better disseminate compelling data to donors through creative messaging and best practices. Learn about the power of showing donors the results and value of their gifts, creating a direct impact on fundraising and donor retention.
2:45pm – 3:45pm Plenary: Legacy Giving 2.0 Ambassador 1
Presenter: Bryan Clontz, President of Charitable Solutions, LLC A robust presentation on applicable tools related to legacy giving.
3:50pm – 4:50pm
BREAKOUT SESSIONS
EDs/CEOs & Board: Dedicated Session Brule A & B
Presenter: Bryan Clontz, President of Charitable Solutions, LLC Join us for a dedicated session with Bryan Clontz to discuss legacy giving.
Program: Enhancing Clinical Supervision at CSC (until 5:20pm) Richard A
Presenter: Daicia Price, LMSW, University of Michigan School, Social Work of Field Instruction Price, LMSW, will offer an interactive workshop on best practices in
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Course Descriptions (Continued)
Tuesday, November 15, 2016 (Continued) clinical supervision. This presentation will offer an opportunity to build upon the CSC/GC Program model and explore new strategies to support your clinical staff.
Development: Innovative Fundraising—What Are you Doing? Richard B
Moderator: Gretchen Ramstetter, Development Director, CSC Greater Cincinnati / Northern Kentucky This interactive roundtable discussion will focus on various topics outlining affiliate best practices and innovations to improve fundraising results and donor retention rates. Learn what your counterparts are doing with spotlight topics including special events, major gifts, converting participants to donors, annual appeals, capital campaigns, social enterprises, crowdraising, foundation giving, and more!
6:00pm – 6:30pm EDs/CEOs: Happy Hour Host: Kim Thiboldeaux, CEO Program: Happy Hour Host: Vicki Kennedy, LCSW, VP, Program Development & Delivery 6:30pm – 9:00pm Motown Party 42° North As The Jackson 5 once said, “CSC is hosting the ALC”. Join us for a night of laughin’, singin’ and swingin’ music as we celebrate our Affiliate network and all the great work we do!
Wednesday, November 16, 2016 6:45am – 7:30am Multiflow Level Yoga Marquette B
Led by Becky Franks, Executive Director, CSC Montana 7:30am – 8:45am Breakfast Ambassador 1
8:45am – 10:00am CSC Town Hall Meeting: Join the Dialogue with CSC Leadership Ambassador 1
Moderators: Lannia Stenz, Affiliate Council Chair & ED, Gilda’s Club Madison, and Mirchelle Louis, LCSW, CEO, CSC North Texas Panelists: Kim Thiboldeaux, CEO; Linda House, President; Chris Lockett, EVP, Mission Delivery; Jay Lockaby, SVP, Affiliate Relations & Strategic Growth; Joanne Buzaglo, PhD, SVP, Research & Training; Vicki Kennedy, LCSW, VP, Program Development & Delivery Don’t miss this opportunity to participate in a robust discussion and question and answer session facilitated by leadership from the Affiliate Council with CSC Leadership from Program, Research & Training, Policy and Administration.
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Wednesday, November 16, 2016 (Continued) 10:00am – 10:30am Celebrating Awards & Milestones across CSC Ambassador 1 Stay for a drawing of two free registrations to the 2017 Affiliate Leadership Conference in Washington, D.C. Must be present at 11:30am on Wednesday 11/16 to win!
10:30am – 11:30am Conference Closing Address: Compassion & Inspiration, Celebrating the Great Work We Do Ambassador 1
Presenter: Michelle Warren, LMSW, Women’s Wellness Director, Relationship Institute 11:30am
Conference is Adjourned
Please Join Us for our Second Annual Hot Topics in Psychosocial Oncology 11:45am – 12:45am Hot Topics Registration (boxed lunch provided) Ambassador 1
12:45pm – 5:00pm Hot Topics in Psychosocial Oncology, Continuing Education Seminar for Health Professionals Please refer to Hot Topics program Outstanding speakers from the Detroit area on a variety of topics related to caring for people impacted by cancer. Open to all Affiliate staff, free of charge and to Detroit cancer care providers for a registration fee. CEUs available for social workers.
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Speakers Mitch Albom Author/Journalist Mitch Albom is an internationally renowned and best-selling author, journalist, screenwriter, playwright, radio and television broadcaster and musician. His books have collectively sold more than 35 million copies worldwide. Inspired by visits with his dying professor, Morrie Schwartz – who told him “Giving is living,” Mitch began to form charities. He has ten independent efforts, helping those in need. Mitch is a columnist for the Detroit Free Press and has lived in Michigan for more than 20 years.
Karen Bouffard Health Care Writer The Detroit News Karen Bouffard has a special interest covering the health risks faced by children in Detroit and her reporting has been nationally recognized. Karen was a 2013 National Health Journalism Fellow with the University of Southern California’s Annenberg School of Journalism. In December, she partnered with PBS NewsHour on a special report highlighting how emotional trauma and toxic stress contribute to high asthma rates among Detroit children. Karen has been with The Detroit News since 2002, covering a variety of topics from education to human services and state politics. She previously worked in public relations for nearly 20 years. She is a Detroit native and a graduate of Michigan State University.
Tifany Boyles Corporate Social Responsibility Western Union Foundation Tifany Boyles is a philanthropic professional who has worked with organizations such as UNICEF, Kiwanis International, Girl Scouts, Western Union Foundation, and the American Heart Association. She has experience with operations, fundraising,
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marketing and partnership development and has a Master’s Degree in Philanthropic Studies through the Lilly School of Philanthropy at Indiana University. She is a frequent speaker for philanthropic organizations and curently lives in Colorado with her family where they enjoy the outdoors and the arts.
Kristin Bull Assistant Managing Editor Crain’s Detroit Business When Kristin first joined Crain’s, it was as a Web editor. Kristin has a rich background as a freelance writer and editor, working across media disciplines and outlets. She brings that broad media savvy to her role as Assistant Managing Editor. Kristin has a unique perspective – a keen and deep appreciation for nonprofit organizations as well as strong knowledge of the business community that is so important to the funding and volunteer support of nonprofits. The landscape is changing – for business and the nonprofits and Kristin can talk about the coverage that matters to the business community.
Joanne Buzaglo, Ph.D. Senior Vice President, Research & Training, Cancer Support Community Joanne Buzaglo, Ph.D. is the Senior Vice President of Research & Training at the Cancer Support Community. She leads strategic initiatives that leverage the research capabilities of CSC’s global cancer patient support network through collaborations with patients, caregivers, advocacy organizations, academics, health economists and leaders in industry. One such initiative is the Cancer Experience Registry, an online vehicle that engages patients and caregivers to inform future priorities in research, innovative programs and health care policy. Dr. Buzaglo is a behavioral health researcher and clinical psychologist with extensive experience in the development and evaluation of theoretically guided interventions designed to help patients cope with the complex challenges associated with cancer. Before arriving at CSC, she was the Deputy Director of the Fox Chase Cancer Center’s NCIfunded Behavioral Research Core Facility, whose mission is to provide consultation and training in behavioral principles relating to research design, program evaluation, and tailored communications. She is a Co-Investigator on a number of PCORI initiatives and has been a Co-Investigator on numerous NCI- and DoD-funded cancer-related studies that focus on enhancing doctor-patient communication, clinical trial participation, patient adherence to medical recommendations and adaptation to cancer survivorship. She received her doctorate at Temple University and completed a post-graduate fellowship in Health Services, Research, & Development at the VA Medical Center in Philadelphia, PA. In addition, she trained at the Center for Cognitive Therapy at the University of Pennsylvania and at Friends Hospital of Philadelphia. Dr. Buzaglo joined the Cancer Support Community in August 2008.
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Bryan K. Clontz, CFP®, CLU, ChFC, CAP, AEP, RICP President Charitable Solutions, LLC Bryan is the co-founder and President of Charitable Solutions, LLC, specializing in non-cash asset receipt and liquidation, gift annuity reinsurance brokerage, gift annuity risk management consulting, emergency assistance funds and life insurance appraisals/audits. He also serves as a Senior Consultant for Ekstrom Alley Clontz & Associates – a practitioner-based community foundation consulting firm in Connecticut, where he has had the pleasure of working with over 250 community foundations. Bryan is the Founder of the Dechomai Foundation, Inc. and the Dechomai Asset Trust - two national donor advised funds focusing on non-cash assets generally, and S-corp transactions specifically. These foundations have received over $400 million since formation. He is also the Founder/President of The Emergency Assistance Foundation, Inc. – a national fund allowing employers to create emergency assistance and disaster relief funds for their employees.
Sara Goldberger, LCSW-R Senior Director, Program Development & Delivery Cancer Support Community Sara Goldberger is the Senior Director of Program Development & Delivery at the Cancer Support Community. She is responsible for the development of new programs and special projects and ensuring quality standards of program delivery across the affiliate network. Sara has worked in the field of psychosocial oncology for the past 19 years, most recently the Director of Program Support at Gilda’s Club Worldwide. Previously, she served as the Program Director of Gilda’s Club Westchester for 6 years. Sara began her social work career at Calvary Hospital, Bronx NY, an acute care hospital for terminally ill cancer patients. She received her MSW from Columbia University in New York where she was the Dean’s Award Scholar in recognition of excellence in both academics and clinical work in the field.
Linda House, RN, BSN, MSM President, Cancer Support Community Linda House has a long-standing history with the Cancer Support Community. First she served as a local, Affiliate volunteer and now, as President of the headquarters office. In her current role, Linda oversees several areas of CSC including Research and Training Institute and business development, marketing and communications and the Cancer Policy Institute. Linda joined CSC after many years working in the
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cancer care environment, several of them being direct patient care in the acute oncology and hospice care setting. Immediately prior to joining CSC, Linda served as Executive Director of St. Vincent Cancer Care in Indianapolis where she led a team of individuals to provide care across the cancer continuum. Prior to that, Linda was Senior Director of Advocacy and Professional Relations for Lilly Oncology working with patient and professional organizations on programs and broad issues related to cancer care.
Peter D. Jacobson, JD, MPH Professor Center for Law, Ethic and Health, University of Michigan School of Public Health Peter D. Jacobson, JD, MPH, is Professor of Health Law and Policy, and Director, Center for Law, Ethics, and Health, at the University of Michigan School of Public Health, where he teaches courses on health law, public health law, and public health policy. Jacobson’s recent research has examined health departments’ strategic adaptations, public health entrepreneurship, and the U.S. Surgeon General’s vital mission. Jacobson’s most recent book is Law and the Health System (co-authored—Foundation Press, 2014). Jacobson is Associate Editor for Health Law and Public Health at the Journal of Health Politics, Policy and Law, and is Chair of the Board of Health for Washtenaw County, Michigan. Currently, Jacobson is working on a health law text for health administration students, and is leading a project examining the implementation of health in all policies programs. He is the principal investigator for the Mid-States Region of the Network for Public Health Law.
Vicki Kennedy, LCSW Vice President, Program Development & Delivery, Cancer Support Community As Vice President of Program Development & Delivery for the Cancer Support Community (CSC) global organization in Washington, D.C., Vicki Kennedy, LCSW is responsible for development, delivery and quality assurance of CSC cancer support programs worldwide. An oncology social worker for the past 31 years, Ms. Kennedy has dedicated her career to ensuring that people touched by cancer have awareness of and access to evidence-based psychosocial care. Ms. Kennedy has served as Co-Founder and first Executive Director of the Cancer Support Community (formerly The Wellness Community) Central Indiana; psycho-oncology researcher at the Walther Cancer Institute in Indianapolis; and staff social worker of the Indiana University Cancer Center in bone marrow transplant. Vicki is a past-president of Association of Oncology Social Work (AOSW) and has published numerous articles, co-authored patient education materials, and provided many professional and lay presentations on cancer survivorship.
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She currently serves on the board of the American Psychosocial Oncology Society (APOS) and the AOSW Senior Advisory Board.
Dr. Joneigh Khaldun, MD, MPH Medical Director Detroit Health Department Dr. Joneigh S. Khaldun, MD, MPH is the Medical Director of the Detroit Health Department, where she leads the citywide clinician engagement strategy and oversees delivery of care in all of the department’s direct service programs. A board-certified practicing urban emergency physician, she has years of local and national experience implementing innovative policies and programs that advance community health. Prior to returning to Detroit, Dr. Khaldun was the Chief Medical Officer and Assistant Commissioner for Clinical Services in the Baltimore City Health Department. A native of Ann Arbor, Michigan, Dr. Khaldun obtained her undergraduate degree from the University of Michigan, her MD from the University of Pennsylvania, and completed her emergency medicine residency at Kings County Hospital in Brooklyn, New York, where she was also a chief resident. Her MPH and fellowship in health policy were completed at George Washington University. She is married and mother to three children.
Brian Lauterbach, CFRE Vice President, Impact & Capacity Building Network for Good Brian Lauterbach, CFRE has served as a professional fundraiser and consultant for more than 100 nonprofit organizations in the United States. In this capacity, he lead the process and strategy redesign of traditional giving that lead to more than 4 million donors giving $300 million to causes most important to them. Brian founded DonorPath.org, which has recently merged with Network for Good where Brian now serves as Vice President of Impact & Capacity Building.
Craig Lerner Founder, Involve and Board Member, CSC Central Ohio Craig Lerner President of Involve and Involve Media (Columbus, OH & Chicago, IL) has more than 30 years of branding and integrated marketing experience as agency owner, agency director and brand-side marketer. With an early focus on advertising and promotion for pharmaceutical and health care companies, he successfully marketed and promoted products for companies like Procter & Gamble, Pfizer and Eli Lilly. 18
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Craig later built a practice with an emphasis on sports and sports marketing where he and his team developed and managed marketing and promotions with many well-known sporting goods brands. In 2005, Craig became vice president of marketing at SPRI Products, a Chicago-based fitness products manufacturer. This is where his trajectory in the wellness and fitness categories sharply accelerated as Craig’s relationships with brands and industry associations grew to new heights. Many leading brands in these categories have leaned on Craig and the Involve team to chart courses toward success through challenging waters. In 2007, Craig became Director of Experiential Marketing for Fahlgren Advertising and managed promotions, sponsorship activation, live events and mobile tours for brands such as NAPA Auto Parts, Cooper Tire, National City Bank (PNC) and 5-Hour Energy. As a primary personal mission, Craig has been deeply involved in the battle against lung cancer. He is proud to have served as a National Board Member with LUNGevity Foundation from 2009 through 2012. He also founded Breathe Deep Columbus, a 5K run and walk to fund lung cancer research, in memory of his father, Frank Lerner. Currently, Craig is a Board Member and incoming Chairman with Cancer Support Community Central Ohio.
Jay Lockaby, MSS, MLSP Senior Vice President, Affiliate Relations & Strategic Growth, Cancer Support Community Jay Lockaby is Senior Vice President, Affiliate Relations and Strategic Growth at CSC HQ. Jay has more than 25 years’ experience in the nonprofit sector, in a variety of roles of increasing responsibility, primarily in management, fundraising and working with boards. He was previously the CEO of the CSC Florida Suncoast Affiliate (formerly TWC-Southwest Florida) for nearly eight years. At the time of his hiring at CSC HQ, CSC FL Suncoast was completing an $8.3 million capital campaign to build the network’s first-ever, Gold LEED Certified Affiliate site, a model facility for the network which opened in October 2010. During Jay’s tenure, CSC Florida Suncoast experienced significant growth both in revenue and the number of people affected by cancer served. Prior to his tenure with TWC/CSC, Jay was a Regional Social Services Director for The Salvation Army, in the Pennsylvania-Delaware region. He is a 1992 graduation of Emory University where he was an NCAA All-American in swimming. He holds Masters degrees in Social Service and Law and Social Policy from Bryn Mawr College in Bryn Mawr, Pennsylvania.
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Chris Lockett Executive Vice President, Mission & Delivery, Cancer Support Community Chris has more than 25 years of healthcare experience, the vast majority of it in oncology. He has served in a variety of leadership roles of increasing responsibility in the biotechnology industry. He began as a field sales representative with TAP Pharmaceuticals and progressed quickly into sales management, supporting both public and commercial customers. Chris eventually advanced to lead TAP’s DC office as Director of Government Operations. In that role, he had responsibility for all legislative, health policy, advocacy, alliance development, government contracts and pricing, with one billion in government sales annually. Chris’ team included a government sales organization, state and federal lobbyists, contract lobbyists, health policy and reimbursement policy analysts. In 2006 Chris joined the biotech company Dendreon, where he helped shepherd the FDA approval and launch of the first cancer immunotherapy. While at Dendreon, Chris built and led the company’s patient assistance programs, call center, field payer, provider teams, as well as all government operations. His most recent position prior to CSC was Senior Vice President of Government Relations at HMS, a healthcare IT cost containment company. At HMS he oversaw state and federal teams tasked with facilitating procurements and contracts, including the Medicare Recovery Audit (RAC) program. Chris attended the University of Oklahoma on a ROTC scholarship and received his BA in Political Science. He was a Distinguished Military Graduate and went on to attend an Army-sponsored graduate program at the Gregg Centre for the Study of War & Society at the University of New Brunswick in Canada. Before entering the private sector, Chris served as a platoon leader in the 82nd Airborne Division and as an intelligence officer with the 3rd Ranger Battalion.
Libby Mullin Policy Consultant, Cancer Support Community Libby serves as the CSC’s policy consultant. Libby brings over 20 years of health policy experience, including a deep understanding of politics and process. She has helped numerous advocacy organizations shape and successfully advance their legislative and regulatory priorities as well as strengthen their strategic alliances and overall presence in Washington. Prior to starting Mullin Strategies in 1999, Libby held several senior positions on Capitol Hill.
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2016 AFFILIATE LEADERSHIP CONFERENCE
Daicia Price, LMSW Professor University of Michigan School of Social Work of Field Instruction Daicia joined the Office of Field Instruction with the School of Social Work as a field faculty in 2016. Prior to becoming a part of the OFI team, Daicia served as Clinical Practice Improvement Specialist in Wayne County with a focus on workforce development. During her time there, she was instrumental in creating a centralized student training program that included collaboration with University of Michigan Detroit Clinical Scholar program. She earned her MSW degree from Eastern Michigan University. Daicia has been a field instructor for Washtenaw Community College, Eastern Michigan University, Wayne State University, Michigan State University and University of Michigan supporting students in their professional development. Daicia has gained clinical and macro practice experience in juvenile justice, community mental health, housing, schools and foster care. She has an interest working to retain healthcare providers in areas experiencing shortages. Daicia is committed to ensuring that new professionals are equipped with the necessary skills to enter the workforce as competent leaders to reach out, raise hope and change society.
Jonathan D. Schick Author GOAL Consulting Group Jonathan believes in the power of effective leaders to unify movements and create community impact. He is a dynamic leadership consultant and nationally known speaker who has founded two successful nonprofits and consulted for hundreds of organizations. As president of GOAL Consulting Group, with offices in New York/ New Jersey, Dallas/Fort Worth and Denver, Jonathan’s clients include theamerican Red Cross, United Way, Major Independent School Districts, and Boys and Girls Clubs. The author of The Nonprofit Secret: Six Principles of Successful Board/CEO Partnerships, Jonathan earned a Masters degree in Educational Administration from Boston College, along with a Bachelors degree in Human Resources Management.
Nima Shaffe Reporter/Anchor WXYZ-TV Detroit Nima joined WXYZ-TV in March 2013. Prior to joining 7 Action News, Nima worked in Kansas City. Nima has covered everything from the devastation of the Joplin, Missouri tornado to famously rescuing a kitten during a broadcast (yes, you can Google that!) EMPOWERING OUR COMMUNITIES
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Nima is very involved in the community – and Gilda’s Club Metro Detroit is no exception. Nima has been an emcee for events and helps to shine a light on the courageous members they serve. WXYZ is a champion for Gilda’s Club through PSAs and event coverage.
Dave Sternberg Founding Partner Loring, Sternberg & Associates Dave Sternberg is a founding partner of Loring, Sternberg & Associates (LSA) and has considerable experience in nonprofit board development and governance work. Dave has been a fundraising professional since obtaining his BA Degree from The Ohio State University. He is a member of the faculty at The Lilly School of Philanthropy at Indiana University’s Fund Raising School, where he teaches Building the Annual Fund, Marketing for Fundraising, Managing the Capital Campaign, Principles and Techniques, Major Gifts; as well as numerous customized training programs nationally and internationally. In 2006 he authored the course Purposeful Boards, Powerful Fundraising in cooperation with BoardSource. Dave is also a Senior Governance Consultant for BoardSource and is the only person in America to be affiliated with both the Lilly School of Philanthropy and BoardSource. From 1991 to 1996 Dave served as a development staff member at both small and large nonprofit organizations in human services and higher education. In 1996, Dave founded Loring, Sternberg and Associates providing fundraising counsel to educational foundations, social service organizations, higher education, membership organizations, children’s groups, and museums. His counsel includes: strategic planning, development audits, on-going fund development planning, feasibility studies, campaign direction, board governance and fundraising training, and annual fund management. Dave authored the second edition of Fearless Fundraising for Nonprofit Boards a publication for BoardSource in Washington, DC, a best seller since its publication. Dave is active in the Association of Fundraising Professionals Indiana Chapter. He served two terms as the Vice President of Programs (1999, 2000) and served as the chapter President 2001. In addition, he served two years as the chair of Indiana Fund Raising Day in 1997 and 1998. Locally in Indianapolis, Dave serves on the Habitat for Humanity of Greater Indianapolis board and is a past president of the Washington Township Schools Foundation. Dave can be seen speaking nationally for the YMCA, Boys and Girls Clubs and at the BoardSource Leadership Forum. He is also developed and presents the Annenberg Alchemy Program to build capacity in Southern California. 22
2016 AFFILIATE LEADERSHIP CONFERENCE
Kim Thiboldeaux CEO, Cancer Support Community Kim Thiboldeaux joined The Wellness Community in 2000 as President and CEO. In 2009, the headquarter offices of The Wellness Community and Gilda’s Club joined forces to become the Cancer Support Community, one of the largest providers of social and emotional support worldwide, where Kim has maintained her role as CEO. The combined organization is the largest nonprofit employer of psychosocial oncology mental health professionals in North America, advancing the idea that psychosocial care is as important as medical care in the face of a cancer diagnosis. The Cancer Support Community provides social and emotional support through a network of more than 50 local affiliates, more than 100 satellite locations and online at www. cancersupportcommunity.org. The organization also maintains a Research & Training Institute in Philadelphia and a Cancer Policy Institute in Washington, D.C. Formerly the Director of Patient Relations for Oncology & Transplant at HoffmannLaRoche, Inc., Kim brings to this position a wealth of experience in health care, patient education and national patient advocacy. Kim serves in numerous leadership roles in the cancer and health care communities including: member of the American College of Surgeons Commission on Cancer, CoChair of the Alliance for Quality Psychosocial Care, and Cancer Today magazine National Advisory Board Member. Prior to joining Roche, she served as the Director of Corporate Relations at Whitman-Walker Clinic, a Washington, D.C.-based health clinic that provides comprehensive services to people with HIV and AIDS. Kim is the co-author of Reclaiming Your Life After Diagnosis (2012), and The Total Cancer Wellness Guide (2007), both full length books published by BenBella Books. She is the host of Frankly Speaking About Cancer with the Cancer Support Community, an award-winning Internet talk radio show that airs weekly on VoiceAmerica.com and is aimed at informing and inspiring listeners to live well with cancer. Kim is also a regular contributor to The Huffington Post.
Laura Varon Brown Executive Director & CEO of Gilda’s Club Metro Detroit Before joining Gilda’s Club in 2012, Laura spent 19 years with the Detroit Free Press in various executive-level editing positions. Laura also wrote a column and was a community liaison at the newspaper. At Gilda’s Club, Laura has become a passionate champion for the cancer community. Laura lost her mom to cancer when she in her 20s, and her husband successfully faced cancer when her children were very young. Much of her passion stems from understanding how difficult a path cancer places us
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on. Laura’s community relationships and respect for the history of Gilda Radner’s journey and Gilda’s Detroit roots have been a source of support and guidance as Gilda’s Club Metro Detroit grows in reach and purpose.
Michelle Warren, LMSW Women’s Wellness Director Relationship Institute Michelle earned her BA from University of Dayton in psychology. She later earned her MSW from Eastern Michigan University. She completed both of her internships at Gilda’s Club Metro Detroit. Michelle is the Women’s Wellness Director at the Relationship Institute. Michelle has a rich and purposeful history with Gilda’s Club Metro Detroit. Mid-way through Michelle’s MSW program, she was hired as the volunteer coordinator, and eventually transitioned to the Noogieland Program Manager. Post-graduation, Michelle was promoted to the position of Program Director. During her tenure, she was often the guest speaker in the community on various topics including “How to talk to you kids about cancer,” “Living with Cancer: A family member’s perspective,” and of course, informational sessions about her favorite non-profit, Gilda’s Club. Michelle founded a local non-profit cancer coalition committee, collaborated with many other non-profits for events, and organized a grass-roots marathon fundraising team for again….her favorite non-profit, Gilda’s Club. In 2012, Michelle left Gilda’s Club Metro Detroit and joined the Relationship Institute in Royal Oak, a group therapy practice with an emphasis on working with couples. Because of her over a decade years of experience in working with people with cancer, Michelle has been able to specialize her work to women’s issues and chronic illnesses in addition to working with couples.
Brad Zebrack, PhD, MSW, MPH, FAPOS Professor University of Michigan School of Social Work Brad Zebrack’s teaching and research interests are in the area of health, medicine, and quality of life. He is particularly interested in the effects of cancer on the psychosocial growth and development of adolescents and young adults. His funded research also involves evaluations of the implementation of psychosocial support services in medical care settings. Zebrack has clinical social work experience in both pediatric and adult oncology, and has been involved in the development of peer support/advocacy programs for adolescent and young adult cancer survivors. He currently is a member of the University of Michigan Comprehensive Cancer Center’s Socio-Behavioral Program, and involved in development of new curriculum on Inter-Professional Education.
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Notes
Conference Attendees As of November 7, 2016
ARIZONA CSC ARIZONA Debbie Dicarlo, Executive Director Tracy Thurston, Program Director Alyson Hartsock, Development Director
GC SOUTH FLORIDA Kim Praitano, Executive Director Stacey Balkanski, President & CEO UF HEALTH CANCER CENTER – ORLANDO HEALTH** Diane Robinson, Program Director
CALIFORNIA
GEORGIA
CSC REDONDO BEACH Judith Howe-Opdahl, Executive Director Nancy Lomibao, Program Director Paula Moore, Development Director Theresa Plakos, Public Relations Director Kyle Kazan, Board Chair
CSC ATLANTA Christy Andrews, Executive Director Rachel Newby, Program Director Bruce Bennett, Board Member
CSC SANTA MONICA Julia Forth, Executive Director Shannon La Cava, Program Director Jennifer Cook, Development Director CSC PASADENA Meg Symes, Executive Director Laura Wending, Program Director CSC CENTRAL COAST Shannon D’Acquisto, Executive Director CSC SAN FRANCISCO BAY AREA Margaret Stauffer, Program Director CSC VALLEY/VENTURA/SANTA BARBARA Bridget Karl, President & CEO Kayo Matsumoto, Program Director David Wank, Board Chair
CANADA GC GREATER TORONTO Maryann Kerr, Board Chair
DELAWARE CSC DELAWARE Nicki Pickles, Executive Director Sean Hebbel, Program Director
FLORIDA CSC GREATER MIAMI Danielle Spiegelman, Executive Director Peggy Rios, Program Director Joseph Roisman, Board Chair
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ILLINOIS GC CHICAGO LauraJane Hyde, President & CEO Jamie Wiener, Program Director Kathleen Boss, Director of Special Initiatives Bradford Newquist, Development Director Maggie Bahler, Marketing Director
INDIANA CSC CENTRAL INDIANA Eric Richards, Executive Director Lora Hays, Program Director Keri Brantley, Development Director Chris Belleville, Board Member GC EVANSVILLE Melanie Atwood, Executive Director
IOWA GC QUAD CITIES Sally Werner, President & CEO Melissa Wright, Program Director Joy McMeekan, Development Director Anita Shaft, Program Manager Kelly Hendershot, Program Manager
KENTUCKY GC LOUISVILLE Karen Morrison, President & CEO Janet Gruenberg, Chief Operating Officer Leah Vanderwerp, Program Director Tonya Cook, Development Director Teresa Riggs, Board Member
MICHIGAN GC METRO DETROIT Laura Varon Brown, Executive Director Erica McNeely, Program Director Meghann McEvoy, Development Director Meghan Crosslin, Marketing Director Kim Colley, Program & Community Outreach Manager Liz Femminineo, Program & Volunteer Manager Grace Leone, Finance & Operations Director Laura Wakefield, Development Associate Donetta Behen, Board Chair Cynthia Thomas, Board Member Ronald Weiner, Board Member Bill Pumphrey, Board Member Tom Callan, Board Member Ilene Bez, Board Member Tracey Papa, Board Member Randy Book, Board Member GC GRAND RAPIDS Wendy Wigger, President & CEO Jan Miller, Program Director
Migdalia Torres, Program Director Deborah Wilson, Development Director
NORTH CAROLINA CSC EASTERN NORTH CAROLINA* Betty Greer, Executive Director Elizabeth Stetson-Gaylord, Board Member
OHIO CSC GREATER CINCINNATI-NORTHERN KENTUCKY Michelle Johnson, Executive Director Kelly Schoen, Program Director Jackie Drake, Associate Program Director Sarah Thompson, Program Manager Gretchen Ramstetter, Development Director Joe Cleves, Board Member Rodney Johnson, Board Member CSC CENTRAL OHIO Bev Soult, President & CEO Angie Santangelo, Program Director Debbie Beyer, Development Director Steve Weyl, Board Chair Barry Gasaway, Board Member Craig Lerner, Board Member
CSC GREATER ANN ARBOR Bonnie Dockham, Executive Director Rosie Morrison, Program Director Erin Kelly, Development Director Carol Rugg, Board Member Ellen Ward, Board Member
PENNSYLVANIA
MINNESOTA GC TWIN CITIES Dan Narr, Executive Director
CSC GREATER PHILADELPHIA Joy Bullard, Program Director Stephen Frishberg, Board Member
MISSOURI
TENNESSEE
CSC GREATER ST. LOUIS Scott Gee, President & CEO Renata Sledge, Program Director Colin Meadows, Board Member
GC NASHVILLE Sandy Obodzinski, President & CEO Felice Apolinsky, Program Director Deb Sandvik, Development Director Harriet Karro, Board Member
GC KANSAS CITY Siobhan Lesley, Executive Director Clara Sainte, Program Director
CSC EAST TENNESSEE Beth Hamil, Executive Director Debra Sullivan, Program Director
MONTANA
TEXAS
CSC MONTANA Becky Franks, Executive Director Katelyn Stewart, Program Director Jeannie Gracey, Development Director
CSC NORTH TEXAS Mirchelle Louis, President & CEO Syndee Stiles, Board Chair
NEW JERSEY
WISCONSIN
GC SOUTH JERSEY Joan Licursi, Board Member
GC MADISON Lannia Stenz, Executive Director Kristen Norslien, Program Director Nikki Whayland, Development Director Susan Grigsby, Events & Corporate Partnership Director Michael Schlageter, Board Member
CSC CENTRAL NEW JERSEY Amy Sutton, Executive Director William Sundheim, Board Chair
NEW YORK
* Indicates an affiliate in development **Indicates a hospital partnership
GC NEW YORK CITY Lily Safani, President & CEO EMPOWERING OUR COMMUNITIES
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So that no one faces cancer aloneÂŽ