Summer 2017 Magazine

SUMMER 2017

Newsline

BBQ and Sporting Activities Day Birds of Paradise Theatre Company SIS New Hours WheelieChix-Chic

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Contents Summer 2017

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www.facebook.com/spinalinjuriesscotland

All enquiries and applications to our address at: Spinal Injuries Scotland Fullarton Court (Unit C) 11 Drumhead Place Cambuslang Investment Park Glasgow, G32 8EY Tel: 0141 427 7686 Freephone Line: 0800 0132 305 Email: info@sisonline.org www.sisonline.org SIS is a company registered in Scotland by guarantee and recognised as a charity.

Scottish Charity No: SC015405. ISSN 1363-6723 Any opinions expressed in the SIS Newsline are those of the person writing and not necessarily shared. Articles from Newsline are available on disc or in large print on request.

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Welcome

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News: Glasgow Caledonian University.

Team of the Year. Royal Garden Party.

25th Anniversary.

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News: Gold Medalists Honoured by the Queen

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News: SIS New Hours

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Birds of Paradise Theatre Company

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Member Profile: Craig McRonald

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Sport: Scottish Curling Team Skip

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BBQ and Sporting Activities Day

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WheelieChix-Chic

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The disABILITY to Cruise

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Welfare Advice

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Bullen Healthcare and me!

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Thank You to Our Fundraisers

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Classified Advertising

twitter.com/sisonlineorg

Spinal Unit Visit Times Spinal Injuries Scotland staff and volunteers are in the spinal unit every Monday and Thursday from 1.00pm to 1.30pm in the day room and from 1.30pm to 3.00pm on the ward. Anyone wishing to speak to any of our staff or volunteers outwith these times please call our Freephone Line 0800 0132 305 to arrange a spinal unit visit at Glasgow QENSIU. Legal and Welfare Advice Services If you are concerned about legal or welfare issues, please call the office on our Freephone Line 0800 0132 305 and we will put you in touch with our advisors.

Freephone Line 0800 0132 305 If you need someone to talk to, use the above number for enquiries great and small.

If no-one is available then please leave your name and number with your message and someone will get back to you as soon as possible.

Honorary President HRH The Princess Royal Patrons Paul Warwick Harry Brown Tracey Brown Board of Directors Linda Bamford (Chair) Kevin Conlon Jennifer Allan Maureen Morrison Ian Wilson Woody Whittick Patricia Clay-MacKinnon

www.youtube.com/spinalinjuriesscot

In the Office General Manager Roslyn Scholarios Peer Support Adviser Laura Torrance Peer Support Coordinator Hugh Savage

Cover Photo: BBQ and Sporting Activities Day 2017 Editorial: Spinal Injuries Scotland and Clear Design (North) Design: Clear Design (North) Tel. 07971 182736 www.cleardesignnorth.co.uk

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Welcome The arrival of summer with brighter days and warmer weather means enjoying outdoor life and sporting activities.

The annual Spinal Injuries Scotland Barbecue and Sporting Activities Day at Castle Semple was a resounding success. Over 150 people enjoyed a range of activities including sailing, kayaking, canoeing, powerboating, hand biking and cheeseburger demolition. See the great photographs on pages 12, 13 and 14.

If you are thinking about going to the theatre, find out about the innovative and exciting Birds of Paradise Theatre Company on pages 6 and 7. It’s definitely worth a visit.

We hope you enjoy reading this issue of Newsline and please get in touch with any thoughts or ideas for your magazine.

m a e T l a i r o t i d E he

Happy reading!

T

Changes to Newsline There are some big changes coming to Newsline very soon. Steven, a SIS peer support volunteer, is now on board to help shape these changes and track down fresh, exciting new content.

Steven had an accident 10 years ago, resulting in loss of movement from the neck down and requiring a ventilator to breathe. He has been a volunteer with SIS for 18 months. Steven exemplifies how rewarding life can be after a very severe spinal cord injury. Everyone at Newsline would like to welcome him to the team.

Newsline Summer 2017

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News•News•Ne Thank you so much!

Pictured here with the three Spinal Injuries Scotland volunteers are Christine and Bill, senior figures from Glasgow Caledonian University who came along to the SIS offices in Cambuslang to present a glass trophy to Andy, Jamie and Kevin.

The three SIS men had supported over a dozen nursing recruitment events at the university by describing to an audience of nursing applicants their own patient and outpatient experiences as they recovered from their spinal injuries.

Forthcoming Attraction!

The Spinal Injuries Unit at the Queen Elizabeth University Hospital is currently planning its 25th Anniversary celebrations with support from Spinal Injuries Scotland. It’s provisionally planned for the 5th September 2017, so watch our website and Facebook and Twitter page for all the details.

There could be an invitation coming your way!

The reactions from the audiences on the day reflected the profound and very real impact that Andy, Kevin and Jamie made on hundreds of would-be nurses. All of them spoke eloquently and honestly about what it takes to be a good nurse. And all of them were shameless in milking the (albeit fully deserved) applause they got from the hundreds of people they spoke with.

Congratulations to all of them, a credit to themselves and the human spirit and great ambassadors for Spinal Injuries Scotland.

Team of the year!

SIS in action.

Pictured above is the new publicity in the spinal injuries unit in the Queen Elizabeth University Hospital for the peer support service offered every weekday by volunteers and staff from Spinal Injuries Scotland. This is a great credit to everyone involved, especially the volunteers, many of whom face real challenges themselves in coming along to help people in the unit come to terms with their injuries.

More information on page 5.

Royal Garden Party Pictured, resplendent in kilt and sporran, is Alex Findlay, one of the SIS peer support volunteers, proud to represent Spinal Injuries Scotland at the Royal Garden Party at Holyrood Palace on the 4th July, 2017. Alex, previously present at the Ceremony of the Keys, has become the unofficial SIS royal watcher!

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News•News••• Karen

Darke

Jo Butt

erfield

Gordon

Reid

Gold Medallists Honoured by the Queen

well worth a read. Archived editions of Newsline are available to read on the Spinal Injuries Scotland website.

Everyone at Spinal Injuries Scotland is delighted to congratulate Karen Darke, Jo Butterfield and Gordon Reid. All three were included the 2017 New Year Honours list after winning gold medals at the 2016 Paralympics in Rio de Janeiro.

The Queen presented them with their MBE's this summer at a ceremony in Edinburgh.

The third Scottish Paralympian to receive an MBE was tennis star Gordon Reid. 2016 was an outstanding year for Gordon. It began with him winning his first grand slam singles title, the Australian Open. Later in the year, he added another grand slam title to the trophy cabinet by taking the singles championship at Wimbledon. The year was topped off with an incredible gold medal at the Paralympics in Brazil. A very proud Gordon celebrated receiving his MBE for services to wheelchair tennis along with his parents and tennis coach. He told the BBC they were the people who have "helped me get here the most out of anyone.”

Spinal Injuries Scotland member Karen Darke received her MBE for services to sport, particularly cycling and triathlon after speeding to gold in Brazil.

The hand cyclist was fastest in the H1-3 time trial and told the BBC it was a "great honour" to receive the MBE. She also paid tribute to all the people who have helped her along the road to her incredible achievement. Look out for a special feature interview with Karen in our next edition. A great story, not to be missed!

Another member of Spinal Injuries Scotland, Jo Butterfield was also at The Palace of Holyroodhouse to be honoured by the Queen.

Jo, already European and world champion, set a new world record in Rio in the F51 Club Throw.

She received her MBE for services to field athletics and can be seen defending her world championship title in London this summer. Jo featured in the Spring 2015 edition of Newsline and her fascinating story is

Newsline Summer 2017

Karen, Jo and Gordon are leading the way in their individual sports. They are also a huge inspiration to anyone with a spinal cord injury who is keen to take up sport. For the three to be honoured with MBE's after winning gold medals in Brazil shows what can still be achieved after an injury. If anyone is interested in taking up sport but is unsure where to start, get in touch with us at info@sisonline.org and we will point you in the right direction. Take inspiration from our three Paralympian's, you never know what you can achieve until you give it a go!

Remember to look out for more from Karen Darke in our next edition.

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News•News••• Alex Findlay

Andy Nisbet

Andy Richardson

Graeme Quinn

Hugh Savage

Jamie Ward

Keira Procter

Kevin Mackin

Laura Torrance

Mary Ballantyne

Mike Thomas

Steven Mcghee

Tony Kane

Walter Richardson

New Unit Times – Staff and Peer Support Volunteers

Our staff will be in the day room every weekday to offer support, advice or information.

Feel free to come and talk with us any time – we are all here to help in any way we can.

Our Peer Support Volunteers (pictured above), will be in the day room and also visiting the wards every weekday. All of our peer support volunteers have sustained a spinal injury, and are here to assist you and your family and friends, with their experience and knowledge of all aspects of living with a spinal injury.

Spinal Injuries Scotland works together with BACKUP Trust and Aspire to support people and their families and friends, coming to terms with a spinal injury. We will be happy to refer you to our partner organisations for their help and support.

SIS Staff times in the day room: Monday 9am-5pm

Tuesday 9am-5pm

Wednesday 9am-5pm

Thursday 12.45pm-5pm

Friday 12.45pm-5pm

SIS Peer Support Volunteers times in the day room / on the rehab ward: Monday 1pm-4pm

Tuesday 1pm-4pm

Wednesday 1pm-4pm

Thursday 1pm-4pm

Friday 1pm-4pm

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Birds of Paradise Theatre Company Above: Crazy Jane

Named after their first production, an adaptation of Ronald Laing’s Sweet Bird of Paradise, Birds of Paradise Theatre Company (BOP) was established in 1989.

At this time, many protested against the inadequacies of the Chronically Sick and Disabled Persons Act (1970), where it was still lawful to be refused entry to a theatre because you were disabled. Through a combination of direct action and political pressure from the Employer’s Forum on Disability, the Conservative Government introduced the Disability Discrimination Act (1995). This legislation did take steps to make the UK a more inclusive and accessible place. It was in this atmosphere of fighting for disability equality that plans for Birds of Paradise Theatre Company were hatched.

“I brought only one idea. The play must have strong parts for as many disabled actors as possible, so should be set in a world where the able-bodied were a pitiable minority… I needed to know the everyday embarrassments of being disabled so that my able bodied hero could suffer these also.”

BOP, along with other companies was redefining the way disabled people were perceived on stage.

BOP wanted to improve equality in the arts for disabled people by creating opportunities for disabled actors on main stages throughout Scotland. No longer should their presence be associated with community theatre or amateur drama. They were now demonstrating to audiences and fellow artists that not only were there talented disabled performers, but that these individuals had rich and valuable experiences to share with people.

An important part of BOP’s approach is to ensure their work portrays strong, assertive and likeable disabled characters that subvert the stereotypes. Laura, Amy Conachan’s character in Wendy Hoose (2014), is unabashed about her disability – it is Jake - the love interest - who is initially awkward, bashful and insecure.

“[BOPs] first major stage debut took place in 1990 during the Glasgow City of Culture celebrations…

This was probably the first time many Scottish audiences had viewed work that challenged the aesthetics of theatre-making while at the same time challenging their own prejudices and perceptions…”

Angela Hogg, Senior Drama Officer, Scottish Arts Council BOP used the arts to raise awareness in audiences: Awareness about the lack of disabled people in the arts; of the different experiences faced by disabled people; awareness, in some cases of their own ignorance about disability.

Newsline Summer 2017

Alasdair Gray, Playwright, Working Legs, 1998 Alasdair’s ambition to give disabled actors strong, well written parts is still a sentiment held today. Historically, disabled characters were predominantly portrayed as weak, villainous or “the other” (Richard III, Quasimodo).

Even though these characters were far from flattering, the chance of a disabled actor being given the part was low.

BOP’s work, however isn’t only about disability.

Their work contains layered, nuanced stories that appeal to both the disabled and non-disabled. BOP’s characters demonstrate the similarities between the disabled and non-disabled, often emphasised by using integrated casts. Crazy Jane (2015) is a play about a lady with a mental health condition who goes to work at the Moulin Rouge but the deeper themes - insecurity, abuse, self discovery are emotions everyone can relate to.

BOP is recognised as one of Scotland’s most innovative and exciting companies. This credibility is supported by good reviews in the press and also by the calibre of companies wanting to work with them.

07 Wendy Hoose was made in co-production with Random Accomplice, and was so successful it toured for three consecutive years across the UK and Spain, including a run at Edinburgh Festival Fringe; Crazy Jane was scored by Scottish hip-hop duo Hector Bizerk - the soundtrack went on to be nominated for Scottish Album of the Year 2016; Purposeless Movements (2016) was made in co-production with international arts space Tramway, was nominated for “Best Ensemble Production 2016” and “Best Director 2016” at the Critics Awards for Theatre in Scotland (CATS) and featured Colin Young from Call the Midwife (BBC).

Wendy Hoose

by Johnny McKnight

In recent years disabled people have been stigmatised as a drain on resources and disability motivated hate crimes have soared. Theatre and the arts can play a key role in demystifying the disability stereotype. After Wendy Hoose, Amy Conachan made the leap into television and now plays Courtney Campbell in Hollyoaks (Channel 4), one of the few disabled actors to regularly appear on TV. Having disabled people in the public eye is one key way of changing perspectives on disability.

First and foremost BOP is a theatre company and they take great pride in the creative work they produce.

Blanche & Butch opens in September (Tron Theatre, Glasgow - then touring) and Tin Soldier, a Christmas show for young people and families, in December (Studio @ Festival Theatre, Edinburgh). While they primarily want audiences to be entertained, they recognise the responsibility they have to support disabled artists and audiences alike.

Resources such as audio description and British Sign Language are embedded in the fabric of their production.

They also support others through training organisations and providing valuable resources like the Access Scottish Theatre Guide. By providing support to disabled artists, in the form of development opportunities, they have given more disabled artists access to the skills and knowledge they require to make work, to explore disability through their own lens and help to provide more opportunities for audiences to engage with work by disabled artists. This dual approach of creating theatre for/with disabled people and by supporting disabled audiences and artists to engage in the industry, is integral to their approach to improving disability equality in the arts in the present and into the future.

08 Member Profile: Craig McRonald

Adaptions for a New Life A spinal cord injury can be a life changing experience. For many people, getting back to work is a massive step towards regaining a sense of control. Reaching this goal is often a long struggle requiring hard work, determination and a willingness to accept help along the way.

Spinal Injuries Scotland member Craig McRonald's story is an inspiring example of someone refusing to let his disability take away his independence.

Craig, 27, was involved in a car accident 9 years ago, causing damage at T6 level and resulting in paralysis from his lower ribs down. At the time of the accident Craig was completing an apprenticeship in fabrication and living with his parents and sister on a farm in Aberdeen. Craig spent six months after the accident in what is now the Queen Elizabeth University Hospital, Glasgow.

Throughout his time in hospital, Craig never gave up hope of getting back to work. Despite having his bad days, and admitting he still does, he told Newsline how he "always kept a positive attitude.

That's just the kind of person I am." This attitude was encouraged by the team of nurses, physiotherapists and occupational therapists in the spinal unit. He also had great support from his family, friends and strangers who helped along the way.

Newsline Summer 2017

Craig returned home to start the process of rebuilding his life. Having grown up on the farm Craig saw that a possible route back to employment could be his experience of using farm machinery.

The first obstacle to overcome was transferring in and out of a digger. After that, he had to develop some way of controlling the machine.

Craig was two years into his fabrication apprenticeship and as his Dad had also worked in fabrication, they had many of the skills to design customised systems. He commented: "Growing up on a farm, if something wasn't available you really needed to make it.” That is exactly how they created a hoist for transferring to and from the digger.

Craig told Newsline, "there is nothing on the market that you can buy off the shelf", so he got in touch with a local mechanic with experience of fitting hand controls. Craig said: "We managed to use all different parts from different systems to create a control that could operate the plant machinery.”

This adaptation was exactly what Craig had been waiting for. He got his qualification for the digger and picked up small jobs. He also found companies to help with work experience until an opportunity came along.

We are delighted to say that Craig now has permanent employment. He got his qualification and a job opportunity came along. His company offered to pay for more qualifications if Craig adapted the machinery he would be operating.

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This has been a long and challenging process for Craig but he doesn’t think that should discourage others from doing the same. He told us: ”It has taken time to find paid employment but it is worth it in the end.

I would say don’t be discouraged if it doesn't happen straight away.”

We’ve been inspired by Craig’s strength of character. He’s also benefited from help from so many people. Finishing our conversation, we wanted to know how important he thinks a strong support network is. We think Craig's answer is wise advice for all of us: "I would say to people who have had an accident that they should always ask for help. There is a mutual understanding and people want to pass on their experience and knowledge. Don't be afraid to reach out and ask for the help that you need. There is always support there if you want it. People will offer you help if you ask for it and there is nothing to be embarrassed about.”

Everyone at Newsline would like to thank Craig for sharing his story with us. If you have questions about getting back to work or any other goal, please ask (Spinal Injuries Scotland).

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Sport•Sport•••

Aileen Neilson – Scottish Curling Team Skip With a grandfather and uncle both representing Scotland in curling it is no surprise that Aileen Neilson was destined to follow in their footsteps.

However, this primary teacher turned full-time athlete has had more knockbacks than most.

Aileen suffered a spinal tumour when she was two-and-a-half years old but after successful treatment, led a very active early life. She went to Wester Overton Primary School and Strathaven Academy and was very active in all types of sport but due to the earlier surgery and radiotherapy her legs gradually deteriorated from about the age of 18 and she was unable to participate in sport.

It wasn’t until 2004 that the opportunity came about to try curling again. She took her class from school on a trip to the local ice rink for them to try curling and the coach asked if she had a wheelchair because they had started a wheelchair curling club.

This allowed Aileen to get back on the ice and she was delighted to be participating rather then just watching. In 2005, she suffered a DVT (deep vein thrombosis) and that was when her legs lost the last of their power and she started using a wheelchair permanently. This came as a relief for Aileen, who had struggled for so long on elbow crutches, and it gave her a new lease of life and found she could do so much more using a wheelchair.

Newsline Summer 2017

In 2005 she watched the Scottish Team win the Gold medal at Braehead Arena in the World Wheelchair Curling Championships. This was when she realized she would like to be winning the medals and not just watching and began training in her spare time.

This hard work and dedication paid off and in 2007 Aileen was selected to play for Scotland and the team won a bronze medal at the World Championships in Sweden. She represented in Scotland in 2008 and 2009 then in 2010 was selected for team GB at her first Paralympic Winter Games in Vancouver.

In 2011, Aileen was again selected for the Scottish Team for the World Championships but this time as skip (captain), the first time a female had been chosen for the role. They headed to Prague in the Czech Republic and came back victorious with a silver medal.

2014 was a hugely successful year as Aileen skipped the team to a Bronze medal in the Paralympic Games in Sochi, Russia, which was seen on television stations all around the world.

In February 2017, the Scottish team returned from the World Championships with a Bronze medal, securing the GB team a place at the Paralympic Winter Games in Pyeong Chang in South Korea next year. The squad is busy training and competing with the hope of getting back on the podium next March.

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BBQ & Sporting Activities Day 2017 y sda dne une e W hJ

28t 17 20

The annual Spinal Injuries Scotland Barbecue and Activities Day was held at the Castle Semple Visitor Centre on Wednesday the 28th June.

For once the weather turned up in a reasonable mood with a good blow for the sailboats. Over 150 people turned up, with a shuttle bus ferrying many patients and a host of staff from the spinal injuries unit. The fabulous SIS volunteers turned up en masse too, along with our friends and partners from Digby Brown and Bullen Healthcare, so we were set for a great day!

The windy day lent itself to folk whizzing about the loch on the boats provided, and the exhilaration was clear on the faces of those coming back to shore.

And even if many a hairdo had to be reassembled afterwards, it was clearly worth it!

The kayaking catered for the more intrepid and independent with the added security of a floating device that prevented capsizing. See the photos of people with gritted teeth determination to have their kayak and beat it! (Apologies for that pun! –Ed)

Activities on what was, in every sense, a taster day ranged from sailing, kayaking, canoeing, powerboating, hand biking and cheeseburger demolition, this last one for the hungry but fainthearted!

The variety of hand bikes for use meant an endless parade of cyclists lapping the track and simply enjoying the wind in their hair, as they propelled themselves around the track with an enthusiasm and energy that made the rest of us pedestrians feel tired just watching them!

The powerboating was as popular as ever with everyone, allowing people to sit in their own wheelchair if they needed to, but still experience the adrenaline rush of speed and spray!

Continued on page 14

Newsline Summer 2017

Activities on what was, in every sense, a taster day, ranged from sailing, kayaking, canoeing, powerboating, hand biking and cheeseburger demolition...

The variety of hand bikes for use meant an endless parade of cyclists lapping the track...

All in all, a great day, a great warm and friendly atmosphere and people given access to wind, water and the joy of movement.

14 Inside, away from the blur of activities, were a number of information stands. As well as the SIS stand and the stands for our friends and partners from Digby Brown and Bullen Healthcare, there were a variety of stalls ranging from arts and crafts, home-made cakes and tablet and even a nail technician! Every one of the stall holders made a generous donation to the work of SIS! The barbecue, generously provided by our friends from Digby Brown, enjoyed a general popularity with many a sharpened appetite satisfied by the excellent burgers, sausages and salad on offer.

On the grounds of personal safety we decided to forego the barbecue, such was the anticipated rush.

Our thanks to all the fantastic SIS peer support volunteers who had turned up selflessly to support the day. We hope they know we appreciate everything they do!

All in all, a great day, a great warm and friendly atmosphere and people given access to wind, water and the joy of movement. Spinal Injuries Scotland would like to thank everyone who came along and everyone involved in supporting the day!

PS. For those who loved the new experience of sailing, kayaking or hand-biking, the charity has a small amount of money available to allow you to further your interest by facilitating and funding some individual or group lessons at Castle Semple in your favourite activity. Get in touch via our peer supporters or our office for details. You know you want to!

Come and Stay at Clober Farm

The ground floor of this Grade C-listed property in Milngavie was bequeathed to Spinal Injuries Scotland. It forms part of a 280-year-old farmhouse which includes an extensive garden.

We identified huge potential in the property and converted it for use as accessible accommodation for those with spinal cord injuries and their families.

From concept to reality, the property has been conceived to be truly accessible, whilst still being a modern and comfortable family home.

The extension houses the living area along with the adaptable kitchen. There are three bedrooms which can provide accommodation for family or carers, two of which are wheelchair accessible and one has an ensuite wetroom. There is a modern and accessible bathroom facility.

Hire Clober Farm for a meeting, training course or conference or stay for longer.

Perfect if you are coming to Glasgow for a hospital appointment, a short break or a longer stay.

Please get in touch with Spinal Injuries Scotland on 0141 427 7686 or 0800 0132 305 Email: info@sisonline.org www.sisonline.org

16 A Fashionable Choice

WheelieChix -Chic Functional, effective, comfortable and practical.

All words commonly used to describe clothing that has been designed specifically for wheelchair users.

What about FASHIONABLE? Online searches will offer an endless choice of the former but finding anything trendy is near impossible. One woman helping to change that is Louisa Summerfield. She is the creator and Managing Director of wheelieChix-chic.com, a fashion label dedicated to giving women the option of style combined with the practical needs of a wheelchair user. Newsline had the chance to ask Louisa some questions and find out more about WheelieChix-Chic.

What motivated you to start a fashion range designed specifically for wheelchair users?

I did see a huge gap in the market as there seemed to be a lot of “functional” clothing available that was so hideous even my grandmother wouldn't have worn it.

I wanted functionality and fashion combined, I wanted to add some style and sexiness to what we wear, my motto has always been – everybody stares at you when you’re in a wheelchair so give them something good to stare at.

I know wheelchair users can get frustrated choosing between fashionable clothes that do not fit properly or choosing to have no style and no personality.

Do you find it strange that more designers have not recognised a gap in the market?

I don’t think it’s strange I’ve been in this business now for 10 years albeit on and off and I’ve realised that it is a very complicated process as there are so many disabilities and you can’t cater for all, what people can do is just shop around for styles they know works for them. It is a niche market so for mainstream designers there’s no profit in it.

Newsline Summer 2017

What design features do you incorporate to make your product more suitable for wheelchair users?

There are many disabilities and in one outfit you will never please all of us, so from the start I decided my products would only be for a regular “normal” body size and shape, so we don’t cater for very small people or amputees. The most important feature was that our clothing is for those sitting down.

As a wheelchair user myself I was aware of how important upper body detail is, when you are talking to someone it is your face, bust, body and arms people will focus on, so therefore I’ve incorporated interested necklines, I have sleeves that are interesting and yet at the same time are either 3/4 length so wheeling is easier and cuffs don’t get muddy or ruined in the wheels.

We have skirts and trousers higher at the back and slightly lower at the front, for some fastenings we have magnets and poppers instead of tricky buttons.

Wider necklines or deep zips.

Fabric is also very important, those that have lost sensation in their lower limbs enjoy the sensual feel of silk or soft fabrics, some people like a fabric with stretch in it.

In the 10 years since you launched WheelieChixChic what changes, if any, have you noticed in the industry towards clothing for wheelchair users?

We launched in 2007 during London Fashion Week with many journalists from around the world. It was an exciting time but it was extremely costly, as the British Fashion Council didn’t want to know, so I had to finance it all myself. It was a constant battle facing rejection from the BFC, like they’d never heard of disabled people and the word “fashion” going together. Since then I have seen disabled models on the catwalk in all the major fashion cities which is great, but I feel it’s a token effort and the clothing is still the same. There are disabled models BUT they are wearing regular clothing in mainstream fashion, they just offer the novelty value on a catwalk.

BELOW (L-R): Issey trousers with Sonia Jacket, Issey trousers back, Issey trousers front.

There has been some press coverage recently highlighting the use of wheelchair users as models in mainstream fashion. Do you see a place for models with disabilities on the catwalk?

Yes, I do and I’m pleased this is happening as it’s about time. I do think they’re often thrown is as the novelty value, but if that one disabled model makes people sit up and think for a minute, then it can’t be a bad thing.

Do you have any tips for how wheelchair users can make the best choices in terms of style when buying from mainstream fashion?

Firstly look at my website, but yes I do have lots of tips and most of them are very straightforward. One: know your body shape. Secondly: always think about upper body detail, look for wide openings on tops and dresses or deep zips; think about your sleeves, short sleeves are great but in colder months look for 3/4 length or sleeves you can turn up. Finally: don’t be scared by pattern and colour. Wearing the right outfit gives you an air of confidence, you need to feel like a woman be sensual, sexy, sassy, feminine and elegant. Don’t ever let your wheelchair be the star, you need to be the one that shines.

BELOW: Louisa Summerfield

What is your vision for the future of WheelieChix-Chic?

I’m always on the hunt for good designs, our collections will be small, but on trend and to the point.

I’d like to expand by adding well-chosen accessories and maybe even include style and make-up advice.

With sponsorship, I’d love to do a big charity fashion show with invitations to designers who can handle the challenge.

Many thanks to Louisa for giving her time to Newsline and for continuing to offer a fashionable choice for female wheelchair users. Don't forget to check out the complete range at www.wheelieChix-chic.com where members of Spinal Injuries Scotland can enjoy an EXCLUSIVE 15% OFF all items using the code SIS2017 at checkout.

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The disABILITY to Cruise m u i r t A

deck

r e d n u s e i v o M the stars

le folding Accessibseat shower

sink Lowerelvdes & she A cruise holiday can be a fantastic way for people with disabilities, and their families, to enjoy a relaxing holiday.

There are a few considerations to be made, but cruise holidays are just as accessible for those with disabilities as they are for the able-bodied.

Firstly transportation to your cruise terminal of choice can be approached in the normal way for the wheelchair user. Just remember that if you intend to leave your car in secure parking, like airports, costs can be quite high.

On arrival at your terminal you go through a similar check-in procedure to that of an airport, handing over your luggage to a stevedore for delivery to your cabin, and making sure the boarding card you’re given is always at hand. This is your access key not only for your cabin but for all the facilities on board, so don’t lose it!

Once on board, your cabin will have different facilities according to type. They range from the simplest type of accommodation, the ‘Inside’ cabin which has no window, to the ‘Suite’ which can border on the palatial, with balconies and ‘duplex’ levels.

Whatever you choose, make sure your cabin has ‘accessible’ features when you book. This will give you essential features such as lowered heights for sinks, toilets seats, light switches and detachable shower head.

Depending on the ship, you will have a vast choice of areas to explore. These will include dining areas of various types, entertainment venues, swimming pools and jacuzzis, retail outlets, Purser’s desk and medical facilities should you require them.

As in a land-based hotel 24-hour room service is available for those who wish to dine in their cabin and the menus are usually the same as those in the main restaurants.

Whatever activity you opt for, facilities aboard ship are usually top notch. These can range from retail therapy in the various shops through to therapy in the form of a massage or manicure or pedicure in the onboard spa. Watching a movie on the top deck can be thoroughly enjoyable if your ship has an outdoor screen. Warm blankets and complimentary popcorn are usually provided!

Going ashore at ports of call and exploring the different ports and their surrounding areas is usually the main interest for those on a cruise.

People with disabilities normally access the port of call by going ashore on the tender craft. Sometimes, however that port may have difficult access such as steep or narrow steps so it’s important that you do your homework before booking.

Hopefully this information will help you go on and get out there. Book a cruise, see the world, or at least part of it!

Extracted from ‘The disAbility to Cruise’

by Douglas Smith. www.thedisabilitytocruise.com

Newsline Summer 2017

19

Welfare: Carer’s Allowance What is Carer’s Allowance?

Carer’s Allowance is the main benefit for carers.

It is paid at £62.70 a week (2017/18 rate).

You do not have to have paid National Insurance contributions to qualify for Carer’s Allowance.

It is not a means tested benefit based on you and your partner’s income and savings. However, there is a limit on how much you can earn and still be entitled to claim Carer’s Allowance.

Carer’s Allowance is taxable. However, carers will only have to pay tax if they have other sources of taxable income such as an occupational pension or earnings. Carer’s Allowance on its own is below the threshold for paying tax.

Who can claim Carer’s Allowance?

Not every carer can get Carer’s Allowance. You may be eligible if you meet all the following conditions: • You look after someone who gets a qualifying disability benefit such as Disability Living Allowance (middle or high rate), Personal Independence Payment (Daily Living component), Attendance Allowance or Constant Attendance Allowance.

• You look after that person for at least 35 hours a week.

• You are aged 16 or over.

• You are not in full-time education.

• You earn £116 a week (after deductions) or less.

• You satisfy UK residence and presence conditions.

If you meet the above conditions but already receive certain earnings replacement benefits (including State Retirement Pension), then the amount of Carer’s Allowance you may be entitled to will be affected.

When to claim If you claim Carer’s Allowance within three months of the person you care for getting a decision about their Disability Living Allowance (DLA), Attendance Allowance (AA) or Personal Independence Payment (PIP), Carer’s Allowance will be paid from the date these benefits were awarded (as long as you meet the conditions for the whole period).

If your claim is made after this you should tell DWP on your claim form if you want your claim to be backdated. Claims can only be backdated 3 months and you must have met all of the conditions for the whole period.

Carer Premium If you qualify for Carer’s Allowance and you are receiving a means tested benefit you will be entitled to a carer premium added to that benefit. (If you are receiving Pension Credit this premium is called a Carer Addition and in Universal Credit it is called a Carer Element). To claim this premium you should tell the department paying your benefit that you have been awarded Carer’s Allowance. If you cannot receive Carer’s Allowance because you already have another earnings replacement benefit you will be told you have ‘underlying entitlement’ to Carer’s Allowance.

This ‘underlying entitlement’ also qualifies you for a carer premium.

Protecting your National Insurance record Your National Insurance record is used to work out your entitlement to some state benefits, e.g. State Retirement Pension or contribution based Employment and Support Allowance. If you have to take a break from working to look after someone you may be worried about what will happen to your National Insurance record and any future pension.

When you receive Carer’s Allowance you are automatically awarded a National Insurance credit which will protect your record. Credits can also count towards Bereavement Benefits for your spouse or civil partner. Carers who do not receive Carer’s Allowance need to claim the Carer’s Credit by contacting the Carer’s Allowance Unit.

If you get Carer’s Allowance you do not need to claim Carer’s Credit as your pension is already protected.

Jacqueline Lange Welfare Rights Adviser Digby Brown Solicitors

20 Kevin Mackin

Bullen Healthcare and me!

A member’s view of the service from our partners, Bullen Healthcare.

Bullen are a family run healthcare business in Liverpool with over 150 year’s experience.

After attending a 2 day workshop at Bullen Healthcare I got back in touch with Spinal Injuries Scotland, because I wanted to let all other members know about my experience of using Bullen.

I can personally highly recommend them.

In Liverpool, everything is done on the same site; call centre, pharmacy, warehouse. Everything was really organised. I spoke to them about a change I needed to my delivery when I was there and it was sorted out immediately! From managing director to warehouse worker, everyone mucks in.

I have been using Bullen’s home delivery service for the last 3 years and they have been terrific!

After 17 years of ‘pharmacy frustration’ (it’s a real condition – look it up!), and constantly wondering, ‘Will my prescription be right this time?!’, I got in touch with Bullen and I wasn't disappointed.

Newsline Summer 2017

When you join, Bullen allocate you a personal advisor who handles all of your orders. It’s always the same person and they are always friendly and responsive and chat away to you. It’s all part of the service.

Every 3 weeks my personal advisor contacts me to see what medication I need to order. They then contact my doctor for a prescription and I receive it the following week. It's delivered to your door

by Parcelforce. I also receive a text message from Parcelforce to say my delivery will be that day.

I can honestly say that it’s a world of a difference.

And I just wanted to let you know too. No more running down to the doctors at last minute or picking up from the chemist. You can rely on Bullen.

They’re also really supportive partners to the charity so by helping yourself the way I did, you’re also helping the charity, and other people with a spinal injury.

Don’t just take my word for it – check out the advert for Bullen in this magazine and give them a try.

21

Fundraising Fundraising & Donations

Ruth Furneaux’s father was hit by a car whilst cycling home from work, nearly 8 years ago.

He suffered severe injuries to his spinal cord, which left him paralysed from the neck down.

Spinal Injuries Scotland offered a lot of help and support during his 10 months in the spinal injuries unit in Glasgow. They regularly visited Ruth’s father and other patients, giving them hope and helping them adapt to life in a wheelchair.

Skydive Mexico

<<

This meant a lot to Ruth and her father. Ruth and a few friends decided to do a skydive whilst on holiday in Playa Del Carmen, Mexico, leading them to raise money for the charity.

Ruth commented: “We decided that Spinal Injuries Scotland was a great cause and very close to our hearts. Sadly my family and I lost my dad suddenly just weeks before the holiday which gave us even more determination to do the jump and raise as much as possible. Our target was just £250 yet we managed to raise £760!” to all of Thanks e been o hav you wh rk fundraising wo hard at rity. We are ear cha for our delighted to h p o ee s always ies so please k r your sto ood work your g e h t ely up are hug efforts iated. apprec

Edinburgh Half Marathon Lisa Sandilands ran the Edinburgh Half Marathon on 28th May, raising money for Spinal Injuries Scotland. Completing it in 2 hours 26 minutes. This was Lisa’s second half marathon, and she persuaded her partner to join her.

In 2013, Lisa suffered a spinal injury in a road traffic accident.

She fractured her spine in two places and underwent surgery to place metalwork in her spine to heal. After a couple of years, Lisa had the metalwork removed. Lisa said: “I have been lucky enough to recover and be able to continue my life as normal, but I know how my life was turned upside down for the short period.

I wanted to make sure I could help those who are not lucky enough to heal so quickly, or at all. I would happily continue to fundraise for SIS as it’s such a fantastic charity!”

22

Thank You Fundraising & Donations

Thanks you wh to all of hard at o have been work fu for our charity. ndraising always We are so your sto delighted to h ea rie up the g s so please ke r oo ep efforts d work your are hug ely apprecia ted.

<<

John said: “We are delighted to be supporting Spinal Injuries Scotland with a £1000 donation.

These funds will be used to facilitate fundraising activities such as monthly quiz and social nights which help to provide enjoyment for patients during their stay in the Spinal Unit within Queen Elizabeth University Hospital. In addition to this, our donation will also help to fund Christmas gift bags for patients spending time there over the Christmas period.”

Thank you to Arnold Clark Automobiles Ltd , who donated £1000 to Spinal Injuries Scotland.

Pictured above is John Clark, Director of Arnold Clark, presenting the cheque to Laura Torrance, SIS Peer Support Advisor.

<< A big shout out to Glasgow Happy Faces Lisa Brennan who was facepainting at Lilias Day in Kilbarchan and had the SIS fundraising bucket out and raised £83.15.

Lisa explained why she did the fundraising: “My mum is paralysed after a car accident in the Highlands over 10 years ago on Christmas Day. She spent 6 months in the Southern General Hospital Glasgow, where she received excellent care. And is still in touch with Helena from the hospital.”

Newsline Summer 2017

ld like We wou raeme kG to than r his fo n o ion Beest s donat u o r gene a stay t from his Farm.

Clober

23

Holiday Classifieds

from SIA’s forward magazine

HOLIDAY ACCOMMODATION

HOLIDAY ACCOMMODATION

FRANCE

PORTUGAL

COLLIOURE, SOUTH OF FRANCE Ground-floor, two bedroom apartment, sleeps four/six. Level access throughout. Designed specifically for people with spinal cord injury. Ensuite bathrooms, air-conditioning, full heating.

Height-adjustable beds, pressure-relieving mattresses.

Separate upstairs apartment available for family or friends. www.origincare.co.uk click on L’Origine or call Nathalie on 00 33 632 56 61 75

ALGARVE, PORTUGAL Luz do Sol 4 bedroom villa with pool enjoys panoramic sea views, peaceful location Sleeps 7 spacious and light.

Complimentary accessible car, pool lift, hoist, shower trolley, shower/commode chair, massage table, airport transfers.

Fantastic family holiday villa. www.algarve-vacations.com Email: info@algarve-vacations.com or call 00 351 919 032 377

BRITTANY, FRANCE Spacious wheelchair accessible holiday accommodation close to the North Brittany coast. Sleeps up to 8 people with 3 bedrooms and 2 bathrooms. Accessible ground floor double bedroom with large ensuite wheel-in shower room. Profiling bed, hoist and shower chair can be provided on demand.

Another bathroom, and two further bedrooms upstairs.

Situated in tranquil countryside, 20 mins drive to beautiful beaches. Within easy reach of ferry ports. Pets welcome.

For details contact Clara and Martin Cronin on +33 296 47 17 86. Email: info@gites-en-tregor.com www.gites-en-tregor.com

ALGARVE, PORTUGAL Your home from home in the sun including accessible transport and airport transfers. Owned by C4 tetraplegic, 20-minutes from Faro airport with stunning views and privacy. Three twin bedrooms, two with wheel-in showers. Pool with hoist heated to 25°C. Inclusive accessible vans & airport transfers, electric up and down bed, electric indoor hoist, shower/commode chairs etc. Not to be missed. See full details on our comprehensive website. Tel: 00351 289 414 687 Email: sia@ouricodomar.com. www.ouricodomar.com

SPAIN

ALGARVE, PORTUGAL Spacious private villa with pool and hoist. Three bed, two bath with wheel-in shower. Shower chair provided. Well-equipped kitchen. Two barbecues. All doors one-metre wide. Level access throughout villa and pool area. Paraplegic owner.

Debbie Wells. Tel: 01277 354 313

ALCOSSEBRE, SPAIN Superior, front line two bedroom apartment with ensuite level access shower. Modern low rise complex, beautifully kept gardens, swimming pools. Large terrace overlooking beach.

Wheelchair accessible throughout. Level access to bars and restaurants. Secure parking.

Email: tedbid@aol.com. Tel: 01228 561 219

ALAMANCIL, ALGARVE, PORTUGAL Outstanding, fully-accessible luxury private villa set in beautiful countryside. Three bedrooms, all ensuite with wheel-in showers. Private pool with hoist. Comfortable lounge/dining rooms and well-equipped kitchen.

All you could wish for in a holiday home and so much more!

To contact us call 01530 833 690 or www.villas-algarve.co.uk

HOLIDAY ACCOMMODATION

COSTA BLANCA, JAVEA, SPAIN Spacious, fully-equipped, luxury, five-bedroom villa, sleeps 10.

Three bathrooms (two ensuite, one with roll-in shower).

Flat plot, fully accessible gardens. 12m x 6m pool with hoist.

Sky TV. 2.5km to beach. Vehicle required. Contact John Kenny 07721 336 747. Email: enquiries@casadefloresspain.co.uk www.casadefloresspain.co.uk COSTA BLANCA, TORREVIEJA, SPAIN Established, detached family villa with lovely gardens in sunny Torrevieja on the Spanish Costa Blanca. Huge wheel-in swimming pool. Custom built for C5 owner. Close to beach and all amenities. Airport 20-mins. Converted vehicle also available to hire. For details Tel: 01262 676 015 www.disabledvilla.com COSTA BLANCA, JAVEA, SPAIN Lovely wheelchair friendly villa set in large colourful gardens on level, gated plot. Well equipped, three beds, two baths, master bed with large ensuite bathroom and wheel-in shower (chair provided). Cable TV with Sky and English channels, DVD player plus DVD library, free broadband internet access.

Wheelchair-friendly gardens, 10m x 5m pool with easy-to-use water-powered pool lift and full-size outdoor tennis table.

T1 paraplegic owner. Contact Norman or Sue. Tel: 01900 67280. Mobile: 07818 406 861 Email: info@accessvillaspain.com. www.accessvillaspain.com

HOLIDAY ACCOMMODATION

CYPRUS VILLA CARPE DIEM, MARONI, CYPRUS Consistently rated five stars, spacious, accessible private villa, own pool and hoist. Sensory gardens, shaded verandah, spectacular sea and countryside views. Designed with SCI person. 4 bedrooms, 4 bathrooms. Accessible suite – wheel-in shower including shower chair, level access, Theraposture profiling or Baltic turning electric beds, Likoroll ceiling hoist.

Raise recline chair. Assistance available through local English agencies. Access statement www.villacarpediem.co.uk Child friendly. Wheelchair accessible vehicle, airport collection service. Local services and beach. Call Andy 00357 99968418 or Niki 07866 441204. Email: office@villacarpediem.co.uk POLIS, CYPRUS Three-bed accessible villa Private pool with electric pool hoist, wide steps and handrails. Ramp access throughout the villa and grounds. Walking/pushing distance from shops, village and beach (with sea trac chair available in the summer season - see website). Wheel-in wet room with wall mounted shower seat and self-propelling shower chair available. Accessible hob and sink in kitchen. Child friendly. Owned and designed by an SCI person. Email: timilyvilla@outlook.com. www.timilyvilla.co.uk

24

Holiday Classifieds HOLIDAY ACCOMMODATION

AMERICA ORANGE TREE, ORLANDO, FLORIDA, USA Five bed/four bath, purpose-built wheelchair accessible villa overlooking lake and conservation area. Level access throughout. Wheel-in shower and shower chair.

Non-chlorine x-large pool with spa, both accessible by hoist.

Free Wi-Fi, sleeps 12, short drive to attractions and amenities.

Paraplegic owner. www.ayersfloridavillas.com Email: lucy@ayersfloridavillas.com

from SIA’s forward magazine

TODSWORTHY FARM HOLIDAYS, CORNWALL, ENGLAND Luxury and spacious barn conversions on a family run working farm. Located in an area of outstanding natural beauty in the picturesque Tamar Valley. Owned by a C6/7 tetra both self-catering cottages are superbly adapted for wheelchair users and their families. Both cottages sleep 6 and have a level access bedroom with a spacious ensuite wetroom. Shower chair, hoist and profiling bed can be provided. Both cottages are pet and family friendly.

Perfect location for touring Devon and Cornwall.

Open all year.

Tel: 01822 834 744 www.todsworthyfarmholidays.co.uk

HOLIDAY ACCOMMODATION

SCOTLAND CLOBER FARM, MILNGAVIE, GLASGOW, SCOTLAND Spinal Injuries Scotland were bequeathed this Grade C-listed property and have converted it to fully accessible accommodation, with extensive gardens, situated around 30 minutes from Glasgow city centre. The accommodation sleeps five/six and comprises adaptable kitchen, two double bedrooms, one with ensuite wet room, a single bedroom, plus a modern accessible bathroom.

For further information, see the SIS www.sisonline.org.

Email: clober.farm@sisonline.org Tel: 0141 427 7686 / 0800 0132 305 CRATHIE OPPORTUNITY HOLIDAYS, DEESIDE, SCOTLAND These four fabulous cottages are 40 miles west of Aberdeen and are located in the old Manse Courtyard of Crathie Kirk.

They are situated within the Cairngorm National Park on the banks of the River Dee and offer stunning views.

While accessible to all, the cottages offer facilities so that disabled people can also enjoy relaxing holidays in wonderful surroundings. The range of additional equipment is extensive and provided at no charge. The cottages have a security gate and are surrounded by a fenced play making them also ideal for families with children. www.crathieholidays.org.uk Tel: 013397 42100 or Email: info@crathieholidays.org.uk

TREWORGANS FARM HOLIDAYS, MID CORNWALL, ENGLAND Specially converted cottages (sleep 4 & 6) that are fully wheelchair accessible. FREE use of 4-section electric profiling beds, air mattresses, electric hoists, shower chairs and rise/recline chairs as well as numerous other mobility aids. All bedrooms have en-suite facilities – each property has one level-access wet room. Adapted kitchens.

Accessible decked patio areas. Detached. Ample parking areas. Care available from local agency. Exposed beams, wood burner. Ideal location for exploring the whole county.

Tel: 01726 883240 or 07762 173860 www.treworgansfarm.co.uk POOLE, DORSET, ENGLAND Hill Lodge. Owned by C5/6 Tetra. Holiday let in beautiful rural location just 10mins from Poole Harbour. Three double ensuite bedrooms. Sleeps up to 6 people. The accessible room is on the ground floor with ensuite wet room.

Shower chair provided. Electric height-adjusted and profiling bed. Accessible kitchen with wheel-under hob and sink. Free WI-FI. Level access and exclusive use of gardens. Further equipment provided on request.

View at www.endeavour-uk.co.uk Contact Becky becky@endeavour-uk.co.uk Tel: 01202 630 075

HOLIDAY ACCOMMODATION HOLIDAY ACCOMMODATION

WALES

ENGLAND

GLAN Y GORS COTTAGE, WALES Snowdonia. Fully accessible, self-catering cottage in beautiful rural location, with open views of Snowdon and surrounding mountains. 4 bedrooms, 3 bathrooms, large kitchen/diner, lounge with log fire. Ground floor bedroom and shower room.

Hospital bed and mobile hoist available. Sleeps 10 (12 with sofa bed), reduced rates for smaller groups.

See website for details: www.wilsons-holidays.co.uk Email: info@wilsons-holidays.co.uk Tel: 01286 870 261

CENTRAL CORNWALL, ENGLAND Two barns, sleep 2/4 and 4/6, converted for wheelchair users, each with 2 wet rooms. Quiet level site on small working farm, 480 metre easy walk/wheel to village shops, pub, etc. Open all year. Owners live on site. www.roperswalkbarns.co.uk Email: peterandliz@roperswalkbarns.co.uk Tel: 01209 891632 ABNEY, DERBYSHIRE, ENGLAND Room for all Seasons, fully adapted, luxury, self-catering property in the heart of the Peak District National Park.

Wheelchair accessible, hoist available. Sleeps three. www.laneendfarmtrust.co.uk Tel Viv for leaflet or more information 01433 650 043

Newsline Summer 2017