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STAFF WRITERS AND
Meet Our New Events Coordinator
I am a full-time working mom, and this work is my heart and soul for not only my child, but for all special needs families. I volunteer my energy and time to continue watering the seeds I’ve planted, and I know I am in my calling because the work gives me energy.
It’s a real synthesis of my values, my professional background in marketing and the arts, and a passion for discovering all the moving pieces of this wild world we live in. I believe we are all here on a mission to find one another, to discover who we are, and who we are to one another. And if you’re thin on hope, I’ll give you some of mine. I believe we can have a shared mission as partners in It Can’t Be Zero if we are willing to listen, use our gifts, get our hands real dirty, have lovingly uncomfortable conversations, and move forward with grace. For more information or to talk about events, contact me at kristin@itcantbezero.org
Christia Woodford Content Manager, Publishing Assistant and Local Events
Jamie Olson Area Director & Publisher
CONTRIBUTORS
Steve Friess
Ron Sandison
Molly David Melanie Young
Maria Giancotti
Christina McGairk Editor-in-Chief
Janalee Grainer Uniquely youAccount executive Stroll Oakhurst
Jesse Ronne
Kristin Dillon Events Coordinator and Staff Writer
Rebecca Parten
Dorene Philpot
Uniquely You Detroit/Metro is a free monthly magazine for and about our local special needs and disability communities. Each issue shares inspiring stories, critical resources, and recommended businesses that make Uniquely You the ultimate go-to guide for special needs families in Michigan.
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ISSUE PREVIEW
• Page 4 Meet Out New Event Coordinator: Kristin Dillon
• Pages 8-9 See What’s New at STEP!: STEP Members Thrive Through Community Engagement
• Pages 10-11 Judson Center: Judson Center Empowers Autism Community with Real-World Dental Desensitization
• Page 13 “The Gypsy King” by Caleb Banks and Amy Betzold
• Page 14 You’re Invited!: Uniquely You A SensoryFriendly Family Event at Sterling Heights Public Library
• Page 15 Event: Uniquely You! Virtual Resource Fair
• Pages 16-18 Nonprofit Spotlight: Wistful Marra
• Page 19 Advocate Like A Mother: When the School Says Your Child’s Grades Are “Too Good” for an IEP or 504 Plan: What You Need to Know
• Pages 20-22 Your Story Matters!: Meet the Isenhoff Family
• Page 23 Chapters of Change: A Face for Picasso by Ariel Henley
• Pages 24-25 Sponsor Spotlight: Services To Enhance Potential
• Pages 26-27 Healing Haven: 5 Ways to Manage Screen Time for Children With Autism
• Pages 28-31 Local Events
PUBLISHER/ ADVERTISING INQUIRIES
Jamie McCabe 248-882-8448
Jamie.Olson@n2co.com
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When the School Says Your Child’s Grades Are “Too Good” for an IEP or 504 Plan: What You Need to Know
Your Story Matters!:Meet the Isenhoff Family
5 Ways to Manage Screen Time for Children With Autism
Sponsor Spotlight Judson Center Empowers Autism Community with Real World Dental Desensitization
STEP Members Thrive Through Community Engagement
BY GRETCHEN STILL
Community engagement is a favorite activity among our members, who enjoy the chance to give back while gaining valuable life and job-readiness skills. For those looking for fun and social interaction, STEP also offers weekly outings to local parks, libraries, recreation centers, museums, bowling alleys, and movie theaters. These experiences help build confidence, expand interests, and foster meaningful peer connections.
In 2024 alone, over 700 STEP members collectively participated in more than 103,960 hours of community-based activities, and we expect to see even greater numbers in 2025!
These community experiences are more than just enjoyable—they are critical to building independence and preparing for future employment. Each volunteer task or outing is an opportunity to develop interpersonal skills, navigate new environments, and strengthen ties to the neighborhoods where members live, work, and thrive.
At STEP, we believe that meaningful community involvement lays the foundation for inclusive employment and lifelong success.
Services To Enhance Potential (STEP) is a non-profit organization which provides support and services to nearly 1,400 persons with disabilities and other mental health needs
STEP member volunteering at the Community Grown Garden
JOIN STEP FOR OUR 9TH ANNUAL STEPS TO SUCCESS EVENT
0n Thursday, October 16, 2025, at the Jam Handy in Detroit. This special evening brings together advocates, supporters, and changemakers who believe in creating a more inclusive world. By supporting this event, you’re not just attending—you’re helping to transform lives. Sponsorships, tickets, and donation information can be found online at www.stepcentral. org/9th-annual-steps-to-success.
in Macomb, Washtenaw, and Wayne Counties. A major goal of Services To Enhance Potential is to increase the number of people who are employed, self-employed, and volunteer in their communities. STEP provides and supports a variety of employment and self-employment options. We were founded in 1972 to bring an employment focus to individuals with disabilities and have developed a strong reputation in the community for doing so.
For more information about the programs that STEP offers, please visit www.stepcentral.org.
STEP member at Fleece and Thank You
Judson Center Empowers Autism Community with Real World Dental Desensitization
Judson Center hosted a transformative event in their Life Skills Lab. A University of Michigan pediatric dentist visited to provide dental desensitization practice to clients on the spectrum. During these sessions, children rehearsed core behaviors, such as sitting in a dentist’s chair, tolerating bright lights and oral examinations, and engaging with a new dental provider, to reinforce skills learned with consistent staff. Such practice is rooted in the principle of generalization, a key tenet in Applied Behavior Analysis (ABA). According to ABA research, true mastery emerges when skills are demonstrated across various people, settings, and materials, not just within a single, familiar environment. By introducing a novel dental professional into a simulated clinical setup, Judson Center ensures skills transfer to real-world contexts, aiding long-term outcomes.
The Importance of Dental Desensitization for Autistic Individuals
Dental experiences can pose significant sensory and communication challenges for autistic individuals (Prynda et al., 2024). Bright lights, strange noises, and unfamiliar physical sensations often trigger heightened anxiety, leading to avoidance behavior and complicating oral healthcare routines. Unfortunately, this can contribute to poorer oral health in this population, including higher rates of cavities and gum disease.
Evidence supports intentional desensitization:
• A 2022 study involving autistic children found that when desensitization occurred closer to the appointment, children tolerated more steps during the appointment (Martinez Perez et al., 2023).
• A 2024 randomized controlled systematic review concluded that video modeling and sensory-adapted environments significantly reduce anxiety and increase participation in young autistic patients (Prynda et al., 2024).
• Additional pilot studies indicate that graduated exposure paired with reinforcement enables many autistic students to tolerate dental cleanings, with at least one
child successfully completing a real-world appointment after school-based desensitization (Luiselli et al., 2018).
Judson Center’s approach mirrors these interventions by embedding sensory supports (e.g., adaptive lighting, structure) within familiar contexts, complemented by varied providers to enhance generalization.
Life Skills Lab: Teaching for Real Life
Judson Center’s Light Skills Lab is a fully equipped simulation of real healthcare environments, complete with a waiting room, exam chair, and sensory-adjustable settings. Their abstract at the Autism Alliance of Michigan Autism Today conference emphasized the essential role this model plays in preparing clients and families for routine healthcare visits.
Families report significant improvements: once children learn to navigate the lab, applying those same skills in an actual doctor, dentist, and salon settings becomes much more achievable. Research demonstrates that such structured generalization is essential for long-term retention and realworld application.
Building Confidence, Independence, and Health Judson Center’s dental desensitization event does more than improve oral outcomes, it builds independence, selfconfidence, and lifelong wellness habits. Reducing anxiety in routine care can prevent reliance on general anesthesia and
expensive interventions, ultimately supporting healthier, more empowered lives. By combining evidence-based practices, sensory adaptation, visual and video modeling, and real-world generalization, Judson Center positions itself at the forefront of autism support. Their model offers a compelling blueprint: teach skills in a controlled, familiar environment, then apply them with real providers to ensure lasting, meaningful change.
References
Carter, L., Harper, J.M. & Luiselli, J.K. Dental Desensitization for Students with Autism Spectrum Disorder through Graduated Exposure, Reinforcement, and Reinforcement-Fading. J Dev Phys Disabil 31, 161–170 (2019). https://doi.org/10.1007/ s10882-018-9635-8
Prynda, M., Pawlik, A. A., Niemczyk, W., & Wiench, R. (2024). Dental adaptation strategies for children with autism spectrum disorder—a systematic review of randomized trials. Journal of Clinical Medicine, 13(23), 7144. https://pubmed.ncbi.nlm.nih. gov/39685603/
Martinez Perez, E., Adanero Velasco, A., Gomez Clemente, V., Miegimolle Herrero, M., & Planells Del Pozo, P. (2023). Importance of desensitization for autistic children in Dental Practice. Children (Basel, Switzerland). https://pubmed.ncbi. nlm.nih.gov/37238344/
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Share your insights by answering any of the questions that resonate with your experience. Once submitted, our team will review your responses and reach out if additional details are needed.
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Momments That Matter: A heartwarming collection of snapshots from recent community events, family outings, inclusive sports, classroom wins, and support group gatherings.
Do you have a meaningful moment to share? Submit your photos and captions (with names and quotes, if permitted) to help us highlight the everyday joy, strength, and achievements of individuals with special needs and their families. Let’s celebrate the beauty in every milestone – big or small –together! https://form.jotform. com/251194238488163
We are starting a Uniquely You Rise & Shine Event team thrilled to bring impactful events to life that connect, uplift, and support the special needs and disability community. As a team member, you’ll have the opportunity to share your ideas and collaborate with us to plan meaningful and exciting future events. If you are interested in joining, please submit your application below. Let’s make a difference together!
Readers’ Favorite Announces Review of Christian Historical Fiction Book
“The Gypsy King” by Caleb Banks and Amy Betzold
The Gypsy King: A Christmas Story by Caleb Banks and Amy Betzold is a Christian historical fiction novel set in 1847 Indiana that captures the essence of faith, perseverance, and family bonds.
The story follows Daniel McDavid, a fifteen-year-old Irish immigrant orphan who embarks on a perilous journey to reunite with his sisters before Christmas. Alongside a mysterious horse that reminds him of his heritage, Daniel faces daunting challenges including wolves, illness, and harsh winter conditions. Through these trials, he discovers depths of inner strength rooted in his faith and his unwavering love for his family. The authors weave together elements of adventure and spiritual growth, creating a narrative that resonates with both historical authenticity and timeless themes of hope.
Author team Caleb Banks and Amy Betzold have crafted a story that transcends typical historical fiction boundaries and offers something spiritual and mysterious. Their storytelling carries the audience into the heart of 19th-century Indiana with descriptions that made me feel the biting cold and hear the crunch of snow beneath Daniel’s feet. The dialogue rings true to the period while remaining accessible for modern audiences, lending authenticity to each character interaction and moving the plot along naturally. The authors also excel at building tension through physical and emotional challenges, making Daniel’s journey feel immediate with close narration and precise attention to detail.
The integration of faith elements feels natural, particularly in the subtle parallels to the nativity story that add meaningful comparisons and interesting new connotations. The relationship between Daniel and his horse was also a surprising and moving feature, providing moments of both levity and profound connection as well as demonstrating the authors’ skill at balancing different emotional notes.
Overall, The Gypsy King is an adventure that I highly recommend to readers seeking a meaningful historical tale with strong spiritual undertones.
You can learn more about Caleb Banks and Amy Betzold and The Gypsy King at https://readersfavorite.com/ book-review/the-gypsy-king, where you can read reviews and the authors’ biography, as well as connect with the authors directly or through their website and social media pages.
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Uniquely You A SensoryFriendly Family Event
DATE: Saturday, October 11, 2025
TIME: 11:00 AM – 1:00 PM
LOCATION: Sterling Heights Public Library, 40255 Dodge Park Rd, Sterling Heights, MI 48313
Join us for a heartwarming and inclusive event for families and individuals in the special needs & disability community!
Event Highlights:
Sensory-Friendly Story Time | 11:00 – 11:30 AM
Explore Resources & Support Partners for your family’s journey
Engaging Sensory Activities for all ages and abilities
Discover Unique Library Programs including Braille books & adaptive resources
Experience KultureCity’s Mobile Sensory Stations – creating inclusive spaces for individuals with invisible disabilities
Connect with Other Families, Caregivers, and Individuals in the community
Come for story time or stay for the full experience. Whether you’re just getting started or well on your journey, this is a safe, welcoming space to explore, connect, and be celebrated.
LINK TO REGISTER: https://buytickets.at/ uniquelyyou/1787843
All are welcome. We can’t wait to see you there! Questions? Contact us at: Jamie.Olson@n2co.com 248-882-8448
WEDNESDAY,
Wistful Marra
A sanctuary for parents in the trenches
KRISTIN DILLON
When Rachelle Isenhoff became a mother to a medically fragile child, she was thrust into a world few understand unless they’ve lived it—one of alarms, appointments, ER visits, and endless paperwork. What she didn’t expect was how invisible she would feel in the process.
“There were so many supports for my son,” she says. “Specialists, programs, even nonprofits focused on his diagnosis. But for me? A parent navigating grief, hope, hypervigilance, and daily medical care—there was nothing. They’d hand you a glass of water, a brochure, maybe suggest counseling—usually with someone who didn’t understand our world. And that actually made things harder. It deepened the isolation.”
We bonded over one of the hardest truths of this world: systems often stop at referring parents to a counselor. But what’s often missing in those spaces is someone who’s been in the trenches— who already understands the acronyms, the medications, the middle-of-thenight hospital math. When you spend more time educating your counselor than receiving support, the session itself becomes one more source of emotional fatigue.
“You need a soft landing,” she said. “A friend. Someone who just gets it.”
So she built what she couldn’t find. That silence, over time, became a calling. Today, Rachelle is the founder of Wistful Marra, a holistic health and wellness space for parents of medically fragile and disabled children. The organization’s name is a nod to the deep ache so many parents carry—a longing for friendship, clarity, and peace.
“‘Wistful’ felt right because it names that soft ache, that yearning we carry,” she says. “And ‘Marra’—it means
‘bitterness’ in Hebrew, but to me, it’s also the name of one of our cats. It’s this idea that even bitterness can be softened by care, by community, by love.”
Based in Newaygo County, Michigan, Wistful Marra offers a range of support: one-on-one coaching, group coaching cohorts, a free online community, monthly Zooms focused on stress release, and—coming soon—a low-lift journaling program designed for parents who are running on fumes but still want to do something small for themselves.
The need is urgent. A 2022 study on the impact of rare disease caregiving revealed that 70% of parents report chronic stress, fatigue, and burnout. Most aren’t sleeping through the night. Many juggle full-time jobs with fulltime care responsibilities. And few, if any, feel seen.
“What I see again and again,” Rachelle says, “is that these parents are surviving, but they don’t feel like they’re living. They’ve disappeared into their child’s diagnosis. And nobody is handing them a life raft.”
That’s what Wistful Marra aims to be—a quiet hand reaching out in the dark.
Rachelle’s approach is holistic in the truest sense, or as she calls it “wholistic.” She doesn’t just talk about mindfulness and green smoothies. She talks about appointment fatigue, school meetings, interrupted sleep, marital strain, sibling dynamics, prayer, grief, and joy. Her coaching doesn’t offer platitudes. It offers strategy, presence, and peace.
“You can’t build a plan if someone’s nervous system is in survival mode. So we slow the stress first. Stop the burnout cycles, and avoid the burnout crash. Then we look at the full picture— then we get to the nanoparticles of scheduling, bill paying, macro counting.”
That picture might include: adjusting schedules to build in rest; exploring spiritual practices that offer grounding; creating simple, achievable health goals; naming grief that’s gone unspoken; reconnecting with joy.
What sets Wistful Marra apart is its refusal to treat parents like an afterthought. Rachelle believes that caregivers deserve care—not when the crisis is over, not if they can afford a retreat—but right now, in the thick of the mess.
“There’s this myth that self-care means massages or bubble baths,” she says. “Sometimes, it’s just having someone who asks, ‘How are you?’ and actually wants the truth.”
That someone, for many families, is Rachelle.
She’s walked the path herself. Her youngest son, James, was born with osteogenesis imperfecta, a rare bone disorder that has resulted in over 75 fractures. He later developed leukemia. He is, miraculously, thriving. But those years forged Rachelle in fire—and shaped the work she now does.
“Every coaching session I lead is rooted in compassion and reality,” she says. “I’ve lived the ER visits, the paperwork battles, the loneliness. I’m not here to fix you. I’m here to remind
you that you’re still in there. And that your story matters, too.”
“At the core of my health and wellness practice,” she adds, “is stress release, eating well, spiritual health, and living with vitality.”
Rachelle is also deeply committed to honoring the spiritual dimension of caregiving—something she believes is often neglected. “Spirituality can mean many things to many people,” she says. “But the fact that we’re not supposed to talk about our most sacred inner self with most people in our lives—it can make you feel really lonely.”
At Wistful Marra, that silence is gently broken.
“This is a judgment-free zone where exploring spirituality is welcome and openly encouraged,” she says. “I believe we are all spiritually embodied people who need sustenance for our body, mind, and spirit.”
“I didn’t go to school for coaching because I had to,” Rachelle says. “I went because I wanted parents to feel safe. I wanted them to know I cared. I wanted them to feel assured that the care I offer is real, grounded, and the best I can give.”
Her coaching sessions are 30 to 40 minutes, focused, and flexible. While she primarily coaches individuals and groups, Rachelle can also work with couples navigating caregiving together. “It’s powerful when both partners feel seen,” she says.
Her coaching helps parents prevent burnout, and find small, practical ways to care for themselves while still showing up for their families. She isn’t there to fix them or unpack trauma. She walks beside them.
“We start identifying where people are pouring their energy—and whether it’s sustainable.”
Rachelle’s vision for Wistful Marra is simple but powerful: to make sure parents of medically complex kids never feel like they have to do this alone. She wants to build the kind of support she once needed—real, honest connection from people who get it.
“We need to see the whole family,” she says. “When we care for the parent, we ripple healing into the entire home.”
Wistful Marra isn’t a crisis hotline or retreat center. It’s
something steadier—a place for parents to come back to themselves.
“You have the right to thrive,” Rachelle says. “Even in the middle of hard things. Especially then.”
But her vision doesn’t stop with coaching.
“I want to build a broader community,” she says. “Parent support that’s not just emotional but practical. Like helping kids give their moms a gift for Mother’s Day. Our kids might not be able to go shopping—but those touchpoints matter.”
She offers both free and paid services and is beginning to work with nonprofits to fund coaching for parents who can’t afford it. Wistful Marra is dedicated to helping parents of medically fragile children maintain their own well-being. The organization offers a variety of support services alongside
a free, supportive community where parents can connect with others who truly understand.
“We believe every parent deserves to be cared for,” Rachelle says. “We’re here to help you navigate the challenges of parenting a medically fragile child while also taking care of yourself. You have the right to thrive, even in the midst of hard circumstances.” It’s not always easy— organizations often want ROI metrics she says don’t capture the full story. But she’s clear on her purpose.
“Parents have a life alongside their child’s care plan,” she says. “They need to be anchored in support that sees them, too.”
If you’re feeling stuck, heavy, or just need someone to help you see a path forward—this is your moment.
“Whether you’re sorting through something specific or just need a voice
of calm in the weeds,” Rachelle says, “I’m here.”
You can schedule a free Get to Know You call, hop into one of her coaching programs, or simply send a message to start the conversation.
To learn more or join the community: wistfulmarra.com // @wistfulmarra Tools
When the School Says Your Child’s Grades
Are “Too Good” for an IEP or 504 Plan: What You Need to
Know
BY MARIA GIANCOTTI, M.ED. - STUDENT ADVOCACY MICHIGAN
As a parent of a child with special needs, you might face the frustrating situation where the school refuses to provide your child with an IEP or 504 Plan, claiming their grades are “too good” for such services. It’s essential to understand that grades alone are not the determining factor for eligibility, and the law provides clear protection for your child to receive the support they need.
GRADES DON’T DETERMINE ELIGIBILITY
Both IDEA (Individuals with Disabilities Education Act) and Section 504 of the Rehabilitation Act of 1973 ensure that students with disabilities receive a Free Appropriate Public Education (FAPE), but grades aren’t the sole determining factor. According to IDEA, a child qualifies for special education if they have a disability that requires specialized instruction. Disabilities may not always show up as poor grades. They can affect social-emotional skills, behavior, or executive functioning. Section 504 provides accommodations for students with disabilities, ensuring they can access their education on an equal basis with others. Again, grades are not the standard; the key question is whether your child can fully participate in school due to a disability. A child might have good grades but still need support in other areas like attention, focus, or emotional regulation, which could hinder their academic and social success.
GRADES DON’T TELL THE WHOLE STORY
Even if your child has good grades, they may still struggle in other areas, such as:
• Executive Functioning: Issues with planning, organizing, or completing tasks. A student with strong grades may still fall behind in managing assignments, which can negatively affect long-term academic outcomes.
• Social-Emotional Challenges: Difficulty with peer interactions, anxiety, or depression. These issues often go unnoticed but can make school a daily challenge for your child.
• Medical Conditions: ADHD, chronic health conditions, or learning disabilities can impact a child’s educational experience without affecting grades directly. For example, a child with ADHD may perform well in structured environments but struggle in unstructured settings or during transitions.
WHAT TO DO IF THE SCHOOL REFUSES SERVICES
If the school says your child’s grades are too high for an IEP or 504 Plan, here are the steps to take:
• Request a Comprehensive Evaluation: Under IDEA, schools must conduct a thorough evaluation to determine if your child has a disability and needs specialized services. Request an evaluation if one has not been done. This should assess not just academic performance but also behavior, social skills, executive functioning, and more.
• Document Your Child’s Struggles: Keep a record of how your child struggles in areas not reflected in their grades—such as emotional distress, difficulties with focus, or social isolation. Include any outside evaluations, therapy reports, or observations that support your case. Be specific about how these challenges impact their daily life and education.
• Know the Law: Refer to the Code of Federal Regulations (34 CFR 300.304)
under IDEA, which specifies that evaluations must cover all areas of suspected disability, not just academics. Section 504 also guarantees accommodations regardless of grades if the child has a disability that limits major life activities.
• Request a Meeting: Request a meeting with the school to discuss your child’s needs. Present the documentation of their struggles, including reports from outside professionals, and ask the school to consider these factors in determining eligibility for services. Be clear that the law protects your child’s right to an appropriate education, not just one based on academic success.
• File a Formal Complaint: If the school refuses to evaluate or provide services, you can file a complaint with the Office for Civil Rights (OCR), file a state complaint, or request a due process hearing under IDEA. These legal avenues can help ensure that your child receives the necessary support.
CONCLUSION: STAND FIRM ON YOUR RIGHTS
While it may feel overwhelming when a school insists your child doesn’t need services because of their grades, know that you have legal rights. Grades are not the only measure of a child’s need for support. By understanding the law, gathering data, and advocating persistently, you can ensure your child gets the help they need to succeed in school. Remember, the law does not allow schools to deny services based on grades alone; your child’s challenges, no matter how subtle, deserve to be addressed with the appropriate support.
If you need help navigating this or other IEP or 504 issues, contact us at 248372-9770 or visit our website at www. studentadvocacymi.com.
MEET THE ISENHOFF FAMILY
MEET THE ISENHOFF FAMILY
Is the Glue: Days in the Life of the Isenhoff Family
BY KRISTIN DILLON Grace
In the Isenhoff home —just north of Grand Rapids, Michigan— family life moves with a quiet kind of courage. Their days are shaped by early alarms, therapy appointments, weekday carpools, and the quiet choreography of caregiving. Time stacks up with logistics, school runs, and the invisible labor of self-regulation. But through the noise and necessity, something else pulses underneath: the grace of family life. Not a shiny kind of grace—but the kind that’s threaded in pain charts, pet hair, schedules, and long car rides with broken bones. It’s the kind that shows up when no one’s watching and holds everything together.
The Isenhoffs are a family of six: Ben and Rachelle (parents), Clair (20), Mark (18), Daphne (14), and James (12½). Their household also includes Luna and Maple (the dogs), Smudge, Marra, Shadow, and Sigh (the cats), and Lizzy, Rain, and Kay (the lizards). Yes, it’s a full house. But somehow, there’s space for everyone.
Their youngest, James, has broken more than 75 bones—mostly femurs, but also his skull, his arms, his ribs, and
James, In His Own Words:
What do you like about going to Shriners now?
The toys—and when the volunteer dogs come in!
What’s your favorite thing to do at home?
Play video games and cuddle my pets. We have two dogs, four cats, and three lizards. I don’t cuddle the lizards.
What do you say to someone going through something hard? Don’t let it get the best of you.
How do you feel about going back to school?
I’m nervous. I missed a lot of school, so sometimes it’s hard in the classroom—but my friends help me. I can’t wait to see them every day.
What do you love doing with friends?
Swimming, building with Legos, playing “Horse” basketball, and video games.
Kristin Dillon
nearly everything in between. He lives with osteogenesis imperfecta (OI), a rare genetic condition that affects bone density and regeneration. It makes the body fragile in ways the world doesn’t always see.
When James was younger, the family spent countless days at Shriners Children’s Hospital in Chicago. Growth spurts and growing pains meant fractures nearly every three months. Rachelle started counting the breaks for him, in case he ever wanted to know. But eventually, she stopped.
“It just got to be too much,” she says. “I couldn’t carry the number anymore.”
Now, they visit Shriners twice a year. James’s condition is managed with bisphosphonate medication, which helps slow bone breakdown by stabilizing the marrow—the spongy part of the bone where regeneration happens. What used to feel like a constant state of emergency has slowly become something softer— less about survival and more about showing up.
“Our days are starting to feel more... ‘normal,’” Rachelle says, hesitating. “I hate that word—but it’s the only one that fits. It just feels a little slower now. Like we can actually breathe a little.”
James still lives with pain, fatigue, and the aftershocks of medical trauma. But he also swims, plays video games, builds Lego worlds, and hangs out with
his older siblings. He cuddles the dogs and cats (but makes one thing clear: “I don’t cuddle the lizards.”)
When asked what he likes about going to Shriners now, he smiles and says, “The toys—and when the volunteer dogs come in!”
Inside the Rhythm
During the school year, mornings begin with Ben wrangling backpacks, water bowls, and school drop-offs while Rachelle heads to work. She’s usually home by 3 or 4 p.m.—just in time for dinner prep, homework help, and decompressing from the day.
“Sometimes the boys play video games together,” Rachelle says. “James watches TV shows with Daphne, and we all find our own ways to wind down.”
Everyone has their own space and solo hobbies. Ben plays Warhammer on the weekends. Rachelle listens to audiobooks while gardening, crocheting, and painting game miniatures. Clair, the oldest, is in college. Mark just graduated from high school, and often spends time at a friend’s house. Daphne’s in the thick of teenage life, soaking up the worlds of fashion and makeup.
And James—though the youngest— has shaped the family’s center of gravity. His strength, his pacing, his perspective—they’ve all reoriented what this family values and how it moves.
The Team Effort
This family runs on shared effort. Each person has one or two daily responsibilities—dishes, pet care, laundry, taking out the trash. It’s part of the rhythm, and no one is exempt.
“We all pitch in,” Rachelle says. “When everyone does a little part, it makes the work light. Then we can all relax.”
There’s a deep understanding here— of pacing, of one another’s limits, of what’s needed without being asked.
“James has taught all of us that community and family are everything,” Rachelle says. “When everyone gives a little, the impact is so big.”
From Survival to Belonging
That sense of belonging didn’t always come easily. There were years of intense medical travel, interrupted sleep, and moments when it felt like the world didn’t know what to do with a body that broke so easily. At one point, James developed a form of blood cancer— thankfully, one with a high survival rate.
That Christmas, a local oncology support group “adopted” the family, delivering meals, gifts, and cards from the community.
“It was the first time I felt like someone saw the whole picture,” Rachelle says. “Not just the diagnosis, but the life around it. It was such a grace. And I remember thinking, I want to bring this feeling to other families, too.”
That moment was a turning point— not just in James’s recovery, but in Rachelle’s next chapter.
Wistful Marra
Today, Rachelle is the founder of Wistful Marra, a nonprofit that provides coaching and support for parents of medically fragile children. The name is personal—drawn from their cats— but also symbolic: a mix of longing and groundedness. Wistfulness for the life you imagined. Presence in the one you have.
“I walk with parents who are still in that fog,” she says. “Still in the waiting rooms. Still skipping lunch. Still holding their breath. It’s sacred work—not about fixing, just being with.”
Wistful Marra now serves families across the country. And though the work
is intimate and often heavy, it never feels lonely.
“These are people who already know how to love hard,” Rachelle says. “They just need someone to remind them they’re not alone.”
The grace she extends is the same grace she learned to receive.
“We’ve been held in hard seasons,” she says. “And now we get to hold others.”
A Back-to-School Kind of Bravery
This fall, James will return to school after another challenging year of health setbacks. He’s nervous—but excited.
“I missed a lot of school,” he says. “So sometimes it’s hard in the classroom. But my friends help me. And I can’t wait to see them every day.”
Playing with peers isn’t always easy, especially with physical limitations. But when he finds the right rhythm, the joy is unmistakable—swimming, building with Legos, playing “Horse,” and teaming up on video games.
In the Isenhoff home, there is sacred chaos—pets underfoot, medical trips on standby, laughter and laundry and Lego bricks. There is fatigue, tenderness, and a hard-won grace that cannot be faked. There are tears behind closed doors and joy in unexpected places.
There are daily victories: brushing teeth without pain, a deep belly laugh, a full night’s sleep.
There’s no symmetry here, no polished finish. Just presence. Effort. Love that does the dishes and shows up again tomorrow.
And if you ask James what to do when life gets hard?
“Don’t let it get the best of you,” he says.Somehow, it never does.
A Face for Picasso by Ariel Henley
September is children’s craniofacial association’s craniofacial acceptance month.
BY REBECCA PARTEN CHAPTERS OF CHANGE
September is Children’s Craniofacial Association’s Craniofacial Acceptance Month.In honor of this, I wanted to put a spotlight on A Face for Picasso by Ariel Henley. It’s an intensely raw and personal glimpse into the author’s life with Crouzon Syndrome. This memoir is brutally honest about the physical and emotional struggles she faced growing up with a disability that was readily apparent to those around her.
She and her twin sister, who also has Crouzon Syndrome, underwent
numerous surgeries on their faces to address the medical and aesthetic aspects of their condition. But more than that, the book describes the emotional toll all of this had on her.
Ariel talks about how mental health wasn’t something that was often discussed when she was growing up. She digs deep into her past and works toward healing from the trauma she’s experienced.
While hard to read at times, A Face for Picasso is a book I believe older teens and adults should read.
Next month’s book will be Ellie Haycock Is Totally Normal by Gretchen Schreiber.
October Awareness Month (Deadline August 20th)
• ADHD Awareness
• Disability History Month
• Down Syndrome Awareness Month
• Dysautonomia Awareness
• National Disability Employment Awareness Month
• National Dyslexia Awareness
• Occupational Therapy Awareness
• World Cerebral Palsy Day
• White Cane Awareness Day
• Invisible Disabilities Week
• International OCD Awareness Week
• National Physical Therapy Month
• Rett Syndrome Awareness Month
• Special Needs Law Month
• Spina Bifida Awareness
November Awareness Month ( Deadline September 20th)
• 22 Q Awareness
• Epilepsy Awareness
• LGS Awareness
• Stress Awareness
• World Ohtahara Syndrome Awareness
• Adoption Awareness Month
December Awareness Month (Deadline October 20th)
• International Day of Persons with Disabilities
• Infantile Spasms Awareness
• Special Education Teacher Awareness
Services To Enhance Potential
Changing lives one step at a time
For over 53 years, Services To Enhance Potential has provided services to individuals with developmental disabilities and other mental health needs in Southeast Michigan.
Headquartered in Dearborn, Michigan, STEP is a non-profit organization that brings employment and employment training to 1,400 adults throughout Wayne, Washtenaw, and Macomb counties with resource centers located in Dearborn, Detroit, and Westland. Since 1972, STEP has provided the most strategic and effective specialized programs and services in its industry. STEP programs include What’s Cooking at STEP, an award-winning culinary arts program; a Progressive Art Studio Collective program with three studios and gallery; three STEP-owned and operated Thrift Store & Donation Centers; employment training services; volunteer opportunities; and classroom learning experiences, among others.
an authentic learning environment, meals are prepared with the assistance of our skilled instructors.
STEP’s Advanced Culinary Arts class is a hands-on, 12-week course (two days per week) designed to prepare STEP members for careers in the food service industry. Participants will gain essential skills in ServSafe Food Handler’s safety, knife techniques, food preparation, proper hygiene, customer service, and teamwork while assisting with meal prep and clean-up. This program provides real-world experience in a supportive setting, helping individuals build confidence and employable skills.
The Progressive Art Studio Collective (PASC) is an art and design studio and gallery program of STEP, located in Detroit, Southgate, and Westland. PASC is dedicated to supporting adults with developmental disabilities and mental health needs to advance individual career paths in the art and design fields. Founded in 2021, PASC is the first progressive art studio in Wayne County, Michigan, bringing focus to the artistic talent, expression, and life experiences of adults with disabilities, making a considerable change in their lives.
and coaching. Employment and Training Services include:
• Benefit-2-Work Coaching: STEP assists individuals receiving state benefits and explains how they can have gainful employment and whether it would affect any benefits being received.
• Job Development/Placement: Dedicated Employment Representatives work with jobseekers to develop an individualized plan for employment and prepare for competitive integrated employment opportunities.
• Pre-Employment Transition Services (Pre-ETS): Pre-ETS programming prepares first-time and newer jobseekers for the transition from secondary education to the world of employment.
STEP’s Culinary Arts Program, What’s Cooking at STEP, helps prepare members for careers in the food service industry by learning food safety, customer service, and preparing delicious dishes. Located in Westland and Detroit, these classes allow members to explore the art of cooking in a community-based setting. To provide
STEP’s Employment and Training Services Department promotes employment opportunities by providing job development, placement, training,
• Project SEARCH: STEP partners with Project SEARCH to give students who are currently enrolled in a public school an opportunity to spend their last year of high school in a hybrid classroom and worksite environment. This service permits the student to graduate with one full class year of work experience in a field that is of interest to them. Our current program includes a partnership with Corewell Health. This host site permits a student to experience a variety of work experiences during the student’s final year of education. With a job placement rate of over 80%, the program can be quite beneficial for its participants.
• Skill Building: This training opportunity offers jobseekers a way to experience jobs and learn critical skills required to obtain and maintain employment while earning a wage.
STEP Members participating in Sunshine Theatre Workshop
STEP Member delivering Meals on Wheels
PASC Artist Jeremy at an event
STEP Member Hassan working at LaFontaine Automotive Group
• STEP Thrift Store and Donation Centers: STEP owns and operates three Thrift Stores to provide paid job training in retail and related fields in Dearborn Heights, Southgate, and Wayne. Opportunities at the stores include work trials, paid work internships, worksite evaluations, and longer-term employment as Retail Clerks. Each of these opportunities is designed specifically to provide the level of experience and training necessary for success and lead to employment.
program is a partnership between Michigan Rehabilitation Services/Bureau of Services for Blind Persons and STEP.
Join STEP on Thursday, October 16, 2025 for our 9th Annual STEPS To Success event at the Jam Handy in Detroit. This special evening brings together advocates, supporters, and changemakers who believe in creating a more inclusive world. To learn more about the 9th Annual STEPS To Success, please visit: https:// stepcentral.org/9th-annualsteps-to-success.
The Summer Earn & Learn Program consists of six weeks of paid on-the-job experience at a community work site with the support of a Skills Trainer. In addition to working in the community, this program also includes virtual classroom sessions centered around soft skill development, workplace expectations, industry-specific support and more. Participants will learn the skills they need to be successful in the workplace and earn at least minimum wage while doing so.
• Supported Employment: STEP’s Employment and Training Services Department works diligently to provide ongoing support services to new jobseekers and to develop meaningful partnerships and opportunities with community employers.
• Vocational Rehabilitation: STEP partners with Michigan Rehabilitation Services (MRS) and the Bureau of Services for Blind Persons (BSBP) to offer a variety of job readiness, job development and placement services, including Trial Work Experiences, On-the-Job Evaluations, and Vocational Assessments.
OUR VALUES
• Respect for all individuals with whom we come in contact
• Empowerment and choice for all individuals
• Integrity in all of our transactions and dealings with one another and the public
• Excellence in all that we endeavor to achieve
• Collaboration in making decisions that impact others
• Competency in each task we perform
• Accountability for our decisions and actions
• Commitment to those we support and to one another
The STEP community strives to help others reach their goals and full potential in all areas of life. Together we’re Changing Lives One STEP at a time. For more information about Services To Enhance Potential, please visit www.stepcentral.org.
STEP Thrift Store Intern Vincent working the cash register
STEP Member Scott working at Bundled Packing Corporate Gifting
STEP Member in What’s Cooking at STEP?
5 Ways to Manage Screen Time for Children With Autism
BY EMILY CRANE
Many kids with autism prefer activities in solitude rather than with others, and screen use is a big preference among these activities. In fact, kids and teens with autism tend to spend more time engaging in screen activity than their neurotypical peers - making managing screen time particularly difficult for parents of autistic children.
While it’s unrealistic to try and rid screens from kids’ lives completely, there are plenty of ways to monitor time spent on them. Screens don’t need to be demonized, but rather managed and used with good boundaries to preserve physical, psychological, social and neurological health.
Let’s look at the pros and cons of screen time and some methods of management so your child can live their best quality of life.
PROS AND CONS
Pros of screen time? It might seem unlikely, but technology is an incredible
tool that we’re blessed to have in our lifetime. Screen activities offer:
• Motivation
• Connection with friends and family
• Educational content
• Learning opportunities
On the other hand, cons of screen time can include:
• Poor sleep
• Higher risk for ADHD-related behavior
• Impaired vision
• Impaired social skills
HOW TO MANAGE SCREEN TIME
With screens so readily available, we as adults must set our own boundaries for healthy use. We all mindlessly use them more than we probably want. As a result, teach and model intentionally in screen use for your child. Try these methods of managing screens for more mindful use and better health.
1. Designate screen use areas
Designate areas of your home for screen use to set physical boundaries on appropriate use. For example, establish rules such as keeping tablets and laptops at desks and living areas only. Location boundaries can help kids learn social setting expectations and how to focus on one activity at a time.
2. Create schedules
Come up with a schedule that includes slots for screen time or choose a time limit. For example, one hour on weekdays and 3 hours on weekends. Setting timers and giving warnings for
how much time is left are helpful tools for easing transitions, as well.
3.Monitor
Manage electronic devices with passwords, know exactly what your child is doing on the screen, and check age-appropriateness of the material.
4. Model healthy boundaries
Model healthy screen-use boundaries in front of your child or children, such as having no phones at the dinner table or during family time. Also avoid multitasking while a screen is in front of you.
5. Self-empower with self-monitoring
If appropriate, discuss with your child what appropriate screen time looks like, including content, time length, relation to other activities, etc. Additionally, look into the many apps that can help teach kids to monitor their own screen time.
In our technology-saturated world, empowering your child to self-monitor is a valuable lesson they can take with them into the rest of their lives.
On a final note, be sure to inform your child’s BCBA of any screen time rules at home to implement during therapy for consistency.
We hope these tips are helpful in encouraging healthy screen use for not only your autistic child, but your entire family.
To learn more about the comprehensive autism services at Healing Haven, visit thehealinghaven.net.
Local Events
BY CHRISTIA WOODFORD
Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,000 museums throughout the United States simply by presenting their EBT card and a photo ID. Check here for participating museums. https://museums4all.org/
MUSEUMS
ELLA SHARP MUSEUM SENSORY TIME
Every Saturday at 9:00 am 3225 4th Street, Jackson, Michigan 49203
During sensory-friendly-hours, the Ella Sharp Museum will open its galleries at 9 a.m., one hour before the museum opens to the public. Families with members who are neurodiverse, autistic or have other sensory processing disorders or cognitive disabilities, are welcome to visit for a quieter experience in a controlled environment. Designated quiet zones will allow visitors to decompress and explore the museum at their own pace.
Before each program, families can browse “pre-visit” materials to help prepare for their visit, including social narratives and maps of the facility. These materials are also available to assist families planning visits outside of program hours. A sensory backpack is available at the front desk for use.
To ensure the most sensory-friendly environment possible, capacity during these special hours will be limited to 50 people. More information is available at ellasharpmuseum. org/classes-and-events/sensory-time/.
IMPRESSION 5
Sept. 14 from 9:30 am - 11:30 am and Sept. 24 from 5:30 pm - 7:30 pm
Impression 5 Science Center, 200 Museum Dr., Lansing, MI 48933
Explore the Science Center during Sensory Friendly Hours, with select exhibits modified to reduce sounds, scents and lighting stimuli. Guests can expect limited building capacity, pop-up activities, and a map indicating the sensory experiences in each exhibit.
Thanks to MiABLE for supporting Sensory Friendly. Admission is regular price; free for members. More information is available at impression5.org/sensoryfriendly.
ABRAMS PLANETARIUM SENSORY-FRIENDLY SHOWS
Check website for available times in the Fall. 755 Science Road, East Lansing, MI
These shows will run with the lights up, the sound down and theater doors open so attendees can move around as needed.
A “chill out” area is available in the lobby. All shows include a live star talk about what’s visible in the night sky. A short break
will occur between the main show and the star talk. Information about what to expect will be provided when tickets are purchased. Cost: Adults, $5.50; students and senior citizens, $5; children 12 and under, $4.50.
Friends of Abrams Planetarium members: free. Free with Museums for All (valid EBT, Medicaid or WIC card and photo ID required). More information: abramsplanetarium. org/Programs/Sensory.html
GRAND RAPIDS CHILDREN’S MUSEUM
Sensory-Friendly Play
Nov. 3, 5:00 pm- 7:00 pm RSVP
Grand Rapids Children’s Museum, 11 Sheldon Ave. NE, Grand Rapids, Michigan 49503
Together with Autism Support of Kent County, Grand Rapids Children’s Museum welcomes families to play in a calmer, quieter environment outside regular museum hours. Registration is required. Check the calendar for specific sensory-friendly event dates: grpm.org/visit More info: autismsupportofkentcounty.org/ new-products/p/2024-night-at-the-gr-childrens-museum.
SPORTS
THERAPLAYYOGA: THERAPEUTIC PLAYFUL YOGA FOR DIVERSE ABILITIES
Adaptive Yoga Studio, 2015 E. Michigan Ave. Lansing, MI 48912
Inclusive and Accessible Yoga for Diverse Bodies, Brains and Abilities
Check the website for the current schedule. Email: gloria@theraplayoga.com Website: theraplayoga.com
FAMILY FUN
ADULT ADAPTIVE SOCIAL ENGAGEMENT: DINER’S CLUB
Sept.1, First Monday of the month.
Enjoy a meal with friends at local restaurants in a welcoming and supportive setting. This program is designed for individuals with special needs and offers an opportunity to build social skills in a fun, inclusive environment.
Participants must be 14 or older and are responsible for the cost of their own meal, beverage and tip. Spots are extremely limited, so pre-registration is required to ensure proper assistance and space.
The selected restaurant will be emailed to registered participants one week before the program.
Check the website for dates, times and registration: rararecreation.org/programs/social_engagement.php.
FASCINATION FACTORY SENSOR-FRIENDLY PLAY
Sept. 2, 2:30 pm- 5:30 pm
2295 E Lincoln St; Suite 150, Birmingham, MI
What to expect in our new sensory-sensitive hours: Back door locked for safety, no music, noise cancelling headphones, and oral chews offered at check-in. Plus a calming corner tent. Minimized Capacity Families $30.00 https://autismallianceofmichigan. org/events/list/?tribe-bar-date=2024-10-01
TOGETHER LET’S SING, DANCE AND JAM!!
Sept. 3, 6:30 pm- 7:30 pm Virtual
Please join us for our monthly “virtual” music therapy event!! Please RSVP by February 25 to Cathy Blatnik at blatsie63@yahoo.com with your name, age, contact phone number and e-mail address
SENSORY-FRIENDLY JUMP AT LAUNCH LANSING
Sept. 3 and Sept.17, 4:00 pm- 8:00 pm $17 1982 W. Grand River Ave., Okemos, MI 48864 1st and 3rd Wednesday of every month** Enjoy two hours of specially priced jump time during our sensory-friendly sessions. Additional discounts are available for families with more than one participant. To create a more comfortable experience, music volume will be reduced and no special effects lighting will be used. Guests may borrow noise-reducing headphones and/or sunglasses free of charge. All rental items must be returned at the end of the visit for sanitation and future use.
Please note: Sensory-Friendly Nights are paused during school and holiday breaks, including Christmas, spring and summer break.
While the park remains open to the public during these evenings, this time typically sees low attendance, providing plenty of space for all guests to enjoy. Learn more or reserve your spot: launchlansing. centeredgeonline.com.
HIGH CALIBER KARTING – SENSORY-FRIENDLY SUNDAYS
Sept. 7, Sept. 13, Sept. 21 and Sept. 28, 8:00 am- 5:00 pm $50
High Caliber Karting and Entertainment, 1982 W Grand River Ave #800. Okemos, MI 48864
On the first Sunday of every month, High Caliber opens early from 11 a.m. to 2 p.m. for sensory-friendly hours. If someone in your life would love to drive a go-kart or play arcade games in a quieter, more accommodating environment, this is the perfect time to visit. High Caliber is committed to creating inclusive experiences for all guests. Learn more at highcaliberkarting.com/sensory-hours.
DETROIT ZOO
Sensory-Friendly Evenings – Second Monday of Every Month Sept. 8, 9:00 am - 12:00 pm
Throughout 2025, the Detroit Zoo will host Sensory-Friendly Hours—monthly opportunities for guests to experience the Zoo in a more inclusive, calming environment.
Held once a month from opening until noon, these hours are designed for individuals with sensory sensitivities or other sensory needs. The Zoo and its attractions remain open to all guests, with intentional adjustments to lighting and sound to create a more welcoming experience.
Modifications include reduced or altered volume and lighting throughout the Zoo and at select attractions, including the 4D Theater. Effects and lighting in the theater will also be adjusted.
KultureCity sensory bags—equipped with noise-canceling headphones, fidget tools and verbal cue cards—are available for guests who may feel overwhelmed. Bags can be checked out at Customer Care, the 4D Theater and the Park Safety Office. Weighted lap pads and strobe glasses are available upon request.
A designated indoor quiet space is located near the wolf habitat for those in need of a more secure and calming environment.
Sensory-Friendly Hours are included with Zoo admission and free for members. No registration is required. For more details, visit detroitzoo.org/ events/sensory-friendly-hours.
INCLUSIVE GAME NIGHT
Sept. 26, 6:00 pm- 7:30 pm Therapeutic Concepts, LLC 38257 Mound Road, Building D, Sterling Heights, MI
This event is designed for the whole family, with a focus on inclusion, safety, and enjoyment. The cost is $10 per family, and registration is available online at therapeuticconceptsllc.com.
MJR DIGITAL CINEMA SENSORY-FRIENDLY FILM
Check the website for movie times.
100 East Maple Road, Troy, MI, 48083, United States https://www.mjrtheatres.com/sensory-friendlyfilms?fbclid=IwAR1JnETT-4LqVME0tv0TkWPiYH5lckEcSi4ou3EcdA4eyfbqJYLgmReJ00.
LEGOLAND DISCOVERY CENTER MICHIGAN
SENSORY-FRIENDLY MORNING
Check website for upcoming dates.
4240 Baldwin Rd, Auburn Hills, MI 48326
During Sensory-Friendly Mornings, lighting is reduced, music is turned off and other distracting stimuli are disabled for one hour before the attraction opens to the general public. This event is ideal for guests on the autism spectrum.
Sensory-sensitive adults may visit without a child (age 16 or under) during Sensory-Friendly Mornings, but must exit when the center opens at 10 a.m. Groups accompanied by a child may remain past 10 a.m.
Tickets are limited and must be purchased online in advance. legolanddiscoverycenter.com/michigan.
SEALIFE MICHIGAN SENSORY-FRIENDLY MORNING
Check website for upcoming dates.
4316 Baldwin Road, Auburn Hills, MI 48326
During Sensory-Friendly Mornings, lighting is reduced, music is turned off and other distracting stimuli are disabled for an hour before the aquarium opens to the general public. This event is designed for guests on the autism spectrum.
The aquarium opens to the general public with normal lighting and sound at 10 a.m., but guests attending Sensory-Friendly Mornings are welcome to stay as long as they like and do not have to leave at 10 a.m.
Tickets are limited and must be purchased online in advance. visitsealife.com/michigan/what-s-inside/ events/sensory-friendly-mornings
DNR OUTDOOR ADVENTURE CENTER
SENSORY
FRIENDLY PLAY
Oct. 5 10:00 am- 12:00 pm
Outdoor Adventure Center, Globe Trading Company Building, 1801 Atwater St, Detroit, MI
The DNR Outdoor Adventure Center welcomes individuals and families with sensory processing differences to enjoy special sensory-friendly hours. During this time, building sounds and ambient noise levels will be reduced to create a more comfortable environment.
A quiet room with sensory materials will be available, and building capacity will be limited to ensure a calm experience. Sensory-friendly hours end at noon, when the building opens to the general public and sound levels return to normal.
All staff members are certified through KultureCity to provide the best possible experience for guests with sensory needs. Various activities are scheduled throughout the month of May. Visit michigan.gov/oac for details.
Monday–Thursday: 10:00 a.m.–6:00 p.m.
Friday: 10:00 a.m.–4:00 p.m.
19799 W. 12 Mile Road Suite L15, Southfield, Michigan
Various fun classes in art, dance, cooking, yoga and more are offered virtually and in person throughout the month. See the calendar at gigisplayhouse.org/detroit/sfcalendar.
EVENTS
COME JOIN SCOUT TROOP 1197! FIRST ALL INCLUSIVE TROOP!
4920 Groveland Rd, Ortonville, MI 48462
The only troop of its kind in Michigan, Troop 1197 is currently meeting at O.A.T.S. (Offering Alternative Therapy with Smiles) in Ortonville for individuals with special needs ages 11 and older. Designed by experienced scout leaders, the troop offers typical scouting activities, including camping and outdoor skills. For more information, email walkonoats@gmail.com.
OVER THE EDGE FOR EASTERSEALS MORC!
Sept. 20. 9:30 am t0 4:00 pm
Amway Grand Plaza Hotel, 187 Monroe Avenue NW Grand Rapids, MI 49503
Over The Edge is a fun, thrilling, urban rappelling event where you will get to rappel down the tower side of the Amway Grand Plaza Hotel. Sitting at 318 feet, the Amway
Grand Plaza Hotel is the tallest hotel in Grand Rapids. Come downtown and join us as we rappel and have fun on the ground while raising funds for Easterseals MORC. ArtPrize is happening at the same time, so there will be a lot to enjoy! Proceeds from Over the Edge will support Easterseals MORC programs and services right here in West Michigan. When you make a donation to Easterseals MORC, you help strengthen our mission to ensure everyone--regardless of age or ability--is fully included and empowered!
If you’d like to sign up, click the Register Now! button to the right and create your own fundraising page. Rappelers must raise $1,000 to participate.
When you hit your $1,000 fundraising goal you get:
• The opportunity to rappel down the beautiful Amway Grand Plaza hotel (that’s 318 feet!)
• A free commemorative event t-shirt
• Easterseals MORC reusable bag with swag from our sponsors
• Possible exclusive discounts for rappelers
• Professional photographs of your rappelling
• and MORE!
• *Raise $1,600 by August 18th for one free one-night stay at the Amway Grand Plaza Hotel (subject to availability )* If you’d like to support a rappeler, please scroll down to find their personal fundraising page or go up to the donation box on the right and click the drop-down box and find the rappeler name. If you have any questions about the event, rappelling or would like to volunteer, please contact Denise Durkee at ddurkee@eastersealsmorc.org or 616.942.2081. https://www.easterseals.com/MORC/get-involved/events/
THE DETROIT WALK FOR APRAXIA BY APRAXIA KIDS
Sept. 21, Check-in 10:30 am, Ceremony starts qt 12:00 pm
Young Patriot Park, 14133 Civic Park Dr, Riverview, MI
The money raised through the Walk for Apraxia supports the programs of Apraxia Kids. Our mission is to strengthen the support systems in the lives of children with apraxia of speech by educating professionals and families; To Register or Donate: http://community. apraxia-kids.org/detroitwalk
DISABILITY DIRT DAYS AT HOLLY OAKS ORV PARK
Sept. 21 and Oct. 19, 2025, 11:00 am- 3:30 pm
Holly Oaks ORV Park, 14551 Shields Rd, Holly, MI 48442
Ages 10 and up with disabilities are invited to experience offroading at Holly Oaks ORV Park. Rides are provided by volunteers for the participant and one guest. Registration is required. For more information, visit https://www.oakgov.com/community/ oakland-county-parks/parks-trails/holly-oaks-orv-park.
UNIQUELY YOU! VIRTUAL RESOURCE FAIR
Sept. 24, 6:30 pm to 8:00 pm
Join us for an inspiring and informative virtual event created for individuals with special needs, disabilities, and their amazing caregivers in Michigan.This is a fantastic opportunity to learn more about the resources that can make a difference.
Live drawings on the spot throughout the call for attendees. 248-882-8448
Virtual link shared after registration: https:// buytickets.at/uniquelyyou/1741179.
UNIQUELY YOU! STERLING HEIGHTS LIBRARY
Oct. 11, 11:00 am to 1:00 pm
Sterling Heights Public Library, 40255 Dodge Park Rd, Sterling Heights, MI 48313
Join us for a heartwarming and inclusive event for families and individuals in the special needs & disability community!
Event Highlights:
Sensory-Friendly Story Time | 11:00 – 11:30 AM
Explore Resources & Support Partners for your family’s journey Engaging Sensory Activities for all ages and abilities
Discover Unique Library Programs including Braille books & adaptive resources
• Experience KultureCity’s Mobile Sensory Stations – creating inclusive spaces for individuals with invisible disabilities
• Connect with Other Families, Caregivers, and Individuals in the community
• Come for story time or stay for the full experience. Whether you’re just getting started or well on your journey, this is a safe, welcoming space to explore, connect, and be celebrated.
Link to Register: https://buytickets.at/uniquelyyou/1787843
All are welcome. We can’t wait to see you there!
Questions? Contact us at: Jamie.Olson@ n2co.com 248-882-8448.
Is there a local event for the special needs community you would like us to promote in an upcoming issue? Email us at SpecialNeedsIndy@n2pub.com.
This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!
ABA SERVICES
ABA Pathways (734) 203-0181 www.ABAways.com
Budding Behavior Therapy (248) 622-5191 www.buddingbehavior.hi5aba.com
ABA SERVICES - IN HOME
Benevolent Behavior Therapy (947) 300-6700 www.benevolentbehaviortherapy.com
ABA/ BEHAVIORAL & AUTISM SERVICES
Healing Haven (248) 965-3916 www.thehealinghaven.net/
Key Steps ABA Therapy (248) 561-0130 keystepsaba.com
ADVOCACY
Student Advocacy Michigan (248) 372-9770 www.studentadvocacymi.com
ATTORNEY-WILLS/TRUSTS/ESTATE PLANNING
Chalgian & Tripp Law Offices PLLC (248) 799-2711 www.Mielderlaw.com
COMMUNITY SUPPORT
Gigi’s Playhouse Detroit (248) 225-5616 gigisplayhouse.org/detroit
Judson Center (248) 837-2020 www.JudsonCenter.org
Work and Play Special Needs Resource Center Inc. (734) 780-6795 www.workandplaycenter.org
EMPLOYMENT AND TRAINING SERVICES
Services To Enhance Potential (STEP) (734) 718-0483 www.stepcentral.org
FINANCIAL
MIABLE (844) 656-7225 mi.savewithable.com
Where Children BLOOM
POST SECONDARY ED/LIFE SKILLS
Ready For Life (616) 248-3775 rflnetwork.org
PRINT SOLUTIONS: APPAREL & BEYOND POSSiBiliTEEs, LLC (616) 613-0386 www.POSSiBiliTEEs.shop
PRIVATE HIGH SCHOOL
AIM High School (248) 702-6922 www.aimhighschool.com
RECREATIONAL SUPPORT
Rochester Avon Recreation Authority (RARA) (947) 886-0084 www.rararecreation.org
RELATIONSHIP SUPPORT/SEXUAL HEALTH
My Relationships Project (313) 489-0043 www.myrelationshipsproject.com
SPECIAL NEEDS TRUST
Springhill Pooled Accounts Trust (248) 269-1319 springhillpooledtrust.org
