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1 • Thursday, July 27, 2017 - The Independent

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Independent

VOL. 14 • NO. 31

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THURSDAY, JULY 27, 2017

Grassroots efforts rewarded with passage of bill, governor’s signature

See GRASSROOTS, Page 13

SUBMITTED PHOTO Addison Independent

Gov. Bruce Rauner came to the home of Kate Drury on Tuesday, July 18 to sign Charlie’s Law, which will allow children diagnosed with strep throat-related pediatric autoimmune neuropsychiatric disorders—known as PANDAS/PANS—to receive intravenous immunoglobulin (IVIG) treatments that were previously denied by insurance companies. Looking on as Rauner signs the bill are (from left): Rep. Peter Breen, R-Lombard; Rep. Deb Conroy, D-Villa Park; Charlie Nawara and his mom, Wendy; and Charlie Drury and his mom, Kate. The law, named after the two Charlies, evolved through grass-roots efforts by Kate and Wendy to convince their local politicians to create legislation requiring insurers to cover the proven IVIG treatment.

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Kate Drury likely didn’t think she’d wake up one day and find that her then-8-year-old son Charlie had seemingly become a different person; nor would she have known it was the beginning of a long journey that would end up in Springfield with a law partially named after him. But, that’s where things are headed after a bill named Charlie’s Law, HB 2721, was slated to be signed by Gov. Bruce Rauner—at Drury’s Lombard home—on Tuesday, July 18. The bill essentially states that individual and group insurance plans will be required to offer coverage for treatments of an illness referred to as PANDAS/PANS. Charlie’s own journey began with a strep throat in November 2012 and ended up—after many doctor visits—with a diagnosis of pediatric autoimmune neuropsychiatric disorders associated with streptococci infections, or PANDAS. Symptoms of PANDAS vary but can include developing obsessive compulsive disorders, tics, an aversion to scents, phobias, behavioral aggression and age regression, to name a few. Drury explained for “Out and About” back in 2013 how she sought psychiatric help for her son, but the medications increased his symptoms. She then took Charlie to a doctor who discovered her son’s strep level was “off the charts.” That doctor connected Drury with a local physician who happened to be an expert on PANDAS, and while a

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