Health is Your Wealth Magazine ISSUE 5, 2017

Your Daddy is still there. Just a little different.

Cover Designed by Emma Rose Smith

MEDICAL ID CARD

MEDICAL IDENTITY CARD

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NAME …………………………

condition results in having poor balance, co-ordination,

I HAVE ……………………….

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THIS MEANS I HAVE DIFFICULTY WITH:

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Issue 5 - 2017

www.HealthisYourWealth.co.uk

MENTAL HEALTH

MANAGE YOUR CONDITION

IMPROVE COGNITION

IMPROVING AWARENESS

THERAPY

RELATIONSHIPS

Contents

1

Editors message and Reader Letters

2

IMPROVING AWARENESS Time taken to diagnose a head injury 44

MANAGE YOUR CONDITION Holiday with Head Injury

Trouble Finding Things

46

HEADWAY Derby

47

Dispelling Compensation Myths

50

6

Identifying Obsessive Compulsive D. 9 Importance of a Routine Importance of Nutrition

RELATIONSHIPS

14

53

Family Dynamics

55

16

IMPROVE COGNITION Brain Training and Apps

Guardian Angle

REVIEWS & SUBSCRIPTIONS

21

MENTAL HEALTH

Book Review

57

Movie Review

58

Grief

29

Subscriptions

59

How to Keep Motivated

34

Key Contacts

60

THERAPY The Importance of Breathing

40

1

Editors Message

Readers Letters ‌ Send letters to: letters@healthisyourwealth.co.uk

Please note some of these articles are written by patients who are still in recovery. These articles are deliberately unchanged and may contain spelling,

There are few things that

punctuation and grammar mistakes.

are absolutely certain in life. Death and Paying

A copy of our medical disclaimer plus

Taxes are two guarantees.

The other is definite is

terms and conditions is on our website.

change. It happens all the

We respond to each letter!

time in every facet in life.

However when it happens

Errors and omissions are exempt from

in your health condition it

this

appears

conditions please see:

more

personal

publication.

For

terms

and

and impactful. As time

www.HealthisYourWealth.co.uk

goes by you can expect change, both positive and negative and usually when

PLEASE NOTE THAT

you least expect it. Learn

THE ADVERTISING AND

to embrace change.

David, Editor

ARTICLE SUBMISSION FOR THE DECEMBER ISSUE IS NOVEMBER 20th 2

The Leading Personal Injury and Clinical Negligence Solicitors in the East Midlands area.

At Barratts we are proud to be different. We ensure that every client has an experienced lawyer acting for them throughout the claim. We visit clients at home and we take the time to listen, understand and explain. We have a reputation for handling claims with sensitivity and offering support during the rehabilitation process. That is why we are locally based but recognised for our expert, independent advice by:

Headway, The Spinal Injury Association, AvMA, APIL, Law Society and independent legal guides including Legal 500 and Chambers Our clients are nearly all personally recommended to us by former clients and professionals. Our caring approach is second to none. If you have been injured and want advice from a lawyer with experience, who has the time to fight for you, then please contact us:For Nottingham contact

Ed Myers

For Derby contact

Debra Morris

And for Clinical Negligence contact

Julie Hardy

We can discuss how best we can help you and your family in a relaxed setting.

Both Ed and

Debra are specialist head injury lawyers, accredited by Headway and both act as volunteers for local Headway groups at Nottingham and Derby.

Visit www.barratts.legal for further information on our solicitors, case studies and news items, or follow us on Twitter.

Ed Myers 0115 931 5171 3 Wheatcroft Business Park Landmere Lane Nottingham NG12 4DG

Email ed.myers@barratts.legal

Debra Morris 01332 565395 The Old Courthouse 18-22 St Peter’s Churchyard Derby DE1 1NN

debra.morris@barratts.legal

TYPSCOPE / LETTERBOX Prevent the reader taking in unnecessary visual stimulus and help them keep their place in the paragraph by limiting the amount of text readers can see at any one time. This simple ‘cut out’ tool is sized to work on 10” tablets and also the printed version of the magazine. It will

4

Manage YOUR Condition

YOU Are In CONTROL

Because the last trip we did was a seven

Holiday with Head

and a half hour flight I thought a two and a half hour flight would be easier.

Injury

What happened was I experienced sensory overload on the aeroplane. I

We haven't been holding abroad since

have heard other head injury people

2013 as we had such an awful time with

complain about this feeling but have

travelling on a long haul flight that we

rarely experienced it myself. The last

didn't even try it again. This year we

time was eight months ago at Christmas

decided to give it a whirl but had a short

and I put it down to a combination on

two and a half hour flight organised

inputs resulting in me fatiguing rapidly

instead and were very specific about the

and having to go to bed.

location; near to the beach, restaurants, a swimming pool with stairs to get in

Here I was seated without a television

and out (rather than ladders). Plus on

in front of me so the visual inputs are

the ground floor (so if the lift breaks

minimal.

down it doesn't matter) and we were located near to shops, the beach,

“However what I didn't anticipate

restaurants etc.

were the effects that noise would have.�

The entire journey was unimaginably difficult to handle. So much so that I borrowed my daughter's ear phones, closed my eyes and just tried to block 6

everything out. As soon as I got off the

plane I felt a sense of relief. However

A twenty five minute power nap in

the two and a half hours of misery was

the afternoon, whether your tired

worth it and I would do it again but this

or not will really help.

time take noise cancelling headphones with me.

Fatigue is difficult to manage at the best of time however vacation adds a whole

Once we arrived I soon found that

other dimension as your sleep pattern is

maintaining your exercise, diet and

disturbed and the amount of sensory

sleep routine is nearly impossible to achieve. Therefore you have to quickly

used to. Therefore although it is the

establish a new routine (not easy to with

most difficult thing to manage it is also

a greater change in time-zone).

the

most

impactful

and

therefore

Basically on holiday your routine will go

essential that you get it right sooner

out the window; with this in mind the

rather than later!

following

three

things

will

help

Planning Day Trips

tremendously.



Organising

Keep to your prescribed medicine

day

trips

was

a

real

challenge. Firstly you have to be at the

routine (as prescribed by your

bus for a certain time; going there no

general practitioner)

problem it’s getting back that was the



Keep stretching (as directed by your

worry! Then establishing how far a

physiotherapist)

pickup location was from the water park / zoo was not straight forward. Plus



Aim to sleep when you need to before you fatigue kicks in

how far you would need to walk around 7

Managing Your Condition

input is a lot different to what you are

the park, deciphering the terrain. There

lift onto the aeroplane, once you have

were many questions and some of the

done it once and are used to it then you

trips were evidently not at suitable (boat

are comfortable and feel better. I guess

trips, whale watching, water sports, tree

it’s like anything you do for the first

top jungle walk etc.)

time, you’re a bit apprehensive and through repetition a new habit is formed

So a decision had to be made; either we

and then it just becomes something you

do nothing or I become a spectator. In

do!

one way it was easy, the kids have fun

MOTIVATION

end of story. However for me it was very difficult, I have always been hands on.

is What Gets You Started

Very much a participator, even if I knew

HABIT

I wasn't very good at something or never done it before I would give it a try. So to sit back and not partake was completely

Is What Keeps You Going

alien to me and I didn't like the feeling at all but knew I had no other choice.

“The real challenge was to handle me being left out” I just smiled and waved at them having fun. I must have done a reasonable job and the next time they did something that I couldn't be involved in it was a little easier. I guess its like taking the

8

reaching the age group of 6 to 11 years of age, and may be of environmental

Identifying Obsessive

origin (through daily living with a

Compulsive Disorder

relative who manifests the disorder) or due to inherent personality traits of the

Identifying

Obsessive

child (extremely perfectionist, anxious,

Compulsive

or craving the constant approval of

Disorder at School and learn How to

others).

Transform Negative OCD`s Features in

In the school environment, OCD has a strong

impact

declining

on

academic

learning

(with

performance,

attention and concentration difficulties and, in more extreme cases can cause school dropout). In the daily conviviality of the child with colleagues, it is common for the child to disguise the

Photo credit: Photopin, Claudio Accheri

symptoms of the disorder for fear of

Obsessive-Compulsive Disorder (OCD) is

being ridiculed or deprecated by the

characterized by the constant presence

group.

of preoccupations, repetitive behaviours (rituals) and recurrent and persistent

Parents and teachers may also be aware

thoughts that lead to great suffering and

of dermatological problems in the child's

malaise in the child's life.

hands (due to excessive hand washing), as well as the appearance of skin lesions

OCD in childhood appears gradually, 9

or abrasions (by constantly scratching,

Managing Your Condition

Positive Aspects for Self development.

rubbing, scratching or bruising the



area).

Frequent hand asepsis (which may result in pain, swelling, rash or bleeding in the hands)

There is also a range of behaviours (rituals) manifested by the youth or the



Presence of tears, marks or holes in

child during the school routine that can

the notebook due to the extreme use

be a warning sign for educators and

of the rubber on the paper

professionals who also work in school:



Constant reading of the same word or sentence in order to get the impression that the person has fixed well into the memory



Too much slowness in the same activity as a result of a perfectionist attitude

Photo credit: Photopin, benchilada



Abundant (at the end of the lesson)

• Excessive organization of personal

checks of personal belongings on the

belongings such as: notebooks, cabinets,

table or under the desk, in an

binders, pencils, rubber and pens on the

attempt to make sure that the

table, backpack position (always the

student has not forgotten anything

same way)

 

Refusal to touch the belongings of

Exaggerated personal hygiene and

classmates

self-care: constant trips to the

pencils, erasers, pens, or even feel

bathroom,

10

such

as

notebooks,

bad when someone manipulates

peculiars talents of OCD minds:

some of their belongings



Present

repetitive

behaviours,

 pattern

person with OCD is very dutiful in

such

as:

walking

the development of activities that

stepping

on

stripes,

he / she performs, wishing that

coloured tiles, counting tiles or cars

everything needs to be very well

passing

organized and correct, in the most

without

by

on

the

street,

intermittent repetition of numbers

perfect order.

Extra-class activities involving drawing,

Opening doors, cabinets, windows,

plastic arts (such as sculpture and

drawers, and other compartments of

painting), sports, cutting and sewing,

the classroom without using the

cooking,

fingers (only with one side of the

composition, learning new idioms or

hands or in some cases using one

musical

side of the body);

examples of practices to relieve anxiety and



Stop eating, sleep, or socialize for

photography,

instruments

stress.

These

writing

can

are

be

just

good

some

suggestions of activities that the person

weeks in order to memorize all the

with OCD can perform instead of fixing

school matter for a future event (a

your thinking over and over again in

test, for example) that has not yet

actions in that would increase even more

happened (not being sure this will

the obsessions and ruminants thoughts.

happen).

The other side of coin: positive and 11

Managing Your Condition

or syllables that come to the head



Creativity is in the details: the



Empathy, solidarity and willingness to help: Being in pain due to a mental

disorder

or

emotional

conflict develops in the person a greater sensitivity and attention to the needs of others. Thus, the person is able to put himself in the place of the other person, seeking to Photo credit: Photopin, WellspringCS



understand the other person in order to help her. A good hint of

Critical and analytical thinking: the

activity to divert the focus from

detailed observation of the person

one's own disorder is to help

with OCD makes him / her develops

someone in distress or need. Such as

a high ability to think in a critical

volunteering, participating in self-

and thorough manner about a

help groups, donating clothing or

particular action or object. This

food

ability is highly valued in tasks

whether

environments

or

in

in

campaigns

or

social

projects.

involving leadership and strategic planning

for

work

academic

projects, for example.

Photo credit: Photopin, verkeorg

12

Photo credit: Photopin, MTSOfan

contributor to several educational w e b si t e s, w r i t i ng a b o ut t e a c h i ng practices in the classroom; emotions and learning; evaluation and school planning; learning disorders; homeschooling, brain child development, pa r e nt i ng , Mo nt e sso r i e duc a t i o n, andragogy and people training.

Authored by Daniela Silva

training manuals for teachers and

AUTHOR BIO

students, and contributes as a mentor in

Daniela Silva is a Brazilian educator

an online platform, answering questions

and independent writer. She holds a BA

about career plans, college decision,

in Pedagogy from Santa Cecilia

personal development and professional

University, Brazil, with concentrations

skills.

in School Management and Business Educ a t io n; a n MBA i n P er so nne l

Working in collaboration with The New

Management from Monte Serrat

Heights Educational Group, Inc., she

Uni v e r si t y Ce n t e r , Br a zi l ; a n d a

has just published Unraveling Reading,

postgraduate certificate in

a book on literacy educ ation and

Neuroeducation from Estรกcio de Sรก

learning disabilities in reading and

University, Brazil.

writing.

Working with social projects in the area

Email: danieducator@gmail.com

of e-learning and people development since 2009, Ms. Silva is a regular 13

Managing Your Condition

Additionally, she develops courses and

experienced. I was more tired, my

“Importance of A Routine”

sleeping pattern was not so good and my balance was significantly worse. But compared to last time this was definitely

Is a routine everything?

different.

It’s a good question. Every time I have taken a short break the outcome has

Could taking short breaks from

been disastrous. To the point that pretty

you routine be good for you?

much everything physically, mentally,

I have never thought of this before and

sleep pattern, financially, diet and

there is no study or medical evidence to

exercise has gone wrong.

support this theory. However that

Perhaps this is a coincidence?

doesn't mean that there is no benefit either!

Maybe if I didn't take a break from the

Returning to my routine

routine these ‘bad’ thing would have happened anyway? After all if I didn't

After returning to my routine and

have bad luck I’d have no luck at all!

settled back into a rhythm my sleep

Recently I was forced to take a break

pattern and balance returned to my

from my routine so I naturally mentally

version of ‘normal’ as my diet and

prepared myself for the worst case as so

exercise plan had restored I began to get

many previous attempts had resulted in

back into the swing of thing but cant

failure.

help thinking that a break from the normal routine is good for you! Tell what

However this time the effects were not as

tragic

as

I

had

you think at:

previously 14

pma@HealthisYourWealth.co.uk

EXERCISE & NUTRITION

“Importance of Nutrition”



Fruits



Vegetables

Carbohydrates: How CARBS fit



Milk

into a healthy diet



Nuts



Grains



Seeds

carbohydrates have a rightful place in



Legumes

your diet. In fact, your body needs

There

carbohydrates to function efficiently.

carbohydrates:

Aren't

all

numerous

bad.

Because

health

of

their

benefits,



However some carbohydrates might be better for you than others.

are

three

main

types

of

Sugar. Sugar is the simplest form of

carbohy drat e

and

occurs

naturally in some foods, including

Understanding carbohydrates

fruits, vegetables, milk and milk

Carbohydrates are found in many foods

products. Types of sugar include

and beverages. Most carbohydrates

fruit sugar (fructose), table sugar

occur naturally in plant-based foods,

(sucrose) and milk sugar (lactose).

such as grains. Food manufacturers also



add carbohydrates to processed foods in

Starch. Starch is a complex carbohydrate, meaning it is made of

the form of starch or added sugar.

many sugar units bonded together.

Common sources of naturally occurring

Starch

carbohydrates include:

vegetables, grains, and cooked dry

occurs

beans and peas.

16

naturally

in



Carbohydrates and your health

Fibre. Fibre is also a complex carbohydrate. It occurs naturally in

Carbohydrates are vital to your health

fruits, vegetables, whole grains, and

for a number of reasons.

cooked dry beans and peas.

Providing energy

How many carbohydrates do you need?

Carbohydrates are your body's main fuel source. During digestion, sugars and

The Dietary Guidelines recommends that carbohydrates make up 45 to 65

sugars. They're then absorbed into your

percent of your total daily calories.

bloodstream as glucose. Glucose enters your body's cells with the help of insulin.

So, if you get 2,000 calories a day, between 900 and 1,300 calories should

Glucose is used by your body for energy,

be from carbohydrates. That translates

and fuels all of your activities —

to between 225 and 325 grams of

whether it's going for a jog or simply

carbohydrates a day.

breathing. Extra glucose is stored in

You can find the carbohydrate content of

your liver, muscles and other cells for

packaged foods on the Nutrition Facts

later use, or is converted to fat.

label.

The

carbohydrates

label —

shows which

total

Protecting against disease

includes

starches, fibre, sugar alcohols, and

Some evidence suggests that whole

naturally occurring and added sugars.

grains and dietary fibre from whole

The label might also list separately total

foods

fibre, soluble fibre and sugar.

cardiovascular diseases. Fibre may also 17

help

reduce

your

risk

of

Managing Your Condition

starches are broken down into simple

protect against obesity and type 2

are fruit juices and dried fruits,

diabetes. Fibre is also essential for

which are concentrated sources of

optimal digestive health.

natural sugar and therefore have more calories. Whole fruits and

Evidence shows that eating plenty of

vegetables also add fibre, water and

fruit, vegetables and whole grains can

bulk, which help you feel fuller on

help you control your weight. Their bulk

fewer calories.

and fibre content aids weight control by helping you feel full on fewer calories.



Choose whole grains. Whole grains

Contrary to what low-carb diets claim.

are better sources than refined

Few studies show that a diet rich in

grains of fibre and other important

healthy carbohydrates leads to weight

nutrients, such as B vitamins.

gain or obesity.

Refined grains go through a process that strips out parts of the grain —

Choose your carbohydrates

along with some of the nutrients

wisely

and fibre.

Carbohydrates are an essential part of a healthy

diet,

and

provide



many

Ensure

products are good sources of calcium

fibre-rich

fruits

and protein,

and

the low-fat versions, to help limit

Aim for whole fresh, frozen and fruits

and

plus many other

vitamins and minerals. Consider

vegetables are included in your diet.

canned

Milk,

cheese, yogurt and other dairy

important nutrients.



Stick to dairy products.

calories and saturated fat, but

vegetables

without added sugar. Other options 18

In Summary

beware of dairy products that have added sugar.

Choose your carbohydrates wisely. Limit



Eat more legumes. Legumes —

foods with added sugars and refined

which include beans, peas and

grains, such as sugary drinks, desserts

lentils — are among the most

and sweets, which are packed with

versatile

calories but low in nutrition. Instead, go

and

nutritious

foods

available. They are typically low in

for fruits, vegetables and whole grains.

fat and high in folate, potassium, time of day and ensure your do not

contain beneficial fats and fibre.

consume too large a quantity.

Legumes are a good source of protein and can be a healthy substitute for meat.



Limit added sugars. Added sugar probably isn't harmful in small amounts. But there's no health advantage

to

consuming

any

amount of added sugar. The Dietary Guidelines recommends that less than 10 percent of calories you consume every day come from added sugar.

19

Managing Your Condition

Eat the right carbohydrates at the right

iron and magnesium, and they

IMPROVE COGNITION

“Exercises to Strengthen your Brain!”

The rules of brain training: 1.

2.

3.

4.

5.

Try and do a minimum and maximum of thirty minutes each day.

Try and commit to doing for ten weeks. This duration requires that you set time to one side to complete this.

It has to be challenging to work. If it’s to easy there are no benefits.

To keep motivated set yourself rewards. If you complete an exercise give yourself a reward, something to look forward to!

As well as doing exercises on your own work with others to increase your social skills.

Improve Cognition

Word Search GUARDIAN ANGLE FEMALE LOOKING OVER YOU PROTECTIVE LUCKY TIME COINCIDENCE

21

This maze is much more complex than usual. You start on the left hand side and have to escape to exit on the right hand side.

However there are multiple dead ends and only one solution!

Perhaps time yourself to see how long it takes you, take a note of the time and try it again a few weeks later.

Have fun!

START

22

Cris-Cross Across

Down

1. Keep safe from harm or injury 3. Indefinite continued progress of existence and events 4. Looking Over You 6. Similar TO A Parent 7. Moving through the air 8. Woman

2. A remarkable concurrence of events 4. Made from feathers 5. Fortunate 9. Messenger Of God

Improve Cognition

23

APPLICATION REVIEWS

Grid Player is suitable for people with a

Gridplayer

wide range of disabilities, including cerebral palsy, motor-neurone disease (ALS), autism, apraxia, traumatic brain injury, stroke and deafness. It can also be used in education for people with learning difficulties or special needs, and with young children.

What phone/system is it compatible

Grid Player is an Alternative and

App that helps people who cannot speak

Requires iOS 7.0 or later. Compatible

or

with iPhone, iPad and iPod touch.

who

have

unclear

speech

to

communicate. Sentences that you create

Cost?

are spoken out loud. Grid Player is

Free

suitable for a wide range of people with communication difficulties, including

This is one of those applications we wish

those who use symbols.

we knew about when we were in hospital and had a tracheotomy.

How friendly is it?

This application would have very useful Used all over the world, thousands of

in communicating with family plus

people are communicating with this tool

medical staff.

as it easy to use.

We give this a ★★★★ rating What will it do?

25

Improve Cognition

with?

Augmentative Communication (AAC)

Play as 1 or 2, 3, 4, or 5 players, place

Matches 2

your device in the middle of your group and take turns to see who can find the most matching pairs.

What phone/system is it compatible with?

Requires iOS 8.0 or later. Compatible Test your memory! Flip the cards to

with iPhone, iPad and iPod touch.

reveal a matching pair. Race against the

Cost?

clock, play for the highest accuracy, challenge your friends in the multi

Free

player mode, or complete in local

We give this a ★★★★ rating

tournaments. Record high scores for both accuracy and time on every game type, size and theme.

How friendly is it?

Easy to use. It has various levels and themes with multiple board sizes. Loads of fun here and helps with both memory and concentration too!

Four board sizes from 4x4 to 7x7 (and seven sizes for iPad up to 10x10).

26

Easy play, forget about awkward tilt

Sitfit

controls or unresponsive accelerometer.

Better than using a marker!

What will it do?

Not everybody can do sit ups, bench presses, weight lifting, etc. Thankfully, with the help of Team Pink, there is now a way to work out via a simple, easy to

SitFit lets you exercise from the comfort of your own chair. If you are unable to stand

for

very

long,

these

These routines are designed to allow

short

people who can't stand up for long or

exercises are for you. SitFit gives you a

may have difficulty with full body

free preview of the Team Pink armchair

workouts such as the elderly. You can

exercise DVD.

work at your own pace, and in your

Even if you can do full body workouts,

armchair (or kitchen chair, we don't

there may be times where you're stuck

mind).

at an office desk, or on a long plane

What phone/system is it compatible

journey, these videos allow you to get

with?

your triceps and biceps warmed up. You

Requires iOS 6.0 or later. Compatible

can comfortably work out and keep your

with iPhone, iPad and iPod touch.

body healthy and fit no matter where you are.

Cost? Free

How friendly is it?

We give this a ★★★★ rating 27

Improve Cognition

perform, 3 step exercise programme.

MENTAL HEALTH

Grieving Process

Mental Health Grief is a more complex process of

“GRIEF”

adapting to loss than stage and phase models

Grief is a response to loss, particularly

no

longer

present.

For example crying is a normal and

Although

natural part of grieving. It has also been

conventionally focused on the emotional

found, however, that crying and talking

response to loss, it also has physical, cognitive,

behavioural,

social

previously suggested.

However various reactions are common.

to the loss of someone or something that is

have

about the loss is not the only healthy

and

philosophical dimensions.

the experience of a loss can be harmful.

Grief is a natural response to

The following paragraph describes in

loss. It is the emotional

five distinct stages how people deal with

suffering one feels when

grief and tragedy. Such events might

something or someone is taken

include being diagnosed with a terminal illness or enduring a catastrophic loss.

away.

Grief associated with death is familiar to most people, but individuals grieve in



Denial



Anger



Bargaining



Depression



Acceptance

connection with a variety of losses throughout

their

lives,

such

as

unemployment, ill health or a physical loss such as a limb, a sense (hearing or touch) or balance affecting running etc.

29

Mental Health

response. Pressing people to cry or retell

The theory holds that the stages are a

making,

(making

sense

part of the framework that helps people

happened and the cause of the loss), or

learn to live without what they lost.

through benefit finding (consideration of

These tools help frame and identify

the global significance of the loss of one's

what a person who's suffered a loss may

goals, and helping the family develop a

be feeling. The theory holds that the

greater

stages are not stops on a linear time line

meaning-making can come naturally for

of grief. The theory also states that not

some, but many need direct intervention

everyone goes through all of the stages,

to "move on".

appreciation

nor in a prescribed order.

of

of

life).

what

This

Survivors Guilt

Professional Support On a basic level survivor guilt is exactly Many people grieve without professional

what it sounds like: a sense of deep guilt

help.

that

Some,

additional

however,

support

may

from

seek

licensed

comes

something.

when

one

survives

If you have heard of

psychologists or psychiatrists which

survivor guilt before what likely comes

may

to mind is survivors of wars, natural

include

grief

counselling,

or

professional support-groups.

disasters or other traumas.

Professionals can use multiple ways to

What makes survivor guilt especially

help someone cope and move through

complex is that the experience varies

their grief.

dramatically

Many individuals trying to

for

each

individual.

Whether a person experiences survivor

make

guilt, its duration and its intensity all

meaning out of the loss through sense

vary from person to person.

30

But the

underlying feelings are similar:

survivor guilt is not rational that is when people will tend to minimize the

Feeling guilt that you survived

guilt, just telling you not to feel guilty,

when someone else died and

or that you shouldn’t feel guilty.

that you do not deserve to live One important thing to remember is,

when another person did not.

rational or irrational, survivor guilt is normal. In and of itself it isn’t a sign of

could have done more to save another

unhealthy grief, despite the fact that

person, in other cases it is feeling guilt

some people will make you feel like it

that another person died saving you.

isn’t okay to feel guilt.

So, the question is: what can you

Some of the familiar circumstances one

do?

experience survivor guilt are:



After surviving war



Surviving an accident



Surviving natural disaster



Accept what you are feeling. Guilt is a stigmatized emotion, as people can make us feel that it is wrong to feel guilty. Keep in mind that guilt is not, on its own, a problem. It is a



Surviving an act of violence

natural feeling that needs to be a c kno wle dge d,

As with so many types of guilt that arise

processed.

in grief, some survivor guilt is rational and some is not.

Regardless of the reason, when our

31

ac ce pte d

a nd

Mental Health

In some cases this includes feeling you



Know you’re not alone. Survivor

can’t stop asking ‘why’, when events

guilt is much more common than

like this happen we often fixate the

people realize.

Finding a support

‘why’. If there is a ‘why’, we can’t

group or other space to connect with

know what it is no matter how long

others experiencing similar feelings

we obsess about the question.

can be very helpful in sharing



feelings and feeling less isolated.



In spite of your

feelings of guilt it is important to

Do something with your guilt.

enjoy the life you have been given.

Whether rational or irrational, you

In the depths of guilt this can be

can use your guilt to help others.

hard,

What you do may come out of things

extremely helpful part of digging

you have learned. Whether it is

out of that hole by feeling you are

educating others so they can avoid

valuing the gift you were afforded.

the mistakes you feel guilty about,



raising awareness about causes of

can

be

time

to

professional help.

simply encouraging others to talk

counsellor

with their family about end of life

also

be

an

in

your

get

so me

Look for a area.

A

psychologist with experience in

wishes, you can use many guilt

trauma may be an especially good

experiences to help others.

fit, as they likely have experience with this type of guilt.

Don’t get stuck on the ‘why’s and

if’s’.

it

Talk to a counsellor. If you are still

may

to substance abuse to suicide), or

what

but

struggling with survivor guilt it

death (anything from heart disease



Embrace life.

Like a small child 32

MOTIVATION

“How to KEEP

became hard to hold down, as, although

Motivated?”

made silly mistakes, didn't pick things

I looked like I was more than capable, I

up quickly enough, lacked energy and

A New Perspective

stamina to actually do a good job anymore.

Before my brain injury, almost 4 years I stopped enjoying social situations and,

ago, I was at a point in my life where I

as a result, lost several friends. I

felt I had it sorted; a good job, good

stopped being able to do my long, head

social life, earning enough to go on a

clearing walks as the fatigue, plus

couple of nice holidays a year and I felt

additional back problems, just made it

like I was doing a good job of parenting

impossible. With the lack of mobility

my son. Life was good. I had plenty of

came weight gain, which in turn caused

friends, loved walking my dog for miles

me to feel even more low than I already

across the fields around the village

did, and even less inclined to attempt to

where I lived, I was fit, healthy and the

socialise much.

future seemed bright.

I spent a good few years mourning the

“Recognise this story ???”

loss of "the old me" and feeling angry My accident left me with a few lasting

at what might have been had I not gone

issues, notably sleep problems, fatigue,

out that night, not drunk as much, not

h e a d a c he s

anxiety.

slipped in my stupid too-high heels and

Invitations started to dry up as I

banged my head, feeling like I was

declined one too many times, jobs

failing my son for not being able to run

a nd

social

34

round with him anymore, not being able

and at least now I don't feel obliged to go

to tolerate noise like I used to, and

and be a social butterfly!

generally being grumpy and short

Some things are harder to come

tempered.

to terms with ...

I am gradually starting to realise, I find it very hard not working, and my

here to see my son growing up. The

lack of mobility is driving me crazy, but

friends I've lost? Well, they obviously

I'm slowly finding new ways to deal with

weren't proper friends if they're so fickle

things. It's trial and error, but I'm

that they can't deal with the new me.

sleeping a bit better which in turn is making me less grouchy. All the time at

The good job? I can tell myself that until

home means I've got time to meal plan

I'm blue in the face, but in reality, I

and cook, and we no longer waste money

hated it and actually felt a wave of relief

on takeaways and junk, as I've become

when they let me go. I'm making new

very good at shopping on a budget. I

friends, finding new interests which fit

struggle

around my fatigue and slowly learning

to

keep

on

top

of

the

housework, but I’m learning to set

to forge a new, slower paced future. I'm

myself small targets and do tasks in 15

actually quite happy that I'm no longer

minute bursts, which I find helps me get

expected to be the life and soul of every

things done eventually.

party, because you know what? I actually would've preferred to be tucked

I no longer measure success by how

up at home in my pj's watching a film

many

sales

I’ve

made/how

much

commission I’ve earned, or by what nice 35

Mental Health

however, that I'm grateful that I'm still

new things I’ve bought, but by how happy my son is when I’m here when he gets home from school, and that we’ve got a decent meal on the table each night and clean clothes to wear. I thank my lucky stars that we have a safe place to live and that my son is thriving and turning into a lovely young man.

My priorities have changed, but, looking back, I genuinely don’t miss parts of my old life and I’m growing more confident that the future is still bright.

Jill Hughes, TBI Survivor, UK

36

information

Mental Health help and support services

services.

With

support

and

understanding, Mind enables people to make informed

choices.

The

Info

line

gives

information on types of mental distress, where to get help, drug treatments, alternative

health

therapies and advocacy. Mind also has a

problems or need urgent support, there are lots

network of nearly 200 local Mind associations

of places you can go to for help.

providing local services.

Samaritans

Saneline

Telephone: 116 123 (24 hours a day, free to

Telephone: 0845 767 8000 (6pm-11pm)

call)

Website:

If

you

are

experiencing

mental

www.sane.org.uk/what_we_do/

support/helpline Email: jo@samaritans.org Saneline is a national mental health helpline Website: www.samaritans.org Provides

confidential,

providing information and support to people with mental health problems and those who

non-judgmental

support them.

emotional support for people experiencing feelings of distress or despair, including those

ChildLine

that could lead to suicide. You can phone, Telephone: 0800 1111

email, write a letter or in most cases talk to someone face to face.

Email:

Pages/Email.aspx

Mind Info line Telephone:

0300

http://www.childline.org.uk/Talk/

123

3393

Website: www.childline.org.uk

(9am-5pm

Monday to Friday)

ChildLine is a private and confidential service for children and young people up to the age of

Email: info@mind.org.uk

nineteen. You can contact a ChildLine Web site: www.mind.org.uk/help/advice_lines

counsellor for free about anything - no problem is too big or small.

Mind provides confidential mental health 37

We started this self help

We have published:

magazine at the end of

Advertising

2014 following a severe

Social network posts

head injury in 2011. We did not anticipate the effect that the

BLOG activity

injury would have on our family and

Print and Distribution

underestimated the long term overall

Digital distribution

outcomes.

www.HealthisYourWealth.co.uk

The feedback that we have received has enabled us to continue to improve the

EVERYONE LOVES SOMETHING

publication and the submission of

FOR NOTHING. HOWEVER LONG

articles by subject matter experts has

TERM IS NOT SUSTAINABLE

enabled us to deliver good quality

THEREFORE IF YOU FIND THIS

content.

MAGAZINE VALUABLE VISIT OUR

We have been thanked by readers for

WEBSITE TO KEEP US GOING - OR

creating a meaningful and easy to read content. This magazine is read not only by survivors / families and carers but also by support workers / therapists and medical professionals.

However we have become victims of our own success !

We are at the stage where we have more articles resulting in a larger magazine.

More pages requires a different binding (spine) and costs more to print plus deliver (due to an increased weight).

38

THERAPY

BE AS GOOD AS YOU CAN BE

Exercise, “Maintenance for your body !”

habit has formed over time. The term

The importance of breathing

Chest Breathing

“inefficient breathing” is described by the following :

correctly whilst doing exercise !

Rather than breathing deeply through

You’ve been doing it about 20,000 times

the belly using the diaphragm, it’s

a day since the moment you were born.

common to see breathing through the

In fact, you’re doing it right now. More

top of the chest. When you breathe

importantly,

through the chest, you’re using neck

you

maybe

doing

it

muscles, that can reinforce neck and

incorrectly..

shoulder tension common among office Breathing, which is such a automatic

workers. Following the age-old principle

process that we only think of it when

“Use it or lose it,”

we’re huffing and puffing at the end of a rigorous exercise session.

Relies on different muscles which result in a

What exactly does it mean to say:

weakened diaphragm muscle. A

weak diaphragm will fatigue easily

“You’re all breathing wrong?”

during exercise, meaning your muscles won’t receive the optimum amount of

Improving breathing could help to lower

blood flow during your next exercise

blood pressure, decrease stress and

class or gym session.

improve athletic performance. There maybe a single or combination of breathing inefficiencies where a bad

40

Shallow Breathing

smoothly and rhythmically can play a essential

Therefore you can be working too hard

role

in

maximising

performance.

to inhale the oxygen that you need.

Rather than taking deep, full breaths,

Breathing has a huge impact on our

you’re taking shallow, quick ones,

health and fitness, but we’re probably

forcing the body to work overtime to get

not taking advantage of it just yet. The

the same amount of oxygen.

good news is that anyone can improve their breathing. Focusing on just your

This could partly be due to poor posture,

breathing one to two times a day,

most prevalent among those who slump

starting with just one minute at a time.

over a screen all day. With the shoulders hunched forward, we lose part of our ability to expand our diaphragm and

Take advantage of the stress-relief

take the big, full breaths that can boost

properties of proper breathing. Deep

workout

breathing

performance,

increase

has been

shown

to

be

responsible for a calmer, more tranquil

efficiency, and help manage stress.

demeanour.

Lack of Rhythm 

Try working on your breathing lying

If you’ve ever focused on your breathing

on the ground with your feet up

while running to help pass the time,

against a wall.

you’ve likely noticed a specific rhythm to



your breath. Perhaps it matched the

Next, put one hand on your chest

pace of your footsteps or your arm

and the other on your abdominal

swing. Whatever the pattern, breathing

area. For one to two minutes, take 41

Therapy

Can have great results.

deep, focused breaths, making sure





For heavy loads and max efforts,

you spend as much time on the

use the following technique that

exhalation as the inhalation.

involves taking a deep breath immediately prior to lifting and

The key with this exercise is to

holding that breath while you lift.

make sure that your abdominals

The “Bracing” technique

rise before your chest.

involves

activating all of your core musculature

Focusing on your breath prior to

from all angles to create a “super

exercising reinforces proper breathing

stiffness” of the midsection. This bracing

mechanics beforehand.

creates stability throughout the entire

When you’re working out

core and reduces injury risk. For example imagine you were about to be

Ask yourself the following questions: 1.

punched in the stomach. This involves

Was it inhale on the way down or on

more than just pulling in your abs.

the way up?

Instead, imagine tightening as many of your muscles as possible. Now, hold that

2.

Was holding my breath good or bad?

throughout the exercise!

Trying to remember when and how to

Breathing is easy to overlook. But, when

breathe while working out can be tough.

you take into account how many times you breathe each day? Taking those

Here are tips to help you get it right in

20,000 reps into consideration, even the

the gym:

smallest improvements can have a huge impact!

42

IMPROVING AWARENESS

I remember the pain. Back to sleep. Sent

Time taken to diagnose a head injury

home on a train for sick leave. Don’t remember that. Or that Christmas.

Managed to complete the trade training

In October 1981 a VW Beetle pulled out

the following year. But that was after

of a T-junction Just at that moment a

temporarily being unable to read or

red Yamaha RD250LC motor cycle

write. And after a month or two in a

smacked into the drivers door.

neuropsychiatric ward in a military hospital near Swindon.

A classic T-bone.

They had tried different anti-psychotics,

A piece of bright orange debris was

painkillers and other drugs. The only

skilfully avoided by a truck driver. The

thing that did work at that time was

rider and the debris was me. My helmet

acupuncture but that was only while a

had come off. I don’t remember any of

practitioner was available.

that. I heard someone screaming or howling when I woke up. There were

Up until 1996, when I left the RAF, I

tubes in my arms which I tried to pull

had been seen by psychiatrists, the guys

out.

who had deprogrammed Terry Waite and John McCarthy and civilian pain

Then back to sleep. The noises were me.

clinics etc. By this time I had a

I remember the ambulance transfer

reputation of being a mad professor in

from Weston General Intensive Care to

the service. Learning new things was

RAF Locking Medical Centre.

getting more difficult and so civilian 44

employment was tricky but I got some

good ones. The headaches weren’t

company doctor was right. My doctor

improving either.

was excellent because he tried many different approaches.

We

will

nip

ahead

to

2009

or

thereabouts. I had just landed a dream

He finally put me in touch with Dr

job and was doing well in my eccentric,

Angela Kent who then got me on the list

offbeat way when I started getting flu-

for the Head Injury Department at the

like symptoms.

London Road Community Hospital in Derby.

I would be off for weeks at a time. The Things are looking up now. I think that

2013.

would have been in 2014. So it has taken a good few years to figure out what is

I had seen the company doctor and he

wrong. Head injuries, until recently,

said that it would be unlikely that I

haven’t been understood very well.

would work again. My own doctor wouldn’t say that as he was trying to

Although the knowledge has increased,

find out why this was happening.

the

resources have

because

Did I mention the headaches?

of

been

increased

strained

uptake

and

restriction of funding. During this time Laura, my wife, had been researching

I was diagnosed with depression. After a

head injuries and selflessly supporting

while my job went because I just could

me. It is difficult for a carer who can’t

no longer function. Memory, following

get away for a break.

simple instructions and concentration were the bulk of the problems. The

Phil Smith, TBI Survivor, UK 45

Improving Awareness

last time I was off ill was September

Trouble Finding Things?

I can drive and my reactions are good along with observation. So why do I need a passenger?

I can walk a good distance so why do I need someone with me. So why can’t I go out on my own?

Oh come on. How can I get lost at home? Of course I know where I live.

46

adolescents are not very well catered for

Ongoing Success for Headway Derby Learners

in the area, and that transition between child and adult services is a difficult time for any young person, but even more so when you have a brain injury.

Heads up for Callum Campaign

In response to this,

Headway Derby

supports Headway Derby's 'Young

have launched the 'Young Group', a

Group'

social support group providing activities and events aimed towards people within

The Head’s Up For Callum Campaign

the age range of 18-35.

was set up in 2015 to raise funds to

Improving Awareness

support those who have experienced a brain injury following illness or accident.

The Bradley family from Belper wanted to give something back to help others following the traumatic events which changed

their

lives

following

a

motorbike accident in 2014. Initially they raised money for the Critical Care Unit at Queens Medical Centre in Nottingham

and

Kings

Lodge

Neurological Unit in Derby. Following a fund raising Summer Ball at Blackbrook House, their latest donation has been

The

made to Headway Derby.

group

was

launched

with

a

consultation event in August, raising a

Headway Derby are using this donation

lot of interest on social media. On the

to specifically reach out to younger

evening, the group discussed their

people following a brain injury. They

hobbies and interests and created a list

recognised that young adults

and 47

of events for future evenings. Attendee

Michael Hadley said “ It was an

If the group continues to be popular,

amazing night at Headway Derby for

Headway Derby will aim to make it a

the 18-35 group. Can't wait for the next

permanent feature. Debra Morris, the

one!”

Chair of the charity, said “It has been fantastic to be allowed to use this money

Headway Derby also offer support to

to benefit young people and this is a

carers during this time, providing a

great start – however in order to

volunteer to meet with family members

continue on a longer term basis, further

nearby and discuss any concerns, or just

funds will be needed. This project to

relax with a drink and a chat!

support young people with ABI will be

The group have agreed to meet on the

the subject of ongoing fundraising

first Thursday of every month. In

efforts and grant applications”

September a cinema evening was held at

The Young Group runs on the first

the Coach House, Headway Derby's

Thursday of every month from 5-7pm. If

premises on George Street in Derby and

you would like to attend, or discuss the

the next meeting will involve a mocktail

group in more detail you can contact

making workshop at a local bar.

Headway Derby on 01332 986350 or

Lucy Graystone, a Support Worker for

email

the group, said “These events have been

Events will always be advertised on the

paul.clarke@headwayderby.org

Headway Derby Facebook and Twitter pages @headwayderby

If you are not local you can find your nearest Headway group or branch, visit www.headway.org.uk or contact the really enjoyable, and such a great way to

free phone helpline on 0808 800 2244

introduce new people to Headway. We're already looking forward to the next one!”

E-mail: helpline@headway.org.uk 48

Improving Awareness

49

working before the accident, claiming for

DISPELLING THE

lost earnings may be difficult.

MYTHS ABOUT

If you

recover quickly and need very little care or therapy, past expenses will be low.

COMPENSATION

The very large awards are cases where a The newspapers are full of multimillion pound compensation awards.

person needs 24 hour care because they

Some

cannot look after themselves at all. This

media reports give the impression that a

usually exceeds £100,000 per annum. A

Claimant (the injured person) has won

Claimant

the lottery, but how true is this? Why

need

therapy

and

equipment just to help them get out of

are some awards £20,000 and others

the house. Most Claimants who need a

over £5,000,000?

wheelchair will have to move home

PAIN AND SUFFERING

which is expensive; adapting a property is costly.

The English courts award small sums for the injury itself.

may

FUTURE COSTS

For example, a

person with very severe brain damage or

This is usually the largest part of an

tetraplegia might only recover between

award. It is important to understand

£250,000 and £300,000. Few would

that a Claimant awarded millions of

choose money over a lifetime of pain and

pounds has not won; it means they are

disability.

severely injured for the rest of their life.

FINANCIAL LOSSES

Most Claimants recover very little for

You can only claim for costs directly

future costs because they make a good if

caused by the injury. If you were not

not full recovery. Most return to work so 50

only those with life changing injuries

Fatal cases might result in little or no

are paid for a lost career.

compensation at all.

You may be

surprised to know that if a person dies

If the Claimant has many years to live,

aged 18 or under, parents recover only

the compensation is high so they have

ÂŁ12,980 for the loss of their child.

enough each year for care, equipment

CONCLUSION

and extra costs associated with a disability. Additional housing costs and

For seriously injured Claimants no

lost earnings/pension will also be paid.

amount of money can give them back their life. Living with permanent severe

in 2 parts: a capital sum to cover

disability impacts Claimants and their

immediate costs and large expenses plus

families for a lifetime. They would

an annual sum whilst the Claimant is

return all the compensation to have

alive, which is tax free.

their old life back. The idea of a lottery

When the

Claimant dies this annual sum usually

win is far from the truth.

stops.

OTHER FACTORS Claimants can receive less than they need because they may have been partly to blame for the accident. If there has been medical negligence, the case might settle at less than 100% because of the risk of going to trial and losing the case entirely.

51

Improving Awareness

High compensation sums are often paid

RELATIONSHIPS

head injury out patients clinic and have been going there for five years. Again all

Guardian Angle

the therapists except two are women.

One

In 2011 I had a near death experience.

day

I

had

a

moment

of

enlightenment and suddenly realised

After crashing my motorbike into a

that my family and I have been through

lamppost coincidentally the person

a lot of turmoil over the last six years

driving behind me was a trainer our

that we would not have endured if I

CPR at the local hospital. She stopped

didn't have an accident.

her car and rang the emergency team.

Yet all the people who have helped my

paramedics arrived. When they arrived

family and I have deliberately chosen a

they decided to transfer me to accident

career that inserts themselves into a

and emergency room by road instead of

scenario, each of which has its own

air ambulance. When I arrived at the

unique circumstances however none of

hospital

which are fruitful as nobody/family

the

doctors,

nurses

and

generally benefits from a head injury.

neurosurgeon were women.

I was in the high dependency unit and

The vast majority of these people

critical intensive care and then the

are female.

stroke ward in hospital for six months.

Additionally I just happen to be married

All department were predominantly

to quite an exceptional lady and have

started by women.

two very supportive children. My wife co After my stay in hospital I attended the

-incidentally 53

volunteered

with

the

Relationships

Meanwhile she gave me CPR until the

charity FAB when she was younger and therefore has a different level of understanding plus acceptance than most people. So many people (medical professionals and friends/acquaints) have made the comment

'somebody was looking down on you that day' and 'you should be dead, you are very lucky' I was thinking about this and decided that if i was to have a guardian angle it The saying goes ‘Everything happens

would be female. I am not religious person but am not a great believer in

for a reason’ and I am sure something

coincidences however do believe in fate.

will materialize at some point resulting

I don't know how it works but I am sure

in one of those ‘Ah ha’ moment but for

everything happens for a reason.

right now time is a good healer so for now I am like everyone else in this boat

Therefore I decided to get a tattoo of a

just trying to be patient and continuing

guardian angle in recognition of all the

to do my maintenance exercise with the

people who helped me over the last five

hope that a new normal will arrive and

years.

be acceptable.

54

your independence.

There maybe physical challenges that

Family Dynamics

you and your family may have to come to terms with. It is important that everyone recognises these and tailors

I guess for an unknown quantity of time

your “new

“Your brain is under construction”

consideration ensuring that these may

life”

taking these into

change over time as you recover and get How log that will be will depend on

older.

numerous factors regarding you injury age,

response

Some of the more difficult to understand

to

limitations are the cognitive elements

rehabilitation and many other metrics which

ultimately

determine

which are not so obvious at first and

your

really only become apparent through

capability to recover.

engaging in new experiences. Certainly One thing which is commonly heard

over time you and your family will

from brain injured people is:

understand what these limitations are and have an idea how you can better

“It’s like someone has press the

cope with these to combat them.

RESET button” The greatest challenge of all for many Therefore you have to relearn and gain

people is the emotional rollercoaster

skills you once had plus find strategies

that you are forced to ride and no matter

for elements you find difficult post

how prepared you think you maybe

injury so that will ensure you regain

there are small surprises which catch 55

Relationships

complexity,

you out on a regular basis. Certainly

You can not purchase this skill you have

over time their frequency reduces and

to learn it the hard way through

you will develop coping strategies that

hardship. No matter what life throws at

help you better manage.

you a sense of reality will automatically be invoked and your level of thinking

Realistically you and your family may

will have changed,

have lost a lot. However there is one

“I will live through this one”

thing that you have both gained.

Something which can not be learnt

Your brain is in repair but eventually

through schooling and that is

you and your family will move on but

“Perspective”

with the benefit of a new perspective.

56

Book Review The Curious Incident of the Dog in the Night-time Haddon makes an intelligent stab at how it feels to, for example, not know how to read the faces of the people around you, to be perpetually spooked by certain colours and certain levels of noise, to hate being touched to the point of violent reaction.

Life is different for people with autism and especially for Christopher in ways that he only partly understands; this Christopher is an intelligent youth who

avoids most of the obvious pitfalls of

lives in the functional hinterland of

novels about

autism. Each day is an investigation for

demands that we respect, perhaps

him because of all the aspects of human

admire--him rather than pity him.

life

Definitely worth a read !

that

he

does

not

quite

yet

disability because

understand. When the dog next door is killed with a garden fork, Christopher becomes quietly persistent in his desire

We give this book a ★★★★ rating

to find out what has happened and tugs

Author, David, UK, TBI Survivor

away at the world around him until a lot of secrets unravel messily.

57

it

Book Review The brain injury rehabilitation Work Book executive

functions,

mood,

and

communication. Particular attention is given to facilitating the challenging process of identity change following a life-altering injury. In a large-size format for easy photocopying, the volume features 94 reproducible client handouts. Purchasers get access to a Web page where they can download and print the reproducible materials.

Packed

with

practical

tools

and

examples, this state-of-the-art workbook

Valuable to any professional interested

provides

for

in methods to maximize recovery and

supporting clients with acquired brain

adjustment following acquired brain

injury. Clinicians are guided to set and

injury. The workbook is comprehensive

meet collaborative treatment goals

in addressing the diversity of cognitive

based on a shared understanding of the

and psychological issues that commonly

strengths and needs of clients and their

occur with brain injury. Included are

family members. Effective strategies are

specific treatment activities (including

described

handouts) that practitioners can easily

a

holistic

for

framework

building

skills

and

implement.

teaching compensatory strategies in such areas as

attention,

memory, 58

We give this book a ★★★★ rating

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