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Issue 3 - 2017

MENTAL HEALTH

MANAGE YOUR CONDITION

IMPROVE COGNITION

IMPROVING AWARENESS

THERAPY

RELATIONSHIPS

www.HealthisYourWealth.co.uk


Contents Contents

1

Addictions, Brain and Behavior

46

Editors message and Reader Letters

2

HEADWAY Alyesbury Vale

54

10 NOT to say to someone with TBI 58

MANAGE YOUR CONDITION

Child Brain Injury Sunlight

6

Muscle Weakness

8

Importance of a Routine

Train Your Brain Brain Training Applications

RELATIONSHIPS TBI Creates a NEW person

70

TBI ONE LOVE

74

Riding for the Disabled Association

76

10

IMPROVE COGNITION Importance of Nutrition

63

12 15

REVIEWS & SUBSCRIPTIONS Book Review

77

Movie Review

78

Subscriptions

79

20

MENTAL HEALTH Normality

27

Key Contacts

80

How to Keep Motivated

33

Supporting Awareness

81

PLEASE NOTE THAT

THERAPY Exercise

37

THE ADVERTISING AND ARTICLE SUBMISSION FOR

IMPROVING AWARENESS What is court protection?

40

THE AUGUST ISSUE IS

HEADWAY Derby

43

JULY 20th


Editors Message

Readers Letters … Send letters to: letters@healthisyourwealth.co.uk

Please note some of these articles are written by patients who are still in We some

have

recently

received

instrumental

feedback

which we incorporated into this publication and will improve

recovery. These articles are deliberately unchanged and may contain spelling, punctuation and grammar mistakes.

the title on many levels, thank you very much to everyone for this

mentorship.

As

this

magazine is a self help guide,

A copy of our medical disclaimer plus

written by people living with a

terms and conditions is on our website.

neurological condition we have decided to tackle “acceptance”.

We respond to each letter!

You will see numerous articles about ‘normality’ and ‘a new me’. This is difficult to address both for the patient and the

Errors and omissions are exempt from

family. However this process

this

should occur in their own time but is a vital step to take! David, Editor

publication.

For

terms

and

conditions please see:

www.HealthisYourWealth.co.uk

2


The Leading Personal Injury and Clinical Negligence Solicitors in the East Midlands area. At Barratts we are proud to be different. We ensure that every client has an experienced lawyer acting for them throughout the claim. We visit clients at home and we take the time to listen, understand and explain. We have a reputation for handling claims with sensitivity and offering support during the rehabilitation process. That is why we are locally based but recognised for our expert, independent advice by:

Headway, The Spinal Injury Association, AvMA, APIL, Law Society and independent legal guides including Legal 500 and Chambers Our clients are nearly all personally recommended to us by former clients and professionals. Our caring approach is second to none. If you have been injured and want advice from a lawyer with experience, who has the time to fight for you, then please contact us:For Court of Protection enquiries contact

Julie Greenwood

For Derby contact

Debra Morris

And for Clinical Negligence contact

Julie Hardy

We can discuss how best we can help you and your family in a relaxed setting.

Both Ed and

Debra are specialist head injury lawyers, accredited by Headway and both act as volunteers for local Headway groups at Nottingham and Derby. Julie Greenwood 0115 931 5171 3 Wheatcroft Business Park Landmere Lane Nottingham NG12 4DG

Email Julie.greenwood@barratts.legal

Debra Morris 01332 565395 The Old Courthouse 18-22 St Peter’s Churchyard Derby DE1 1NN

debra.morris@barratts.legal


TYPSCOPE / LETTERBOX Limit the amount of text readers can see at any one time. Cut out the paper ‘letterbox’ below and use it as a guide to prevent the reader taking in unnecessary visual stimulus and help them keep their place in the paragraph. This simple tool is sized to work on 10” tablets and also the printed version of the magazine. It will present the reader with only 3 lines of text and ensue they wont get lost.


Manage YOUR Condition

YOU Are In CONTROL


With a brain injury sunlight can

Effects of Sunlight and Sleep

produce excessive sleep, this may be an as a result how melatonin is processed

After BRAIN INJURY Sunlight produces melatonin which can be beneficial to getting a good nights sleep.

Melatonin is produced by the

pineal gland and regulates the circadian rhythm or the body clock.

Melatonin

begins to be released in the evening and continues

through

the

hours

by the brain affecting the circadian rhythm.

“Some brain injury suffers may be have to make adjustments to their life style to cope with sunny days.�

of

darkness, and with sun rise is turned off again allowing a person to awaken.

As someone who needs to nap in the morning and afternoon but still needs more sleep a lot of the time even after a

After a brain injury sleep can become a

really good nights sleep, I definitely

problem, from insomnia, broken sleep

need more sleep when we have bright

patterns to excessive sleep during the

sunlight. I have to adjust my life to cope

day.

Different parts of the brain are

with bright sunlight but there are

involved in sleep and depending on the

stratagems that I am able to employ, the

part of the brain which is damaged and

first is to accept that you need more

the severity of the injury all these

sleep and do less.

factors will influence how problems with sleep will effect the individual.

Plan your days so that you are able to take lots of brakes and try not to get over tired as if you do get over tired 6


catch up with your sleep this is

limited your brain function is, as

important as the effects of the brain

being unaware is what you are

injury will become more prevalent.

suffering from and when you are

Some

disorientated so times you do not

simple

precautions

such

as

protecting yourself by wearing a hat

realize.

with a wide brim and sunglasses this will help but dose not stop the problem, get used to taking it easy in good

this can be surprisingly difficult, proof if you needed it you are brain damaged.

wake up in evening thinking that it is morning or are awake in the middle of the night, you may feel as if you are sleeping twenty out of twenty four hours a day and are still

“Bright sunlight can overwhelm

tired. Get all the sleep you feel you

you at times and be painful to

need and hopefully it will not last to

your eyes� After taking all the precautions you still

long.

Dave Finney, UK, TBI Survivor

Managing Your Condition

weather try to enjoy the easy way of life

If you loose your sleep pattern and

may be unable to cope to a satisfactory standard. Unfortunately there are many times when you are unable to cope, if you are able to recognize on how badly you are coping you will know how bad that you feel but you may not be aware of how 7


After a brain injury, muscles may show

Muscle Weakness

different degrees of weakness. Some muscles may be stronger in one limb than another. Damage to certain parts

Typical weakness affects usually one side of the body and therefore all muscles on one side are affected. This can result in one leg or arm being not as functionally competent as the other one.

Muscle tone, strength, and

of the brain may result in slow, jerky, or uncontrolled movements. You may hear the terms: hemiparesis: muscle weakness on one side of the body onlyhemiplegia: muscle paralysis (no movement) on one side of the body only

co-ordination Muscle tone is the amount of tension in a muscle when at rest. When muscle tone is normal, the limbs and body feel easy to move. A brain injury may damage the normal control of muscle tone. This may cause decreased muscle

Posture The head and neck give the eyes, mouth, and tongue a stable base. The trunk (the body between the shoulders and hips) gives us a stable base so we can use our arms and legs.

tone—the limbs feel floppy and heavy

To move normally, the head, neck, and

(hypotonicity) or more than normal

trunk need to be properly positioned

muscle tone—the limbs feel stiff and

when standing and sitting. A brain

tight (hypertonicity). Both affect the

injury can affect the muscles that

person’s ability to control movement.

control head, neck, and trunk positions. 8


It can also affect the sense of what is

(for example, walking on different

midline or upright.

surfaces like carpets, tile, rough concrete, and snow).

This

may

be

caused

by

wrong

Endurance

information coming from the senses about position, limited range of motion,

Endurance is the strength one has

weakness. It can also be caused because

over time. It can be measured how

the person had a poor posture before the

well the person tolerates a treatment

brain injury. If posture is abnormal or

or an increase in the treatment (for

poor, you can help by asking the person

example,

to

further then make him walk faster).

muscle

concentrate

tone,

on what

pain,

he

feels,

reminding him to visually check how he’s sitting, or standing, or by physically helping him into the correct posture.

Balance

Please

first

talk

make

to

your

him

walk

healthcare

provider, such as a physiotherapist or occupational therapist, for tips on how

to

help

someone

who

has

physical changes after a brain injury.

Managing Your Condition

or

abnormal

Our brain and nervous system is always making adjustments so that we keep our balance. If the ability to balance is affected after a brain injury, the person may react too fast, too slow, or not at all. To

improve

balance, therapy may

involve practicing in different situations

9


“Importance of A Routine” The fatigue experienced after brain

starts to happen then I know that I have to either sleep or rest. However usually a Powernap during the day gets me back on track.

injury is probably the most difficult to

Pace yourself

manage and the most deliberating.

Endurance

One of the thing I have learnt to do is better manage my fatigue. I used to do

The most important thing to recognize is

one thing a day however I am still

that your endurance is no where near

caught out. I recently started Yoga and

what it was. There is no magic wand or

this for me is a killer. I now know that

medicine you can take to resolve this,

on the day I do Yoga I don't do anything

it’s about

else.

“knowing when your fuel tank is

Traffic light system

on empty”

Now I use a traffic light system to gauge

The problem is that your ‘fuel tank’

the impact of activities. Yoga for me is a

can drain to zero very quickly and

RED

sometimes without much warning!

impact and I can do two of these a day

Therefore this very difficult to gauge.

so I colour these as ORANGE and then

Know The Signs Everyone is different. For me my balance starts to deteriorate, my voice slows and I start to get tinnitus. If this

other activities are a medium

the rest are GREEN. If it’s a new task I assume that it will be red unless proved otherwise.

David, UK, TBI Survivor 10


EXERCISE & NUTRITION


“Importance of Nutrition” The Difference between Almond, Dairy, Soy, Rice, and Coconut Milk

amount of carbohydrates and protein, with some or all of the fat removed. While whole milk has 150 calories in one serving while semi-skim milk has just 80 calories. Almond milk is made from ground

It wasn't long ago that you could only

almonds and filtered water. People

get one type of cows milk (whole milk /

who are allergic to almonds or nuts

full fat). Now you can buy semi-

should avoid almond milk.

skimmed and a host of alternatives to cow's milk. Almond, soy, rice, and coconut “milk” plus Goat’s milk. Each type of milk has its advantages and disadvantages, depending on a person’s diet, health, nutritional needs, or personal taste preferences.

Unsweetened almond milk is lower in calories than other milk plus is also free of saturated fat, and it’s naturally lactose-free. Even though almonds are a good source of protein, almond milk is not. Almond milk is also not a good source of calcium

Whole milk is cow's milk with none of

unless it is supplemented with calcium

the fat removed.

and vitamin D.

None of the milk’s natural components

Soy milk is made from soybeans and

are removed. That means whole milk is

filtered water. Like other plant-based

high in natural proteins, fat, and

milk

calcium. Other cow’s milk has the same

thickeners to improve consistency and

alternatives,

it

may

contain

shelf life. 12


Because it comes from plants, soy milk

Coconut milk is made from filtered

is naturally free of cholesterol and low in

water and coconut cream, which is

saturated fat. It also contains no lactose.

made from grated mature coconut

Soybeans and soy milk are a good source

flesh.

of Probiotic or fermented soy milk is also

Coconut milk contains more fat than

available. It’s also a better choice for

the other milk alternatives, and

people with high blood pressure.

nearly all of it is saturated. Coconut

water. It’s the least likely of all of milk products

to

cause

allergies.

That

makes it a good choice for people with lactose intolerance or allergies to milk, soy, or nuts.

rice

contain a type of fat some research suggests this type of saturated fat may actually help with weight loss. However, saturated fats in general increase risk of heart problems.

It is generally recommended not relying solely on

in recent years, partly because they

and

rice

products,

Managing Your Condition

Rice milk is made from milled rice and

products have become more popular

especially for infants, children, and pregnant women.

13


activity you were doing.

“Fitness Trackers”

You can set your goals steps-wise to suit your lifestyle, as well as setting sleep goals, weight loss goals etc., plus there is

Jawbone UP3 Fitness Tracker I originally bought this as I was on a bit

also a section to enter daily food intake, allowing you to track calories.

of a health kick and thought it might

The feature I find the most useful on

help with motivation. The reason I chose

this band is the sleep tracking function,

the Jawbone over all the others on the

as sleep is something I really struggle

market is that it looks more like a piece

with, finding myself lying there awake

of jewellery as oppose to a rubber band,

clock-watching and working out how

plus it has the added feature of a heart

much time is left until the alarm goes

rate monitor and an easy to use app

off. Wearing the Jawbone UP3, I find

which links up via Bluetooth.

this particular stress is removed, as

The band itself looks very stylish and is comfortable enough to wear all day and night. The steps tracking appears to be accurate

and

will

automatically

regardless of when I get to sleep, the app will let me know in the morning how much sleep I got, even breaking it down into deep and light sleep.

recognise when you're doing actual

Overall, I love this piece of kit, and

exercise as opposed to just general

wouldn't be without it. I would rate it

walking around - a message will pop up

★★★★★.

from the app asking, "Were you active between 6.30pm and 7.15pm?" and then giving you the option of specifying what

Jill Hughes, UK, TBI Survivor 14


IMPROVE COGNITION


“Exercises to Strengthen your Brain!” The rules of brain training: 1. 2. 3. 4. 5.

Try and do a minimum and maximum of thirty minutes each day. Try and commit to doing for ten weeks. This duration requires that you set time to one side to complete this. It has to be challenging to work. If it’s to easy there are no benefits. To keep motivated set yourself rewards. If you complete an exercise give yourself a reward, something to look forward to! As well as doing exercises on your own work with others to increase your social skills.

Word Search MOTIVATION MENTAL HEALTH THERAPY CONDITION COGNITION RELATIONSHIP AWARENESS REHABILITATION RECOVERY WELLNESS

16


This maze is much more complex than usual. You start on the left hand side and have to escape to exit on the right hand side. There are multiple paths and dead ends!

However there are multiple dead ends and only one solution! Perhaps time yourself to see how long it takes you, take a note of the time and try it again a few weeks later.

Improve Cognition

START

17


Cris-Cross Across

Down

1. TREATMENT 4. PHYSIOTHERAPY 5. BRAINPOWER 10. INSIGHT

2. 3. 6. 7. 8. 9.

INTERACTION HEALTH PSYCHOLOGICAL UNDERSTANDING Incentive IMPROVEMENT CIRCUMSTANCE

18


APPLICATION REVIEWS


Pace My Day

foresee in using the app, one is that motivation and remembering to use it always seem to be problems with using technology as feedback loops.

Also there is a problem with the lag experienced with fatigue. You don’t always feel the fatigue straight away and it is an accumulative thing as well How friendly is it? This is an interesting app that has some potential for using with the brain injury population. It is essentially a fatigue management system. It took me a little while to really get my head around it

so it is the task on top of a task on top of a task that can be the problem. However, I think it would be interesting to try with people so they can begin to understand their fatigue better. I suspect the price may put off many.

and to feel I could use it and explain it to patients. I think without support a lot of our patients would give up before finding out what it could do for them. Unusually the app does not seem to be linked to a calendar or at least it is not there on the app. There are a couple of problems I can

What will it do? So

there

are

a

couple

of

nice

questionnaires that you have to fill in one in the morning and one before going off to bed. These help you work out what activities you might do with your day. You are encouraged to work out how 20


much energy this task will cost you. You

If you rate your current state as

can also say if it will be an unknown i.e.

being ‘exhausted’ the app encourages

You don’t know how you will feel after

you to question whether you should

doing the task. Clearly the idea is to

be doing that task that day.

build up this information to help you pace and fatigue manage in the future. The app encourages you to take breaks and the breaks can be such things as meditating

or

walking,

you

can

What

phone/system

is

it

compatible with? Compatibility: OS X 10.10 or later, 64-bit processor Cost?

think is a great idea.

£4.99 from Apple iTunes We give this a ★★★ rating

Improve Cognition

incorporate your own ‘break’, which I

21


What will it do?

Simple Simon

Play this game daily to train your memory, and test your memory against your friends and family. It starts of easy with just one light/ sound and then adds another after each successful time the player gets it correct. Additionally

the

sounds/lights

get

quicker as the game progresses. What phone/system is it compatible "Simon Says" is a classic memory game:

with?

Watch the buttons light up in sequence,

Requires iOS 5.0 or later. Compatible

and repeat them in the same order. The

with iPhone, iPad and iPod touch.

sequence grows longer and longer with

Cost?

each level completed.

Version 3.0.2 is Free

How friendly is it? This game is very simple but highly

We give this a ★★★★ rating

addictive. Each ‘coloured button’ lights up and plays a sound. These sequences have to be re-entered by the player in the same order that the game played them. 22


Punch in the city you're going to

Packpoint

travel to, the departure date, and the number of nights you'll be staying there. PackPoint will organize a packing

PackPoint travel

is

a

free

packing

list

organizer and packing. PackPoint will help you organize what

list and luggage checklist for your luggage that takes into account weather,

duration,

laundry

requirements etc.

suitcase based on length of travel,

For anyone with memory/organizing

weather at your destination, and any

issues this could work well for you.

activities planned during your trip.

What

How friendly is it?

compatible with?

It is relatively straight forward to use,

Requires

although I do wonder that if you only

Compatible with iPhone, iPad, and

travel a couple of times a year is the

iPod touch.

effort you put in equal to the benefit you

phone/system

iOS

9.0

or

is

it

later.

Improve Cognition

you need to pack in your luggage and

Requires Android 4.0 and up

are receiving. Cost? What will it do? Once your packing list is built and organized, PackPoint will save it for

This new version is Free, but to get the professional version is $2.99 We give this a ★★★ rating

you. 23


 Automatically

creates performance and usage reports that can be emailed  Speeds recovery from injuries and stroke

Dexteria

 Designed in consultation with Occupational Therapists

 Turns the iPad into a therapeutic tool

Dexteria turns your iOS device into a therapeutic tool that improves fine motor skills and handwriting readiness

The automatic tracking and reporting feature makes it easy for parents, teachers and occupational therapists to identify time on task and progress.

in children and adults.

You can email the progress reports Dexteria’s unique hand and finger

right from the app itself.

activities take full advantage of the iOS multi-touch

screen

to

help

build

What phone/system is it compatible

strength, control, and dexterity

with?

How friendly is it?

It works with Apple/Android tablets

Easy to use and looks great

Cost?

What will it do?

This is free however Multi-user tracking

 Increases coordination and motor control in the hands and fingers

is available as an in-app purchase. We give this a ★★★★ rating

 Works for kids and adults

24


Citizens Advice Bureau Budget Tracker

What will it do?

Quickly

know

your

daily,

weekly and monthly budget

Simple to add and categorise incomes and expense items

Easily track essential versus non essential spending

At a glance understanding of your spending habits Inform your financial decisions

Make the most of your money

to spend on a daily, weekly and monthly basis. Your spending is categorised and presented in a clear and concise way to

What

phone/system

is

it

compatible with?

show you where your money is spent, what percentage of your budget is essential and to help inform your financial decisions. How friendly is it?

Requi res

iOS

7.0

or

later.

Improve Cognition

You will see exactly how much you have

Compatible with iPhone, iPad and iPod touch. This application also works with all Android tablets (Android 4.0.3 and

Quickly, simply and confidentially work out your budget. In order for it to be accurate the application does require that you enter all incoming / outgoing money.

up) Cost? This new version is Free, We give this a ★★★ rating 25


MENTAL HEALTH


evaluate. All the pretending that

Mental Health

everything’s ok has caught up with

“Normality”

me and I’ve realised I’m a better actor than I ever gave myself credit for!

Once upon a time, I was a normal mum with a normal job, living a relatively normal life. All of that changed on New Years Eve 2013 when, on the way back

village where I live, after a few too many drinks and wearing totally unsuitable heels, I slipped on some ice and hit my head on

a road

sign,

causing

a

subarachnoid haemorrhage and an end to my life as I knew it.

24/7 since my accident, so that’s become “normal” for me. If I say out loud that I have a headache, it generally means that it feels like someone is squeezing my head in a vice, whilst simultaneously playing a fingernails-down-blackboard noise in

Mental Health

from a party at a friends house in the

I’ve had a headache pretty much

both ears. Sometimes my vision goes all sparkly round the edges too, which brightens it up a bit!

I have spent the last three and a half years trying my best to carry on as normal; trying to hold down a job, run the house, be a good mum to my son, but I’ve reached a point where I’m just burning out and need to stop and re-

The headaches happen when I get stressed, tired or spend too much time in a noisy, over-stimulating environment, and leave me feeling 27


completely floored for most of the next

made of lead, I ache from head to toe

day. It’s like the worst hangover I have

and I feel like I’m functioning in a thick

ever had, which is ironic as my alcohol

fog.

tolerance nowadays is utterly rubbish.

tiredness, it’s mental tiredness, so when

So when I say I don’t want to come out,

I get to bed, the insomnia strikes, as I

I’m not being unsociable – I just know

just haven’t got the energy to tire my

how much I will suffer for it, and I

body out enough to want to sleep. It’s a

might have things I need to do the next

vicious circle, and please believe me

day. And, yes, I’ve tried painkillers,

when I say:

tried getting more sleep, I know everyone gets headaches, but believe me when I say this is like nothing I’ve ever experienced before

when life

was

“normal”.

Problem is,

it’s not

physical

“I have tried everything to solve it” Milky drink before bed? CHECK! Nice hot bath? No caffeine? TV off? Reading in bed? CHECK! CHECK! CHECK! Bloody CHECK! All “normal” and, having now met other people who have

Let’s talk about tiredness now

also experienced a brain injury, I know that I’m not alone.

I know everyone gets tired, but this overwhelming fatigue is something else entirely. It’s like I only have a certain amount of energy for the week and, if I use up too much on Monday, the next day or so is a write off. My head pounds,

Another pleasant side effect is that my memory is not now what it was. I have conversations that I forget, tell people the same thing several times over, forget

my arms and legs feel like they are 28


appointments and phone calls etc. So if I

This word “normal” – well, it’s how I

don’t reply to a text or don’t call very

look,

often, I’m genuinely not meaning to be

perceived, and, most of all,

rude; it’ll just have completely slipped my mind and I’ll be oblivious that I may have offended. Another thing that is

how I

sound,

how I

am

how I wish I could feel just for one more day.

apparently “normal”. I have no visible scars, no external reminder that my brain injury ever

over most things, which is a total about

happened. Me? I’m reminded every

turn from the confident person I was

second of every day.

before. I’m scared of the dark, I worry that the house is going to be broken into, I can’t cope in crowded places and I

All I want is to be “normal” again –

just don’t feel that sociable anymore.

to hold down a full time job, have a

Most of all, I worry that people are

social life, run around with my son

judging me, or just don’t understand. I

without being in pain, have a day out

try not to turn down every invitation

w it ho ut

that I get, as eventually the invitations

somewhere I can have a rest, clean

dry up, and I do so want to be “normal”

the house without worrying if I’ll

and do “normal” things with my friends,

have enough energy to cook dinner

but I find noisy pubs, clubs etc.

AND walk the dog as well. All the

extremely stressful and hard to deal

things I used to take for granted.

wor ryi ng

if

Mental Health

I also now suffer from massive anxiety

t he re ’ s

with now.

29


I have good days, don’t get me wrong,

confused, exhausted brain around. I’ve

where I almost feel like the old me, but

finally stopped saying “I had a bump on

then I know I’ll suffer for them the next

the head a while back” and started

day. On top of my brain injury, I also

saying “I have a brain injury” because

have degenerative disc disease, which

I’ve realised it’s not going anywhere. It

also severely limits physical activity. I

happened, I survived and it’s part of who

know friends and family mean well, but

I am. I will return to a level of

going for a run/to the gym/going on a

normality, just a different one from

healthy eating kick is not going to

before.

magically solve everything!

It’s life Jill, but not as we know it! This is now my new “normal”. I’m still me, but not quite the me you used to

Jill, TBI survivor, East Midlands, UK

know. I don’t expect everyone to understand and accept that; hell, I struggle to accept it myself!

Acceptance that this is my life now is the hardest bit The idea that instead of expecting to return to how I was, I need to adapt coping strategies to allow me to lead a normal life is very hard to get my 30


31


MOTIVATION


“How to KEEP Motivated?” HFit Fitness Tracker

and realised that it was 1K spread out over one day.

This has a startling effect as you automatically want to

My wife bought this watch so I could

beat the pervious days

keep account of the number of step I had

accomplishment

taken on a daily basis plus the distance Therefore you become self motivated

and my goal is to take the kids to a local

to ‘do more’. Over two months my

theme park which is very large, the

target has steadily increased, its not

rides are spread out and there are

enough to go to the theme park yet

different surfaces / inclines in-between

but as I started with a goal 5,500

them.

steps and am now on 7,500 steps (4

The watch defaults to 10,000 steps a day, I found that I was doing 3,500 to 4,000 so I modified the goal but was

Kilometre) I am confident that I will

Mental Health

I had travelled. I have difficulty walking

get there. Slower than I want it to but it will come!

undecided how far that was however knew that I should start small and aim for 500 meters. The result is that over a day it is fairly easy to complete 500 meters. Therefore I increased my objective to 1 Kilometre (about 900 steps). I soon reached this 33


information

Mental Health help and support services

services.

With

support

and

understanding, Mind enables people to make informed

choices.

The

Info

line

gives

information on types of mental distress, where to get help, drug treatments, alternative

health

therapies and advocacy. Mind also has a

problems or need urgent support, there are lots

network of nearly 200 local Mind associations

of places you can go to for help.

providing local services.

Samaritans

Saneline

Telephone: 116 123 (24 hours a day, free to

Telephone: 0845 767 8000 (6pm-11pm)

call)

Website:

If

you

are

experiencing

mental

www.sane.org.uk/what_we_do/

support/helpline Email: jo@samaritans.org Saneline is a national mental health helpline Website: www.samaritans.org Provides

confidential,

providing information and support to people

non-judgmental

emotional support for people experiencing feelings of distress or despair, including those

with mental health problems and those who support them. ChildLine

that could lead to suicide. You can phone, email, write a letter or in most cases talk to someone face to face.

Email:

0300

http://www.childline.org.uk/Talk/

Pages/Email.aspx

Mind Info line Telephone:

Telephone: 0800 1111

123

3393

(9am-5pm

Monday to Friday) Email: info@mind.org.uk

Website: www.childline.org.uk ChildLine is a private and confidential service for children and young people up to the age of nineteen. You can contact a ChildLine

Web site: www.mind.org.uk/help/advice_lines Mind provides confidential mental health

counsellor for free about anything - no problem is too big or small. 34


Is this magazine in your doctors waiting room yet?

IF NOT VISIT www.HealthisYourWealth.co.uk and click on subscriptions


THERAPY

BE AS GOOD AS YOU CAN BE


Exercise, “Maintenance for your body !”

exercise the wrong way resulting in

Do exercises Correctly,

muscles properly and a combination

Consistently and Regularly It sounds straight forward enough, however the vast majority of people are not doing their exercise routine 100% correctly. You are spending time doing

the benefits by doing them properly.

Add to this people not stretching the

of strengthening the wrong muscles plus poor posture can lead to all sorts of long term issues! Certainly

you

need

the

right

exercises and to know how much weight to use and when to make adjustments to these parameters but this is only 25% of the battle as you

Its unlikely you will get them right the

also have to add in nutrition. You

first time so it's a good idea to get your

should be aware of what types of

physiotherapist / gym instructor to

carbohydrate / fat and protein there

conduct a periodic review so that you

are and when to eat them in what

can listen to their guidance.

quantity.

It

is

a

Therapy

them anyway so you may as well get all

serious injury.

common

misconception to think: Even small changes to the way you do things can result in startling and huge results.

In fact if you are not specific

enough you can actually do more harm

“If I eat cake now it’s ok as I am going to the gym tomorrow so will burn it off then”

than good. There are many examples of people using too much weight or doing 37


However it doesn't work like that. You

Unless you are a professional athlete or

cant just turn up at a gym, do your

training for a competition there really id

exercise plan and expect the results to

no need to go to the gym everyday.

come. This is why a lot of people simply stop going because they think they are putting 100% effort in but only getting a 10% return! The other thing to add is to ensure that adhere to a schedule that includes rest days. There is no point going to the gym

Results take time and doing twice as much doesn't mean you see results in half the time. Little and often is the key alongside regular

reviews

with

a

qualified

therapist and gym instructor !

every day if your body doesn't have

Add this to a good diet plan and you’re

sufficient time to recuperate. Its worth

onto a winner.

splitting your routine up and focusing

without the other so it will be worth

on specific muscle groups in one session.

talking to a nutritionist and then maybe

For example:

the results you wish for will come!

Monday - Back and Shoulders

Tuesday - Rest Day

Wednesday - Legs

Thursday - Rest Day

Friday - Chest and Arms

You can’t have one

38


IMPROVING AWARENESS


WHAT IS THE COURT OF PROTECTION?

A Deputy can be a professional such as a Lawyer or Accountant or a family member (lay Deputy). When deciding whether a professional or

The Court of Protection is a Court governed by the Mental Capacity Act 2005. It has the power to decide if a person lacks capacity to make decisions for themselves and then to decide what actions to take in the person’s best interests. It is designed to both protect and empower individuals who lack capacity. If someone has suffered brain injury you may be told that an application should

lay Deputy should be appointed you will need to carefully consider what is best for the individual concerned.

If large

compensation payments are made it is advisable to appoint a professional Deputy who will be experienced in dealing with complex financial decisions and can guide you through the whole process.

It is an important role and

must not be undertaken lightly.

WHAT IS CAPACITY?

be made to the Court of Protection for a Deputy to be appointed.

WHAT IS A DEPUTY? There are two types of Deputy

Capacity is a difficult concept and just because someone lacks capacity to deal with complex issues it doesn’t mean they cannot

make

some

decisions.

The

Deputy ensures that the individual is Property and affairs Personal Welfare

given assistance and time to make decisions where possible. The Deputy will make those decisions the person is 40


unable to make, acting in their best

Here are some questions to ask the

interest.

solicitor:-

A capacity assessment must be obtained to see if a Deputy is needed. This can be done by a Medical Practitioner who

as a professional Deputy?

examines the person and assesses their capacity.

Who would be dealing with the matter on a day to day basis?

Making an application to the Court of

how long?

can be a daunting and lengthy process.

Do they have small cases loads

question, then you should seek advice

so they are able to provide a

from a specialist lawyer. Most will be

personal service?

happy to provide free initial advice.

Do they have any independent

In cases where compensation is being

references such as Legal 500,

claimed you should include the costs of a

Chambers or Headway?

professional Deputy, including future Deputy costs.

Do

they

have

experience

handling

high

levels

Improving Awareness

Are they qualified and, if so, for

Protection for a Deputy to be appointed

If the capacity of a family member is in

How long have you been acting

of

compensation?

41


Lawyers specialising in the Court of

afraid to ask questions; make sure you

Protection will understand the problems

feel you are comfortable talking with the

and difficulties faced by the individual

lawyer. They are there to help you and

who has suffered a brain injury and

to ensure that the person lacking

their family. It is an important choice.

capacity is involved as much as possible

You need to ensure that the lawyers

about decisions affecting their life.

have the right experience. Do not be

42


Headway Derby Launches drop-in Support Cafe

In officially opening the Support Cafe, the Mayor of Derby spoke of the difficult times that Headway Derby have experienced over the last

Following on from their successful black

year and commended the charity in

tie fundraiser, covered in the last

now being able to establish a new

edition, Headway Derby have launched

service.

the Support Cafe and celebrated with a

Chairperson, Debra Morris, said

visit

from

the

Mayor

of

Headway

Derby

Derby,

the

size

of

our

service had reduced in 2016, The event in March was the first annual

the number of requests for

black tie fundraiser for the local charity

advice and support have been

and raised over £3000 for Headway

increasing. By providing a drop

Derby. Paul Clarke, Service Delivery

-in

Manager, announced on the evening

affected by brain injury can

that all proceeds raised would be used to establish a drop-in advice service and just a few weeks later, on the 13th April,

service

where

people

come for advice, information, or just a drink and a chat with

with a

people that understand, we

networking and celebration event for

are able to help more people

supporters of the service.

more effectively.”

the service was launched

Improving Awareness

“Although

Councillor Linda Winter.

43


The proceeds of the fundraiser were

information service including assistance

presented to Headway Derby by Chrissie

with welfare benefits enquiries and

Rowell,

Hare

applications/appeals, as well as general

Marketing, who organised the event,

advice, support, signposting etc in

and the Mayor was so pleased with the

relation to a brain injury.

service

Director

that

of

whilst

Black

attending

the

opening she invited volunteers of the charity to join her for afternoon tea! On Wednesday

3rd

May

a

group

of

Headway Derby volunteers attended the Mayor's Parlour at the Council House for a very enjoyable afternoon.

This new service is also being supported by the head injury team at London Road Community Hospital. Amanda Pepper, a Case Manager for the team, is working with

Headway

Derby

to

provide

specialist welfare benefits advice during the drop-in sessions.

The drop-in advice sessions, known as the “Support Café” now run every Thursday from the Headway Centre at The Coach House, 14 George Street, Derby DE1 1EH from 1.00 to 4.00pm. It is a free service for all in Derby, Derbyshire and East Staffordshire who have suffered a brain injury, their families and carers. Between 1.00pm and

3.00pm

volunteers

specialist offer

an

staff

and

advice

and

The provision has been so successful already

that

Headway

Derby

are

already looking to expand the service offered at the Support Cafe. From 3pm onwards they are hoping to hold a variety of different workshops and talks to include topics such as coping with a brain injury, mindfulness, anger and fatigue management, IT skills, sports and activities, arts and crafts and 44


anything that may be of interest to those attending.

paul.clarke@headwayderby.org

Forthcoming events will be advertised on social media, you will be able to find them

on

Service Manager at

Twitter

and

Facebook

If you are not local you can find your nearest Headway group or branch, visit www.headway.org.uk

@headwayderby or just call the charity to find out more on 01332 986350. Anyone

interested

in speaking or

0808 800 2244

Improving Awareness

running a workshop can contact the

or contact the free phone helpline on

45


The

addiction

word

refers

to

the

Addictions, Brain and

condition of physical dependence or

Behavior

chemical reaction manifested by the brain due to the intake of certain drugs

The impact of addictions in the brain and in the human behavior

in

the

body.

compulsive

On

the

behaviors

other

hand,

related

to

gambling, shopping, video games or eating for example, may not necessarily be tied to a physical dependence, but to a state of tension or emotional stress, generally linked to anxiety. Among the brain areas most affected by

photo credit: forum.linvoyage.com

addictions are the memory and the Addiction

is

characterized

by

the

exaggerated or continued use of a chemical substance, such as alcohol and drugs, or through activities or behaviors practiced in an excessive and constantly way, as shopping or gambling, causing problems and damages for the person's life and for the relationship with the family.

motivation,

specifically

mechanisms

related

the to

neural

immediate

reward. Besides that, the use and abuse of drugs can cause significant changes in the

neural

circuits

responsible

for

learning, attention, motor ability and self-control. This occurs because the drugs disrupt the communication and the

flow

of

information

between

neurons, thereby impeding the ability of

46


a person to plan, calculate, locate, and

According to some researchers, there

communicate with other people.

are

more

people

predisposed

to

develop chemical dependency than A very common addictive behavior today is the activity of sending and receiving text

messages

in

the

virtual

environment. This type of activity can interfere quite significantly in the brain mechanisms of impulse control, causing

others are. People with chemical dependency

would

present

a

deficiency in the neurotransmitters serotonin

and

dopamine,

neural

structures responsible for regulating the mood in the human brain.

in

which

people

necessitate

the

Consequently, the use of chemical

immediate feedback when sending an

substances

as

well

image or comment on social networks.

development

Treatment for this type of addiction

behaviors, may increase in quantity

requires an understanding of how it

and frequency in an attempt to

works psychologically.

satisfy more and more the individual

of

as

the

compulsive

Improving Awareness

dependence due to the numerous times

that aims to overcome feelings of pain,

emptiness,

anguish, immediate

sadness

and

through the relief and well-being

that

the

may

also

addictions offers. Environmental influence photo credit: mikecogh

the

factors

development

addictions. A child

of

or a young 47


woman who lives with parents or a

The

family member that makes use of

associated with people who suffer from

alcohol

some form of mental disorder. This does

or

illicit

drugs

have

great

chances to adhere the use.

addiction

to

drugs

has

been

not mean that every person diagnosed with schizophrenia or bipolar disorder

It was also observed by scientists that some individuals who made use of alcohol and drugs, when cease to using them,

eventually

transferring

the

addiction of chemical order, for the development of addictive behaviors such as gambling, eating, shopping, among

for example, will become addicted to any drugs, but that due to states of euphoria, anxiety or deep sadness caused by the disorder, a person with mental illness may use drugs as an escape to relieve intense distress or a state of extreme anxiety.

others. This occurs because as well as cocaine,

heroin

and

alcohol,

the

addictive behaviors activate the brain's pleasure

centers

releasing

neurochemical substances that generate euphoria and well-being. From this point of view, although addictions

and

addictive

behaviors

presents differences in actions, they are similar

in

feelings,

because

the

biological process are the same in both situations.

photo credit: FootMassagez

The opposite can also happen: a person without mental illness can come to manifest over time psychosis, anxiety, depression or mood instability due to the abuse of drugs. 48


Moreover, what about when addictive

behavior does not interfere much in

behavior and addiction are part of the

financial life, as in the case of buying

same personal conduct? This occurs

compulsively (shopping) or practice

when a person develops a compulsion for

gambling with frequency, which in

drugs or alcohol, for example. In a

most

practical way, instead of this person has

towards a financial failure.

cases leads the individual

an addictive behavior in shopping or gambling, a compulsive behavior by the use of any drugs or the excessive

developed.

practical

cases,

the

person

addicted to drugs often can sustain your

addiction

belongings,

selling

developing

own

thefts

in

shops, or in the case of people at a When a person develops a compulsion

young age, usurping the money of

for gambling or shopping, may be easier

your own parents.

for this individual in recognizing that he/she needs help or treatment, by the fact that these addictive behaviors are bringing some disruption to personal life, such as in financial healthy (in the cases of gambling and shopping).

Faced

with

these

dramatic

situations, one question remains.

Improving Awareness

consumption of alcoholic beverages is

In

Why a person starts using drugs, alcohol or develop addictive behaviors?

On the other hand in relation of compulsion for drugs or alcohol, the

The trigger of drug life or addictive

addict takes a more durable time to

behavior can be characterized by

realize that help is needed, because this

curiosity, peer pressure (in the case

49


of drugs or alcohol among young people), family environment (parents who are drug users, or family members who are alcoholics). Pain or distress about a problem, conflict or situation in which the person cannot see a solution or alternative.

photo credit: Florian_DrĂŠ

Teenagers are more vulnerable to use

The girl can stop eating to resemble any

drugs, alcohol or develop some kind of

model or artist of the magazine cover.

addictive behavior (such as gambling, shopping, eating, electronic games, etc.) because

they

meet

at

a

time

of

identification and affirmation of their identity, beliefs and values. There are still further examples, as in the cases shown below: The teenager can know the drug or the alcohol at school, or starts drinking in order to socialize and belonging to a social group.

The student starts to consume up more and more by shopping in order to, arouse attention and interest to other colleagues, craving admiration for what he / she has and not by his/her essence, friendship or companionship. The young shy teenager can relate to the electronic games in an attempt to be whatever he/she likes, in order to escape from reality or to relief some kind of stressful or distressing feeling. These are just some examples of what may affects some young people.

50


Drugs and alcohol arise in trying to

The

addictive

behavior,

besides

generate relief and pleasure to the

altering neurochemical structures of

person in distress. However, with the

the brain, can also bring imbalances

time of these uses the addiction ceases

in economic, physiological and social

to make the pleasurable effect that had

areas of the person:

at the beginning of consumption. In the case of addictive behavior in shopping or



to

be

in

control

or

in

to

the

fact

that

generate financial losses.

gambling, one feels an exaggerated pleasure

Economic,

Physiological

because

many

dominating position while exercises the

times the adult or the youth

addictive activity.

leaves to eat and sleep in a healthy way, due the addictive

The habit of using drugs and practicing

effects

addictive behavior over time let it be

gambling

drugs, or

alcohol, compulsive

shopping.

only a habit to turn into an obsessive conduct. In this way, the individual can

of



Social

because

the

addiction

no longer imagine your routine without

cause damage in the family

the drug or the act of buying or

relationships, and interpersonal

gambling compulsively. Thus, the act of

relations in the workplace.

using

drugs,

compulsively,

gambling becomes

part

or of

buy the

individual character, so that the person only thinks in the act, ignoring the consequences practices.

of

these

addictive

Improving Awareness



The good news is that the addictions as well as the addictive behavior have treatment and through this, there is the possibility of the person backs to having a healthy routine with dignity and quality of life. 51


The Cognitive Behavioral Therapy is a

Reading blogs, websites and educational

psychotherapeutic approach based on

materials about the type of addiction /

the principle that the set of beliefs and

addictive behavior.

thoughts

of

the

person

has

great

influence on his behavior. Cognitivebehavioral therapists help the patients to restructure their dysfunctional way of thinking in order to develop more positive and assertive forms of behavior. In

some

cases

it

is

necessary

pharmacological intervention, with the help of prescription medication made by a specialist doctor such as a psychiatrist. These medications can help in relieving symptoms related to anxiety, psychoses, mood

swings,

depressive

episodes,

obsessive behaviors, among others. Family

members

can

help

in

information

through

support

Internet

or

addictive

situation,

and

groups

in-person)

knowledge (over

the

about

the

present

in

the

by

the

family. Look

for

professional

help

assistance of psychologists or family therapists in order to gain a better understanding of how would the best way to help the familiar in distress. It is extremely important that the entire family be involved in the recovery and treatment of the familiar member. The

the

treatment, either in cases of abuse of drugs or alcohol, whether in episodes of addictive behaviors. Regardless of the situation, parents can get help by:

Seeking

development

of

a

healthy

family

environment begins when each member shows interest and empathy for the others. The dialogue is a practice that unites the family ties, creating care and affection between each other.

52


It is crucial that all the family can be

AUTHOR BIO

present in the educational events and

Daniela Silva is a Brazilian educator and independent

counseling sessions.

writer. She holds a BA in Pedagogy from Santa Cecilia University, Brazil, with concentrations in School Management and Business Education; an MBA in

With

the

involvement,

commitment,

dedication and discipline of everyone, especially of the member in addictive condition, it is possible to use techniques and strategies to treat the person's

this way the person in suffering, will be able to feel joy and motivation of having a life again.

Center, Brazil; and a po stgrad uate certificate in Neuroeducation from Estรกcio de Sรก University, Brazil. Working with social projects in the area of e-learning and people development since 2009, Ms. Silva is a regular contributor to several educational websites, writing about teaching practices in the classroom; emotions and learning; evaluation and school planning; learning disorders; homeschooling, brain child development, parenting, Montessori education, andragogy and people training. Additionally, she develops courses and training manuals for teachers and students, and contributes as a mentor in an online platform, answering questions about career plans, college decision, personal development and professional skills. Working in collaboration with The New Heights Educational Group, Inc., she has just published Unraveling

Authored by Daniela Silva

Reading, a book on literacy education and learning disabilities in reading and writing.

Improving Awareness

addiction and the addictive behavior. In

Personnel Management from Monte Serrat University

Email: danieducator@gmail.com References: http://www.axisresidentialtreatment.com/obsessivecompulsive-disorder/how-family-members-can-help/ http://americanaddictioncenters.org/ocd-andaddiction/ http://www.axisresidentialtreatment.com/obsessivecompulsive-disorder/the-link/ http://www.parliament.uk/documents/post/pn356% 20-addictive-behaviours-corrected.pdf http://www.drugrehab.co.uk/drug_information.htm https://www.drugabuse.gov/sites/default/files/ rrcomorbidity.pdf http://photopin.com/

53


Headway Alyesbury Vale

can be caused by an injury, illness or accident. Trustee Nikki Ounsworth, a partner in

Headway identifies six key issues

an organisation that provides case

facing brain injury survivors

management services for people who have

experienced

catastrophic

Brain injury survivors are hit by social

injury, explained: “We know there are

isolation, face difficulty initiating and

some 1500 survivors of Acquired Brain

maintaining relationships, and have

Injury in the Aylesbury Vale area alone,

problems securing or holding down jobs,

and yet only a small number of them

even if they are capable of doing them.

come to our sessions at Fairford Leys.

These are some of the key issues identified

by

experts

at

Headway

Aylesbury Vale, a charity helping people face up to life after suffering an Acquired Brain Injury (ABI). Now Headway is urging more survivors from the local area to come forward and

This is frustrating for us because we know we can do so much, in so many ways, to help people face up to the common

difficulties

this

condition

brings.

“That’s why we have listed six key issues resulting from ABI because

seek assistance, rather than ‘suffer in

we hope people will read this,

silence’ alone.

identify with the problems and

The organisation based in Wedgewood Street, Fairford Leys, Aylesbury, has

then contact us to see what we can offer them.”

listed six main outcomes of ABI, which 54


These six issues faced by survivors of Acquired Brain Injury are:

Increased risk of exploitation

and neglect – hidden impairments

Social and physical isolation as a

result of behavioural, cognitive and communication changes. They often do

leaving them at increased risk of being taken advantage of and/or even neglected. Mrs Ounsworth added: “The brain

manner

previously,

injury survivors who do come to

including previous friendships, family

Headway Aylesbury Vale can testify

members and employment circles.

to the very real difference we make

they

enjoyed

to their lives and to the lives of their Lack of employability and financial

hardship.

try us out when they see they are not

Loss of identity from who they

Relationship

alone in the problems they are facing.”

were before.

carers, so I hope others will at least

break-downs

and

inability to form and retain new relationships.

Chairman of Trustees Phil Simmons

Improving Awareness

not feel connected to society in the

said: "In April, Headway Aylesbury Vale was featured on BBC TV South News specifically focussing on its

Lack of access to the community due

music therapy sessions and benefits;

to restricted mobility and support with

followed on the 10th May on daytime

other impairments which enables them

ITV

to interact with people in their

was talking about his issue and how

community, e.g.

weekly visits to Headway

where

an

ABI

survivor

communication difficulties. 55


therapy, information and meaningful social activities. The charity also offers art and music sessions. To find out more, contact Karen on 01296 415469 Or email: info.headwayav@gmail.com. For more, go to http://

‘had been brilliant in helping with

www.headwayaylesburyvale.org/

his issues’. “This was followed by the healthcare professional saying they had ‘numerous mentions of the fantastic work Headway did in this area helping with the cognitive processes’. This all goes to show the benefits to ABI

If you are not local you can find your

survivors of connecting to Headway, so I

nearest Headway group or branch, visit

do hope more people will try out our

www.headway.org.uk

services.” Headway currently opens two days a week, Mondays and Wednesdays, behind

or contact the free phone helpline on 0808 800 2244 E-mail: helpline@headway.org.uk

the Co-Op in Wedgewood Street, offering 56


57


Ten things not to say to someone living with a brain injury

“I know what you mean...I’ve got a terrible memory too!” For people who don't have a brain injury, it can be difficult to imagine the

Living with a brain injury can court an endless stream of ill-informed comments and assumptions.

reality of living with a memory problem. After all, we all forget things, but an injury to the brain can stop memories being stored and/or retrieved, meaning people genuinely can’t remember. Being

Although often well meaning, hearing

forgetful and having memory problems

the same unhelpful remarks can add to

as a result of brain injury are worlds

the frustration of living with a complex

apart!

and often invisible condition.

“But you don’t look disabled...” To help make everyone’s life easier and part of their A New Me campaign, Headway – the brain injury association has teamed up with brain injury survivors across the UK to compile the 10 things not to say to people with a brain injury.

Brain injury is often referred to as ‘the hidden disability’ because the cognitive, emotional and behavioural effects can still be present long after any physical injuries have healed. Don't assume that just because someone looks fine on the outside, they’re not experiencing long-term effects.

58


“Move on and stop dwelling on what happened.”

“You’re tired? At your age?!” A

surprising

number

of

people

experience comments along these lines. Fatigue is a very real and very One to avoid at all costs! The effects of a brain injury can last for weeks, months, years, or even a lifetime. Improvements may

happen

through the

natural

healing process, rehabilitation, hard

person can't simply decide to ‘get better’ and move on.

but

because

completely

it’s

invisible,

often

almost

it’s

perhaps

understandable that people don't immediately

pick

up

on

the

difficulties it can cause. Living with fatigue requires careful management and the support and understanding of friends, family and colleagues.

“You should be back to

“It’s all in your mind!”

normal by now.”

A brain injury does affect the mind,

Two big problems with this one! Assessing

the

effects

and

likely

outcomes of a brain injury challenges even the most experienced doctors, so receiving this advice is likely to result in an angry response. At the same time, the word ‘normal’ can inadvertently cause offence. What is normal?

Improving Awareness

work or a combination of these, but a

debilitating effect of a brain injury,

but unfortunately not in a way that means a person can just decide to get better. Damage to the brain cannot be repaired, and any recovery is a result of the brain adapting to change and finding new ways to work. This isn't something that can be 59


controlled by simple conscious thought

process is relearning lost skills by

so there’s little more frustrating for a

pushing yourself to do challenging tasks.

person with a brain injury than being

It’s often better to give things a go than

told to ‘snap out of it’!

simply accept defeat, so having your ability judged by someone else can be extremely frustrating. It’s great to offer

“Chin up – there’s always

help and support in case the person with

someone worse off.”

a brain injury can't manage a task, but

This common line is certainly well-

tread carefully when judging ability.

meaning, with a clear intention to make the person with a brain injury feel

One of the key aims of Headway is to

better

help

about

their

situation

and

people

regain

as

much

encourage positive thinking.

independence as possible. Brain injury

But when dealing with everyday fatigue,

survivors don’t want people to do

memory

everything for them – they want help to

problems,

difficulty

concentrating or anything else from the

be able to do things themselves.

long list of brain injury symptoms, it doesn't always help to know that some people are dealing with worse.

“I know someone who had a brain injury and they’re fine now.”

“Are you sure you should be doing that?”

This comes down to something many people don’t understand – no two brain

An essential part of the rehabilitation

injuries are the same! Even two people 60


with

very

similar

injuries

may

living with brain injury, as well as

experience totally different effects, and

family members and carers – in

while it can be a motivation to hear of

order to raise awareness of how lives

other people making good progress, it

– and futures – can change in an

certainly isn’t helpful to be judged for

instant.

not recovering as quickly as them.

Andy Nicholson, from Lincolnshire,

“But you were able to do that

sustained a brain injury after falling

yesterday...”

headfirst down a 20ft drop on a

fluctuating nature of a brain injury, which is often down to fatigue. In some

site

Germany

in

while 1994.

working He

said

in he

recognised all of the points raised on the list.

cases it can be because they did a task yesterday that they can't today.

He said: “I’ve heard all of them over the years and they can really be hurtful at times. There is still a

Pushing too hard after a brain injury

lack of awareness about brain

can cause difficulties for hours or even

injury in our society and it is very

days afterwards, and this is a time when

concerning.

Improving Awareness

People who say this don’t realise the

building

support and understanding is needed more than ever. The top ten list is part of Headway’s A New Me campaign. The campaign is designed to give a voice to people affected by brain injury – individuals

“For me fatigue is a big issue, so when

people

make

passing

comments making light of me being tired, I find it very frustrating.

61


Being so fatigued that I’m tired the

Peter McCabe, Chief Executive of

instant I wake, is not just in my mind. I

Headway, said: “Living with a brain

wish it was.

injury

presents

a

wide

range

of

challenges, but one of the most difficult things for many survivors is the lack of “Having to concentrate more than none brain injured folk on everyday

understanding from the people around them.

tasks as mundane as simply walking or talking is hard to explain and can be

“We hope by sharing these top

very hard going.

ten examples we can help “Hopefully with more campaigns like

increase awareness around

A New Me, more people can talk

common misconceptions that

about the issues that affect brain injury

can add to the frustration of living

survivors

and

break

misconceptions.”

down

these

with a complex and often invisible condition.”

Please help us raise awareness of this important campaign on social media using the #ANewMe hashtag. More information can be found at the campaigns website

www.anewme.org.uk 62


This is a significant number and in some ways not unexpected as this is

Brain Injury in the Early Years

an age when children are less sturdy on their feet and less aware of their

The

Child

Brain

Injury

Trust

is

currently raising awareness of issues around acquired brain injury (ABI) in

surroundings, so head injuries are perhaps inevitable. According to the NICE Guidelines –

the Early Years setting, i.e. for children

a head injury is defined as any

you to know that following a study by L

trauma to the head other than

Trefan et al (2016) it was revealed that from a group of over 6,270 children (aged

15

and

under),

the

superficial injuries to the face.

peak

Therefore many toddlers are likely to

prevalence of hospital admission due to

experience a minor head injury

childhood head injury is in infants -

(often described as concussion), or a

3,135 children in the study were under

more severe injury which would be

the age of 5.

classified

Infants younger than 1 year:

as

a

traumatic

Improving Awareness

under 5 years of age. It may surprise

brain

injury. The environment for toddlers is, as

1093 (19%) Children aged 1 - 4 years: 2042 (35%)

we know, fraught with obstacles and excitement in equal measures. Some of the most common causes of head injury in this age group is colliding

63


with doors, walls, radiators, tables and

Fall on or from stairs and steps

Slipping, tripping stumbling on the

chairs, as well as running into other children.

The study conducted by

same level

Trefan showed that 12.3% of children included in the study had received their

Fall involving a bed

Fall

injury as a result of these types of accident, and were on average aged 3.7

involving

playground

equipment

years. Other key outcomes from the study

Fall involving a chair

highlighted the prevalence of falls

One of the most significant issues

amongst the under 5’s:

relating to head injuries in Early Years,

Fall from less than 1m 32.1% Average age was 2.1 years

especially in the under 2’s, is that these children are often unable to be aware of, and furthermore communicate, any changes or disturbances to their normal

Fall from higher than 1m

levels

of

cognitive,

physical

and

behavioural functioning.

17.6% Average age was also 2.1 Babies and toddlers may not be able to The top 5 most prevalent types of falls

say exactly how they feel or what is

recorded by Public Health England

hurting or what they are struggle to do,

between 2008 and 2013 for children

and therefore there is a need to ensure

under 5 were:

responsible adults take appropriate action immediately after an injury, on the child’s behalf.

64


In older children and adults signs of

no other way for the parents/care

concussion or head injury may include:

givers to observe any changes to their child following a head injury.

Problems understanding, speaking or writing

It should be remembered that some children

Numbness in a part of the body or loss of balance

may

immediate

be

fine

aftermath

in of

the their

concussion/head injury and for many children, a head injury will have no

General weakness

Changes in eyesight However a very small number of

A seizure

Persistent vomiting

children

may

go

on

to

have

difficulties in the future. This is because:

Memory problems

 

Persistent headache

Any damaged brain cells will not

Improving Awareness

long term effects.

repair, once damaged they are gone forever

Irritability or altered behaviour such as being easily distracted, not

The full outcome of an injury

themselves, no concentration, or no

may only become apparent over

interest in things around them

a

period

of

developmental For the Under 5’s and especially babies and

toddlers,

the

final

point

time

with

key

markers

are

passed without being achieved

is

particularly significant as there may be

Finally, the human brain does 65


not finish maturing until the child

Communication, speech difficulties,

is in their mid-20s, and only once

difficulty processing what has been

the brain is fully mature will all

said and how to respond

deficits in functioning as a result of

an injury be highlighted.

Changes to normal patterns of behaviour; not a “nice” child any

Typical

problems

that

can

occur

more

following childhood acquired brain (Many of these issues are similar, yet

injury are:

often different in other ways, to other

Problems making new friends and

more well-known difficulties, such as

keeping existing ones

ADHD and Autistic Spectrum Disorders,

Difficulties

engaging

in

group

activities

Not

being

able

to

focus

and

and

are

often

misdiagnosed

by

unknowing professionals.)

Prevention is always better than cure

concentrate

Acute tiredness and fatigue

Struggling to organise and plan

so it is really important that if you have

when to meet friends, do homework,

a small child or work in an early years setting, that every precaution is taken to protect the Under 5’s from potential

have lunch etc

head injuries and concussion. Below are

Forgetting

new

learning

and

information, or things they did recently

just a few dangers that should be considered:

66


Babies

at an alarming pace so to reduce the chances of head injury make sure

Remember that babies can wriggle

that:

very easily, and in seconds can manoeuvre themselves out of

a

bouncing cradle or car carry seat

Floors are kept clutter free to avoid trips and falls

that has been brought indoors, so NEVER place these seats on a table

or higher surface

Tables have

“soft” rounded

corners and all protruding edges are not at toddlers head height

When changing nappies, despite the common use of changing tables (at

Remember to remove large toys

home or in public areas), a clean

from cots, so the child can’t

floor is often safest place to do this.

climb out and fall

High chairs should have 5 point

These are just a few ideas to help

harness to ensure that the child is

keep the Under 5s safe, please see -

not able to wriggle out of it.

Child Accident Prevention Trust for

Older baby walkers can tip over, and because of the number of incidents all new ones should reach British Standard BS EN 1273: 2005. Is your compliant?

Toddlers - as mentioned earlier in the

more safety ideas like these. Children, whatever their age, can acquire a brain injury through a number of different ways, such as:

Illnesses,

e.g.

meningitis

or

encephalitis

article, toddlers are wanting to explore the world around them, and often do so

Improving Awareness

Strokes 67


Brain tumours

By Louise Wilkinson,

Road traffic related incidents, and

Head of Information and Learning,

other unexpected accidents

Child Brain Injury Trust

Near drowning

Asphyxiation

Poisoning

If you would like more information about our services, please contact our Helpline:

Shaken babies – known as Non 0303 303 2248 helpline@cbituk.org

Accidental Injury The Child Brain Injury Trust is the

Or visit our website:

UK’s only charity providing services to families affected by ABI,

without

www.childbraininjurytrust.org.uk

charge, throughout the UK, no matter how the injury is caused.

68


RELATIONSHIPS


Brain injury creates

among the public, as well as health and social care professionals.

‘new person’, The study found:

research finds New research has shed light onto the

like ‘a new person’ following their injury.

extent to which acquiring a brain injury can change a person’s sense of self.

74% of brain injury survivors feel

77% of brain injury survivors feel friends

According to a study conducted by

person following their injury.

some

going

as

far

as

acknowledging the anniversary of their injury as ‘a new birthday’. It is hoped the findings will help to

74% of people felt their social life

69% of people felt their self esteem was worse.

reported a surprising degree of positivity with

56% of respondents reported their

feeling that their friends did not understand their injury.

come to terms with losing their old self

no t

was worse – with 60% of people

respondents the impact of having to

was entirely negative, many others

do

brain injury had had a negative impact on family life.

of brain injury survivors feel like a new

While for many of the survey’s 800-plus

family

understand the effects of their injury.

leading UK-wide brain injury charity Headway, around three quarters (74%)

and

62% of respondents acknowledge the anniversary of their injury; of those who positively commented on their anniversary, 1 in 10 explicitly mentioned acknowledging it as a new birthday.

increase understanding of brain injury 70


“We have always known that brain injury can affect personalities as well as a person’s cognitive and physical abilities,” said Peter McCabe, Chief Executive of

such

as

memory,

speech,

or

movement. However, it can also change

personalities

behaviours,

which

can

and

our

have

a

dramatic impact on our relationships and support networks.

Headway. “This study, however, sheds light on just how lives and futures can be altered an instant as a result of

“What is clear from this study is that

sustaining a brain injury.

the experiences of those affected

“We often hear people tell us that their husband or wife is not the person they married, or that the person they knew didn’t really return from the hospital.

understandably struggle to accept the new person they have become, others change

positively by

embrace

the

celebrating

the

Relationships

are unique and, while some will

anniversary of their injury as a ‘second birthday’. “Coming to terms with the fact that you have not only lost the life you once led, but also the person you once were must be unimaginably difficult.” “People often associate brain injury with impacting cognitive or physical skills,

“This shows that with the right help and support, there can be life after brain injury.” The report has been issued as part of the charity’s new campaign entitled 71


A New Me, which aims to give a voice to

reincarnation of the real me. I do feel

those affected by brain injury in order to

like a new person.

highlight the hidden effects of brain injury.

before, and feel the injury has given me

For further information or to download the full report, visit

‘The ‘New Me’ is a reincarnation of the real me. I do feel like a new person.’ The first few months following Darren Wyn Jones’ brain haemorrhage included very

dark

an opportunity for a life review. “I take much better care of myself and

www.ANewMe.org.uk.

some

“I feel a lot less stressed than ever

and

challenging

moments. His marriage broke down, he had to relinquish many aspects of the job he loved and was even forced to sell his home. But now, just 15 months later, he feels remarkably upbeat about his future.

I’ve slowed down my pace. I’m much more compassionate to myself and I reflect on what’s meaningful to me now. “My brother thinks that my brain has re -wired itself differently, in a positive way, whereby I have developed more patience, more confidence and even more intelligence!”

“I've had to learn to love a different man” Lorraine Pratt’s life was changed in an instant when she became a carer for her

He said: “I have been blessed with an

husband Kevin after he contracted the

opportunity to ‘start over again’. To me,

neurological illness encephalitis in 2003.

I genuinely feel the ‘new me’ is a

Before his brain injury, Kevin was a 72


confident, family-oriented sportsman.

Kevin in my life and that's what I

But

want."

after

he

c o nt r a c t e d

viral

encephalitis (inflammation of the brain)

About A New Me

he could no longer walk or talk. Lorraine said: “I've had to learn to love a different man. There's an awful lot of Kevin still there but there are big chunks missing.

A New Me is designed to give a voice to people affected by brain injury – individuals living with brain injury, as well as family members/carers – in order to raise awareness of how lives and futures can change in an

he also knows he's got me, he's got the

instant.

children, so he knows he's very much loved and supported within the family unit and I think that's important.

A brain injury can challenge every aspect of you, including your very personality and what makes you.

Relationships

“He knows things aren't the same. But

“He had terrible depression in the beginning and very dark moods. It's changed him, it's changed me and it's changed us as a family unit. I'm mellower. I've had to be mum, dad, counsellor and stand up for Kevin, having to put myself and my needs to one side.

After suffering a brain injury, many people feel like a new person and their personality may be severely altered. This change of identity and personality can have a massive effect on them, and their loved ones, as they come to terms with the ‘new’ person they have become.

"It's not easy and it's not necessarily the life I would have chosen but I have 73


survivors and their stories from 11 countries – and growing! On our website survivors are able to share their unique experiences in brain injury recovery, photos, and read of others at the same time. Each survivor story provides hope

“Family – Tree”

and inspiration

for others

– and

The message “Not Alone” in the world of

representing the message “Not Alone”.

those touched by brain injury, can have

We are a family there for each other and

much more meaning than just words.

thankful for each and every survivor

The bitter-sweet is in the vast number of

who joins us – we share and we grow for

people

each other.

touched

with

brain

injury

needing these two words, and the incredible ability to bring hope and and

Many TBI One Love Family Tree

connecting with others touched by brain

members have their own non-profit

injury.

brain injury support organizations or

support

in

understanding

information on what was/is helpful for their journey, which also may give more The TBI One Love “Family Tree – Roots”

support or connection for others. Family

is a perfect example of the power of

Tree members have also been featured

Hope through connection with others

on TBI One Love Radio as special guests

and the sharing of unique journeys as

and also recognized in the recent “Share

brain injury survivors. TBI One Love

the Love” Mindful March campaign for

currently hosts over 250 brain injury

2017. 74


TBI

One

organization

Love

is

devoted

a to

non-profit providing

information, connection, and support through a positive and inspirational forum. Any survivor stories are welcome and we invite YOU to join the TBI One Love Family Tree!

https://www.facebook.com/ STLtbionelove/?ref=br_rs http://www.tbionelove.com/ family-tree-rooots

Together we can

make a difference and Share the Love for others touched by brain injury.

http:// www.blogtalkradio.com/ braininjuryradio

Relationships

A few members:

https://www.facebook.com/ TBIOneLoveJJ

75


and core strength and general well

RDA Riding for the

being. Also for people who are new to

Disabled Association The RDA is a riding school for disabled riders and is great for people to start riding there after a serious injury to use as a stepping stone to get them back slowly and safely to horse riding and need somewhere to start back in a

horses and exploring a new interest. They hold horse care sessions, carriage driving lessons the RDA also give the opportunity to compete at shows club level.

And

for

the

more

serious

competitor you can start if eligible under RDA Gradings become a PARA Rider

horses

which is graded 1 being severe disability

specifically trained for people with a

to 4 being slight disability impairment

relaxed

wide

environment

range

requirements

of

disabilities

Eg.

musculoskeletal

on

and

Brain

injuries,

,sensory

/balance

and get to compete at National and international competitions in Dressage and carriage driving and Para show

impairments and learning disabilities

jumping.

etc.

Local RDA centres give people an

They cater for people in wheelchairs and have a hoist to assist them onto the horse. They also have taller /wider

opportunity to become volunteers with the horses and also in the shop, cafĂŠ fundraising events etc. They also cater

mounting blocks for riders to mount /

for able bodied riders and give lessons as

dismount for people who have limited

this helps them bring in extra money for

mobility.

the centre.

Riding even for therapy purposes is

Jessica Norbury, UK, TBI Survivor

great for brain function, co-ordination 76


Book Review The Greatest Dot to Dot Classic Series by David Kalvitis Dot to Dot

have any pre-drawn lines so it’s not immediately recognizable. The book is well laid out and even explains the techniques to complete them

as

well as

a

little

bit

of

background. I tried it and found that it’s quite relaxing as all that is required is the ability to count and draw straight lines. It also helps with concentration. It’s for kids. Well not strictly true. There

Some sites that have printable Dot to

are many out there. They range from the

Dot:

ones that have very few dots to connect

www.allkidsnetwork.com/dot-to-dot/

as most of the image is already there, to

www.activityvillage.co.uk/dot-to-dots

the more advanced ones that just have the numbered dots. My wife Laura got me a dot to dot book which starts off quite easy (for normal

http://harddottodots.com/ https://monkeyingaround.com/ We give this book a ★★★★ rating

brains!) and gets more difficult the further in you get. The images don’t

Author, Phil Smith, UK, TBI Survivor 77


Movie Review I, Daniel Blake up and how easy it is to get ‘caught

up in red tape’. This movie outlines how someone's life can change overnight through illness / accident and turn from independent to finally deepening on the state. This highlights the real need for a ‘case

manager’ who can assist you through the process and how best to complete This is an interesting and entreating

forms.

film in which you experience nearly every emotion that a human is capable of. Anyone who has tried to negotiate the benefits system in the UK will draw parallels with how treacherous these

Anyone who is travelled down this road will identify with this film and I expect that it is similar in other countries as well.

waters can be. When you layer a long term medical condition on top of this the film

clearly

de m o nst r a t e s

ho w

We give this movie a ★★★★ rating

frustration and anger can quickly build 78


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This Magazine Helps Increase Awareness For These Organizations:

Profile for Sharon Marks

Health is Your Wealth Magazine ISSUE 3, 2017  

A self help magazine for people with a neurological condition plus their families. Article by therapists, leading charities and patients

Health is Your Wealth Magazine ISSUE 3, 2017  

A self help magazine for people with a neurological condition plus their families. Article by therapists, leading charities and patients

Profile for sharonm3
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