March 2024 Special Needs Living Magazine

Serving Stark, Summit & Portage Counties

PHOTO

“

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(client)

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“

has

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for my daughter for the past 6 years. The staff is very pleasant and extremely dependable.

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” They do a good job and are encouraging. They make me laugh and I love their outgoing personalities.

~Sarah (client)

OUR NEW ICF FEATURES:

· All female residents, ages 18 & up

· 6 individual rooms

· Located in a residential neighborhood within walking distance to parks, shopping, and church

· Large ADA bathrooms

· Washer and dryer on main level for independence

· Van on-site for transportation

· 24-hour nursing available, with staff trained in DD-specific, person-centered planning

WHAT IS AN INTERMEDIATE CARE FACILITY (ICF)?

GentleBrook offers seven locations in Hartville and West Lafayette. Adult residents living in our ICFs receive these benefits:

· 24-hour supervision and on-site nursing care

· Active treatment

· Therapeutic services

· Life skills mentoring & support

· Social & recreational activities

· Transportation to & from work and activities

· Respite services

Contact us! We’re committed to being a helpful resource for individuals and families who want more information about the advantages of an Intermediate Care Facility.

• Community Connections (PG 10)

• Just Saying Thank you (PG 14)

• Connect With Us (PG 17)

• Meet The Magazine Team (PG 18)

• Meet The Contributors (PG 19)

• Cover Story > Adaptive Sports Ohio (PG 24)

• Professional Perspective > The ABC’s of IEPs (PG 31)

• Henry Youngquist (PG 34)

• Professional Perspective >

• Montgomery

• Kristine

• Sponsor

rick.miller@n2co.com

Adaptive Sports Ohio

Alice Poirier

Adaptive Sports Ohio

Canton Palace Theatre

Henry Youngquist

Isabella Yoder

Monte Bigelow

Health, Hope, Happiness and Opportunity for All Children, Youth and Families

Positive Parenting Program

Positive Ways to Manage Everyday Challenges

Triple P Stepping Stones is an in-depth program recommended for families with significant problems at home.

• Offers 8 to 10 private sessions with a provider.

• Helps develop a wide range of positive parenting skills.

• Shares excerpts from the video Families with a Child Who Has a Disability.

• Includes the Stepping Stones Triple P Family Workbook.

• The classes are virtual and free!

This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!

ABA SERVICES

Applied Behavioral Connections

Kristen Maple (330) 309-3133

info@appliedbehavioral connections.com

ACCESSIBILITY & SAFETY MODIFICATIONS

JTEK Solutions Group, LLC

Jared Chevraux (330) 323-0943

www.jtekgroup.com

ACT PREP & TUTORING

Bright Minds Learning Academy

Sheila Lahoti (330) 966-7226

4900 Frank Rd. NW, North Canton, OH 44720

www.learnwithbrightminds.com

ADULT DAY SUPPORT

Next to Kin Supportive Services, LLC (330) 288-8450

www.nexttokinservices.com

ADULT VOCATIONAL SERVICES

CLW (330) 546-0057

www.theclw.com

ALL ABOUT LOCAL

The 8am Chapter of BNI (330) 283-8462

ANIMAL FENCE/TRAINING

DogWatch of Northeast Ohio

Donnie Myers (330) 915-6036

www.dogwatchneo.com

APPAREL

Sense-ational You (203) 505-5349

www.shopsenseationalyou.com

ASSISTED LIVING

The Wow Crowd (330) 445-4482

www.thewowcrowd.com

ATTORNEY, LAW FIRM

Lewis Law, LLC (234) 360-3203

www.ohioplanninglaw.com

AUTISM SUPPORT

Autism Society of Greater Akron (330) 940-1441

www.autismakron.org

BEHAVIORAL HEALTH

Child & Adolescent Behavioral Health (330) 454-7917 x145

www.childandadolescent.org

BOOKKEEPING/ACCOUNTING

Paragon Accounting and Business Services, Inc. (330) 575-2291

www.paragonabs.com

CHURCH

First Christian Church (330) 456-2600 x2530

www.firstchristian.com

The Chapel in Green

Amy Troyer (330) 315-5501

www.facebook.com/greenspecialneeds

COFFEE SHOP

Whole Latte Love Cafe

Beth Humbert (234) 360-2233

www.wholelattelovecafe.org

COMMUNITY EVENTS

The Wow Crowd (330) 445-4482

www.thewowcrowd.com

COMMUNITY SERVICES

Bala Management, LLC (330) 758-8418

www.balamgnt.com

CONCRETE CONTRACTOR

Creative Concrete & Stone (330) 289-3885

www.creativeconcreteohio.com

COUNTY DISABILITIES BOARD

Portage County Board of Developmental Disabilities (330) 297-6209

www.portagedd.org

Stark Board of Developmental Disabilities

Lisa Parramore (330) 479-3934

www.starkdd.org

Summit DD (330) 634-8881

www.summitdd.org

CUSTOM DRAPERY & BLINDS

Stocks Draperies (330) 452-9008

www.stocksdraperies.com

DEVELOPMENTAL DISABILITY CARE

Shepherd’s Hand Inc (330) 327-3621

www.shepherds-hand.co

The Workshops, Inc Rachel Doty (330) 497-3399

www.choosetwi.com

DIGITAL RESOURCES

Michael Seemann - Digital Marketing Specialist (216) 288-2061

www.thryv.com/near-me/ michael-seemann

DISABILITY RESOURCES

REM Ohio, Inc Jo Spargo (330) 644-9730

www.rem-oh.com

DISABILITY SUPPORT SERVICES

United Disability Services (330) 762-9755 x231

www.udsakron.org

EDUCATION SERVICES

Education Connection Services, LLC (330) 323-1654

www.autismconnected.com

Jason’s Place

Melissa Hadnett (234) 714-9815

Facebook

Red Line Advocacy (234) 678-9622

www.redlineadvocacy.com

EMPLOYMENT/STAFFING

Express Employment Professionals (330) 239-8709

www.expresspros.com/cantonoh

EQUESTRIAN CENTER

Pegasus Farm

Shelley Sprang (330) 935-2300

www.pegasusfarm.org

EVENTS / WEDDINGS

Emily Berg Weddings (330) 353-8152

www.emilyjuneberg.com

FURNITURE - AMISH

Dutch Craft Furniture (330) 893-4041

www.dutchcraftfurniture.com

GIFT SHOP

The Frog Shop (330) 833-3764

HEALTH CARE

Circle of Life Healthcare (330) 221-9114

Facebook

HEALTHY LIVING

Bohemian Mama (330) 936-4645

www.thebohemianmama.guru

HEALTHY MEAL PLANNING/ DELIVERY Compassion Delivered (330) 575-0996

www.compassiondelivered.org

HOME CARE SERVICES

SafeInHome - Ohio (740) 207-5800

www.safeinhome.com

HOUSE OF WORSHIP

Harvestime Temple (330) 877-6544

www.harvestimeonline.org

HVAC

Henry Heating Cooling & Plumbing (330) 364-5571

www.henryheating.com

INDEPENDENT PRIVATE SCHOOL

Wings of Change Therapy Inc (234) 334-0044

www.wingsofchangetherapyinc.com

INSURANCE AGENT

American Family - Richard Corns

ITALIAN ICE/CATERING

Kona Ice of Central Canton (330) 398-0120

www.kona-ice.com/local-site/ kona-ice-of-central-canton

JOB PLACEMENT SERVICES

Creative Rehab (330) 806-0497

www.creativerehab.info

n2co.com

Independent Employment Services

Malcolm Porter (330) 388-5778

www.independentemploy.com

LANDSCAPING

Campbell Landscaping (330) 933-9091

www.campbelllandscaping.com

LIBRARY

North Canton Public Library (330) 499-4712

www.ncantonlibrary.org

MARTIAL ARTS

Premier Martial Arts (330) 889-8017

premiermartialarts.com/northcanton/

NON-PROFIT

GentleBrook

Francie Kell (330) 877-7700

www.gentlebrook.org

Teammates Center (234) 571-5876

www.teammatescenter.org

NON-PROFIT ORGANIZATION

GiGi’s Playhouse Canton

Megan Vance (330) 493-9114

www.gigisplayhouse.org/canton

DISCLAIMER:

The Down Syndrome Association of Northeast Ohio (216) 447-8763

www.dsaneo.org

PLUMBING

Henry Heating Cooling & Plumbing (330) 364-5571

www.henryheating.com

POOL WATER DELIVERY

Strouble Water Hauling (330) 877-6795

www.stroubletrucking.com

PRIVATE SCHOOL

The Golden Key Center for Exceptional Children

Gina Bannevich (330) 493-4400

www.goldenkeyschool.com

REAL ESTATE

eXp Realty: The Amy Wengerd Group

Amy Wengerd (330) 681-6090

www.amysguarantee.com

REMOTE SUPPORT SERVICES

TruCare Provider Services (513) 201-5611

www.tcpsinc.org

SPECIAL EVENTS

Night to Shine

(330) 456-4797 x104

www.nighttoshinecanton.com

SUPPORT GROUP

Sharing Solutions

www.sharingsolutions.info

SUPPORT SERVICES

Ultimate Beginnings (330) 284-9394

Facebook

TRANSPORTATION

CYC TRANSPORTATION (330) 253-3141

www.cityyellowcab.com

TRANSPORTATION PROVIDER

Clearview Developmental Services

Dean Miller (330) 224-4403

Facebook

KBY Services (330) 327-7462

LED Transportation (330) 224-4100

ledtransportation.com

ZOO

Akron Zoo (330) 375-2550

www.akronzoo.org

Must Know Community Resources & Connections

Need to know who to connect with to ask a question? This is where you find out who you need to know!

Akron Blind Center

Phone: 330-253-2555

Website: www. akronblindcenter.org

The Akron Blind Center Inc. is a membership-based nonprofit organization incorporated in 1948 to serve the blind and lowvision communities. They also provide resources, programs, services and classes for Summit and surrounding counties.

Have a suggestion for an important connection that could be added to this page? Email your suggestion to rick.miller@n2co.com.

Akron Children’s Hospital

Phone: 330-543-1000

Website: www. akronchildrens.org

Akron Children’s Hospital has been caring for children since 1890, and its pediatric specialties are ranked among the nation’s best by U.S. News & World Report. With two hospital campuses, four health centers, and 50+ primary and specialty care locations throughout Ohio, they’re making it easier for today’s busy families to find the high-quality care they need.

Arc of Ohio

Phone: 234-571-5689

Website: www. thearcofohio.org

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Autism Society of Greater Akron

Phone: 330-940-1441

Website: www. autismakron.org

The Autism Society is the nation’s oldest and largest grassroots autism organization committed to improving the lives of those affected by autism. The Greater Akron affiliate was founded in 1987 by parent volunteers of children with autism.

Bureau of Services for the Visually Impaired (BSVI)

Website: www.ood.ohio.gov/ individuals-with-disabilities/ services/services-forthe-visually-impaired

Medina, Portage, and Summit Counties

Phone: 330-643-3080

Carroll and Stark Counties

Phone: 330-438-0500

BSVI assists eligible people, beginning at age 14, with low vision and blindness by providing direct, personalized services to assist them in finding and retaining meaningful work and personal independence. Basic services include personal and work adjustment training, vocational training, mental and physical restoration, and placement assistance.

Call 211

Phone: 211

Website: www.211.org

Serving four counties and covering 1.5 million people in Ohio, the United Way 2-11 Help Center provides free and confidential 24-hour access to a compassionate professional who will review your options for help, develop a plan and act as your advocate if you are faced with barriers to service. Simply dial 2-1-1 or chat with us for assistance. Se habla Espanol.

Compassion Delivered

Phone: 330-575-0996

Website: www. compassiondelivered.org

Compassion Delivered provides medically tailored nutritional meals to people coping with chronic, life-threatening illnesses and diseases.

Down Syndrome Association of Northeast Ohio

Phone: 216-447-8763

Website: www.dsaneo.org

The Down Syndrome Association of Northeast Ohio is a nonprofit that provides support, education, advocacy, and resources for individuals with Down syndrome, their families and the community.

Greenleaf Family Center (Deaf and Hard of Hearing Services)

Phone: 330-376-9494

Website: www. greenleafctr.org

Greenleaf is a nonprofit organization that strengthens families in our community through counseling, education and support. By offering a variety of programs and services, we are here to help families with the many challenges of daily living and personal crises.

Help Me Grow

Phone: 330-492-8136

Website: https://odh. ohio.gov/know-ourprograms/help-megrow/help-me-grow

Help Me Grow is Ohio’s evidence-based parent support program that encourages early prenatal

and well-baby care, as well as parenting education to promote the comprehensive health and development of children. Help Me Grow System includes Central Intake, Help Me Grow Home Visiting, and Help Me Grow Early Intervention.

Ohio’s Parent Mentor Project

Phone: 844-382-5452

Website: www. parentmentor.osu.edu

It is the mission of the Ohio Parent Mentors to provide the necessary support and resources to families of children with disabilities and the professionals that serve them by connecting families, schools, and the community to the benefit of students with disabilities.

Ohio Coalition for the Education of Children with Disabilities

Phone: 844-382-5452

Website: www.ocecd.org

The OCECD is a statewide nonprofit organization that serves families of infants, toddlers, children, and youth with disabilities in Ohio, educators, and agencies who provide services to them.

Ohio Department of Medicaid

Phone: 800-324-8680

Website: www. medicaid.ohio.gov

The ODM provides health care coverage to more than three million Ohioans through a network of more than 165,000 providers. Learn more about Ohio’s largest state agency and the ways in which they continue to improve wellness and health outcomes for the individuals and families served at our website.

Ohio Dept of Job and Family Services

Phone: 800-720-9616

Website: www.jfs.ohio.gov

The Ohio Department of Job and Family Services (ODJFS) is responsible for managing many vital programs that directly affect the lives of Ohioans.

Ohio Developmental Disabilities

Planning Council

Website: www.ddc.ohio.gov

Phone: 800-766-7426

The Ohio Developmental Disabilities Council is a planning and advocacy body committed to community inclusion for people with developmental disabilities. It is the mission of the ODDC to create change that improves independence, productivity, and inclusion for people with developmental disabilities and their families in community life.

Opportunities for Ohioans with Disabilities

Phone: 800-282-4536

Website: www.ood.ohio.gov

This state agency works to empower Ohioans with disabilities through employment, disability determinations, and independence. Amoung the

many services provided, OOD is responsible for establishing and maintaining partnerships with employers.

People First OF Ohio

Website: www. peoplefirstohio.org

People First of Ohio is a statewide organization that works with state legislators and builds relationships with other advocacy groups and state agencies. These relationships promote better interaction among people who make decisions in the communities and the state.

Philomatheon Society of the Blind

Phone: 330-453-9157

Website: www. philomatheon.com

This organization is a gathering of blind and visually impaired people, along with sighted family and friends, with a mission and goal to help the blind and visually impaired in the community to help themselves to remain or to become able to live independently and an active member of their community.

Portage County Board of Developmental Disabilities

Phone: (330) 297-6209

Website: www. portagedd.org

The Portage County Board of Developmental Disabilities exists to connect individuals and families with the services they need for health, safety, education and a high quality of life.

Red Treehouse — Ronald McDonald Family

Website: www. redtreehouse.org

Supporting the well-being of families and children with challenges, disabilities, and health care needs. Finding tools, organizations, and events in the community to meet the needs of families.

Sharing Solutions

Phone: 330-546-2001

Website: www. sharingsolutions.info

A community of parents/ guardians of individuals from transition to adult age with Intellectual and Developmental Disabilities, professionals who serve the IDD community, caregivers, and policymakers. The

focus is to provide information, support, and assistance to all. Everyone is encouraged to play an active role in sharing their resources, knowledge, and experiences.

Social Security Administration — Akron

Phone: 800-772-1213

Website: www. secure.ssa.gov

Social Security Administration — Canton

Phone: 877-255-1509

Website: www. secure.ssa.gov

The Social Security Administration assigns Social Security numbers and administers the Social Security retirement, survivors, and disability insurance programs. They also administer the Supplemental Security Income program for the aged, blind and disabled.

Stark County Board of DD

Phone: 330-477-5200

Website: www.starkdd.org

Stark DD connects individuals and families

with the services persons with developmental disabilities need for health, safety, education and quality of life.

Summit County Developmental Disabilities Board

Phone: 330-634-8000

Website: www. summitdd.org

Summit DD offers early intervention programs for infants and toddlers with developmental delays, as well as transition services for students with developmental disabilities to vocational, habilitation and retirement programs for adults.

TRIAD Deaf Services

Phone: 330-768-7272

Website: www. triadds.org

TRIAD Deaf Services Inc is an agency providing services to the deaf community in Stark, Carroll, and Tuscarawas Counties. They provide support services, interpreting, leadership, deaf advocacy and education.

Just Saying Thank you.

These local businesses are supporting our community in a big way! The businesses shown on this page are those committing financial support to local community resources that couldn’t afford to advertise in Akron & Canton Special Needs Living magazine on their own. Feel free to repay the generosity these local business owners are showing by giving them a Like and Follow on Social Media, a Review on Google or Facebook or if you have a need that can be met by one of these businesses, give them a call. I’m sure they will be thrilled to serve you!

www.campbelllandscaping.com — andy@campbelllandscaping.com

(Supports: Whole Latte Love Cafe)

BRANDI PINE

www.expresspros.com/cantonoh — brandi. pine@expresspros.com

(Supports: First Christian Church)

MONICA RANKIN

www.paragonabs.com — monica@ paragonabs.com

(Supports: GiGi’s Playhouse)

www.stroubletrucking.com — Stroubletrucking@yahoo.com

(Supports: GiGi’s Playhouse)

DEAN MILLER

www.facebook.com/clearviewdsi — clearviewdsi@gmail.com

(Supports: Sharing Solutions)

JENNA CAMPANA

https://stocksdraperies.com/ jenna@stocksdraperies.com

(Supports: Compassion Delivered)

ANDY CAMPBELL

BETH STROUBLE

The Amy Wengerd Group

Connect With Us!

Scan the QR Code to follow our socials, subscribe to our free digital magazine, nominate a friend or family member, view previous magazines, and more!

Special Needs Living Magazine is a publication dedicated to sharing inspiring stories of individuals with disabilities across all ability levels. Through insightful features, the magazine aims to illuminate the triumphs, challenges, and extraordinary accomplishments of people living with special needs. In addition to showcasing the resilience and achievements of individuals, the magazine also highlights the organizations and compassionate individuals who play pivotal roles in supporting and serving the special needs community. With a commitment to fostering understanding, inclusivity, and empowerment, Special Needs Living Magazine serves as a celebration of the diverse capabilities and contributions of those with disabilities.

Meet the Magazine Team

SHELLEY HARKNESS Scheduling Assistant

RICK MILLER Owner

MIKE STURDIVANT Content Director

MICHELLE HERDLICK Photographer

MELISSA KLATT Writer

JULIAN CURET Photographer

DEBORAH RILEY Writer

DAVE KELLER Client Services

ANDREA HURR Writer

JOHN WESTON Ad Manager

Paul Herrera

Hope Homes Foundation Inc.

Paul Herrera is the Chief Executive Officer at the Hope Homes Foundation. While Paul has been in his current position for 6 and a half years, he has over 47 years of experience serving people and families with Intellectual and Developmental Disabilities. In addition to his role with the Hope Homes Foundation Paul also is a surveyor for CARF, a member of organizations such as AAIDD, ASA, as well as the Midwest Affordable Housing Management Association.

Rebecca McClary

Parent Mentor Solutions

As a special needs mom, Rebecca seeks opportunities to connect with other parents on similar journeys. Her journey started nine years ago, when her daughter was born prematurely. She is a parent advocate, specializing in guiding parents through the challenges of IEPs, 504s, and school accommodations for children with disabilities. Rebecca jokes that she uses her Communication Degree, from Kent State University, as a navigation tool through thousands of medical appointments, therapies, and school meetings. She resides in Stark County, Ohio with her husband, two children, and three dogs. She loves Jesus, reading, boating, and spending time with family and friends. Also notable, she hates winter.

Portage County Board of DD

The Portage County Board of Developmental Disabilities, established in 1967, has been committed to serving individuals with developmental disabilities in Portage County. Embracing the philosophy that greatness exists within every individual, they focus on fostering supportive interactions across their staff, service recipients, providers, stakeholders and the wider community. The organization’s services, extending across lifespans, are sustained by continuous support from Portage County citizens through the Board’s levies. A dedicated seven-member Board, consisting of individuals with diverse professional expertise and strong connections to those eligible for services, not only guides their mission but also mirrors the rich diversity of the community they serve.

Dr. Kristine Turko, BCBA, COBA

The University of Mt. Union

Dr. Turko is a professor of psychology and the director/founder of the Spectrum Education Center at the University of Mount Union. Kristine is a Board Certified Behavior Analyst and is licensed to practice in the state of Ohio. She joined the faculty at Mount Union in 2006, after earning MS and PhD degrees in Psychology at Lehigh University, and a BS degree in Psychology at Drexel University. Kristine’s work at the Spectrum Education Center includes autism intervention, undergraduate training in the field of autism, professional development, and supporting area school districts. Her research interests include: best practices for autism intervention in adult populations and effective autism intervention training and education for undergraduate students. Kristine lives in Canton with her husband and daughter. She enjoys being outdoors and cooking.

MEET OUR CONTRIBUTORS

THE EXHIBITORS REPRESENTED WILL INCLUDE:

• HCBD Waiver Providers

• Community Recreation

• Mental Health

• Medical & Nursing

• Disability Ministry

• Assistive & Supportive Tech

• Community Services

• Higher Education.

SPECIAL NEEDS RESOURCE FAIR

Saturday Apri 13th 2024 from 10 am - 2 pm

First Christian Church 6900 Market Ave N. Canton, Ohio

This is an opportunity for parents and professionals to discover the resources that Stark County has to offer our Special Needs Community.

Also known as worm castings, vermicompost enriches the soil and can be used as a high grade natural organic fertilizer

DEVELOPMENTAL SERVICES

TWi is a regional disability service provider with several locations throughout Northeast Ohio. Our mission: We nurture skills that foster independence and empower all to live their best lives.

TWi People Programs

· HPC Services: help participants manage day-to-day care and to participate in their communities.

· Day Services: provide pre-employment and vocational habilitation opportunities as well as recreational and leisure activities.

· Transportation Services: help participants maintain independence and stay connected within the community.

· Employment Services: assess each individual to discover and build on strengths and connect them with the right opportunities.

BREAKING BUILDING

DREAMS BARRIERS

ADAPTIVE SPORTS OHIO EMPOWERS THROUGH INCLUSIVE SPORTS

BY MELISSA KLATT PHOTOS BY MICHELLE HERDLICK

PICTURE

A community where everyone, regardless of their physical or visual abilities, has a chance to play and shine through the power of sports. Enter Adaptive Sports Ohio, a beacon of warmth and inclusivity in Ohio, making dreams come true and barriers crumble. Through community-based sports, interscholastic sports, and their super-cool Everyone Plays Kits, they’re not just changing lives – they’re creating a family where everyone belongs.

COMMUNITY-BASED SPORTS: SPORTS FOR ALL, WHERE AGE IS JUST A NUMBER

Adaptive Sports Ohio doesn’t just organize sports; this organization creates communities. Their community-based sports programs are like a big sports family reunion, with locations scattered across Ohio. Whether you’re into wheelchair basketball, track and field, tennis, cycling, or power soccer, they’ve got something for everyone. It’s not about your age; it’s about the joy of playing together and celebrating victories, big or small.

INTERSCHOLASTIC SPORTS: WHEELCHAIR BASKETBALL, TRANSFORMING SCHOOLS

Let’s talk about interscholastic sports – specifically, wheelchair basketball. It’s not just about the

game; it’s about shaping futures. Adaptive Sports Ohio doesn’t stop at providing equipment; they’re in the trenches, training coaches and helping schools kickstart their own wheelchair basketball teams. From a small pilot program in 2015, they’ve bloomed into a full-fledged league with 13 teams in 2023-2024. Now, students with disabilities aren’t just watching from the sidelines; they’re scoring points, representing their schools, and making memories.

EVERYONE PLAYS KITS: MAKING PLAYTIME INCLUSIVE FOR ALL KIDS

Who says playtime is only for some? Adaptive Sports Ohio disagrees. They’ve rolled out the Everyone Plays Kits, a genius move to ensure kids in grades K-6 with physical disabilities or visual

They’ve rolled out the Everyone Plays Kits, a genius move to ensure kids in grades K-6 with physical disabilities or visual impairments get their fair share of playground fun.

impairments get their fair share of playground fun. Imagine free kits with sports gear and activity cards, teaching kids the ropes of play. No more sidelines; it’s all about active participation and spreading smiles.

“Our dream is to let kids with physical disabilities across the state have a chance to play,” Lisa Followay, the powerhouse behind Adaptive Sports Ohio, beams excitedly.

CHAMPIONING DREAMS, ONE WHEELCHAIR BASKETBALL GAME AT A TIME

Now, let’s talk championships! Adaptive Sports Ohio hosts the annual state wheelchair basketball championship – a stage where students with disabilities showcase not just their basketball skills but their spirit. Wooster has been rocking it with five consecutive state championships, but Austintown is gearing up for a slam dunk win in 2024. The 2024 championship will be hosted on March 9th at 5:00pm at the University of Akron’s JAR. It’s not just about winning; it’s about proving that interscholastic wheelchair basketball is the gamechanger these kids need. Through laughter, cheers, and a whole lot of heart, Adaptive Sports Ohio is tearing down walls, one sports event at a time.

What does Adaptive Sports Ohio do for you to take the first step in inquiring about this program for your school district? As the lead on this initiative, Adaptive Sports Ohio provides the following to school districts at no cost to ensure the program is successful:

• Management, implementation, and coaching of teams as needed by the school district.

• In-depth training to the district coach.

• Organization of the season schedule.

• Assistance to the athletic director for arranging home games.

• Specialized sport wheelchairs ($4,000 each) and a 6×12 enclosed trailer for transporting the chairs to competitions as needed.

• Ongoing equipment maintenance and repair.

• Quick access to staff support throughout the season.

• Rule implementation and league oversight.

• Track and record team and player statistics.

• Fund and host the annual state wheelchair basketball championship.

To dive into this world of inclusivity and learn how your school district can jump on the sports bandwagon, shoot a message to Adaptive Sports Ohio at info@adaptivesportsohio.org. Get ready to break barriers, make friends, and let the magic of sports touch every corner of Ohio!

If you are interested in learning more about this program for your loved one to participate in their school district, check out their informational video at https://www.youtube.com/ watch?v=0cCRF5Uk5Wo

The WOW Crowd

Individuals have access to fun and interactive daily and weekly trips!

Local: Bowling, Breakfast out and about, Pumpkin Patch, Vineyards, Zoo, Plays, Fairs, Etc.

In State: Cleveland Rock and Roll Hall of Fame, Mentor on the Lake, Geneva on the Lake, Columbus- Zoo, German Town, Eaton, Sandusky - Cedar Point, Kalahari, CincinnatiKings Island, Zoo, Etc.

Out of State: Pa- Hershey PA, Buffalo NY, Orlando Fl- Disney, Etc.

Out of Country: Cruise Time - Mexico, Eastern Caribbean, Western Caribbean, Disney Cruise And Much, Much More!

Daily Focus'

TEAMMATES CENTER LLC

Monday- Money & ME (Self advocacy)

Tuesday- Talking & Technology Skills

Wednesday- What's Happening & Workout Skils

Thursday- Cooking (tasty) & Safety Skills

Friday- Funday Activities

Non-Medical-Transport (NMT)

Teammates Center offers Transportation for individuals in many cities who attend Teammates.

Volunteer Job Activities

Teammates Center has many non-paid volunteer job opportunities for individuals who attend Teammates. The VOC-HAB program focus' on individuals who are close to getting jobs and helps improve their skill set by volunteering at sites for an extended period of time to help improve their work stamina.

Soft Skills

Funday Friday

Teammates Center offers activities to bowling alleys, putt putt courses, the zoo, pumpkin patches, art museums, swimming pools, and many other activities chose by individuals who attend Teammates Center.

Vocational Habilitation (VOC-HAB)

Teammates Center Provides Vocational Habilitation Services for your Teammate to better their job skills

Teammates Center

Teammates Center helps individuals focus on job skills by doing mock interviews, practice job applications, community based volunteer sites, to help improve the skills of your teammate to increase their chances of getting a job of their choice.

Adult Day Services (ADS)

Teammates Center Provides Adult Day Services for your Teammate improve their independence.

323 S Main St, Munroe Falls, Suite 1 Ohio 44262

(234) 571-5876 • http://Teammatescenter.org

VOC-HAB Recorded Data

Teammates Center keeps records/data of each individual to track the improvement in areas such as quality of work, stamina, communication. We individualize our support to meet the need of the person served. Our goal is to increase the independence of the people coming to Teammates so they can gain competitive employment.

Volunteer Activities

THE END OF YEAR chaos is on our heels and the IEP session will be here before you know it. Most IEPs are due for re-evaluation come spring (see your child’s IEP for individualized date). This is a great time to discuss any concerns and plans for the upcoming year. Let’s take a look at ways you can prepare for your child’s annual IEP team meeting.

Once you have a scheduled meeting, make sure everyone you want in attendance is planning to attend. It may be necessary to bring your child’s counselor or outside (private) therapist. If you are working with a parent advocate, give them as much notice as possible so you have ample time to discuss changes or questions about the IEP. When preparing for the meeting, remember YOU ARE PART OF THE TEAM! This is a great time to review your child’s most recent IEP

Meetings IEP

BY REBECCA MCCLARY

progress report and generate questions or new goal ideas. If your child is struggling with a goal, think about ways to change the current goal.

If your child has mastered a goal, come up with ideas for a new goal in that category.

For goals that your child is on track with, make sure you have a clear understanding of any obstacles that are holding them back from further progression. I know these meetings can be intimidating and hard to follow, but think of it as an opportunity to get a clear picture of your child’s goals. The more you know, the more you can advocate for your child. Another key component of this annual meeting is to discuss eligibility of ESY services (extended school year). ESY services can be challenging to get approved. Students have to meet certain criteria to continue their IEP services throughout the

summer break. The biggest component of ESY eligibility is documented proof of regression in learning after a break. I went into more detail about this in a previous article as well. This is a prime example of why I consistently recommend: document, document, document … data, data, data!

Another HUGE discussion at annual IEP meetings is transitions. If your child is transitioning to a new building or going from a single teacher to multiple teachers the following year, you want to make sure there is a documented plan for transition. Some ideas may include: meeting teachers one-on-one before the start of school, having extra time to walk through a schedule, being able to practice a locker combination, and touring the lunchroom, playground or music room. Generate a list of places or events that may trigger your

child’s disability and make a plan to help calm those reactions before they ever happen. Another suggestion is to ask your child’s current teacher(s) if there are any helpful accommodations they have been providing but aren’t listed on the current plan. Some teachers are just amazing and find things that work well for our kids. But if these accommodations are not listed on the IEP, they may go unused the following year by a new teacher.

Lastly, don’t forget to breathe. After you write a list of questions/ suggestions, put a reminder to yourself to breathe. Talk slowly. Take time to take notes. No question is a stupid question. Don’t be afraid to tell the team you need some time to think about the plan. You know your child best … better than anyone else.

You’ve got this!

The Adventures of a Little Explorer!

We are off to the Medina Public Library with

Henry Youngquist

BY DEBORAH RILEY PHOTOS BY JULIAN CURET

Amidst the faint clinking of baseballs off bats and cheering crowds, on a beautiful summer day, you can find 4-year-old Henry Youngquist playing in the backyard of his Montville Township home on his special adaptive swing. Henry loves to spend time outside and explores the neighborhood while riding in his BOB stroller as his father pushes him while he runs. While he waits for the warmer weather of spring and summer, you can find Henry visiting his favorite place, the Medina Public Library. There Henry loves to sit on the big chairs of the children’s section watching the traffic go by through the giant windows.

Henry, who has SCN8A-related epilepsy, experienced his first seizure and subsequent ambulance ride and overnight hospitalization at 6-weeks-old. During that stay, doctors misdiagnosed Henry as having reflux. The Youngquists were able to capture a video of Henry’s seizure activity that they were able to show to their pediatrician who referred them to Akron Children’s Hospital where he was able to have genetic testing done to confirm the SCN8A-related diagnosis.

The first few months of life were incredibly stressful for Henry’s family. His parents took turns watching Henry around the clock for seizures.

They had set up the Pack N Play in the living room with a stopwatch so that they could time the seizures and give emergency rescue medication when necessary. Henry’s care became so intense, his grandmother came from Wisconsin and moved in with the family to assist with his round-theclock care. So many times, his seizures resulted in 911 calls with overnight stays at Akron Children’s while doctors worked to adjust his medications. Despite his regimen of multiple anti-epileptic medications, Henry still has frequent seizures. His seizures can occur multiple times per day and sometimes are prolonged or clustered.

Special thank you to Henry’s favorite place the Medina Public Library for letting us use their location for our photoshoot!

Learning about Henry’s diagnosis in March of 2020 was a time of uncertainty. His SCN8A mutation was “De Novo”, meaning that the mutation was not inherited from his parents. Michelle, his mom, says,

Henry also has global developmental delays. Over this past year, Henry has learned to walk short distances independently but typically uses a jogging stroller or wheelchair to get around. He is non-verbal, so his family is working with his care team to obtain an AAC device to assist him with better communicating his wants and needs. Recently, he started a ketogenic diet for epilepsy and utilizes a G-tube for his medications, which he receives four times a day.

“I remember googling “SCN8A” that day in the hospital and crying as I clicked and read through link upon link in the search results. That day, I sent an email to The Cute Syndrome Foundation, and that same day, I received a compassionate follow-up reply from Shelley from the Cute Syndrome Foundation. I joined a Facebook support group for families of children diagnosed with SCN8A related epilepsy that same day. That Facebook support group has become a lifeline of support for our family.”

The Youngquist family is so grateful for the support of their extended family (Steve and Kathy Kornder,

Nicole Kornder and Don Olsen, Lowell and Judy Youngquist, Alex, and Lexi Youngquist), his amazing care team at Akron Children’s Hospital, Cincinnati Children’s Hospital as well as his pediatrician Dr. Roach, his teachers, nurses, and therapists at Helping Hands Preschool. Michelle says, “We are forever grateful for everyone who is a part of Henry’s team.”

Despite the challenges he faces with his epilepsy, Henry is an active little boy! He loves his trips to the Medina Public Library, playing at Mugrage Park, and going on adventures with his little brother, Charlie, with the organization “A Kid Again” which organizes “adventures” that the whole family can go on! He also loves his Baby Einstein light-up piano and his gumball machine. With Henry’s loving family and caring support team, we can be sure that we will continue to see him grow from the adorable little boy he is into a thriving young man.

For more information on The Cute Syndrome Foundation, you can visit: https://www.thecutesyndrome.com/ For more information on A Kid Again, you can visit: https://akidagain.org/ chapter/northern-ohio-chapter/

Muscle Tone

BY BECKY ALLEN

Muscle tone is a bit like the internet. No one really understands how it works but we all use it. Tone is hard to explain and very few people understand it. Muscle tone is extremely complicated because so many parts come into play when determining one’s tone. For this reason, I am going to ATTEMPT to explain it in a way that is understandable, but not 100% accurate because, quite frankly, that would take a novel. Abnormal muscle tone is not actually a deficit of muscle but a neurological problem.

To explain muscle tone, first, we need a brief anatomy lesson. Our muscles are made up of a bunch of muscle filaments called sarcomeres. These sarcomeres are like strands of a rope. When a nerve signals the muscle sarcomeres to tighten the muscle will contract. When the nerves tell the sarcomeres to move farther away from each other or stretch out past the resting state the muscle will elongate. At rest, there is a tension or pulling force between each sarcomere. This resting tension is called tone. Even when we are sitting on

the couch completely relaxed our muscles still have tension.

If the nerves are signaling too much and the sarcomeres are being pulled on tightly, the muscle has high tone, and this is called hypertonia. Think of a brand-new hair rubber band that is hard to stretch around your hair. If the muscle fibers are too loose and the tension is low, this is called hypotonia. Think of an overstretched hair tie that is loose and flimsy. Typical tone has muscle fibers that are spaced out exactly right creating the perfect tension and optimal starting point for a muscle contraction. That last part is important. Typical tone, or tone that is in the middle of the spectrum is the OPTIMAL starting point for a muscle contraction.

When a muscle contracts the muscle fibers always must first go to the “optimal” tension or starting point. So, in a muscle with high tone, first, the fibers need to relax back to optimal tension and then contract. This requires extra energy and effort. For a muscle with low tone, the muscle fibers must first tighten all the way from its over-

relaxed position to the optimal starting point and then it can contract. (See Figure 1) All this extra work requires extra energy and effort. So, children that have low or high tone will utilize more energy than those typical tone. This is one reason children with abnormal tone fatigue easily and have difficulty moving their body.

We are all born with a specific amount of tone that cannot be changed. The diagnosis of hypertonia or hypotonia occurs when a person’s tone is out of the normal range. Our muscles can get stronger or weaker, but the tone will remain the same. The ligaments and connective tissues that hold our body together may get looser or tighter, but our tone

will remain the same. With time and practice a child may learn to move their body more effectively and efficiently, but the tone will remain the same.

Strength is often confused with tone. People often assume that low tone means weaker muscles and high tone means stronger muscles. But muscle strength is the amount of force an active muscle can produce against resistance. Whereas muscle tone is the level of tension at rest. Tone is passive. A person with low tone can still actively produce force against resistance and still create a strong contraction. And conversely, children with high tone can have weakness, especially in the areas of range that they do not use often.

This brings me to common issues that arise in children with abnormal tone. The biggest issue for hypertonia is a loss of range of motion of the joints. It is the use it or lose it theory. When our ligaments/tendons/capsules do not regularly stretch to their full available length they become stiff and brittle which contributes to joint contractures. When this happens, we typically need intervention to regain full range of motion. Consistent physical therapy, bracing,

medications like Botox or Baclofen, or a combination or even a surgical intervention may be necessary. Children with low tone have difficulty with postural control and are often considered “slouchy” or “floppy.” They often require bracing to assist their body for support against gravity or weight bearing.

A common issue for children with either low or high tone is that they may have difficulty “grading” movements. Meaning they have trouble making small, controlled movements. They tend to often under or overestimate the amount of force needed to produce movements. This is because the “receptors” or the sensors in our body that tell our brain exactly how much force is needed are located in the muscle and its tendons.

Treatment for children and adults with atypical tone is truly a juggling act between therapy, pharmacological, and neurosurgical involvement. Communication between doctors, the patient, and the patient’s caregivers is an important and often overlooked component. And because a person’s tone never changes, interventions may be necessary throughout a person’s lifetime.

Strength is often confused with tone. People often assume that low tone means weaker muscles and high tone means stronger muscles. But muscle strength is the amount of force an active muscle can produce against resistance. Whereas muscle tone is the level of tension at rest.

—BY BECKY ALLEN

Nothing Compares 2 U Laughing in the Purple Rain with Monte Bigelow

BY ANDREA HURR • PHOTOS BY JULIAN CURET

When you have a child with an intellectual and developmental disability, finding resources to ease your fears and coming up with creative ways to soothe your child are some of the top priorities you face. Tracy and Kip Bigelow, parents to Montgomery (Monte) have succeeded in these areas and learned a thing or two over the last 27 years.

Monte was born with cerebral palsy and has the brain functions of an 18-month-old. She is also blind, has epilepsy, behavioral issues, and is nonverbal. “One of our greatest challenges that we have experienced is her being nonverbal,” says mom Tracy. “We have learned to communicate in our own special way but it can be very overwhelming and frustrating when you know there is a problem, but she cannot communicate to you what is wrong.” This is how they discovered Monte’s love for music and just how important it is to her. “We have learned that music is very helpful to Monte, it has become a very big part of her life,” says Tracy. She goes on to

“We have learned that music is very helpful to Monte, it has become a very big part of her life,”

—TRACY

say that if Monte is having a hard time, playing music, especially by Prince, turns her around and calms her down. The music by Prince worked so well that they made a special “Prince” room in their house where Monte loves to go to hang out and listen to his music. Besides her love for Prince, she loves all types of music and musical toys which help relieve her during difficult times.

Quoted as “our greatest resource throughout the years,” The Summit County Board of Developmental Disabilities (Summit DD) has been a huge asset to Monte and her family. Monte’s SSA (Service & Support Administrator), Alison Taylor, has been a godsend. Through the Summit DD, they have learned so much and attended classes and workshops to help them better care for their daughter. Tracy states that there are so many resources available, especially with the ease of finding things on the internet, however, she suggests reaching out to your local board of Developmental Disabilities as one of your first

steps towards receiving help with your child’s special needs diagnosis.

Because they did, they were able to give Monte a better quality of life.

I would also be remiss if I didn’t discuss the importance that Constant Companions has had on Monte and her parent’s lives. Hattie Larlham’s Constant Companions is an adult day support program.

Monte attends the program location in her hometown of Green. According to their website, Constant Companions, “adults with intellectual and developmental disabilities enjoy opportunities to participate in a wide variety of activities,

community outings, and volunteer projects.” Tracy just raves about them saying that Monte has made so many friends there. Because she gets to go out in the community on field trips, it has helped her behavior with the public, which is something they previously struggled with. Monte goes to Constant Companions 5 days a week. Her family learned from one of her outings that she loves baseball games, so now they make sure to go to one every year.

“We are very grateful for Constant Companions. I was always fearful of letting her go places and doing things without us, but I have learned that it’s

ok to let her spread her wings and fly. We are so very proud of the progress and young lady that she has become,” says Tracy.

Tracy would like to acknowledge one of Monte’s caregivers, Morgan Garlick, who has helped them feel more comfortable with letting Monte try new experiences. One time Monte became very ill and had an extensive stay in the hospital where she lost her mobility to walk. When Monte returned to Constant Companions, Morgan worked with her and had her up and walking again in no time! “I can never thank her enough for her patience and willingness

to help Monte. She is so patient, and caring and works so hard at taking care of all the people there. Monte and Morgan have a special bond.”

Monte is thriving as an adult because of the unwavering love and support from her family and their willingness to look for resources for help. Tracy’s advice is “to always be an advocate for your child. There will be many ups and downs on this long journey but being the voice of your child and advocating for them is so important. We always make sure that her needs are heard, and they are taken care of. A lot of time you can be met with resistance but always stand up for your child’s rights and be their voice!”

Embracing Inclusivity

The historic Canton Palace Theatre’s journey towards accessibility

IN THE HEART of Downtown Canton, Ohio, stands a landmark that has woven itself into the fabric of Stark County’s rich history—the Historic Canton Palace Theatre. Since its grand opening in 1926, the Palace Theatre has not only served as a cultural hub but has become an enduring symbol of community spirit. As the theater approaches its centennial celebration, it

is not just commemorating the past but also paving the way for a more inclusive and accessible future.

Since 2017 one of the staple events the Palace holds yearly is their Sensory Cinema Movie Series! Every year, from mid-June to the beginning of August, the Sensory Cinema Movie nights offer a unique cinematic experience tailored to accommodate individuals

with sensory sensitivities. The theater adjusts lighting and sound levels, creating a comfortable environment for those who may find traditional movie screenings overwhelming. This thoughtful initiative has garnered appreciation from families and individuals alike, emphasizing the Palace’s dedication to ensuring that everyone can partake in the joy of cinema. 2024’s lineup

will be announced on World Autism Day on April 2!

Looking forward to its 100th anniversary, the Historic Canton Palace Theatre is embarking on a transformative journey with the launch of a 100th-anniversary Capital Project. The project aims to expand the footprint of the theater while preserving its historical charm while making significant strides towards accessibility.

As part of the remodel the Palace is expanding the theater’s ADA seating to quadruple its current size. This enhancement is not merely a physical alteration but a commitment to fostering an environment where everyone, regardless of physical abilities, can enjoy live performances, concerts, and events. By creating more accessible seating options, the Palace

new possibilities for a more diverse audience to appreciate the performances from an elevated vantage point. This marks a momentous step towards inclusivity, ensuring that no one is left out of the cultural experiences the Palace has to offer.

The 100th-anniversary Capital Project not only represents a physical transformation of the Historic Canton Palace Theatre but also reflects its unwavering commitment to fostering an inclusive community. As the campaign gains momentum, the Palace invites patrons, supporters, and the

broader community to join hands in shaping a future where the arts transcend physical limitations.

In celebrating its centennial, the Historic Canton Palace Theatre is not just looking back at its storied past but forward to a future where the magic of entertainment knows no bounds. Through initiatives like the Sensory Cinema Series and the ambitious expansion, the Palace is championing the values of accessibility, diversity, and community—a testament to its enduring legacy in the heart of Downtown Canton.

Theatre is breaking down barriers and reinforcing the notion that the arts are for everyone.

Another addition to the theater’s infrastructure will be the installation of an elevator, a feature that will revolutionize accessibility within the Palace. For the first time, individuals with wheelchair needs will have access to the balcony area, opening

Extraordinary Services for Extraordinary People

TruCare is a leading advocate for the rights of people with intellectual and developmental disabilities. We provide innovative and exceptional services, specializing in remote monitoring that leads to increased autonomy and self-actualization. Person centered services in an increasingly hectic world. Take the next step to living a fulfilled life.

TruCare Provider Services (tcpsinc.org) is recognized by MPower Me (MPM.care) as the first MyGuide Certified Professional agency in Ohio. TruCare Provider Services has completed specialized training to program and personalize MyGuide Cloud cognitive assistive technology devices on behalf of individuals as they learn to use it and adjust it to meet their needs as they change over time. MyGuide provides a pathway for building meaningful relationships between individuals and the people who support them. While increasing the individual’s autonomy and self-expression of their voice and choice, it also helps anyone supporting them to know and understand them better. Everyone has their own perspective of their world and their own way of expressing what they want and need. MyGuide helps reduce guessing by empowering the individual to live their life on their own terms.

TruCare Provider Services has had first-hand experience with the benefits of the MyGuide. A person served by TruCare had been reaching out, but couldn’t describe what was wrong or what would help. Utilizing the MyGuide, a determination was able to be made and TruCare was able to provide the support needed, and then tailor MyGuide for ongoing support. Sta identified three personalized options to support the individual. The individual now requests MyGuide to help the individual self-direct their thoughts and coping skills. Sta can see what the individual has experienced in the past and what they’re experiencing in the moment. The guides provided by MyGuide can be changed to di erent options at any time from anywhere, o ering extreme flexibility by a certified MyGuide Professional like TruCare Provider Services.

Navigating the Transition

Tips for a smooth move from school to adult life

BY TIM TORCH, COMMUNICATIONS AND HR MANAGER AT THE PORTAGE COUNTY BOARD OF DD

Transitioning from high school to adulthood can be an exciting yet challenging time for all young people. For those with developmental disabilities, this transition may come with even more significant hurdles as they leave the structure and support of school life. However, proper planning and support can help them manage this life change smoothly. In this article, we’ll explore some essential tips to help young adults with developmental disabilities and their families prepare for the transition out of school.

Start planning early

Explore options for postsecondary education and training

Postsecondary education provides meaningful opportunities for learning essential life and employment skills. There are several options tailored for those with developmental disabilities, including:

It’s never too early to start thinking about life after high school. Ideally, planning should start at age 16 or younger, when transition planning becomes a formal part of a student’s Individualized Education Program (IEP). The student’s IEP team, including parents, teachers and other professionals, will work together to outline transition goals and services needed to support the student’s desired post-school goals. Starting the conversation early gives the student and family more time to identify appropriate services, programs and support systems to put in place after graduation.

• Inclusive college programs that offer vocational training and independent living skills alongside college peers without disabilities. These are offered at many community and four-year colleges.

• College-based transition programs that serve students with intellectual disabilities and offer career development and internships.

• Vocational rehabilitation agencies that provide job training and other support services to help students gain employment skills.

• The student’s IEP team can help identify programs that match the

The individuals and their parents/ guardians should tap into available resources and have the student’s interests and goals drive the transition plan.

student’s skills and interests. Touring programs and starting applications early are essential to success.

Build independent living skills

Gaining skills for independent living is crucial during the transition. Areas to work on include:

• Self-care - hygiene, grooming and healthy habits

• Household skills – cleaning, cooking, laundry, etc.

• Community living skills - using public transportation, shopping and money management

• Social skills - communicating with roommates, coworkers, etc.

• Work on these skills at home, in community settings or through specialized living skills classes.

Connect with adult disability services

Get familiar with agencies that provide services and support for adults with disabilities, such as:

• Vocational Rehabilitation - offers employment services and training

• Social Security Administrationprovides information on SSDI and other benefits

• State or county developmental disabilities office - can provide case management, in-home support, respite care and more

• Local non-profits and disability advocacy organizations

• A great opportunity offered in Ohio is Adult Day Support. This program facilitates individuals in meeting new people, discovering local community activities, gaining independence in navigation and exploring local job opportunities.

• Contact these groups directly to learn eligibility and apply for adult services. Partnering with

an agency counselor can make a big difference in accessing needed support after school ends.

Find meaningful work and volunteer opportunities

Employment provides a sense of purpose and crucial social connection after high school. Students can connect with school-sponsored work experiences to explore potential jobs or careers of interest and develop skills. Local vocational rehab agencies also offer job coaching and training programs. For students who may not be ready for paid work, volunteer positions can be an excellent way to gain confidence and experience. Volunteering also allows students to sample different career paths to find the best fit. This is an excellent gateway to discovering their true passion in life and gaining the skills to pursue their dream job.

Develop a network of friends and mentors

A solid support network is vital for this transition. Help the student connect with positive peer groups, mentors and community members who share their interests. These social relationships provide friendship, guidance and support during significant life adjustments. A mentoring program, community club or faith community can nurture these relationships. Online groups dedicated to specific disabilities or transition challenges can also provide an essential sense of community.

Discuss healthcare needs and options

Managing healthcare transitions to an adult provider and gaining health insurance coverage are vital steps. Understand options for Medicare, Medicaid or staying on a parent’s insurance plan. Be proactive in finding primary care doctors and specialists appropriate for the student’s needs and age. Staying on top of your mental health is also essential to consider, and experts are available to help them go through this period of their lives. Plan for a smooth transfer of medical records and any assistive devices or medications.

Consider legal and financial planning Guardianship, power of attorney, special needs trusts and other legal and financial planning forms may be needed to protect assets and meet the young adult’s needs. It’s wise to consult a lawyer specializing in disability planning for personalized advice on available options. Planning ahead on these matters can prevent crisis situations down the road.

Take time for self-care

This significant life change impacts the whole family. Not only do the individuals need to take time to rest and keep up with their mental health, parents, siblings and caregivers should also have support during this time of transition. Therefore, it’s essential to take time for self-care, relationships and activities that recharge oneself.

Conclusion

Transitioning from high school to adulthood is a significant milestone for all young people, especially those with developmental disabilities. With thoughtful planning, strong support systems and proactive steps taken to secure education, employment, healthcare and living arrangements, this life change can be managed successfully. The key is starting the planning process early.

The individuals and their parents/guardians should tap into available resources and have the student’s interests and goals drive the transition plan. It is vital that the student and family build a network of support from peer groups, adult agencies and community members. While transitions can be challenging, students with developmental disabilities have great potential to thrive in adulthood when given proper preparation and encouragement. With the right collaborative team and student-centered approach, the future after school can be bright.

March with Purpose

In 2022, Portage DD embarked on a remarkable journey, rebranding March as DD Pride Month! But it is not just about awareness; it is about celebrating the unique abilities and strengths of every individual in our community. Join Portage DD in a month-long celebration that honors diversity, inclusion and the extraordinary talents that make each person special.

March with us into a world where abilities are celebrated, uniqueness is cherished and everyone is empowered to reach their full potential.

Visit events: https://www.portagedd.org/latest-news/2024-dd-pride-events

Bella’s Tale: Finding Her Voice and Sparkling Colors

Introducing you to Isabella Yoder

BY ANDREA HURR • PHOTOS BY JULIAN CURET

LET’S DIVE DEEP into the amazing world of Isabella, affectionately known as Bella, and her incredible journey in Holmes County. At 14, she’s not just navigating the teenage waters – she’s sailing through them with a uniqueness that defines her

“In 2019, there was a research study published about GM3 Synthase Deficiency (Bella’s main diagnosis),” reflects mom, Julie Yoder. “Bella was a part of the study. As I was reading the findings of the study, one sentence stood out to me: ‘None of the

spirit and creates a radiant light in her hometown of Sugarcreek!

Her Diagnosis Adventure

Bella’s medical journey started with a series of diagnoses, with GM3 Synthase Deficiency taking center stage. Let’s share the moment that defined the Yoder family’s resilience: As her parents, Craig and Julie Yoder, read the 2019 research study that seemed to underestimate Bella’s communication abilities, they decided not to let it define her. Instead, it fueled their determination to carve a path unique to Bella, not bound by any medical label.

Bella’s Interests: Like Any Fourteen-Year-Old Girl

Beyond the medical complexities, Bella’s vibrant personality takes center stage. She’s got a powerful voice and is the life of the party!

Picture this: dancing, grooving to music (especially when she picks the songs), and engaging in conversations using her communication device. She loves to practice swinging for the fences in the Dream League, discovering the joy of baseball that brings a sparkle to her eyes.

“Bella participated in Dream League this past summer,” gushes mom, Julie.

participants achieved reciprocal communication.’ I remember feeling so defeated at the wording of the study because Bella has achieved reciprocal communication! Maybe it doesn’t look like it does when you or I speak, but she understands conversations, responds to them, and has very strong opinions when asked questions! I think as parents of children with disabilities, it’s often so easy to become discouraged by the things “experts” say or that we read, but it’s important to remember that our children will forge their own path. They are all incredible and they are not defined by words on a page!”

“A local church sponsors this event in the summer. Individuals who would otherwise not have an opportunity to play baseball are paired with a buddy for four weeks and have an opportunity to hit, catch, field, throw, and circle the bases. Bella has let us know on many occasions that she does not enjoy watching her brothers play baseball, but she loved baseball when she was able to participate.”

And then there’s her love for Night to Shine, where she’s excited to wow everyone in a silver dress! With her love for music, the Yoders make plans to take her to concerts at least one or two times a year at Blossom Music Center. So far, she’s seen her favorite, Pentatonix, as well as Backstreet Boys and Jonas Brothers! She’s on track to see New Kids On The Block (though mom isn’t sure how she’ll like them)! These are not just things she loves to do; they are moments that define Bella’s love for life and her ability to shine at every opportunity.

The Incredible Community Behind Bella’s Progress

Julie and Craig Yoder have a huge team to thank! They’ve got massive love for Augmentative and Alternative Communication (AAC) at Akron Children’s –thank you Emily, Sarah, and Lindsay – who played a pivotal role in Bella’s journey. Also, a big shoutout to PRC (PrentkeRomich Company) for providing the devices that gave Bella her voice.

Bella’s journey with AAC is nothing short of magical. From her first exposure to AAC at the age of 4 to her current proficiency with the blast level - communicating with thousands of words, Bella’s story is an exemplary illustration of the transformative power of communication technology. The Yoders fondly recall the heartwarming story of how Bella used her communication device to express her wish for a dog, leading to the adoption of Charlie, an Aussie Doodle who quickly became an integral part of the family.

Parental Wisdom and Encouragement to Other Special Needs Families

In the face of challenges, Craig and Julie extend heartfelt gratitude to the supportive community that has surrounded them on this journey. To fellow parents facing the unique challenges of raising children with special needs, the Yoders offer a message of hope. They appreciate the moms who have been a beacon of inspiration, proving that life

can be experienced to the fullest, regardless of disabilities:

“To the moms who have shown me that it doesn’t matter if our children have a disability, are TPN-dependent, need oxygen, or have a great deal of equipment to bring along...I’m thankful they have shown me that it is still possible to go out in the community and experience life...thank you. To the moms who have faced their worst fears, sat at their child’s bedside in the hospital, received devastating diagnoses and outcomes, yet still persevered and kept fighting for their child...thank you for showing me what grace and love and not giving up look like.”

—JULIE YODER

A special shoutout goes to the teachers and aides at Bella’s school, recognizing the crucial role they play in Bella’s love for school. The Yoders are

incredibly grateful! It’s not just about education; it’s about recognizing the vast potential each child holds within.

Bella’s Narrative of Dreams, Passion, and Personality

In the warmth of Holmes County, Bella Yoder’s story unfolds not as a tale of medical complexities but as the narrative of a 14-year-old with dreams, passions, and an undeniably vibrant personality. Her journey stands as a beacon of hope, reminding us all of the transformative power of communication. Through Bella’s story, the Yoders show us firsthand to celebrate the uniqueness of every child and embrace the endless possibilities that lie within the human spirit. In Bella’s world, every challenge is an opportunity, every moment is a chance to shine, and every word spoken through her communication device is a testament to the extraordinary power of finding one’s voice. So here’s to Bella – a shining star, a dancing queen, and an inspiration to us all. May her

Question & Answer Session with Paul Herrera CEO at Hope Homes Foundation

Education, Education, Education…I learn something new every day.

Q. Where do you work currently?

A. Hope Homes Foundation Inc.

Q. What is your job title here?

A. CEO Chief Executive Officer

Q. How long have you been employed with your current job?

A. 6 ½ years

Q. How long have you been employed in this industry?

A. 47 years serving persons and families with developmental disabilities.

Q, What were your previous jobs in the industry?

A. Stark DD – Adult Service Director; Goodwill Industries – Director of Vocational Services; RCI Inc. (Albuquerque, New Mexico) -CEO

Q. What is your educational background:

A. Master’s degree in Rehabilitation Administration

Q. What do your day-to-day job responsibilities include?

A. I am responsible for the administration and all facets of operations and development activities of Hope Homes Foundation, Inc., its homes, and

properties, ensuring they are safe, well maintained, and appropriate for persons with DD and special needs.

Q. What is the inspiration behind why you work in this field?

A. A belief that people with developmental disabilities and special needs, like all Americans, have a right to live in their own homes, in the community. They should control where and with whom they live, including having opportunities to rent or buy their own homes, and must have the freedom to choose their daily routines and activities. I believe that those with DD and special needs today face a housing crisis with many contributing factors, such as a serious lack of safe, affordable, accessible, and integrated housing, and significant housingrelated discrimination. I would in some small way impact the community to meet that need one home at a time to ensure that quality homes can build a quality life for all.

Q. What part of your job are you most passionate about?

A. Seeing individuals move into their new homes for the first time and setting up their belongings to make it theirs. I want to be part of

a team that assures that each home is well maintained, ADA accessible, and provides a quality home for quality life.

Q. What is your favorite success story you have seen?

A. Building the first Smart Home in Northeast Ohio which provides residents with smart devices and appliances to support more independence and interaction with their environment. Specifically, to see a resident enter his home and be greeted by an interactive device telling him “Welcome Home, Jason” and offering him options for activities and providing him learning tools to cook, do laundry, or just enjoy his surroundings.

Q. What is something you would change in your field for the better if you could?

A. Increase affordable housing funding to ensure choice of residency for individuals to choose where they live and for accommodations to assure for a successful life that meets their needs.

Q, What advice would you give to parents in your field to help navigate?

A. Partner and advocate with your local housing agencies to make your needs known and learn about the housing programs in their community that help with subsidies to pay rent and provide support 24/7. They do not have to do this alone but rather as a group of parents coming together for the purpose of finding and developing affordable housing.

Q, What has been the biggest factor in your career success?

A. Education, Education, Education…I learn something new every day.

Q. What is your favorite non-profit organization or volunteer opportunity?

A, Hope Homes Foundation Inc. with a 60-year history and a focused mission they meet continues to strive to meet their mission of Providing affordable, accessible, and safe housing to persons with developmental disabilities and special needs.

DR. KRISTINE TURKO, BCBA, COBA

Diagnosing Autism: What Families Need to Know

We have all sought the support of a medical professional for a diagnosis, whether it be a diagnosis of a respiratory infection, strep throat, or a broken bone. We have expectations for the processes associated with a medical diagnosis. We make an appointment, see the doctor shortly

BY DR. KRISTINE TURKO, BCBA, COBA

after, are tested, and wait for the results. Usually not pleasant, but a tolerable nuisance. The process of diagnosing someone with autism is usually not straightforward or pleasant. The uncertainty associated with the process can cause stress and anxiety, and it is difficult to know where to go to seek help. Know that

if you are going through the autism diagnosis process you are not alone!

It is important to note, before we jump into the process, that there are two types of diagnoses for Autism Spectrum Disorder or ASD: the medical diagnosis and the educational diagnosis. The medical diagnosis is made by a psychiatrist, clinical

psychologist, or developmentalbehavioral pediatrician. More often than not, more than one person is involved in the diagnostic process. The educational diagnosis (i.e., determination of educational eligibility) is made by a school psychologist. Why two diagnoses, you ask? They each serve their own very important purpose.

A medical diagnosis of autism is made when a clinician determines that the patient demonstrates deficits in three unique areas of social communication and interaction. The three areas are: impaired socialemotional reciprocity, impaired nonverbal communication, and repetitive and stereotyped patterns of behavior or interests. These areas are assessed using diagnostic tools like the Autism Diagnosis Interview-Revised (ADI-R), the Autism Diagnostic Observation Schedule (ADOS), and the Childhood Autism Rating Scale (CARS). Each assessment typically takes between 30-60 minutes and requires a followup visit after the clinician compiles the results. Medical diagnosis is important, as it opens the door to many types of interventions that can improve communication and social skills like behavior therapy,

speech therapy, occupational therapy, and counseling.

While a medical diagnosis determines eligibility for some interventions, it does not guarantee that a child will qualify for special education services in school. Educational services are granted when qualified professionals (e.g., school psychologist) provide an educational diagnosis. In addition to identifying autism as a disability, the educational diagnosis determines the need for special education services. The critical component here is whether the disability interferes with learning in a way that requires special services so that the student can make adequate academic progress. This means that every child with a medical diagnosis of autism does not qualify for special education services. If a child is found ineligible for special education services, parents can inquire about alternative accommodations to ensure that the student has access to equitable learning environments.

It is common for families to pursue both medical and educational diagnoses for autism. The medical diagnosis is critical for gaining access to intervention

outside of school. An educational diagnosis is critical if your child struggles with academics and behavior in the classroom. Both assessments can be done simultaneously. Patience is key in the process. Know that you can ask for help. Medical advocates are typically made available through the site at which the assessment is conducted. Parent advocates are available through school districts. If you are feeling alienated, there are resources online that can help.

Here are a few that are reliable:

https://www.cdc.gov/ncbddd/ autism/index.html

https://autismsociety.org/ screening-diagnosis/

https://www.apa.org/topics/autismspectrum-disorder/diagnosing

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A Journey of Love

FIVE-YEAR-OLD ALICE POIRIER steals the show wherever she goes and reminds her family what life is all about. Alice was born on St. Patrick’s Day in 2018. Shortly after birth, Alice was diagnosed with Down syndrome which came as quite a shock to her family. “We were scared. However, after getting in touch with Down syndrome support organizations and other families who have children with Down syndrome, we realized the tremendous blessing we had been given,” says her mother Ann.

Now five years later, Alice is touching the lives of everyone she meets and changing the world for the better. Alice has 3 siblings, one that is older and two that are younger. She loves the color purple, dancing, and participating in cheerleading, and gymnastics. She is also a member of a very special club- the Down syndrome club! “I don’t think

anyone ever envisions themselves as part of the special needs community when they become a parent. I know I didn’t. But God had bigger and better plans. The Down syndrome community is amazing! People are kind, open-hearted and so inclusive. It’s a club I never knew I wanted to be a part of!” says Ann.

Ann and her husband’s families have fully embraced them, especially Alice after her diagnosis, and have been a tremendous source of support. Ann credits them with showing her what it is to be a good, loving parent and she doesn’t take what she has here for granted. She understands that this unconditional love and support isn’t always the case and she is extremely grateful for the support system she has. Her extended family has allowed Ann to focus on Alice and her other three and allow Alice to thrive. Ann found it

important to have Alice in a typical classroom as well as typical extracurricular activities. “For one, I want Alice to feel like she can fit in wherever she goes…because she can! Secondly, I want her typically-developing peers to be exposed to her and see her potential. I never knew anyone with Down syndrome before I had Alice. If I had, I wouldn’t have been so scared when we received her diagnosis.”

If you are embarking on the journey of a new Down syndrome diagnosis, Ann recommends getting involved with all the various organizations that are out there. “There is such a huge network of people who

have been where you are, and they’re excited to help you. The special needs parenting journey might be unexpected, but it’s the most enriching experience ever,” she says. Living in Cincinnati, they have found the Down Syndrome Association of Greater Cincinnati, GiGi’s Playhouse Cincinnati, and the Down Syndrome Diagnosis Network to be great resources for them.

As Alice continues to grow, her story serves as an inspiration for how a community of people can challenge preconceptions about people with Down syndrome, celebrate differences, embrace diversity, and remind us all of the beauty in every unique journey.

Nurturing Minds, Transforming Lives

Child adolescent behavioral health

In the heart of Canton, Ohio, a beacon of hope has been shining for nearly 50 years. Child Adolescent Behavioral Health, an organization dedicated to mental health services for children, stands tall as a pillar of support for the community. This spotlight aims to shed light on their invaluable contributions, the dedicated team behind it all, and the transformative impact they have on the lives of thousands of children.

A Legacy of Compassion and Expertise

Child Adolescent Behavioral Health has become

synonymous with expertise and compassion in the realm of children’s mental health. The organization’s roots trace back almost five decades, with a mission firmly grounded in providing the highest quality mental health services for children in Stark County and beyond.

At the heart of their success is its team of leading experts in the mental health industry. The staff, fueled by a profound commitment to their life mission, brings a wealth of knowledge and experience to the table. Their dedication goes beyond mere professional obligations; it’s a calling to

make a lasting impact on the lives of children facing mental health challenges.

Specialized Support for Every Child

Child Adolescent Behavioral Health recognizes the unique needs of each child, including those on the autism spectrum. They go above and beyond to ensure that therapy is not only effective but tailored to the individual. An assessment marks the beginning of each child’s journey with CABH, providing a solid foundation for personalized care.

Active engagement is a cornerstone of their

approach to therapy.

Children are not passive recipients but active participants in their healing process. This philosophy fosters a sense of empowerment and ownership, crucial elements in achieving sustainable long-term results.

A Bold Mission: Ending Stigma, Embracing Healing

One of their primary goals is to dismantle the stigma surrounding mental health treatment for children. They firmly believe that seeking help should never be a source of shame or embarrassment. In

their view, every child and family navigating the complexities of mental health deserves support, understanding, and empathy.

Child Adolescent Behavioral Health considers its staff as community heroes, working tirelessly to create a safe and welcoming environment for over 4,000 children annually. Their impact extends beyond Stark County, reaching children in surrounding counties through their four strategically located facilities.

Financial Accessibility and Inclusivity

Child Adolescent Behavioral Health stands firm in its commitment

to inclusivity and accessibility. They understand the financial challenges families may face and strive to minimize barriers to care. They accept most private insurances and Medicaid, ensuring that financial constraints do not hinder a child’s access to vital mental health services. Most importantly their team ensures children in need will receive proper care regardless of a family’s ability to pay, as long as the family is willing to seek solutions and will collaborate with them to explore funding options.

Holistic Services Where They Matter Most Child Adolescent Behavioral Health goes

Special thank you to the Amy Wengerd Group to sponsoring Child Adolescent Behavioral Health in our magazine!

the extra mile by offering a range of services that extend beyond its facilities. Their Qualified Mental Health Specialist (QMHS) Case Management services bring expert support into homes, working closely with families to address their unique needs. Additionally, CABH actively seeks referrals to engage with children in schools, bridging the gap between therapy and real-life situations.

By meeting children where they are, both physically and emotionally, CABH ensures that therapy becomes a seamlessly integrated part of their lives, fostering sustainable growth and support.

Child Adolescent Behavioral Health is not

merely an organization; it is a beacon of hope, an ally for families navigating the complexities of children’s mental health. Through decades of unwavering dedication, expertise, and a commitment to inclusivity, they continue to make a profound difference in the lives of thousands of children. As they stand on the cusp of their 50th anniversary, the impact of Child Adolescent Behavioral Health reverberates through the community, reminding us all that healing is possible, and every child deserves the chance to thrive.

Monte Bigelow

Henry Youngquist

Isabella Yoder

Adaptive Sports Ohio

Michelle Herdlick’s Personal Assistant

The Poirier Family

Adaptive Sports Ohio

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