edeline
WHO sHE IS
clinical profile
45-year-old; female; mother of 1; physical therapist (retired due to disability) Refuses to “do nothing;” openly suggested use of an off label therapy along with proactive rehabilitation
Feb 2014 o Reported walking difficulty and “losing control” in the previous 2 years. She also has bladder urgency and increased fatigue o MRI: Low intensity lesions in the cerebral hemispheres o EDSS Score: 3.0 Nov 2016 (PPMS Suspected) o Covers short distances slowly. Cane required for long distances.
What Edeline feels is most at stake: Daily quality of life
Complaining of forgetfulness o MRI: No T1 Gd+ lesions, 5 new T2 lesions in juxtacortical region of the brain and 2 spinal lesions; CSF: IgG oligoclonal band o EDSS Score: 5.0
“This person you see—It isn’t me. 10 years ago I ran a marathon. Now, I would be happy just to walk to the park without feeling exhausted. I cannot tolerate the feeling of being inside all day. I will do anything to get outside and enjoy life again”