About the PHA UK

Set up in 2000, the Pulmonary Hypertension Association (PHA UK) has grown to a membership of over 4,500. Our PH community is like no other – a unique group of people committed to supporting each other and raising awareness of this serious condition in the hope of one day, finding a cure.

Our work is focused around four key areas: Awareness and education

Support for people affected by PH Research Influence and advocacy

Today, the PHA UK team consists of a core group of staff, assisted by a large group of highly trained and experienced group of professionals working in healthcare, marketing, lobbying, external communications and academia.

Based in Sheffield, we work with our national network of associates to ensure we achieve our aims of helping improve the lives of those affected by pulmonary hypertension.

As an entirely independent charity, we receive no Government funding – meaning we rely heavily on fundraising support to enable us to carry out our work.

Membership of the PHA UK is completely free and we welcome anyone with a connection to PH; including patients, family members and loved ones, and healthcare professionals too.

Join now at www.phauk.org

See some of our publications overleaf

Found this publication helpful?

You’ll find lots more titles in our online shop. They cover a wide range of topics, all designed to make life with PH a little easier. You can browse the range, and order for FREE, by scanning the code at the bottom of this page or visiting www.bit.ly/PHAUK_Publications

Just some of the other titles available:

PH & You

This comprehensive information guide provides a vital introduction to pulmonary hypertension. Sections include defining the disease, tests and diagnosis, specialist centres, useful contacts and what to expect from your hospital visits.

Medication & PH

A guide to treating and managing pulmonary hypertension using drug therapies. Sections include conventional or supportive therapies (including oxygen), and targeted therapies including those taken orally, intravenously or via a nebuliser.

Intimacy & PH

This guide aims to help you understand how PH might affect your physical relationships and discusses ways of dealing with problems that may arise. After all, you haven’t changed – only your health has!

Palliative Care & PH

The first of its kind, this guide brings you important information about palliative care and how it can help people with PH, and their families, to live well.