july 2019
Distant doctors Colin Slark Special to Gateway
K Gateway photo by Brent Braaten
Karver Fuller, 3, rides a bike at the Child Development Centre of Prince George and District.
risty and Wes Fuller are sitting in a clinic in Prince George They’re with their son Karver. A nurse comes in to administer Karver his latest scheduled vaccination. The nurse takes a look at Karver’s file and turns to look at the Fullers. “Are you guys the doublewhammy family?” she asks. The Fullers never thought their son’s story would become gossip but a nurse they’d never met before has apparently heard all about the most difficult month of their lives. “Didn’t you guys find out that your son needed open-heart surgery and had Down syndrome in, like, the same day?” The nurse isn’t far off track. On Dec. 8, 2016, Kristy and Wes found out that their then-
11-month-old boy had Down syndrome. On Dec. 12, they found out that Karver needed open-heart surgery. On Dec. 14, Karver spent sixand-a-half hours getting a congenital heart defect repaired. Since Prince George lacks specialized pediatric care, the Fullers had to drive their son nine hours to receive treatment in British Columbia’s only pediatric hospital: Vancouver’s B.C. Children’s Hospital. Like all parents in B.C. that don’t live in Metro Vancouver, they had to take time off from work and pay for lodging, transportation and many other costs, while not receiving income. Kristy and Wes spent more than $10,000 to be with Karver during his time in hospital. This is the reality for parents of critically-ill children in Northern British Columbia. — see ‘KIDS WITH, page 6