97/16 Prince George's Weekly

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Thrifty boutique marks second anniversary THURSDAY, SEPTEMBER 5, 2019

SUPERWALK SHINES LIGHT ON PARKINSON’S CHRISTINE HINZMANN 97/16 staff

It’s been nine years since Gary Gurnsey was diagnosed with a form of Parkinson’s disease. He doesn’t have the classic symptoms so there have been more questions than answers around the condition. The annual Parkinson’s SuperWalk takes place Saturday at Lheidli T’enneh Memorial Park to raise funds and awareness for the more than 13,000 British Columbians who have the disease. Not much has improved for Gurnsey over the years, said wife Betty, except as a result of choices he’s made over the last year. “Gary put himself on a Keto diet and lost about 35 pounds and then his mobility increased,” Betty said, speaking on behalf of her husband because, as is typical of Parkinson’s patients, his voice has deteriorated significantly. “So where he had difficulty with walking he can now go the length of the house with his walker.” Betty said when Gary does attempt to speak nowadays, his words tend to run together. Communication Assistance for Youth and Adults (CAYA BC) has provided a text to voice tablet where Gary can type his thoughts and the device will say the words. Betty said she and Gary rely on the Parkinson’s support group and the workshops they host. “We attended the speech and swallow workshop they put on and that was really, really beneficial because they say you can regain the strength of your vocal chords because if you don’t use them it’s like everything else they get weaker and weaker,” Betty said. “So when Gary does his vocal exercises he can talk but it’s a struggle. It really takes a lot of perseverance on his part to work at this all the time.” When Betty and Gary attend the support group meetings, a lot of good information is shared. “People are always sharing tips which have proven very beneficial and people are always encouraging each other to look into different things and we’ve formed some really good friendships,” Betty said.

9716 photo by Brent Braaten

Gary and Betty Gurnsey have been living with Parkinson’s for years. The Parkinson’s SuperWalk takes place on Saturday at Lheidli T’enneh Memorial Park. The text to voice tablet was one of the items mentioned during the support group meetings. Other information included the income tax benefits for those who are senior citizens with disabilities and since every dollar counts, sharing this and other information is important. The group meets at 2 p.m. on the second Saturday of the month at Spruce Capital Senior’s Recreation Centre, 3701 Rainbow Dr. The support group also has a meeting for caregivers who meet once a month for coffee to talk about their challenges. There’s a walking group and now there is talk about starting a dance group to help

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keep people moving because research shows an active body can stave off the degeneration for which the disease is known. Parkinson’s disease is the second most common chronic neurodegenerative disorder after Alzheimer’s. Movement is normally controlled by dopamine, a chemical that carries signals between the nerves in the brain. When cells that normally produce dopamine die, Parkinson’s symptoms appear, such as tremors, slowness and stiffness, impaired balance, rigidity of muscles, fatigue, soft speech, stooped posture, and problems with handwriting. Medication can treat some symptoms but there is no cure.

Gary has what is termed Parkinsonisms and he has been diagnosed with Progressive Supranuclear Palsy, which is fairly rare and exhibits similar symptoms of Parkinson’s. The ultimate goal is for Gary to stay at home and not go into a care home. To offer a change of scenery, he attends the Rainbow Day Care Centre four days a week. “So HandyDART comes and picks him up and the day centre there is absolutely incredible,” Betty said. “The people there are so good and you can’t say enough good things about the HandyDART drivers.” It’s important for the couple to have support from family and friends. Betty and Gary have 14 grandchildren ranging in age from three to 17 from their three sons and a daughter and life is busy as they come and go from their grandparents’ home. “It’s a busy, busy household and I really enjoy that,” Betty said. “I like having the kids over.” Gary and Betty have always been active members of the community and their church. Gary is a founding member of the Nechako Rotary Club and has been honoured for his participation by being named a lifetime member. Gary enthusiastically volunteered for Operation Red Nose, which offers safe rides home for people and their vehicles during the holiday season and Shelter Boxes, that were sent to far off lands after disaster struck. Gary is also a founding director of Helicopter Emergency Rescue Operations Society (HEROS) in northern B.C. and is an active member of his church, the Westwood Mennonite Brethren Church. This year’s SuperWalk fundraising goal is $300,000. Funds raised in the province during the SuperWalk will go to providing valuable support services and education offered by Parkinson Society British Columbia as well as supporting research to find a cure. For more information about Parkinson’s disease and the SuperWalk visit www. parkinsons.bc.ca

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