2021 Annual Report by PARockies

2021 ANNUAL REPORT ROCKIESTHEOFASSOCIATIONPARKINSON

3 TABLEASSOCIATIONPARKINSONOFTHEROCKIESOFCONTENTS INTRODUCTIONVision&MissionStrategicInitiatives for 2022 Connect, Empower and Thrive A Message from Our Executive Director OVERVIEWPAR at a Glance Our Numbers ACTIVITYSignature Events Third Party HIERARCHYFINANCIALEDUCATION/EXERCISEFundraisersEducationalStatisticsExerciseStatisticsSupport&RevenueBreakdownFunctionalExpenseBreakdownBoardofDirectors Staff SPONSORS & CommunitySponsorsPARTNERSPartners 19181716151413121110987654

Mission The Parkinson Association of the Rockies connects and empowers people with Parkinson’s to thrive through educating, creating awareness, promoting research, and supporting those with the disease, their families, and the Colorado community.

STRATEGIC INITIATIVES FOR 2022

OUR VISION & MISSION

Vision To provide the care that counts on the way to a cure for the Colorado Parkinson’s community.

Empowering through Education, offering a large variety of webinars, conferences and guest speakers, to educate on all aspects of PD.

Empowering through Exercise, offering 72 weekly exercise classes. Empowering through Support, offering 52 monthly support groups.

INTRODUCTION

Empowering through Community, with over 15K people served annually.

INITIATIVES

Create DevelopAwareness:corecompetencies/metrics to support our mission and help increase awareness of our programs and services throughout Colorado. These metrics include exercise metrics, franchise metrics and customer survey metrics.

cure!

Providing counts the to a

way

Expand Programs: Develop programs and services for underserved communities including minority, newly diagnosed, young onset and satellite communities utilizing both virtual platforms and in-person events. Increase Participation: Use data segmentation to develop targeted marketing strategies to increase participation, support growth and drive revenue to expand programs and services. Research and develop a strategy to increase corporate partnership outside of the Pharma industry.

thecare that

• We are the first place for all Colorado communities to come for care, support and resources related to Parkinson's.

Connection has been shown to prevent social isolation and to provide encouragement in PWP. Through our support groups and third-party fundraisers, not only are we providing that connection for those with Parkinson’s, but we are connecting family, friends, neighbors, colleagues and the entire community to learn and engage with Parkinson’s.

• We share our expertise and operate our organization with efficiency and transparency.

Empower This is not easily grasped by anyone, but when empowerment is achieved it can go a long way for someone with Parkinson’s and their loved ones. At PAR, we encourage every PWP to discover and claim their own personal empowerment in order to better manage their disease. Whether this is independently done or in a group, we strive to provide resources so everyone, including Care Partners, can be empowered.

Connect,

• We are committed to generating sustainable financial resources to carry out our mission.

• We care, offering personal attention, guiding individuals to the best local resources and advocating for each individual's rights.

• We serve individuals and their families in the way that is most helpful to them.

• We empower people on their journey, sharing expertise and connecting them to a support

Over 17,000 Coloradans are living courageously with Parkinson’s disease and instead of letting the disease define them, they choose to define themselves and we help them do just that! At PAR, we provide resources for People With Parkinson’s (PWP) at all points of their diagnosis. We are connecting PWP to meaningful support, resources and beneficial programs in the community.

What does it mean to Empower and Thrive?

PAR has focused on empowering those in the Parkinson’s community with free exercise classes and educational programs as well as fundraising events. Our goal in providing these resources is to help PWP live life to the fullest without any limitations.

Connect

• We connect the medical community to the Parkinson’s community, providing education and sharing information on clinical research.

• We create awareness in the Colorado community around Parkinson's disease and advocate for those in our state.

Thrive Many of our free programs and services are supported by grants and sponsorships from our generous partners, but our most meaningful contributions are from those who partake in our lively events or host their own. By encouraging participation, PAR’s constituents thrive by staying active, connecting with others and spreading awareness at fun events with friends and family.

6INTRODUCTION

Core Values

Dear PAR Community, In 2021, we celebrated our 40th anniversary and bounced back from the challenges of 2020. It was also a year of transition as we moved back to in-person events, classes and support groups while still maintaining virtual options for those who weren’t quite ready to attend in-person. The PAR staff came back to the office in early 2021, and we were so happy to see the faces of our community as restrictions began to lift and we could get back to “normal.” We had a busy year and exceeded many of our expectations.

INTRODUCTION

PARKINSON ASSOCIATION OF THE ROCKIES

Jodi Brown MESSAGE FROM EXECUTIVEDIRECTOR

JODI BROWN Executive Director

PAR’s focus on exercise continued with an increase in the number of classes by 12% in 2021. Classes were added throughout the state, with over half of the new classes added in our satellite communities outside of the Denver Metro area. We have also restarted our expansion into Wyoming with classes added in Cheyenne and Lander. Wyoming has few resources for People with Parkinson’s, and we feel bringing our direct services to this area will be very beneficial to the Wyoming Parkinson’s community.

PAR continues to bring educational events focusing on topics requested based on feedback from the Parkinson’s community. In 2021, we held our Colorado Community Conference virtually which focused on the latest medications and research. We were thrilled to be able to hold the e3 Conference and Care Partner Summit in-person while still giving the option to attend virtually as well. In addition to our conferences, we were able to take our educational seminars back on the road to reach people where they live. PAR held 10 educational seminars throughout the state and continued to provide webinars to ensure everyone had access to increase their knowledge on how they can continue to thrive with Parkinson’s. On the financial front, all non-profits were hit hard in 2020 due to the pandemic, and PAR was no exception with a 30% reduction in revenue. The great news in 2021 is that our community showed their considerable support, and we are back on track with over $1M in revenue, and even broke our previous revenue record from 2019! This revenue is used to support our free programs and services and allows us to continue expanding what we do throughout Colorado

Minority Outreach In 2021, the Minority Outreach program partnered with Denver Health to connect with their providers, nurse practitioners and staff in all Denver Health clinics. We are partnering with Dr. Fabio Grassia to present our PD101 series to provide information on all the basics of Parkinson’s. We made a huge effort in face-to-face outreach by visiting community centers and local parishes, where the population is primarily Spanish speaking or bilingual. Each visit we interacted with the community and handed out our Spanish information packet to those wanting more information on Parkinson’s disease. Our Minority Outreach program will allow us to connect with patients who are diagnosed with Parkinson’s and provide them information on all PAR's programs and resources.

Volunteers PAR values the hard work and feedback our volunteers ACTIVITY

From Year 2021

PAR AT A GLANCE

• Presented 2 educational conferences. e3 was a hybrid event with over 450 people either in-person or attending the livestream. Participants learned how to thrive with Parkinson’s, and our Care Partner Summit had almost 100 in-person attendees learning skills and tips to be their best.

The Parkinson Association of the Rockies (PAR) came back strong in 2021. The first half of the year we continued to offer virtual exercise classes while moving as many classes as we could back to in-person. Our community has learned to embrace technology so we will continue to offer classes virtually for those who are unable or not comfortable attending classes in-person. This year continued to be a strong year for education, utilizing both virtual and in-person class options. Many educational events were hybrid, meaning we had both in-person and virtual attendees. This allows us to be directly in smaller communities but offer these seminars to a larger audience which has been transformative.

• Expanded classes into Wyoming with new Power Punch classes in Cheyenne and Lander.

Patient and Family Services Cari Friedman, LCSW and Patient and Family Services Director, provided consultations to 1,901 PWP and their care partners throughout the year. She also started a weekly virtual support group open to anyone in the Parkinson’s community and a monthly virtual support group specifically for Care Partners. Cari also provided several PD101 presentations within the CO Parkinson’s Community for those who have been newly diagnosed or are trying to learn more about this chronic illness.

OVERVIEW RECENT

• Hosted 6 Chat with a Parkinson's Pro and 4 Ahead of the Curve seminars in the second half of 2021 giving communities access to Parkinson’s professionals in a small group format.

• Added 14 new exercise classes across the state. Eight of those classes were in our satellite communities in need of more resources, and the remaining 6 were in the Denver Metro area.

• Held 19 educational webinars with an average attendance of 30 people per webinar. Due to our accesible content, PAR has begun to reach People with Parkinson’s outside of CO.

In 2021, we accomplished the following:

9 OVERVIEW

We lend out mobility equipment, such as wheelchairs and U-Step walkers for our constituents to borrow for up to 90 days, completely free of charge. This program allows constituents to try mobility aids at home and in their daily routines, to ensure it is the proper tool for them, before they invest in buying the equipment. In 2021 we loaned 25 pieces of mobility equipment to members of our community.

EQUIPMENT LOAN PROGRAM

10 EVENTSSIGNATURE

VITALITY 5K WALK & RUN Play Fore PAR golf classic continued the trend of powerful fundraising events raising $54,084. Over 110 golfers came together at Valley Country Club to swing, chip, and putt in support of bringing education and crucial funds for Parkinson's disease.

ACTIVITY

The Vitality 5k Walk & Run had a successful return to the parks raising $94,634. With supporters coming together at Wash Park, Sandstone Ranch, John Venizia Park, Pueblo City Park, and all over the state with Virtual Vitality teams. This event continues to help drive PAR's programs and services forward.

EMPOWERMENT BALL

PLAY FORE PAR The 2021 e3 Conference was held in person as well as live-streamed. With topics ranging from mindful pivoting to alternative medicine including CBD research and Laser Therapy. Over 450 people came away from the conference with a better understanding of their disease and tips on living their best lives with Parkinson's. e3 CONFERENCE

The Empowerment Ball celebrated the 1980's to commemorate PAR's 40th Anniversary. With the return to an inperson event, a fantastic committee, revenue chair, and great partners, the Empowerment Ball raised $145,561. In 2022 the event name will change to the Evening of Empowerment and will celebrate its 10th year!

11 9 th Annual Redneck Ride Total Amount Raised from Third FundraisersParty$79,757 8 th Annual Ski For Parkinson's THIRD FUNDRASIERSPARTY ACTIVITY

EMPOWERING THROUGH EDUCAIn 2021 we hosted educational events and webinars covering a wide variety of topics all related to Parkinson's, including advanced therapies, non-motor symptoms, managing stress and anxiety, speech and swallowing and music therapy. Adding a virtual format allowed us to extend our reach to People with Parkinson's outside of Colorado and record sessions to distribute online for later viewing.

Webinar Registration by Location

EDUCATION

13 ENERGIZING

With so many different classes to choose from, our community got moving in 2021. Though many classes went back to in-person, we continued to offer virtual options (about 1/3 of our classes) for those who were not quite ready to go back. We added 14 new classes throughout Colorado and even expanded into Wyoming. As exercise is a proven way to slow the progression of PD, PAR continues our commitment to offer a variety of FREE classes so there is something for everyone. THROUGH EXERCISE

14 FINANCIAL

In 2021, PAR had a great recovery and exceeded our revenue goals, allowing us to provide even more programs and services. As an independent nonprofit, your support gives us the abili ty to help the Parkinson's community in Colorado thrive!

PAR continues to build a strong reserve with $903,491 in net assets for 2021.

FINANCIAL15

HIERARCHY16BOARD MEMBERS MEDICAL ADVISORY RYANBOARDBARMORE, MD KARA BEASLEY, MD LUISA SOLIS COHEN, MD MICHELLE FULLARD, MD FABIO GRASSIA, MD ELIZABETH HARMON, MD TREVOR HAWKINS, MD MATTHEW MIAN, MD TAMMY PHAM, MD VICKI SEGRO, MSN DAN STARISHEVSKY President of the Board SVP of Marketing, Jackson National Life CHRIS PATAKY InvestmentFinance Advisor, Capital Investment Advisors

LANE FEINGOLD Senior Account Manager - Motorola Solutions PAUL FRENCH Retired (Manager/Engineer - Intel & HP)

CINDY KUYKENDALL Vice President of the Board Territory Manager, Abbott JEFF REBERRY CEO,FinanceTurnCommerce, Inc. GAETHA MILLS Epilepsy & Movement Disorder Program Coordinator, Health One/Swedish LESLIE PETERS Diagnostic Testing Authorization Coordinator, South Denver Cardiology Association KIRPAL SINGH Director of Marketing Development Michael Best

NANCY IVANKOE Retired (Oracle)

17 Meet Our Team HIERARCHY STAFF JODI BROWN Minority Outreach Coordinator CARI FRIEDMAN, LCSW Patient and Family Services Director EMMA SEARS Program Coordinator NIKKI WIDNER Marketing Specialist MICHAEL BARBER SETH DEANJOANNA AGUIRRE Director of DevelopmentVolunteer and Event Coordinator Executive Director

19 5280 Salsa AbbVieAbbott ACADIAIncPharmaceuticals Inc. Accessible Systems Acorda Therapeutics, Inc. Adamas AmnealADTAdolfsonPharmaceuticals&PetersonConstructionHealthPharmaceuticals Boston Scientific Brookdale Senior Living Brookfield Properties Brownstein Hyatt Farber Schreck Carillon at Belleview Station Chronic Care Collaborative Clara ColoradoHealth365 Golf Comfort Keepers - Centennial Elderlink Home Care EncompassElkCo Health Rehabilitation Hospital of Farro'sLittletonItalian Restaurant FirstBank Home Care PASCO-PersonalNorthwesternNeurocrineModernMichaelMessnerMedtronicLSVTKyowaKentwoodJordaniPlaceINPCSHomeWatchAssistanceCareGiversSeniorsLawCommercialKirinGlobalReevesLLPBestBrewBiosciencesMutualAssistance Services of RareColoradoPatient Voice, LLC St. Andrew's Village State Farm Insurance - Art Martinez SupernusSunovion Pharmaceuticals Swedish Medical Center | HealthONE TurnCommerce, Inc. Venture Best Zaner Harden Law Thank You to Our 2021 Partners PARTNERS & SPONSORS

PARKINSON ASSOCIATION OF THE ROCKIES Since its formation in 1981, the Parkinson Association of the Rockies has been a valuable resource to the Colorado community, providing direct care services including support groups, free case assessments and an information hotline to individuals living with Parkinson’s, their families and Care Partners, as well as the general community. PAR provides the care that counts on the way to a cure. The Parkinson Association of the Rockies is an independent 501 (c)(3) non-profit organization. Our Federal Tax ID# is 74-2212593. CONNECT WITH US facebook.com/PARockies instagram.com/PARockies twitter.com/PARockies youtube.com/Parkinsonrockies www.LinkedIn.com/company/PARockies 20