Parkinson Association of the Rockies 2020 Annual Report

PARKINSON ASSOCIATION OF THE ROCKIES

2020 ANNUAL REPORT

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PARKINSON ASSOCIATION OF THE ROCKIES TABLE OF CONTENTS INTRODUCTION Mission & Vision Strategic Initiatives For 2021 Connect, Empower and Thrive A Message From Our Executive Director

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OVERVIEW PAR at a Glance Our Numbers

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ACTIVITY Signature Events Third Party Fundraisers

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EDUCATION Educational Events Webinar Statistics

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FINANCIAL Support & Revenue Breakdown Functional Expense Breakdown

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HIERARCHY Board of Directors Staff

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PARTNERS & SPONSORS Sponsors Community Partners

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INTRODUCTION

OUR MISSION & VISION

Empowering through Community, with over 14K people served annually.

Empowering through Exercise, offering 63 weekly exercise classes.

Empowering through Education, offering a large variety of webinars, conferences and guest speakers, to educate on all aspects of PD.

Empowering through Support, offering 53 monthly support groups.

Mission

The Parkinson Association of the Rockies connects and empowers people with Parkinson’s to thrive through educating, creating awareness, promoting research and supporting those with the disease, their families and the Colorado community.

Vision

To provide the care that counts on the way to a cure for the Colorado Parkinson’s community.

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STRATEGIC INITIATIVE FOR 2021

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Providing the care that counts on the way to a cure!

Expand Programs:

Increase Participation:

Create Awareness:

Develop programs and services for underserved communities including minority, newly diagnosed, young onset and satellite communities utilizing both virtual platforms and in-person events.

Use data segmentation to develop targeted marketing strategies to increase participation, support growth and increase revenue to further programs and services.

Research and develop a strategy to increase corporate partnerships outside of the pharmaceutical industry.

Develop core competencies/metrics that support our mission and help increase awareness of our programs and services throughout Colorado. Create 40th anniversary marketing strategy for 2021 to enhance awareness efforts and develop new partnerships.

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INTRODUCTION

What does it mean to Connect, Empower and Thrive?

Connect Over 17,000 Coloradans are living courageously with Parkinson’s disease and instead of letting the disease define them, they choose to define themselves and we help them do just that! At PAR, we provide resources for People With Parkinson’s (PWPs) at all points of their diagnosis. We are connecting PWPs to meaningful support, resources and beneficial programs in the community.

Connection has been shown to prevent social isolation and to provide encouragement in PWPs. Through our support groups and third-party fundraisers, not only are we providing that connection for those with Parkinson’s, but we are connecting family, friends, neighbors, colleagues and the entire community to learn and engage with Parkinson’s.

Empower This is not easily grasped by anyone, but when empowerment is achieved it can go a long way for someone with Parkinson’s and their loved ones. At PAR, we encourage every PWP to discover and claim their own personal empowerment in order to better manage their disease. Whether this is independently done or in a group, we strive to provide resources so that everyone, including Care Partners, can be empowered.

PAR has focused on empowering those in the Parkinson’s community with free exercise classes and educational programs as well as fundraising events. Our goal in providing these resources is to help people with Parkinson’s live life to the fullest without any limitations.

Thrive Many of our free programs and services are supported by grants and sponsorships from our generous partners, but our most meaningful contributions are from those who partake in our lively events or host their own. By encouraging participation, PAR’s constituents thrive by staying active, connecting with others and spreading awareness at fun events with friends and family.

Core Values • We are the first place for all Colorado communities to come for care, support and resources related to Parkinson's.

• We serve individuals and their families in the way that is most helpful to them.

• We care, offering personal attention, guiding individuals the best local resources and advocating for each individual's rights.

• We connect the medical community to the Parkinson’s community, providing education and sharing information on clinical research.

• We are committed to generating sustainable financial resources to carry out our mission.

• We share our expertise and operate our organization with efficiency and transparency.

• We create awareness in the Colorado community around PD and advocate for those in our state.

• We empower people on their journey, sharing expertise, connecting them to a support network.

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INTRODUCTION

PARKINSON ASSOCIATION OF THE ROCKIES

MESSAGE FROM EXECUTIVE DIRECTOR Jodi Brown

Dear Community: Finally, 2020 has come to an end! We have all endured a lot this year, and my hope is that 2021 brings a fresh new sense of well-being and security. PAR started 2020 with new strategic initiatives to grow even further by providing our services in areas throughout the state that do not currently have access to programs specific to People with Parkinson’s.

We were excited to host the Colorado Community Conference in April and had a fun roaring 20’s theme planned for our Empowerment Ball later in the Fall. With COVID-19 shutting down the state in March, we had to adjust our plans, and we did just that! Within the first couple of weeks, PAR moved a handful of free exercise classes to Zoom in order to make sure our constituents had a way to keep moving. By mid-summer, 75% our classes were available either virtually or in-person with strict safety protocols in place. We converted all educational seminars to webinars with our first event on March 21 followed by a COVID-19 and Parkinson’s webinar on March 30 with over 250 attendees! We have since hosted over 30 educational webinars reaching not only the Colorado community but People with Parkinson’s in other states due to our relevant content.

The silver lining of the pandemic is that our community has become more comfortable with a virtual format and we will continue to use a mixture of in-person and online programming to increase our reach.

Non-profits were hit hard in 2020 as corporations, foundations and individuals were unsure of the economic impact and recovery of our country. PAR was able to cut costs in direct proportion to our reduced revenue and ended 2020 with a small excess, which was added to our reserves.

Sincerly,

JODI BROWN

Executive Director 7

OVERVIEW

PAR AT A GLANCE

RECENT ACTIVITY From Year 2020

The Parkinson Association of the Rockies has been resilient through 2020 by ensuring we continued to deliver quality programs and services to the Parkinson’s community during this unprecedented time of COVID-19. PAR moved quickly in March once the shutdown was announced to provide virtual exercise classes, accurate information and education to our constituents.

In 2020, we have accomplished the following: • Moved 32 classes to an online format ensuring that our community had options to exercise as this is the one thing that has been scientifically proven to slow disease progression • Sent out weekly eNews updates March – June to help provide accurate information regarding COVID-19 and resources to help our community get through this crisis • Held a webinar on COVID-19 and Parkinson’s in conjuction with UC Doctors, with over 250 attendees •

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Hosted 30 educational webinars reaching not only the Colorado community but People with Parkinson’s nationwide Held our e3 Conference virtually to help energize, educate and empower over 550 attendees

• Logged over 300 calls from our constituents during quarantine with our licensed clinical social worker, Cari, through our information and referral hot line

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Minority Outreach In 2020, we translated all of our introduction materials and Parkinson's 101 booklets into Spanish, allowing us to grow our reach into Spanish speaking communities. We appointed our Administrative Coordinator, Joanna Aguirre, to Minority Outreach Coordinator. With a collaboration of Physical Therapy students from Regis University, PAR has created a resource guide to provide to physicians all across Colorado, with the intention that they will refer their patients to us, allowing underserved communities to receive our free resources and care.

Patient and Family Services Cari Friedman, LCSW, and Patient and Family Services Director, provided one-on-one assessments to 1,916 PWPs and their Care Partners. In her 21 years with PAR, requests for one-onone assessments have increased tremendously and to meet demand, PAR transitioned in-home assessments to virtual house calls for individuals who were newly diagnosed or had a change in their progression while also providing office visits to those who wanted to visit in person.

Volunteers PAR values the hard work and feedback our volunteers provide.

We recognize the importance of our loyal volunteers who return year after year to help PAR and PWPs build strong relationships and awareness in the community. As PAR continues to grow, we welcome new volunteers to join our team and participate in new opportunities for involvement.

OVERVIEW

14,000 People Served Annually

73% of Every Dollar Spent Goes Directly Into Our Programs & Services

53 Monthly Support Groups

Our Numbers

Net Assets, End of Year $775,317

63 Weekly Exercise Classes

Total Public Support & Revenue $768,122

EQUIPMENT LOAN PROGRAM We lend out mobility equipment, such as wheelchairs and U-Step walkers for our constituents to borrow for up to 90 days, completely free of charge. This program allows constituents to try mobility aids at home and in their daily routines, to ensure it is the proper tool for them, before they invest in buying the equipment.

In 2020 we loaned 39 pieces of mobility equipment to members of our community.

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ACTIVITY

SIGNATURE EVENTS

VITALITY 5K WALK & RUN Though we had to move our annual Vitality 5K Walk & Run to a virtual event, we still had a fantastic time and raised $85,790.

Moving the Vitality 5K to a virtual format allowed people to participate anywhere they wanted. Our hope is to host the Vitality 5K in-person in 2021 or as a hybrid event with both virtual and in-person components.

NT E M ER

2020 Virtual House Party

THE

EMPO

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W

Ball

PLAY FORE PAR

e3 CONFERENCE

EMPOWERMENT BALL

Our 21st Annual Play Fore PAR was a huge success raising $53,051! We were able to host this event in-person and follow COVID-19 safety protocols to ensure a fun and safe event.

For the safety of our community, we hosted the 2020 e3 Conference online.

With topics ranging from anxiety and depression to positive self-speak, over 580 attendees nationwide came away from the conference with a better understanding of their disease and tips on living their best lives with Parkinson's.

Our Empowerment Ball was planned to be a big 1920's Great Gatsby theme, but due to COVID-19, it was moved to an online auction, raising $31,230. We hope to return in 2021 with a large scale inperson event themed around the 1980's to commemorate PAR's 40th Anniversary.

ACTIVITY

THIRD PARTY FUNDRASIERS

Photo top 8th Annual Redneck Ride $6,503 Raised

Photo middle 7th Annual Ski For Parkinson's $34,708 Raised

Photo bottom Boxing Class

Total Amount Raised from Third Party Fundraisers $58,567

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EDUCATION

EMPOWERING THROUGH EDUCATION In 2020 we hosted webinars covering a wide variety of topics all related to Parkinson's, including advanced therapies, non-motor symptoms, managing stress and anxiety, speech and swallowing and music therapy. Using a virtual format allowed us to extend our reach to People with Parkinson's outside of Colorado and record sessions to distribute online for later viewing.

Registration Averages 60 50 40 30 20 10 0

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2019 Average CWPP Registrations

2019 Average AOC Registrations

2020 Average Webinar Registrations

EDUCATION

EMPOWERING THROUGH EDUCATION Webinar Attendee Locations 6% 23%

41%

12% 14%

2%

Denver Metro

East Colorado

Front Range

Mountain Communities

Outside CO

South Colorado

Total Recording Views 1200 1000 800 600 400 200 0

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FINANCIAL

SUPPORT & REVENUE Interest & Other 0.2%

Special Events 21%

In-kind Contributions 3.1% Government Grants 12.1%

$161,521 $1,764

Direct & Indirect Contributions 34.8% $267,205

$93,000 $220,532

Foundations & Corporations 28.7%

As an independent nonprofit, your support gives us the ability to help the Parkinson's community in Colorado thrive!

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TOTAL: $768,122

FINANCIAL

FUNCTIONAL EXPENSES Financial Development 17.9% $135,504

Management & General 8.7%

$66,01

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$554,431

Program Services 73.3%

TOTAL: $755,948

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HIERARCHY

BOARD MEMBERS

DAN STARISHEVSKY

CINDY KUYKENDALL

President of the Board SVP of Marketing, Jackson National Life

Vice President of the Board Territory Manager, Abbott

CHRIS PATAKY

JEFF REBERRY

Finance Investment Advisor, Capital Investment Advisors

Finance CEO, TurnCommerce, Inc.

LANE FEINGOLD

GAETHA MILLS

Senior Account Manager - Motorola Solutions

Epilepsy & Movement Disorder Program Coordinator, Health One/Swedish

PAUL FRENCH

Retired (Manager/Engineer - Intel & HP)

NANCY IVANKOE Retired (Oracle)

LESLIE PETERS

Diagnostic Testing Authorization Coordinator, South Denver Cardiology Association

YOUNG PROFESSIONALS COUNCIL ERIC PALMER

GLEN GILLAN

Clinical Specialist, Boston Scientific

LAUREN POTTLE

YPC President Marketing Strategy & Analytics, BKMedia Group

ASHLEIGH LAMBERT

DAN MALEY

LIZ POWELL

REBECCA LACEY

KELLY SMITH

YPC Vice President Director of Clinical Development, SpeechVive

AMELIA GERMAIN YPC Secretary Speech-Language Pathologist, UCHealth 16

Realtor, Encompass

VP of Operations, CarePoint

Director of Startegic Account Mgmt, Duda

Director of Strategic Account Management, Duda

Attorney, Snell & Wilmer

HIERARCHY

STAFF Meet Our Team

JODI BROWN Executive Director

JOANNA AGUIRRE

MICHAEL BARBER

ELENA CUSSLER

Minority Outreach Coordinator

Volunteer and Event Coordinator

Programs Director

ELI EDWARDS

CARI FRIEDMAN, LCSW

TBH

Marketing and Outreach Specialist

Patient and Family Services Director

Director of Development

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PARTNERS & SPONSORS

OUR PARTNERS & SPONSORS CHAMPIONS

HERO 9th WONDER

WINNERS BOSTON SCIENTIFIC | JACKSON NATIONAL LIFE | LUNDBECK

ADVOCATES ABBOTT | ACORDA | JAY'S VALET | KOOL 105 | KYOWA KIRIN | SUNOVION

PD Community Partners AIRPO | Davis Phinney Foundation | Michael J Fox Foundation | Movement Disorders Foundation Parkinson’s Foundation | Parkinson’s Pointe | Pedaling for Parkinsons | The Unsteady Hand 18

PARTNERS & SPONSORS

Thank You to Our 2020 Partners 9th Wonder Abbott ACADIA Pharmaceuticals Inc. Acorda Therapeutics Adamas Pharmaceuticals, Inc. Boston Scientific Bright Star Care of Denver Centura Colavria Hospitality Corner Bakery Duet Media/See Man See Do Event Rents First Bank Holding Company of CO HealthOne IMI Precision – Nordgren

Jackson National Life Jay’s Valet KOOL 105 Land Title Guarantee Company LSVT Global Lundbeck MDC/Richmond American Homes Fdn Oogies PennAir Pepsi Rare Patient Voice Speechvive Springwood Stout Corporation

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CONNECT WITH US

facebook.com/PARockies

instagram.com/PARockies

twitter.com/PARockies

youtube.com/Parkinsonrockies

www.LinkedIn.com/company/PARockies

PARKINSON ASSOCIATION OF THE ROCKIES Since its formation in 1981, the Parkinson Association of the Rockies has been a valuable resource to the Colorado community, providing direct care services including support groups, free case assessments and an information hotline to individuals living with Parkinson’s, their families and Care Partners, as well as the general community. PAR provides the care that counts on the way to a cure.

The Parkinson Association of the Rockies is an independent 501 (c)(3) non-profit organization associated Our Federal Tax ID# is 74-2212593.

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