2010 (TT96) EJE: Clinical Study: TAO, quality of life follow-up...

Page 1

CLINICALSTUDY

Thyroid-associatedophthalmopathy;qualityoflifefollow-up

orradioiodine

MirnaAbraham-Nordling,Go¨ranWallin1,2,FrankTra¨isk3,GertrudBerg4,JanCalissendorff5,BengtHallengren6, PavoHedner7,MikaelLantz6,ErnstNystro¨m8,PeterA ˚ sman9,Go¨ranLundell10,OveTo¨rring11,12 andTheThyroid

StudyGroupofTT96†

DepartmentofClinicalSciences,DivisionofSurgery,DanderydHospital,KarolinskaInstitute,S-18288Stockholm,Sweden, 1DepartmentofMolecular MedicineandSurgery,KarolinskaInstitute,SE-14186Stockholm,Sweden, 2DepartmentofSurgery,OrebroUniversityHospital,SE-70185Orebro, Sweden, 3DepartmentofClinicalNeurosciences,KarolinskaInstitute,StErikEyeHospital,SE-11282Stockholm,Sweden, 4DepartmentofOncology, SahlgrenskaUniversityHospital,SE-41345Gothenburg,Sweden, 5DepartmentofEndocrinology,Radiumhemmet,KarolinskaInstitute,Karolinska UniversityHospital,SE-14186Stockholm,Sweden, 6DepartmentofEndocrinology,MalmoeUniversityHospital,SE-20502Malmoe,Sweden, 7DepartmentofEndocrinology,LundUniversityHospital,SE-22185Lund,Sweden, 8DepartmentofEndocrinology,SahlgrenskaUniversityHospital, SE-41345Gothenburg,Sweden, 9DepartmentofOphthalmology,MalmoeUniversityHospital,SE-20502Malmoe,Sweden, 10DepartmentofOncology, Radiumhemmet,KarolinskaInstitute,KarolinskaUniversityHospital,SE-14186Stockholm,Sweden, 11DepartmentofClinicalResearchandEducation, KarolinskaInstituteand 12DivisionofEndocrinology,DepartmentofInternalMedicine,So¨dersjukhuset,SE-1188377Stockholm,Sweden (CorrespondenceshouldbeaddressedtoMAbraham-Nordling;Email:mirna.abraham.nordling@ki.se)

†(PleaseseeAcknowledgements)

Abstract

Objective:Theobjectiveofthisstudywastoinvestigatequalityoflife(QoL)inpatientswithGraves’ diseasetreatedwithradioiodineorantithyroiddrugs.

Designandmethods:Thedesignofthestudyconsistsofanopen,prospective,randomizedmulticenter trialbetweenradioiodineandmedicaltreatment.Atotalof308patientswereincludedinthestudy group:145patientsinthemedicalgroupand163patientsintheradioiodinegroup.QoLwas measuredwitha36-itemShortFormHealthStatusSurveyquestionnaire(SF-36)atsixtimepoints duringthe48-monthstudyperiod.

Results:Patientwhodevelopedorgotworseofthyroid-associatedophthalmopathy(TAO)atanytime pointduringthe4-yearstudyperiod(TAOgroup)hadlowerQoLwhennorespectwaspaidtothemode oftreatment.

TAOoccurredin75patientswhohadradioiodinetreatmentatsometimepointduringthestudy periodascomparedwithTAOin40medicallytreatedpatients(P!0.0009).

ComparisonsbetweenthegroupofpatientswhohavehadTAOversusthegroupwithoutTAO,in relationtotreatmentsandtime,showedsignificantlydecreasedQoLscoresfortheTAOgroupsat severaltimepointsduringthestudy.

InpatientswithoutTAO,therewerenodifferencesinQoLrelatedtomodeoftreatment.

Conclusions:TheQoLinpatientswithGraves’ophthalmopathywassimilarinradioiodineand medicallytreatedpatients,butpatientswhodevelopedorhadworseningofTAOhaddecreasedQoL independentofmodeoftreatment.Furthermore,patientswithTAOrecoveredphysicallywithin1year butittooktwiceaslongforthemtorecovermentally.

EuropeanJournalofEndocrinology 163 651–657

Introduction

Hyperthyroidismisacommondiseasewhichaffects 32.7–41.6cases/100000peryearinSweden (1,2) Inthemajorityofpatients,Graves’diseaseisthecause, andthyroid-associatedophthalmopathy(TAO)isoneof themaincomplications (3,4).

SeveralstudieshaveshownthatTAOisthemainreason fordiscomfortanddecreasedqualityoflife(QoL) (5–8).

WehavepreviouslyobservedanincreasedriskofTAO associatedwithradioiodinetreatmentofGraves’ hyperthyroidismincomparisontomedicalorsurgical treatmentinarandomizedstudy,‘Thyrotoxicosis1983 (TT83)’ (9).Inthatstudy,patientsintheradioiodine groupreceived L-thyroxine(T4)onlywhenbiochemical hypothyroidismoccurred,whichmayhaveaffected theoutcome (10–13).Therefore,wedesignedanew randomizedstudy‘Thyrotoxicosis1996(TT96)’

ofpatientsrandomizedtotreatmentwithantithyroiddrugs
EuropeanJournalofEndocrinology(2010) 163 651–657ISSN0804-4643 q 2010EuropeanSocietyofEndocrinology DOI: 10.1530/EJE-10-0475 Onlineversionviawww.eje-online.org Downloaded from Bioscientifica.com at 03/07/2023 09:21:26PM via free access

betweenradioiodineandmedicaltreatmentofGraves’ hyperthyroidism,inwhichbothstudygroupsreceived L-T4 earlyafteradministrationofradioactiveiodine (131I)andafterantithyroiddrugs(ATDs)toprevent hypothyroidism.TheincreasedriskofTAOassociated with 131Itreatmentwasreconfirmed (14).Whenthe TT96studywasplannedin1994–1996,wedesigned thestudytoalsoaddressQoLaspectsandaddedthe 36-itemShortFormHealthStatusSurvey(SF-36) questionnairetothefollow-upparameters.Thereason forthatwasinouroriginalstudy (9),wehadobserveda decreasedmentalscoreandvitalityforallthree treatmentmodalitiesonafollow-up2yearslater (15).

Wehavealsoshownthatallthreetreatmentgroups hadalowerQoLcomparedtoanage-matchedSwedish referencepopulationgroupatlong-termfollow-upat17 years (16).However,apossibleimpactofTAOonthe QoLscoreswasnottakenintoaccount.Inthepresent study,wereporttheQoLresultsfromourlarge randomizedstudy,TT96,inGraves’patientstreated withradioiodineorATD (14).

Materialsandmethods Studydesign

Thestudywasdesignedasanopen,randomized, prospectivemulticentertrial.Patientswererandomized toradioiodine(groupI)ormedicaltreatment(groupM) withineachcenter(stratifiedrandomization).Randomizationwasmadeinblocksovertimeandwasperformed bytheOncologicalCentreattheKarolinskaUniversity HospitalinStockholm.(Formoredetails,seeTraisk etal.2009.)

Thestudywasapprovedbytheethicscommitteeof theKarolinskaInstitute(Ref.:KI96-096).

Patients

Inclusioncriteriawereasfollows:age,35–69years; symptomaticGraves’hyperthyroidism;confirmationof thediagnosisbyserumTSH(%0.1mIU/l)andelevated tri-iodothyronine(T3)and/orfreeT4;thyroiduptakeof 131I;andradionuclidescanscompatiblewithGraves’ disease,i.e.anevendistributionofradionuclide. Furthermore,theactivityofanorallyadministered doseof 131I(ascalculatedtogivethepatientan absorbedradiationdoseof120Gytothethyroidgland) shouldnotexceed600MBq,enablingthetherapytobe givenonanoutpatientbasis(seeformulain 131I section).Thisimpliedthatpatientswithlargegoiters wereexcluded.Patientswithaprevioushistoryof treatmentwithATDs, 131I,orthyroidsurgerywere excludedaswellaspatientswithsevereTAOrequiring treatmentwithcorticosteroidsatthetimeofinclusion. Thiswasdonebecauseconcomitantsteroidtreatment wouldlimitthepossibilitytoevaluatetheeffectofthe

treatmentforGraves’diseaseonworseningordevelopmentofTAO.Additionalexclusioncriteriawere incipienttoxiccrisis,coronaryheartdisease,pregnancy, breast-feeding,orpregnancyplannedwithinthe following2years.Thetotalnumberofpatientsthat mettheinclusioncriteriaisnotknown,butthereported caseswere482.Atotalof333patientsgavetheir informedconsenttoparticipateandwereenrolledinthe study.Forethicalreasons,clinicaldatawerenot documentedforthepatientswhodidnotwishto participateordidnotmeettheinclusioncriteria.Ofthe 333patientsenrolledinthestudy,20patientswere excluded,1patienthadanincorrectdiagnosis(Hashimotothyroiditis),17hadnoophthalmologicalassessmentatrandomization,and2hadnofollow-upvisits. Theseexcludedpatientshadanaverageageof50.1 years,themale/femaleratiowas5/15;of18patients,5 weresmokers,and2weremissingdata.Thenumberof patientsbelongingtoeachcenterwasasfollows: Gothenburg,58;Lund,40;Malmoe,73;andStockholm,142patientsrespectively.

Altogether,313patientswereincludedinthestudy group:150patientsinthemedicaltherapygroup (groupM)and163patientsintheradioiodinegroup (groupI).Twenty-twopatientsintheradioiodine-treated grouphadTAOatthetimeofrandomization,and53 patientsdeveloped denovo ophthalmopathy.Theradioiodinegroupthuscomprises75patientswithTAO.Inthe medicalgroup,19patientshadTAOatentry,and23 patientsdeveloped denovo ophthalmopathy(eyeproblem developedinpatientswhichatinclusiondidnothaveeye problems),togetherthus42patients.Outofthose,two patientswereexcludedfromthepresentreportduetolack ofSF-36scoreatbaseline.Threemorepatientswithout TAOinthemedicallytreatedgroupswereexcluded duetolackofSF-36questionnaire.Takentogether, thisreportthereforecomprisesof308patients(Fig.1).

Thedifferencesbetweenthemedicalandradioiodine groupswerenon-significant(fordetails,see Table1 in Traisk etal .2009).Thecumulativedropout(last observationcarriedforward)fromtheophthalmological

Figure1 PatientsinwhichbotheyescoreandSF-36questionnaire wereavailableatbaselineaccordingtotreatment(131Iandmedical therapy)andpresenceofTAOatbaselineordeveloped denovo duringthestudy.

Study group 308 131I (TAO) 75 131I (no TAO) 88 Medical therapy (TAO) 40 Medical therapy (no TAO) 105
652 MAbraham-Nordlingandothers EUROPEANJOURNALOFENDOCRINOLOGY(2010) 163 www.eje-online.org Downloaded from Bioscientifica.com at 03/07/2023 09:21:26PM via free access

follow-upingroupIandgroupMrespectivelywas asfollows:at1year,3and1%;at2years,6and3%; andat3years,10and9%respectively.At4years (i.e.afterprotocolforophthalmologicalfollow-up),20% ofthepatientsinbothgroupswerestillfollowedby ophthalmologists.

TreatmentforGraves’hyperthyroidism

Medical Methimazolewasgiven15mgtwicedaily,and atday14,50 mgof L-T4 wasadded,anditwasincreased to100 mgdaily2weekslater.

At6weeks,thedoseof L-T4 wasadjustedto normalizethelevelsofserumT3 andfreeT4 andto bringTSHto !0.4mIU/l.AslightlyelevatedserumfreeT4 wasacceptedupto20%abovetheupper normallimit.Beta-blockerswereusedforsymptomatictreatment.Patientsshowingseriousadverse reactionstomethimazolereceivedalternativetreatment.Methimazolewasreplacedby150mgpropylthiouracilthreetimesdailyinpatientswithminor adversereactions.

ATDtherapywasdiscontinuedafter18monthswith anadditionalmonthof L-T4 substitutionof100 mgdaily, whichthereafterwasdiscontinued.

131I Beta-blockerswereusedaspretreatmenttothe radioiodinetherapy.Theintentionwastogiveonedose ofradioactiveiodine,aimingforanestimatedabsorbed radiationdoseinthethyroidglandof120Gy.The administeredactivitywascalculatedusingthefollowing formula (10):Activity(MBq)Z(23.4!thyroidmass (g)!120(Gy))/(estimateduptake(0h;%)!effective half-life(days)).Thethyroidmasswasassessedby thyroidscintigraphyandbypalpation.Referencemodels ofathyroidglandwereusedtoaidtheassessment(30, 40,50,and60ml).Theeffectivehalf-lifeof 131Iandthe estimatedthyroiduptakeat0hwerecalculated fromtheinitial24hthyroidiodineuptakeandanew uptaketest4–9dayslater,i.e.thesamedaythe radioiodinetherapywasgiven. L-T4 substitutionwas administeredwiththesametypeofregimenasusedin groupM.

Follow-upbythyroidologist(endocrinologist oroncologist)

Thepatientswerefollowedupbyathyroidologist fourtimesinthefirstyearandthenonetotwotimes yearly(endocrinologistoroncologist)wherethetreatmentforhyperthyroidismwasmonitoredbyclinical assessmentandlaboratoryevaluationsAtthefirstvisit andafter3,12,24,36,and48months,theyanswered theSwedishversionofthevalidatedgenericMedical OutcomeStudy(MOS)SF-36questionnaire.Ifatany timeTAOdevelopedordeteriorated,thepatientswere referredtotheophthalmologistforadditionaleye examinations.(Fordetails,see(14)).

Follow-upbyophthalmologistandSF-36 Withinthefirst2weeksfollowingenrollment,all patientswereseenbyanophthalmologistandthereafterat3,12,24,and36monthsaspartofthe studyprotocolandadditionallyifTAOdeveloped.(For details,see(14)).

After36months,additionalassessmentswere performedattheeyeclinicuponreferralbythe thyroidologistsorifthepatientswerefollowedup becauseofestablishedTAO.Also,duringthe4-year follow-up,patientswithactiveTAOhadeyeassessments byophthalmologistsevery6weeksuntilthecondition hadmarkedlyimproved.Ateachvisitattheeye clinic,visualacuity,proptosis,eyelidretraction,eyelid swelling,chemosis,conjunctivalredness,impairment oftheeyemovements,cornealulceration,andoptic nerveinvolvementweredocumented(seesupplemental dataof(14)).Eyelidretractionalonewasnotclassifiedas TAO.Withineachcenter,themajorityofpatientswere followedbythesameophthalmologistthroughout thestudy.

Forthesetcriteria(worseningordevelopment andimprovementofTAO),twoofthefollowing fourdecisivefactorswererequired(comparedwith baselinedata):i)changeinexophthalmometryreadings of2mmormore;ii)improvementordeteriorationof thepatient’seyemovementsbetweenthefourscoring levels(noimpairment,clearlyimpaired,diplopiain theprimaryposition,andfixationoftheglobe); iii)changesofvisualacuitycausedbyopticneuropathy; andiv)changesintwoofthethreeTAOactivity measures(chemosis,eyelidedema,andconjunctival redness).Thepatientswhodidnotmeetthecriteria ofimprovementorworseningordevelopmentofTAO werereferredtoashavingnochangeofTAO.

SF-36 SF-36 QoLwasmeasuredwiththeSwedishversionof theMOSSF-36 (17–20)
No.ofpatients (%) Treatment WithoutTAOWithTAO Total Medical105(72.4%)40(27.6%)145 Radioiodine88(54.0%)75*(46.0%)163 Allgroups193115308 *PZ0.0009,Pearson c 2 test. TAO;QoLfollow-upofpatients 653 EUROPEANJOURNALOFENDOCRINOLOGY(2010) 163 www.eje-online.org Downloaded from Bioscientifica.com at 03/07/2023 09:21:26PM via free access
Table1 Thepresenceorabsenceofthyroid-associatedophthalmopathy(TAO)atbaselineorfollowingtreatmentinthetwo treatmentgroups.

Thequestionnaireincludes36itemsthatcanbe classifiedintothefollowingeighthealthstatussubscales:physicalfunctioning,physicalrolelimitations, bodilypain,generalhealthperception,vitality,social functioning,emotionalrolelimitations,andmental health.Astandardizedphysicalcomponentsummary (PCS)andastandardizedmentalcomponentscorewere calculated (20).InSF-36,eightsubscalesaresummary scalestransformedtorange0–100,whilethePCSand thementalcomponentsummary(MCS)areweighted scores,constructedtomeanZ50and S.D.Z10 (17–20).

Statisticalanalysis

TheresultfromtheSF-36scorescomprisesofeight subscales,whicharesummaryscalestransformedto range0–100,whilePCSandMCSareweightedscores, constructedtomeanZ50and S.D.Z10.

Thestatisticalanalysesthatwereusedwerethe Mann–Whitney U testandthePearson c 2 test.TheSAS Systemwasusedforanalysis.

Results

Patientswhohadexperienceddevelopmentorworseningofeyeproblemsatanytimepointduringthe4-year studyperiod(TAOgroup)hadlowerQoLestimatedby theSF-36questionnairewhennoattentionwaspaidto themodeoftreatment.TheTAOgroupatbaseline alreadyhadasomewhatlowerMCSscore,althoughnot

statisticallysignificant.Throughoutthewholestudy period,theTAOgrouphadlowerMCSandPCSforthe first3years(Fig.2aandb).

Tostudythepossibleinfluenceoftreatmentmodality ontheoccurrenceofTAO,wethusfoundthatmore patients(nZ75)whohadradioiodinetreatmenthad experiencedTAOatentryoratsometimepointsduring thestudyperiodascomparedwiththe40medically treatedpatients(P!0.0009, Table1).

TherewerenodifferencesintheresultsoftheSF-36 scoresbetweenthetwotreatmentgroups. Figure3 showstheMCSandPCSscores.Itisevidentfrom Fig.3 thatatdiagnosis(month0)ofGraves’disease,both groupshaddecreasedQoLSF-36scoreascompared withtheSwedishreferencepopulation.TheQoLscores increasedinbothtreatmentgroupsduringthestudy. Alreadyafter3months,thephysicalcomponentscore reachedtheaveragefortheSwedishreferencepopulation(score50)andremainedatthislevelthroughout thestudyperiod(48months; Fig.3a).Themental componentscoreshowedsomedelayinboththe radioiodineandmedicallytreatedgroupstoreachthe averagescoreof50notuntil12months.Thereafter, thementalcomponentscoreremainedratherconstant for3yearsoratleastuntil48months(Fig.3b).

Comparisonsbetweenthetwogroupsofpatients withoutTAOshowednosignificantdifferences inQoLregardlesswhethertheyhadbeentreatedwith radioiodineorATDs.

Comparisonsbetweenthegroupofpatientswhohave hadTAOversusthegroupwithoutTAO,inrelationto

0312243648 Months MCS 30 35 40 45 50 55 Score c b a No TAO TAO Mean Swedish pop PCS 30 35 40 45 50 55 0312243648 Months Score No TAO TAO a bc Mean Swedish pop (a) (b)
(Mann–Whitney U test).(a);a, PZ0.022;b, PZ0.008;c, PZ0.046. (b);a, PZ0.033:b, PZ0.007;c, PZ0.051. PCS 0 10 20 30 40 50 60 0312243648 Months 0312243648 Months Score Radioiodine Medical Mean Swedish pop Radioiodine Medical Mean Swedish pop MCS 0 10 20 30 40 50 60 Score (a) (b)
Figure2 (aandb)Theresultsofthecombinedmentalcomponent scoreinSF-36questionnaireforthegroupwherethepatients hadTAOanytimeduringthestudyperiodandthegroupwhere thepatientsneverhadTAOindependentofmodeoftreatment
654 MAbraham-Nordlingandothers EUROPEANJOURNALOFENDOCRINOLOGY(2010) 163 www.eje-online.org Downloaded from Bioscientifica.com at 03/07/2023 09:21:26PM via free access
Figure3 (aandb)TheresultsoftheSF-36questionnaireforthetwo treatmentgroupsshowthattherewerenodifferencesbetween them(Mann–Whitney U test).

Table2 Patientswiththyroid-associatedophthalmopathy(TAO)and36-itemshortformhealthstatussurveyinrelationtotreatment group.Thetableshows,forbothtreatmentgroups,alltimepointsduringthestudywhenpatientswithTAOasagrouphada significantlydecreasedQoLcomparedwithpatientswithoutTAO.Analysesweredoneforalltimepoints,butonlysignificantresultsare shown(Mann–Whitney U test).

treatmentsandtime,showedsignificantlydecreased QoL(SF-36)scoresfortheTAOgroupsatseveraltime pointsduringthestudy(Table2).

Inthewholestudygroup,thefrequencyof patientswithmoresevereophthalmopathywashighest at1yearafterenrollment,11.2%)comparedwith6.1% atbaseline.Severeophthalmopathywasdenotedhere asincreaseofproptosisof3mmormoreand/or deteriorationofeyemotilitycomparedtobaselinedata.

Atthe1-yeartimepoint,therewasnoclear correlationassociationbetweentheobjectiveeyescore andPCSandMCS.Neitherwerethereanysignificant differencesbetweenthosewitheyescoresabove3 orbelow3timepointswithrespecttoPCSandMCS.

Discussion

Thepatientswerethoroughlyandequallycontrolledin bothtreatmentgroupsthroughoutthefollow-upperiod. Inaddition,hypothyroidismwasavoidedbyearly additionof L-T4 inbothtreatmentgroups.

Whennoconsiderationofthemodeoftreatmentwas takenintoaccount,itwasclearthatpatientswithTAO hadasignificantlydecreasedQoLforaconsiderable amountoftimeaftertreatment(Fig.2 aandb).

Thisobservationcorroboratedearlierfindingbyothers whenaneye-specificquestionnairehadbeenused (6–8). Hypothyroidismafterradioiodinetreatmenthasbeen consideredtoincreasetheriskofTAO.However,nosuch

Treatment/timepoint0months3months12months24months36months48months PCS Radioiodine Medical nZ33, PZ0.0323 MCS Radioiodine nZ62, PZ0.0187 nZ66, PZ0.0056 Medical Physicalfunctioning Radioiodine Medical nZ33, PZ0.0035 Physicalrole Radioiodine Medical nZ33, PZ0.0111 nZ19, PZ0.0202 Bodilypain Radioiodine Medical nZ30, PZ0.0174 nZ34, PZ0.0080 Generalhealth Radioiodine nZ64, PZ0.0220 Medical nZ29, PZ0.0363 nZ35, PZ0.0348 nZ34, PZ0.0345 nZ27, PZ0.0324 Vitality Radioiodine nZ62, PZ0.0382 Medical nZ19, PZ0.0312 Socialfunctioning Radioiodine nZ62, PZ0.0072 nZ67, PZ0.0326 Medical nZ34, PZ0.0032 Emotionalrole Radioiodine nZ67, PZ0.0248 Medical nZ33, PZ0.0046 Mentalhealth Radioiodine nZ62, PZ0.0454 Medical nZ35, PZ0.0142 nZ34, PZ0.0190 nZ27, PZ0.0411 TAO;QoLfollow-upofpatients 655 EUROPEANJOURNALOFENDOCRINOLOGY(2010) 163 www.eje-online.org Downloaded from Bioscientifica.com at 03/07/2023 09:21:26PM via free access

associationcouldberevealedina posthoc analysisofa randomizedprospectivestudy (21).Furthermore,inthe presentstudywherehypothyroidismwasavoided,an increasedriskofTAOassociatedwithradioiodinewas stillobserved.Thestudythussupportedtheconceptof radioiodineasanindependentriskfactorfordevelopmentorworseningofTAOaswehadproposedearlier (9,22).ThestudyalsoshowedthatQoLwasrather equalinbothtreatmentgroupswhennoattentionwas paidtothepossibleinfluenceofTAO(Fig.3aandb). Interestingly,theimprovementinmentalQoLwas somewhatslowertonormalizeascomparedwiththe physicalperformancecapacity.Inpreviousstudies,we haveobservedthatpatientswithGraves’hyperthyroidismhadlowermentalQoLscoresatfollow-upafter treatment (16).Mostlikely,thenegativeinfluenceon normalbrainfunctionsbythehyperthyroidphase beforetreatmentmayhavetakenaconsiderable amountoftimetoresolveafterstartoftreatment.

Accordingto Fig.3 b,ittook3monthsforthe radioiodinegroupandalmostayearforthemedically treatedgrouptoreachtheaverageof50pointsforthe Swedishreferencepopulation.Thepatientswere substitutedtohaveaTSHvalue !0.4mIU/l,and whetherthiswasofimportancefortheratherslow improvementinmentalQoLisopentospeculation.

TheobservationthattheQoLscoreswererather equalinbothtreatmentgroupswasapositiveoutcome oftreatmentofsuchacommonandseriousdisease.The findingalsocorroboratesourpreviousresultsfrom TT83thatthemodeoftreatmentdidnotsignificantly affecttheQoLasestimatedbythegenericquestionnaire SF-36 (16,23).However,inthisanalysis,noattention waspaidtowheninthestudyperiodeyeproblems occurredortheclinicalcourseofTAO.Thiscould potentiallyhaveequaledoutpossibleinfluencesofTAO onSF-36scoring.Wethereforeperformedasubsequent analysisofwhenduringthefollow-upperiodtheTAO occurredineachtreatmentgroup(Table2).Patients withTAOgenerallyhadsignificantlylowerQoLscores ascomparedwithpatientswithoutTAOatseveraltime points,butnoconsistenttreatment-ortime-related patterncouldbefound.However,patientswithoutTAO neverhadlowerQoLcomparedwithTAOpatients. PatientswithTAO,ontheotherhand,hadlowerSF-36 scoresindependentofthemodeoftreatment.

Itisimportanttokeepinmindthatthematerialwas analyzedinthewaythatonceapatientexperienced TAOthatparticularpatientwasincludedintheTAO groupwithoutregardtothetimepointduringthestudy theeventoccurred.Therefore,wehaveanalyzedthe relationbetweentheSF-36scoreandTAOatthe1-year follow-upwheretheTAOpatientshadthehighesteye scores (14).Thiswasdoneinanattempttoexplore whethertheSF-36questionnaireatalltimepoints reflectedtheinfluenceofeyeproblemsonQoL,sinceitis possiblethatthepatients’responsetothequestionsin SF-36mayhavereflectednotonlytheprobableeye

problemsbutalsotheGraves’disease(GD)initself.The 1-yearfollow-upwasselectedsincepreviousstudies haveshownthatthemajorityofpatientsfeltrather wellat1year.

TheresultofthisanalysisshowedthattheSF-36due toitsgenericpropertiesisnotanoptimalinstrument formeasuringQoL-relatedissuesinthispopulation. Acaveatofthisstudythereforeisthepossibilitythatthe SF-36questionnairedoesnotcapturealltheappropriatequality-of-lifeissuesthatarerelevantforpatients whohavehadGD.AlthoughtheSF-36isused extensively,ithasnotbeenspecificallyevaluatedina populationofGDpatients,butneitherhaveother disease-specificinstruments.However,theHyperthyroidismComplaintQuestionnairedevelopedby Fahrenfort etal (4) hasapproachedthisissuewith respecttolong-termcomplaints.Wehowever,decidedto usetheSF-36,forthefollowingimportantreasons. TheSF-36questionnairehasbeenextensivelyevaluated inalargeage-matchedSwedishreferencepopulation, allowingustomakeanappropriatecomparisonwith ourstudygroup.Anothercaveatofthestudyisthat itdidnotcoverthewholespectrumofeyeproblems associatedwithGraves’ophthalmopathysincepatients withthemostsevereTAO,whoatinclusionrequired steroidtreatment,werenotincluded.

Conclusions

TheQoLinpatientswithGraves’ophthalmopathywas similarinradioiodineandmedicallytreatedpatients, butpatientswhodevelopedorhadworseningofTAO haddecreasedQoLindependentofmodeoftreatment. Furthermore,patientswithTAOrecoveredphysically within1year,butittooktwiceaslongforthemto recovermentally.TheQoLinpatientswithoutTAO seemedtobeindependentofmodeoftreatment.

Declarationofinterest

Theauthorsdeclarethatthereisnoconflictofinterestthatcouldbe perceivedasprejudicingtheimpartialityoftheresearchreported.

Funding

Thisresearchdidnotreceiveanyspecificgrantfromanyfunding agencyinthepublic,commercialornot-for-profitsector.

Acknowledgements

WethankElisabethBjurstedtattheDepartmentofOncology, Radiumhemmet,forsecretarialhelp.

TheThyroidStudyGroupoftheTT96trialisrepresentedbythe authorslistedaboveandthefollowingcollaborators:LTallstedtfrom DepartmentofClinicalNeurosciences,StErikEyeHospital;VPonjavic fromDepartmentsofEndocrinologyandOphthalmology,Lund UniversityHospital;ATaubefromDepartmentofInformationScience, UniversityofUppsala;TAnderssonfromDepartmentofOphthalmology,SahlgrenskaUniversity;GLindstedtfromtheDepartmentof ClinicalChemistry,SahlgrenskaUniversityHospital,Gothenburg;

656 MAbraham-Nordlingandothers EUROPEANJOURNALOFENDOCRINOLOGY(2010) 163 www.eje-online.org Downloaded from Bioscientifica.com at 03/07/2023 09:21:26PM via free access

AMichanekfromtheDepartmentofOncology,SahlgrenskaUniversity Hospital,Gothenburg;KNorrsellfromtheDepartmentofOphthalmology,SahlgrenskaUniversityHospital,Gothenburg;SValdemarssonfromtheDepartmentofEndocrinology,LundUniversityHospital; MGarkavij,JTennvall,andHWidmarkfromtheDepartmentof Oncology,LundUniversityHospital;GStigmarfromtheDepartment ofOphthalmology,Lund UniversityHospital;A ˚ Arwidiand GBjelkengrenfromtheDepartmentofOncology,MalmoeUniversity Hospital;BHemdahlandHJo¨nssonfromtheDepartmentof Radiophysics,MalmoeUniversityHospital;CBeckerfromthe DepartmentofClinicalChemistry,MalmoeUniversityHospital;B Freyschuss,JHoffstedt,OTullgren,HWahrenberg,andAWennlund fromtheDepartmentofEndocrinology,KarolinskaUniversityHospital (Huddinge),Stockholm;SRo¨jdmark,MSa¨a¨f,andMThorenfromthe DepartmentofEndocrinology,KarolinskaUniversityHospital(Solna), Stockholm;BHambergerfromtheDepartmentofSurgery,Karolinska UniversityHospital,Stockholm;andHBlomgren,CHilding,and A-LHjelmSkogfromtheDepartmentofOncology,Karolinska UniversityHospital,Stockholm.

References

1Abraham-NordlingM,TorringO,LantzM,HallengrenB, OhrlingH,LundellG,CalissendorffJ,JorneskogG&WallinG. IncidenceofhyperthyroidisminStockholm,Sweden,2003–2005. EuropeanJournalofEndocrinology 2008 158 823–827.(doi:10. 1530/EJE-07-0877)

2LantzM,Abraham-NordlingM,SvenssonJ,WallinG& HallengrenB.ImmigrationandtheincidenceofGraves’ thyrotoxicosis,thyrotoxicmultinodulargoiterandsolitarytoxic adenoma. EuropeanJournalofEndocrinology 2009 160 201–206. (doi:10.1530/EJE-08-0548)

3BahnRS&HeufelderAE.PathogenesisofGraves’ophthalmopathy. NewEnglandJournalofMedicine 1993 329 1468–1475.(doi:10. 1056/NEJM199311113292007)

4FahrenfortJJ,WilterdinkAM&vanderVeenEA.Long-term residualcomplaintsandpsychosocialsequelaeafterremissionof hyperthyroidism. Psychoneuroendocrinology 2000 25 201–211. (doi:10.1016/S0306-4530(99)00050-5)

5GerdingMN,TerweeCB,DekkerFW,KoornneefL,PrummelMF& WiersingaWM.QualityoflifeinpatientswithGraves’ophthalmopathyismarkedlydecreased:measurementbythemedical outcomesstudyinstrument. Thyroid 1997 7 885–889.(doi:10. 1089/thy.1997.7.885)

6EgleUT,KahalyGJ,PetrakF,HardtJ,BatkeJ,BestJ& RothenbacherM.Therelevanceofphysicalandpsychosocial factorsforthequalityoflifeinpatientswiththyroid-associated orbitopathy(TAO). ExperimentalandClinicalEndocrinology andDiabetes 1999 107 (Suppl5)S168–S171.(doi:10.1055/ s-0029-1212177)

7KahalyGJ,HardtJ,PetrakF&EgleUT.Psychosocialfactorsin subjectswiththyroid-associatedophthalmopathy. Thyroid 2002 12 237–239.(doi:10.1089/105072502753600205)

8TerweeC,WakelkampI,TanS,DekkerF,PrummelMF& WiersingaW.Long-termeffectsofGraves’ophthalmopathyon health-relatedqualityoflife. EuropeanJournalofEndocrinology 2002 146 751–757.(doi:10.1530/eje.0.1460751)

9TallstedtL,LundellG,TorringO,WallinG,LjunggrenJG, BlomgrenH&TaubeA.Occurrenceofophthalmopathyafter treatmentforGraves’hyperthyroidism.TheThyroidStudyGroup. NewEnglandJournalofMedicine 1992 326 1733–1738.(doi:10. 1056/NEJM199206253262603)

10AlmqvistS&AlgvereP.Hypothyroidisminprogressive ophthalmopathyofGraves’disease. ActaOphthalmologica 1972 50 761–770.(doi:10.1111/j.1755-3768.1972.tb06615.x)

11KungAW,YauCC&ChengA.Theincidenceofophthalmopathy afterradioiodinetherapyforGraves’disease:prognosticfactors andtheroleofmethimazole. JournalofClinicalEndocrinologyand Metabolism 1994 79 542–546.(doi:10.1210/jc.79.2.542)

12GormanCA.Therapeuticcontroversies.Radioiodinetherapy doesnotaggravateGraves’ophthalmopathy. JournalofClinical EndocrinologyandMetabolism 1995 80 340–342.

13AcharyaSH,AvenellA,PhilipS,BurrJ,BevanJS&AbrahamP. Radioiodinetherapy(RAI)forGraves’disease(GD)andtheeffect onophthalmopathy:asystematicreview. ClinicalEndocrinology 2008 69 943–950.(doi:10.1111/j.1365-2265.2008.03279.x)

14TraiskF,TallstedtL,Abraham-NordlingM,AnderssonT,BergG, CalissendorffJ,HallengrenB,HednerP,LantzM,NystromE, PonjavicV,TaubeA,TorringO,WallinG,AsmanP&LundellG. Thyroid-associatedophthalmopathyaftertreatmentforGraves’ hyperthyroidismwithantithyroiddrugsoriodine-131. Journalof ClinicalEndocrinologyandMetabolism 2009 94 3700–3707. (doi:10.1210/jc.2009-0747)

15LjunggrenJG,TorringO,WallinG,TaubeA,TallstedtL, HambergerB&LundellG.Qualityoflifeaspectsandcostsin treatmentofGraves’hyperthyroidismwithantithyroiddrugs, surgery,orradioiodine:resultsfromaprospective,randomized study. Thyroid 1998 8 653–659.(doi:10.1089/thy.1998.8.653)

16Abraham-NordlingM,TorringO,HambergerB,LundellG, TallstedtL,CalissendorffJ&WallinG.Graves’disease:a long-termquality-of-lifefollowupofpatientsrandomizedto treatmentwithantithyroiddrugs,radioiodine,orsurgery. Thyroid 2005 15 1279–1286.(doi:10.1089/thy.2005.15.1279)

17SullivanM,KarlssonJ&WareJEJr.TheSwedishSF-36Health Survey–I.Evaluationofdataquality,scalingassumptions, reliabilityandconstructvalidityacrossgeneralpopulations inSweden. SocialScience&Medicine 1995 41 1349–1358. (doi:10.1016/0277-9536(95)00125-Q)

18PerssonLO,KarlssonJ,BengtssonC,SteenB&SullivanM. TheSwedishSF-36HealthSurveyII.Evaluationofclinical validity:resultsfrompopulationstudiesofelderlyandwomenin Gothenborg. JournalofClinicalEpidemiology 1998 51 1095–1103. (doi:10.1016/S0895-4356(98)00101-2)

19SullivanM&KarlssonJ.TheSwedishSF-36HealthSurveyIII. Evaluationofcriterion-basedvalidity:resultsfromnormative population. JournalofClinicalEpidemiology 1998 51 1105–1113. (doi:10.1016/S0895-4356(98)00102-4)

20WareJEJr&SherbourneCD.TheMOS36-itemshort-formhealth survey(SF-36).I.Conceptualframeworkanditemselection. MedicalCare 1992 30 473–483.(doi:10.1097/00005650199206000-00002)

21TorringO,TallstedtL,WallinG,LundellG,LjunggrenJG,TaubeA, SaafM&HambergerB.Graves’hyperthyroidism:treatment withantithyroiddrugs,surgery,orradioiodine–aprospective, randomizedstudy.ThyroidStudyGroup. JournalofClinical EndocrinologyandMetabolism 1996 81 2986–2993.(doi:10. 1210/jc.81.8.2986)

22BartalenaL,MarcocciC,BogazziF,ManettiL,TandaML, Dell’UntoE,Bruno-BossioG,NardiM,BartolomeiMP,LepriA, RossiG,MartinoE&PincheraA.Relationbetweentherapy forhyperthyroidismandthecourseofGraves’ophthalmopathy. NewEnglandJournalofMedicine 1998 338 73–78.(doi:10.1056/ NEJM199801083380201)

23LundgrenE&BorupChristensenS.Decreasingincidenceof thyrotoxicosisinanendemicgoitreinlandareaofSweden. Clinical Endocrinology 1990 33 133–138.(doi:10.1111/j.1365-2265. 1990.tb00473.x)

Received21June2010

Accepted21July2010

TAO;QoLfollow-upofpatients 657 EUROPEANJOURNALOFENDOCRINOLOGY(2010) 163 www.eje-online.org Downloaded from Bioscientifica.com at 03/07/2023 09:21:26PM via free access

Turn static files into dynamic content formats.

Create a flipbook
Issuu converts static files into: digital portfolios, online yearbooks, online catalogs, digital photo albums and more. Sign up and create your flipbook.