Oley 2023 Attendee Packet

WHY SHOULD I ATTEND? WHY SHOULD I ATTEND?

CONSUMERS CONSUMERS

Lower incidence of cather-related sepsis

Reduces reactive depression

Improve quality of life

Gain tools and confidence to manage therapy

Achieve a sense of normalcy

Meet people with similar experiences

Learn to express your health care needs with assurance

Access the latest information on nutrition support

Meet others on home tube feeding and/or IV nutrition

Local emergency room information will be identified

Nursing/pharmacy backup support has been arranged

Hotel is aware of supplies & shipping needs

Refrigerators in every room

CLINICIANS CLINICIANS

“I learned things and met people that changed my life.”

HPEN Consumer

Learn best management practices for home parenteral & enteral nutrition

World class speakers

Unique opportunity to learn with, and from, consumers

Relaxed atmosphere conducive to learning and networking

Become a better resource for your colleagues and patients

“I learn more at the Oley conference than I do at nearly any other clinical meeting I attend.”

HPN Clinician

More Information/Registration

For Updates and to Register go to: oley.org/Oley2023

Call the Oley Foundation at (518) 262-5079 or E-mail harrinc@amc.edu.

Registration includes access to all educational sessions & on-site events

Registrants are responsible for their own hotel and transportation .

Registration:

Consumers/families: Free of charge

Professionals/members of industry: $250 before May 31; $300 June 1 or later

Conference Headquarters & Housing

Hyatt Regency St. Louis at The Arch

Book online: https://www.hyatt.com/en-US/groupbooking/STLRS/G-OLEY

Direct link available from Oley website.

Or call: +1 314 655 1234

Mention you are with the Oley Consumer & Clinician Conference

The room rate is $159/night for single occupancy, is open through June 2, and will be honored three days pre and post conference, based on availability.

Parking: $30/day at hotel, nearby parking options available Book early; we’ve sold out in past years!

Get

For Consumers For Consumers Medical Medical IInformation nformation

Medical Support

Local hospitals will be notified that HPEN consumers are in town. Inform your homecare company in advance that you are traveling. If your homecare company is unable to assist you in the case of an infusion emergency during the conference, emergency infusion backup support will be available.

For unexpected nutrition support needs:

Contact your homecare company first.

If your homecare company cannot meet your needs, Coram/CVS specialty infusion services is available to assist with troubleshooting and to provide emergency nursing and pharmacy infusion services.

For direct assistance:

Contact an on-site Coram attendee (or Oley staff member)

Michael Medwar, Patient Advocate

(508) 254-3638

Dacyl Spillane RD, CNSC, National Nutrition Manager

(310) 922-4537

Tara Maddi RD, Director of Strategy

(646) 761-2707

If the on-site attendees are not available, call:

Lynn Koepke RD, CNSC, Coram Nutrition Liaison

(262) 606-3431

Identify yourself as an Oley Conference participant

The Coram on-site team will coordinate with the Coram pharmacy to best address your needs

Formula and supplies can be dispensed with appropriate physicians orders and confirmed method of payment

Shipping HPEN Supplies

Ensure package is labeled with:

Hold for Guest: (Name) (Mobile Number)

c/o FedEx Office at Hyatt Regency St Louis at The Arch 315 Chestnut Street

St. Louis, MO 63102

The Oley Foundation Annual Conference

Make sure items that need to be refrigerated are clearly marked

If your homecare company uses FedEx, Oley will cover any receiving costs incurred. Upon pickup of package(s), inform FedEx staff you are with the Oley Conference and that there is a credit in place for shipment receipt.

Hospital

Barnes-Jewish

Phone Number: 314-747-3000

Address: One Barnes Jewish Hospital Plaza

Distance from Venue: 5 1 miles

Urgent Care

Downtown Urgent Care

Phone Number: 314-436-9300

Address: 901 Olive Street

Distance from Venue: .09 miles

Drug Store

Walgreens

Phone Number: 314-371-4286

Address: 4218 Lindell Blvd.

Distance from Venue: 4.3 miles

Thank you to for this support

For Consumers For Consumers

Travel Travel IInformation nformation

Transportation to/from Airport

St. Louis Lambert International Airport

10701 Lambert International Blvd, St Louis, MO

Travel Grants

Thanks to generous donors there are a limited number of $600 travel scholarships available for consumers or family members who care for them (one per family).

Hyatt Regency St. Louis At The Arch

315 Chestnut St, St. Louis, MO

Attendees are responsible for their own transportation

Taxi fare: ~ $40

Uber/Lyft: ~$37-$50

**Fares can vary greatly depending on day and time

These are average estimates but can vary by as much as $30-$50 during a spike

Priority will be given to applicants who will be attending the Oley Annual Conference for the first time, and Oley Ambassadors.

Click here to complete application

Applicants should not be receiving any other financial assistance for travel and/or lodging expenses related to attending the conference. Travel grants are limited to one per family/household Travel must be completed and receipts received by Oley before reimbursement can be made.

Navigating TSA

Oley works closely with the TSA Disability and Medical Conditions Coalition to inform & educate TSA agents about passengers who may come through security with medical devices/supplies/fluid/etc. and how to handle them with care and respect.

We will work to inform St. Louis Lambert International Airport TSA agents to expect members flying in & out between 6/26-7/1.

For more details on travel grants or other ideas to aid with travel costs visit: oley.org/SupportForConfTravel or email harrinc@amc.edu Click

Click here for more travel tips from Oley

A note about service dogs:

Under the Americans with Disabilities Act (ADA), privately owned businesses that serve the public, such as restaurants, hotels, retail stores, taxicabs, theaters, concert halls, and sports facilities, are prohibited from discriminating against individuals with disabilities. The ADA requires these businesses to allow people with disabilities to bring their service animals onto business premises in whatever areas customers are generally allowed

You may exclude any animal, including a service animal, from your facility when that animal’s behavior poses a direct threat to the health or safety of others For example, any service animal that displays vicious behavior towards other guests or customers may be excluded. You may not make assumptions, however, about how a particular animal is likely to behave based on your past experience with other animals Each situation must be considered individually

Schedule of Events Schedule of Events

Tuesday, June 27

12:00 pm–5:00 pm: Early Registration

8:00 am-2:00 pm: Market Research

1:00 pm–3:00 pm: Ambassador Workshop

3:00pm -3:15 pm: Volunteer Info Session

3:15 pm–4:00 pm: First-Time Attendee Orientation

7:00 pm–9:30 pm: Gateway to the Future

80s Themed Reception & Awards

Wednesday, June 28

12:15 pm-2:30pm: Lunch & Exhibit Hall Open

2:30 pm-2:45 pm: Head to Breakout Sessions

2:45 pm-4:45 pm: Roundtable Sessions

Dinner on your own & get ready for fashion show!

7:30 pm-9:00 pm: Silent Auction Fashion Show

Ice Cream Social

Thursday, June 29

am: General EN/PN Session

11:30 am-12:15 pm: General EN/PN Session

12:15 pm-2:30pm: Lunch & Exhibit Hall Open

2:30 pm-2:45 pm: Head to Breakout Sessions

2:45 pm-3:45pm: Breakout Sessions

4:00 pm-5:00pm: Town Hall

5:00 pm-7:30pm: Dinner on your own Closed Session

7:30 pm-9:00 pm Wine and Cheese Social

7:30 pm-9:00 pm Teen Time

7:30 pm-9:00 pm: Jammin Jammies!

9:00 pm-11:00 pm: Karaoke!

Friday, June 30

7:00 am: Continental Breakfast/Walk Registration

9:30 am–9:45 am: Closing Address

9:45 am–10:30 am: General Session

10:30 am-11:15 am: General Session

11:15 am-11:30 am: Break (Get ready for walk-a-thon)

11:30 am-12:15 pm: Walk & Roll-a-Thon

12:30 pm-2:30 pm: Picnic Lunch

(Tentative -- Updates at oley.org and on conference app)

-- Updates at oley.org and on conference app)

For Consumers For Consumers Event Event IInformation nformation

Market Research

Share your experience with tube feeding and/or IV nutrition to help improve the next generation of products.

Make sure your member information is up to date on oley.org

Based on your information, we may reach out to you about potential opportunities to give feedback, take surveys, or participate in focus groups.

For more information: (518) 262-5079 or harrinc@amc.edu

Opportunities are available to qualified participants on a first-come, first-served basis

Exhibit Hall & Exhibitors

The exhibit hall is open for members to connect with our industry partners and meet the people behind the supplies and devices they use every day, as well as learn about new updates in tube feeding and IV nutrition.

For your own knowledge and comfort, industry partners are not to:

Market products or services outside of exhibit hall

Conduct sales

Plan events for consumers

Unless attendees are already using their services

Dispense cash or gift cards

Conduct recruitment interviews or Recruit for future market research

If you witness any of these or other behaviors that make you uncomfortable, please inform Oley Staff or OA.

Ambassador Workshop

Oley Ambassadors will meet on 6/27 from 1:00-3:00

This time will be used to share updates, discuss the role of OAs at the conference, and other workshop activities.

For more information email mary.wootten@oley.org

Volunteers wanted!

Want to help out?

Head to oley.org/page/volunteer & submit a volunteer form!

Staff will follow up with more details regarding specific involvement at the conference and beyond.

There will be an information session at the venue for those who want to volunteer at the event on 6/27 from 3:00 pm-3:15 pm

Silent Auction

We are looking for donations for our Silent Auction. This can be small electronics, jewelry, handmade pieces, games/toys, sports memorabilia, or gift certificates. Please ensure silent auction items are either new or like new. We cannot take damaged or stained items, or items missing pieces.

Bring contributions with you to the event or email marywootten oley@gmail com to discuss shipping arrangements

For Consumers For Consumers

Event Event Information Information

Gateway to the Future Welcome Reception

Let's go back in time to 1983 when Oley was first getting started and Madonna and Springsteen were topping the charts! We'll present HPEN awards and kick off the next three days with some 80s jams and some light dinner fare

Wine & Cheese Social

This will be an opportunity for caregivers to network with one another and enjoy some adult time while kids and teens participate in structured chaperoned activities down the hall.

Jammin' Jammies

Grab your pillows and blankets and hop into those jammies! Join us for a PJ party and a movie! This will be a chaperoned event for kids of all ages where we will be showing a PG movie.

Sponsored by:

Teen Talk

Chill time to chat, do yoga, make art, listen to music, and unwind at the end of the day.

Kidz Klub

Throughoutthesethreedays,wewillhave activitiesplannedforouryoungerattendees.

Staytunedformoredetails!

Reminder:

Thisisnotchildcare.Whiletheseactivitieswillbe chaperonedbyvolunteersandfacilitators, parentsneedtobeavailableandeasytoreachin case.ofemergency. Wecannotchangediapers, hookup,unhook,oradministeranymedicalcare.

PermissionforattendanceinKidzKlub includedinchild'sregistration.

Walk & Roll-a-Thon

Walkathon pledge sheets will be posted at oley.org/AnnualConference and available at registration

T-shirts will be provided to walkers with a suggested minimum donation of $20. Start getting pledges today!

Walk with us around the Arch in St. Louis or join us virtually and walk wherever you are!

Funds raised help support all Oley programs.

For Consumers For Consumers

Event Event IInformation nformation

Wear Your Pump Runway: Fashion Show

A fashion show for HEN and HPN patients living their best life on the go! Demonstrate (and educate us!) on how you wear your pump and take it wherever you go! Show us how you have adapted your nutrition delivery to fit your lifestyle! Show off adaptive clothing or just your favorite outfits!

Open to consumers & caregivers of all ages!

Sign up now!

Categories:

At Work: Professional or formal attire

Maybe you work at an office, maybe you work on 5th Avenue Whatever your best day at work looks like, we want to see it.

At the Beach: Swimwear

Two pieces, one pieces, swim shirts, wet suits, unicorn floaties Sun on your face and the sand at your toes Show us your best beach day outfit

At School: Favorite School Outfit

Got a new outfit picked out for the first day of school already? Maybe a new backpack or some new kicks? Give it a test run before school starts back up

On the Go: Travel/Mobility Device Decor

Deck out your wheelchair or walker, show us how you pack up your tubes to travel, wear your favorite vacation outfit, or your most comfy outfit to wear on a plane!

Most Creative: Costumes!

Questions?

Email andrea.taylor@oley.org

Thank you for their support in making this event a reality!

Want to wear your 80s gear more than once? Got a sweet Ninja Turtle backpack that fits your tubing? Just want an excuse to break out that old Halloween costume? You decide!

$$100PRIZEFOR1STPLACEINEACHCATEGORY!