Edition #36 Central & Western O'Hana Kids News

Page 1

Edition #24 May 2012 Central & Western Nebraska Edition

Edition #36 May 2013

ams W il l i me ro S yn d es s en Aw a r h !! M on t

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

May is Better Speech & Hearing Month May 9 is National School Nurse Day

May 13 is Mother's Day

Proudly serving over 8,500+ families Since June 2010!!-- NOW Across all of Nebraska!!!

Be Sp tter ee He ch & ar M o in g nth

Edition #24 May 2012

Special Needs Mom's June is Father's Day

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

ALL OF US ARE NEED ED!!!

You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed ownSpeech selves with all that weMonth can do! May is our Better & Hearing

Special Needs Mom's

May 9 is National School Nurse Day

We've gained patience beyond measure, love we never dreamed of giving. You may think us “special moms” have it pretty rough. Nebraska Parents, Siblings, Grandparents, We worry future but this “special” life's May 13know islifeMother's Day We have noabout choice.the We just manage when things get reallyworth tough. living! Non-Relative Guardians, Professional, We have bad days and hurt sometimes, but we hold ouritheads up high. We've made it through the days we thought we'd never make through. A Family Member or Caregiver who is legally We've even own selves with all thatoften we can do! we cry. We feel joyimpressed and prideour and thankfulness more than responsible, We've gained patience beyond measure, love we never dreamed of giving. of Children Birth to age 21, For our kids, we aren't just SUPERMOMS, No, we do so much more :) We worry about the future but know this “special” life's worth living! We are cheerleaders, nurses, and therapists who out the door. who have Intellectual &/or Developmental We have bad days and hurt sometimes, but we hold ourdon't headswalk up high. We handle rude remarks and unkindmore stares, with We feel joy and pride and thankfulness often thandignity we cry.and grace. Disabilities

Special Needs Mom's

Even though the pain they bring cannot be erased.

For our kids, we aren't just SUPERMOMS, No, we do so much more :)

You may think us “special moms” have it pretty rough.

We are cheerleaders, nurses, and therapists who don't walk out the door. YOU are NEEDED to take : Therapies and treatment routes are alife lot for dignity usthings to digest, We have no choice. We just manage when really tough. We handle rude remarks and unkind stares, with andget grace. “A Survey of Services for Nebraska Families We know what the future holds, give ournever kids our best. Evendon't though the pain they bring cannot be but erased. We've made it through the days we thought we'd make it through. None of us can be replaced, so we don't getall many of Children Birth-21 with Intellectual &/or We've even impressed our own selves with thatbreaks. we can do! Therapies and treatment are a lot for usany to digest, It wears out, butsurvey to routes helpwill our kids, we'll do whatever takes! The not gather identifyingit information, and is us Developmental Disabilities” We don't know what the future holds, but give our kids our best. therefore anonymous! We've patience beyond measure, lovebreaks. we never dreamed of giving. None ofgained us can be replaced, so we don't getcompletely many

We are selfless, not by choice you see. Our kids just have many needs.

We worry the but know “special”itlife's It wears usabout out, but to future help our kids, we'llthis do whatever takes!worth living! The overall goal of this study is to identify family We're notbad out tosurvey change world, but want to plantour some seeds. This isthe being conducted a hold joint project between The Arc of We have days and hurt sometimes, butas we heads up high. support options available in various parts of the We want our kids accepted. That really is our aim. We are selfless, not by choice you see. Our kids just have many needs. Nebraska the Munroe-Meyer Institute at the University of We feel joy and pride andand thankfulness more often than we cry. We're not out to change the world, but want to plant some seeds. When we look at them, we just see kids. We hope you'll do the same. state of Nebraska for NE families that have a child, Nebraska Medical Center. We want our kids accepted. That really is our aim. birth to age 21, with intellectual &/or For our aren't just No, we dodo sothe much more :) When wekids, look we at them, we justSUPERMOMS, see kids. We hope you'll same. -- April Vernon To request a PAPER version of this survey, contact O’Hana developmental disabilities. The results of this We are cheerleaders, nurses, and therapists who don't walk out the door. -- April Vernon Kids News at 402-227-5304 or ohanakidsnews@gmail.com handle rude remarks and unkind stares, with dignity and grace. survey will be used to guide the Nebraska We Planning Council on Developmental DisabilitiesEven in though the pain they bring cannot be erased. identifying gaps &event barriers in what opportunities Check out any Check out any event Therapies and treatment routes are aexactly lot for us to Type in the LINK asdigest, shown to access are changes, available, the quality of services available, & changes, after publication after publication We don't know what the future holds, but give our kids our best. What's Where??? to develop a&plan that will result in systemsNone of us can be replaced, ONLINE version of Survey: additions & MORE additions MORE so we don't get many breaks. changes will improve both quality & It wears us at that our blog: https://www.surveymonkey.com/s/neddfamilysurvey at our blog: out, but to help our kids, we'll do whatever it takes! Important Tidbits forpages Families Important Tidbits for Families 2 - 6pages 2 - 6 availability of services. www.ohanakidsnews. State-Wide page 6 State-Wide page 6 www.ohanakidsnews. We are selfless, not by choice you see. Our kids just have many needs. blogspot.com Bellevue, Cedar Bluff & Columbus page 7 Bellevue, Cedar Bluff & Columbus pageseeds. 7 blogspot.com We're not out to change the world, but want plant Island some Fremont &to Grand page 8 Fremont & Grand Island page 8 We want our kids accepted. That really is our&aim. For more information, Gretna Hastings page 9 When we look at them, we just see kids.Lincoln We hope you'll the same. Gretna & Hastings page 9 10 do or advertising rates pages - 15 For more information, See pg 3at: for please contact us Norfolk pages 15 - 16 Lincoln pages 10 - 15 or advertising rates North -- April Vernon Norfolk pages 15 -Platte 16 page 16 please What’s contact usWhere? at: 402-227-5304 Omaha pages 16 - 24 ohanakidsnews@gmail.com North Platte page 16 Resources for Families pages x 402-227-5304 FACEBOOK too!! Omaha pages 16 -Theme 24 page Classifieds 29 Available Camp Weeks ohanakidsnews@gmail.com Resources for Families pages x Check out any eventOKN!! Thanks for Reading For Campers Ages 6 – 21 with special needs FACEBOOK too!! Classifieds page 29 changes, after publication of ALL abilities!! Check out our website at additions & MORE Thanks for Reading OKN!! at our blog: Important Tidbits June for 3-­‐7 Families pages “It’s a2 B-ugs 6 Life” www.ohanakidsnews.com June 10-­‐14 page 6 “Back to the Future” State-Wide www.ohanakidsnews. 402-327-2500 June 1could 7-­‐21 Bellevue, Cedar Bluff &could Columbus page information!!! 7at CRCC Manor” blogspot.com us Expand our Reach,Pass Passus us along to you know who use this information!!! HelpHelp us Expand our Reach, along tofamilies families you know who use“Mystery this 8055 O Street, Suite S110 June 24-­‐28 Island page “Out Lincoln, NE 68510 Fremont & Grand 8 of this World” July 1-­‐5 “It’s a Party in the USA” This edition For more information, www.heartlandspeech.com Gretna & Hastings page 9 July 8 -­‐12 Lincoln pages 10 - 15 “Adventure on the High Seas” or advertising Coversrates ALL BUT Find us on FACEBOOK too! July 15-­‐19 “Mad World of Science” Norfolk pages 15 - 16 please contact us at: these counties: July 22-­‐26 “Games Galore” North Platte page 16 July 29-­‐Aug. 2 “Superhero Training Camp” 402-227-5304 Omaha pages 16 - 24 Washington, Dodge, Saunders, August 5-­‐9 “CRCC’s Got Talent” ohanakidsnews@gmail.com Resources for Families pages x Douglas, FACEBOOKSarpy, too!! Cass, Otoe, For More Information or to register Classifieds page for 29 one camp or all of them J

What's Where???

What's Where???

Lancaster, Johnson, Nemaha, Pawnee, Gage, Jefferson & Saline.

Thanks for Reading OKN!!

Contact: Lori Maire at 402-895-4000 or lmaire@crccomaha.org Registration is required in advance of camp!!

Help us Expand our Reach, Pass us along to families you know who could use this information!!!


We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. Edition #24 May 2012 We feel joy and pride and thankfulness more often than we cry. For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.

Classifieds

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. May Better Speech &we'll Hearing Monthit takes! It wears us out,is but to help our kids, do whatever

Buy, Sell, Trade, Give Away or Need

May 9 is National School Nurse Day

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. want ourVODEC: kids accepted. That really is our aim. Machine, Portable WISH We LIST FOR Bingo Machine & Cards, Karaoke WhenDVD’s we look at them, wePopcorn just see kids. We hope&you'll the same. Stereo, CD’s, for movie nights, Machine, Pinatas Sugar do Free Candy, Craft

May 13 is Mother's Day

Items (including: construction paper, glue, markers, beads, jewelry making kits, scrap -- April Vernon booking supplies), Play Money for educational purposes, color printer, sporting equipment (including: handicapped ramp for bowling, basketballs, shot put balls 6 & 8 lbs, cones, tennis balls, bocce ball set, baseballs, baseball bats, baseball gloves, soccer balls, bowling You may think “special moms” havejerseys, it pretty rough. cheerleading uniforms, bags, bowling balls, us stop watches, clipboards, pom-poms, We for have no choice. justcoolers, manage life when thingsfor getfood really tough. shirts coaches, fishingWe gear), cookbooks, roasters & food serving We've made it through the days we thought we'd never make it through. equipment. Contact Pam Monsky at PMonsky@vodec.org We've even impressed our own selves with all that we can do! Important Tidbits for Families pages 2 - 6 Used AFO’s and braces of any kind – love if your child outgrownof the shoes, afo’s, State-Wide page 6hasdreamed We've gained patience beyond measure, we never giving. braces, etc and they the are Bellevue, sitting just taking upBluff space, email heather Cedar &please Columbus page 7at We worry about future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads ohanakidsnews@gmail.com they will be & collected and distributed overseas via a local Fremont Grand Island page 8 up high. We feel specialist joy and pride and thankfulness often than we cry. orthopedic who travels and fits children with thispage special that is not Gretna & more Hastings 9 equipment Lincoln pages 10 - 15 available to them. For our kids, we aren't just SUPERMOMS, No, we do so much more :) Norfolk pages 15 - 16 We are cheerleaders, nurses, and therapists who don't walk out the door. FOR SALE: Wheelchair Accessible Van: 1996 Chrysler Town & Country, North Platte page 16 and We handle rude remarks and unkind stares, with dignity grace. 128,000 miles. Adapted to fit 2 wheelchairs side by side in the middle row, and also the Omaha pages 16 24 Even though the pain they bring cannot be erased. front passenger can have a wheelchair there.for Ramp is off the side door. Asking $10,000. Resources Families pages x andat treatment routes a lot for us to digest, CallTherapies Katie Noland 402-650-0348 if are interested. Classifieds page 29

Special Needs Mom's

Check out any event changes, after publication additions & MORE at our blog: www.ohanakidsnews. blogspot.com For more information, or advertising rates please contact us at: 402-227-5304

ohanakidsnews@gmail.com FACEBOOK too!!

Thanks for Reading OKN!!

What's Where???

We don't know what the future holds, but give our kids our best. already adapted and are It wears us out, Aaron but totoday help our kids, we'll do whatever it ready to go! Contact at aaronmiller555@gmail.com fortakes! more information! None of us Adapted can be replaced, wehas don't many breaks. FOR SALE: Toys! so Aaron toysget available that he has

We are selfless, not by choice you see. Our kids just have many needs.

FOR Motorized Scooter & 9know additional wheelchairs. Located in Auburn. If Help us Expand our Reach, Pass usSALE: along totofamilies you who could use this information!!! We're not out change the world, but want to plant some seeds. financial assistance is needed, please callreally & talk Angela, We want our kids accepted. That is to our aim. because there are resources When to wehelp lookoratalleviate them, we kids. Weat hope you'll do the available thejust cost.see Call Angela 402-274-9362 forsame. more information. Vernon To--aApril Good Home: Riftin Pacer K501 Model Walker, includes saddle, bars, front walking

bars & back helper bars, Call Katie Noland at 402-650-0348 if interested

Check out any event changes, after publication additions & MORE at our blog: www.ohanakidsnews. blogspot.com For more information, or advertising rates please contact us at: 402-227-5304

ohanakidsnews@gmail.com FACEBOOK too!!

To a Good Home: Child’s size wheelchair, call Susannah LaCroix at 402-496-1000

What's To a Good Home: Power wheel chair Where??? for a small adult, contact Sandy Houser at shouser@unmc.edu Important Tidbits for Families pages 2 - 6 To a Good Home: WheelchairState-Wide for child, call page Amy at 6 402-212-8931 for more information on it Bellevue, Cedar Bluff & Columbus page 7 Fremont & Grand Island page 8 To a Good Home: We have 149 unopened cans ofpage Isosource 1.5 Cal G-tube feeding Gretna & Hastings 9 formula, these are 375 calorie cans. Expiration date is August 12, 2013. These are all for Lincoln pages 10 - 15 FREE just looking for them to be put to use. You 15 can- call Norfolk pages 16 Jess Parker at 402-601-8280 or jparker21988@gmail.com for North any questions may16 have. My mother passed away in Platteyou page October, this is the formula she Omaha was using.pages 16 - 24 Resources for Families pages x Classifieds Do you have something you want to page get 29 rid of or no longer have use

for? How about something that you need? Email me to place that information right here in O’Hana Kids News! Ohanakidsnews@gmail.com Help us Expand our Reach, Pass us along to families you know who could use this information!!!

Thanks for Reading OKN!!

O’Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those with any information changes that have occurred after publishing.

DISCLOSURE: With ANY equipment specific to your child, PLEASE have your PT/OT involved to ensure that it is a good fit for the child!


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

I m p o rt an t T id b it s f o r F a m i l ie s May is Better Speech & Hearing Month May 9 is National School Nurse Day Page 3 May 13 iswith Mother's Day Learn to Adapt Toys to Use a Switch/Button/BigMac Independent Consultant

Heather Ackman 402-­‐227-­‐5304 imapamperedchef @yahoo.com

All orders help support O’Hana Kids News!!!

! !

!!!!!NEBRASKA!RESPITE! NETWORK! !

Are$you$a$caregiver$for$a$loved$ one$with$a$disability?$Are$you$ interested$in$working$with$other$ individuals$with$a$disability?$$ The$Nebraska$Respite$Network$<$ Eastern$Service$Area,$covers$all$of$ Check out any event Nebraska$is$seeking$individuals$to$ changes, after publication provide$respite$for$individuals$with$ additions & MORE disabilities$across$the$lifespan.$CNA/$ at our blog: CMA$and$bilingual$skills$desired,$but$ www.ohanakidsnews. not$required.$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ blogspot.com Call$(402)$996<8444$today$and$speak$ For more information, or to$Elizabeth$or$Kay,$or$e<mail$ advertising rates echentland@gmail.com$$$$$$$$$$$$$$$$$$$$$$ please contact us at: who$can$direct$you$to$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ 402-227-5304 where$you$need$to$go!!

ohanakidsnews@gmail.com FACEBOOK too!!

This workshop is for anyone! You will learn how to easily &cost effectively turn the toys that your child already has, & isn’t using due to physical limitations, into toys that are adapted to your child! You will learn how to install a jack into a single function toy & convert into a toy that is operated with a switch. You will learn how to assemble a switch. You will make a detachable cord that runs from the toy to the switch, and best of all your child’s toy will look professionally adapted, by YOU! This class is FREE, however donations of any kind are appreciated. Contact Aaron today at aaronmiller555@gmail.com for more information!! 1/2013 You may think us “special moms” have it pretty rough. WeProgram have no choice. We just manage life when things get really tough. HIPP We've made it through the days we thought we'd never make it through. Do you know that you can then add your child, to your private health insurance (non-medicaid), and then We've even impressed our own selves with all that we can do! you can get those premiums paid for through the HIPP program? As long as your child is on Medicaid, and if theWe've child is gained on your family health insurance policy, they will we cover the entire premium your family!!! patience beyond measure, love never dreamed of for giving. If your child isn’t about on this, the I would contact DHHS coordinator to find outworth if this living! is an option for your We worry future butyour know this “special” life's child. We I know that if your fed via g-button, j-button more than I think 50%up of high. their daily intake, have bad dayschild andis hurt sometimes, but we hold our heads or have a catheter, thesepride are both automatic qualifiersmore for kids. If you want We feel joy and and thankfulness often than wemore cry.information I would contact your Services Coordinator, if you need help getting answers let me know and we can work through it together! Let’s get we the word outjust about this program!! No, Contact meso atmuch ohanakidsnews@gmail.com For our kids, aren't SUPERMOMS, we do more :) for more information. We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even thoughParent the pain they bring cannot be erased. Exceptional Magazine

Special Needs Mom's

This is a magazine for parents of children with developmental disabilities & other special Therapies and treatment routes are a lot for us to digest, needs. You can get a digital edition of this magazine, just go to www.eparentdigital.com We don't know what the future holds, but give our kids our best. type None in theof EMAIL: 155rw@eparnet.com & useget themany PASSSWORD: us can be replaced, so we don't breaks. specialneeds to access editions digitally. It wears us out, but to help our kids, we'll do whatever it takes! We are selfless, notIV by choice you see. Our kidscovers just have&many needs. Handmade Gowns, Covers, G-button more!!!

not out to change the world, but wantintothe plant some seeds. CheckWe're this out!! If you have a child who is routinely hospital for various things (like We want our kids accepted. That really is our aim. mine is J) then you need to check this lady out!! Go to www.tubiewhoobies.com or you When we look at them, we just see kids. We hope you'll do the same. can visit them on Facebook at www.facebook.com/tubiewhoobies -- April Vernon

Sure Steps SMO Orthotics Sure Steps makes tennis shoes that are made to fit SMO’s. Contact them at www.suresteps.net for more information.

What's Where???

Advocacy Page for Parent’s of Children with Disabilities Now parents are invited to check out a page on Families Mosaic’s website Important Tidbits for pages 2 - 6 www.mosaicinfo.org/services/research/CollaborativeCorner.html make sure you State-Wide page 6 check out this new resource available to all our & families Bellevue, Cedar Bluff Columbus page 7 Fremont & Grand Island page 8 Gretna & Hastings page 9 Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Classifieds 2 Omaha pagespage 16 - 24 Resources x Important Tidbits for forFamilies Familiespages pages 3 – 9 Classifieds page 29

What’s Where???

iPad & iPhone Apps page 9 Summer Camp Information pages 10 - 13 any events,. Including cancellations, or changes after print. It is your State-Wide pages 14 & 15 responsibility to verify the information provided through the contact information Unknown & who Chadron page Help usYou Expand Reach, Pass us along to families you know could use 16 this information!!! provided. can check our the blog at Columbus & Elkhorn page 17 www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those Grand Island pages 17 & 18 with any information changes that have occurred after publishing. Kearney page 18 Outreach Clinics page 19 Norfolk page 20 Join our mailing list, contact us at North Platte, Schuyler & York page 21

O’Hana Kids is not responsible Thanks forNews Reading OKN!! for

ohanakidsnews@gmail.com

Resources NOW ON WEBSITE ONLY due to their sheer size!!!


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

I m p o rt an t T id b it s f o r F a m i l ie s May is Better Speech & Hearing Month Parent 2 ParentMay Mentor’s Wanted!!! 9 is National School Nurse Day

! OUTPATIENT! !PEDIATRIC!THERAPIES!! PT,!OT,!SPEECH!&!FEEDING! Specialized Services Designed for The Special Needs of Your Child Free Developmental Screenings

2!Locations!in!Omaha! 2010!N.!88th!Street!! and! 13336!Industrial!Road!

CALL!402.496.1000! For!your!appointment!today!

Together, we can do anything.

Nationally over 80% of parents of children with disabilities, who were mentored by an May 13 is Mother's Day experienced parent, reported it to be the most helpful source of information o coping with the challenges of raising a child with special needs. Mentored parents report that the support of a fellow parent was so unique & personalized that it could not have come from any other source! As the mother or father of a child with developmental disabilities, you have unique parenting experiences. Through time, training, & trial & error, you have gained valuable skills. Use your knowledge to help another parent on the journey by becoming a mentor. to Parent (P2P) programs link parents ofrough. children, adolescents & adults You Parent may think us “special moms” have it pretty with We developmental disabilities together with life experienced & informed veteran parents who have no choice. We just manage when things get really tough. We've the made it through the days we thought we'dwith never make it through. understand day-to-day experiences of raising a child special needs. Parent to We've even impressed our own with can do!agency. We are Parent Omaha is offered by Ollie Webbselves Center, Inc.,alla that localwe non-profit seeking parent mentors who are coping well with their child’s situation & view him or her We've gained patience beyond measure, love we never dreamed of giving. as a We valuable & about developing person.but Consider a mentor if worth you’d like to help worry the future know becoming this “special” life's living! parents joys & hurt challenges of having child (of our any heads age) with We cope havewith bad the days and sometimes, buta we hold up special high. needs. We feel joy and pride and thankfulness more often webycry. The time commitment involves contacting another parent (in than person, mail, e-mail or telephone) once every 2 weeks within the first 8 weeks, & as mutually agreed thereafter. For our kids, we aren't just SUPERMOMS, No, we do so much more :) You have the knowledge & experience. We provide the training as a framework to share We are cheerleaders, nurses, and therapists who don't walk out the door. your We wisdom. The nextremarks training and will unkind be held stares, soon & will include: for Helping handle rude with dignityGuidelines and grace. Families; Skills & bring Resiliency; Survival Tactics for Parents of Children with EvenCreative though Coping the pain they cannot be erased. Special Needs; What Helps Families in High Stress Situations & Crisis; Tips for Extended Therapies and treatment routes are a lot for us to digest, Family & Siblings; Tips for Locating Community Services; Information on Parent to Parent don't know what the future holds, but give our kids our best. USA;We Cultural Competence & None of us can be replaced, so we don't get many breaks. Family & Principles of Family-Professional Collaboration. It Centered wears usCare; out, but to help our kids, we'll do whatever it takes!(4/2012) To talk to someone about becoming a mentor, please contact Annie Anderson We are selfless, ext not by you see. Our kids just have many at 402-346-5220, 23 choice or aanderson@ollieewebbinc.org or youneeds. can mail out to change world, want to Ollie plant Webb some seeds. yourWe're name,not address, phone the number & but e-mail to: Center, Inc., 1941 nd We42 want our kids accepted. That really our aim. South Street, Suite 122, Omaha, NE is 68105

Special Needs Mom's

When we look at them, we just see kids. We hope you'll do the same.

Tech TotsVernon & Tech Tools Programs Sponsored by UCP -- April

Check out any event changes, after publication additions & MORE at our blog:

A Special Sitter was www.ohanakidsnews. inspired by our ongoing blogspot.com

journey of parenting our

For more information, family, which includes 2 kids orwith advertising rates special needs, & we please at: believe contact that our eus xperiences

can help you experience the 402-227-5304

fullness of blessings we have ohanakidsnews@gmail.com received as we have raised our FACEBOOK too!! family.

Thanks for Reading OKN!!

The Tech Tots Lending Libraries provide developmental toys, adapted toys and devices to children with developmental and physical disabilities, at no cost to families. UCP of Nebraska offers over 700 adapted toys & technologies for children and teens through 4 locations (listed below). The toys are housed in libraries located in respite or rehab services environments. Primary use of the program is through families that use services at the center, and is also available to the general public. The toys are available to be taken home to reinforce learning. We have heard from families that have participated in this programfor consistently andpages the value Important Tidbits Families 2 - it6 has brought to them. After one family in particular, has been using the program State-Wide page by 6 taking 3-4 items home for their child with Cerebral Palsy. After a Cedar month ofBluff using & these items, theypage return Bellevue, Columbus 7 the items and “refresh” them with something new and interesting. It has helped the exposure and Fremont & Grand Island page increase 8 learning for that child by continually offering new tools. page These 9 same adapted toys are costGretna & Hastings prohibitive to many families, as theyLincoln typically pages cost more 10than - 155 times the base cost of the toy without adaptation. UCP has partnered with AT4ALL Norfolk pages to 15make - 16the entire inventory visible online. AT4ALL is offered by the Assistive Technology Partnership. A family can view the items, request North Platte page 16 them for loan, and then simply pick Omaha them up at the location. pages 16 - 24Simply go to www.AT4ALL.com, click on “Children’s Equipment” in the category. All items available for checkout from UCP of Resources for Families pages x Nebraska Tech Tots Partners (& a few other agency programs) will come up. You can refine the Classifieds page 29 search by location by selecting one of the UCP of Nebraska sites. Under Programs, scroll down to find the UCP Tech Tools locations. Children’s adapted items available through other agencies can also be found on this website! Locations for Tech Tots and Tech Tools: (All these are listed in Resources in Back of OKN)

What's Where???

Services Offered: Companionship Services Personal Care Services Help us Expand our Reach, Pass us along to families you knowthwho could use this information!!! Children’s Respite Care Center NW, 2010 N. 88 Street, OMAHA 402-496-1000 ask for Sarah Tselentis Home Helper Services

For More Information Contact Richard Troia 402-­‐697-­‐8400 x201 rtroia@aspecialsitter.com See “Our Story” on Page 8

Children’s Respite Care Center SW, 13336 Industrial Rd, Ste 101, OMAHA 402-895-4000 ask for Sarah Tselentis

Madonna Rehabilitation Hospital, 5401 S. Street, LINCOLN 402-486-8617 ask for Michelle Wiggins Children’s Rehab Center, 3004 W. Faidley Avenue, GRAND ISLAND 308-398-5170 ask for Carole Ostdiek Faith Regional Health Services Rehab Services, 1500 Koenigstein, NORFOLK 402-644-7348 ext. 7396


IMPORTANT TIDBITS  FOR FAMILIES *

Independent Consultant

Munroe Meyer/ AAP iPad Lending Library

The Munroe Meyer Speech Department in partnership with Autism Action Partnership has created an Edition #24 May 2012 iPad and iPod lending library. The purpose behind this library is to provide families affected by ASD Heather Ackman the opportunity to try iPads and iPods as communication devices before they go to the expense of 402-227-5304 purchasing their own. If you have a family member or know a family who may benefit from this program, please have them contact me to set up a screening. During the screen, the family will have www.pamperedchef.biz/ the opportunity to try the iPad or iPod as well as several communication applications and accessories. If one of the devices is deemed as a viable option for the child, we will set up a 30 day loan of the heatherackman Proudly serving over 8,500+ -- application. NOW Across allthe of 30 Nebraska!!! device and thefamilies appropriate During days, the family will be required for 2 follow Now planning up/training sessions. One will be scheduled midway through the trial and the other will be scheduled for the end of the trial period. During the last scheduled session, we will determine if the trial was a Wedding Showers!!! success and will begin the process of securing funding (insurance, grants or private pay options). Call today for your spot!! May is Better Speech & Hearing This is an incredible opportunity for the community and we areMonth excited to offer this program!! Can be done Online Now!! Page 5 12/11 Contact Jennifer Brock or 402-559-6460 Mayat9 jbrock@unmc.edu is National School Nurse Dayfor more information.

I m p o rt an t T id b it s f o r F a m i l ie s

RadioNCDHH Show – byThe Adult with Asperger Syndrome May 13 is Mother's Nebraska Commission for Day the Deaf and Hard of Hearing

“Parents radio show, co-hosted by for Brian Brian is an adult with TheCorner” missionisofa the Nebraska Commission theKing, Deaf LCSW. and Hard of Hearing is to provide advocacy, Asperger Syndrome, who alsoand hasinformation 3 boys on the ASD spectrum. Brian be sharing his communication access to enhance awareness and will services for improving the quality of life for all who loss.a panel The Vision Statement of NCDHH Being proactive parenting strategies andexperience discussinghearing them with of parents. Here is a linkis: with all athe Commission works towards cooperation and understanding details state you’llagency, need tothe tune in & call in if you’d like.building http: support, tinyurl.com/3gm58h7 Check it regardless of hearing ability resulting in fairness and equality for all Nebraskans. Make sure to out & pass it along. His address is: PO Box 994, Chicago, IL 60186 if you’d like to write to check out our website at www.ncdhh.ne.gov him. *

Special Needs Mom's

You mayResearch think us “special moms” it pretty rough. Dental Study forhave Children with Disabilities Heart Heroes for kids with CHD, a things Nebraska We have noCapes choice. We Dentistry just manage when get really tough. a research study The Department of Pediatric at thelife Munroe-Meyer Institute is Non-Profit conducting

At ProCare3, we treat children with many different diagnoses, including but not limited to: Developmental Delays Torticollis Autism Spectrum Disorder Sensory Integration Speech Delays Cerebral Palsy Hypotonia Sports & Orthopedic Injuries We offer Warm Water Aquatic Therapy!!

Millard Pediatric Clinic 13336 Industrial Road, Ste. 105 Omaha, NE 68137 Contact us TODAY for a tour or a FREE Screening! (402)330-3211 Ext. 108 www.procare3.com

Check out any event We are Open 6 Days a Week, changes, after publication Monday through Friday additions & MORE with extended hours fromblog: 7am - 7pm at our Need Saturday hours?

www.ohanakidsnews. Ask us about those too!! blogspot.com For more information, O’Hana Kids’ News is rates not responsible for or advertising any events; including cancellations, or please contact us at: changes after print. It is your responsibility to check with each contact 402-227-5304 to verify the information that we have

provided to you. ohanakidsnews@gmail.com FACEBOOK too!!

We've made through theare days we thought we'd neverHeart make it through. Every year, approximately bornhelp in the US with Congenital Defects (CHD). evaluating ways it in40,000 whichinfants dentists can children with disabilities feel more relaxedCHD andiscalm We've even impressed our own all that we between candeaths. do! theMore the most frequently occurring birth The defect & theselves leading cause of birth-related of who during dental treatment. researchers arewith seeking children agesthan of 250% to 10, done. Children who surgery participate receive a $25 to Wal-mart. childrenneed with dental CHD willwork require at least 1 invasive in their lifetime. In gift the card US, twice as many Children can We've gained beyond love we never dreamed of giving. seen MMI orpatience at thethan new clinic at Children’s Hospital. The project funded childrenbe die fromat CHD each year, alldental forms measure, of childhood cancers, combined! Needless to is say, the by the We worry about future butofknow “special” life's worth living! National Institutes ofthe Health. Please contact Dr. Keith at 402-559-5756 or Kristi survivors of CHD wear their scars, like badges honor.this They are our Allen “Heart Heroes”. Heart Heroes, Inc., DeHaai, We bad days hurtmore sometimes, but we hold our heads up high. MS athave 402-559-4498 to learn how to moms, enroll your child in this research. is a non-profit organization that and originated by a about few Nebraska who had children with CHD. After * and through pride and thankfulness more often than we cry. trying to We coaxfeel theirjoy children cardiology appointments & heart surgeries, they took comfort in the Caregiver Day in founded! Cass County wondrous powers of “super hero” for capesRural to comfortNebraska their children, &Families Heart Heroes was Now For our kids, we aren't just SUPERMOMS, No, we do so much more :)for a few hours and O'Hana Kids News is have looking todraped put together a day where caregivers comeeverywhere. hundreds of Heart Hero capes been around the little shoulders of CHDcan children We aare nurses, therapists who don't awalk door. massage, see aCape chiropractor, have a great meal, maybe maniout or athe pedi, possibly have Considerhave donating acheerleaders, Heart Hero to a childand with CHD by going to www.heartherocapes.com to We handle rude remarks and unkind stares, with dignity and grace. doing Just await day where us caregivers getcapes doneto inconquer just a couple of hours, donate asomeone cape. There is hair. a perpetual list of children who needcan their their fears & give Even though the pain they bring cannotseen be erased. something makes I haven't anything in Cass County of there, for them courage. You that can also join us ourhappy Heart :). Heroes Facebook Group to see pictures of many or of south the cape caregivers. If any families would interested something likeheartheroes@yahoo.com. this, PLEASE either give me a call or recipients & hear their stories. Contact the be Co-Founders ofinHeart Heroes at Therapies and treatment are this a lotonfor usmany to digest, send me an email. I will base routes even doing how people contact me about it. I know the “Children hold our hands for a moment, but our hearts forever.” ~Anonymous We is don't know future but give kids our best. need there. Justwhat let methe know. I amholds, interested in anyour comments you have regarding what you Nonelike of in usacan beday replaced, weIsdon't get many breaks. would short like this so also. childcare something to look at too? Just let me know, It wears us out, butFree to help our kids, we'll do whatever it takes! Heather Ackman 402-227-5304 or ohanakidsnews@yahoo.com Gluten Free/Casein Diet Website

Just received this information that a parent went through and put their information into a We are selfless, not by choice you see. Our kids just have many needs. website of all the diet information they have for gluten free/casein free. I haven’t checked We're not out to change the world, but want to plant some seeds. it out, but a our look.kids It is http://www.lincolntent.com/GFCF.html Wetake want accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

Financial Resource for Families – FirstHand Foundation -- April Vernon

This is a resource for families with uncovered medical needs for their children. Families can apply for individual financial assistance if they meet the Foundation’s eligibility criteria. Check it out at www.firsthandfoundation.org

Collaborative Corner What's on Mosaic’sWhere??? website Check out the Collaborative Corner on Mosaic’s website at Important Tidbits for Families pages 2 - 6 Resources and www.mosaicinfo.org/services/research/CollaborativeCorner.htm State-Wide page 6 publications are updated regularly. Please contact Tara Harper at Bellevue, Cedar Bluff & Columbus page 7 information! tara.harper@mosaicinfo.org if you have any questions or need additional Fremont & Grand Island page 8 Gretna for & Hastings page 9 Children Villa Marie Home and School Exceptional Lincoln pages 10 - 15home-like atmosphere for up to 22 Villa Marie Home and School for Exceptional Children provides a loving, pages 15 - 16dormitories (4 students to a room), children, both day students and boarders. Norfolk Students enjoy comfortable North Platte page excellent recreational facilities, a chapel and spacious grounds. The16 Villa Marie staff provides total 24 Omahasupervision. pages 16Villa - 24 Marie follows the found Lincoln Diocesan When contacting ourhour-a-day advertisers, please tell them you them HERE!!! Catholic School calendar. The schoolxhas 3 well-equipped Resources for Families pages classrooms, a library, up-to-date Classifieds page 29 computers, a Smart Board in each

classroom and a variety of audio/visual aids. Villa Marie is approved the Nebraska Department of Education and all teachers are Make sure to let people know howby you found out about these certified in Special Education. The developmental program at Villa events, activities & Marie advertisers!! works towards preparing students to function effectively in social situations, to live independently, & to use their skills in ‘em, O’Hana News pointed you way!!! Reach,Tell Pass us along toKids’ families you know employment. whotheir could useareas this information!!! productive Specific of development include social and emotional development, vocational training, appearance, health and hygiene, and community involvement. Requirements for attendance are: Children with special needs between the ages of 7 & 18 but no students older than 16 will be accepted as new students, Students must be on an Individual Education Plan (I.E.P. & not require one-on-one paraprofessionals, Three step process for entrance (1. Parent interview, 2. Student visit during school, 3. Application for entrance including tuition negotiation) For More

Thanks for Reading OKN!!

Help us Expand our

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Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

I m p o rt an t T id b it s f o r F a m i l ie s May is Better Speech & Hearing Month May 9 is National School Nurse Day

May 13 is Mother's Day

Page 2

The Nebraska Respite  Network IMPORTANT TIDBITS FOR FAMILIES

you know about twith he Lifespan Respite Subsidy Program? RadioDo Show by Adult Asperger Syndrome

Pediatric speech, language & feeding therapy

Specializing in Autism

Specializing in Deaf/Hard of Hearing & Cochlear Implants

Specializing in Late Talkers & Developmental Delay

402-327-2500 8055 O Street, Suite S110 Lincoln, NE 68510

www.heartlandspeech.com Find us on FACEBOOK too!

Challenger Little League This baseball Check out any event league is changes, after publication exclusively for additions & MORE children with special needs. These atbour blog: needs can e mental and/or physical disabilities. www.ohanakidsnews. Our blogspot.com 3 different "little league" divisions begin at age 5 & work up to 21 more or high information, school graduation -­‐ For whichever comes first. or advertising rates please contact us at: is the Our unique & older 4th division Alumni 402-227-5304 which takes over from there & has no age limit. ohanakidsnews@gmail.com

FACEBOOK too!! Registration for our 2013 season begins January 1 and will end at the Thanks for Reading OKN!! end of February.

Special Needs Mom's

“Parents Corner” is a fradio show,sco-hosted by Brian King, LCSW. an adult with Asperger This program pays or respite ervices (someone to come into Brian the hisome to care for a Syndrome, who presented here inthe theparea backcaregiver in January. Brian also has 3 boys on pthe ASD person with special needs, to give rimary a temporary break). The rogram spectrum. be sharing parenting discussing with a panel of parents. serves people Brian of all will ages. It is for his people who strategies are NOT rand eceiving the sthem ervices from another think moms” it pretty rough. HereYou is a may link with all us the“special details you'll needhave to tune in and call in if you would like government p rogram. We have no choice. We just life when things get reallyis: tough. http:tinyurl.com/3gm58h7 Checkmanage it out and pass it along. His address P.O. Box 994, West him. we'd never make it through. We've made if it you through wetothought Chicago, IL 60186 wouldthe like days to write We've even impressedWho our own selves with all that we can do! Needs This Program?

Projectwho Lifesaver in Sarpy Caregivers need a temporary break County from providing care to persons of any age, with We'veCounty gained patience beyond measure, loveLifesaver we never dreamed of locate giving. The Sarpy Sheriff’s Office implemented Project in & 2008 to help missing special n eeds. E xamples o f s pecial n eeds athis re developmental physical limitations, We worry about future but know “special” living! persons. Children with the Autism or Down Syndrome, who are atlife's risk toworth wander, can have their safety emotional or behavioral isorders, sometimes, chronic illness. lzheimer’s isease up & rhigh. elated health Weenhanced have bad days dand but A we hold ourdheads greatly through this hurt program. Project Lifesaver emphasizes relationships between specially We feel joy anda t pride thankfulness more oftenis than we cry. concerns, or persons risk oand f aindividuals buse & neglect. Ein ligibility based on income guidelines. trained Sheriff’s personnel and enrolled the program BEFORE the need may arise for a HOWEVER, if you ave ehome xpenses elated to enrollees the disability, these usually be rescue. During an h initial visit,directly Project rLifesaver are fitted withcan a personalized For our kids, we aren't just SUPERMOMS, No, we do so much more :) subtracted from the counted ncome. Tare he provided person awith pplying must have a overview caregiver. wristband transmitter and family imembers a comprehensive of the We are cheerleaders, nurses, and therapists who don't walk out the door. program. Trained in communicating with individuals with special needs, deputies will schedule a The p rogram w ill p rovide u p t o $ 125 p er c lient p er m onth!! We handle rude remarks and unkind stares, with dignity and grace. monthly visit the to inspect and maintain the and get to know the enrollee better on a equipment Evenhome though pain they bring cannot be erased. more personal basis. The cost to participate in this program is minimal, at $10 a month. How do I become a Rcontact espite P rovider? For more information on Project Lifesaver, Therapies and treatment routes are a lot for usLt. toGriger digest,at 402-593-2288.

How do Iknow get qwhat ualified for the Lifespan Respite Subsidy Program? We don't the future holds, but give our kids our best.

Heart Heroes Capes for children with get CHD, a Non-Profit here in Nebraska What I ncan eed help finding respite provider, so I as a Caregiver, None ofif us be replaced, soawe don't many breaks.

EveryItyear approximately 40,000 infants arekids, born we'll in the do US with Congenital Heart Defects (CHD). CHD is wears us out, but to help our whatever it takes! can have break? the most frequently occurring birth defect and thealeading cause of birth-related deaths. More than 50% of children twith CHD will require at least one invasive surgery inatheir lifetime. And in the US, twice as Contact ebraska Rnot espite Network by see. contacting Rjust espite Network oordinator in many We he areNselfless, by choice you Our kids have many Cneeds. children die from CHD each year than from ALL forms of childhood cancers, combined! Needless to say, the your area (see below) or cwant all 1-­‐866-­‐RESPITE We're not out to change the world, but to plant some seeds. survivors of CHD wear their scars like badges of honor. They are our “Heart Heroes”. Heart Heroes, Inc., is We want our kids accepted. That really is our aim. a non-profit organization that originated by a few Nebraska moms, who had children with CHD. After trying When we look at them, we just see kids. We hope you'll do the same. to coax their children through cardiology appointments and heart surgeries, they took comfort in the Western Service Area hero” capes to comfort their children, and Heart Heroes was founded. Now, wondrous powers of “super -- April Vernon Serving Sheridan, Garden, Deuel, hundreds of Heart Hero capes have been draped around the little shoulders ofrea CHD children everywhere. Southwest Service A Sioux, Cheyenne, Morrill, ox Butte, Dundy, Hitchcock, Red going Willow, to Furnas, Gosper, Dawson, Lincoln, Logan, to donate Consider donating a BHeart Hero CapeServing to a child with CHD by www.heartherocapes.com Dawes, Scottsbluff, Banner & Thomas, G rant, H ooker, A rthur, K eith, P erkins, C hase, Hayes, fears & Frontier a cape. There is a perpetual wait list of children who need their capes to conquer their and give them Kimball pictures of many of the cape recipients courage. You can also join our Heart Heroes Facebook Group to see C oordinator H elena J anousek and hear Coordinator their stories. Contact the co-founders of Heart Heroes at heartheroes@yahoo.com. “Children hold our hands for a moment, but our hearts (308)345-­‐ forever.”4223 ~ Anonymous Sherri Blome (308)345-­‐4990 (308)432-­‐8190 respite@swhealth.ne.gov Exceptional Parent Magazine specialprojects@wchr.net

What's Where???

Important Tidbits for Families pages 2 - 6

Magazine for parents of children with developmental disabilities and other special needs. You can get State-Wide page 6 a digital edition of this magazine, Just go to www.eparentdigital.com type in the EMAIL: Bellevue, Cedar Bluff specialneeds & Columbus page 7 155rw@eparent.com and use the PASSWORD: to access editions digitally. This Fremont & Grand Island page 8 information is also listed in the back of OKN under Website Resources.

Central Service Area page 9 Gretna & Hastings

Serving Harlan, Franklin, Webster, Clay, N uckolls, Phelps, Kearney, Adams, Buffalo, Hall, Hnd Merrick, H oward, Sherman, Lincoln pages - 15 Leaps & Bounds Pediatric Therapy NEW 2amilton, LOCATION Custer, Valley, Greeley, Blaine, Loup, 10 Garfield, Wheeler

Leaps and Bounds Pediatric Therapy, located pages in Lincoln, Norfolk 15 has - 16now added a South-West location in Lincoln, in addition to their North location inPlatte Lincoln. new clinic is located at 7945 S. 15 th St., North page Northern Service AThe rea 16 Suite DW(just eastDodge, o f14th Street, between Pine Lake Road and Yankee HillPRoad). Serving ashington, C olfax, Platte, Nance, B oone, A ntelope, H olt, R ock, B rown, Cherry, Keya aha, Boyd, Knox, Cedar, Omaha pages 16 - 24 Burt, Dixon, Dakota, Thurston, CSpeech uming, Stanton, Madison, Pierce & are Wayne Physical Therapy, Occupational Therapy &for Therapy services available at BOTH locations! Resources Families pages x Please call 402-742-7400 to schedule an appointment at either locations. Classifieds Sue Bochart, For page BOTH S29 ervice A reas We look forward to seeing Coordinator you! (308)745-­‐0780 ext. 145 sbochart@cennecs.org

Our website, NEW www.challengerlittleleague.org, Help us our Reach, Pass us Eastern alongSto families you know who could use thisArea information!!! ervice Area Southeast S ervice is up but Expand under construction. Serving Thayer, Jefferson, Gage, Otoe, Cass, Pawnee, Richardson, Johnson, Serving Douglas & Sarpy If you cannot find the i nformation you best Serve Nemaha, Lancaster, Saline, To Fillmore, Y ork, Seward, Polk, BYou!!! utler & Saunders need there please e-­‐mail us Coordinator admin@challengerlittleleague.org Coordinator Misti McInteer Elizabeth Chentland * Physical Therapy * Occupational * (402)434-­‐3494 eTherapy xt. 103 & we will mail out some i nformation (402)996-­‐8444 O’Hana Kids’ News is not responsible for misti@ywcalincoln.org a registration. echentland@gmail.com * Speech Therapy * any events;& including cancellations, or

2 LOCATIONS

changes after print. It is your Located to in check Omaha Nebraska responsibility with each contact to verify the information that we have provided to you.

SOUTH-WEST LOCATION

NORTH LOCATION

Lincoln, NE

Lincoln, NE

This edition is FREE!!! Pass it along!! Join our mailing list, contact us at ohanakidsnews@gmail.com 2550 Superior St. Suite 160 7945 S. 15th St. Suite D

Call 402-742-7400 to schedule an appointment at either location, TODAY!


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

I m p o rt an t T id b it s f o r F a m i l ie s May is Better Speech & Hearing Month May 9 is National School Nurse Day

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May combined 13 is Mother's Day Parent Group – Kids with hearing & vision loss

Page 7

The Nebraska Technical Assistance Project on Deaf-Blindness has conducted training this year specific to parents of children who have a combined hearing & vision loss. The training has been in partnership with the National Consortium on Deaf-Blindness (NCDV2.0). A total of 6 parents have participated in a series of training activities from May 2011 through October 2011. They are now working on their leadership goals. They are called the Nebraska DB Parent Leadership Team, & have provided lots of support to the state Deaf-Blind project. It is the intent of this You may think us “special moms� have it pretty rough. team toWe provide either vialife phones, face-to-face haveone-on-one no choice.interaction We just manage whentechnology things getorreally tough. with other parents We've in the state have a child birthwe to thought age 21, with a combined hearing & vision loss. If madewho it through the days we'd never make it through. We've even impressed own with all please that wecontact can do! Teresa Coonts at you want to be connected toour one of selves the parents, 402-595-1810 or Teresa.coonts@nebraska.gov This is an exciting group of parents gained patience beyond measure, love we never dreamed giving. working We've & learning together for the purpose of supporting other families in theoffuture.

Special Needs Mom's

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journey  of  parenting  our Â

www.ohanakidsnews. family,  which  includes  2  kids  blogspot.com

with  special  needs,  &  we  believe  that  our  experiences  For more information, can  help  you  experience  the  or advertising rates fullness  of  blessings  we  have  please contact us at: received  as  we  have  raised  our  402-227-5304 family. Â

 ohanakidsnews@gmail.com FACEBOOK Services  too!! Offered: Â

Companionship  Services Â

ThanksPersonal  for Reading Care  SOKN!! ervices Â

Home  Helper  Services  Â

More  Information  Help For  us Expand our Reach, Contact  Richard  Troia  402-­â€?697-­â€?8400  x201  rtroia@aspecialsitter.com    See  â€œOur  Storyâ€?  on  Page  8 Â

We worry about the future but know this “special� life's worth living! have bad days and hurt sometimes, but we hold our heads up high. Bikes We and Trykes of Central Nebraska We feel joy and pride and thankfulness more often than we cry.

We are a local chapter of AMBUCS, a national service organization composed of a diverse group For women our kids, we aren't just SUPERMOMS, we do so much more :) disabilities. of men and dedicated to creating mobility andNo, independence for people with We are nurses, and children therapists don't out thewho door. Our mission is tocheerleaders, provide AmTrykes for area andwho adults withwalk disabilities, otherwise Webehandle unkind stares, with dignity and grace. would not able torude ride remarks a bike or and tryke. We are dedicated to “Celebrating the Abilities of Even though the pain they bring cannot be erased. People with Disabilities�. Our chapter representative is a 4 year old boy with Cerebral Palsy, his nameTherapies is Jaden. and Jaden has a twin brother, whousdoes not have any disabilities. When treatment routes areKaden, a lot for to digest, their family went know on bikewhat rides,the Jaden hadholds, to be pushed in our a stroller, which usually caused many We don't future but give kids our best. None of us can be replaced, so we don't getamany breaks. tears. Jaden didn’t understand why Kaden got to ride bike, and he had to be pushed in a wearswas us out, our kids, we'll whatever it takes! stroller.ItJaden fittedbut fortoanhelp AmTryke and he nowdo gets to ride along, so he can be just like his brother. The AmTryke has not only helped Jaden’s self-esteem, but it has also increased his We are selfless, not by choice you see. Our kids just have many needs. muscle tone, muscle strength andbut balance. If plant you know of seeds. someone who would We'recoordination, not out to change the world, want to some benefit We fromwant an AmTryke have them are also requesting help from you our kidsplease accepted. That contact really isus. ourWe aim. When look at them, just see kids. We hope you'll receives do the same. so we can helpwe other children likewe Jaden. When a disabled individual the gift of an AmTryke, the whole family benefits. If you would consider donating toward an AmTryke, please -- April Vernon contact us also. We are located at 3004 West Faidley Avenue, GRAND ISLAND; 308-398-5170 or centralnebraskaambucs@gmail.com You can also check out the website www.ambucs.org

“Love That Goes the What's Distance� Providing for special needs now & Where??? into the future! Planning for the long-term care of a loved one with special needs requires thought and preparation. Important The fact is, when it comes the futurepages needs of Tidbits for to Families 2 -a 6family member with a disability, the possibility that they nay outlive you is something State-Wide page 6that must be considered, especially when the individual is a minor or adult Cedar child. Preparations include estimating future careBellevue, Bluff & Columbus page possible 7 giving costs, as well as making sure all assets managed properly to 8 best benefit your loved one. Fremont & are Grand Island page Special protection when you need itGretna most! Sometimes familiespage neglect & Hastings 9 inheritance issues for special needs family members because they assume siblings or related will simply step in and take Lincoln pages 10 - caregivers 15 over the care giving duties should the need arise. pages Even if 15 families Norfolk - 16 have reached an agreement on care giving responsibilities, it is still important to address thepage management and division of assets and to have North Platte 16 your preferences clearly and legally defined. You also want to be sure you understand all of the legal Omaha pages 16 - 24 guidelines so that your loved one with special needs does not lose benefits from government sources. Resources for Families pages x For instance, many people are not aware of that with Supplemental Security Income (SSI), a single, Classifieds page 29 disabled person cannot own more than $2,000 in assets. One component you might want to consider when setting up your long-term financial plan is the establishment of a “Special Needs Trust� funded with a form of life insurance. A “Special Needs Trust� is established to ensure that the disabled individual’s inheritance will supplement, not replace, any government assistance programs they may be eligible for. Aspects of a “Special Needs Trust� include: Appointing someone to take care of your Pass us along to families you know who could use this information!!! loved one’s property and money, Designating a guardian for children less than 18 years of age, Integrating the wishes spelled out in the trust with the remainder of the parent’s estate plan. Get the help you need now for future peace of mind. A “Special Needs Trust� is just one tool that can help you address financial issues making life much easier for your loved one and their future caregivers. With proper planning, your love, and your money, will be set to go the distance. For additional information on “Special Needs Trusts� it is important to consult with an attorney in your state of residence who specializes in special needs estate planning. For more information on preparing for your loved one with special needs’ future, you can contact Cecilia Loose, Prudential at (402)861-3676.


Edition #24 May 2012

I m p o rt an t T id b it s f o r F a m i l ie s Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

May is Better Speech & Hearing Month

ABC Signing Kids

Teaching Beg inning S ign May Languag e to Kids of All Abilit ieNurse s in Sout h East Neb raska. Why 9 is National School Day Le arn Sig n Langu ag e? In addition to the fun you will have discovering a new and enriching language together, there are many benefits of signing with your child. Enhances C omm u ni cati on S kills i n Bab ies and To ddle rs. Even young children can learn basic ASL vocabulary quickly & easily with Signing Time Academy Classes & products. “Terrible Two’s” aren’t so terrible when your toddler can communicate what he wants. Im proves R eading Ski lls. Studies indicate that children who sign have an increased interest in reading & may even read early. Benefit s Children wit h Sp ec ial Ne eds. Many children with special needs have difficulty with communication & speech. Sign Language encourages connection, Physical Therapy reinforces positive self-image & fosters inclusion & acceptance. Sign Language is an effective tool for all Page 3 types of learning styles: auditory, visual & kinesthetic/Tactile. Occupational Therapy You may think us “special moms” have it pretty rough. For more informat ion Call Ang ie Willey, Certi fi ed Inst ru ct or at 402 -49 9-40 22 or Speech Therapy We have no choice. We just manage life when things get really tough. abcsig ning -ki ds@ signi ngti me .co m You c an also go t o www. ab csigni ngk ids. wee bly.co m We've made it through the days we thought we'd never make it through. Learn how to adapt toys to use with a switch/button/BigMac We've even impressed our own selves with all that we can do!

May 13 is Mother's Day

Special Needs Mom's

IMPORTANT TIDBITS  FOR FAMILIES 2 LOCATIONS

This workshop is for ANYONE!! You will learn how to easily & cost effectively turn the Award toys thatCall your for Nominations Friend of Autism To Best child already has, & isn't using Serve because ofYou!! physical limitations,Do into toys thatanare adaptedwho to your you know educator demonstrates remarkable dedication to individuals with Autism Spectrum We've gained patience beyond measure, love we never dreamed of giving. child!! You will learn how to install a jack into a single function toy & convert it into a toy that is Disorders? Nominate them forthe the ASD Network Friendthis of Autism Awardlife's . Submissions include details We worry about future but know “special” worth should living! operated with a switch. You will learn how to assemble a switch. You will make a detachable cord of AND how the nominee exhibits the following We have bad with days hurtqualities. sometimes, but we hold our heads up high. that runs fromSOUTH-WEST the toy to the switch. LOCATION You will be able to do this, you will go home a and th Commitment: Has the and education of and families and children and youth withthan ASD as a cry. primary focus & We feel joy thankfulness more often we working switch toy7945 & switch. Best of all,Suite your child's professionally adapted, bypride YOU!! S. 15 St., D toy will look You have seen that the switch operated toys are sometimes 8xprovides as muchopportunities to order, than if you could that enable students with ASD to reach their potential. LINCOLN, NE buy the toy & put the switch in for a few dollars, yourself. Dates/Times will potential be determined I just For our kids, aren't SUPERMOMS, No, we do so much more :) Vision: Sees in we all when individuals, readily adapts to change and accepts all individuals with ASD and have 4 or more people interested in the class. This class is FREE, however donations of any kind are We are cheerleaders, nurses, and therapists who don't walk out the door. their strengths and needs. NEW Aaron NORTH appreciated. Contact todayLOCATION at aaronmiller555@gmail.com for more information!

4640 Bair Ave

We Is handle remarks and unkind stares, dignity grace. Innovation: aware rude of empirically supported practices in the with field of Autism and Spectrum Disorders and

Even though theand pain bring cannot be erased. to adapt usethey resources creatively. A & D Waiver – Aged Disabled Waivershows a willingness In Superior Pointe& Shopping Center Inspiration: Displays positive interactions with students & parents, and actively Is YOUR child onLINCOLN, this? IsNE YOUR child eligible Therapies to be onand this? treatment routes are a lot for us to digest,

influences peers with

their energy & enthusiasm.

If your child is on this waiver, do you know that it makes your income guidelines non-existent? We don't know whatNo the future holds, but give our kids our best. Pleaseeach include information 402-742-7400 cap on your income. Call Just have to use the 2 hours minimum respite andcontact every month, so youfor the nominee and the person(s) submitting the nomination. None of us can be replaced, so we don't many breaks. or by mail to: Annette Nominations can to be your submitted via email to: Annette Wraggeget at awragge2@unl.edu don't lose yourTo A&D Coverage. an Do you know that you can add your child, private schedule appointment It wears us get out, but toLincoln, help our kids, we'll do whatever it takes! health insurance (non-medicaid), andTODAY!! if you are on the A&D Waiver, you those Wragge, UNL, 253Fcan Barkley Center, NE 68583-0738 At either location, premiums paid for for BOTH you and your child, throughNomination the HIPP program? to be the Deadline Has is March 8. The award will be presented during the Thursday evening dinner at Wefor are selfless, not by choice you see. Our kids just have many needs. same family policy, but they will cover all the insurance the premiums your entire family!! 2013 ASD State Conference. The conference will be held on April 11 & 12 in Kearney at the Youness Thank You to all L&B Families For us this was $1,200 in premiums, because we are self-employed, don't have not a corporate We're out to medical change the world, but want to plant some seeds. Convention Center.program, and we are their we beginmom, I found plan, and it wasfor killing us. support By talkingas with another out about We this want our kids accepted. That really is our aim. our 6th year of service in For 5 years we were When waiting on our reimbursement to arrive!! So cool. told that ourlook income we at dictated them, we just see kids. We hope you'll do the same. the medicaid that our son received, for us that meant we had to either stay in this income boxof A Special Sitter “Our Story” Thelittle Beginning North Lincoln, Now at a NEW of like $45,000 or make an additional $100,000 to cover the expenses in therapy and medical As parents fourVernon children, two with special needs, we understand your challenges in raising special needs -- of April Location, services that our sons receives on an annual basis minimum. children. The guidelines to be onour theGod A&D As parents, given responsibility is to train our children for life. As a parent, you & WELCOME all they Neware. Families Waiver, I do not know for sureto what If you want to know, I can find out, just email me. I experience highs & lows as yourbeing children grow through the seasons of life. We learned early, that these know that my son qualifies, and ifSouth!! has something to do with being fed solely by g-button, and to L&B & lows are amplified when you are caring for a child with special needs. You want to attend your non-independent. If you want the contact information for the highs HIPP program, just shoot me an email any event specifically aboutchildren’s events, teacher on that also, orCheck ask yourout Service Coordinator it. There sporting are many programs out conferences, & musical performances. You want to continue to date there available to help families ours out. We just need to your get the word because out therea for families to spouse, strong marriage creates a strong family. Like us, you probably have asked changes, afterlike publication access that information. If you know of a program, that would benefit families, email me. yourselves, “How do we create & maintain this balance when most of our time & energy is devoted to caring additions & MORE ohanakidsnews@gmail.com We will research it and get the correct information out to all for our child with special needs?” Our desire is to help you answer that question so your family can at our blog: the families. Important Tidbits for Families pages 2 - 6

What's Where???

experience the fullness of blessings available to your family because of your child with special needs. A State-Wide page 6 ongoing journey of parenting or family & we believe our experiences can helpconducted you experience the fullness of blessings we have received as we have raised Bellevue, Cedar Bluff & Columbus pageour 7 family. – Kimberly blogspot.com The Nebraska Technical Assistance Project on Deaf-Blindness has training this year Richard Co-Founders of A Need any help,page please specific to parents of children who have a combined hearing &and vision loss. Troia, The training has been inSpecial Sitter Fremont & .Grand Island 8 call us today at 402partnership with the National Consortium on Deaf-Blindness (NCDV2.0). total or of 7rtroia@aspecialsitter.com parents have 697-8400 Ax201 Gretna & Hastings page 9 For more information,

*

Special Sitter inspiredloss by our www.ohanakidsnews. Parent Group with kids with combined hearing &was vision Independent Consultant

Heather Ackman participated in a series402-­‐227-­‐5304 of training activities from May 2011 through October 2011.

They are now Lincoln pages 10 - 15 orleadership advertising rates working on their goals & have another planned meeting in April 2012, as well as ongoing imapamperedchef @ yahoo.com Respite Care Available for Air Norfolk Force Families FREE pages *15 - 16to them * meetings in the future. They are called the Nebraska DB Parent Leadership Team, & have provided please contact us at: Airteam Force Program (EFMP) families stationed throughout the country lots of support to the state deaf-blind project. It is the intent U.S. of this to (USAF) provideExceptional one-on-oneFamily Member North Platte page 16 All orders help support interaction either via phones, technoloty or face to-face with other therequire state who havechild a care considerations due to the child’s special needs. Finding & have parents childreninwho unique 402-227-5304 Omaha pages 16 - 24 child birth to age 21 with a combined hearing & vision loss. Ifpaying you want be connected to for onechildren of O’Hana Kids N ews!!! for to quality child care with special needs can also present significant challenges for ohanakidsnews@gmail.com Resources for Families pages x these parents, please contact Teresa Coonts at the number and email listed above. This isAir anForce military families. The U.S. EFMP program has established a quality respite program for families Get 1 0% O FF A LL O RDERS!!! FACEBOOK exciting group of parents working too!! & learnin together for the purpose of supporting other families in Classifieds with children having special needs & who are enrolled in thepage USAF 29 EFMP. USAF EFMP Respite Care is the future.

Thanks for Reading OKN!!

Help us Expand our Reach, Pass us along to

specifically designed for Air Force families who have children diagnosed with moderate or severe special needs under EFMP. This includes exceptional family member children whose medical conditions require assignment near major medical facilities in the continental United States, or whose needs are you complex and require specialized of care. What is included in families know who could community use this information!!! the USAF EFMP Respite Care? Respite care hours vary between 8 – 20 hours per month based on the Airman’s status and EFM’s condition (moderate or severe). Your choice of an approved in-child’s home or licensed Family Child Care or Child Care Center. (Approved providers are background screened and have the following pre-service training: CPR, First Aid, Medication Dispensation, & Child Abuse Recognition & Prevention as well as subject matter training in the care of children with special needs. To begin the application process, call Child Care Aware toll-free at 1-800-424-2246 or email michelle.pridell@offutt.af.mil for a Respite Care Step by Step instruction form. Or call the EFMP Office at 402-294-4329 for more info!

When contacting our advertisers, please tell them you found them HERE!!!


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

I m p o rt an t T id b it s f o r F a m i l ie s May is Better Speech & Hearing Month May 9 is National School Nurse Day

Page 9

Limb Loss Awareness KitsMay These will to the public during the month of April. April is 13beisavailable Mother's Day Limb Loss Awareness Month. The kit will include a yard sign stating our Just Ask! Awareness theme and other items (to help grab attention of passing traffic) along with simple setup instructions. The idea is to have families request the kits so that we can bring awareness to the entire state. These kits can be requested by contacting the Nebraska Children with Limb Differences (NCULD) Association at awareness@nculd.org They are FREE of cost and will be mailed right to your front door!

Advertise Here!!

Special Needs Mom's

Looking for

WANTED: Children with Limb Differences to write their story for NCULD’s think us is“special have pretty Book!!You Themay NCULD family publishingmoms” a book and we it need some rough. more limb different kiddos to help us

Advertisers in the Central/Western Parts of NE Only $25 a month No Contracts!! Contact Heather at 402-227-5304 ohanakidsnews @gmail.com

WeHow have notimes choice. We been just asked, manage lifehappened when things tough. write it! many have you “What to your get hand,really arm, leg, __________ madeNow it through the chance days we thought we'dWhat never through. (fill in We've the blank)?” is your child’s to tell their story! willmake make it this book so great is even impressed our own selves with that canthis do!very question. From that itWe've will incorporate the many different approaches we’veall taken to we answer Maycee’s “WHAT?! I’m missing my hand? To Micah’s “There were these four ninjas . . .” sense of We've gained patience beyond measure, love we never dreamed of giving. adventure to Braedyn’s “God just made me this way” wisdom, we’re sure to get a variety of enduring and We worry about the future but know this “special” life's worth living! witty child-friendly answers. We’ll wrap up the book by tying it in with our current awareness campaign, We have bad days and hurt sometimes, but we hold our heads up high. “Just Ask?” with an encouraging word about “just asking” about someone’s difference, no matter what it We feel joy and pride and thankfulness more often than we cry. might be, in a simple and considerate way. Your child’s story can be about anything they can imagine that explains thekids, question, “What happened to your ________ (filldo in so the much blank)?more Please:)keep your For our we aren't just SUPERMOMS, No, we child’s We storyare under 100 words. You can submit final draft who to kourtney.case@nculd.org along with cheerleaders, nurses, andthe therapists don't walk out the door. a favorite your child. You can an illustration for thedignity story asand wellgrace. if you’d like. We picture handleofrude remarks andsend unkind stares, with Submissions due NOthe LATER THAN APRIL 12!!cannot This can a great family project with parents and Evenare though pain they bring bebeerased. siblings chiming in with ideas too! Have fun, be imaginative, but mostly, just be YOU! All proceeds will benefitTherapies the Nebraska Children with Limb Difference Each child author will be named and and treatment routes are aorganization. lot for us to digest, will receive a copyknow of the what finishedthe product! writing!!! We don't futureHappy holds, but give our kids our best. Edition #24 May 2012 None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, justAcross see kids. hope you'll do the same. Proudly serving over 8,500+ families --we NOW allWe of Nebraska!!!

i P a d & iP h o n e A p p s for Our Kids & Families

-- April Vernon

Check out any event changes, after publication additions & MORE at our blog: www.ohanakidsnews. blogspot.com For more information, or advertising rates please contact us at: 402-227-5304

ohanakidsnews@gmail.com FACEBOOK too!!

Thanks for Reading OKN!!

May is Better Speech & Hearing Month May 9 is National School Nurse Day

May 13 is Mother's This is going to What's be a list ofWhere??? Apps thatDay we can utilize, as parents with kids who have special needs Important Tidbits for Families pages 2 - 6 If you have one to add, just shoot me an email with the info!!! State-Wide page 6 Special Mom's Bellevue, CedarNeeds Bluff & Columbus page 7

Island page 8 AbleRoad – AbleRaod isFremont a website&& Grand mobile app for finding & rating accessible places,

Gretna & Hastings 9 such as You restaurants, shops, hotels, medical & page many other venues! It’s a perfect may think us “special moms”practices, have it pretty rough. Lincoln pages 10 - 15 mobile service forno people withWe disabilities, medical & their family members We have choice. just manage lifeconditions when things get friends, really tough. Norfolk pages 15 we'd -at 16www.AbleRoad.com We've made it access through the days thought never make it through. & caregivers. You can AbleRoad viawe the website or through We've even our own all16 thatmonth we can do! North Plattewith page the iTunes store. Animpressed Android app will be selves available later this (February). They are all Omaha FREE so download & start using them today!!!pages 16 - 24 We've gained patience beyond measure, love we never Resources for Families pages x dreamed of giving. We worry about the future but know this “special” life's worth living! MySocius – MySocius is designed toClassifieds be a sort of page digital29 tutor for parents seeking ways to We have bad days and hurt sometimes, but we hold our heads up high.

feeluncommunicative joy and pride and thankfulness more often motivateWe their child to begin using words. Thisthan app we wascry. designed for kids on the Autism Spectrum. The app usually retails at $24.99 but for a limited time is being For our kids, we aren't just SUPERMOMS, No, we do so much more :) offered FREE to families of children with Autism. For more information contact Craig LutzWe are cheerleaders, nurses, and therapists who don't walk out the door. PriefertWe at handle BehaviorApp, LCC at craig@sectornow.com or dignity 402-423-2444 rude remarks and unkind stares, with and grace.

Help us Expand our Reach, Pass us along to families you know who could use this information!!! Even though the pain they bring cannot be erased.

Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!

Check out our website at

www.ohanakidsnews.com

O’Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact information provided. You can check the We are selfless, not by choice see. page Ouras kids just have many needs. blog at www.ohanakidsnews.blogspot.com or ouryou Facebook we try to update those with any information We're out to change the world, but want to plant some seeds. changes that havenot occurred after publishing.

We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same. -- April Vernon


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

2013 SUMMER CAMPS

Â

May is Better Speech & Hearing Month May 9 is National School Nurse Day

May 13 is Mother's Day

Page 10

June 26-30, 2013 Jason Fisherman Epilepsy Camp LOCATION: YMCA of the Rockies, ESTES PARK, COLORADO MORE INFORMATION: Marcee Peterson 303-377-9774 or marcee@epilepsycolorado.org FINANCIAL ASSISTANCE: Stacey Doty at sdoty77@hotmail.com DESCRIPTION: Online Registration will open March 1 (maybe sooner)

Special Needs Mom's

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You may think us “special moms� have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!

2013 Easter Seals Camp Dates

We've gained June patience beyond never & dreamed giving. 6: Lunch withmeasure, the Stafflove – allwe Parents Campers of invited at Noon We worry about the future but know this “special� life's worth living! June 9 – 14: Young Adults, ages 23 – 39 We have bad days and hurt sometimes, but we hold our heads up high. June 16 more – 21: Adults, ageswe 40+cry. We feel joy and pride and thankfulness often than

June 23 – 28: Youth, ages 6 – 13 For our we aren't just SUPERMOMS, No, we do7so more :) Base Lake July 11 – kids, 12: Military Youth with Disabilities ONLY, ages – much 17, Offutt AFB, We are cheerleaders, nurses, therapists who July 14and – 19: Teens, ages 14don't – 22 walk out the door. We handle rude remarks and unkind stares, with dignity and grace. July 21 – 26: All Ages Even though the pain they bring cannot be erased.

For more information on these camps: Mike Tufte 402-930-4053

Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, registration but give our kids our open. best. Please stop Easter Seals Nebraska's new online is now None of us can be replaced, so we don't get many breaks. by www.campeastersealsne.com to register. Make sure you check out the It wears us out, but to help our kids, we'll do whatever it takes!

new links at the top of the homepage, as well as the PHOTOS link.

Remember summer is almost here!!! We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

PROJECT Â EXPLORE Â SUMMER Â CAMP Â -- April Vernon Â

Sunday,  June  30  to  Saturday,  July  6  Camp  Starts  at  3:30  p.m.  on  Sunday,  &  ends  at  9:00  a.m.  on  Saturday  Check out any event WHERE:  Camp  Kitaki,  LOUISVILLE  changes, after publication What's Where??? COST:  $470   Space  is  Limited!  Register  TODAY!!  additions & MORE Â

our blog: Project  at EXPLORE  has  the  unique  purpose  of  providing  learning  disabled  or  attention  dTidbits eficit  youth  ages  opages f  8  &  17,  Important forbetween  Families 2w-ith  6 a  positive  summer  camp  e xperience.   It  is  specifically  designed  for  children  who  have  been  identified  with  a  learning  disability,  State-Wide page 6attention  deficit  disorder,  Autism,  www.ohanakidsnews. Asperger’s,  or  like  disorders,  without  primary  emotional  or  behavioral  pBellevue, roblems.   Campers  will  be  involved  in  small  groups  Cedar Bluff & Columbus page o7f  10  children  who  are  blogspot.com led  by  2  staff.   Campers  experience  nature  &  participate  in  camp  activities  that  Fremont emphasize  & the  Grand enhancement  of  spage elf-­â€?esteem.   Camper  relationships  Island 8 help  develop  the  realization  of  the  unique  capabilities  n  eHastings ach  individual.  Gretna i& page 9 For more information,  Lincoln pages 10 - 15 or advertising rates FOR  M ORE  I NFORMATION:    pages 15 - 16 Norfolk please contact us at: Call  D’Arcy  Goodrich  at  402-­â€?334-­â€?1677  oNorth r  proj-­â€?expl@cox.net  Platte page 16  402-227-5304 Omaha pages 16 - 24 ohanakidsnews@gmail.com Resources for Families pages x FACEBOOK too!! Classifieds page 29

Thanks for Reading OKN!!

Camp Abilities Nebraska July 21 – 26, 2013

Help Camp us Expand Reach, us along to families youfor know use this information!!! Abilitiesour Nebraska is aPass week-long residential sports camp youthwho you could are blind, visually impaired or deafblind. Youth will explore sports & recreational activities in a safe environment with instructors who have experience in adaptive techniques. COST: $300; Scholarships are available & NE residency NOT required! REGISTRATION: Begins NOW & Ends May 1; LIMITED to 20 CAMPERS!!! MORE INFORMATION or TO MAKE A DONATION: Call Kristal Platt, Camp Director at 402-498-6365 or Kristal.platt@boystown.org or visit www.BoysTownHospital.org/HearingServices/EducationalOutreach


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

2013 SUMMER CAMPS

May is Better Speech & Hearing Month May 9 is National School Nurse Day

May 13Bisuddy Mother's True Farms Day Home of Luv A Lamb

2013 2013 Summer Farm Camps Special Needs Mom's & Clinic Schedule SUMMER may think us “special moms” have it pretty rough. & You WHERE: 1 3714 South 84th Sget treet, Papillion, NE We have no choice. We just manage life when things really tough. We've made it through the days we thought we'd o never make it through. Just s outh f H wy 3 70 DAY CAMP We've even impressed our own selves with all that we can do!

COST: All Farm Camps & Clinics Cost $10 Per Person We've gained patience beyond measure, love we never dreamed of giving. Ages 4 & Up worth living! We worry about the future but know this “special” life's

We have bad days and hurt sometimes, but we hold our heads up high. Farm Cmore amp often Day than -­‐ Call we For Date We feel joy and pride and thankfulness cry.

Call to Book a Farm Tour, We’ll Find a Date for Your Group

• Tour just the farm, wash and walk pet animals, learn For our kids, we aren't SUPERMOMS, No,sheep, we do sothe much more :) about farm life. Registration information available Weat: are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks unkindCstares, with and www.hiskidscamp.org Sheep Sand hearing amp – C all tdignity o B ook a Sgrace. hearing Camp, We Even though the pain they bring cannot be erased.

Start as Early as APRIL • Learn routes about ware ool, ahelp hear a sto heep, make an art project out of wool. Therapies and treatment lot sfor us digest, For More Information or Questions: We don't know what the future holds, but give our kids our best. Josh Rausch at josh@campluther.org Cowboy Dave Camp – Monday June 17 (1 -­‐ 3 PM) & None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever Wednesday July 17 (it6 takes! -­‐ 8 PM) • Learn life lessons with Cowboy Dave, an educational presenter -­‐

Summer Camps

We are selfless, not by choice you see. Our kids just have many needs. www.cowboydave.org We're not out to change the world, but want to plant some seeds. • T eaching t raditional v alues to the youth of today, and he does it the We want our kids accepted. That really is our aim. way! do the same. When we look at them, we just see kids. Wecowboy hope you'll -- April Vernon

COST: $190 per camper His Kids Camp A (Ages 35 & up) Check out any event changes, after publication May 29 – June 1 additions & MORE His Kids Camp B (Ages 13 & up) June 5 – 8 at our blog: His Kids Camp C (Ages 13 & up) June 12 – 15 www.ohanakidsnews. His Kids Camp D (Ages 13 & up) June 19 - 22 blogspot.com

For more information, or advertising rates please contact us at: SaturDAY

Camp

For 402-227-5304

ages 5 to 13 ohanakidsnews@gmail.com COST: $35 per camper FACEBOOK too!! July 20, 2013 Thanks for Reading 9:00 OKN!! am to 4:00 pm

Arts and Craft Day – Wednesday June 19 (1 -­‐ 3 PM) • Look around the farm to find natural bits and pieces and make art!

Vet Clinic Camp – Friday June 14 (3 – 5 PM) & Wednesday July 24 (2 – 4 PM)

What's Where???

• June 14 -­‐ Dr. Hebel of Five Elements Alternative Veterinary Clinic will present about veterinary education, & basic et care via holistic practices. Important Tidbits forpFamilies pagesand 2 -alternative 6 • July 24 State-Wide – Dr. Olsen of Plattsmouth page 6 Animal Clinic will present how to a veterinary career, Bellevue, Cedar Bluffpursue & Columbus page 7 & share a documentary about his time in South Fremont & Grand Island page 8 Africa fulfilling a veterinary Gretna & Hastings internship. page 9 Lincoln pages 10 - 15 Poultry & W aterfowl C linic – Tuesday June 18 (6 – 8 PM) Norfolk pages 15 - 16 • Presentation by Brett Kriefels, a professional in the industry, about care, North Platte page 16 feeding, & showing. Omaha pages 16 - 24 Resources for Families pages W x orkshop Sheep Enrichment Classifieds page 29

Thursday July 11 (10 AM – 12 PM)

• Even the sheep need to have fun. Help us make toys for the sheep!

Ice Cream Making – Friday July 19 (10 AM -­‐ 12 PM) • Learn how to make ice cream from sheep milk and goat milk.

Help us Expand our Reach, Pass us along to families you know who could use this information!!!

For all programs, each camper is paired with a trained “Buddy” to be with them during their ENTIRE camp experience. “Buddy” training is specifically designed for their camper to meet & challenge each camper’s abilities, creating an “I can do it!” attitude!

PLEASE CONTACT US FOR QUESTIONS, RESERVATIONS & REGISTRATION FORMS:

donna@luvalamb.com (402)578-­‐2388 www.luvalamb.com Registration is Required, with Full payment. We reserve the Right to Cancel & Payment Will Be Refunded


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

2013 SUMMER CAMPS

The Spinning Jays Bike Camp

May is Better Speech & Hearing Month May 9 is National Day LincolnSchool Park Nurse and Recreation May 2013 13 is Mother's ADAPTIVEDay RECREATION SUMMER CAMPS For More Information: Kerry Zingg at 402-441-7877 or kzingg@lincoln.ne.gov Monica Manning at 402-441-7948 or dwilliams@lincoln.ne.gov

Special Needs Mom's

All Classes led by licensed Physical Therapists the applicant attended any You may think us “specialIfmoms” have it hasn’t pretty previously rough.

Recreation Center Programs, please bring your We have no choice. Easterday We just manage life when things get really tough. registration into it through. We've made it through the days we competed thought we'd never make Easterday Center Adams, LINCOLN. We've even impressed our ownRecreational selves with all that at we6130 can do! Please call one of the above ladies to arrange a time to do that.

WHERE: Creighton Pediatric Therapy We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! SUMFUN DAY CAMP 16910 Frances Street, Suite 102, We have bad days and hurt sometimes, butShelter we hold heads up LINCOLN high. LOCATION: Antelope andour Auld Pavilion, OMAHA We feel joy and pride and thankfulness more often than TIME: 9:00 am to 2:30we pmcry. WHEN: June 4 to 14, EVERY Tuesday, Thursday & TIME: 10:00 am to 11:30 am

Offered for school-age youth with special needs ages 5 – 21. For our kids, we Activities aren't just SUPERMOMS, we do so much offer opportunities No, for developing skills &more social :) interaction in a We are cheerleaders,fun nurses, and therapists don't walk out the door. environment. Campers who are expected to participate in group We handle rude activities, remarks & and unkind stares, with dignity and grace. interact with their peers. We incorporate activities that focus Even though the pain they bring cannot be erased. on healthy lifestyles & fitness (active games, sports & swimming) & nature exploration (field trips, crafts, & activities in parks). Friday Therapies and treatment are atolot for us to according digest, to age, after registration Campers routes are assigned site groups We don't know what the future holds, but give our kids our best. is completed. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes! CREATIVITY CAMPS

PROGRAM FEE: $90 Space is Limited

Designed for teens & young adults with special needs ages 13 & up. We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but to plant some seeds. Art want Extravaganza Camp We want our kids accepted. That really Recreation is our aim.Center, 6130 Adams, LINCOLN LOCATION: Easterday When we look at them, we just see kids. We1:15 hope do the same. TIME: – you'll 4:15 pm

-- April Vernon

Check event Each out childany must complete a bike riding screen changes, after publication prior to starting. additions & MORE at our blog:

Private sessions available for children of all ages,

www.ohanakidsnews. Call for availability & costs. blogspot.com

For more information, For More or advertising rates Information please contact us at:

or to Register:

402-227-5304

ohanakidsnews@gmail.com FACEBOOK too!!

402-932-3355 pediatrictherapy@creighton.edu Thanks for Reading OKN!!

Campers will receive instruction on painting, drawing, ceramics & pottery. Campers will each have time to present their art work during a Student Art Show on Friday, July 26 from 3:30 - 4:00 pm at Easterday.

Drama Camp

LOCATION: Auld Pavilion, LINCOLN TIME: 9:30 am – 3:00 pm Campers will modify a children’s play, work on sets, props, & costumes. Campers will have a performance on August 2 from 2:30 – 3:00 pm at Important Tidbits for Families pages 2 - 6 Auld Pavilion.

What's Where???

State-Wide page 6 Bellevue, Cedar & have Columbus 7 of 1:5 Our Bluff Camps a staffpage ratio Fremont & Grand page 8 If your child has a 1:1Island ratio at school, you are responsible Gretna & Hastings pagethe 9 camp with your child J . to provide a person to attend Lincoln pages 15 Staff who work at 10 our- camps are hired for their Norfolk pages & 15interest - 16 experience, training in working with youth North Platte page with disabilities. Many are16 college students working on Omaha pages 16 - 24 education & special education degrees. Volunteers Resources for Families pages x We will work with provide additional assistance. page personalClassifieds staff or aides to29 adapt equipment, encourage campers, & provide any other assistance, which may be needed. Once maximum enrollment is reached, applicants will be placed on a waiting list.

Help us Expand our Reach, Pass us along to families you know who could use this information!!! O’Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those with any information changes that have occurred after publishing.

Resources for Families Are now listed ONLY on the website

www.ohanakidsnews.com because of their sheer size J


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

2013 SUMMER CAMPS

May is Better Speech & Hearing Month May 9 is National School Nurse Day

Camp Quality USA

May 13 is Mother's Day

The Barn

Special Needs Mom's 2013

Camp Quality USA, Inc., Summer You may think us “special moms” have it pretty rough. provides year-­‐round We have no choice. We just manage life when things get really tough. support programs We've for made it through the days we thought we'd never make itCamps through. We've even impressed our own selves with all that we can do! children with cancer and We've gained patience beyond measure, love we never dreamed of giving. their families. Programs include our signature We worry about the future but know this “special” life's worth living! week long camp and other year-­‐round We have bad days and hurt sometimes, but we hold our heads up high. Camps are for A LL AGES We Efeel programs such as reunions and ski camps. ach joy and pride and thankfulness more often than we cry. & Run 9:00 am to 3:00 pm Daily camp is volunteer run and community funded. For our kids, we aren't just SUPERMOMS, No, we do so much more :)

We are cheerleaders, nurses, and therapists who don't walk out the door.

Camp Quality gives families a much needed est, rude remarks and unkind stares, We r handle with dignity June 17 – 21 and grace. Even though the pain they bring cannot be erased. knowing that the highest quality program has June 24 – 28 been selected for their child – a companion will and treatment routes are a lot for us to digest, Therapies July 8 – 12 be assigned to ensure the child’s safety aWe nd don't the know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many July 15 breaks. – 19 finest medical supervisors are provided It at wears each us out, but to help our kids, we'll do whatever it takes! July 22 – 26 camp to administer medications and on-­‐site We are selfless, not by choice you see. Our have many July 2kids 9 – just August 2 needs. care. We're not out to change the world, but want to plant some seeds.

August 5 -­‐ 9

We want our kids accepted. That really is our aim.

Campers at Camp Quality range from 4 yWhen ears owe f look at them, we just see kids. We hope you'll do the same. age through 17 and vary in stages of t-heir April Vernon Camp size is from 5 to 10 campers. We h ave found that treatment or remission. They are children who this number allows for more one on one interaction smile, laugh, play and have dreams for a bright and less waiting by the campers. Campers will Check out any event future. experience ariety of sensory activities, outdoor changes, after publication What'sa vWhere??? The Companions are the lifeblood of the camp. additions & MORE activities, and many typical camp events to enhance at our They are the ablog: round-­‐the-­‐clock caretaker for the sensory integration opportunities. Important Tidbits for Families pages 2 - 6Summer camp State-Wide page 6 campers and ensure the m ost enjoyable, safe, provides an opportunity for the kids to interact with www.ohanakidsnews. Bellevue, Cedar Bluff & Columbus page 7 blogspot.com relaxing, and restoring experience possible for peers, and build on the skills they have been learning Fremont & Grand Island page 8 each child. Each companion, at least 18 years of all year through individual therapy, school, and other Gretna & Hastings page 9 For more information, Lincoln pages 10 15 age, i s i nterviewed, b ackground c hecked, a nd special s ervices. S ocialization w ith peers within a or advertising rates Norfolk pages 15 16 please contact us at: trained BEFORE camp!! community setting is important for kids with sensory North Platte page 16 integrative disorders 402-227-5304 Omaha pages 16a-nd 24The Barn summer camps Camp Q uality p rovides a ll t he y ear-­‐round ohanakidsnews@gmail.com provide t hat p rivilege in a safe Resources for Families pages x and nurturing programs at NO COST to families. The camp is FACEBOOK too!! Classifieds page 29 environment. Campers develop a close relationship run 100% on donations, supplies, Thanks for Reading OKN!! with camp counselors and therapists as well as the & volunteer hours. other campers. Your child will need to bring a swim suit, a change of clothing, sack lunch & drink. The Help us y Expand Reach, Pass O usr along know who could use this information!!! Would ou like our to V olunteer? know to families you campers will be interacting in many activities more about Camp Quality or even throughout the week. Register for an upcoming Camp?

Caleb Rogers 712-­‐310-­‐8177 caleb.rogers@campqualityusa.org

For More Information or to Register 402-­‐301-­‐6829 info@myplaybarn.com


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

Page 14

State-Wide INFORMATION May is Better Speech & Hearing Month May 9 is National School Nurse Day

Independent Consultant

May 13 is Mother's Day

Telehealth Clinics Near You!! If you have Epilepsy? Or Seizure Disorder? MORE INFORMATION: 308-865-7742 for information & appointments DECRIPTION: Save time and travel expenses. See an expert from a hospital near you without the hassle of traveling. There are telehealth clinics for children & youth with epilepsy or seizure disorders, available! Appointments available immediately with a pediatric neurology specialist. Call today for a telehealth location near you!

Heather Ackman 402-­‐227-­‐5304

Special Needs Mom's

imapamperedchef @yahoo.com

State-Wide MAY Events

All orders help support O’Hana Kids News!!! O’Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those with any information changes that have occurred after publishing.

You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do! Now through 15 patience beyond measure, love we never dreamed of giving. We've May gained Camp Luther about 2013 Annual Art Contest We worry the future but know this “special” life's worth living! SUBMIT ENTRIES Camp Luther Nebraska, 1050 RDwe 4, Schuyler, 68661 up high. We have bad TO: days and hurt of sometimes, but hold ourNE heads DESCRIPTION: is pride a contest forthankfulness artwork. Theremore are $100 Camperships We feel joyThis and and often than weawarded cry. for winners in these age categories: Grades K – 3, Grades 4 – 6, Grades 7 – 8 and Grades 8 & Above. Entries should all bekids, in color on 4.5just x 5.5 inch paper. Please For our weand aren't SUPERMOMS, No, include we dothe so artist’s much name, moreage, :) grade, school and city on the back of the artwork. All entries must received by May 15. The theme this We are cheerleaders, nurses, and therapists whobedon't walk out the door. year Abundantly based on Johnand 10:10b, “I’ve come thatwith you may have life, have it abundantly.” Weishandle rude remarks unkind stares, dignity andand grace. Even though the pain they bring cannot be erased.

Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!

Special Olympics Nebraska 2013 Summer Games Schedule Omaha, NE

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same. -- April Vernon

Wednesday, May 22

Check out any 6:00 pm to 9 :30 event pm changes, after publication additions & MORE Thursday, May 23 at our blog:

9:00 am to 3:00 pm

www.ohanakidsnews. 9:00 blogspot.com am to 3:00 pm

10:00 am to 3:00 pm

7:00 pm tinformation, o 9:00 pm For more or advertising rates please contact us at:

Friday, May 24

402-227-5304 8:00 am to 3:00 pm

Volleyball

Aquatics Gymnastics Level A Athletics Opening Ceremonies

Kiewit Fitness Center

What's Where???

Important Tidbits for Families pages 2 - 6 Common Grounds (Elkhorn) State-Wide page 6 Gym page 7 Bellevue, Cedar BluffCahoy’s & Columbus Kiewit Fitness Fremont & Grand Island page 8Center Gretna & Hastings 9 Creighton Ryan Cpage enter, Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Prairie Life Fitness, 84th & Q Omaha pages 16 - 24 Resources for Families pages xCenter Skutt Student Classifieds& page 29 Fitness Center Kiewit

Power Lifting Healthy Athletes 9:00 afor m tReading o 1:00 pm Rollerskating Skatedaze Thanks OKN!! 9:00 am to 1:00 pm Level A Aquatics Kroc Center 6:00 pm to 9:30 pm FieldEvents/Pentathlon/200m, 400m, & 800m Walks Omaha Northwest High School Help us Expand our Reach, Pass us along to families you know who could use this information!!! Saturday, May 25 8:00 am to 3:00 pm Running Events/50m & 100m Walks Omaha Northwest High School 10:00 am to 2:00 pm Olympic Village Omaha Northwest High School 6:00 pm to 7:00 pm Closing Ceremonies Kiewit Fitness Center 7:00 pm to 9:00 pm Victory Dance Kiewit Fitness Center ohanakidsnews@gmail.com 9:00 am to 4:00 pm FACEBOOK too!!


Edition #24 May 2012

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Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

Page 15

May is Better Speech & Hearing Month State-Wide UPCOMING Events May 9 is National School Nurse Day

May 13 is Mother's Day Â

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July  25  Therapies and treatment routes are a lot for us toLanguage,  digest, “Sensory  Processing:  Behavior,  Memory,  &  Learning  We don't know what the future holds, but give our kids our best. Introduction  t o  t he  R EADY  A PPROACHâ€?  None of us can be replaced, so we don't get many breaks. Â

It wears us out, but to help our kids, we'll do whatever it takes!

July  26  Create  ome  Tyou ools!â€?   â€œUpdates  on  DB  many Projectâ€?  We are “Let’s  selfless, not bySchoice see.&Our kids just have needs. We're not out to change the world, but  want to plant some seeds. We want our kids accepted. That really is our aim. For  More  Information:  When we look at them, we just see kids. We hope you'll do the same.

Advertise Here!! Check Looking out any event for changes, after publication additions & MORE Advertisers at our blog: in the www.ohanakidsnews. Central/Western blogspot.com For more information, Parts of NE or advertising rates please contact us at: 402-227-5304 Only $25 a month

ohanakidsnews@gmail.com No Contracts!! FACEBOOK too!!

Teresa  Coonts,  P roject  Director  Nebraska  Deaf-­â€?Blind  Project   -- April Vernon  at  4 02-­â€?595-­â€?1810  or  Teresa.coonts@nebraska.gov   Norma  Tinstman,  Adm.  Assistant  at  402-­â€?595-­â€?2177  or  norma.tinstman@nebraska.gov   Â

What's Where???

Co-­â€?Sponsored  by:  Important Tidbits for Families 2-6 Nebraska  Project  for  Children  with  Dpages eaf-­â€?Blindness  State-Wide page 6Special  Education  Nebraska  Department  of  Education,  Bellevue, Cedar Bluff & Columbus page 7 Educational  Service  U nit  #3  Fremont & Grand Island page 8 University  Nebraska  page -­â€?  Lincoln  Gretna o &f  Hastings 9 Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Omaha pages 16 - 24 Resources for Families pages x Classifieds page 29

Thanks for Reading OKN!!

Contact Heather at

Help us Expand our Reach, Pass us along to families you know who could use this information!!! 402-227-5304

ohanakidsnews @gmail.com

Check out our website at www.ohanakidsnews.com TODAY!!


Page 5

AUTISM! It Is Treatable ________________________ Proven Effectiveness at the Lovaas Institute Midwest The Lovaas Institute Midwest is offering intensive early intervention services with behavior therapy for children with autism. The Lovaas Institute has been the leader in the field of intensive early intervention since the early 1970’s, and is world renowned for its groundbreaking outcome study in 1987. Since that time, Dr. Lovaas and his associates have helped start numerous behavior therapy programs around the world, under the auspices of the NIMH-sponsored replication project. As a result, we are excited by the recent outcomes that fellow replication sites have found as they completed studies in Wisconsin and California. In turn, the Lovaas Institute Midwest is known for its innovations that include the language matrix, dynamic programming, clinical social skill programming, and parent-training. Our aim is to further advance the effectiveness of early intervention through the best possible treatment for your child and research for all children.

Edition #24 May 2012

*

IMPORTANT TIDBITS  FOR FAMILIES

ALLPlay Baseball for Kids with Special Needs

We are looking for children with disabilities to play in our incredible ALLPLAY Miracle League Baseball League. Last year we have over 150 kids play baseball and we are looking for MORE!! See our ad to the left for more information, and check us out at www.ALLPLAY.org You can also call Bruce at 402-305-5020.

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! Parent 2 Parent Mentor's Wanted – Please Read

! OUTPATIENT! !PEDIATRIC!THERAPIES!! PT,!OT,!SPEECH!&!FEEDING! O. Ivar Lovaas, Ph.D. Specialized Services Designed founded Lovaas Institute for The Lovaas Institute Midwest 2925 Dean The Special Needs of Parkway, YourSuite 300, Minneapolis, MN 55416 mwinfo@lovaas.com – 612.925.8365 Child www.lovaas.com

Free Developmental Contact us to receive an extensive review paper of the Screenings research in Applied Behavior Analysis for Autism.

2!Locations!in!Omaha! 2010!N.!88th!Street!! and! 13336!Industrial!Road! Check out any event

CALL!402.496.1000! changes, after publication additions & MORE

For!your!appointment!today! at our blog:

Together,www.ohanakidsnews. we can do blogspot.com anything. For more information, or advertising rates please contact us at:

402-227-5304

Challenger Little Thanks for Reading OKN!! League

ohanakidsnews@gmail.com FACEBOOK too!!

O’Hana Kids’ News is not responsible for Check out any event any events;This including cancellations, or baseball changes, afterchanges publication after print. It is your is each contact responsibility toleague check with additions & MORE to verify the information fthat exclusively or we have provided to you. at our blog: children with special needs. These needs can be mental and/or physical www.ohanakidsnews. disabilities. blogspot.com

Our 3 different Make "little league" sure to let For more information, divisions begin at age 5 & work up to or advertising 21 o r high school grates raduation -­‐ please contact us fat: whichever comes irst.

402-227-5304 Our unique & older 4th division is the ohanakidsnews@gmail.com Alumni which takes over from there & FACEBOOK too!! has no age limit.

Registration for our 2013 season Thanks for Reading OKN!! begins January 1 and will end at the end of February.

UNKNOWN Events

Nationally over 80% of parents of children with disabilities who were mentored by an experienced parent reported it to bet he most helpful source of information on coping with the challenges of raising a child with special needs. Mentored parents report that the support of a fellow parent was so unique and personalized that it could not have come from any other source! As the mother or father of a child with developmental disabilities, you have unique parenting experiences. Through time, training, and trial and error, you have gained valuable skills. Use your knowledge to help another parent on the journey by becoming a mentor. Parent to Parent (P2P) programs link parents of children, adolescents and adults with developmental disabilities with experienced and informed veteran parents who understand the day-to-day experiences of raising a child with special needs. Parent to Parent Omaha is offered by Ollie Webb Center, Inc., a local nonprofit agency. We are seeking parent mentors who are coping well with their child’s situation and view him or her as a valuable and developing person. Consider becoming a mentor if you’d like to help parents cope with the joys and challenges of having a child (of any age) with special needs. The time commitment involves contacting another parent (in person, -mail or telephone) once every two weeks within the fist 8 weeks and as mutually agreed thereafter. You have the knowledge and experience. We provide training as a framework to share your wisdom. The next training will be held soon and will include: Guidelines for Helping Families; Creative Coping Skills and Resiliency; Survival You may think us “special have What it pretty rough.in High Stress Situations and Tactics for Parents of Children withmoms” Special Needs; Helps Families Crisis; Tipsno for choice. Extended Family Members and Siblings; Tips for locating Community Services; We have We just manage life when things get really tough. Information on Parent to Parent USA; Cultural and Family Centered AND We've made it through the days we Competence thought we'd never makeCare; it through. Principles of Family-Professional Collaboration. To talk with someone about becoming a We've even impressed our own selves with all that we can do! mentor, please contact Annie Anderson at 346-5220 ext. 23 or aanderson@olliewebbinc.org or mail your name, address, phone number and e-mail to: Ollie Webb Center, Inc | 1941 South measure, 42nd Street love | Suite 122 | Omaha, NE 68105 ? We've gained patience beyond we never dreamed of giving.

May is Better Speech & Hearing Month May 9 is National School Nurse Day

May 13 is Mother's Day HELP!!! We need INFORMATION to fill up THIS PAGE!! J Yes, it is kinda funny but I left this page intentionally blank, so Special Needs Mom's that we could ask for help with finding information out there in Western Nebraska! If you known of ANY therapy place, that would allow us to use their information on events, camps, etc they are putting on, or you know f efuture vents but PLEASE, PLEASE us worth know!!! We worry abouto the know this “special”let life's living! O'Hana Kids News is giving away POGO cards!! MAY THEY ARE FREE!!! We have bad days and hurt sometimes, but we hold our heads up high. OKN has leftover POGO cards from our fundraiser. Lincoln expires i6/30/2012 and Omaha expires We feel joyWeand pride and thankfulness more than 8/31/2012. would love to start selling the newest POGOoften cards but first we wantcry. to get rid of the ones we have. Therefore from here on our until they are gone, first come first served they are Its eviaasy, oathanakidsnews@gmail.com FREE!! Just let me know email ohanakidsnews@gmail.com. We have POGO cards For our kids, we aren't just SUPERMOMS, No, we do so much more :)for Lincoln and Omaha both. If you have never used a POGO card, you are missing out. In just as little We are cheerleaders, nurses, and therapists who don't walk out the door. as 1 use you can recoup the $5 you paid for the card, and still have a year to use the remainder of We remarks stares, with dignity andable grace. the handle card. My rude family uses a POGOand card unkind on a regular basis, but have never been to use everything on the card, and they it usually savescannot us several hundred dollars a year in what we can use. Even though the pain bring be erased. Here is a sample of what you get: McDonalds's; Burger King, Runza, Many other fast food places, THANK YOU Pizza in A&DVANCE!!!! coffee shops, Pizza Hut; Valentino's, Domino's many other restaurants; Golf at many area Therapies treatment routes are a(Lincoln); lot for Oil usChanges; to digest, courses; Bigand Red Store; Russwood Auto Center Russ' Supermarket ($5 off We know what the future holds, but places give our kids ourwith best. $50 don't purchase x 3, Lincoln), Saltdogs, & so many other to save money I can't even list them all! So how get YOUR so POGO Just many shoot usbreaks. an email or leave us a message None of us cancan beYOU replaced, wecard???? don't get (information on front page) and we will let you know that your POGO card is on its way!! Limit of 1 Itper wears us out, but to help our kids, we'll do whatever it takes! city per email address!! Thank You!!!! *

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but wantFutures to plant some seeds. Building Better We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

The Alexis Verzal Children's Rehabilitation Hospital

is dedicated to the unique needs of children. -- April Vernon Providing advanced technology and compassionate care for a variety of rehab needs, inpatient or outpatient.

What's Where???

Important Tidbits for Families pages 2 - 6 State-Wide page 6 Learn more at www.Madonna.org Bellevue, Cedar Bluff & Columbus page 7 Fremont & Grand Island page 8 people know how you found out about these events, activities Gretna & Hastings page 9 & advertisers!! Tell ‘em, O’Hana Kids’ News pointed you their way!!! Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Omaha pages 16 - 24 Resources for Families pages x Autism Parent Resource Classifieds page 29

Chadron Information

Joni King is a parent, who was involved in the Autism Support Group PETALS in Chadron. While the support group is no longer meeting, she has many resources available to her that would benefit families with children on the spectrum. Feel free to call her if you have any questions pertaining to your child, with Autism. Her number is 308-430-1597.

Our website, Help us Expand our Reach, Pass us along to families you know who could use this information!!!

www.challengerlittleleague.org, is up but under construction. If you cannot find the i nformation you need there please e-­‐mail us admin@challengerlittleleague.org & we will mail out some i nformation & a registration.

Check out special showings @ these theaters with the lights turned up, sound turned down, & other families like ours there to enjoy the movie! www.marcustheaters.com www.amctheaters.com


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

Page 17

Columbus MAY Events May is Better Speech & Hearing Month May 9 is National School Nurse Day

May 13 is Mother's Day

April 20 Pals ‘n Play For Kids ages 5 - 21 with ANY disability LOCATION: Columbus Family Y, Multi-purpose Room, COLUMBUS TIME: 1:00 – 2:30 pm Page 3 COST: ARC members are FREE; Non-ARC Members are $15 PER FAMILY for ALL 7 sessions (NOTE: ARC Membership is $15, get that & go FREE) MORE or arcpc@megavision.com YouINFORMATION: may think us402-563-1699 “special moms” have it pretty rough. DECRIPTION: Pals ‘n Play We is a therapeutic recreation program for school aged children We have life things get really tough.(age 5 – 21) Learn howno tochoice. adapt toysjust to manage use with a when switch/button/BigMac with ANY disability. Each session is days planned & thought led by a Coordinator. Someone with CPR & First Aid We've made itANYONE!! through the we make through. This workshop is for You will learn how to easilywe'd & costnever effectively turnitthe toys that your Training will be there. children attending will limitations, have 1 all on 1that support a “Pal”. Onetosnack We've even impressed our own selves with we from can do! child already has, & isn't All using because of physical into toys that are adapted your will be provided bywill Thelearn Arc.how Thistoprogram A LOT FUN &function helps form friendships child!! You install a isjack into of a single toy & convert it between into a toykids thatwith is operated a switch. Youdisabilities. willbeyond learn how to assemble a switch. You make(ages a detachable disabilities & kids without SIBLINGS ARElove WELCOME TO will ATTEND 5& up)!!!cord We'vewith gained patience measure, we never dreamed of giving. that runs from the toy to thefuture switch. but You know will be able do this, AND you worth will go home with a We worry about the thisto“special” life's living! working switch toy & switch. Best of all, your child's toy will look professionally adapted, by YOU!! We have bad days and hurt sometimes, but we hold our heads up high. You have seen that the switch operated toys are sometimes 8x as much to order, than if you could prideinand moreDates/Times often thanwill we buyWe thefeel toy &joy put and the switch for athankfulness few dollars, yourself. becry. determined when I

Special Needs Mom's

Miracle League Baseball

~ Omaha ~

We believe that “Every child deserves a chance to play baseball!”

2012 Summer Session Begins Saturday, May 19th! Games are held every Saturday at 9am, 10:30am & Noon Games last approx. 1 hour The season lasts 7 weeks (to June 30th) All Games are played in the ALLPLAY Complex, located in Seymour Smith Park at 6802 Harrison Street in Omaha. This complex features barrier free design & level surfaces. The Miracle Field & playground are covered with rubber surfaces to soften any falls. These surfaces are perfect for wheelchairs, walkers, braces & use by people who are visually impaired. Ages from 4 - 20+. Athletes disabilities include autism, cerebral palsy, spina bifida, visual impairments, muscular dystrophy, dwarfism, multiple sclerosis, spinal cord injury, down syndrome, amputations & other physical & mental & cognitive disabilities!

REGISTER TODAY!!! Check out any event Independent Consultant For More Information go to: changes, after publication www.ALLPLAY.org or additions & MORE call Froendt at 402-305-5020 Heather Ackman atBruce our blog:

402-­‐227-­‐5304

www.ohanakidsnews. Easter imapamperedchef blogspot.com

Seals @yahoo.com

For more information, Nebraska orAll advertising rates orders help support please contact usNat: 2012 Summer O’Hana Kids ews!!!

Respite Camp Dates 402-227-5304

ohanakidsnews@gmail.com June 10 - 15 FACEBOOK too!!ages 23-39 Young Adults,

IMPORTANT TIDBITS  FOR FAMILIES

Elkhorn Information

have 4 or more people interested in the class. This class is FREE, however donations of any kind are For our kids, weAaron aren't just at SUPERMOMS, No, we do sofor much :) appreciated. Contact today aaronmiller555@gmail.com moremore information!

We are cheerleaders, nurses, and therapists who don't walk out the door.

A We & Dhandle Waiver Aged & Disabled Waiver rude–remarks and unkind stares, with dignity and grace. Behaven Kids Elkhorn Open! though theon pain they Is bring cannot be erased. IsEven YOUR child this? YOUR child eligible to be on this?

20275 Honeysuckle Dr., that ELKHORN IfLOCATION: your child is on this waiver, do you know it makes your income guidelines non-existent? No Therapies and treatment routes are a lot for us to digest, cap on your income. Just have to use the hours minimum respite each and Elkhorn every month, soyou youcan MORE INFORMATION: 402-933-5700 ask2for Mindi McEwen-Haynes or the location don't lose A&D Coverage. Dofuture you thatbut yougive can add to your private We don't know what the holds, ouryour kidschild, our best. also go toyour www.behavenkids.com for know more information health insurance (non-medicaid), and if you are get on the A&Dfor Waiver, you services. can get those None of usOur can be replaced, sotake we don't many breaks. DESCRIPTION: offices are open to children & families counseling You can call premiums paid for forbut BOTH you your child, through the HIPP program? Has to be the wears to center helpand our we'll doifwhatever takes! to It take a tourus ofout, the Elkhorn also,kids, just call. Also you aren’t it sure of our services that we same family policy, but they will cover all the insurance premiums for your entire family!! offer, please or checkbecause out the we website. For us this wascontact $1,200Mindi in premiums, are self-employed, don't have a corporate medical We are selfless, not by choice you see. Our kids just have many needs. plan, and it was killing us. By talking with another mom, I found out about this program, and we are We're not out to change the world, but want to we plant seeds. waiting on our reimbursement to arrive!! So cool. For 5 years weresome told that our income dictated wantthat ourour kids theWe medicaid sonaccepted. received, for That us thatreally meantis weour hadaim. to either stay in this little income box When we look at an them, we just see kids. We you'll do theand same. of like $45,000 or make additional $100,000 to cover thehope expenses in therapy medical services that our sons receives on an annual basis minimum. The guidelines to be on the A&D Waiver, I do Vernon not know for sure what they are. If you want to know, I can find out, just email me. I -- April know that my son qualifies, and if has something to do with being fed solely by g-button, and being non-independent. If you want the contact information for the HIPP program, just shoot me an email on that also, Toy or ask Lending your Service Coordinator it. There are many programs out Tech Tots Libraryspecifically basedabout in Grand Island, there available to help families likeisours out. Tots We just need to Library get the word out there to For families in Central Nebraska there a Tech Toy Lending available to youforatfamilies Children’s access that information. If you know of a program, that would benefit families, email me. Rehabohanakidsnews@gmail.com Center in Grand Island. Tech Tots provides developmental toys, adapted toys and devices to children We will research it and get the correct information out to all with the developmental families. and physical disabilities. Tech Tots is a FREE service!! You can check out toys to use in

Grand Island INFORMATION What's Where???

your *home for 1 month. Tech Tots Toy Lending Library is a program of UCP Nebraska. Play is an essential for -vision 6children engage Parent Group with kids with combined &As loss in play, component of growing up, Important and is the mostTidbits important workFamilies exploredhearing by pages children.2 Nebraska Technical Assistance Project on Deaf-Blindness this yearfor they The practice and master specific physical, psychological, emotional creative training skills necessary State-Wide page has 6andconducted specific toand parents of children have aaround combined hearing & visionall loss. has been understanding interacting with who the world them. As children haveThe different sointoo Bellevue, Cedar Bluff & Columbus page 7trainingabilities, partnership with the National Consortium on Deaf-Blindness (NCDV2.0). A total of 7 parents have are their methods of operating devices and accessing information. The use of adapted toys and devices Fremont & Grand Island page 8 participated in a series of training activities from May 2011 through October 2011. They are now decrease physical barriers and social barriers to&play, enabling meeting children atApril varied functional to working on their leadership goalsGretna & have another planned 2012, as well levels as ongoing Hastings page in 9 actively exploreinand By equalizing play through these modifications, children meetings the achieve future. some They independence. are called the Nebraska DB10 Parent Lincoln pages - 15Leadership Team, & have provided learn lots about the cause-effect relationships and practice creative solving. As children recognize of support to the state deaf-blind project. It is the intentproblem of this team to provide one-on-one Norfolk pages 15 -other 16 parents in the state who have a either the via phones, face to-face with their interaction abilities through work of technoloty play, they or gain the self-confidence necessary for handing challenges in North Platte page 16 child birth to age 21 with a combined hearing & vision loss. If you want to be connected to all areas of daily living. This is a wonderful opportunity for your child! To access the Tech one Totsof these parents, please contact TeresaOmaha Coonts at pages the number and listed above. This is an 16 Island - 24email Lending Library call Children’s Rehab Center in Grand at 308-398-5170 and ask for exciting group of parents working & learnin together for the purpose of supporting other families in Resources for Families pages x Carole theOstdiek. future.

Classifieds page 29

June 17 - 22 Thanks O’Hanafor KidsReading News is not OKN!! responsible for

Adults, age 40+ any events,. Including cancellations, or changes after print. It is your June 24 - 29 responsibility to verify the information Youth, 6 - 13 provided through theages contact

Help us Expand our Reach, Pass us along to families you know who could use this information!!! information provided. You can check the blogJuly at 10 - 13 Military Youth, ages 7 - 16, Offutt AFB www.ohanakidsnews.blogspot.com or our Facebook page as we try to July - 20 update those with any15 information Teens, ages 14after - 22 changes that have occurred publishing. July 22 - 26 All Ages

MORE INFORMATION: 1(800)650-9880, ext. 1128

www.campeastersealsne.com

This edition FREE!!! Pass along!! When Join contacting our mailing contact us at our list, advertisers, please tellohanakidsnews@gmail.com them you found them HERE!!! All camps are is held at the BSA Camp Eagle near Fremont, NE.

Make sure to let people know how you found out about these events, activities & advertisers!!


program, please have them contact me to set up a screening. During the screen, the family will have the opportunity to try the iPad or iPod as well as several communication applications and accessories. If one of the devices is deemed as a viable option for the child, we will set up a 30 day loan of the device and the appropriate application. During the 30 days, the family will be required for 2 follow Edition #24will May 2012 up/training sessions. One will be scheduled midway through the trial and the other be scheduled for the end of the trial period. During the last scheduled session, we will determine if the trial was a success and will begin the process of securing funding (insurance, grants or private pay options). This is an incredible opportunity for the community and we are excited to offer this program!! Contact Jennifer Brock at jbrock@unmc.edu or 402-559-6460 for more information. 12/11

www.pamperedchef.biz/ heatherackman Now planning Wedding Showers!!! Call today for your spot!! Can be done Online Now!!

NCDHH – families The Nebraska for the Deaf and Hard of Hearing Proudly serving over 8,500+ -- NOW Commission Across all of Nebraska!!! Pageadvocacy, 18 The mission of the Nebraska Commission for the Deaf and Hard of Hearing is to provide

communication access and information to enhance awareness and services for improving the quality of life for all who experience hearing loss. The Vision Statement of NCDHH is: Being a proactive state agency, the Commission works Speech towards building support,Month cooperation and understanding May is Better & Hearing regardless of hearing ability resulting in fairness and equality for all Nebraskans. Make sure to Mayat9 www.ncdhh.ne.go is National School Nurse Day check out our website v

Grand Island MAY Events

*

May 13 is Mother's Day

Dental Research Study for Children with Disabilities May 12 The Department of Pediatric Dentistry at the Munroe-Meyer Institute is conducting a research study Autism Support Group (2 nd Sunday Monthly) evaluating ways in which dentists can help children disabilities feel more relaxed and calm LOCATION: Third City Christian Church, GRAND with ISLAND during2:30 dental treatment. The researchers are seeking children between the ages of 2 to 10, who TIME: – 4:30 pm need dental work done. Children participate receive a $25 giftbrask card a. toorg Wal-mart. Children can MORE INFORMATION: Contact Brandiwho at asn_ grandi sland@aut ismne be seen at MMI or at the dental clinic at Children’s DECRIPTION: Come join usnew for our Autism Support Group! Hospital. The project is funded by the National Institutes of Health. Please contact Dr. Keith Allen at 402-559-5756 or Kristi DeHaai, MS at may 402-559-4498 to learn moms” more about how to enrollrough. your child in this research. You think us “special have it pretty May 18 * We have no choice. We justMonthly) manage life when things get really tough. Respite Saturday (3 r d Saturday Caregiver Day for the Rural Nebraska Families in itCass County We've made it through days we thought never make through. LOCATION: Third City Christian Church, GRAND we'd ISLAND O'Hana Kids News is lookingour to put together day where caregivers can come for a few hours and We've even own selvesawith all that we can do! TIME: 8:30 am impressed to 11:00 a m have a massage, see a chiropractor, have a great meal, maybe a mani or a pedi, possibly have MORE INFORMATION: Contact Bridgett at 308-381-8844 with # of children attending someone doing hair. Just abeyond day where us caregivers can never get done in just aof couple of hours, We've gained patience measure, love we dreamed giving. DECRIPTION: Respite for families. something that makes happy but :). know I haven't seen anythinglife's in Cass County or south of there, for We worry about theusfuture this “special” worth living! caregivers. If any families be interestedbut in something like heads this, PLEASE either give me a call or We have bad days and would hurt sometimes, we hold our up high. May 20 send an email. I will base even doing this more on howoften manythan people We me feel joy and pride and thankfulness wecontact cry. me about it. I know the Family Focus Movie Night!! Madagascar 3: Europe’s Most Wanted need is there. Just let me know. I am interested in any comments you have regarding what you LOCATION: Theatre, 316 also. West Is3 rdchildcare Street, something GRAND ISLAND would like kids, in Grand a short day likejust this look at too?:) Just let me know, For our we aren't SUPERMOMS, No, we do soto much more TIME: Doors open at402-227-5304 5:30 pm, Movieor starts at 6:30 pm Heather ohanakidsnews@yahoo.com We areAckman cheerleaders, nurses, and therapists who don't walk out the door. COST: FREE but SPACE LIMITED!!! CALL TODAY RSVP by May 16!! We handle rude remarks and unkind stares, with dignity and grace. Popcorn or Candy & Drink Provided! Even though the pain they bring cannot be erased. MORE INFORMATION: Sondra at 402-502-3572 or coc@ucpnebraska.org DECRIPTION: Private Showing! Family a series events designed for and open to TherapiesSpecial and treatment routes are Focus a lot is for us to of digest, the children our community with specialholds, needs and members. Presented by We don'tofknow what the future buttheir giveimmediate our kidsfamily our best. UCP of Nebraska & the Tools Program Children’s Rehab Center. None of us can beTech replaced, so weat don't get many breaks.

Special Needs Mom's

At ProCare3, we treat children with many different diagnoses, including but not limited to: Developmental Delays Torticollis Autism Spectrum Disorder Sensory Integration Speech Delays Cerebral Palsy Hypotonia Sports & Orthopedic Injuries We offer Warm Water Aquatic Therapy!!

Millard Pediatric Clinic 13336 Industrial Road, Ste. 105 Omaha, NE 68137 Contact us TODAY for a tour or a FREE Screening!

It wears us out, but to help our kids, we'll do whatever it takes!

Kearney Information

(402)330-3211 Ext. 108 www.procare3.com

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

We are Open 6 Days a Week, Monday through Friday with extended hours from 7am - 7pm Need Saturday hours? Ask us about those too!!

Check out any event changes, after publication additions & MORE O’Hana Kids’ News is not responsible for any events; including at our blog: cancellations, or

changes after print. It is your responsibility to check with each contact www.ohanakidsnews. to verify the information that we have blogspot.com provided to you.

-- CARE April Vernon Families Located in Kearney, is one of six family organizations across the State serving those that are parenting children/youth with emotional, behavioral, or mental health challenges. We offer peer support; in fact every employee/advocate at Families CARE is parenting, or has parented a child with emotional, behavioral, or mental health challenges. Families CARE is a non-profit organization, providing advocacy, resources, support, and education as we work with parents, along with a mission to Empower parents in the Behavioral Health System of Care. For more information on Families CARE in Kearney 308-237-1102 or kbennetts@familiescare.org Page 2 Important Tidbits for Families pages 2 - 6

What's Where???

State-Wide page 6 IMPORTANT TIDBITS them FOR FAMILIES Bellevue, Cedar Bluff & Columbus pageyou 7 found When contacting our advertisers, please tell them HERE!!! Fremont & Grand Island page 8

Radio Show by Adult with Asperger Syndrome Gretna & Hastings page 9

For more information, Pediatric rates speech, or  advertising Make & feeding please language contact us at: therapy

402-227-5304

Specializing in Autism

ohanakidsnews@gmail.com FACEBOOK too!! in  Specializing

“Parents Corner” is a radio show, co-hosted by Brian King, LCSW. Brian is an adult with Asperger

Lincoln pages 10 - 15

who presented here in the area back in January. Brian also has 3 boys on the ASD sure toSyndrome, let people know how you found out these pages 15about - 16 spectrum. Brian will be sharingNorfolk his parenting strategies and discussing them with a panel of parents. North Platte page 16 events, activities & advertisers!! Here is a link with all the details you'll need to tune in and call in if you would like Omaha pages 16 -way!!! Check it you out and pass it24 along. His address is: P.O. Box 994, West Tell ‘em,http:tinyurl.com/3gm58h7 O’Hana Kids’ News pointed their Chicago, IL 60186 if you Resources would like to write to him. for Families pages x

Classifieds page 29

Project Lifesaver in Sarpy County

Deaf/Hard of Hearing &

Cochlear Implants Thanks for Reading OKN!!

Specializing in Late Talkers & us Developmental Expand our Delay Reach,

Help

Pass

402-327-2500 8055 O Street, Suite S110 Lincoln, NE 68510

www.heartlandspeech.com Find us on FACEBOOK too!

This edition is FREE!!! Pass

The Sarpy County Sheriff’s Office implemented Project Lifesaver in 2008 to help locate missing persons. Children with Autism or Down Syndrome, who are at risk to wander, can have their safety greatly enhanced through this program. Project Lifesaver emphasizes relationships between specially trained Sheriff’s personnel and individuals enrolled in the program BEFORE the need may arise for a us rescue. alongDuring to families you visit, know who couldenrollees use this information!!! an initial home Project Lifesaver are fitted with a personalized wristband transmitter and family members are provided with a comprehensive overview of the program. Trained in communicating with individuals with special needs, deputies will schedule a monthly home visit to inspect and maintain the equipment and get to know the enrollee better on a more personal basis. The cost to participate in this program is minimal, at $10 a month. For more information on Project Lifesaver, contact Lt. Griger at 402-593-2288.

Heart Heroes Capes for children with CHD, a Non-Profit here in Nebraska Every year approximately 40,000 infants are born in the US with Congenital Heart Defects (CHD). CHD is the most frequently occurring birth defect and the leading cause of birth-related deaths. More than 50% of children with CHD will require at least one invasive surgery in their lifetime. And in the US, twice as many along!! Join our CHD mailing list, us at ohanakidsnews@gmail.com children die from each year thancontact from ALL forms of childhood cancers, combined! Needless to say, the survivors of CHD wear their scars like badges of honor. They are our “Heart Heroes”. Heart Heroes, Inc., is a non-profit organization that originated by a few Nebraska moms, who had children with CHD. After trying to coax their children through cardiology appointments and heart surgeries, they took comfort in the wondrous powers of “super hero” capes to comfort their children, and Heart Heroes was founded. Now, hundreds of Heart Hero capes have been draped around the little shoulders of CHD children everywhere. Consider donating a Heart Hero Cape to a child with CHD by going to www.heartherocapes.com to donate


For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased. Edition #24 May 2012 Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes! Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! Page 19 We are selfless, not by choice you see. Our kids just have many needs. We're not out2013 to change the world, but want to plant some seeds. OUTREACH CLINICS We want our kidsis accepted. That really our aim. Month May Better Speech & isHearing For Children withjust Special Health Care Needs When we lookMay at them, seeSchool kids. WeNurse hope you'll 9 is we National Day do the same.

Nebraska Department of Health

-- April Vernon

May 13 is Mother's Day KEARNEY

Special Needs Mom's Contact: Carol Florang, RN 211 West 33rd Street, Kearney, NE 68845 (308) 698-1250

Check out any event changes, after publication additions & MORE at our blog:

What's Where???

May 8 You & 9 may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. Staff: Lois Starr, M.D., UNMC; Gwen Reiser, M.S.,for UNMC; Nancy Foster, Important Tidbits Families pages 2Ph.D., - 6 UNMC

We've made it through the days we thought we'd never make it through.

selves with all that6we can do! page AugustWe've 28 & even 29 impressed our ownState-Wide Bellevue, Cedar Bluff & Columbus page 7 Staff: Lois Starr, M.D., UNMC; Julianne Hartmann, M.S., UNMC; Gathje We've gained patience beyond measure, love we never dreamed of giving.

www.ohanakidsnews. blogspot.com

Fremont & Grand Island life's pageworth 8 We worry about the future but know this “special” living!

November 6 & 7 We have bad days and hurtGretna sometimes, but we hold our & Hastings page 9 heads up high. Staff: Lois Starr, M.D., Fisher, M.S., UNMC; Nancy than Foster, We feel joy andUNMC; pride Sara and thankfulness more often wePh.D., cry. UNMC

For more information, or advertising rates please contact us at:

Lincoln pages 10 - 15

Norfolk pages 16so much more :) For our kids, we aren't just SUPERMOMS, No, 15 we -do We are cheerleaders, nurses, and therapists who don't North Platte page 16 walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Omaha pages 16 - 24 Even though the pain they bring cannot be erased. Contact: Kathy Schweitzer

NORTH PLATTE

402-227-5304

ohanakidsnews@gmail.com FACEBOOK too!!

Resources for Families pages x

200 S. Silber, North Platte, NE 69101

Therapies and treatment routes are a lot forpage us to29 digest, Classifieds (308) 535-8238 or Kathy.schweitzer@nebraska.gov We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. us out, but to help our kids, we'll do whatever it takes! June 7It&wears 8, 2013

Thanks for Reading OKN!!

Staff: Eric Rush, M.D., UNMC; Hope Chipman, M.S., UNMC; Nancy Foster, Ph.D., UNMC We are selfless, not by choice you see. Our kids just have many needs.

Help us Expand our Reach,

not2013 out to change the world, but want to plant some seeds. AugustWe're 2 & 3, Pass us to kids families youThat know who could Wealong want our accepted. really is our aim. use this information!!! Staff: Eric Rush, M.D., UNMC; Amber Carter, M.S., UNMC; Nancy Foster, Ph.D., UNMC When we look at them, we just see kids. We hope you'll do the same.

Independent onsultant Check out any C event changes, after publication Heather Ackman additions & MORE at our blog: 402-­‐227-­‐5304

imapamperedchef www.ohanakidsnews. blogspot.com @yahoo.com ForAll more information, orders help support or advertising rates O’Hana Kids News!!! please contact us at: 402-227-5304

ohanakidsnews@gmail.com FACEBOOK too!!

Thanks OKN!! for O’Hanafor KidsReading News is not responsible

any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact Help us Expand our Reach, information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those with any information changes that have occurred after publishing.

October 18 & 19, 2013 -- April Vernon Staff: Bruce Buehler, M.D., UNMC; Beth Conover, M.S., UNMC; Nancy Foster, Ph.D., UNMC December 13 & 14, 2013 Staff: Eric Rush, M.D., UNMC; Amber Carter, M.S., UNMC; Nancy Foster, Ph.D., UNMC

What's Where???

Important Tidbits for Families pages 2 - 6 SCOTTSBLUFF – MHCP & Genetics State-Wide page 6

MHCP Contact: Lana Parmenter Genetics Contact: Bellevue, Cedar Bluff & Columbus page 7 Sandy Preston, RN P.O. Box 540, Gering, NE 69341-0540 3700page Avenue Fremont & Grand Island 8 B, Scottsbluff, NE 69361 (308) 436-6969 or lana.parmenter@nebraska.gov (308) 630-1126 or Gretna & Hastings page 9 prestos@rwmc.net Lincoln pages 10 - 15 Norfolk pages 15 - 16 May 17, 2013 MHCP North Platte page 16 May 18, 2013 Genetics Omaha pages 16 - 24 Bruce Buehler, M.D., UNMC; Shelly Nielsen, for M.S.,Families UNMC; Cate Jones-Hazledine, Ph.D., UNMC Resources pages x Classifieds page 29 August 9, 2013 MHCP August 10, 2013 Genetics Staff: Bruce Buehler, M.D., UNMC; Dani Bishay, M.S., UNMC; Brett Kuhn, Ph.D., UNMC

Pass us along families November 15, to 2013 MHCP you know who could use this information!!! November 16, 2013 Genetics Bruce Buehler, M.D., UNMC; Rachel Smith, M.S., UNMC; Cate Jones-Hazledine, Ph.D., UNMC

This edition is FREE!!! Pass along!! Join our mailing list, contact us at ohanakidsnews@gmail.com


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

Miracle League Baseball

!

IMPORTANT TIDBITS  FOR FAMILIES

~ Omaha ~

We believe ! that “Every child deserves a chance to play baseball!”

!!!!!NEBRASKA!RESPITE! 2012NETWORK! Summer Session Begins Saturday, May 19th! !

Games are held every Saturday at

Are$you$a$caregiver$for$a$loved$ 9am, 10:30am & Noon Games last approx. 1 hour one$with$a$disability?$Are$you$ The season lasts 7 weeks (to June 30th) interested$in$working$with$other$ All Games are played in the ALLPLAY individuals$with$a$disability?$$ Complex, located in Seymour Smith Park at 6802 Harrison Street in Omaha.

The$Nebraska$Respite$Network$<$ This complex features barrier free Eastern$Service$Area,$covers$all$of$ design & level surfaces. The Miracle Field & playground are covered with Nebraska$is$seeking$individuals$to$ rubber surfaces to soften any falls. provide$respite$for$individuals$with$ These surfaces are perfect for wheelchairs, walkers, braces & use by disabilities$across$the$lifespan.$CNA/$ people who are visually impaired. CMA$and$bilingual$skills$desired,$but$ Ages from 4 - 20+. Athletes disabilities includenot$required.$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ autism, cerebral palsy, spina bifida, visual impairments, muscular dystrophy, dwarfism, multiple sclerosis, spinal cord injury, down Call$(402)$996<8444$today$and$speak$ syndrome, amputations & other physical & mental & cognitive to$Elizabeth$or$Kay,$or$e<mail$ disabilities!

Learn how to adapt toys to use with a switch/button/BigMac

May is Better Speech & Hearing Month Norfolk Information May 9 is National School Nurse Day

This workshop is for ANYONE!! You will learn how to easily & cost effectively turn the toys that your child already has, & isn't using because of physical limitations, into toys that are adapted to your child!! You will learn how to install a jack into a single function toy & convert it into a toy that is operated with a switch. You will learn how to assemble a switch. You will make a detachable cord that runs from the toy to the switch. You will be able to do this, AND you will go home with a switch toy & Library switch. Best of all, child's toy will look professionally adapted, by YOU!! Tech working Tots Toy Lending based in your Norfolk You have seen that the switch operated toys are sometimes 8x as much to order, than if you could For families in North Eastern Nebraska there is a Tech Tots Toy Lending Library available to you at Faith buy the toy & put the switch in for a few dollars, yourself. Dates/Times will be determined when I Regional Health Services Rehab Services. Tech Tots This provides toys,donations adapted of toys, devices have 4 or more people interested in the class. classdevelopmental is FREE, however anyand kind are to children with developmental and physical Tech Tots is a FREEfor service!! can check out appreciated. Contact Aaron today atdisabilities. aaronmiller555@gmail.com more You information!

May 13 is Mother's Day

Special Needs Mom's

toys to use in your home for 1 month. Tech Tots Toy Lending Library is a program of UCP Nebraska. Play A & Dcomponent Waiverof–growing Aged Waiver is an essential up & andDisabled is the most important work explored by children. As children You may us and “special have it psychological, pretty rough. engageIs in play, theythink practice mastermoms” specific physical, emotional creative YOUR child on this? Is YOUR child eligible to beand on this?skills We no choice. We just manage life when things get reallyall tough. If your child is on this waiver, do you know it makes yourthem. incomeAs guidelines non-existent? No necessary forhave understanding and interacting with that the world around children have different We've made it through the days thought we'd never it through. cap your Just have to use thedevices 2we hours minimum respite eachmake and The every so youtoys abilities, soontoo areincome. their methods of operating and accessing information. usemonth, of adapted We've even impressed our you ownknow selves all that we can do! don't lose your physical A&D Coverage. thatwith you can add your child, to and devices decrease barriersDo and social barriers to play, enabling children at your varied private functional health insurance (non-medicaid), and if you are on the A&D Waiver, you can get those levels to actively explore and achieve some independence. By equalizing play through these modifications, premiums paid forpatience for BOTHbeyond you and measure, your child, love through HIPP program?ofHas to be the We've gained wethe never dreamed giving. children learn about policy, the cause-effect relationships practice creative problem As children same will cover all and the insurance premiums forsolving. your entire family!! We family worry aboutbut thethey future but know this “special” life's worth living! recognize their through the hurt work of play, they gain the self-confidence necessary for handing For us thisabilities was $1,200 in and premiums, because we are self-employed, don'theads have a up corporate medical We have bad days sometimes, but we hold our high. plan,inand was killing us.living. By talking another mom, I foundfor about this program, andthe we are challenges all itareas of daily This iswith a wonderful opportunity your child! To access We feel joy and pride and thankfulness more oftenout than we cry. on our reimbursement to arrive!! So cool.Health For 5 years we were told Services that our income dictated Tech waiting Tots Lending Library call Faith Regional Services Rehab at 402-644medicaid that our Fischer. son received, for us that meant we had to either stay in this little income box 7348 the and Nikki Forask ourfor kids, we aren't just SUPERMOMS, No, we do so much more :)

echentland@gmail.com$$$$$$$$$$$$$$$$$$$$$$ REGISTER TODAY!!! who$can$direct$you$to$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ For More Information! go to: where$you$need$to$go! May www.ALLPLAY.org or

call Bruce Froendt at 402-305-5020

Easter Seals Nebraska 2012 Summer

CheckRespite out any Camp event Dates changes, after June publication 10 - 15 additions MORE Young&Adults, ages 23-39 at our blog: June 17 - 22

Adults, age 40+ www.ohanakidsnews. blogspot.com June 24 - 29

Youth, ages 6 - 13

For more information, July 10 - 13rates Military Youth, or advertising ages 7 - 16, Offutt AFB please contact us at: July 15 - 20

402-227-5304 Teens, ages 14 - 22

ohanakidsnews@gmail.com July 22 - 26 All Ages FACEBOOK too!!

Page 3

Page 20

of like $45,000 or make an additional $100,000 to cover the expenses in therapy and medical We are cheerleaders, nurses, and therapists who don't walktoout the door. services that our sons receives on an annual basis minimum. The guidelines be on the A&D We handle and unkind dignity grace. Waiver, I do notrude know remarks for sure what they are. Ifstares, you wantwith to know, I can and find out, just email me. I know that my son the qualifies, if has something to do being fed solely by g-button, and being Even though painand they bring cannot bewith erased. non-independent. If you want the contact information for the HIPP program, just shoot me an email onTherapies that also, orand ask your Service Coordinator specifically it.digest, There are many programs out treatment routes are a lot forabout us to there available to help families like ours out. We just need to get the word out there for families to We don't know what the future holds, but give our kids our best. access that information. If you know of a program, that would benefit families, email me. None of us can be replaced, so we don't get many breaks. ohanakidsnews@gmail.com We will research it and get the correct information out to all wears us out, but to help our kids, we'll do whatever it takes! 4It families. the

Norfolk MAY Events

* Family Focus Movie Night!! Madagascar 3: Europe’s Most Wanted We are selfless, not bykids choice you see. Our kidshearing just have& many needs. Parent Group with with combined vision loss LOCATION: Norfolk 7 Theatre, 1000 Riverside Blvd., NORFOLK We're not Technical out to change the world, but want to has plant some seeds. The Nebraska Assistance Project on Deaf-Blindness conducted training this year TIME: Doors open at 9:30 am, Movie starts at 10:00 am specific to parents of children who have a combined hearing & vision loss. The training has been in We want our kids accepted. That really is our aim. COST: FREE but SPACE LIMITED!!! TODAY partnership with the National Consortium on Deaf-Blindness (NCDV2.0). total 7 parents have When we look at them, we justCALL see kids. We hope you'll A do theofsame. participated in a series of training activities from May 2011 through October 2011. They are now Popcorn & Drink Provided! working on Vernon their leadership goals & have another planned meeting in April 2012, as well as ongoing -- April MORE INFORMATION: Sondra at 402-502-3572 or coc@ucpnebraska.org meetings in the future. They are called the Nebraska DB Parent Leadership Team, & have provided DECRIPTION: Special Private Showing! Focus series for lots of support to the state deaf-blind project.Family It is the intentisofathis teamoftoevents provide designed one-on-one interaction phones,oftechnoloty or face to-face with other parents the state who have a and open toeither the via children our community with special needs and intheir immediate family child birth to age 21 with a combined hearing & vision loss. If you want to be connected to one of members. Presented by UCP of Nebraska & the Tech Tools Program at Faith Regional these parents, please contact Teresa Coonts at the number and email listed above. This is an Health Center.& learnin together for the purpose of supporting other families in excitingServices/Rehab group of parents working

the future.

What's Where???

Important Tidbits for Families pages 2 - 6 State-Wide page 6 Bellevue, Cedar Bluff & Columbus page 7 Fremont & Grand Island page 8 Gretna & Hastings page 9 Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Omaha pages 16 - 24 Resources for Families pages x Classifieds page 29

MORE INFORMATION: Thanks for Reading OKN!!

1(800)650-9880, ext. 1128

www.campeastersealsne.com All camps are held at the BSA

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Help us Expand our Reach, could use this information!!! Camp Eagle near Fremont, NE. Pass us along to families you know who

Check out special showings @ these theaters

Make sure to let people know how you found out about these events, activities & advertisers!! with the lights turned up, sound turned down, Tell ‘em, O’Hana Kids’ News pointed you their way!!!

& other families like ours there to enjoy the movie! www.marcustheaters.com www.amctheaters.com

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Edition #24 May 2012

 Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

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Page 21

May is Better Speech & Hearing Month North MAYNurse Events May Platte 9 is National School Day

May 13 is Mother's Day

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May 4 North Platte Autism Puzzle Walk LOCATION: Cody Park, NORTH PLATTE TIME: 8am to 8pm MORE INFORMATION: Go to www.autismsnebraska.org

Special Needs Mom's

You may think us “special moms� have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!

Schuyler UPCOMING Events We've gained patience beyond measure, love we never dreamed of giving.

June 2 We worry about the future but know this “special� life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. Camp Luther Sunday We feel joy and pride and thankfulness more often than we cry. LOCATION: Camp Luther – Camp Luther, 1050 Road 4, SCHUYLER TIME: 4:00we pm,aren't 4:00 will a LIVE quilt auction For1:00 our –kids, justbe SUPERMOMS, No, we do so much more :) We INFORMATION: are cheerleaders, nurses, and who don't walk out the door. MORE 402-352-5655 ortherapists www.campluther.org We handle rude remarks and unkind stares, There with dignity grace. DESCRIPTION: Join us for a great family outing! will be aand silent auction, ffood, Even though the pain they bring cannot be erased. hiking, boating, tours, games, meet the 2013 summer staff and MORE!! We are looking for donations for our auctionroutes & quiltare auction!! ALLusPROCEEDS Therapies andsilent treatment a lot for to digest,BENEFIT CAMPERS FUND FORWe FINANCIAL AID!! don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!

York MAY Events

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We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

 A  Special  Sitter  was   inspired  by  our  ongoing  journey  of  parenting  our  Check out any event family,  after which  publication includes  2  kids  changes, with  s pecial  needs,  &  we  additions & MORE believe  that  blog: our  experiences  at our can  help  you  experience  the  www.ohanakidsnews. fullness  of  blessings  we  have  blogspot.com received  as  we  have  raised  our  family.  For more information,  or advertising rates Services  Offered:  please contact usServices  at: Companionship Â

Personal  Care  Services  402-227-5304

Home  Helper  Services  ohanakidsnews@gmail.com FACEBOOK  too!! For  More  Information Â

May 1, 8, 10, 15, 22 & 29 -- April MFLC DaysVernon For Military Families LOCATION: 202 East 5th St., YORK TIME: 8am to 8pm MORE INFORMATION: Contact Renee Duffek at 402-219-2446 at renee.L.duffek@ahsg.us DECRIPTION: MFLC Consultation servicesfor areFamilies provided atpages no charge, Important Tidbits 2 - 6with no records kept. Eligible individuals include military service page members State-Wide 6 & their significant others (children & adults), whether legally related or & not. This is a short-term solution focused Bellevue, Cedar Bluff Columbus page 7 consultation, not psychotherapy. If possible please call ahead Fremont & Grand Island page 8to schedule an appointment. You can schedule on a different date ifpage the one Gretna & Hastings 9 listed doesn’t work. Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Omaha pages 16 - 24  Resources for Families pages x Classifieds page 29

What's Where???

Contact  Richard  OKN!! Troia  Thanks for Reading

402-­â€?697-­â€?8400  x201  rtroia@aspecialsitter.com    our Reach, Pass us along to families you know who could use this information!!! Help us Expand See  â€œOur  Storyâ€?  on  Page  8  O’Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those with any information changes that have occurred after publishing.

Check out our website at www.ohanakidsnews.com TODAY!!


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