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Edition #24Edition May 2012 Central & Western Nebraska

Edition #37 June 2013

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

May is Better Speech & Hearing Month May 9 is National School Nurse Day

May 13 is Mother's Day

Proudly serving over 8,500+ families Since June 2010!!-- NOW Across all of Nebraska!!!

Edition #24 May 2012

Special Needs Mom's      

June is Father's Day

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed own selves all that weMonth can do! May Better Speech & Hearing special children that is weour have all been with

Happy Father’s Day

Special Needs Mom's

To all the father’s out there of these very May 9 is National School Nurse Day granted the blessing of having! We've gained patience beyond measure, love we never dreamed of giving. OUTPATIENT You may think us “special moms” have it pretty rough.

We worry future but this “special” life's worth May 13know islifemy Mother's Day We have noabout choice.the We just manage when things get really tough. living! PEDIATRIC THERAPIES Once again I am going to take the opportunity to saybad Happy Day We have daysFather’s and hurt sometimes, but we hold ouritheads up high. We've made it through the days weto thought we'd never make through. We've even impressed our own selves with all that we can do! PT, OT, SPEECH feel joy pride and more often than we cry. & FEEDING husband, but I am sure all you dad’s outWe there canand appreciate it thankfulness too J We've gained patience beyond measure, love we never dreamed of giving.

ourtokids, aren't just SUPERMOMS, No, weSpecialized do so much more :) Summer Workshops Thank You for being the best father in the For world our we children! of them We worry about the futureEach but know this “special” life's worth living! We are cheerleaders, nurses, and therapists who out the door. We have bad days you and hurt sometimes, but we hold ourdon't headswalk up high. are unique in their own way, but you don’t even blink when look at them or We handle rude remarks and unkindmore stares, with We feel joy and pride and thankfulness often thandignity cry.and grace. FUNweWITH FRIENDS speak about them! Our son, you treat the same our others. stand for be erased. Evenas though the painYou they bringup cannot For our kids, we aren't just SUPERMOMS, No, we do so much more :) functional communication him, you fight for him, you are there to carry, bathe, rock us to “special sleep, (etc) and have love itwho You may think pretty rough. We are cheerleaders, nurses, moms” and therapists don't walk out the door. Therapies and treatment routes are alife lot for dignity usthings to digest, We have no choice. We just manage when really tough. Weyou handle rude remarks and unkind stares, with andget grace. him, for the way he is! Most of all love me, your wife! for 10-14 year olds. We know what the future holds, give ournever kids our best. Evendon't though the pain they bring cannot be but erased. We've made it through the days we thought we'd make it through. That makes what you do for me, no matter We've how little or small, GREAT for your None of us can be replaced, so we don't get many breaks. even impressed our own selves with all that we can do! Therapies and treatment are kids, a lot for us do to digest, wears us out, but to routes help our we'll whatever it takes! kids!! It We don't know what the future holds, but give our kids our best.

Special Needs Mom's

SENSORY ART EXPERIENCE

We've patience beyond lovebreaks. we never dreamed of giving. None ofgained us can be replaced, so we measure, don't get many

We are selfless, not by choice you see.doOur kids just have many needs. Thank You for being a We GREAT father!! worry the but know “special” It wears usabout out, but to future help our kids, we'llthis whatever takes!worth foritlife's ages 6+. living! We're notbad outdays to change thesometimes, world, but want to hold plantour some seeds. We have and hurt but we heads up high.

We want our kids accepted. That is our aim. We are selfless, not by choice you see.really Our kids just havethan many needs. We feel joy and pride and thankfulness more often we cry. Heather J We're not toat change the world, but want plant some seeds. CALL 402.496.1000 When we out look them, we just see kids.toWe hope you'll do the same. want our kids accepted. That really is our aim. & Cheyenne, Gabriel,WeZephaniah

For our aren't just No, we do so much more :) When wekids, look we at them, we justSUPERMOMS, see kids. We hope you'll do the same. For more information or -- April Vernon We are cheerleaders, nurses, and therapists who don't walk out the door. -- April Vernon today! We handle rude remarks and unkind stares, with dignityregister and grace. Even though the pain they bring cannot be erased.

This edition

Check out out anyany event Check event See pg 3 for changes, after publication changes, after publication additions & MORE additions & MORE What’s Where? at our blog: at our blog:

to

Together, we can do anything.

Therapies and treatment routes are a lot for us to digest, Covers ALL BUT We don't know what the future holds, but give our kids our best. counties: None of usthese can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do !whatever it takes! Important Tidbits forpages Families Important Tidbits for Families 2 - 6pages 2 - 6

What's Where??? What's Where???

Washington, Dodge,

www.ohanakidsnews.

www.ohanakidsnews. blogspot.com blogspot.com

For more information,

or advertising rates For more information, Check out ourus website at please contact or advertising rates at: www.ohanakidsnews.com please contact us at: 402-227-5304 ohanakidsnews@gmail.com 402-227-5304 FACEBOOK too!!

State-Wide page 6

State-Wide page 6just have many needs. We are selfless, not by choice you see. Our kids Bellevue, Cedar Bluff & Columbus page 7 Saunders, Bellevue, Cedar Bluff & Columbus pageseeds. 7 ! We're not out to change the world, but want to plant Island some Fremont & Grand page 8 Fremont & Grand Island page 8 page 9 Douglas, Sarpy, Cass, Otoe, We want our kids accepted. That really is our&aim. Gretna Hastings When weLancaster, look at them,Johnson, we just see kids.Lincoln We hope you'll the same. Gretna & Hastings page 9 10 do pages - 15

Nemaha, -- April Vernon

Lincoln

!!!!!NEBRASKA!RESPITE! Norfolk pages 15NETWORK! - 16 pages 10 - 15

Pawnee, Gage, North Norfolk pages 15 -Platte 16 page 16 ! Are$you$a$caregiver$for$a$loved$one$ Omaha pages 16 - 24 Jefferson & Saline. North Platte page 16 Resources for Families pages x

ohanakidsnews@gmail.com Check out any event Thanks for Reading FACEBOOK too!! OKN!!

with$a$disability?$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ Omaha pagesClassifieds 16 - 24 page 29 Are$you$interested$in$working$with$ Resources for Families pages x Classifieds page 29other$individuals$with$a$disability?$$

What's Where???

changes, after publication additions & MORE Thanks for Reading OKN!! The$Nebraska$Respite$Network$<$ at our blog: pages 2 - 6 A t S n y d e r C h a r l e s o n T h e r a p y S e r Important v i c e s , P . C . Tidbits for Families Eastern$Region$is$seeking$respite$ State-Wide page 6providers$for$individuals$across$the$ www.ohanakidsnews. 402-327-2500 Bellevue, Cedar Bluff &could Columbus page information!!! 7 blogspot.com us Expand our Reach,Pass Passus us along to you know who could use this information!!! HelpHelp us Expand our Reach, along tofamilies families you know who use this 8055 O Street, Suite S110 lifespan.$$CNA/$CMA$and$bilingual$ Lincoln, NE 68510 Fremont & Grand Island page 8 skills$desired,$but$not$required.$$$$$$$$$$ For more information, www.heartlandspeech.com Gretna & Hastings page 9 Specifically$looking$for$individuals$$$$$$$$$$$$$$$ Speech, Occupational & Physical Lincoln pages 10 - 15 or advertising rates Find us on FACEBOOK too! in$or$near$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ Norfolk pages 15 - 16 please contact us at: Bellevue,$Papillion,$Gretna$&$Elkhorn!$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ North Platte page 16 402-227-5304 Omaha pages 16 - 24 ohanakidsnews@gmail.com Resources for Families Call$(402)$996<8444$today$&$speak$to$ pages x www.snydercharleson.com (402) 391-5002 FACEBOOK too!! Elizabeth$or$Kay,$or$e<mail$ Classifieds page 29

Kid

Ability

Therapy for Kids!

Thanks for Reading OKN!!

echentland@gmail.com$$$$$$$$$$$$$$$$$$$$$$ who$can$help$get$you$started!!!

Help us Expand our Reach, Pass us along to families you know who could! use this information!!!


We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. Edition #24 May 2012 We feel joy and pride and thankfulness more often than we cry. For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.

Classifieds

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. May Better Speech &we'll Hearing Monthit takes! It wears us out,is but to help our kids, do whatever

Buy, Sell, Trade, Give Away or Need

May 9 is National School Nurse Day

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. want ourVODEC: kids accepted. That really is our aim. Machine, Portable WISH We LIST FOR Bingo Machine & Cards, Karaoke WhenDVD’s we look at them, wePopcorn just see kids. We hope&you'll the same. Stereo, CD’s, for movie nights, Machine, Pinatas Sugar do Free Candy, Craft

May 13 is Mother's Day

Items (including: construction paper, glue, markers, beads, jewelry making kits, scrap -- April Vernon booking supplies), Play Money for educational purposes, color printer, sporting equipment (including: handicapped ramp for bowling, basketballs, shot put balls 6 & 8 lbs, cones, tennis balls, bocce ball set, baseballs, baseball bats, baseball gloves, soccer balls, bowling You may think “special moms” havejerseys, it pretty rough. cheerleading uniforms, bags, bowling balls, us stop watches, clipboards, pom-poms, We for have no choice. justcoolers, manage life when thingsfor getfood really tough. shirts coaches, fishingWe gear), cookbooks, roasters & food serving We've made it through the days we thought we'd never make it through. equipment. Contact Pam Monsky at PMonsky@vodec.org We've even impressed our own selves with all that we can do! Important Tidbits for Families pages 2 - 6 Used AFO’s and braces of any kind – love if your child outgrownof the shoes, afo’s, State-Wide page 6hasdreamed We've gained patience beyond measure, we never giving. braces, etc and they the are Bellevue, sitting just taking upBluff space, email heather Cedar &please Columbus page 7at We worry about future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads ohanakidsnews@gmail.com they will be & collected and distributed overseas via a local Fremont Grand Island page 8 up high. We feel specialist joy and pride and thankfulness often than we cry. orthopedic who travels and fits children with thispage special that is not Gretna & more Hastings 9 equipment Lincoln pages 10 - 15 available to them. For our kids, we aren't just SUPERMOMS, No, we do so much more :) Norfolk pages 15 - 16 We are cheerleaders, nurses, and therapists who don't walk out the door. FOR SALE: Wheelchair Accessible Van: 1996 Chrysler Town & Country, North Platte page 16 and We handle rude remarks and unkind stares, with dignity grace. 128,000 miles. Adapted to fit 2 wheelchairs side by side in the middle row, and also the Omaha pages 16 24 Even though the pain they bring cannot be erased. front passenger can have a wheelchair there.for Ramp is off the side door. Asking $10,000. Resources Families pages x andat treatment routes a lot for us to digest, CallTherapies Katie Noland 402-650-0348 if are interested. Classifieds page 29

Special Needs Mom's

Check out any event changes, after publication additions & MORE at our blog: www.ohanakidsnews. blogspot.com For more information, or advertising rates please contact us at: 402-227-5304

ohanakidsnews@gmail.com FACEBOOK too!!

Thanks for Reading OKN!!

What's Where???

We don't know what the future holds, but give our kids our best. already adapted and are It wears us out, Aaron but totoday help our kids, we'll do whatever it ready to go! Contact at aaronmiller555@gmail.com fortakes! more information! None of us Adapted can be replaced, wehas don't many breaks. FOR SALE: Toys! so Aaron toysget available that he has

We are selfless, not by choice you see. Our kids just have many needs.

FOR Motorized Scooter & 9know additional wheelchairs. Located in Auburn. If Help us Expand our Reach, Pass usSALE: along totofamilies you who could use this information!!! We're not out change the world, but want to plant some seeds. financial assistance is needed, please callreally & talk Angela, We want our kids accepted. That is to our aim. because there are resources When to wehelp lookoratalleviate them, we kids. Weat hope you'll do the available thejust cost.see Call Angela 402-274-9362 forsame. more information. Vernon To--aApril Good Home: Riftin Pacer K501 Model Walker, includes saddle, bars, front walking

bars & back helper bars, Call Katie Noland at 402-650-0348 if interested

Check out any event changes, after publication additions & MORE at our blog: www.ohanakidsnews. blogspot.com For more information, or advertising rates please contact us at: 402-227-5304

ohanakidsnews@gmail.com FACEBOOK too!!

To a Good Home: Child’s size wheelchair, call Susannah LaCroix at 402-496-1000

What's To a Good Home: Power wheel chair Where??? for a small adult, contact Sandy Houser at shouser@unmc.edu Important Tidbits for Families pages 2 - 6 To a Good Home: WheelchairState-Wide for child, call page Amy at 6 402-212-8931 for more information on it Bellevue, Cedar Bluff & Columbus page 7 Fremont & Grand Island page 8 To a Good Home: We have 149 unopened cans ofpage Isosource 1.5 Cal G-tube feeding Gretna & Hastings 9 formula, these are 375 calorie cans. Expiration date is August 12, 2013. These are all for Lincoln pages 10 - 15 FREE just looking for them to be put to use. You 15 can- call Norfolk pages 16 Jess Parker at 402-601-8280 or jparker21988@gmail.com for North any questions may16 have. My mother passed away in Platteyou page October, this is the formula she Omaha was using.pages 16 - 24 Resources for Families pages x Classifieds Do you have something you want to page get 29 rid of or no longer have use

for? How about something that you need? Email me to place that information right here in O’Hana Kids News! Ohanakidsnews@gmail.com Help us Expand our Reach, Pass us along to families you know who could use this information!!!

Thanks for Reading OKN!!

O’Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those with any information changes that have occurred after publishing.

DISCLOSURE: With ANY equipment specific to your child, PLEASE have your PT/OT involved to ensure that it is a good fit for the child!


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

I m p o rt an t T id b it s f o r F a m i l ie s May is Better Speech & Hearing Month May 9 is National School Nurse Day Page 3 May 13 iswith Mother's Day Learn to Adapt Toys to Use a Switch/Button/BigMac Independent  Consultant    

Heather  Ackman   402-­‐227-­‐5304   imapamperedchef   @yahoo.com      

All  orders  help  support   O’Hana  Kids  News!!!  

! !

!!!!!NEBRASKA!RESPITE! NETWORK! !

Are$you$a$caregiver$for$a$loved$ one$with$a$disability?$Are$you$ interested$in$working$with$other$ individuals$with$a$disability?$$ The$Nebraska$Respite$Network$<$ Eastern$Service$Area,$covers$all$of$ Check out any event Nebraska$is$seeking$individuals$to$ changes, after publication provide$respite$for$individuals$with$ additions & MORE disabilities$across$the$lifespan.$CNA/$ at our blog: CMA$and$bilingual$skills$desired,$but$ www.ohanakidsnews. not$required.$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ blogspot.com Call$(402)$996<8444$today$and$speak$ For more information, or to$Elizabeth$or$Kay,$or$e<mail$ advertising rates echentland@gmail.com$$$$$$$$$$$$$$$$$$$$$$ please contact us at: who$can$direct$you$to$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ 402-227-5304 where$you$need$to$go!!

ohanakidsnews@gmail.com FACEBOOK too!!

This workshop is for anyone! You will learn how to easily &cost effectively turn the toys that your child already has, & isn’t using due to physical limitations, into toys that are adapted to your child! You will learn how to install a jack into a single function toy & convert into a toy that is operated with a switch. You will learn how to assemble a switch. You will make a detachable cord that runs from the toy to the switch, and best of all your child’s toy will look professionally adapted, by YOU! This class is FREE, however donations of any kind are appreciated. Contact Aaron today at aaronmiller555@gmail.com for more information!! 1/2013 You may think us “special moms” have it pretty rough. WeProgram have no choice. We just manage life when things get really tough. HIPP We've made it through the days we thought we'd never make it through. Do you know that you can then add your child, to your private health insurance (non-medicaid), and then We've even impressed our own selves with all that we can do! you can get those premiums paid for through the HIPP program? As long as your child is on Medicaid, and if theWe've child is gained on your family health insurance policy, they will we cover the entire premium your family!!! patience beyond measure, love never dreamed of for giving. If your child isn’t about on this, the I would contact DHHS coordinator to find outworth if this living! is an option for your We worry future butyour know this “special” life's child. We I know that if your fed via g-button, j-button more than I think 50%up of high. their daily intake, have bad dayschild andis hurt sometimes, but we hold our heads or have a catheter, thesepride are both automatic qualifiersmore for kids. If you want We feel joy and and thankfulness often than wemore cry.information I would contact your Services Coordinator, if you need help getting answers let me know and we can work through it together! Let’s get we the word outjust about this program!! No, Contact meso atmuch ohanakidsnews@gmail.com For our kids, aren't SUPERMOMS, we do more :) for more information. We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even thoughParent the pain they bring cannot be erased. Exceptional Magazine

Special Needs Mom's

This is a magazine for parents of children with developmental disabilities & other special Therapies and treatment routes are a lot for us to digest, needs. You can get a digital edition of this magazine, just go to www.eparentdigital.com We don't know what the future holds, but give our kids our best. type None in theof EMAIL: 155rw@eparnet.com & useget themany PASSSWORD: us can be replaced, so we don't breaks. specialneeds to access editions digitally. It wears us out, but to help our kids, we'll do whatever it takes! We are selfless, notIV by choice you see. Our kidscovers just have&many needs. Handmade Gowns, Covers, G-button more!!!

not out to change the world, but wantinto plant some seeds. CheckWe're this out!! If you have a child who is routinely the hospital for various things (like We want our kids accepted. That really is our aim. mine is J) then you need to check this lady out!! Go to www.tubiewhoobies.com or you When we look at them, we just see kids. We hope you'll do the same. can visit them on Facebook at www.facebook.com/tubiewhoobies -- April Vernon

Sure Steps SMO Orthotics Sure Steps makes tennis shoes that are made to fit SMO’s. Contact them at www.suresteps.net for more information.

What's Where???

Advocacy Page for Parent’s of Children with Disabilities Now parents are invited to check out a page on Families Mosaic’s website Important Tidbits for pages 2 - 6 www.mosaicinfo.org/services/research/CollaborativeCorner.html make sure you State-Wide page 6 check out this new resource available to all our & families Bellevue, Cedar Bluff Columbus page 7 Fremont & Grand Island page 8 Gretna & Hastings page 9 Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Classifieds 2 Omaha pagespage 16 - 24 Resources x Important Tidbits for forFamilies Familiespages pages 3 – 9 Classifieds page 29

What’s Where???

iPad & iPhone Apps page 9 Summer Camp Information pages 10 - 16 any events,. Including cancellations, or changes after print. It is your State-Wide pages 16 - 18 responsibility to verify the information provided through the contact information Chadron page 18use this information!!! Help usYou Expand Reach, Pass us along to families you know who could provided. can check our the blog at Columbus & Elkhorn page 19 www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those Grand Island pages 19 & 20 with any information changes that have occurred after publishing. Kearney page 20 Outreach Clinics page 21 Norfolk page 22 Join our mailing list, contact us at Schuyler & York page 23

O’Hana Kids is not responsible Thanks forNews Reading OKN!! for

ohanakidsnews@gmail.com TODAY!!

Resources NOW ON WEBSITE ONLY due to their sheer size!!!


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

I m p o rt an t T id b it s f o r F a m i l ie s May is Better Speech & Hearing Month Parent 2 ParentMay Mentor’s Wanted!!! 9 is National School Nurse Day

! OUTPATIENT! !PEDIATRIC!THERAPIES!! PT,!OT,!SPEECH!&!FEEDING! Specialized Services Designed for The Special Needs of Your Child Free Developmental Screenings

2!Locations!in!Omaha! 2010!N.!88th!Street!! and! 13336!Industrial!Road!

CALL!402.496.1000! For!your!appointment!today!

Together, we can do anything.

Nationally over 80% of parents of children with disabilities, who were mentored by an May 13 is Mother's Day experienced parent, reported it to be the most helpful source of information o coping with the challenges of raising a child with special needs. Mentored parents report that the support of a fellow parent was so unique & personalized that it could not have come from any other source! As the mother or father of a child with developmental disabilities, you have unique parenting experiences. Through time, training, & trial & error, you have gained valuable skills. Use your knowledge to help another parent on the journey by becoming a mentor. to Parent (P2P) programs link parents ofrough. children, adolescents & adults You Parent may think us “special moms” have it pretty with We developmental disabilities together with life experienced & informed veteran parents who have no choice. We just manage when things get really tough. We've the made it through the days we thought we'dwith never make it through. understand day-to-day experiences of raising a child special needs. Parent to We've even impressed our own with can do!agency. We are Parent Omaha is offered by Ollie Webbselves Center, Inc.,alla that localwe non-profit seeking parent mentors who are coping well with their child’s situation & view him or her We've gained patience beyond measure, love we never dreamed of giving. as a We valuable & about developing person.but Consider a mentor if worth you’d like to help worry the future know becoming this “special” life's living! parents joys & hurt challenges of having child (of our any heads age) with We cope havewith bad the days and sometimes, buta we hold up special high. needs. We feel joy and pride and thankfulness more often webycry. The time commitment involves contacting another parent (in than person, mail, e-mail or telephone) once every 2 weeks within the first 8 weeks, & as mutually agreed thereafter. For our kids, we aren't just SUPERMOMS, No, we do so much more :) You have the knowledge & experience. We provide the training as a framework to share We are cheerleaders, nurses, and therapists who don't walk out the door. your We wisdom. The nextremarks training and will unkind be held stares, soon & will include: for Helping handle rude with dignityGuidelines and grace. Families; Skills & bring Resiliency; Survival Tactics for Parents of Children with EvenCreative though Coping the pain they cannot be erased. Special Needs; What Helps Families in High Stress Situations & Crisis; Tips for Extended Therapies and treatment routes are a lot for us to digest, Family & Siblings; Tips for Locating Community Services; Information on Parent to Parent don't know what the future holds, but give our kids our best. USA;We Cultural Competence & None of us can be replaced, so we don't get many breaks. Family & Principles of Family-Professional Collaboration. It Centered wears usCare; out, but to help our kids, we'll do whatever it takes!(4/2012) To talk to someone about becoming a mentor, please contact Annie Anderson We are selfless, ext not by you see. Our kids just have many at 402-346-5220, 23 choice or aanderson@ollieewebbinc.org or youneeds. can mail out to change world, want to Ollie plant Webb some seeds. yourWe're name,not address, phone the number & but e-mail to: Center, Inc., 1941 nd We42 want our kids accepted. That really our aim. South Street, Suite 122, Omaha, NE is 68105

Special Needs Mom's

When we look at them, we just see kids. We hope you'll do the same.

Tech TotsVernon & Tech Tools Programs Sponsored by UCP -- April  

 

Check out any event changes, after publication additions & MORE at our blog:

A  Special  Sitter  was     www.ohanakidsnews. inspired   by  our  ongoing   blogspot.com

journey  of  parenting  our  

For more information, family,   which   includes  2  kids   orwith   advertising rates special  needs,   &  we   please at: believe  contact that  our  eus xperiences  

can   help  you  experience  the   402-227-5304

fullness  of  blessings  we  have   ohanakidsnews@gmail.com received   as  we  have   raised  our   FACEBOOK too!! family.  

  Thanks for Reading OKN!!

The Tech Tots Lending Libraries provide developmental toys, adapted toys and devices to children with developmental and physical disabilities, at no cost to families. UCP of Nebraska offers over 700 adapted toys & technologies for children and teens through 4 locations (listed below). The toys are housed in libraries located in respite or rehab services environments. Primary use of the program is through families that use services at the center, and is also available to the general public. The toys are available to be taken home to reinforce learning. We have heard from families that have participated in this programfor consistently andpages the value Important Tidbits Families 2 - it6 has brought to them. After one family in particular, has been using the program State-Wide page by 6 taking 3-4 items home for their child with Cerebral Palsy. After a Cedar month ofBluff using & these items, theypage return Bellevue, Columbus 7 the items and “refresh” them with something new and interesting. It has helped the exposure and Fremont & Grand Island page increase 8 learning for that child by continually offering new tools. page These 9 same adapted toys are costGretna & Hastings prohibitive to many families, as theyLincoln typically pages cost more 10than - 155 times the base cost of the toy without adaptation. UCP has partnered with AT4ALL Norfolk pages to 15make - 16the entire inventory visible online. AT4ALL is offered by the Assistive Technology Partnership. A family can view the items, request North Platte page 16 them for loan, and then simply pick Omaha them up at the location. pages 16 - 24Simply go to www.AT4ALL.com, click on “Children’s Equipment” in the category. All items available for checkout from UCP of Resources for Families pages x Nebraska Tech Tots Partners (& a few other agency programs) will come up. You can refine the Classifieds page 29 search by location by selecting one of the UCP of Nebraska sites. Under Programs, scroll down to find the UCP Tech Tools locations. Children’s adapted items available through other agencies can also be found on this website! Locations for Tech Tots and Tech Tools: (All these are listed in Resources in Back of OKN)

What's Where???

Services  Offered:   Companionship  Services   Personal   Care  Services   Help us Expand our Reach, Pass us along to families you knowthwho could use this information!!! Children’s Respite Care Center NW, 2010 N. 88 Street, OMAHA 402-496-1000 ask for Sarah Tselentis Home  Helper  Services    

For  More  Information   Contact  Richard  Troia   402-­‐697-­‐8400  x201   rtroia@aspecialsitter.com       See  “Our  Story”  on  Page  8  

Children’s Respite Care Center SW, 13336 Industrial Rd, Ste 101, OMAHA 402-895-4000 ask for Sarah Tselentis

Madonna Rehabilitation Hospital, 5401 S. Street, LINCOLN 402-486-8617 ask for Michelle Wiggins Children’s Rehab Center, 3004 W. Faidley Avenue, GRAND ISLAND 308-398-5170 ask for Carole Ostdiek Faith Regional Health Services Rehab Services, 1500 Koenigstein, NORFOLK 402-644-7348 ext. 7396


IMPORTANT TIDBITS  FOR FAMILIES *

Independent Consultant

Munroe Meyer/ AAP iPad Lending Library

The Munroe Meyer Speech Department in partnership with Autism Action Partnership has created an Edition #24 May 2012 iPad and iPod lending library. The purpose behind this library is to provide families affected by ASD Heather Ackman the opportunity to try iPads and iPods as communication devices before they go to the expense of 402-227-5304 purchasing their own. If you have a family member or know a family who may benefit from this program, please have them contact me to set up a screening. During the screen, the family will have www.pamperedchef.biz/ the opportunity to try the iPad or iPod as well as several communication applications and accessories. If one of the devices is deemed as a viable option for the child, we will set up a 30 day loan of the heatherackman Proudly serving over 8,500+ -- application. NOW Across allthe of 30 Nebraska!!! device and thefamilies appropriate During days, the family will be required for 2 follow Now planning up/training sessions. One will be scheduled midway through the trial and the other will be scheduled for the end of the trial period. During the last scheduled session, we will determine if the trial was a Wedding Showers!!! success and will begin the process of securing funding (insurance, grants or private pay options). Call today for your spot!! May is Better Speech & Hearing This is an incredible opportunity for the community and we areMonth excited to offer this program!! Can be done Online Now!! Page 5 12/11 Contact Jennifer Brock or 402-559-6460 Mayat9 jbrock@unmc.edu is National School Nurse Dayfor more information.

I m p o rt an t T id b it s f o r F a m i l ie s

RadioNCDHH Show – byThe Adult with Asperger Syndrome May 13 is Mother's Nebraska Commission for Day the Deaf and Hard of Hearing

“Parents radio show, co-hosted by for Brian Brian is an adult with TheCorner” missionisofa the Nebraska Commission theKing, Deaf LCSW. and Hard of Hearing is to provide advocacy, Asperger Syndrome, who alsoand hasinformation 3 boys on the ASD spectrum. Brian be sharing his communication access to enhance awareness and will services for improving the quality of life for all who loss.a panel The Vision Statement of NCDHH Being proactive parenting strategies andexperience discussinghearing them with of parents. Here is a linkis: with all athe Commission works towards cooperation and understanding details state you’llagency, need tothe tune in & call in if you’d like.building http: support, tinyurl.com/3gm58h7 Check it regardless of hearing ability resulting in fairness and equality for all Nebraskans. Make sure to out & pass it along. His address is: PO Box 994, Chicago, IL 60186 if you’d like to write to check out our website at www.ncdhh.ne.gov him. *

Special Needs Mom's

You mayResearch think us “special moms” it pretty rough. Dental Study forhave Children with Disabilities Heart Heroes for kids with CHD, a things Nebraska We have noCapes choice. We Dentistry just manage when get really tough. a research study The Department of Pediatric at thelife Munroe-Meyer Institute is Non-Profit conducting

At ProCare3, we treat children with many different diagnoses, including but not limited to: Developmental Delays Torticollis Autism Spectrum Disorder Sensory Integration Speech Delays Cerebral Palsy Hypotonia Sports & Orthopedic Injuries We offer Warm Water Aquatic Therapy!!

Millard Pediatric Clinic 13336 Industrial Road, Ste. 105 Omaha, NE 68137 Contact us TODAY for a tour or a FREE Screening! (402)330-3211 Ext. 108 www.procare3.com

Check out any event We are Open 6 Days a Week, changes, after publication Monday through Friday additions & MORE with extended hours fromblog: 7am - 7pm at our Need Saturday hours?

www.ohanakidsnews. Ask us about those too!! blogspot.com For more information, O’Hana Kids’ News is rates not responsible for or advertising any events; including cancellations, or please contact us at: changes after print. It is your responsibility to check with each contact 402-227-5304 to verify the information that we have

provided to you. ohanakidsnews@gmail.com FACEBOOK too!!

We've made through theare days we thought we'd neverHeart make it through. Every year, approximately bornhelp in the US with Congenital Defects (CHD). evaluating ways it in40,000 whichinfants dentists can children with disabilities feel more relaxedCHD andiscalm We've even impressed our own all that we between candeaths. do! theMore the most frequently occurring birth The defect & theselves leading cause of birth-related of who during dental treatment. researchers arewith seeking children agesthan of 250% to 10, done. Children who surgery participate receive a $25 to Wal-mart. childrenneed with dental CHD willwork require at least 1 invasive in their lifetime. In gift the card US, twice as many Children can We've gained beyond love we never dreamed of giving. seen MMI orpatience at thethan new clinic at Children’s Hospital. The project funded childrenbe die fromat CHD each year, alldental forms measure, of childhood cancers, combined! Needless to is say, the by the We worry about future butofknow “special” life's worth living! National Institutes ofthe Health. Please contact Dr. Keith at 402-559-5756 or Kristi survivors of CHD wear their scars, like badges honor.this They are our Allen “Heart Heroes”. Heart Heroes, Inc., DeHaai, We bad days hurtmore sometimes, but we hold our heads up high. MS athave 402-559-4498 to learn how to moms, enroll your child in this research. is a non-profit organization that and originated by a about few Nebraska who had children with CHD. After * and through pride and thankfulness more often than we cry. trying to We coaxfeel theirjoy children cardiology appointments & heart surgeries, they took comfort in the Caregiver Day in founded! Cass County wondrous powers of “super hero” for capesRural to comfortNebraska their children, &Families Heart Heroes was Now For our kids, we aren't just SUPERMOMS, No, we do so much more :)for a few hours and O'Hana Kids News is have looking todraped put together a day where caregivers comeeverywhere. hundreds of Heart Hero capes been around the little shoulders of CHDcan children We aare nurses, therapists who don't awalk door. massage, see aCape chiropractor, have a great meal, maybe maniout or athe pedi, possibly have Considerhave donating acheerleaders, Heart Hero to a childand with CHD by going to www.heartherocapes.com to We handle rude remarks and unkind stares, with dignity and grace. doing Just await day where us caregivers getcapes doneto inconquer just a couple of hours, donate asomeone cape. There is hair. a perpetual list of children who needcan their their fears & give Even though the pain they bring cannotseen be erased. something makes I haven't anything in Cass County of there, for them courage. You that can also join us ourhappy Heart :). Heroes Facebook Group to see pictures of many or of south the cape caregivers. If any families would interested something likeheartheroes@yahoo.com. this, PLEASE either give me a call or recipients & hear their stories. Contact the be Co-Founders ofinHeart Heroes at Therapies and treatment are this a lotonfor usmany to digest, send me an email. I will base routes even doing how people contact me about it. I know the “Children hold our hands for a moment, but our hearts forever.” ~Anonymous We is don't know future but give kids our best. need there. Justwhat let methe know. I amholds, interested in anyour comments you have regarding what you Nonelike of in usacan beday replaced, weIsdon't get many breaks. would short like this so also. childcare something to look at too? Just let me know, It wears us out, butFree to help our kids, we'll do whatever it takes! Heather Ackman 402-227-5304 or ohanakidsnews@yahoo.com Gluten Free/Casein Diet Website

Just received this information that a parent went through and put their information into a We are selfless, not by choice you see. Our kids just have many needs. website of all the diet information they have for gluten free/casein free. I haven’t checked We're not out to change the world, but want to plant some seeds. it out, but a our look.kids It is http://www.lincolntent.com/GFCF.html Wetake want accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

Financial Resource for Families – FirstHand Foundation -- April Vernon

This is a resource for families with uncovered medical needs for their children. Families can apply for individual financial assistance if they meet the Foundation’s eligibility criteria. Check it out at www.firsthandfoundation.org

Collaborative Corner What's on Mosaic’sWhere??? website Check out the Collaborative Corner on Mosaic’s website at Important Tidbits for Families pages 2 - 6 Resources and www.mosaicinfo.org/services/research/CollaborativeCorner.htm State-Wide page 6 publications are updated regularly. Please contact Tara Harper at Bellevue, Cedar Bluff & Columbus page 7 information! tara.harper@mosaicinfo.org if you have any questions or need additional Fremont & Grand Island page 8 Gretna for & Hastings page 9 Children Villa Marie Home and School Exceptional Lincoln pages 10 - 15home-like atmosphere for up to 22 Villa Marie Home and School for Exceptional Children provides a loving, pages 15 - 16dormitories (4 students to a room), children, both day students and boarders. Norfolk Students enjoy comfortable North Platte page excellent recreational facilities, a chapel and spacious grounds. The16 Villa Marie staff provides total 24 Omahasupervision. pages 16Villa - 24 Marie follows the found Lincoln Diocesan When contacting ourhour-a-day advertisers, please tell them you them HERE!!! Catholic School calendar. The schoolxhas 3 well-equipped Resources for Families pages classrooms, a library, up-to-date Classifieds page 29 computers, a Smart Board in each

classroom and a variety of audio/visual aids. Villa Marie is approved the Nebraska Department of Education and all teachers are Make sure to let people know howby you found out about these certified in Special Education. The developmental program at Villa events, activities & Marie advertisers!! works towards preparing students to function effectively in social situations, to live independently, & to use their skills in ‘em, O’Hana News pointed you way!!! Reach,Tell Pass us along toKids’ families you know employment. whotheir could useareas this information!!! productive Specific of development include social and emotional development, vocational training, appearance, health and hygiene, and community involvement. Requirements for attendance are: Children with special needs between the ages of 7 & 18 but no students older than 16 will be accepted as new students, Students must be on an Individual Education Plan (I.E.P. & not require one-on-one paraprofessionals, Three step process for entrance (1. Parent interview, 2. Student visit during school, 3. Application for entrance including tuition negotiation) For More

Thanks for Reading OKN!!

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Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

I m p o rt an t T id b it s f o r F a m i l ie s May is Better Speech & Hearing Month May 9 is National School Nurse Day

  May 13 is Mother's Day

Page 2

The  Nebraska   Respite   Network   IMPORTANT TIDBITS FOR FAMILIES  

you  know   about  twith he  Lifespan   Respite   Subsidy  Program?   RadioDo   Show by Adult Asperger Syndrome

Pediatric speech, language & feeding therapy

Specializing in Autism

Specializing in Deaf/Hard of Hearing & Cochlear Implants

Specializing in Late Talkers & Developmental Delay

402-327-2500 8055 O Street, Suite S110 Lincoln, NE 68510

www.heartlandspeech.com Find us on FACEBOOK too!

 

Challenger   Little   League     This  baseball   Check out any event league  is   changes, after publication exclusively  for   additions & MORE children   with  special   needs.  These   atbour blog: needs  can   e  mental   and/or  physical   disabilities.     www.ohanakidsnews.   Our  blogspot.com 3  different  "little  league"   divisions  begin  at  age  5  &  work  up  to   21  more or  high  information, school  graduation  -­‐   For whichever  comes   first.     or advertising rates   please contact us at: is  the   Our  unique  &  older  4th  division   Alumni  402-227-5304 which  takes  over  from  there  &   has  no  age  limit.     ohanakidsnews@gmail.com  

FACEBOOK too!! Registration   for  our   2013  season     begins  January  1  and  will  end  at  the   Thanks for Reading OKN!! end  of  February.    

Special Needs Mom's

“Parents Corner” is a fradio show,sco-hosted by Brian King, LCSW. an adult with Asperger This  program   pays   or  respite   ervices  (someone   to  come   into  Brian the  hisome   to  care   for   a   Syndrome, who presented here inthe   theparea backcaregiver   in January. Brian also has 3 boys on pthe ASD person   with  special   needs,  to   give   rimary   a  temporary   break).    The   rogram   spectrum. be sharing parenting discussing with a panel of parents. serves   people  Brian of  all  will ages.    It  is  for  his people   who  strategies are  NOT  rand eceiving   the  sthem ervices   from   another   think moms” it pretty rough. HereYou is a may link with all us the“special details you'll needhave to tune in and call in if you would like government   p rogram.   We have no choice. We just life when things get reallyis: tough. http:tinyurl.com/3gm58h7 Checkmanage it out and pass it along. His address P.O. Box 994, West   him. we'd never make it through. We've made if it you through wetothought Chicago, IL 60186 wouldthe like days to write We've even impressedWho   our own selves with all that we can do! Needs   This   Program?  

Projectwho   Lifesaver in Sarpy Caregivers   need  a  temporary   break  County from  providing  care  to  persons  of  any  age,  with   We'veCounty gained patience beyond measure, loveLifesaver we never dreamed of locate giving. The Sarpy Sheriff’s Office implemented Project in & 2008 to help missing special   n eeds.     E xamples   o f   s pecial   n eeds   athis re   developmental    physical   limitations,   We worry about future but know “special” living! persons. Children with the Autism or Down Syndrome, who are atlife's risk toworth wander, can have their safety emotional   or  behavioral   isorders,  sometimes, chronic  illness.   lzheimer’s   isease  up &  rhigh. elated  health   Weenhanced have bad days dand but  A we hold ourdheads greatly through this hurt program. Project Lifesaver emphasizes relationships between specially We feel joy anda t  pride thankfulness more oftenis  than we concerns,   or  persons   risk   oand f  aindividuals buse   &  neglect.    Ein ligibility   based   on  cry. income   guidelines.   trained Sheriff’s personnel and enrolled the program BEFORE the need may arise   for a HOWEVER,   if  you   ave  ehome xpenses   elated  to  enrollees the  disability,   these   usually  be   rescue. During an h initial visit,directly   Project rLifesaver are fitted withcan   a personalized For our kids, we aren't just SUPERMOMS, No, we do so much more :) subtracted   from  the   counted   ncome.    Tare he  provided person  awith pplying   must  have  a  overview caregiver.     wristband transmitter and family imembers a comprehensive of  the We are cheerleaders, nurses, and therapists who don't walk out the door. program. Trained in communicating with individuals with special needs, deputies will schedule a The   p rogram   w ill   p rovide   u p   t o   $ 125   p er   c lient   p er   m onth!!   We handle rude remarks and unkind stares, with dignity and grace. monthly visit the to inspect and maintain the and get to know the enrollee better on a   equipment Evenhome though pain they bring cannot be erased. more personal basis. The cost to participate in this program is minimal, at $10 a month. How   do  I  become   a  Rcontact espite  P rovider?   For more information on Project Lifesaver, Therapies and treatment routes are a lot for usLt. toGriger digest,at 402-593-2288.

How   do  Iknow  get  qwhat ualified   for  the   Lifespan   Respite   Subsidy   Program?   We don't the future holds, but give our kids our best.

Heart Heroes Capes for children with get CHD, a Non-Profit here in Nebraska What   I  ncan eed   help   finding    respite   provider,   so  I  as  a  Caregiver,     None ofif  us be replaced, soawe don't many breaks.

EveryItyear approximately 40,000 infants arekids, born we'll in the do US with Congenital Heart Defects (CHD). CHD is wears us out, but to help our whatever it takes! can   have    break?   the most frequently occurring birth defect and thealeading cause of birth-related deaths. More than 50% of children twith CHD will require at least one invasive surgery inatheir lifetime. And in the US, twice as Contact   ebraska   Rnot espite   Network   by  see. contacting    Rjust espite   Network   oordinator   in  many We he   areNselfless, by choice you Our kids have many Cneeds. children die from CHD each year than from ALL forms of childhood cancers, combined! Needless to say, the your   area   (see   below)   or  cwant all   1-­‐866-­‐RESPITE   We're not out to change the world, but to plant some seeds. survivors of CHD wear their scars like badges of honor. They are our “Heart Heroes”. Heart Heroes, Inc., is   We want our kids accepted. That really is our aim. a non-profit organization that originated by a few Nebraska moms, who had children with CHD. After trying When we look at them, we just see kids. We hope you'll do the same. to coax their children through cardiology appointments and heart surgeries, they took comfort in the Western   Service   Area   hero” capes to comfort their children, and   Heart Heroes was founded. Now, wondrous powers of “super -- April Vernon Serving   Sheridan,   Garden,   Deuel,   hundreds of Heart Hero capes have been draped around the little shoulders ofrea   CHD children everywhere. Southwest   Service  A Sioux,  Cheyenne,   Morrill,   ox  Butte,   Dundy,   Hitchcock,   Red  going Willow,  to Furnas,   Gosper,  Dawson,  Lincoln,  Logan,   to donate Consider donating a BHeart Hero CapeServing   to a child with CHD by www.heartherocapes.com Dawes,  Scottsbluff,  Banner  &   Thomas,   G rant,   H ooker,   A rthur,   K eith,   P erkins,   C hase,   Hayes,  fears &  Frontier   a cape. There is a perpetual wait list of children who need their capes to conquer their and give them Kimball     pictures of many of the cape recipients courage. You can also join our Heart Heroes Facebook Group to see       C oordinator   H elena   J anousek   and hear Coordinator   their stories. Contact the co-founders of Heart Heroes at heartheroes@yahoo.com. “Children hold our hands for a moment, but our hearts (308)345-­‐ forever.”4223   ~ Anonymous Sherri   Blome   (308)345-­‐4990   (308)432-­‐8190   respite@swhealth.ne.gov       Exceptional Parent Magazine specialprojects@wchr.net    

What's Where???

Important Tidbits for Families pages 2 - 6

Magazine for parents of children with developmental disabilities and other special needs. You can get State-Wide page 6 a digital edition of this magazine, Just go to www.eparentdigital.com type in the EMAIL: Bellevue, Cedar Bluff specialneeds & Columbus page 7 155rw@eparent.com and use the PASSWORD: to access editions digitally. This   Fremont & Grand Island page 8 information is also listed in the back of OKN under Website Resources.

Central   Service  Area  page 9 Gretna & Hastings

Serving  Harlan,  Franklin,  Webster,  Clay,  N uckolls,  Phelps,  Kearney,  Adams,  Buffalo,  Hall,  Hnd Merrick,  H oward,  Sherman,   Lincoln pages - 15 Leaps & Bounds Pediatric Therapy NEW 2amilton,   LOCATION Custer,  Valley,   Greeley,   Blaine,   Loup,  10 Garfield,   Wheeler  

Leaps and Bounds Pediatric Therapy, located pages in   Lincoln, Norfolk 15 has - 16now added a South-West location in Lincoln, in addition to their North location inPlatte Lincoln. new clinic is located at 7945 S. 15 th St., North page Northern   Service   AThe rea  16 Suite DW(just eastDodge,   o f14th Street, between Pine Lake Road and Yankee HillPRoad). Serving   ashington,   C olfax,   Platte,  Nance,   B oone,   A ntelope,   H olt,   R ock,   B rown,   Cherry,  Keya   aha,  Boyd,  Knox,  Cedar,   Omaha pages 16 - 24 Burt,  Dixon,  Dakota,   Thurston,   CSpeech uming,  Stanton,   Madison,   Pierce  &  are Wayne   Physical Therapy, Occupational Therapy &for Therapy services available at BOTH locations! Resources Families pages x   Please call 402-742-7400 to schedule an appointment at either locations. Classifieds Sue  Bochart,  For  page BOTH  S29 ervice  A reas   We look forward to seeing  Coordinator   you! (308)745-­‐0780  ext.  145   sbochart@cennecs.org      

 

Our  website,   NEW www.challengerlittleleague.org,       Help us our Reach, Pass us Eastern   alongSto families you know who could use thisArea   information!!! ervice   Area   Southeast   S ervice   is  up   but  Expand under  construction.     Serving  Thayer,  Jefferson,  Gage,  Otoe,  C ass,  Pawnee,  Richardson,  Johnson,   Serving  Douglas  &  Sarpy   If  you  cannot  find  the  i nformation  you   best Serve Nemaha,  Lancaster,  Saline,  To Fillmore,   York,  Seward,   Polk,  BYou!!! utler  &  Saunders       need  there  please  e-­‐mail  us       Coordinator   admin@challengerlittleleague.org     Coordinator  Misti  McInteer   Elizabeth  Chentland   * Physical Therapy * Occupational * (402)434-­‐3494  eTherapy xt.  103   &  we  will  mail  out  some  i nformation   (402)996-­‐8444   O’Hana Kids’ News is not responsible for misti@ywcalincoln.org     a  registration.   echentland@gmail.com   * Speech Therapy * any events;&  including cancellations, or

2 LOCATIONS

 

changes after print. It is your Located  to in  check Omaha   Nebraska   responsibility with each contact to verify the information that we have provided to you.

SOUTH-WEST LOCATION

NORTH LOCATION

Lincoln, NE

Lincoln, NE

This edition is FREE!!! Pass it along!! Join our mailing list, contact us at ohanakidsnews@gmail.com 2550 Superior St. Suite 160 7945 S. 15th St. Suite D

Call 402-742-7400 to schedule an appointment at either location, TODAY!


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

I m p o rt an t T id b it s f o r F a m i l ie s May is Better Speech & Hearing Month May 9 is National School Nurse Day

 

May combined 13 is Mother's Day Parent Group â&#x20AC;&#x201C; Kids with hearing & vision loss

Page 7

The Nebraska Technical Assistance Project on Deaf-Blindness has conducted training this year specific to parents of children who have a combined hearing & vision loss. The training has been in partnership with the National Consortium on Deaf-Blindness (NCDV2.0). A total of 6 parents have participated in a series of training activities from May 2011 through October 2011. They are now working on their leadership goals. They are called the Nebraska DB Parent Leadership Team, & have provided lots of support to the state Deaf-Blind project. It is the intent of this You may think us â&#x20AC;&#x153;special momsâ&#x20AC;? have it pretty rough. team toWe provide either vialife phones, face-to-face haveone-on-one no choice.interaction We just manage whentechnology things getorreally tough. with other parents We've in the state have a child birthwe to thought age 21, with a combined hearing & vision loss. If madewho it through the days we'd never make it through. We've even impressed own with all please that wecontact can do! Teresa Coonts at you want to be connected toour one of selves the parents, 402-595-1810 or Teresa.coonts@nebraska.gov This is an exciting group of parents gained patience beyond measure, love we never dreamed giving. working We've & learning together for the purpose of supporting other families in theoffuture.

Special Needs Mom's

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  Check out any event changes, after publication A  Special   Sitter  was     additions & MORE inspired   y  our  ongoing   at our b blog:

journey  of  parenting  our  

www.ohanakidsnews. family,  which  includes  2  kids   blogspot.com

with  special  needs,  &  we   believe  that  our  experiences   For more information, can  help  you  experience  the   or advertising rates fullness   of  blessings   we  have   please contact us at: received  as  we  have  raised  our   402-227-5304 family.  

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Companionship  Services  

ThanksPersonal   for Reading Care  SOKN!! ervices  

Home  Helper  Services    

More  Information   Help For   us Expand our Reach, Contact  Richard  Troia   402-­â&#x20AC;?697-­â&#x20AC;?8400  x201   rtroia@aspecialsitter.com       See  â&#x20AC;&#x153;Our  Storyâ&#x20AC;?  on  Page  8  

We worry about the future but know this â&#x20AC;&#x153;specialâ&#x20AC;? life's worth living! have bad days and hurt sometimes, but we hold our heads up high. Bikes We and Trykes of Central Nebraska We feel joy and pride and thankfulness more often than we cry.

We are a local chapter of AMBUCS, a national service organization composed of a diverse group For women our kids, we aren't just SUPERMOMS, we do so much more :) disabilities. of men and dedicated to creating mobility andNo, independence for people with We are nurses, and children therapists don't out thewho door. Our mission is tocheerleaders, provide AmTrykes for area andwho adults withwalk disabilities, otherwise Webehandle unkind stares, with dignity and grace. would not able torude ride remarks a bike or and tryke. We are dedicated to â&#x20AC;&#x153;Celebrating the Abilities of Even though the pain they bring cannot be erased. People with Disabilitiesâ&#x20AC;?. Our chapter representative is a 4 year old boy with Cerebral Palsy, his nameTherapies is Jaden. and Jaden has a twin brother, whousdoes not have any disabilities. When treatment routes areKaden, a lot for to digest, their family went know on bikewhat rides,the Jaden hadholds, to be pushed in our a stroller, which usually caused many We don't future but give kids our best. None of us can be replaced, so we don't getamany breaks. tears. Jaden didnâ&#x20AC;&#x2122;t understand why Kaden got to ride bike, and he had to be pushed in a wearswas us out, our kids, we'll whatever it takes! stroller.ItJaden fittedbut fortoanhelp AmTryke and he nowdo gets to ride along, so he can be just like his brother. The AmTryke has not only helped Jadenâ&#x20AC;&#x2122;s self-esteem, but it has also increased his We are selfless, not by choice you see. Our kids just have many needs. muscle tone, muscle strength andbut balance. If plant you know of seeds. someone who would We'recoordination, not out to change the world, want to some benefit We fromwant an AmTryke have them are also requesting help from you our kidsplease accepted. That contact really isus. ourWe aim. When look at them, just see kids. We hope you'll receives do the same. so we can helpwe other children likewe Jaden. When a disabled individual the gift of an AmTryke, the whole family benefits. If you would consider donating toward an AmTryke, please -- April Vernon contact us also. We are located at 3004 West Faidley Avenue, GRAND ISLAND; 308-398-5170 or centralnebraskaambucs@gmail.com You can also check out the website www.ambucs.org

â&#x20AC;&#x153;Love That Goes the What's Distanceâ&#x20AC;? Providing for special needs now & Where??? into the future! Planning for the long-term care of a loved one with special needs requires thought and preparation. Important The fact is, when it comes the futurepages needs of Tidbits for to Families 2 -a 6family member with a disability, the possibility that they nay outlive you is something State-Wide page 6that must be considered, especially when the individual is a minor or adult Cedar child. Preparations include estimating future careBellevue, Bluff & Columbus page possible 7 giving costs, as well as making sure all assets managed properly to 8 best benefit your loved one. Fremont & are Grand Island page Special protection when you need itGretna most! Sometimes familiespage neglect & Hastings 9 inheritance issues for special needs family members because they assume siblings or related will simply step in and take Lincoln pages 10 - caregivers 15 over the care giving duties should the need arise. pages Even if 15 families Norfolk - 16 have reached an agreement on care giving responsibilities, it is still important to address thepage management and division of assets and to have North Platte 16 your preferences clearly and legally defined. You also want to be sure you understand all of the legal Omaha pages 16 - 24 guidelines so that your loved one with special needs does not lose benefits from government sources. Resources for Families pages x For instance, many people are not aware of that with Supplemental Security Income (SSI), a single, Classifieds page 29 disabled person cannot own more than $2,000 in assets. One component you might want to consider when setting up your long-term financial plan is the establishment of a â&#x20AC;&#x153;Special Needs Trustâ&#x20AC;? funded with a form of life insurance. A â&#x20AC;&#x153;Special Needs Trustâ&#x20AC;? is established to ensure that the disabled individualâ&#x20AC;&#x2122;s inheritance will supplement, not replace, any government assistance programs they may be eligible for. Aspects of a â&#x20AC;&#x153;Special Needs Trustâ&#x20AC;? include: Appointing someone to take care of your Pass us along to families you know who could use this information!!! loved oneâ&#x20AC;&#x2122;s property and money, Designating a guardian for children less than 18 years of age, Integrating the wishes spelled out in the trust with the remainder of the parentâ&#x20AC;&#x2122;s estate plan. Get the help you need now for future peace of mind. A â&#x20AC;&#x153;Special Needs Trustâ&#x20AC;? is just one tool that can help you address financial issues making life much easier for your loved one and their future caregivers. With proper planning, your love, and your money, will be set to go the distance. For additional information on â&#x20AC;&#x153;Special Needs Trustsâ&#x20AC;? it is important to consult with an attorney in your state of residence who specializes in special needs estate planning. For more information on preparing for your loved one with special needsâ&#x20AC;&#x2122; future, you can contact Cecilia Loose, Prudential at (402)861-3676.


Edition #24 May 2012

I m p o rt an t T id b it s f o r F a m i l ie s Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

May is Better Speech & Hearing Month

ABC Signing Kids

Teaching Beg inning S ign May Languag e to Ki ds of All Abi liti es i n SouDay th East Ne brask a. Why 9 is National School Nurse Le arn Sig n Langu ag e? In addition to the fun you will have discovering a new and enriching language together, there are many benefits of signing with your child. Enhances C omm u ni cati on S kills i n Bab ies and Toddlers. Even young children can learn basic ASL vocabulary quickly & easily with Signing Time Academy Classes & products. “Terrible Two’s” aren’t so terrible when your toddler can communicate what he wants. Im proves R eading Ski lls. Studies indicate that children who sign have an increased interest in reading & may even read early. Benefit s Children wit h Sp ec ial Ne eds. Many children with special needs have difficulty with communication & speech. Sign Language encourages connection, Physical Therapy reinforces positive self-image & fosters inclusion & acceptance. Sign Language is an effective tool for all Page 3 types of learning styles: auditory, visual & kinesthetic/Tactile. Occupational Therapy You may think us “special moms” have it pretty rough. For more informat ion Call Ang ie Willey, Cert ified Inst ruct or at 40 2-49 9-40 22 or Speech Therapy We have no choice. We just manage life when things get really tough. abcsig ning -ki ds@ signi ngti me .co m You c an also go t o www. ab csigni ngk ids. wee bly.co m We've made it through the days we thought we'd never make it through. Learn how to adapt toys to use with a switch/button/BigMac We've even impressed our own selves with all that we can do!

 

May 13 is Mother's Day

Special Needs Mom's

IMPORTANT TIDBITS  FOR FAMILIES 2 LOCATIONS

This workshop is for ANYONE!! You will learn how to easily & cost effectively turn the Award toys thatCall your for Nominations Friend of Autism To Best child already has, & isn't using Serve because ofYou!! physical limitations,Do into toys thatanare adaptedwho to your you know educator demonstrates remarkable dedication to individuals with Autism Spectrum We've gained patience beyond measure, love we never dreamed of giving. child!! You will learn how to install a jack into a single function toy & convert it into a toy that is Disorders? Nominate them forthe the ASD Network Friendthis of Autism Awardlife's . Submissions include details We worry about future but know “special” worth should living! operated with a switch. You will learn how to assemble a switch. You will make a detachable cord of AND how the nominee exhibits the following We have bad with days hurtqualities. sometimes, but we hold our heads up high. that runs fromSOUTH-WEST the toy to the switch. LOCATION You will be able to do this, you will go home a and th Commitment: Has the and education of and families and children and youth withthan ASD as a cry. primary focus & We feel joy thankfulness more often we working switch toy7945 & switch. Best of all,Suite your child's professionally adapted, bypride YOU!! S. 15 St., D toy will look You have seen that the switch operated toys are sometimes 8xprovides as muchopportunities to order, than if you could that enable students with ASD to reach their potential. LINCOLN, NE buy the toy & put the switch in for a few dollars, yourself. Dates/Times will potential be determined I just For our kids, aren't SUPERMOMS, No, we do so much more :) Vision: Sees in we all when individuals, readily adapts to change and accepts all individuals with ASD and have 4 or more people interested in the class. This class is FREE, however donations of any kind are We are cheerleaders, nurses, and therapists who don't walk out the door. their strengths and needs. NEW Aaron NORTH appreciated. Contact todayLOCATION at aaronmiller555@gmail.com for more information!

4640 Bair Ave

We Is handle remarks and unkind stares, dignity grace. Innovation: aware rude of empirically supported practices in the with field of Autism and Spectrum Disorders and

Even though theand pain bring cannot be erased. to adapt usethey resources creatively. A & D Waiver – Aged Disabled Waivershows a willingness In Superior Pointe& Shopping Center Inspiration: Displays positive interactions with students & parents, and actively Is YOUR child onLINCOLN, this? IsNE YOUR child eligible Therapies to be onand this? treatment routes are a lot for us to digest,

influences peers with

their energy & enthusiasm.

If your child is on this waiver, do you know that it makes your income guidelines non-existent? We don't know whatNo the future holds, but give our kids our best. Pleaseeach include information 402-742-7400 cap on your income. Call Just have to use the 2 hours minimum respite andcontact every month, so youfor the nominee and the person(s) submitting the nomination. None of us can be replaced, so we don't many breaks. or by mail to: Annette Nominations can to be your submitted via email to: Annette Wraggeget at awragge2@unl.edu don't lose yourTo A&D Coverage. an Do you know that you can add your child, private schedule appointment It wears us get out, but toLincoln, help our kids, we'll do whatever it takes! health insurance (non-medicaid), andTODAY!! if you are on the A&D Waiver, you those Wragge, UNL, 253Fcan Barkley Center, NE 68583-0738 At either location, premiums paid for for BOTH you and your child, throughNomination the HIPP program? to be the Deadline Has is March 8. The award will be presented during the Thursday evening dinner at Wefor are selfless, not by choice you see. Our kids just have many needs. same family policy, but they will cover all the insurance the premiums your entire family!! 2013 ASD State Conference. The conference will be held on April 11 & 12 in Kearney at the Youness Thank You to all L&B Families For us this was $1,200 in premiums, because we are self-employed, don't have not a corporate We're out to medical change the world, but want to plant some seeds. Convention Center.program, and we are their we beginmom, I found plan, and it wasfor killing us. support By talkingas with another out about We this want our kids accepted. That really is our aim. our 6th year of service in For 5 years we were When waiting on our reimbursement to arrive!! So cool. told that ourlook income we at dictated them, we just see kids. We hope you'll do the same. the medicaid that our son received, for us that meant we had to either stay in this income boxof A Special Sitter “Our Story” Thelittle Beginning North Lincoln, Now at a NEW of like $45,000 or make an additional $100,000 to cover the expenses in therapy and medical As parents fourVernon children, two with special needs, we understand your challenges in raising special needs -- of April Location, services that our sons receives on an annual basis minimum. children. The guidelines to be onour theGod A&D As parents, given responsibility is to train our children for life. As a parent, you & WELCOME all they Neware. Families Waiver, I do not know for sureto what If you want to know, I can find out, just email me. I experience highs & lows as yourbeing children grow through the seasons of life. We learned early, that these know that my son qualifies, and ifSouth!! has something to do with being fed solely by g-button, and to L&B & lows are amplified when you are caring for a child with special needs. You want to attend your non-independent. If you want the contact information for the highs HIPP program, just shoot me an email any event specifically aboutchildren’s events, teacher on that also, orCheck ask yourout Service Coordinator it. There sporting are many programs out conferences, & musical performances. You want to continue to date there available to help families ours out. We just need to your get the word because out therea for families to spouse, strong marriage creates a strong family. Like us, you probably have asked changes, afterlike publication access that information. If you know of a program, that would benefit families, email me. yourselves, “How do we create & maintain this balance when most of our time & energy is devoted to caring additions & MORE ohanakidsnews@gmail.com We will research it and get the correct information out to all for our child with special needs?” Our desire is to help you answer that question so your family can at our blog: the families. Important Tidbits for Families pages 2 - 6

What's Where???

experience the fullness of blessings available to your family because of your child with special needs. A State-Wide page 6 ongoing journey of parenting or family & we believe our experiences can helpconducted you experience the fullness of blessings we have received as we have raised Bellevue, Cedar Bluff & Columbus pageour 7 family. – Kimberly blogspot.com The Nebraska Technical Assistance Project on Deaf-Blindness has training this year Richard Co-Founders of A Need any help,page please specific to parents of children who have a combined hearing &and vision loss. Troia, The training has been inSpecial Sitter Fremont & .Grand Island 8 call us today at 402partnership with the National Consortium on Deaf-Blindness (NCDV2.0). total or of 7rtroia@aspecialsitter.com parents have 697-8400 Ax201 Gretna & Hastings page 9 For more information,

*

Special Sitter inspiredloss by our www.ohanakidsnews. Parent Group with kids with combined hearing &was vision Independent  Consultant  

Heather  Ackman   participated in a series402-­‐227-­‐5304   of training activities from May 2011 through October 2011.

They are now Lincoln pages 10 - 15 orleadership advertising rates working on their goals & have another planned meeting in April 2012, as well as ongoing imapamperedchef   @ yahoo.com     Respite Care Available for Air Norfolk Force Families FREE pages *15 - 16to them * meetings in the future. They are called the Nebraska DB Parent Leadership Team, & have provided please contact us at:   Airteam Force Program (EFMP) families stationed throughout the country lots of support to the state deaf-blind project. It is the intent U.S. of this to (USAF) provideExceptional one-on-oneFamily Member North Platte page 16 All   orders   help  support   interaction either via phones, technoloty or face to-face with other therequire state who havechild a care considerations due to the child’s special needs. Finding & have parents childreninwho unique 402-227-5304 Omaha pages 16 - 24 child birth to age 21 with a combined hearing & vision loss. Ifpaying you want be connected to for onechildren of O’Hana   Kids  N ews!!!   for to quality child care with special needs can also present significant challenges for ohanakidsnews@gmail.com Resources for Families pages x these parents, please contact Teresa Coonts at the number and email listed above. This isAir anForce military families. The U.S. EFMP program has established a quality respite program for families Get   1 0%   O FF   A LL   O RDERS!!!   FACEBOOK exciting group of parents working too!! & learnin together for the purpose of supporting other families in Classifieds with children having special needs & who are enrolled in thepage USAF 29 EFMP. USAF EFMP Respite Care is the future.

Thanks for Reading OKN!!

Help us Expand our Reach, Pass us along to

specifically designed for Air Force families who have children diagnosed with moderate or severe special needs under EFMP. This includes exceptional family member children whose medical conditions require assignment near major medical facilities in the continental United States, or whose needs are you complex and require specialized of care. What is included in families know who could community use this information!!! the USAF EFMP Respite Care? Respite care hours vary between 8 – 20 hours per month based on the Airman’s status and EFM’s condition (moderate or severe). Your choice of an approved in-child’s home or licensed Family Child Care or Child Care Center. (Approved providers are background screened and have the following pre-service training: CPR, First Aid, Medication Dispensation, & Child Abuse Recognition & Prevention as well as subject matter training in the care of children with special needs. To begin the application process, call Child Care Aware toll-free at 1-800-424-2246 or email michelle.pridell@offutt.af.mil for a Respite Care Step by Step instruction form. Or call the EFMP Office at 402-294-4329 for more info!

When contacting our advertisers, please tell them you found them HERE!!!


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

I m p o rt an t T id b it s f o r F a m i l ie s May is Better Speech & Hearing Month May 9 is National School Nurse Day

Page 9

Limb Loss Awareness KitsMay These will to the public during the month of April. April is 13beisavailable Mother's Day Limb Loss Awareness Month. The kit will include a yard sign stating our Just Ask! Awareness theme and other items (to help grab attention of passing traffic) along with simple setup instructions. The idea is to have families request the kits so that we can bring awareness to the entire state. These kits can be requested by contacting the Nebraska Children with Limb Differences (NCULD) Association at awareness@nculd.org They are FREE of cost and will be mailed right to your front door!

Advertise Here!!

Special Needs Mom's

Looking for

WANTED: Children with Limb Differences to write their story for NCULD’s think us is“special have pretty Book!!You Themay NCULD family publishingmoms” a book and we it need some rough. more limb different kiddos to help us

Advertisers in the Central/Western Parts of NE Only $25 a month No Contracts!! Contact Heather at 402-227-5304 ohanakidsnews @gmail.com

WeHow have notimes choice. We been just asked, manage lifehappened when things tough. write it! many have you “What to your get hand,really arm, leg, __________ madeNow it through the chance days we thought we'dWhat never through. (fill in We've the blank)?” is your child’s to tell their story! willmake make it this book so great is even impressed our own selves with that canthis do!very question. From that itWe've will incorporate the many different approaches we’veall taken to we answer Maycee’s “WHAT?! I’m missing my hand? To Micah’s “There were these four ninjas . . .” sense of We've gained patience beyond measure, love we never dreamed of giving. adventure to Braedyn’s “God just made me this way” wisdom, we’re sure to get a variety of enduring and We worry about the future but know this “special” life's worth living! witty child-friendly answers. We’ll wrap up the book by tying it in with our current awareness campaign, We have bad days and hurt sometimes, but we hold our heads up high. “Just Ask?” with an encouraging word about “just asking” about someone’s difference, no matter what it We feel joy and pride and thankfulness more often than we cry. might be, in a simple and considerate way. Your child’s story can be about anything they can imagine that explains thekids, question, “What happened to your ________ (filldo in so the much blank)?more Please:)keep your For our we aren't just SUPERMOMS, No, we child’s We storyare under 100 words. You can submit final draft who to kourtney.case@nculd.org along with cheerleaders, nurses, andthe therapists don't walk out the door. a favorite your child. You can an illustration for thedignity story asand wellgrace. if you’d like. We picture handleofrude remarks andsend unkind stares, with Submissions due NOthe LATER THAN APRIL 12!!cannot This can a great family project with parents and Evenare though pain they bring bebeerased. siblings chiming in with ideas too! Have fun, be imaginative, but mostly, just be YOU! All proceeds will benefitTherapies the Nebraska Children with Limb Difference Each child author will be named and and treatment routes are aorganization. lot for us to digest, will receive a copyknow of the what finishedthe product! writing!!! We don't futureHappy holds, but give our kids our best. Edition #24 May 2012 None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!

 

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, justAcross see kids. hope you'll do the same. Proudly serving over 8,500+ families --we NOW allWe of Nebraska!!!

Check out any event changes, after publication additions & MORE at our blog: www.ohanakidsnews. blogspot.com For more information, or advertising rates please contact us at: 402-227-5304

ohanakidsnews@gmail.com FACEBOOK too!!

Thanks for Reading OKN!!

Special  Blend     Family  Resource  Center         W E E -- April C (SBFRC)   NVernon UR O S May is Better Speech & Hearing   Month RE

May 9 is National Nurse DayRichard  Troia,   A  Special  School Sitter  Co-­‐Founder,   May 13 is Mother's announces  the  opening  of  Day the  Special  Blend  Family   What's Where??? Resource  Center  (SBFRC).    The  purpose  of  the  SBFRC  is  to   assist  Special  Blend   Families  Tidbits with  navigating   the  complexities   Important for Families pages 2 - 6 of  life  created   by  their  unique  situation.    A  SState-Wide pecial  Blend  F amily   page 6 is  a  family  o f  special  needs   Bellevue, Cedar & Columbus &  non-­‐special  needs   individuals,   &  Bluff parents   doing  their  page best  7to  maintain  their   &the   Grand Island 8 members.       relationship  Fremont &  balance   needs   of  all  page family   Gretna & Hastings page 9 You may think us “special moms” have pretty rough.   it 10 Lincoln pages - 15 We have no choice. We just manage life when things get really tough. SBFRC  provides   the  thought following   services:       Norfolk 15 we'd - 16 We've made it through the days wepages never make it through.

Special Needs Mom's  

North Platte page 16 1.    Estate  and  Tax  Planning,   including  Special/Supplemental  Needs  Trust   Omaha pages 16 - 24 (SNT)   &  Lmeasure, ife  CFamilies are  P lanning.       x dreamed of giving. We've gained patience beyond love we never Resources for pages We've even impressed our own selves with all that we can do!

We worry about the future but know   this “special” life's worth living!

Classifieds page 29 We have bad days and hurt sometimes, but we E hold our heads up high. (IEP)   2.    Educational   Services   including   Individualized   ducational   Placement   We feel joy and pride and thankfulness more often than we cry. Assistance,  &  Individuals  with  Disabilities  Education  Act  (IDEA)     For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. For   more  information  please  contact  Richard  Troia  at     Even though the pain they bring cannot be erased. rtroia@sbfrc.com     based   i n   O maha   Therapies and treatment routes are a lot for us to digest,

We handle rude remarks unkind stares, with dignity grace. Help us Expand our Reach, Pass us along to families you and know who could use thisand information!!!

We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!

Check out our website at

www.ohanakidsnews.com

O’Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact information provided. You can check the We are selfless, not by choice see. page Ouras kids just have many needs. blog at www.ohanakidsnews.blogspot.com or ouryou Facebook we try to update those with any information We're out to change the world, but want to plant some seeds. changes that havenot occurred after publishing.

We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same. -- April Vernon


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

2013 SUMMER CAMPS

 

May is Better Speech & Hearing Month May 9 is National School Nurse Day

May 13 is Mother's Day

Page 10

June 26-30, 2013 Jason Fisherman Epilepsy Camp LOCATION: YMCA of the Rockies, ESTES PARK, COLORADO MORE INFORMATION: Marcee Peterson 303-377-9774 or marcee@epilepsycolorado.org FINANCIAL ASSISTANCE: Stacey Doty at sdoty77@hotmail.com DESCRIPTION: Online Registration will open March 1 (maybe sooner)

Special Needs Mom's

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You may think us â&#x20AC;&#x153;special momsâ&#x20AC;? have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!

2013 Easter Seals Camp Dates

We've gained June patience beyond never & dreamed giving. 6: Lunch withmeasure, the Stafflove â&#x20AC;&#x201C; allwe Parents Campers of invited at Noon We worry about the future but know this â&#x20AC;&#x153;specialâ&#x20AC;? life's worth living! June 9 â&#x20AC;&#x201C; 14: Young Adults, ages 23 â&#x20AC;&#x201C; 39 We have bad days and hurt sometimes, but we hold our heads up high. June 16 more â&#x20AC;&#x201C; 21: Adults, ageswe 40+cry. We feel joy and pride and thankfulness often than

June 23 â&#x20AC;&#x201C; 28: Youth, ages 6 â&#x20AC;&#x201C; 13 For our we aren't just SUPERMOMS, No, we do7so more :) Base Lake July 11 â&#x20AC;&#x201C; kids, 12: Military Youth with Disabilities ONLY, ages â&#x20AC;&#x201C; much 17, Offutt AFB, We are cheerleaders, nurses, therapists who July 14and â&#x20AC;&#x201C; 19: Teens, ages 14don't â&#x20AC;&#x201C; 22 walk out the door. We handle rude remarks and unkind stares, with dignity and grace. July 21 â&#x20AC;&#x201C; 26: All Ages Even though the pain they bring cannot be erased.

For more information on these camps: Mike Tufte 402-930-4053

Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, registration but give our kids our open. best. Please stop Easter Seals Nebraska's new online is now None of us can be replaced, so we don't get many breaks. by www.campeastersealsne.com to register. Make sure you check out the It wears us out, but to help our kids, we'll do whatever it takes!

new links at the top of the homepage, as well as the PHOTOS link.

Remember summer is almost here!!! We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

PROJECT   EXPLORE   SUMMER  CAMP   -- April Vernon  

Sunday,  June  30  to  Saturday,  July  6   Camp  Starts  at  3:30  p.m.  on  Sunday,  &  ends  at  9:00  a.m.  on  Saturday   Check out any event WHERE:  Camp  Kitaki,  LOUISVILLE   changes, after publication What's Where??? COST:  $470    Space  is  Limited!   Register  TODAY!!   additions & MORE  

our blog: Project  at EXPLORE   has  the  unique  purpose  of  providing  learning  disabled   or  attention  dTidbits eficit  youth   ages  opages f  8  &  17,   Important forbetween   Families 2w-ith   6 a  positive  summer   camp   e xperience.    It  is  specifically  designed  for  children  who  have  been  identified  with   a  learning  disability,   State-Wide page 6attention  deficit  disorder,  Autism,   www.ohanakidsnews. Aspergerâ&#x20AC;&#x2122;s,   or  like  disorders,  without  primary  emotional  or  behavioral  pBellevue, roblems.    Campers   will   be  involved   in  small  groups   Cedar Bluff & Columbus page o7f  10  children  who  are   blogspot.com led  by  2  staff.    Campers  experience  nature  &  participate  in  camp  activities  that  Fremont emphasize  & the  Grand enhancement   of  spage elf-­â&#x20AC;?esteem.    Camper  relationships   Island 8 help  develop  the  realization  of  the  unique  capabilities   n  eHastings ach  individual.   Gretna i& page 9 For more information,   Lincoln pages 10 - 15 or advertising rates FOR   M ORE   I NFORMATION:       pages 15 - 16 Norfolk please contact us at: Call  Dâ&#x20AC;&#x2122;Arcy  Goodrich  at  402-­â&#x20AC;?334-­â&#x20AC;?1677  oNorth r  proj-­â&#x20AC;?expl@cox.net   Platte page 16   402-227-5304 Omaha pages 16 - 24 ohanakidsnews@gmail.com Resources for Families pages x FACEBOOK too!! Classifieds page 29

Thanks for Reading OKN!!

Camp Abilities Nebraska July 21 â&#x20AC;&#x201C; 26, 2013

Help Camp us Expand Reach, us along to families youfor know use this information!!! Abilitiesour Nebraska is aPass week-long residential sports camp youthwho you could are blind, visually impaired or deafblind. Youth will explore sports & recreational activities in a safe environment with instructors who have experience in adaptive techniques. COST: $300; Scholarships are available & NE residency NOT required! REGISTRATION: Begins NOW & Ends May 1; LIMITED to 20 CAMPERS!!! MORE INFORMATION or TO MAKE A DONATION: Call Kristal Platt, Camp Director at 402-498-6365 or Kristal.platt@boystown.org or visit www.BoysTownHospital.org/HearingServices/EducationalOutreach


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

2013 SUMMER CAMPS

May is Better Speech & Hearing Month May 9 is National School Nurse Day  

May 13Bisuddy   Mother's True   Farms  Day Home  of  Luv  A  Lamb  

2013 2013  Summer  Farm  Camps   Special Needs Mom's &  Clinic  Schedule   SUMMER   may think us “special moms” have it pretty rough. & You WHERE:     1 3714   South   84th  Sget treet,   Papillion,   NE   We have no choice. We just manage life when things really tough. We've made it through the days we thought we'd o never make it through. Just   s outh   f   H wy   3 70   DAY CAMP We've even impressed our own selves with all that we can do!  

 

COST:    All  Farm  Camps  &  Clinics  Cost  $10  Per  Person   We've gained patience beyond measure, love we never dreamed of giving. Ages  4  &  Up  worth living! We worry about the future but know this “special” life's  

We have bad days and hurt sometimes, but we hold our heads up high. Farm  Cmore amp  often Day    than -­‐  Call  we For   Date   We feel joy and pride and thankfulness cry.

 

Call  to  Book  a  Farm  Tour,  We’ll  Find  a  Date  for  Your  Group  

•  Tour  just the  farm,   wash  and  walk   pet   animals,   learn   For our kids, we aren't SUPERMOMS, No,sheep,   we do sothe   much more :) a bout  farm  life.   Registration information available Weat: are cheerleaders, nurses, and therapists who don't walk out the door.   We handle rude remarks unkindCstares, with and www.hiskidscamp.org Sheep  Sand hearing   amp  –  C all  tdignity o  B ook   a  Sgrace. hearing  Camp,  We   Even though the pain they bring cannot be erased.

Start  as  Early  as  APRIL   •  Learn  routes about  ware ool,  ahelp   hear   a  sto heep,   make  an  art  project  out  of  wool.   Therapies and treatment lot sfor us digest, For More Information or Questions:   We don't know what the future holds, but give our kids our best. Josh Rausch at josh@campluther.org Cowboy   Dave   Camp   –  Monday   June  17  (1  -­‐  3  PM)  &   None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever Wednesday   July  17  (it6  takes! -­‐  8  PM)   •  Learn  life  lessons  with  Cowboy  Dave,  an  educational  presenter  -­‐  

 

Summer Camps

We are selfless, not by choice you see. Our kids just have many needs. www.cowboydave.org     We're not out to change the world, but want to plant some seeds. •   T eaching   t raditional   v alues  to  the  youth  of  today,  and  he  does  it  the   We want our kids accepted. That really is our aim. way!   do the same. When we look at them, we just see kids. Wecowboy   hope   you'll -- April Vernon

COST: $190 per camper   His Kids Camp A (Ages 35 & up) Check out any event changes, after publication May 29 – June 1 additions & MORE His Kids Camp B (Ages 13 & up) June 5 – 8 at our blog: His Kids Camp C (Ages 13 & up) June 12 – 15 www.ohanakidsnews. His Kids Camp D (Ages 13 & up) June 19 - 22 blogspot.com

For more information, or advertising rates please contact us at: SaturDAY

Camp

For 402-227-5304

ages 5 to 13 ohanakidsnews@gmail.com COST: $35 per camper FACEBOOK too!! July 20, 2013 Thanks for Reading 9:00 OKN!! am to 4:00 pm

Arts  and  Craft  Day  –  Wednesday  June  19  (1  -­‐  3  PM)   •  Look  around  the  farm  to  find  natural  bits  and  pieces  and  make  art!    

Vet  Clinic  Camp  –  Friday  June  14  (3  –  5  PM)  &  Wednesday   July  24  (2  –  4  PM)  

What's Where???

•  June  14  -­‐  Dr.  Hebel  of  Five  Elements  Alternative  Veterinary  Clinic  will   present  about  veterinary   education,   &  basic   et  care  via  holistic   practices.   Important Tidbits forpFamilies pagesand   2 -alternative   6 •  July  24  State-Wide –  Dr.  Olsen  of  Plattsmouth   page 6 Animal  Clinic  will  present  how  to   a  veterinary   career,   Bellevue, Cedar Bluffpursue   & Columbus page 7 &  share   a  documentary   about   his  time   in  South   Fremont & Grand Island page 8 Africa  fulfilling  a  veterinary   Gretna & Hastings internship.   page 9   Lincoln pages 10 - 15 Poultry   &   W aterfowl   C linic   –  Tuesday  June  18  (6  –  8  PM)   Norfolk pages 15 - 16 •  Presentation  by  Brett  Kriefels,  a  professional  in  the  industry,  about  care,   North Platte page 16 feeding,  &  showing.   Omaha pages 16 - 24   Resources for Families pages W x orkshop   Sheep   Enrichment   Classifieds page 29

Thursday    July  11  (10  AM  –  12  PM)  

•  Even  the  sheep  need  to  have  fun.  Help  us  make  toys  for  the  sheep!    

Ice  Cream  Making  –  Friday  July  19  (10  AM  -­‐  12  PM)   •  Learn  how  to  make  ice  cream  from  sheep  milk  and  goat  milk.  

Help us Expand our Reach, Pass us along to families you know who could use this information!!!  

For all programs, each camper is paired with a trained “Buddy” to be with them during their ENTIRE camp experience. “Buddy” training is specifically designed for their camper to meet & challenge each camper’s abilities, creating an “I can do it!” attitude!

PLEASE  CONTACT  US  FOR  QUESTIONS,   RESERVATIONS  &  REGISTRATION  FORMS:    

donna@luvalamb.com    (402)578-­‐2388     www.luvalamb.com     Registration  is  Required,  with  Full  payment.     We  reserve  the  Right  to  Cancel  &  Payment  Will  Be  Refunded  


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

2013 SUMMER CAMPS

 

The Spinning Jays Bike Camp

May is Better Speech & Hearing Month May 9 is National Day LincolnSchool Park Nurse and Recreation May 2013 13 is Mother's ADAPTIVEDay RECREATION SUMMER CAMPS For More Information: Kerry Zingg at 402-441-7877 or kzingg@lincoln.ne.gov Monica Manning at 402-441-7948 or dwilliams@lincoln.ne.gov

Special Needs Mom's

All Classes led by licensed Physical Therapists the applicant attended any You may think us “specialIfmoms” have it hasn’t pretty previously rough.

Recreation Center Programs, please bring your We have no choice. Easterday We just manage life when things get really tough. registration into it through. We've made it through the days we competed thought we'd never make Easterday Center Adams, LINCOLN. We've even impressed our ownRecreational selves with all that at we6130 can do! Please call one of the above ladies to arrange a time to do that.

WHERE: Creighton Pediatric Therapy We've gained patience beyond measure, love we   never dreamed of giving. We worry about the future but know this “special” life's worth living! SUMFUN DAY CAMP 16910 Frances Street, Suite 102, We have bad days and hurt sometimes, butShelter we hold heads up LINCOLN high. LOCATION: Antelope andour Auld Pavilion, OMAHA We feel joy and pride and thankfulness more often than TIME: 9:00 am to 2:30we pmcry. WHEN: June 4 to 14, EVERY Tuesday, Thursday & TIME: 10:00 am to 11:30 am

Offered for school-age youth with special needs ages 5 – 21. For our kids, we Activities aren't just SUPERMOMS, we do so much offer opportunities No, for developing skills &more social :) interaction in a We are cheerleaders,fun nurses, and therapists don't walk out the door. environment. Campers who are expected to participate in group We handle rude activities, remarks & and unkind stares, with dignity and grace. interact with their peers. We incorporate activities that focus Even though the pain they bring cannot be erased. on healthy lifestyles & fitness (active games, sports & swimming) & nature exploration (field trips, crafts, & activities in parks). Friday Therapies and treatment are atolot for us to according digest, to age, after registration Campers routes are assigned site groups We don't know what the future holds, but give our kids our best. is completed. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes! CREATIVITY CAMPS

PROGRAM FEE: $90 Space is Limited

Designed for teens & young adults with special needs ages 13 & up. We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but to plant some seeds. Art want Extravaganza Camp We want our kids accepted. That really Recreation is our aim.Center, 6130 Adams, LINCOLN LOCATION: Easterday When we look at them, we just see kids. We1:15 hope do the same. TIME: – you'll 4:15 pm

-- April Vernon

Check event Each out childany must complete a bike riding screen changes, after publication prior to starting. additions & MORE at our blog:

Private sessions available for children of all ages,

www.ohanakidsnews. Call for availability & costs. blogspot.com

For more information, For More or advertising rates Information please contact us at:

or to Register:

402-227-5304

ohanakidsnews@gmail.com FACEBOOK too!!

402-932-3355 pediatrictherapy@creighton.edu Thanks for Reading OKN!!

Campers will receive instruction on painting, drawing, ceramics & pottery. Campers will each have time to present their art work during a Student Art Show on Friday, July 26 from 3:30 - 4:00 pm at Easterday.

Drama Camp

LOCATION: Auld Pavilion, LINCOLN TIME: 9:30 am – 3:00 pm Campers will modify a children’s play, work on sets, props, & costumes. Campers will have a performance on August 2 from 2:30 – 3:00 pm at Important Tidbits for Families pages 2 - 6 Auld Pavilion.

What's Where???

State-Wide page 6 Bellevue, Cedar & have Columbus 7 of 1:5 Our Bluff Camps a staffpage ratio Fremont & Grand page 8 If your child has a 1:1Island ratio at school, you are responsible Gretna & Hastings pagethe 9 camp with your child J . to provide a person to attend Lincoln pages 15 Staff who work at 10 our- camps are hired for their Norfolk pages & 15interest - 16 experience, training in working with youth North Platte page with disabilities. Many are16 college students working on Omaha pages 16 - 24 education & special education degrees. Volunteers Resources for Families pages x We will work with provide additional assistance. page personalClassifieds staff or aides to29 adapt equipment, encourage campers, & provide any other assistance, which may be needed. Once maximum enrollment is reached, applicants will be placed on a waiting list.

Help us Expand our Reach, Pass us along to families you know who could use this information!!! O’Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those with any information changes that have occurred after publishing.

 

Resources  for  Families     Are  now  listed  ONLY  on  the  website  

www.ohanakidsnews.com   because  of  their  sheer  size  J  


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

Page  13  

2013 SUMMER CAMPS May is Better Speech & Hearing Month May 9 is National School Nurse Day

May 13 is Mother's Day  

 

Special Needs HETRA     Mom's 2013  Summer  Schedule  

You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!

 

 

gained patience beyond measure, love we never dreamed of giving. OMAHA  &  VWe've ALLEY   Bthe arns   ummer   Camps   We worry about futureSbut know this “special” life's worth living!

th  St,  O MAHA   have bad days4and sometimes, but we hold our heads up high. WHERE:  We  OMAHA    BARN,   906  hurt S.  180 We feel joy and pride and thankfulness more often than we cry. VALLEY  BARN,  29430  Ida  Street,  VALLEY   COST:    $For 50  our per  kids, day  owe r  $aren't 200  for   the   entire  week  No, we do so much more :) just SUPERMOMS, We cheerleaders, therapists who don't walk out the door. TIME:   Aare ll  Camps   are  9:00  nurses, am  to  1and 1:00   am   We handle rude remarks and unkind stares, with dignity and grace. CONTACT:  Edye  at  edye@hetra.org   or  A manda   at  pain amanda@hetra.org   r  terased. he  office  at  402-­‐359-­‐8830   Even though the they bring cannot o be   and treatment arera lot for us to digest, with  t oileting,   Students  must  be  at  least  5  years  oTherapies f  age  to  attend.    If  your  routes student   equires   assistance   We don't know what the future holds, but give our kids our best. ambulation,  or  may  experience  behavioral   ssues,   a  caregiver   will   need   o  be  pbreaks. resent  at  all  times.   None of us ican be replaced, so we don't gettmany It wears us out, but   to help our kids, we'll do whatever it takes!

 

           

June  10  –  14   June  17  –  24   June  24  –  28  

Check out any event changes, after publication additions & MORE at our blog:

We are selfless, not by choice you see. Our kids just have many needs. Omaha   Summer   Camp   We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. Advanced   ummer   amp  you'll do the same. When we look atValley   them, we just see Skids. We C hope -- April Vernon

Valley  Summer  Camp    

Jimando  Farms  Summer   amps   What'sCWhere???

WHERE:  Jimando  Farms,  County  Road  8,  Yutan,  NE   Important forCFamilies pages 2 - 6 COST:  $30  for  Driving  Lessons   &  $ 50  Tidbits for  Horse   amps   State-Wide www.ohanakidsnews. CONTACT:  Rachel  at  Rachel@hetra.org  today   to  reserve  page your  6spot!   blogspot.com

For more information, June   6       or advertising June  15    rates please contact us at:

July  13    

402-227-5304 July  16    

ohanakidsnews@gmail.com July  20     FACEBOOK too!!

August  6  –  8  

Bellevue, Cedar Bluff & Columbus page 7 Fremont & Grand Island page 8 Gretna & Hastings pageC9amp   5:00  –      7:00  pm     Horse   Lincoln pages 10 - 15 Lessons   2:30  –      4:30  pm   Driving   Norfolk pages 15 - 16 2:00  –      4:00  pm   Horse  Camp   North Platte page 16 9:00  –  11:00  am     Horse   Omaha pages 16 - 24 Camp   2:30  –      4:30  pm   Resources for Families Driving   Lessons   pages x Classifieds page 9:00  –  11:00  am   3  D29 ay  Camp  

 

September   7   Thanks for Reading OKN!!

2:00  -­‐      4:00  pm   Horse  Camp   September  21   2:30  -­‐      4:30  pm   Driving  Lessons   October  5   2:00  -­‐      4:00  pm   Horse  Camp   9   Reach, Pass us  along to families you know who could HETRA’s   nnual   Fall  Festival   Help usOctober   Expand1our use A this information!!!

   

  ALL  THIS  INFORMATION  CAN  BE  FOUND  ON  HETRA’S  WEBSITE  AT:   www.HETRA.org      


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

2013 SUMMER CAMPS

May is Better Speech & Hearing Month May 9 is National School Nurse Day

 

Camp  Quality   USA    

   

May 13 is Mother's Day

The  Barn  

Special Needs Mom's 2013  

Camp  Quality  USA,  Inc.,   Summer   You may think us “special moms” have it pretty rough. provides  year-­‐round   We have no choice. We just manage life when things get really tough. support  programs  We've for   made it through the days we thought we'd never make itCamps   through. We've even impressed our own selves with all that we can do! children  with  cancer   and     We've gained patience beyond measure, love we never dreamed of giving. their  families.    Programs  include  our  signature     We worry about the future but know this “special” life's worth living! week  long  camp  and  other  year-­‐round   We have bad days and hurt sometimes, but we hold our heads up high. Camps  are  for  A LL   AGES   We  Efeel programs  such  as  reunions  and  ski  camps.   ach  joy and pride and thankfulness more often than we cry. &  Run  9:00  am  to  3:00  pm  Daily   camp  is  volunteer  run  and  community  funded.   For our kids, we aren't just SUPERMOMS, No, we do so much more :)  

 

We are cheerleaders, nurses, and therapists who don't walk out the door.

Camp  Quality  gives  families  a  much  needed   est,   rude remarks and unkind stares, We r handle with dignity June   17   –  21  and grace. Even though the pain they bring cannot be erased. knowing  that  the  highest  quality  program   has   June  24  –  28   been  selected  for  their  child  –  a  companion   will   and treatment routes are a lot for us to digest, Therapies  July  8  –  12   be  assigned  to  ensure  the  child’s  safety  aWe nd  don't the   know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many July   15  breaks. –  19   finest  medical  supervisors  are  provided  It at  wears each   us out, but to help our kids, we'll do whatever it takes! July  22  –  26   camp  to  administer  medications  and  on-­‐site   We are selfless, not by choice you see. Our have many July   2kids 9  –  just August   2   needs. care.   We're not out to change the world, but want to plant some seeds.  

August  5  -­‐  9  

We want our kids accepted. That really is our aim.

Campers  at  Camp  Quality  range  from  4  yWhen ears  owe f   look at them, we just see kids. We hope you'll do the same.   age  through  17  and  vary  in  stages  of  t-heir   April Vernon Camp  size   is  from  5  to  10  campers.     We  h ave  found  that   treatment  or  remission.    They  are  children  who   this  number  allows  for  more  one  on  one  interaction   smile,  laugh,  play  and  have  dreams  for  a  bright   and  less  waiting  by  the  campers.    Campers  will   Check out any event future.   experience   ariety  of  sensory  activities,  outdoor     changes, after publication What'sa  vWhere??? The   Companions   are  the  lifeblood  of  the  camp.     additions & MORE activities,  and  many  typical  camp  events  to  enhance   at our They  are   the  ablog: round-­‐the-­‐clock  caretaker  for  the   sensory   integration   opportunities.   Important Tidbits for Families pages 2 -  6Summer   camp   State-Wide page 6 campers   and  ensure  the  m ost  enjoyable,  safe,   provides  an  opportunity  for  the  kids  to  interact  with   www.ohanakidsnews. Bellevue, Cedar Bluff & Columbus page 7 blogspot.com relaxing,   and  restoring  experience  possible  for   peers,  and  build  on  the  skills  they  have  been  learning   Fremont & Grand Island page 8 each   child.    Each  companion,  at  least  18  years  of   all  year   through   individual   therapy,   school,  and  other   Gretna & Hastings page 9 For more information, Lincoln pages 10 15 age,   i s   i nterviewed,   b ackground   c hecked,   a nd   special   s ervices.     S ocialization   w ith   peers  within  a   or advertising rates Norfolk pages 15 16 please contact us at: trained  BEFORE  camp!!   community  setting  is  important  for  kids  with  sensory   North Platte page 16   integrative   disorders   402-227-5304 Omaha pages 16a-nd   24The  Barn  summer  camps   Camp   Q uality   p rovides   a ll   t he   y ear-­‐round   ohanakidsnews@gmail.com provide   t hat   p rivilege   in  a  safe   Resources for Families pages x a nd  nurturing   programs   at  NO   COST  to  families.    The  camp  is   FACEBOOK too!! Classifieds page 29 environment.    Campers   develop  a  close  relationship   run  100%  on  donations,  supplies,   Thanks for Reading OKN!! with  camp  counselors  and  therapists  as  well  as  the   &  volunteer  hours.   other  campers.    Your  child  will  need  to  bring  a  swim     suit,  a  change  of  clothing,  sack  lunch  &  drink.    The   Help us y Expand Reach, Pass  O usr  along know who could use this information!!! Would   ou  like  our to  V olunteer?   know  to families you campers  will  be  interacting  in  many  activities   more  about  Camp  Quality  or  even   throughout  the  week.   Register  for  an  upcoming  Camp?      

Caleb  Rogers   712-­‐310-­‐8177   caleb.rogers@campqualityusa.org    

For  More  Information  or  to  Register   402-­‐301-­‐6829   info@myplaybarn.com    


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

2013 SUMMER CAMPS

May is Better Speech & Hearing Month May 9 is National School Nurse Day

 

May 13 is Mother's Day 2013 Camp  YouCan   SUMMER   Mom's WORKSHOP Special Needs Saturday   &  Sunday  

September  7  &  8   9:00  am  Saturday  to  3:00  pm  Sunday   For More   Meaghan YMCA  Camp  Kitaki   MWalls@crccomaha.org We've gained patience beyond measure, love we never dreamed of giving. Located   between  Omaha  &  Lincoln   We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. COST for Each Camp: We feel joy and pride and thankfulness more often   than we cry. COST:  $80   Non CRCC Summer Camp Enrolled $100 CRCC Summer Camp Enrolled For $50our kids, we aren't just SUPERMOMS, No, we do   so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. For   children   ages   7  –grace.  21     We handle rude remarks and unkind stares, with dignity and   Even though the pain they bring cannot be erased. With  epilepsy   You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. Information or Questions: We've made it through the days we thought we'd never make it through. We've Walls at 402-496-1000 oreven impressed our own selves with all that we can do!

 

Therapies and treatment routes are a lot for us to digest,   We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!

This  is  for  kids  to  have  a  day  full  of  fun  and   adventure!       For Ages 10 - 14 We are selfless, not by choice you see. Our kids just   have many needs. Mondays & Wednesdays, June 17 – July 1 We're not out to change the world, but want to plant some seeds. lso  a  istime   to  meet  and  develop   TIME: 1:30 to 2:30 pm We want our kids accepted. It’s   Thatareally our aim. When we look at them, we just see kids. We hope you'll do the same. relationships   w ith   o ther   children   who  have   REGISTRATION DUE JUNE 10 th Location: 2010 North 88 Street,-- OMAHA epilepsy.     April Vernon   Your child will develop their function speech skills There  is  so  much  to  do  there:   Check out any event while engaging with peers in a relaxed group Boating,   Fishing,  Archery,  Games,  Arts  &   changes, after publication What's Where??? setting with& aMORE curriculum specially designed by 2 additions Crafts,  Zip  Line  &  Ropes  Course!!   at our blog: certified Speech & Language Therapists. Important Tidbits for Families pages 2-6   The workshop will end with a Bowling outing to State-Wide page 6 www.ohanakidsnews.   page 7 Bellevue, Cedar Bluff & Columbus Maplewood Lanes from 1:30 – 2:45 on July 1. blogspot.com FUN WITH FRIENDS

For more information, or advertising rates please contact us at:

SUMMER 402-227-5304

 

ART ADVENTURE

ohanakidsnews@gmail.com For Ages FACEBOOK too!!

6 & Up Wednesdays, July 10 – 31 Thanks for Reading OKN!! TIME: 1:00 to 2:30 pm REGISTRATION DUE JULY 1 Location: 13833 Industrial Road, OMAHA

To  register  or  for  further   information  go  to:   www.epilepsylife.org    

Fremont & Grand Island page 8 Gretna & Hastings page 9 Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16   Omaha pages 16 - 24 or   x Resources for Families pages   Classifieds page 29

Contact  Camp  Directors   Meg  &  Kael  Busing   402-­‐770-­‐3936   Help us Expand our Reach, Pass us along to families you know who could use this information!!! 402-­‐210-­‐3121   Your child will explore arts & crafts through the youcan.camp@gmail.com       senses by engaging in a multi media art experience lead by two Occupational Therapists. Our instructors are able to adapt the environment and activities to your child’s needs to ensure an enjoyable experience.


We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased. Therapies and treatment routes are a lot for us to digest,Edition #24 May 2012 We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes! We are selfless, not by choice you see. Our kids just have many needs. Page 16 We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

2013 Summer Camp

May is Better Speech & Hearing Month

-- April Vernon May 9 is National School Nurse Day

May 13 isSPECIAL   Mother's Day CAMP   SUMMER  F RIENDS   NEEDS  

Sponsored  by  The  Arc  of  Platte  County     WHEN:  June  24  –  27   TIME:  9:00  am  to  Noon   WHERE:  Emerson  Elementary,  2410  20th  St,  COLUMBUS   You may think us “special moms” have itFamilies pretty rough. Important for pages 2-6 COST:  $30   for  Arc  MTidbits embers,   $45   for  Non-­‐Arc   Members   We have no choice. We just manage life when things get really tough. State-Wide page 6   We've made it through the days we thought we'd never make it through. We've even impressed own with all that we can Bellevue, Cedar Bluff & Columbus page 7 5  –  21  who  have   Summer   Friends   Special   N eeds  our Camp   is  aselves  summer   camp   for  children   ado! ges   developmental  disabilities.    There   will  be  &mGrand any  fun  Island indoor  apage nd  outdoor   activities  planned   Fremont 8 We've gained patience beyond measure, love we never dreamed of giving. for  camp!   olunteers   will   be  future paired   up  w ith   the   campers   to  plife's rovide   one-­‐on-­‐one   Gretna & Hastings page 9 worth We  V worry about the but know this “special” living! support!!     pages We have bad days and hurt Lincoln sometimes, but 10 we -hold 15 our heads up high. We feel joyContact   and pride and thankfulness often than weocry. Kathy   oNorfolk r  Tammy   amore t  402-­‐563-­‐1699   r   pages 15 - 16 programdirector@arcofplattecounty.com     For our kids, we aren't just SUPERMOMS, we16 do so much more :) North PlatteNo, page We are cheerleaders, nurses, and therapists who don't walk out the door. Omaha pages 16 24 We handle rude remarks and unkind stares, with dignity and grace. Resources for Families pages x Even though the pain they bring cannot be erased. Classifieds page 29

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Help us Expand our Reach,

Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes! Telehealth for Pediatric Epilepsy Clinic We are selfless,308-865-7742 not by choice see. Our kids just have many needs. MORE INFORMATION: foryou information & appointments not to change the know world, but want plant some seeds. Telehealth offers ayou chance to participate in antoexciting growing part of this nation’s PassDECRIPTION: usWe're along toout families who could useand this information!!! Wecare. want kids accepted. is our aim. health It our reduces travel hours andThat awayreally time from work; and brings individuals together in order Whenhealthcare we look services at them, just seeopportunities kids. We that hope you'll do thebesame. to provide andwe educational might otherwise inaccessible. Through technology, individuals are able to see and talk to one another from sites across Nebraska. -- April Currently, all Vernon pediatric neurologists and epileptologists in Nebraska are located in the urban areas at the far eastern edge of the state. Through telemedicine connections, patients can go to their nearest telehealth site and be linked directly with a board certified pediatric neurologist in Omaha. Travel time is greatly reduced and access is easier for both the patients and the healthcare provider.

What's Where???

Counselors Needed for Camp Abilities Nebraska July 21 - 26 MORE INFORMATION: Contact Camp Director Kristal Platt at 402-498-6365, Kristal.platt@boystown.org or visit Important Tidbits for Families pages 2 - 6 http://www.boystownhospital.org/hearingservices/EducationalOutreach/Pages/CampState-Wide page 6 Abilities-Nebraska.aspx. Bellevue, Bluff & Columbus pageages 7 9 – 19 who are blind, DECRIPTION: Camp Abilities NebraskaCedar is a residential sports camp for youth Grand Island page visually impaired or deaf-blind.Fremont Applicants&with experience in the areas8of Adaptive Physical Education Gretna & Hastings page and Special Education, or other relevant disciplines are needed; staff9orientation is July 20-21. Positions may fill quickly, so apply as soon as possible, preferably 1. A $150 stipend is offered for the Lincoln pages by 10July - 15 week of camp. Camp Abilities Nebraska is co-sponsored Town National Research Hospital and Norfolk pagesby 15Boys - 16 Outlook Nebraska, Inc. North Platte page 16

Omaha 16 -with 24 ASD NEEDED for Online Parents of Children Between the Ages of 5-12 pages Diagnosed Resources for Families pages x Study at Queen’s University page 29 MORE INFORMATION: Laurel DAult atClassifieds laurel.dault@queensu.ca or (613)533-2894 TO PARTICIPATE: Go to www.tinyurl.com/QueensASDstudy and enter the password asdstudy DECRIPTION: This study will require you to complete questionnaires about your child’s behaviors and emotional responses. It takes about 30 – 90 minutes to complete depending on depth of your answers. The study is being conducted by Dr. Elizabeth Kelley’s ASD lab at Queen’s University. The study is completely and non-invasive. Pass us alongconfidential to families you know who could use this information!!!

Handbag Needs Questionnaire: Inclusive Design for Wheelchair Users MORE INFORMATION: Contact Sandra Starkey at slsyb9@mail.missouri.edu you can call also at (573)882-9585 you can fill the survey out online at https://docs.google.com/forms/d/1r7nBRHjAswREf6k0TFLj8fDcHSCBxpMRrFE4fwZBQU/viewform?sid=67e7bc8740e77d8e&token=3zkRbj0BAAA.NE5X68wLliCPxpCb_ bDT0w.Z9t9G78Y_5kblUTjRogAQQ (note: email ohanakidsnews@gmail.com for link) DECRIPTION: Sandra is a P.h.D. student at the University of Missouri, Columbia. She is looking for families to participate by filling out a survey about the type of bag they use with their wheelchairs.


Edition #24 May 2012

 

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

Page 17

May is Better Speech & Hearing Month State-Wide UPCOMING Events May 9 is National School Nurse Day

May 13 is Mother's Day  

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July  22  â&#x20AC;&#x201C;  26,  2013   You may think us â&#x20AC;&#x153;special momsâ&#x20AC;? have it pretty rough. We have no U choice. We just life when get really WHERE:   niversity   omanage f  Nebraska   â&#x20AC;&#x201C;  Lthings incoln,   East  tough. Campus   We've made it through the days we thought we'd never make it through. TIME:   8 :30   a m   â&#x20AC;&#x201C;   4 :00   p m   D aily   We've even impressed our own selves with all that we can do! Focus   is  gained on  children   with   significant   disabilities   including   those   with  or   We've patience beyond measure, love we never dreamed of giving. We worry about the future but know this d â&#x20AC;&#x153;specialâ&#x20AC;? life's worth living! without   sensory   isabilities   We have bad days and hurt sometimes, but we hold our heads up high.   more often than we cry. We feel joy and pride and thankfulness July  22  -­â&#x20AC;?24,  is  a  3  day  session   For our kids,Cwe SUPERMOMS, No,Hwe do   Lso much more :) â&#x20AC;&#x153;All   Children   an  aren't Read  just â&#x20AC;&#x201C;  Let   U s  Show  Y ou   ow!   iteracy   Instruction   for   We are cheerleaders, nurses, and therapists who don't walk out the door. w ith   Multiple   isabilities,   Deaf-­â&#x20AC;?Blindnessâ&#x20AC;?   WeLearners   handle rude remarks and D unkind stares,Including   with dignity and grace.

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Even though the pain they bring cannot be erased.

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July  25   Therapies and treatment routes are a lot for us toLanguage,   digest, â&#x20AC;&#x153;Sensory   Processing:   Behavior,   Memory,   &  Learning   We don't know what the future holds, but give our kids our best. Introduction   t o   t he   R EADY   A PPROACHâ&#x20AC;?   None of us can be replaced, so we don't get many breaks.  

It wears us out, but to help our kids, we'll do whatever it takes!

July  26   Create   ome  Tyou ools!â&#x20AC;?    â&#x20AC;&#x153;Updates   on   DB  many Projectâ&#x20AC;?   We are â&#x20AC;&#x153;Letâ&#x20AC;&#x2122;s   selfless, not bySchoice see.&Our kids just have needs. We're not out to change the world, but   want to plant some seeds. We want our kids accepted. That really is our aim. For   More   Information:   When we look at them, we just see kids. We hope you'll do the same.

Advertise Here!! Check Looking out any event for changes, after publication additions & MORE Advertisers at our blog: in the www.ohanakidsnews. Central/Western blogspot.com For more information, Parts of NE or advertising rates please contact us at: 402-227-5304 Only $25 a month

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Teresa  Coonts,  P roject  Director  Nebraska  Deaf-­â&#x20AC;?Blind  Project     -- April Vernon  at  4 02-­â&#x20AC;?595-­â&#x20AC;?1810  or  Teresa.coonts@nebraska.gov     Norma  Tinstman,  Adm.  Assistant  at  402-­â&#x20AC;?595-­â&#x20AC;?2177  or   norma.tinstman@nebraska.gov      

What's Where???

Co-­â&#x20AC;?Sponsored  by:   Important Tidbits for Families 2-6 Nebraska   Project   for  Children   with  Dpages eaf-­â&#x20AC;?Blindness   State-Wide page 6Special  Education   Nebraska  Department   of  Education,   Bellevue, Cedar Bluff & Columbus page 7 Educational  Service  Unit  #3   Fremont & Grand Island page 8 University   Nebraska  page -­â&#x20AC;?  Lincoln   Gretna o &f  Hastings 9 Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Omaha pages 16 - 24 Resources for Families pages x Classifieds page 29

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Page 5

AUTISM! It Is Treatable ________________________ Proven Effectiveness at the Lovaas Institute Midwest The Lovaas Institute Midwest is offering intensive early intervention services with behavior therapy for children with autism. The Lovaas Institute has been the leader in the field of intensive early intervention since the early 1970’s, and is world renowned for its groundbreaking outcome study in 1987. Since that time, Dr. Lovaas and his associates have helped start numerous behavior therapy programs around the world, under the auspices of the NIMH-sponsored replication project. As a result, we are excited by the recent outcomes that fellow replication sites have found as they completed studies in Wisconsin and California. In turn, the Lovaas Institute Midwest is known for its innovations that include the language matrix, dynamic programming, clinical social skill programming, and parent-training. Our aim is to further advance the effectiveness of early intervention through the best possible treatment for your child and research for all children.

Edition #24 May 2012

*

IMPORTANT TIDBITS  FOR FAMILIES

ALLPlay Baseball for Kids with Special Needs

We are looking for children with disabilities to play in our incredible ALLPLAY Miracle League Baseball League. Last year we have over 150 kids play baseball and we are looking for MORE!! See our ad to the left for more information, and check us out at www.ALLPLAY.org You can also call Bruce at 402-305-5020.

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!! Parent 2 Parent Mentor's Wanted – Please Read

! OUTPATIENT! !PEDIATRIC!THERAPIES!! PT,!OT,!SPEECH!&!FEEDING! O. Ivar Lovaas, Ph.D. Specialized Services Designed founded Lovaas Institute for The Lovaas Institute Midwest 2925 Dean The Special Needs of Parkway, YourSuite 300, Minneapolis, MN 55416 mwinfo@lovaas.com – 612.925.8365 Child www.lovaas.com

Free Developmental Contact us to receive an extensive review paper of the Screenings research in Applied Behavior Analysis for Autism.

2!Locations!in!Omaha! 2010!N.!88th!Street!! and! 13336!Industrial!Road! additions & MORE

Together,www.ohanakidsnews. we can do blogspot.com anything. For more information, or advertising rates please contact us at:

 

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O’Hana Kids’ News is not responsible for Check out any event any events;This   including cancellations, or baseball   changes, afterchanges publication after print. It is your is   each contact responsibility toleague   check with additions & MORE to verify the information fthat exclusively   or   we have provided to you. at our blog: children  with  special  needs.  These   needs   can  be  mental  and/or  physical   www.ohanakidsnews. disabilities.     blogspot.com  

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Registration   for  our  2013   season     Thanks for Reading OKN!! begins  January  1  and  will  end  at  the   end  of  February.      

Special Needs Mom's

Region Teams and how you can be part of your local team. The workshop will allow participants to: Understand the history of Nebraska’s Early Development Network (Nebraska’s Early Intervention System) and how it supports

For!your!appointment!today! at our blog:

 

May 13 is Mother's Day

ones we have. Therefore from here on our until they are gone, first come first served they are

Check out any event

Our  3  different  Make "little  league"   sure to let For more information, divisions   begin   at  age  5  &  work  up  to   or advertising 21  o r  high  school  grates raduation  -­‐   please contact us fat: whichever   comes   irst.    

May is Better Speech & Hearing Month May 9 is National School Nurse Day

Early Development Network (EDN) and but how they can this become involved. Didlife's you know that Nebraska We worry about the future know “special” worth living! has local O'Hana Kids News is statewide giving away POGO cards!! MAY THEY FREE!!! Planning Region (PRTs) to coordinate early services at the ARE community level to We have badTeams days and hurt sometimes, butintervention we hold our heads up high. OKN has leftover POGO cards from our fundraiser. Lincoln expires i6/30/2012 and Omaha expires better serve infants, toddlers and their families? This training will help you learn about Nebraska’s Planning We feel joyWeand pride and thankfulness more than 8/31/2012. would love to start selling the newest POGOoften cards but first we wantcry. to get rid of the

CALL!402.496.1000! changes, after publication

 

State-wide JUNE Events

Nationally over 80% of parents of children with disabilities who were mentored by an experienced parent reported it to bet he most helpful source of information on coping with the challenges of raising a child with special needs. Mentored parents report that the support of a fellow parent was so unique and personalized that it could not have come from any other source! As the mother or father of a child with developmental disabilities, you have unique parenting Juneexperiences. 21 & 22 Through time, training, and trial and error, you have gained valuable skills. Use your Helping Build Supports Your by Child and Family knowledge to helpCommunity another parent on the journey becoming a mentor.Need ParentThrough to Parent the (P2P)EDN programs parentsTeams of children, adolescents and adults with developmental disabilities with Planninglink Region experienced and informed veteran parents whothunderstand the day-to-day experiences of raising a LOCATION: #3, 6949 SouthOmaha 110 Street), LAOllie VISTA child with specialESU needs. Parent to Parent is offered by Webb Center, Inc., a local TIME: 5:00 – 8:00 & parent 9:00 am to 1:00 pmare Saturday nonprofit agency. Wepm areFriday seeking mentors who coping well with their child’s situation and view himNo or cost her as valuable and & developing person. Consider becoming a mentor you’d like to also COST: toa participants Travel reimbursement along with hotel mayifbe available help parents cope with the joys and challenges of having a child (of any age) with special needs. The MORE INFO: Sarah Swanson at 1-800-656-3937 ext 9-4573 or time commitment involves contacting another parent (in person, -mail or telephone) once every two Mark Smith at 1-800-656-3937 ext 9-5744 weeks within the fist 8 weeks and as mutually agreed thereafter. You have the knowledge and experience. We provide training as a framework to share your wisdom. The next training will be held REGISTRATION: http://www.unmc.edu/mmi/ednconfomaha.htm soon and will include: Guidelines for Helping Families; Creative Coping Skills and Resiliency; Survival WHO SHOULD ATTEND: Families, interested in What serving on their Regional Planning Team or state You may think us “special have it pretty rough. Tactics for Parents of Children withmoms” Special Needs; Helps Families in High Stress Situations and team; Families with an infant or toddler receiving service through the EDN; Families with a child Crisis; Tipsno for choice. Extended Family Members and Siblings; Tips for locating Community Services; We have We just manage life when things get really tough. Information on Parent to Parent Cultural Competence and Family Care; AND in learning who participated in the EDNthe inUSA; the past (children birthwe'd to age 11); Centered Anyone interested We've made it through days we thought never make it through. Principles of Family-Professional Collaboration. To talk with someone about becoming a more about EDN. This includes parents, grandparents, foster adoptive parents, We've eventhe impressed our own selves with all that weparents, can do! mentor, please contact Annie Anderson at 346-5220 ext. 23 or guardians, educational professionals, oryour service professionals. aanderson@olliewebbinc.org or mail name, address, phone number and e-mail to: DESCRIPTION: This isInc a workshop to teachmeasure, families and others about Nebraska’s Early Ollie Webb Center, | 1941 South 42nd Street | Suite 122 | Omaha, NE Intervention 68105 ? System, the We've gained patience beyond love we never dreamed of giving.

FREE!! Just let me know via email atSUPERMOMS, ohanakidsnews@gmail.com. We much have POGO cards For our kids, we aren't just No, we do so more :)for children and families; Review Nebraska law that community agencies Lincoln and Omaha both. Ifthe you have never usedrequires a POGOstate card,and you are missing out. to Inwork just together as little to We are cheerleaders, nurses, and therapists who don't walk out the door. help children and families; Understand the role and responsibilities families have in family-centered programs; as 1 use you can recoup the $5 you paid for the card, and still have a year to use the remainder of We handle remarks unkind stares, with dignity and grace. Learn the skills that families need and tocard be valuable members of Planning Region and state teams, including the card. My rude family uses a POGO on a regular basis, but have neverTeams been able to use everything on the card, and they itIndividualized usually saves us several hundred dollars a year in what we can Program use. helpingthough to develop your child’s Family Service Plan (IFSP) and Individualized Education Even the pain bring cannot be erased.

Here a sample of what you get: McDonalds's; Burger King, Runza, Many for other fast food places, (IEP).isPresenters Include: Mary Jo Iwan, former EDN program co-lead director Nebraska DHHS; Mark Smith, coffee shops, Pizza Hut; Valentino's, Domino's Pizza & many other restaurants; Golf at many area

Community/Family Outreach Coordinator at the Munroe-Meyer Institute & Family Co-Lead for EDN; Connie Therapies treatment routes are a(Lincoln); lot for Oil usChanges; to digest, courses; Bigand Red Store; Russwood Auto Center Russ' Supermarket ($5 off Shockley, PTI Nebraska Early Intervention Specialist and Family Co-Lead for EDN; Mary Angus, Speaker and We know what the future holds, but places give our kids ourwith best. $50 don't purchase x 3, Lincoln), Saltdogs, & so many other to save money I can't even list them all! So how get YOUR so POGO Just many shoot usbreaks. an email or leave us a message None of us cancan beYOU replaced, wecard???? don't get (information on front page) and we will let you know that your POGO card is on its way!! Limit of 1 Itper wears us out, but to help our kids, we'll do whatever it takes! city per email address!! Thank You!!!! *

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but wantFutures to plant some seeds. Building Better We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

The Alexis Verzal Children's Rehabilitation Hospital

is dedicated to the unique needs of children. -- April Vernon Providing advanced technology and compassionate care for a variety of rehab needs, inpatient or outpatient.

What's Where???

Important Tidbits for Families pages 2 - 6 State-Wide page 6 Learn more at www.Madonna.org Bellevue, Cedar Bluff & Columbus page 7 Fremont & Grand Island page 8 people know how you found out about these events, activities Gretna & Hastings page 9 & advertisers!! Tell ‘em, O’Hana Kids’ News pointed you their way!!! Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Omaha pages 16 - 24 Resources for Families pages x Autism Parent Resource Classifieds page 29

Chadron Information

Joni King is a parent, who was involved in the Autism Support Group PETALS in Chadron. While the support group is no longer meeting, she has many resources available to her that would benefit families with children on the spectrum. Feel free to call her if you have any questions pertaining to your child, with Autism. Her number is 308-430-1597.

Our  website,   Help us Expand our Reach, Pass us along to families you know who could use this information!!!

www.challengerlittleleague.org,       is  up  but  under  construction.     If  you  cannot  find  the  i nformation  you   need  there  please  e-­‐mail  us   admin@challengerlittleleague.org     &  we  will  mail  out  some  i nformation   &  a  registration.    

 

Resources  for  Families     Are  now  listed  ONLY  on  the  website  

www.ohanakidsnews.com   because  of  their  sheer  size  J  


Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

 

Page 19

Columbus JUNE Events May is Better Speech & Hearing Month May 9 is National School Nurse Day

May 13 is Mother's Day

June 17 People First Meeting LOCATION: The Arc of Platte County, COLUMBUS TIME: 7:00 – 8:30 pm MORE INFORMATION: 402-563-1699 or programdirector@arcofplattecounty.com DECRIPTION: We will be having a talent show! Everyone is encouraged to share something about a hobby or talent that they have!

Special Needs Mom's

You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. Sponsored   by  selves The  Arc   of  Palllatte   ounty   We've even impressed our own with thatCwe can do!

SUMMER  FRIENDS  SPECIAL  NEEDS  CAMP    

We've gained patience beyond measure, love we never dreamed of giving. WHEN:  June  24  –  27   We worry about the future but know this “special” life's worth living! TIME:   9:00  am   to  we Noon   We have bad days and hurt sometimes, but hold our heads up high. We feel WHERE:   joy and pride and thankfulness often we cry. Emerson   Elementary,  more 2410   20th  than St,  COLUMBUS  

COST:   for  just Arc  SUPERMOMS, Members,  $45   for   Non-­‐Arc   Members   For our kids, we$30   aren't No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door.   We handle rude remarks and unkind dignity and grace. Summer   Friends   Special   Needs   Camp   is  a  sstares, ummer  with camp   for  children   ages  5  –  21  who   Even though the pain they bring cannot be erased.

have  developmental  disabilities.    There  will  be  many  fun  indoor  and  outdoor  activities   planned   for  camp!    Vtreatment olunteers  wroutes ill  be  pare aired   up  w ith   the   ampers  to  provide  one-­‐on-­‐one   Therapies and a lot for us tocdigest, support!!   We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't   get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!

Contact  Kathy  or  Tammy  at  402-­‐563-­‐1699  or  

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

Elkhorn Information

-- April Vernon

    Check out any event Independent  Consultant   changes, after publication   additions & MORE Heather   Ackman   at our blog:

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@yahoo.com    

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Thanks O’Hanafor KidsReading News is not OKN!! responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided the contact Help us through Expand our Reach, information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those with any information changes that have occurred after publishing.

  Behaven Kids Elkhorn Open!

What's Where???

LOCATION: 20275 Honeysuckle Dr., ELKHORN MORE INFORMATION: 402-933-5700 ask for Mindi McEwen-Haynes or the Elkhorn location you can also go to www.behavenkids.com for more information Important for Families pages 2 - 6services. You can call DESCRIPTION: Our offices are openTidbits to take children & families for counseling page 6 aren’t sure of our services that we to take a tour of the Elkhorn centerState-Wide also, just call. Also if you offer, please contact Bellevue, Mindi or check out theBluff website. Cedar & Columbus page 7

Fremont & Grand Island page 8 Gretna & Hastings page 9 Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Omaha pages 16 - 24 Resources Families pages x Island, Tech Tots Toy Lending Libraryforbased in Grand For families in Central Nebraska there is aClassifieds Tech Tots Toy page Lending29 Library available to you at Children’s

Grand Island INFORMATION

Rehab Center in Grand Island. Tech Tots provides developmental toys, adapted toys and devices to children with developmental and physical disabilities. Tech Tots is a FREE service!! You can check out toys to use in your home for 1 month. Tech Tots Toy Lending Library is a program of UCP Nebraska. Play is an essential component of growing up, and is the most important work explored by children. As children engage in play, specific you physical, psychological, and creative necessary for Passthey uspractice alongandtomaster families know who emotional could use this skills information!!! understanding and interacting with the world around them. As children all have different abilities, so too are their methods of operating devices and accessing information. The use of adapted toys and devices decrease physical barriers and social barriers to play, enabling children at varied functional levels to actively explore and achieve some independence. By equalizing play through these modifications, children learn about the cause-effect relationships and practice creative problem solving. As children recognize their abilities through the work of play, they gain the self-confidence necessary for handing challenges in all areas of daily living. This is a wonderful opportunity for your child! To access the Tech Tots Lending Library call Children’s Rehab Center in Grand Island at 308-398-5170 and ask for Carole Ostdiek.

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program, please have them contact me to set up a screening. During the screen, the family will have the opportunity to try the iPad or iPod as well as several communication applications and accessories. If one of the devices is deemed as a viable option for the child, we will set up a 30 day loan of the device and the appropriate application. During the 30 days, the family will be required for 2 follow Edition #24will May 2012 up/training sessions. One will be scheduled midway through the trial and the other be scheduled for the end of the trial period. During the last scheduled session, we will determine if the trial was a success and will begin the process of securing funding (insurance, grants or private pay options). This is an incredible opportunity for the community and we are excited to offer this program!! Contact Jennifer Brock at jbrock@unmc.edu or 402-559-6460 for more information. 12/11

www.pamperedchef.biz/ heatherackman Now planning Wedding Showers!!! Call today for your spot!! Can be done Online Now!!

NCDHH – families The Nebraska for the Deaf and Hard of Hearing Proudly serving over 8,500+ -- NOW Commission Across all of Nebraska!!! Pageadvocacy, 20 The mission of the Nebraska Commission for the Deaf and Hard of Hearing is to provide

communication access and information to enhance awareness and services for improving the quality of life for all who experience hearing loss. The Vision Statement of NCDHH is: Being a proactive state agency, the Commission works Speech towards building support,Month cooperation and understanding May is Better & Hearing regardless of hearing ability resulting in fairness and equality for all Nebraskans. Make sure to Mayat9 www.ncdhh.ne.go is National School Nurse Day check out our website v

Grand Island JUNE Events May 13 is Mother's Day

*

Research Study for Children with Disabilities June Dental 9 The Department of Pediatric Dentistry at the Munroe-Meyer Institute is conducting a research study Autism Support Group (2 nd Sunday Monthly) evaluating ways in which dentists can help children disabilities feel more relaxed and calm LOCATION: Third City Christian Church, GRAND with ISLAND during2:30 dental treatment. The researchers are seeking children between the ages of 2 to 10, who TIME: – 4:30 pm need dental work done. Children participate receive a $25 giftbrask card a. toorg Wal-mart. Children can MORE INFORMATION: Contact Brandiwho at asn_ grandi sland@aut ismne be seen at MMI or at the dental clinic at Children’s DECRIPTION: Come join usnew for our Autism Support Group! Hospital. The project is funded by the National Institutes of Health. Please contact Dr. Keith Allen at 402-559-5756 or Kristi DeHaai, MS at 402-559-4498 to learn more about how to enroll your child in this research. June *15You may think us “special moms” have it pretty rough. We have no choice. We justMonthly) manage life when things get really tough. Respite Saturday (3 r d Saturday Caregiver Day for the Rural Nebraska Families in itCass County We've made it through days we thought never make through. LOCATION: Third City Christian Church, GRAND we'd ISLAND O'Hana Kids News is looking to put together day where caregivers can come for a few hours and We've even our own selvesawith all that we can do! TIME: 8:30 am impressed to 11:00 a m have a massage, see a chiropractor, have a great meal, maybe a mani or a pedi, possibly have MORE INFORMATION: Contact Bridgett at 308-381-8844 with # of children attending someone doing hair. Just abeyond day where us caregivers can never get done in just aof couple of hours, We've gained patience measure, love we dreamed giving. DECRIPTION: Respite for families. something that makes happy but :). know I haven't seen anythinglife's in Cass County or south of there, for We worry about theusfuture this “special” worth living! caregivers. If any families be interestedbut in something like heads this, PLEASE either give me a call or We have bad days and would hurt sometimes, we hold our up high. send email. I will base doing this more on howoften manythan people We me feelan joy and pride and even thankfulness wecontact cry. me about it. I know the need is there. Just let me know. I am interested in any comments you have regarding what you would like kids, in a short day likejust thisSUPERMOMS, also. Is childcare look at too?:) Just let me know, For our we aren't No,something we do soto much more Heather 402-227-5304 or and ohanakidsnews@yahoo.com We areAckman cheerleaders, nurses, therapists who don't walk out the door.

Special Needs Mom's

At ProCare3, we treat children with many different diagnoses, including but not limited to: Developmental Delays Torticollis Autism Spectrum Disorder Sensory Integration Speech Delays Cerebral Palsy Hypotonia Sports & Orthopedic Injuries

Kearney Information

We offer Warm Water Aquatic Therapy!!

We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased. Families CARE LocatedTherapies in Kearney, is onetreatment of six familyroutes organizations theus State serving those that are parenting and are aacross lot for to digest, children/youth withknow emotional, behavioral, or mental health We offer peer support; in fact We don't what the future holds, but challenges. give our kids our best. every employee/advocate CAREso is parenting, hasmany parented a child with emotional, behavioral, None of us can at beFamilies replaced, we don'torget breaks. or mental Families CARE is akids, non-profit providing advocacy, resources, It health wearschallenges. us out, but to help our we'llorganization, do whatever it takes! support, and education as we work with parents, along with a mission to Empower parents in the Behavioral Health System Care. Fornot more Families CARE in have Kearney 308-237-1102 or We areofselfless, by information choice you on see. Our kids just many needs. kbennetts@familiescare.org We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

Millard Pediatric Clinic 13336 Industrial Road, Ste. 105 Omaha, NE 68137 Contact us TODAY for a tour or a FREE Screening! (402)330-3211 Ext. 108 www.procare3.com We are Open 6 Days a Week, Monday through Friday with extended hours from 7am - 7pm

-- April Vernon

Need Saturday hours? Ask us about those too!!

Kid

Check out any event changes, after publication additions & MORE O’Hana Kids’ News is not responsible for any events; including at our blog: cancellations, or

Ability

At Snyder Charleson Therapy Services, P.C.

What's Where???

Page 2 Important Tidbits for Families pages 2 - 6 State-Wide page 6 Speech, Occupational & Physical Bellevue, Cedar Bluff & Columbus pageyou 7 found them HERE!!! When contacting our advertisers, please tell them Fremont & Grand Island page 8 Radio Show by Adult with Asperger Syndrome Gretna & Hastings page 9 For more information, “Parents Corner” is a radio show, co-hosted by Brian King, LCSW. Brian is an adult with Asperger  Pediatric speech, Lincoln pages 10 15 or advertising rates www.snydercharleson.com Syndrome, who391-5002 presented here in the area back in January. Brian also has 3 boys on the ASD (402) Make sure tospectrum. let people know how you found out these & feeding pages 15about - 16 please language contact us at: Brian will be sharingNorfolk his parenting strategies and discussing them with a panel of parents. therapy North Platte page 16 events, activities & advertisers!! Here is a link with all the details you'll need to tune in and call in if you would like 402-227-5304 Omaha pages 16 -way!!! Check it you out and pass it24 along. His address is: P.O. Box 994, West  Specializing in Autism Tell ‘em,http:tinyurl.com/3gm58h7 O’Hana Kids’ News pointed their ohanakidsnews@gmail.com Chicago, IL 60186 if you Resources would like to write to him. for Families pages x FACEBOOK too!! in  Specializing Classifieds page 29 changes after print. It is your responsibility to check with each contact www.ohanakidsnews. to verify the information that we have blogspot.com provided to you.

IMPORTANT TIDBITS  FOR FAMILIES Therapy for Kids!

Project Lifesaver in Sarpy County

Deaf/Hard of Hearing &

Cochlear Implants Thanks for Reading OKN!!

Specializing in Late Talkers & us Developmental Expand our Delay Reach,

Help

Pass

402-327-2500 8055 O Street, Suite S110 Lincoln, NE 68510

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The Sarpy County Sheriff’s Office implemented Project Lifesaver in 2008 to help locate missing persons. Children with Autism or Down Syndrome, who are at risk to wander, can have their safety greatly enhanced through this program. Project Lifesaver emphasizes relationships between specially trained Sheriff’s personnel and individuals enrolled in the program BEFORE the need may arise for a us rescue. alongDuring to families you visit, know who couldenrollees use this information!!! an initial home Project Lifesaver are fitted with a personalized wristband transmitter and family members are provided with a comprehensive overview of the program. Trained in communicating with individuals with special needs, deputies will schedule a monthly home visit to inspect and maintain the equipment and get to know the enrollee better on a more personal basis. The cost to participate in this program is minimal, at $10 a month. For more information on Project Lifesaver, contact Lt. Griger at 402-593-2288.

Heart Heroes Capes for children with CHD, a Non-Profit here in Nebraska Every year approximately 40,000 infants are born in the US with Congenital Heart Defects (CHD). CHD is the most frequently occurring birth defect and the leading cause of birth-related deaths. More than 50% of children with CHD will require at least one invasive surgery in their lifetime. And in the US, twice as many along!! Join our CHD mailing list, us at ohanakidsnews@gmail.com children die from each year thancontact from ALL forms of childhood cancers, combined! Needless to say, the survivors of CHD wear their scars like badges of honor. They are our “Heart Heroes”. Heart Heroes, Inc., is a non-profit organization that originated by a few Nebraska moms, who had children with CHD. After trying to coax their children through cardiology appointments and heart surgeries, they took comfort in the wondrous powers of “super hero” capes to comfort their children, and Heart Heroes was founded. Now, hundreds of Heart Hero capes have been draped around the little shoulders of CHD children everywhere. Consider donating a Heart Hero Cape to a child with CHD by going to www.heartherocapes.com to donate


For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased. Edition #24 May 2012 Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes! Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!   Page 21 We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kidsis accepted. That really our aim. Month May Better Speech & isHearing When we lookMay at them, just seeSchool kids. WeNurse hope you'll 9 is we National Day do the same.

2013 OUTREACH CLINICS

For Children with HealthDay Care Needs May 13Special is Mother's

-- April Vernon Nebraska Department of Health

Special Needs Mom's

Check out any event changes, after publication additions & MORE at our blog:

What's Where??? KEARNEY

You may think us “special moms” have it pretty rough. Contact: Carollife Florang, RN We have no choice. We just manage when things get really tough. rd Important Tidbits for Families pages 2 -it6through. 211 West Street, Kearney, NE never 68845 We've made it through the33 days we thought we'd make (308) 698-1250 We've even impressed our own selves with all that6we can do! State-Wide page

www.ohanakidsnews. blogspot.com

Bellevue, Cedar Bluff & Columbus page 7

AugustWe've 28 & gained 29 patience beyond measure, love we never dreamed of giving. Fremont & Grand Island page 8 We Starr, worryM.D., about the future butHartmann, know this “special” worth living! Staff: Lois UNMC; Julianne M.S., UNMC;life's Gathje We have bad days and hurtGretna sometimes, but we hold our & Hastings page 9 heads up high.

For more information, or advertising rates please contact us at:

We feel more often than we cry. November 6 & joy 7 and pride and thankfulness Lincoln pages 10 - 15 Staff: Lois Starr, M.D., UNMC; Sara Fisher, M.S., UNMC; Nancy Foster, Ph.D., UNMC

Norfolk pages 16so much more :) For our kids, we aren't just SUPERMOMS, No, 15 we -do We are cheerleaders, nurses, and therapists who don't North Platte page 16 walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Omaha pages 16 - 24 Even though the pain they bring cannot be erased.

402-227-5304

ohanakidsnews@gmail.com FACEBOOK too!!

Resources for Families pages x

Therapies and treatment routes are a lot forpage us to29 digest, Classifieds We don't know what the future holds, but give our kids our best. Contact: Kathy Schweitzer None of us can be replaced, so we don't get many breaks. It wears us out, but200 to help our kids, do whatever S. Silber, Northwe'll Platte, NE 69101 it takes!

NORTH PLATTE

Thanks for Reading OKN!!

(308) 535-8238 or Kathy.schweitzer@nebraska.gov

Help us Expand our Reach,

    Independent   onsultant   Check out any C event   changes, after publication Heather   Ackman   additions & MORE at our blog: 402-­‐227-­‐5304  

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any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact Help us Expand our Reach, information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those with any information changes that have occurred after publishing.

 

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. Pass us to kids families youThat know who could We want our accepted. really is our aim. use this information!!! June 7 & along 8, 2013 When weM.D., look UNMC; at them, weChipman, just seeM.S., kids.UNMC; We hope you'll do the same. Staff: Eric Rush, Hope Nancy Foster, Ph.D., UNMC

August--2April & 3,Vernon 2013 Staff: Eric Rush, M.D., UNMC; Amber Carter, M.S., UNMC; Nancy Foster, Ph.D., UNMC October 18 & 19, 2013 Staff: Bruce Buehler, M.D., UNMC; Beth Conover, M.S., UNMC; Nancy Foster, Ph.D., UNMC

What's Where???

December 13 & 14, 2013 Staff: Eric Rush, M.D., UNMC; AmberTidbits Carter, M.S., UNMC; Nancy Foster, UNMC Important for Families pages 2 - Ph.D., 6

State-Wide page 6 Bellevue, Cedar Bluff & Columbus page 7 Fremont & Grand Island page 8 Gretna & Hastings page 9 Lincoln pages 10 - 15 SCOTTSBLUFF – pages MHCP Norfolk 15 -& 16Genetics North Platte pageGenetics 16 MHCP Contact: Lana Parmenter Contact: Sandy Preston, RN - 24 Avenue B, Scottsbluff, NE 69361 P.O. Box 540, Gering, NE 69341-0540Omaha pages 16 3700 Resources for Families pages x (308) 630-1126 or (308) 436-6969 or lana.parmenter@nebraska.gov Classifieds page 29 prestos@rwmc.net August 9, 2013 MHCP August 10, 2013 Genetics Staff: Bruce Buehler, M.D., UNMC; Dani Bishay, M.S., UNMC; Brett Kuhn, Ph.D., UNMC

Pass us along to families you know who could use this information!!! November 15, 2013 MHCP November 16, 2013 Genetics Bruce Buehler, M.D., UNMC; Rachel Smith, M.S., UNMC; Cate Jones-Hazledine, Ph.D., UNMC

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League. Last year we have over 150 kids play baseball and we are looking for MORE!! See our ad to the left for more information, and check us out at www.ALLPLAY.org You can also call Bruce at 402-305-5020.

The Lovaas Institute Midwest is offering intensive early intervention services with behavior therapy for children with autism. The Lovaas Institute has been the leader in the field of intensive early intervention since the early 1970’s, and is world renowned for its groundbreaking outcome study in 1987. Since that time, Dr. Lovaas and his associates have helped start numerous behavior therapy programs around the world, under the auspices of the NIMH-sponsored replication project. As a result, we are excited by the recent outcomes that fellow replication sites have found as they completed studies in Wisconsin and California. In turn, the Lovaas Institute Midwest is known for its innovations that include the   language matrix, dynamic programming, clinical Miracle League social skill programming, andBaseball parent-training. Our aim is to further advance the effectiveness of early ~ Omaha ~ intervention through the best possible treatment for your child and research for all children.

Parent 2 Parent Mentor's Wanted – Please Read Edition #24 May 2012

Nationally over 80% of parents of children with disabilities who were mentored by an experienced parent reported it to bet he most helpful source of information on coping with the challenges of raising a child with special needs. Mentored parents report that the support of a fellow parent was so unique and personalized that it could not have come from any other source! As the mother or father of a child with developmental disabilities, you have unique parenting experiences. Through time, training, and trial and error, you have gained valuable skills. Use your knowledge to help another parent on the journey by becoming a mentor. Parent to Parent (P2P) Page 3 programs link parents of-children, with developmental disabilities with Proudly serving over 8,500+ families NOWadolescents Across and alladults of Nebraska!!! experienced and informed veteran parents who understand the day-to-day experiences of raising a child with special needs. Parent to Parent Omaha is offered by Ollie Webb Center, Inc., a local nonprofit agency. We are seeking parent mentors who are coping well with their child’s situation and viewhow him orto heradapt as a valuable person. Consider becoming a mentor if you’d like to Learn toysand todeveloping use with a switch/button/BigMac We believe help parents cope with the joys any age) turn with special needs. The O. Ivar Lovaas, Ph.D. ! that This workshop is for ANYONE!! Youand willchallenges learn howoftohaving easilya&child cost(of effectively the toys that your “Every child deserves a chance play time commitment involves parent (in person, telephone) once to every two founded Lovaasto Institute child already has, & isn't using contacting because ofanother physical limitations, into-mail toysor that are adapted your baseball!” the how fist 8to weeks and as mutually agreedfunction thereafter. have theit knowledge child!!weeks You within will learn install a jack into a single toyYou & convert into a toy and that is The Lovaas Institute Midwest experience. We provide training as a framework to share your wisdom. The next training will be held operated with a switch. You will learn how to assemble a switch. You will make a detachable cord 2925 Dean Parkway, Suite 300, 2012 Summer Session Begins soon and will include: Guidelines for Helping Families; Creative Coping Skills and Resiliency; Survival Minneapolis, MN 55416 that runs from the toy to the switch. You will be able to do this, AND you will go home with a Tactics for Parents of Children with Special Needs; What Helps Families in High Stress Situations and Saturday, May 19th! – 612.925.8365 mwinfo@lovaas.com ! switch switch. Family Best ofMembers all, yourand child's toy will look adapted, by YOU!! Tech working Tots Crisis; Toy Lending Library based in Norfolk Tipstoy for&Extended Siblings; Tips for professionally locating Community Services; Games are held every Saturday at You have seen that switch operated toys are sometimes 8x asFamily much Centered to order, Care; than if you could Are$you$a$caregiver$for$a$loved$ Information on the Parent to Parent USA;is Cultural Competence and AND 9am, 10:30am & Noon For families in North Eastern Nebraska there a Tech Tots Toy Lending Library available to you at Faith www.lovaas.com buy the toy & put the switch in for aCollaboration. few dollars, yourself. Dates/Times be determined Principles of Family-Professional To talk with someonewill about becoming awhen I Games last approx. 1 hour Regional Health Services Rehab Services. Tech Tots at provides toys,donations adapted of toys, devices one$with$a$disability?$Are$you$ have 4 or more people interested in Anderson the class. This classdevelopmental is FREE, however anyand kind are mentor, please contact Annie 346-5220 ext. 23 or The season lasts 7 weeks (to June Contact us to receive an extensive review paper of the to children with developmental and physical disabilities. Tech address, Tots is a phone FREEfor service!! You can check out appreciated. Contact Aaron today at aaronmiller555@gmail.com more information! aanderson@olliewebbinc.org or mail your name, number and e-mail to: 30th) research in Applied Behavior Analysis for Autism. interested$in$working$with$other$ Webb Center, Inc | 1941 Street |Library Suite 122 Omaha,of NEUCP 68105 ? toys to use Ollie in your home for 1 month. TechSouth Tots 42nd Toy Lending is a |program Nebraska. Play

!

Page 22 IMPORTANT TIDBITS  FOR FAMILIES

May is Better Speech & Hearing Month Norfolk Information May 9 is National School Nurse Day

!!!!!NEBRASKA!RESPITE! NETWORK!

May 13 is Mother's Day

Special Needs Mom's

A & Dcomponent Waiverof–growing Aged Waiver is an essential up & andDisabled is the most important work explored by children. As children O'Hana Kidsus News is giving away POGO cards!! MAY THEY ARE FREE!!! You may “special have it psychological, pretty rough. engageIs in play, theythink practice and master moms” specific physical, emotional creative skills YOUR child on this? IsourYOUR child eligible to beand on this? OKN has leftover POGO cards from fundraiser. Lincoln expires i6/30/2012 and Omaha expires We have no choice. We just manage life when things get really tough. If your child is on this waiver, do you know that it makes your income guidelines non-existent? necessary for understanding and interacting with the world around them. As children all have 8/31/2012. We would love to start selling the newest POGO cards but first want to get rid different of the No The$Nebraska$Respite$Network$<$ We've made it through the days 2we thought we'd never make it through. cap your Just have to use hours minimum respite every so youtoys weincome. have. Therefore herethe ondevices our untiland they are gone, firsteach comeand first served they are abilities, soonones too are their methods offrom operating accessing information. The usemonth, of adapted This complex features barrier free Eastern$Service$Area,$covers$all$of$ We've even impressed own selves all that we We can do! don't lose your A&D Coverage. Do know thatwith you can add your child, to your private FREE!! Justphysical let me know viaour email at ohanakidsnews@gmail.com. have POGO cards for design & level surfaces. The Miracle and devices decrease barriers andyou social barriers to play, enabling children at varied functional health insurance (non-medicaid), andnever if you areaon thecard, A&Dyou Waiver, you can those Lincoln and Omaha both. If you have used POGO are missing out. get In just as little Field & playground are covered with Nebraska$is$seeking$individuals$to$ levels to actively explore and achieve some independence. Byand equalizing play through these modifications, rubber surfaces to soften any falls. as 1 use youfor can recoup thebeyond $5 you paid for child, the card, stillthe have a year to use the premiums paid for BOTH you and your through HIPP program? Has to beofthe We've gained patience measure, love we never dreamed ofremainder giving. children learn about the cause-effect relationships and practice creative problem solving. As children provide$respite$for$individuals$with$ These surfaces are perfect for card. policy, My family uses a POGO cardknow onall a regular basis, butpremiums have neverworth beenyour able to use family!! same family but they will but cover the insurance for entire Wethe worry about the future this “special” life's living! Check braces out any event wheelchairs, walkers, & use by everything onthrough the card, andwork it usually savesthey us are several hundred dollars a year inawhat we use. recognize their the of play, gain the self-confidence necessary forcan handing For us thisabilities was $1,200 in and premiums, because we self-employed, don't have corporate medical disabilities$across$the$lifespan.$CNA/$ We have bad days hurt sometimes, but we hold our heads up high. people who are visually impaired. changes, after publication challenges Here is a sample of what you get: McDonalds's; Burger King, Runza, Many other fast food and places, plan,inand was killing us.living. By talking another mom, I found for outyour about this program, we are all itareas of daily This iswith a wonderful opportunity child! To access the Wecoffee feel joy and pride and thankfulness more often than we cry. shops, Pizza Hut; Valentino's, Domino's Pizza & many other restaurants; Golf at many area additions & MORE CMA$and$bilingual$skills$desired,$but$ on our reimbursement to arrive!! So cool.Health For 5 years we were told Services that our income dictated Ages from 4 - 20+. Athletes disabilities Tech waiting Tots courses; Lending Library callRusswood Faith Regional Services Rehab at 402-644Big Red Store; Auto Center (Lincoln); Oil Changes; Russ' Supermarket ($5 off at our blog: includenot$required.$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ autism, cerebral palsy, spina that our Fischer. son received, for us that meant we had to either stay in this little income box 7348 the andmedicaid ask for Nikki $50 purchase x 3, Lincoln), Saltdogs, & so many other places to money with I can't kids, we aren't just SUPERMOMS, No, dosave so in much more :) even list bifida, visual impairments, muscular ofFor like our $45,000 or make an additional $100,000 to cover thewe expenses therapy and medical all! So how can YOU get YOURand POGO card???? Just shootdon't us an email leave us a message www.ohanakidsnews. dystrophy, dwarfism, multiple Wethem are cheerleaders, nurses, therapists who walkor the door. services that our sons receives on an annual basis minimum. The guidelines toout be on the A&D (information on front page) and we will let you know that your POGO card is on its way!! Limit of 1 sclerosis, spinal cord injury, down blogspot.com We handle and unkind dignity grace. Call$(402)$996<8444$today$and$speak$ Waiver, I do notrude know remarks for sure what they are. Ifstares, you wantwith to know, I can and find out, just email me. I All Games are played in the ALLPLAY individuals$with$a$disability?$$ Complex, located in Seymour Smith Park at 6802 Harrison Street in Omaha.

syndrome, amputations & other

physical & mental & cognitive to$Elizabeth$or$Kay,$or$e<mail$ For more information, disabilities! or advertising rates echentland@gmail.com$$$$$$$$$$$$$$$$$$$$$$ please contact us at: REGISTER TODAY!!! who$can$direct$you$to$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ 402-227-5304 For More Information where$you$need$to$go! ! go to: ohanakidsnews@gmail.com www.ALLPLAY.org or

FACEBOOK too!! call Bruce Froendt at 402-305-5020

 

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Easter O’Hana Kids’ News is not responsible for Seals any events; including cancellations, or changes after print. It is your Nebraska

responsibility to check with each contact to verify the information that we have provided to you.

2012 Summer

per city per email address!! Thank You!!!!

know my son the qualifies, if has something to do being fed solely by g-button, and being *that Even though painand they bring cannot bewith erased. non-independent. If you want the contact information for the HIPP program, just shoot me an email onTherapies that also, orand ask your Service Coordinator specifically it.digest, There are many programs out treatment routes are a lot forabout us to there available to help families like ours out. We just need to get the word out there for families to We don't know what the future holds, but give our kids our best. access that information. If you know of a program, that would benefit families, email me. None of us can be replaced, so we don't get many breaks. ohanakidsnews@gmail.com We will research it and get the correct information out to all Children's It families. wears usThe out,Alexis but to Verzal help our kids, we'llRehabilitation do whatever it Hospital takes! the

Building Better Futures

*

is dedicated to the unique needs of children.

We are selfless, not bykids choice you see. Our kidshearing just have& many needs. Parent Group with with combined vision loss Providing advanced technology and compassionate

We're not Technical out to change the world, but want to has plant some seeds. The Nebraska Assistance Project on Deaf-Blindness conducted training this year care for a variety of rehab needs, inpatient or specific to parents of children who have a combined hearing & vision loss. The training has been in We want our kids accepted. That really is our aim. outpatient. partnership with the National Consortium on Deaf-Blindness (NCDV2.0). A total 7 parents have When we look at them, we just see kids. We hope you'll do theofsame. participated in a series of training activities from May 2011 through October 2011. They are now working on Vernon their leadership goals & have another planned meeting in April 2012, as well as ongoing -- April meetings in the future. They are called the Nebraska DB Parent Leadership Team, & have provided lots of support to the state deaf-blind project. It is the intent of this team to provide one-on-one interaction either via phones, technoloty or face to-face with other parents in the state who have a child birth to age 21 with a combined hearing & vision loss. If you want to be connected to one of Learn www.Madonna.org these parents, please contact Teresamore Coontsat at the number and email listed above. This is an exciting group of parents working & learnin together for the purpose of supporting other families in the future.

CheckRespite out any Camp event Dates changes, after June publication 10 - 15 additions MORE Young&Adults, ages 23-39 Make sure to let people know how you found out about these events, activities & advertisers!! at our blog: Important Tidbits Families June 17 - 22 Tell ‘em, O’Hana Kids’ News pointed youfor their way!!! pages 2 - 6 Adults, age 40+ State-Wide page 6 www.ohanakidsnews. Bellevue, Cedar Bluff & Columbus page 7 blogspot.com June 24 - 29 Fremont & Grand Island page 8 Youth, ages 6 - 13 Gretna & Hastings page 9 For more information, July 10 - 13rates Military Youth, Lincoln pages 10 - 15 or advertising ages 7 - 16, Offutt AFB Norfolk pages 15 - 16 please contact us at: North Platte page 16 July 15 - 20 402-227-5304 Teens, ages 14 - 22 Omaha pages 16 - 24 ohanakidsnews@gmail.com Resources for Families pages x July 22 - 26 All Ages FACEBOOK too!! Classifieds page 29

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1(800)650-9880, ext. 1128

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Edition #24 May 2012

  Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

 

Page 23

May is Better Speech & Hearing Month

Schuyler JUNE Events May 9 is National School Nurse Day May 13 is Mother's Day

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  Check out any event changes, after publication A  Special   itter  was     additions & SMORE inspired   y  our  ongoing   at ourbblog:

journey  of  parenting  our  

www.ohanakidsnews. family,  which  includes  2  kids   blogspot.com with   special  needs,  &  we  

believe  that  our  experiences  

For more information, can  help  you  experience  the   or advertising rates fullness  of  blessings  we  have   please contact us at:

received  as  we  have  raised  our   402-227-5304 family.  

  ohanakidsnews@gmail.com Services  O ffered:   FACEBOOK too!!

Companionship  Services  

June 2 Camp Luther Sunday LOCATION: Camp Luther â&#x20AC;&#x201C; Camp Luther, 1050 Road 4, SCHUYLER TIME: 1:00 â&#x20AC;&#x201C; 4:00 pm, 4:00 will be a LIVE quilt auction MORE INFORMATION: 402-352-5655 or www.campluther.org You may think momsâ&#x20AC;? have it pretty DESCRIPTION: Joinus usâ&#x20AC;&#x153;special for a great family outing! Thererough. will be a silent auction, ffood, We have no choice. We just manage life when things get really tough. hiking, boating, tours, games, meet the 2013 summer staff and MORE!! We are looking for We've made it through the days we thought we'd never make it through. donations ourimpressed silent auction quiltselves auction!! BENEFIT CAMPERS FUND We'vefor even our&own withALL all PROCEEDS that we can do! FOR FINANCIAL AID!!

Special Needs Mom's

We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this â&#x20AC;&#x153;specialâ&#x20AC;? life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.

York JUNE Events

For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. June 5,We 10,handle 12, 19,rude 26 remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.

MFLC Days ForTherapies Military and Families treatment routes are a lot for us to digest, th LOCATION: 202 East YORK We don't know what 5 the St., future holds, but give our kids our best. None ofto us8pm can be replaced, so we don't get many breaks. TIME: 8am It wears us out, but to help our kids, we'll do whatever at it takes! MORE INFORMATION: Contact Renee Duffek at 402-219-2446 renee.L.duffek@ahsg.us We are selfless, not by choice you see. Our kids just have many needs. DECRIPTION: MFLC Consultation servicesbut arewant provided at nosome charge, with no records We're not out to change the world, to plant seeds. kept. individuals include military service WeEligible want our kids accepted. That really is members our aim.& their significant others (children adults), whether or not. a short-term solution focused When&we look at them, legally we justrelated see kids. We This hopeis you'll do the same. consultation, not psychotherapy. If possible please call ahead to schedule an -- April Vernon appointment. You can schedule on a different date if the one listed doesnâ&#x20AC;&#x2122;t work.

What's Where??? Important Tidbits for Families pages 2 - 6 State-Wide page 6 Bellevue, Cedar Bluff & Columbus page 7 Fremont & Grand Island page 8 Gretna & Hastings page 9 Lincoln pages 10 - 15 Norfolk pages 15 - 16 North Platte page 16 Omaha pages 16 - 24 Resources for Families pages x Classifieds page 29

Thanks for Reading OKN!! Personal   Care  Services  

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ore  Information   HelpFor   us M Expand our Reach, Pass us along to families you know who could use this information!!! Contact  Richard  Troia   Oâ&#x20AC;&#x2122;Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is 402-­â&#x20AC;?697-­â&#x20AC;?8400  x201   your responsibility to verify the information provided through the contact information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those rtroia@aspecialsitter.com     with any information changes that have occurred after publishing.   See  â&#x20AC;&#x153;Our  Storyâ&#x20AC;?  on  Page  8  

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Edition #37 june 2013 central western nebraska