NORTHEAST REGIONAL COLLABORATIVE Description of RCC Activities
About the Northeast RCC
Domain 1: Increase the number of providers treating individuals with sickle cell disease using the National Heart, Lung, and Blood Institute (NHLBI) Evidence-Based Management of Sickle Cell Disease Expert Panel Report • One NY site initiated an ED QI project with the goal to have patients who go to an ED affiliated with the hospital network to have an individualized pain protocol available in the EHR system or a standardized pain protocol when no individualized protocol is available. The site is trying to reduce the reliance on ED teams to have to make decisions about patients they may not know. An extended goal is to reach additional neighborhood hospitals so that ED staff can review and use existing pain protocols. The current protocol calls for connecting patients with a community health worker to facilitate linkage to the local sickle cell center after the ED visit as well. This process has been completed at one hospital. Domain 2: Use telementoring, telemedicine, and other provider support strategies to increase the number of providers administering evidence-based SCD care RCC ECHO Website RCCs found the Project ECHO® approach to be effective and manageable for knowledge-sharing. They report high use and impact of Project ECHO® and expressed desire for continued support to expand this capacity. Using this model increased their ability to offer SCD-specific regional and national sessions. RCCs were responsible for planning, organizing, and facilitating ECHO sessions tailored to their regional needs and convening national ECHOs as needed. Content covered SCD-focused information, from basic science to psychosocial needs. ECHOs often focused on regionspecific content and cases to best support providers where they served patients. However, all RCC ECHOs were “open” and people from any geographic location within the country and world were able to attend. Some recorded the education sessions to ensure the greatest reach possible. RCCs noted that making ECHO open to all, live and recorded, was an important Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program
MAP LEGEND Regional Coordinating Center (RCC) Clinic/Participating Site Community-Based Organization
Lead Organization Johns Hopkins University Principal Investigators • Sophie Lanzkron, MD, MHS Co-Principal Investigator • Rosalyn Stewart, MD, MS, MBA Co-Principal Investigator Data Manager • Bailey House, MPH Participating Clinics • CT – University of Connecticut • DE – Tova Health • District of Columbia – Howard University • MA – Boston Medical Center
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