SOUTHEAST REGIONAL COLLABORATIVE Description of RCC Activities
About the Southeast RCC
Domain 1: Increase the number of providers treating individuals with sickle cell disease using the National Heart, Lung, and Blood Institute (NHLBI) Evidence-Based Management of Sickle Cell Disease Expert Panel Report Alabama • A Southeast RCC Co-PI is leading a project which is evaluating novel strategies to improve stroke screening for children living with Sickle Cell Disease. Dissemination and Implementation of Stroke Prevention Looking at the Care Environment (DISPLACE) Study (Kanter, NCT04173026). Data are anticipated to be released June 2022. ɕɕ Several SE RCC sites participate with this study, thus implementing strategies with their current SCD population. See here for additional information about this study and its findings. (https://www.uab.edu/medicine/sicklecell/research/displacetrial). In order to achieve a “stroke-free generation,” the goals of DISPLACE are to: ɐɐ Assess the gap between current and recommended evidence-based practice for stroke prevention in children with SCD ɐɐ Evaluate the effectiveness of a novel, multi-level dissemination and implementation strategy that engages providers, patients, and healthcare systems ɐɐ Use engagement to enhance implementation of annual TCD screening and chronic red cell transfusion initiation at participating institutions for people living with SCD
Georgia • One site changed their scheduling practices to try and improve TCD completion. This site began identifying those who needed a TCD each week and sent the list directly to the appointment scheduler. This site complemented this procedure change by following up with all missed appointments. With these changes, the site saw an increase in TCD completion rate from 42 percent to their current 74 percent. Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program
MAP LEGEND Regional Coordinating Center (RCC) Clinic/Participating Site Community-Based Organization
Lead Organization Levine Cancer Institute, Atrium Health Principal Investigators • Julie Kanter, MD, Director, Adult Sickle Cell Program | Co-Director, Lifespan Comprehensive Sickle Cell Research Center Hematology/ Oncology UAB Medicine | University of Alabama at Birmingham Co-Principal Investigator • Ify Osunkwo, MD, MPH, Director, Adult Sickle Cell Disease Enterprise, Atrium Health Co-Principal Investigator • John Strouse, MD, PHD, Director of the Adult Sickle Cell Program | Associate Professor of Medicine and Pediatrics, Duke University School of Medicine Co-Principal Investigator
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