2021 Report to Congress: Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program

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HEARTLAND/SOUTHWEST REGIONAL COLLABORATIVE Description of RCC Activities

About the Heartland/Southwest RCC

Domain 1: Increase the number of providers treating individuals with sickle cell disease using the National Heart, Lung, and Blood Institute (NHLBI) Evidence-Based Management of Sickle Cell Disease Expert Panel Report • Iowa, Arkansas, and Missouri developed innovative, team-based approaches to improve immunization rates among their patients. Specific activities included: ɕɕ Organizing comprehensive teams with providers from varying disciplines ɕɕ Providing extensive education on the need for immunizations among people living with SCD ɕɕ Reviewing timelines for distribution ɕɕ Planning pre-clinic huddles ɕɕ Developing clinic prep sheets • Worked with their IT departments to develop immunization order sets for patients with SCD in their EHR systems • Developed algorithms for common issues arising in SCD patients (i.e., timely treatment of vaso-occlusive crisis, use of intranasal fentanyl EHR order sets), post-discharge communication, and follow-up Arkansas • Overhauled their entire immunizations process to improve rates. This new process included: ɕɕ Working with their health department, which has a wellestablished immunization database that pulls directly into their medical record system. Once this connection is established, data reflected vaccination status no matter where they are given ɕɕ Creating a new EHR order set that established an internal system to review immunization needs prior to each appointment ɕɕ Changing clinic flow to allow doctors to order vaccines prior to clinic visits so vaccines could be pre-stocked in their medication Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program

MAP LEGEND Regional Coordinating Center (RCC) Clinic/Participating Site Community-Based Organization

Lead Organization Washington University School of Medicine, St. Louis Principal Investigator • Allison King, MD, PhD, MPH Data Manager • Taniya Varughese, MSOT, OTR/L Participating Clinics • AR - University of Arkansas for Medical Sciences, Arkansas Children’s Hospital and Research Institute • IA - University of Iowa Stead Family Children’s Hospital • KS - University of Kansas Medical Center • LA - Louisiana State University Pediatrics, New Orleans Children’s Hospital

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