PACIFIC REGIONAL COLLABORATIVE Description of RCC Activities
About the Pacific RCC
Domain 1: Increase the number of providers treating individuals with sickle cell disease using the National Heart, Lung, and Blood Institute (NHLBI) Evidence-Based Management of Sickle Cell Disease Expert Panel Report
Lead Organization Center for Inherited Blood Disorders (CIBD)
Arizona • Has created an electronic dashboard that tracks several clinical measures. A built-in algorithm helps identify and flag immunization and TCD due dates. Colorado • Has done innovative pain management work by spearheading the opening of an observation unit for acute pain management. This has resulted in a decrease of 20 percent in hospital admissions. This state also opened a community clinic in June 2020, which offers chronic pain management and accepts Medicaid coverage. Nevada • Has conducted work in pain management. In addition to using the Oregon guidelines, this site has continued other work, including their H.U.G.S. (Holistic, Uncomplicated, Gratifying Support Services) program. This program is a holistic therapy program that focuses on pain management alternatives, such as meditation, massages, music therapy, etc. This site has also worked with the ED to try and reduce the amount of time people with SCD wait before receiving their first dose of pain medication. Oregon • Has leveraged their statewide database of vaccines that holds information for all patients born after 1990. This database allows clinicians to see all immunizations that a patient has received by date. To compliment this, the site has established a process for clinicians to look for what is due or needed and order these immunizations. This has been instrumental in helping ensure that patients receive needed vaccines at their next clinic visit. Sickle Cell Disease Treatment Demonstration Regional Collaboratives Program
MAP LEGEND Regional Coordinating Center (RCC) Clinic/Participating Site Community-Based Organization
Principal Investigators • Diane J. Nugent, MD, Center for Inherited Blood Disorders Co-Principal Investigator • Marsha Treadwell, PhD, UCSF Benioff Children’s Hospital Oakland Co-Principal Investigator • Elliott Vichinsky, MD, UCSF Benioff Children’s Hospital Oakland Co-Principal Investigator Data Managers • Shalini Vora, MPH • Priscilla Salceda, MPH
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