NAMI Dane County Pioneer Special NAMIWalks Edition

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NAMI Dane County Staff

Going the Extra Mile:

A History of NAMIWalks

Every fall brings an exciting time for all NAMI affiliates as NAMIWalks fundraisers happen across the country and important funds are raised for the local mental health work. NAMI Dane County’s long history as the first NAMI organization is also accompanied by having a history of a fundraising walk even before NAMI at the national level would go on to develop NAMIWalks programs for affiliates to implement at their local level.

ty in 2004 and NAMI National’s push for affiliates to host their own Walk around 2005 for Hastings to eventually help bring an official NAMIWalks event to Dane County in 2006.

October 5 Olin Park

Registration is open for NAMIWalks 2024!

Perhaps no one is more knowledgeable about the expansive history of the past 19 NAMIWalks held by NAMI Dane County than our very own Walk Manager, Heidi Hastings. Hastings provided insight into the early days before NAMIWalks had even existed in namesake, back in the early 2000’s when NAMI Dane County’s annual walk in Warner Park was simply an independent local fundraiser with proceeds going to the organization now known as the Brain and Behavior Research Foundation.

Register: www.namiwalks.org/danecounty

Questions: walk@namidanecounty.org

“When the NAMIWalks first started, the office staff consisted of Barbara Wolff as the sole full time employee, and one part-time employee, Jim Hinsberger, who passed away in 2009,” Hastings said. “They were an important part of the early NAMIWalks, and we still miss them. Their families purchase a NAMIWalks Kilometer Sponsorship in their names each year. Proceeds from that first NAMIWalks allowed NAMI Dane County to hire a part time Executive Director. The affiliate has continued to grow, thanks to the NAMIWalks revenue.”

It would take until Hastings joined NAMI Dane Coun-

Along with Barbara Wolff, NAMI Dane County Office Administrator at the time, as well as Kris Thommesen, who served as NAMI Dane Board of Directors secretary, and husband Tom Thommes- Continued on page 5

Pictured at NAMIWalks 2023: Heidi, Arsen and mom, TubGer, Nikyra.
Daniel Stout Photography

Support Group

Schedule

Being Together Peer Support Group

NAMI Dane County has partnered with NAMI Wisconsin to offer a Peer Support Group that’s open to participants statewide. This group is open to adults (age 18+) who are living with a mental health condition.

2nd Thursday of each month at 6:30-8:00pm Location: Zoom. Monthly registration is required. Space is limited to 20 participants each month. Please visit: https://namiwisconsin.org/being-together/

Adult Mental Health Support Group (In Person)

Join us if: You are an adult living with a mental health condition. This group is not specific to any diagnosis - all are welcome.

1st, 3rd & 5th Mondays at 6:30pm-8pm Immanuel Lutheran Church (1021 Spaight St, Madison, WI 53703)

Adult Mental Health Support Group (Virtual)

Join us if: You are an adult living with a mental health condition. This group is not specific to any diagnosis - all are welcome.

2nd & 4th Mondays at 6:30pm-8pm

Family Mental Health Support Group (Virtual)

Join us if: You are a family or friend of an adult living with a mental health condition.

1st & 3rd Thursdays at 6:30pm-8pm

Women’s Mental Health Support Group (Virtual)

Join us if: You are a woman who is living with a mental health condition. This group is not specific to any diagnosis - all are welcome.

1st Wednesday of the month at 6:30pm-8pm

Young Adult Mental Health Support Group (Virtual)

Join us if: You are a young adult who is living with a mental health condition. This group is not specific to any diagnosis - all are welcome. Suggested age range 18-25. 1st, 3rd & 5th Sundays at 6:30pm-8pm

LGBTQIA+ Mental Health Support Group (Virtual)

Join us if: You are a member of the LGBTQIA+ community and are living with a mental health condition. Individuals who are still questioning, or do not have specific labels for themselves, are entirely welcome to the group. In addition, asexual, aromantic, pansexual, and other identities are all welcome. The group will be gender-affirming and welcomes all diverse genders. This group is not specific to any diagnosis - all are welcome.

2nd & 4th Tuesdays at 6:30pm-8pm

On behalf of NAMI Dane County staff and participants, we want to extend a huge THANK YOU to our volunteer support group facilitators. The work we do would not be possible without you. We are so grateful for your dedication to the mission of NAMI Dane County.

en, who would go on to serve on the Board, Hastings applied and found success in bringing NAMIWalks to Madison’s Olin Park in 2006.

Hastings was proud to give the successful fundraising history of NAMIWalks in Dane County, even from the start when their $50,000 goal was easily cleared raising over $15,000 more, but was even more excited to speak about the people NAMIWalks brings out.

“Each year I have the privilege of meeting new people who help out and/or participate in the Walk, many of whom are in recovery from severe and persistent mental illness,” said Hastings. “Their willingness to share their stories has given me a deeper understanding of the challenges of living with a mental illness, and at the same time their stories of recovery are inspiring and give all of us hope that recovery is possible.”

While Hastings took a break as organizer for the 5th and 6th NAMIWalks, she never stopped participating. That is why when Walk Manager Barbara Wolff unfortunately passed away in 2012, it was clear who had the skills, knowledge, and love for NAMIWalks to continue carrying the torch.

The past 12 years has brought Hastings plenty of community and connection through NAMIWalks as she alone could not plan the whole event by herself. Hastings proudly credits the Walk Committee as well as giving appreciation for other people who she highlighted for their work or participation in the walk, such as recurring DJ and emcee Dr. Chris Kammer; Honorary Chair Leigh Mills, who is a WMTV 15 News Anchor; Dr. Ned Kalin, Business Team Chair since 2018; as well as Rachel Edwards, who serves as Family Team Chair and has led a team for NAMIWalks since the first one in 2006.

Continued on page 6

Photo from NAMIWalks 2023, by Daniel Stout Photography

“My favorite part of each NAMIWalks is when the mass start of walkers has begun,” Hasting said. “I stand on the curb and watch them go by. I get a feeling of, ‘We did it!’ It brings great joy and relief to see that the Walk Committee, after all of our hard work and worry, has successfully pulled off another NAMIWalks. It’s so fun to see all of the colorful team t-shirts, and creative signs, and be able to wave at people that I know. Everyone looks happy and it’s just a lot of fun.”

it would be difficult for anyone to step away from something so impactful and important. However, as Hastings approaches her 13th NAMIWalks as Walk Manager, she knows it is time to pass the torch again as this will be her last year in the Walk Manager role. Hastings was sure to follow the news with an assurance that she will still be deeply involved with the Walk.

The success in the fundraising efforts surrounding NAMIWalks keeps NAMI services free and accessible to local communities, and we at NAMI Dane County are no different. Hastings was happy to report that 2022 saw record fundraising to date with over $262,000 being raised, making NAME Dane County one of the top 10 Walks out of 122 in the county that year. While last year’s total saw a slight dip, Hastings is confident that the $275,000 goal will be met with almost half of that goal almost met already through channels such as donations and sponsorships from local businesses and families.

With all the past success and a bright future ahead,

“I hope that NAMI Dane County will be able to host a NAMIWalks for a very long time. It’s becoming a regular tradition that many of us look forward to. We have come together as a community, and it feels good to have that reunion each year. The fundraising aspect is equally as important, as all proceeds stay local to fund the no-cost programs and services that NAMI Dane County provides,” said Hastings, reflecting on her tenure of the Walk Manager position since 2012 as she transitions into a full time position as a Special Education teacher at West High School this fall.

“NAMI Dane County is now in a position to hire a full time professional Development Director, who will not only have the time and expertise to help the Walk grow, but will also be able to do other kinds of fund-

Photos from NAMIWalks 2023, by Daniel Stout Photography

raising. I am very, very happy about this and I look forward to handing the reins over. However I am not leaving the Walk in any way, just changing roles. I will stay involved as a consultant as needed, remain on the Walk Committee, volunteer on Walk Day, and lead a Walk Team. As Chris Kammer would say, we should all be ‘Walk Lifers!’”

Hastings ended her reflections by bringing the focus back around to the participants and volunteers that make NAMIWalks happen every year. Hastings was clear that without Walk Teams and individual Walkers, over half of the NAMIWalks revenue for NAMI Dane County would not exist. Along with highlighting the inspiring sight of all kinds of Walkers with colorful signs having fun while cars drive by and honk in support, Hastings drew the attention of why everyone shows up back to our collective mission to raise

Workshop Series

Date: Tuesday, October 15 Time: 6pm-7:30pm Location:

Virtual via Zoom

awareness and advocacy around mental health.

“It’s really hard to put into words how important the Walk has been for my personal well being,” Hastings said. “Over the years I have been able to create friendships with hundreds of people, many of whom I probably would not otherwise have had the chance to meet. The Walkers, team captains, volunteers, sponsors, office staff, Board members, and Walk Committee - we are all one big family driven by the same mission - to eliminate the stigma and shame around mental illness, to promote recovery, and to push for better treatments and even cures for mental illnesses.”

As a closing note to our story in preparation for NAMIWalks 2024, Hastings wanted to pass forward some words of encouragement from Kris and Tom Thommesen saying, “WALK ON!”

The Wellness Recovery Action Plan (WRAP) is a simple and powerful process for creatingthe life and wellness you want.

What You Will Learn in this Workshop:

• Discover simple, safe, and effective tools to create and maintain wellness

• Develop a daily plan to stay on track with your life and wellness goals

• Identify what throws you off track and develop a plan to keep moving forward

• Gain support and stay in control even in a crisis

You Should Attend this Workshop If:

You want to identify the tools that keep you well and create action plans to put them into practice in your everyday life. All along the way, WRAP helps you incorporate key recovery concepts and wellness tools into your plans and your life.

This Workshop Series is open and free to the public. RSVP required to attend.

Contact: Julia Hyatt at jhyatt@namidanecounty.org

Community Highlight:

Disability Rights

with Dr. Nakia Wiley

We at NAMI Dane County are constantly in consideration of how we can increase accessibility both collaboratively and through our own efforts, especially for our events like the upcoming 2024 NAMIWalks. Accessibility around mental and physical health are crucial aspects of increasing inclusivity and understanding within a community. Even with our own efforts to forefront accessibility and listening to create change, efforts towards that mission would not be anywhere near where they are today without individuals, communities, and organizations rallying around Disability Rights.

In Madison, Dr. Nakia Wiley is one such Disability Rights activist, though she may not have always imagined she would be filling that role one day. Dr. Wiley currently sits on our Board at NAMI Dane County, but she also serves as Board President for Disability Pride Madison, an organization dedicated to the support and celebration of Madison’s community members living with a disability.

as having one or more disabilities. Either physical or mental, sometimes referred to as invisible, whatever we want to call it. Back when it first started, I wasn’t even in Madison at that time. I Believe it was around 2013, a small group of people started it.”

“That is what it’s about. Just people being people with no judgment, not shaming them. We’re not blaming them, we’re not scared of each other, and we’re not making fun of people. There’s no stigma.... We’re doing this big party, and we celebrate, but it’s very revolutionary at the same time.”

Dr. Nakia Wiley

While Dr. Wiley was not present for the creation of Disability Pride Fest here in Madison, she quickly found herself in the local Disability Rights scene when she arrived in 2016.

“Let me start by saying that Disability Pride Madison has been an organization for 11 years,” Dr. Wiley shared with us. “This was our 11th Disability Pride Fest. I just have to take a breath right there… We are a total volunteer, small Board of people who identify

Inspiration for Disability Pride Fest was taken from Dr. Wiley’s native city of Chicago, and has been an important opportunity and space for those living with a disability in Madison to gather every year around celebration and community.

Aligning with the values and mission of accessibility and care was a constant thread throughout Dr. Wiley’s reflection of Disability Pride Fest 2024 that took place in late July.

“That is what it’s about,” said Dr. Wiley. “Just people being people with no judgment, not shaming them. We’re not blaming them, we’re not scared of each

and Accessibility

other, and we’re not making fun of people. There’s no stigma, so I think that’s what really has been living and breathing with this, and it’s a movement. We don’t talk about it like that, but it is. We’re doing this big party, and we celebrate, but it’s very revolutionary at the same time. Make no mistake about it, we understand that the Americans with Disabilities Act is relatively young.”

Dr. Wiley expanded on how the Americans with Disabilities Act was important for many structural changes, but brought the topic of conversation back to the cultural shifts that are needed. Accessibility for Dr. Wiley extends past the physical components usually at the forefront, and into creating spaces and philosophies that encourage people with disabilities to show up with confidence in an atmosphere of safety, acceptance and understanding.

whether or not they are safe to open up about their mental health. Our goal at NAMI Dane County is to both provide advocacy and

“Openly sharing our disabilities is hard, because you’re vulnerable,” Dr. Wiley explained. “Not only that, it can trigger memories of a loss, grief, hurt, harm, and things of that nature. Having the big party in the park? That was the joy. What we want to continue to do as a Board, is to send the message that we want to find joy each day. We’re planning with the whole year in mind, but it’s about every day. Each day people being able to say, ‘I’m disabled and I have this,’ if they want to. We do understand that that’s scary. When you have to disclose if you’re disabled, you put yourself at risk.”

Perhaps it is the risk of identifying as a person with a disability that also keeps many people uncertain of

resources, but also shift the culture around mental health and mental illness so that people can feel that same confidence in identifying that their experience with mental health is nothing to be ashamed of, and not at all uncommon.

Dr. Wiley made it clear that the fight to change the cultural mindset around disability and mental illness was a necessary one and crucial to a generational development of Disability Rights.

“We all have to do our part,” said Dr. Wiley. “We can’t just blame, and it’s easy to blame. I’ve been on the blame game because that’s easy. ‘You were here before I got here, so you want me to fix everything with my magical wand?’ That’s a frustration, but we have to stick with it, because if we don’t, we’re going to continue to have not only similar patterns of harm, but more egregious ones. We don’t want to go back, as a matter of fact, we are not going back.“

Both in reflection on Disability Pride Madison 2024 and in looking forward towards NAMIWalks 2024, a common theme emerges that fully displays the beauty, and struggles, of a community dedicated to holding space for each other. Dr. Wiley identified importantly that people living with a disability in some way, shape, or form, are actually the global majority.

However, when we consider what care people need around their disabilities, we quickly find a gap in how much capacity or people-power is put behind providing it. Dr. Wiley’s solution started by calling attention to how people with disabilities have started to rally and provide care for each other in that absence, and closed on a call for those everyday considerations to make it into communities at large as well.

“So then, what do we do?” Dr. Wiley questioned. “We have to equip each other. I’m thinking we need to think of ways of creating communities of care where we can notice signs for people, and maybe make life a little bit easier. Letting people know. Like in some communities, they have a ‘Be careful. There’s a deaf

and hard of hearing person,’ sign. How do we bring mental health to Madison where it’s living every day?”

Perhaps making it out to an event such as Disability Pride Fest or NAMIWalks is your way of bringing mental health, disability rights, and care in your community to life in Madison. However, even the seemingly small efforts towards those goals make some of the largest impacts.

Whether it is through volunteering physically or virtually, donating or fundraising, using your voice for advocacy, or simply just listening to someone who needs an empathetic ear, your efforts can make a difference. Dr. Wiley hopes that same sentiment will motivate people to start building towards an even brighter future for Disability Rights.

“Let’s just try to do a little bit better. Let’s just come and work together. Come together, and hear and share the stories of others. That’s what’s really helping. Really listening to somebody else’s experience, and not giving them any critique.”

Dr. Nakia Wiley is a wife, mother, grandmother, and community advocate who is a native of South-side Chicago, Illinois. She uses she/ her/hers pronouns and identifies as a Black-disabled woman. Serving in education for over two decades across capacities including Special Education and family support, Dr. Wiley now works with the Madison Metropolitan School District carrying out professional learning coordination. Dr. Wiley currently sits on the NAMI Dane County Board, as well as the Disability Pride Madison Board as Board President. Between spending time in community uplifting children and families, to working in disability rights activism, Dr. Wiley leads with hope to realize the dreams, goals, and aspirations of those she serves.

Parking

Accessibility at NAMIWalks

We have accessible parking at Olin Park. There are spots available by the Barn/Pavilion that are right next to the event space. The parking spaces are level and adjoin an accessible route to entrances.

NEW! Alternate Walk Route

We have added a new route this year to make sure that we have something that works for everyone! We still have our usual 5K route along the Capital City Trail (along John Nolen Dr.) with a turnaround point at Monona Terrace. This year we have added an alternate route that is 2 miles along the Wingra Creek Bike Path with a turnaround point at Bernie’s Beach. This route is shorter, quieter, and will not have dogs.

Physical Participation

Both walk routes are paved and well-traveled trails that are surfaced with asphalt and are suitable for bicycles, skaters, strollers, walkers, joggers, and wheelchairs.

Walkers who participate in the event are able to complete the course in whatever way feels comfortable for them. This includes turning around on the course at any time and heading back to the Barn/Pavilion and making the choice to not Walk the route at all and enjoying the activities at Olin Park.

Virtual Participation

Our Walk can be completed virtually if you are physically, mentally, emotionally, or logistically not able to

participate in the event on October 5th. Big crowds can be a lot and you can participate by taking a quiet stroll alone or with loved ones or by not Walking at all. Your participation is felt through your fundraising efforts for our organization and bringing awareness to our event and our cause.

Last year, we had two people complete the Walk from foreign countries and send us photos from the streets of Milan, Italy and a boat off of Greece.

Volunteer Opportunities

It can be difficult to find ways to volunteer for an organization if you are not able to do things in person. NAMIWalks allows people to volunteer in any way that is comfortable for them. If you want to help in person on Walk Day - join us at Olin Park! If you are not able to attend the event in person for any reason, you can volunteer as a Team Captain raising money for a team and/or spreading the word about our event. Volunteering is for everyone!

Supportive Environment

Events can sometimes be stressful. The great thing about NAMIWalks is that when you attend, you know that you are surrounded by other people that are passionate about the same causes you are and that you are in a supportive environment.

No matter how you support NAMIWalks, every single person is a Superhero of Hope!

Supporting NAMIWalks even while on vacation!

Mental Health is ALWAYS on the Ballot

Commonly Asked Questions

When is the next election? Tuesday, November 5.

When are the polls open?

#Vote4MentalHealth is a campaign led by NAMI, the National Alliance on Mental Illness, to promote nonpartisan voter participation and elevate discussions about mental health policy during the elections. Please note, we do not endorse, represent or warrant the accuracy or reliability of any of the information obtained from third party sources. Your decision whether or not to vote is 100% voluntary and NAMI is in no way seeking to influence your political affiliations or beliefs.

7am-8pm (if you are in line by 8pm then you are eligible to vote STAY IN LINE!)

Am I eligible to vote?

You must:

Be a US citizen

Be 18 years old by Election Day

Have lived at your current Wisconsin address for 28 consecutive days by Election Day. If you moved in the last 28 days, you must use your previous address

Not be serving a sentence for a felony, including probation or parole

How do I register to vote?

Register by mail or via online through October 16th.

Visit your Municipal Clerk’s office to register in person through November 1st.

Register at the polls on Election Day on November 5th.

What do I need to register to vote?

Proof of residence

Photo ID (see guidelines below)

www. my.lwv.org/wisconsin/voterinformation/register-vote

What is on my ballot?

It is important to educate yourself before you enter the voting booth! Visit the website below that will show you a sample ballot based on your address

www.myvote.wi.gov/en-us/Whats-On-My-Ballot

What if I have questions?

Visit www myvote wi gov

Visit www my lwv org/wisconsin Call the Voter Helpline at 608.285.2141

Which Voting Issues Intersect with Mental Health?

Healthcare

Criminal Justice Reform

Jobs & the Economy

Affordable Housing

Veterans

Education

Immigration

Racial Inequity

LGBTQIA+

How Do Elected Officials Impact Mental Health in My Community?

Local/County Officials

Affect community-based mental health services and supports (such as mobile crisis services, Supported Housing, Supported Employment, peer supports, ACT and CIT teams, mental health treatment courts)

State Officials

Affect state supported mental health benefits and services (such as setting state Medicaid plan benefits and eligibility; overseeing psychiatric hospitals; funding community services like FEP, crisis care and housing; and oversee and enforce parity and patient protections)

Federal Officials

Affect federal health care programs, research and funding for key programs that provide mental health services, housing and supports, criminal justice initiatives and other programs

Why I Walk

This is the time of year that NAMI Dane County asks people to join us at our largest awareness event of the year: NAMIWalks 2024. As people sign up and, in creating their personal support pages, we ask them to share “Why I Walk.” We hear stories of tragedy, tales of hope and recovery, and messages of support. People respond with rawness and honesty in an effort to remove the stigma of mental illness. I will do the same.

Before I was the Executive Director, I was a NAMI Dane County NAMIWalks volunteer and participant. NAMI Dane helped me through some very difficult times and I wanted to give back. The support groups, the resources, the friendly staff were all part of my journey to healing. Even the Walk Committee meetings provided a safe, supportive space. Being among peers and family members as we planned NAMI’s largest public awareness event of the year was cathartic. We spoke of our experiences openly and without shame. I knew then and there that I wanted to be a part of NAMI for a long time. I still feel that way.

This past August was the 29th anniversary of my brother Stephen’s death by suicide. My six siblings and I, as we do each year, shared a group text to honor his memory, tell our favorite Steve stories, and

express our love and gratitude for each other.

One thing changed this year. My oldest brother asked how we felt our lives had changed because of Steve’s passing. He also asked us to speculate what type of adults we would be if Steve had lived. That stopped me in my tracks. It hit me as very poignant questions and I gave them deep consideration. Could it be that

“While I mourned the loss of my brother, I was so grateful for my family and friends. I decided I would not take anything or anyone for granted. I wanted others to know they were not alone.”

the work I am now doing is a part of Steve’s legacy? Steve’s death changed me in many ways. For the first time in my life, I received mental health treatment and sought support from others who had been affected by suicide. It was shortly after this that I made the decision to leave my career in the corporate world and work in nonprofit management. My lived experience with long-term illness impacting other members of my family originally prompted my nonprofit volunteerism but losing Steve in the way we did made me rethink everything. While I mourned the loss of my brother, I was so grateful for my family and friends. I decided I would not take anything or anyone for granted. I wanted others to know they were not alone, there is no shame in mental illness and that we MUST talk about suicide. It can be very scary and it may not be a comfortable conversation, but it is necessary.

So, Why Do I Walk? Stephen is my reason.

In Service, Jeanne McLellan

Jeanne McLellan, NAMI Dane County Executive Director

It’s the Most Wonderful Time of the Year: NAMIWalk Season

Each year, the NAMIWalks Kick-Off Lunch ushers us into the best time of the yearWALK SEASON!

This year’s Kick-Off Lunch made a triumphant return to Blackhawk Country Club after being held outdoors at the Vilas Park Shelter since 2020. With a panoramic view of beautiful Lake Mendota as a backdrop, over 100 guests gathered to get more information on how to participate in the Walk, build a team, fundraise, spread awareness about the work of NAMI Dane County, and meet other com-

munity members who are NAMIWalks supporters.

We welcomed community leaders and mental health advocates from Dane County who each shared with us why the work NAMI Dane County is so important and why the funds we raise are crucial to continuing that work.

A special “thank you” to the UW Department of Psychiatry for sponsoring our event and to Blackhawk Country Club for the beautiful accommodations. Are you ready to Walk?! We are. Join us!

Why I Walk

Two principals that are most important for my approach to helping my patients are, One: think holistically; and, Two: lead by example. Treating mental illness is more than writing a prescription. Sure, medication plays a role, but so do activity, opportunities for socialization, and altruism.

How do we know this? A large body of literature suggests that activity, even milder activity like walking, improves mood and lowers anxiety. We have a large body of research to suggest risk factors for depression that we all know only too well, but what about the reverse? Well, as it turns out, social connection is a “risk

“Turns out social connection and altruism (selfless concern for the wellbeing of others) are ‘risk factors’ for happiness.”

factor” for happiness. Finally, interesting studies of altruism suggest it improves mood, so yet another “risk factor” for happiness. In other words, socialization and altruism support a happy mood.

I believe “practice what you preach” is a most powerful principle for healing. When we lead by example, others see more clearly the true benefit. I walk, talk and give. I challenge you to do the same and experience a most potent perk to your own mental health while you are helping others do the same.

As a call to action, I challenge the reader to form a team, raise funds and promote awareness.

Board of Directors President Ken Herrmann, NAMI Founder Nancy Abraham, Walk Manager Heidi Hastings, Mental Health Advocate Corinda Rainey-Moore, NAMI Dane County Executive Director Jeanne McLellan
Daniel Stout Photography

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