MS Society Annual Report 2012/13

The Multiple Sclerosis Society of South Australia & Northern Territory Annual Report 2012-13 1

“I received assistance from the MS Society through the MS Choice Awards to get hand controls installed in my car and lessons through the Driving Solutions program. Having hand-controls fitted to my vehicle has returned my independence, no more waiting for transport, and I adapted to a new way of driving after only a few lessons.” Pam

Contents Board of Directors

4

Awareness 11

Dashboard 17

President’s Report

5

Multiple Solutions

Audit Report

CEO Report

6

Fundraising 14

Acknowledgements 23

Summary Financial Report

Locations 24

Services 8

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12 16

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Our Vision

What is MS?

Seeking the cure.

Multiple Sclerosis (MS) is a long term disease that over time causes disability. The disease involves the gradual destruction of the central nervous system (brain and spinal cord) by the body’s own immune system.

What causes the immune system to destroy the central nervous system is unknown. MS is considered the most common neurological condition affecting young Australian adults.

Providing the care.

Our Mission The Multiple Sclerosis Society of SA & NT Inc. helps to minimise the impact of multiple sclerosis on individuals, their families, carers and the community, whilst supporting research into improved treatments and ultimately finding a cure.

Our Values • Compassion & Empathy • Diversity & Inclusion • Honesty & Integrity • Customer Focus • Collaboration • Commitment • Excellence

White blood cells (part of the immune system response) move from the blood stream into the fluid that circulates and nourishes the brain and spinal cord. These cells actively attack and damage the protective covering over the nerves (myelin), resulting in the development of scar tissue/ sclerotic patches (or plaques).

As the nerves become more scarred, electrical impulses are no longer able to travel along them causing a loss of muscle control and function. The brain can also be affected, resulting in memory loss, behavioural changes and other cognitive symptoms.

MS is progressive, unpredictable and often varies in its severity from one person to another. There is no cure for MS, but current treatments do alter the course of the disease by reducing the frequency and severity of relapses.

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Board of Directors Tony Abbott AM

Josie Huppatz

Pamela Lockyer

Honorary President.

LLB (Adel) BCL (Oxf), Lawyer, Chairman of partners of Piper Alderman since 1999, former President of Law Society of SA, former President of Law Council of Australia, Board member Multiple Sclerosis Australia, Board member of The Society for 29 years, Honorary President since 2005.

Josie’s background is in education.

She has been involved in teaching, administration and consultancy for over 30 years in country and city schools. In more recent years she has also been involved in organisations providing aged care, residential accommodation for people with intellectual disability and residential care for people who are homeless. Her present work is as school chaplain, mentor to school staff in leadership positions and as a counsellor in private practice. She has been on the Board for two years.

Pamela’s background is in Community Service, Public Policy and Management, Education and Health, and more recently Federal Politics. She has worked in senior management positions and served on a variety of not-for-profit Boards. Previously CEO of the Asthma Foundation of SA, YWCA of Adelaide, Diversity Directions and the SA Multicultural Child Care Unit. Pamela is a Director of Joe Cools Pty Ltd and a student of the School of Practical Philosophy.

Max Harris

A Board member from 2012, Libby is an Occupational Therapist (OT) who has worked in the community and vocational disability area for most of her working life; with 21 years at the MS Society. She is currently employed as a Senior OT by the Department of Community and Social Inclusion (DCSI) in the Adult Specialist Services Intervention Support Team (ASSIST), providing services to adults with a disability.

Libby is also the primary carer for her mother.

Alan Scott Honorary Vice President/Treasurer.

Board member since 1999, principal of BRI Ferrier, a national affiliation of specialist insolvency practices and member of the South Australian committee of Insolvency Practitioners Association of Australia.

Mark Taplin A Board member since 2006, Mark lives and works in Victor Harbor, and has had MS for about 10 years. His three boys all have a disability, and he is extremely passionate about the plight of people living with a disability in SA. Mark has also been an MS Advocate at a national level.

Max Harris became a board member in July 2011. Max has worked in the financial services industry for over 55 years. He has served as Director on the inaugural Board of National Insurance Brokers Association of Australia, Chairman of the Directors of Protection and Superannuation Planners (now Millennium Financial Services), on the Board of the Adelaide Convention Centre, Chairman of the Adelaide Clipsal Giants Baseball Club, Board Member of the Salvation Army Business Development Board and as Executive Chairman of Max Harris & Associates.

He is currently Executive Chairman of Maximum Wealth Advisors, and Director of Bernie Lewis Home Loans, Bernie Lewis Wealth Management and Bernie Lewis Group.

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Libby Morris

Irma Ferro (resigned April 2013)

President’s Report Let us hope that in some future document a president can report that in view of advances in this area the Society has become redundant.

Secondly, the introduction of the National Disability Insurance Scheme is now as certain as political things can be, albeit some years away from commencement for people with MS. It was very pleasing to see bipartisan support for the scheme during the year.

While it is always a pleasure to report to members and supporters of the Society, the pleasure is even greater in 2013.

First, the feedback the board receives continues to indicate that the Society is, with limited resources, and without significant help from the government, still performing very valuable and appreciated services for its members and other citizens of SA and NT with an allied neurological disability. That is of course our essential function.

One of the most significant services we can provide is to assist people with MS to obtain and remain in jobs, and last year we placed 273 people in jobs, and helped 49 others to retain their existing jobs.

The necessary qualification to this approbation is that we know there is much unmet need, including in the employment area. The November 2012 Needs Analysis of Australians with MS document is recent corroboration. The Board has commenced an examination of the impacts of this document for our Society and its members.

The Society continues to provide funds to Multiple Sclerosis Research Australia (MSRA) for research into the cause, prevention, cure and treatment of MS. This year there have been some more advances in unlocking the mysteries of this elusive disease.

The scheme has great potential, but we must be careful not to let expectation run ahead of reality. No doubt governments of every hue will look closely at the affordability of the scheme, and it may well be that after such examination and after the scheme is trialled in the various sites around Australia there will be some moderation to the benefits to be provided under the scheme.

In this connection the Society will do what it can to ensure that the administration of the scheme is simple and accessible and that the resources available are not unduly used in layers of expensive, time consuming and frustrating bureaucracy. The federal body, Multiple Sclerosis Australia (MSA), has a key role in this area, and is now working under a new CEO and with a new direction focussing on advocacy and communications formulated by MSA’s owners, the state MS Societies. As the Society’s representative on the MSA board I kept and will continue to keep MSA’s work in this area under close review.

Next, it is pleasing to report that financially and operationally the Society appears to be in the process of returning to a healthy position. Operationally, despite the loss of our Multiple Solutions CEO James Bardsley in April 2013, key Employment staff have been retained, and have been motivated to work even harder and more effectively to assist people with MS.

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Structurally, the Board approved in December 2012 a change whereby from that date only the Society CEO Graeme Warnock reported to the Board, with all other managers including the Multiple Solutions CEO reporting through Graeme. In hindsight this was a simpler and more logical structure than the 2 CEO’s reporting to the Board structure on which I reported on last year. Certainly the Board has been very encouraged by the results that Graeme has achieved throughout the year. The success of the inaugural November 2012 Mud Run and the revitalisation of the Society’s Fundraising department are particularly due to Graeme’s vision, energy and talents.

There is light at the end of the tunnel financially too.

The Mud Run was not only a great success from an awareness and fun point of view, it also shows great promise in this and forthcoming years to produce a very solid financial return to the Society.

It was also extremely good news to be awarded increased market share in metropolitan Adelaide following our successful tender to the Commonwealth Department of Education, Employment and Workplace Relations for the provision of employment services to people with a disability. While rapidly expanded businesses can have teething problems during the expansion, from which we are not exempt, again there is great promise of a substantial increase in financial return from the Multiple Solutions Employment arm of the Society. Great credit is due to James Bardsley and his dedicated and skilful team who put together the tender.

Our lotteries division continues to provide good income for the Society, and the Board are very appreciative of all the efforts of Fundraising Manager Suzy Dimaline and her team.

President’s Report continued

CEO Report

On behalf of the board I most sincerely thank our staff and our volunteers for their tireless efforts.

It is necessary to record some events and other thanks.

The ownership of MSRA changed from the state societies to MSA. With MSA now having a CEO this will allow for more effective monitoring of the work of MSRA and more effective cooperation between MSRA and societies.

During the year board members Irma Ferro and Mark Taplin resigned, and Josie Huppatz resigned shortly after the end of the year. They all made valuable contributions and we will miss them. Since the end of the year Professor Mark Slee of Flinders University Medical Centre has been appointed to the Board.

We live in a time of great change, and the horizons for people with MS seem to change weekly.

There have been very significant research developments into the causes of Multiple Sclerosis over the past twelve months, as followers of the Multiple Sclerosis Research Australia (MSRA) and Multiple Sclerosis International Federation (MSIF) websites will be well aware.

We all hope for that day we will head a very important announcement of a cure or prevention for MS.

I thank all the members of my Board for their cheerful, thoughtful and (mostly!) uncomplaining attention to their onerous duties.

Finally, I wish to record thanks to all those sponsors, donors and volunteers who have supported the Society in cash and kind throughout the year, without which the Society would not be able to provide the services it does. Special recognition ought to be given to the families of those deceased persons who have departed this life but in their will remembered the needs of the Society.

In the meantime, like other MS Societies around Australia and the world, The MS Society of SA & NT is aware of the need to provide ongoing support to people living with MS. The last year has seen significant change in our Society, with our focus moving away from a business model of service delivery to one of more personal engagement and a better understanding of the needs of People with MS (PwMS).

Notwithstanding that sombre note, the Board remains optimistic for the future and committed to serving members and people with MS.

Tony Abbott Honorary President

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CEO Report Continued Our changing focus in service delivery has been informed by the publication in November 2012 of “A Needs Analysis of Australians with MS”, prepared by Deakin University in collaboration with MSRA*. The findings were derived from two studies involving nearly 3,000 people with MS across Australia. The results have been considered and supported by our People with MS Committee, and we are responding to the identified needs within the limitations of our resources. The development of a new strategic plan over the coming months will focus on identifying the gaps between the needs and the services we deliver, so that we can better resource services to deliver the identified needs.

Another significant change during the year was the development of the National Disability Insurance Scheme, with its eventual rollout in several sites around Australia on July 1, 2013. The MS Society of SA & NT, in conjunction with MS Societies around Australia, participated with other disability organisations through the Neurological Association of Australia to lobby the federal government to changes to the scheme so that the needs of PwMS were better provided for. We achieved significant changes to the scheme as a result of this lobbying.

In February 2013 we commenced a collaboration with Alwyndor at Hove to provide some physiotherapy classes and assessments on our behalf. This has been popular with our clients, as it has allowed the provision of some services closer to where people live, in a very professional and friendly community environment. Our thanks go to Alwyndor management for taking on this role.

We intend to enter into more such collaborative efforts with other community-based organisations to better spread the delivery of services to more accessible outlets, whilst building on the community focus that such organisations provide.

In December 2012 we held the inaugural Bernie Lewis MS Mud Run, at Urrbrae Agricultural High School.

The event was a lot of fun for those participating or watching, and returned a surplus back to the Society. It is not common for new events to break even in their first year, but the Mud Run did better than break-even, and the 2013 event is shaping up to be bigger and better! Just as important as the funds raised is the opportunity that such events provide to raise community awareness about MS, and of the needs of PwMS. A particular highlight of the year was the awarding to the Society of a five-year contract for the provision of employment and employment support services for people with a disability. This DES-ESS contract was awarded by the federal Department of Education, Employment and Workplace Relations (DEEWR), following our lodgement of a competitive tender with them. This contract extends our very successful service to PwMS and people with other disabilities; employment leads to so many improvements in the lives of people, not the least being increased self esteem, and of course the financial benefits. The opportunity to mix in a social context is also often identified by people we place into employment as a very significant outcome.

Our staff right across the Society have performed brilliantly during the course of the year. Many, especially in employment, have needed to change premises during the year, and it is never easy to undertake such a move and at the same time maintain services. Some people have of necessity been asked to accept a change of role, as we focus our attention on the needs of PwMS. They have accepted these changes in great spirit, with vigour and professionalism.

I am proud of all our staff; they are totally committed to the Society and our members and clients, and work often under difficult conditions. To our staff, I say a big “thank you”.

The role played by our Board has a significant impact on the success of the Society, and I want to thank all Board members for their very significant dedication, support and guidance they have provided to me and the staff over the last year. They dedicate a lot of time and expertise, at no financial reward to themselves, for the betterment of the Society and its works. I thank them with much admiration of their contribution.

And finally, to the many people with MS who have let me into your lives during the year, I say a heart-felt thank you. I have appreciated the openness, the frankness with which you have communicated with me to help me better understand your needs.

Graeme Warnock CEO MS Society of SA & NT

*McCabe M. A Needs Analysis of Australians with MS, 2012. Prepared for MS Research Australia by Prof Marita McCabe, Deakin University, Melbourne, Victoria, Australia.

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Services In April 2013 Michelle Anderson was appointed to the role of Manager, MS Assist to oversee the management & development of new services for people with MS. Our first step in this process was to introduce a new service stream entitled Community Development.

This team is responsible for developing community-based services for people with MS in response to the outcomes of the National Needs Analysis survey.

The team’s first task was to develop a telephone information service, which we believe is an important resource not only for people with MS, but also family members, carers, other health professionals and the general public. This new service would not have been possible without the generous donation from the Estate of Mr Kevin James, for which we are very grateful.

In 2013/14 the Community Development team will focus on developing a volunteer support service that will enable us to offer both 1:1 and group based support for social activities such as shopping, coffee mornings, fishing, gardening and special interest learning groups covering topics such as Basic Internet Skills.

Education and Peer Support will also come under this area and will see an increase in activity and resources over the next financial year.

The Social Work department also received a boost with the introduction of the new role of MS Service Coordinator. This role provides practical support to people with MS and their families with issues relating to housing and accommodation, assistance with Centrelink applications and appointments, budgeting, home help, transport and accessing community or government services. The service assisted over 45 people in its first 4 months and achieved some outstanding results for clients.

Outreach visits have unfortunately been fewer this year but it is our intention to reinstate a regular outreach schedule next year.

It is important to acknowledge that we need to provide a much better service to our regional and Northern Territory clients and this will be our focus in 2014. We believe strongly that partnering with other community services is the key to success and this is where we will be focusing our energy in the coming year.

Finally, I would like to formally acknowledge and thank our wonderful services staff who bear witness to the highs and lows of the MS journey every day and who continue to make a positive difference in the lives of people with MS. Michelle Anderson Manager, MS Assist

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Service Highlights 2012/13 Physiotherapy & Exercise Physiology The MS Hero (Health, Exercise and Rehab Opportunities) program was established to bring together a range of health and exercise options for clients including exercise groups, motorised exercise pedals, vibrogym, hydrotherapy, physical assessment and individual exercise programs.

During 2012/13 over 200 clients utilised the services offered by our Physiotherapy and Exercise Physiology team.

Occupational Therapy Our Occupational Therapy (OT) department continued to deliver services on behalf of the Department for Communities and Social Inclusion with over 260 referrals actioned. Many of these referrals were complex in nature requiring multiple assessments and equipment prescriptions.

During 2012/13 the OT team also completed 3 driving assessments, 13 assessments for the Department of Veteran Affairs, 5 fee-for-service assessments and 39 Employment Assistance Fund assessments on behalf of DEEWR (National Panel of Assessors contract).

Social Work In partnership with Bower Place our small but dedicated Social Work team continued to support over 50 people with highly complex needs and our new Service Coordinator assisted 46 people with MS to resolve a range of practical issues within the first 4 months of appointment.

Nursing The Nursing team continued to provide a range of support and information to people newly diagnosed with MS, including advice and training on medication, symptom management and education seminars. Over the 2012/13 financial year our nursing team received 160 referrals for people newly diagnosed with MS and made over 550 followup calls/visits to clients. They also took a further 146 calls from agencies or individuals seeking general information about MS and attended regular training forums with pharmaceutical companies to keep abreast of medication and drug therapies.

Peer Support Interest in our Peer Support groups continues to grow and we now have 17 groups registered throughout metro and regional SA. Our online support group ‘My Society’ has continued to grow and prosper. This group was originally set up to support people who lived in more isolated areas and couldn’t get to support groups and those who didn’t have time to attend established peer support groups or didn’t yet feel comfortable meeting in person with others with MS. We have grown this group into a community of 150 members. The group are extremely supportive of each other and now arrange regular catch ups to meet in person.

“I have noticed a huge improvement to my balance since attending the MS Society aquatic therapy classes.”

Jenny

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Services A New Service Partnership The Marion MS exercise group commenced in 2005 at the Marion Salvation Army hall and over the years has been facilitated by a range of Society staff including therapy assistants, physiotherapists, exercise physiologists, fitness instructors and students. With changes in staffing and funding, the Society was unable to continue running classes in this way and so in 2012 we began to consider alternatives that would ensure the long term viability of our exercise groups.

In keeping with our strategic goal of increasing service accessibility through partnerships with other community services, the Society approached the local Day Therapy Centre at Alwyndor.

Feedback from clients and staff from both organisations has been extremely positive. Alwyndor staff are now able to complete assessments for clients referred to the exercise group, thus freeing up our own therapist’s time to establish and run services in more locations. The partnership has been so successful that Alwyndor now provides the group venue free of charge.

In 2013/14 we hope to replicate this model in other Day Therapy Centres across South Australia and Northern Territory, thereby providing more services to more people, in more locations.

Alwyndor is an Adelaide based not-for-profit provider of aged care accommodation, community care and therapy services located in the seaside suburb of Hove. Alwyndor is owned and managed by the City of Holdfast Bay and has recently undergone extensive renovations ensuring state-of-the-art facilities and accessibility.

Alwyndor was enthusiastic about the proposal as it fitted perfectly with their own aim of increasing local community usage of the facility. An agreement was negotiated and the former Marion Exercise Group commenced classes at Alwyndor in February 2013. Our therapists provided Alwyndor staff with training and information about MS and classes were supported jointly while staff and clients adjusted to their new surroundings.

The Alwyndor exercise group 10

Awareness The 2012/13 year saw some fantastic media coverage and awareness for the MS Society of SA & NT. The Bernie Lewis MS Mud Run was featured with a full colour photo in SA Life magazine.

We received some television coverage for the event on Channel 10 with the Mud Run featured in a live weather cross and on ‘The Whip Around’ segment of The Project. Post event there was an online photo gallery featured on the Adelaide Now website and an article in The Advertiser.

The Kiss Goodbye to MS campaign produced a large number of print articles, with an article on Brittany Christensen, one of our clients, featured on the front page of The Advertiser on May 1st. Many of our other fundraisers had stories featured over the month of May, helping to create public awareness about multiple sclerosis.

The MS Society’s social media presence continues to grow and is both an effective form of communication to our clients and awareness in the community. Our Facebook page keeps people informed about what’s happening at the society including events, seminar information, research breakthroughs and topical news stories relating to MS. Our Facebook page gained 226 new fans for the year and our MS Mud Run Facebook page grew to 1730 likes in its first year.

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Multiple Solutions 2012 was a very special year for Multiple Solutions as it marked our 20th anniversary of delivering employment support services to people with MS. First established in 1992 as a pilot project, Multiple Solutions has grown over the years to become a leading provider of Disability Employment Services on behalf of the Federal Government. Our specialised Workplace Support service is now one of the largest in Australia and an expert in helping people with MS and other chronic neurological conditions stay at work.

In October 2012 Multiple Solutions celebrated its 20th Anniversary with a gala evening honouring its top 20 South Australian “Employers of Choice”. Each of these employers has provided a person with a disability or chronic health condition the opportunity to contribute to the workforce in a valued capacity. Against a backdrop of blue, guests including politicians, employers, people with disabilities and staff listened as our MC for the evening, local radio personality Andrew Reimer, narrated some truly inspiring stories of determination, dignity and success.

We would once again like to congratulate the following employers who received awards on the night: • • • • • • • • • •

Peregrine Corporation Southern Junction Community Services Longford Cleaning MarionLIFE Community Services Carbridge Foodbank SA Allan Miller Driving School Port Adelaide Football Club Multi Slide Industries Kerry Logistics

• • • • • • • • • • •

Barossa Fine Foods Custom Cartons Carers That Care Festival Hire Bowden Brompton Community Centre Hon Russell Wortley MLC ClinEdSA SA Health Muscular Dystrophy SA Coles Parkholme Somerton Surf Life Saving Club Bureau Veritas Adelaide

Our Mission: At Multiple Solutions we provide high quality, holistic and inclusive services that empower individuals to improve the quality of their lives.

In the 2012/13 financial year Multiple Solutions helped 273 clients with disabilities or significant disadvantages to commence sustainable employment under a normal employee-employer relationship.

The services provided by Multiple Solutions are funded by the Department of Education, Employment & Workplace Relations under strict contract conditions which expired in February 2013. In planning for new national contracts in 2012 the government decided to use a competitive tender process thereby opening up the sector to potential new providers.

For the first time Multiple Solutions formed a consortium with the MS Societies in Tasmania and WA to bid for business in 3 states. Despite stiff competition Multiple Solutions was successful in its tender bid in 3 Adelaide regions and one Tasmanian region, increasing our overall market share from the previous contract. This growth resulted in new offices opening in Enfield, Morphett Vale, Salisbury and our first interstate office in Launceston and marks the start of an exciting new era for Multiple Solutions.

Most importantly it enables us to continue delivering high quality employment support to people with MS.

Multiple Solutions 20th Birthday Celebrations 12

Vanessa’s Story Multiple Solutions assisted Vanessa apply for the year-long Foundation Studies course at UniSA after she expressed a long term goal of becoming a school teacher. The course provides Vanessa with a solid understanding of the requirements for future university studies as well as a pathway for students who may not have achieved a high enough ATAR score in high school to enter a university degree of their choice.

When Vanessa commenced her first semester of Foundation Studies she had little knowledge of what was expected of her and often felt overwhelmed with the course load. As Vanessa is a native Italian speaker and English is her second language, she sometimes found the academic terminology used by lecturers daunting.

Vanessa’s Multiple Solutions Employment Consultant helped her develop time management skills and provided her with skills to deal with performance anxiety when assessments and exams neared their due date. She also advised Vanessa of UniSA’s academic support services and how to access them. When Vanessa accessed the support services she realised that, with just a little fine tuning, she already had the academic writing skills needed to complete her assessments and was simply lacking confidence to do so. With this in mind, Vanessa became more determined and focused and successfully completed her first semester.

After having mastered her anxieties and feeling more at ease with her study load in the second semester, Vanessa and her Employment Consultant discussed part time work opportunities to financially support herself through University. Vanessa has fabulous communication and engagement skills and her Employment Consultant talked to her about working within an Italian restaurant as a waitress. The Employment Consultant explained that being fluent in Italian and being able to work well with others an obvious advantage. Vanessa was most excited by this idea, and explained that waiting tables and serving customers as a job while at University was actually a dream of hers and overall quite poetic. An interview was arranged at a well known Italian food establishment for Vanessa. Being as passionate as she was, Vanessa suited the requirements for the establishment as long as she first completed barista training. Multiple Solutions sourced and funded a barista course for Vanessa before she returned to the employer with her barista certificate. After a two hour trial period, Vanessa was formally employed.

Multiple Solutions made contact again with the employer and was able to negotiate at least 15 hours of employment a week with a wage subsidy paid to cover the costs involved in her training.

Vanessa remains in employment and her employer is suitably impressed with Vanessa’s level of enthusiasm and work ethic.

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Vanessa is saving up to buy herself a new mobile phone and is enjoying managing the competing demands that come from juggling work and study. She is also fully appreciating the moments she has off in between.

Multiple Solutions’ services are delivered by highly trained professionals dedicated to providing tailored services to clients who are empowered with choice and control of how support is provided. Our Employment Consultants provide vocational counselling and arrange skill development and training opportunities for our clients as well as assisting our Job Creation Consultants in sourcing and modifying suitable employment opportunities. Long term support is delivered by our Ongoing Support team and Workplace Support Consultants deliver services to clients whose existing employment is threatened as a result of their disability. All of these staff are backed up and supported by our superlative administrative staff.

Fundraising Fundraising at the MS Society has grown into a multi-channel operation that includes lotteries, giving programs, events, community fundraising, direct mail and bequests. It offers our donors numerous options of supporting the Society. With very little government funding, Fundraising

contributes to almost 40% of the total funds needed to

deliver services for people with MS and their families and carers.

It is a vital component of the MS Society which would not be able to operate without the generosity of the donors who we see as our Partners of Change, true MS

Champions, you!

Our largest source of income was generated by our Lotteries Department which comprises of 20 part time operators, who collectively made 1,105,676 calls and talked for 15,317 hours!

As a result of their hard work and commitment, a total of 228,000 tickets were sold and 199 cash

prizes totalling $456,000

were awarded to our lucky lottery winners. Of the 3 lotteries held in the 2012/13 financial year, the 3 major winners each

collected $100,000 in prize money, resulting in some very

happy people living in Cavan SA, Renmark SA and Para Hills SA.

MS events were in full force in 2012/13 with the introduction of the largest and most unique event the MS Society of SA & NT had ever undertaken. The Bernie Lewis MS Mud Run, a military style obstacle race (in mud!) was the first of its kind in Adelaide and the MS Mud Crew were very proud to be involved in such a successful event that raised funds for new services such as MS Assist, a freecall information and referral service, supporting people throughout their MS journey, for the rest of their lives.

Over 60% of people surveyed

said the event increased their awareness of multiple sclerosis and the struggles that people living with MS face on a daily basis. Just under 2000 people participated on the day and around 10,000 spectators turned out in full force to witness the muddy spectacle. Over 150 amazing volunteers helped deliver the event. Participants raised $110,415 in donations, an awesome achievement for a first year event and as a result of their outstanding efforts we will be bringing the Bernie Lewis MS Mud Run back in 2013.

Thank you to all of the participants, sponsors, event partners, supporters, volunteers, staff and spectators who welcomed the Mud Run into their lives and onto their social calendar.

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A special thank you to Mark Lewis and his team at Bernie Lewis for having the courage to put their name to such a ‘wacky concept’ and as Mark put it “It worked!”.

We look forward to partnering with them again in 2013.

Overall it was a year of hard work, growth and achievements for the fundraising department and we welcome the greater challenges that we know 2013/14 will bring.

Bernie Lewis MS Mud Run

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Summary Financial Report The summary financial report provided here is an extract of, and has been derived from, the MS Society of South Australia & Northern Territory Inc’s full financial report for the 2012-2013 financial year.

The summary financial report does not, and cannot be expected to, provide as full an understanding of the financial position of the MS Society as the full financial report.

Further financial information can be obtained from the full financial report which is available, free of charge, on request to the MS Society.

Directors’ Report Your Directors submit their report and the financial statements of the consolidated entity of The Multiple Sclerosis Society of South Australia and Northern Territory Inc and the MS Society of SA & NT Foundation (MS Society) for the year ended 30 June 2013.

Directors The names of the members of the Board of Directors who serve in a voluntary capacity and are not remunerated, in office during the year and to the date of this report are: Mr A N Abbott (Honorary President) Mr A G Scott (Honorary Vice President & Treasurer) Mr M Harris Ms P Lockyer Mrs E Morris Ms I Ferro (resigned April 2013) Mr M Taplin (resigned July 2013) Sr J Huppatz (resigned August 2013) Directors’ Benefits No Director has received or become entitled to receive, during or since the financial year, a benefit as a result of a contract made by the MS Society with a Director, a firm of which a Director is a member or an entity in which a Director has a substantial financial interest, except as noted in the financial statements at Note 13.

Principal Activities

Operating Results

The principal activities of the MS Society are the provision of member services, education, information and the allocation of funds for research into the cause and subsequent cure for multiple sclerosis.

The consolidated operating loss for the financial year as a result of the MS Society’s activities amounted to $118,810 (2012 loss of $530,486).

The MS Society also operates a Disability Employment Service that provides employment related services to people with a disability funded through the Department of Education, Employment and Workplace Relations (DEEWR). This service is operated by the Employment Services Department under the brand name, Multiple Solutions. Multiple Solutions has grown into a large operation, with the aim of attracting funding to support a range of people in need including people living with MS. The MS Society established a charitable trust, in June 2003, named the MS Society of SA and NT Foundation for the purpose of expanding specific MS Society activities. The Society exercises control over the Foundation as a result of the existing management and operational arrangements between the Society and the Foundation. The sources of Foundation revenue are bequests and capital fundraising.

Significant Changes At its December 2012 Board meeting, it was resolved that the MS Society and Multiple Solutions will not be legally separated. Multiple Solutions will be referred to as the brand name for the Employment Services Department.

The MS Society was successful in winning the DEEWR tender for a contract period of five (5) years in conjunction with MS Societies of Tasmania and Western Australia to provide services to both South Australia and Tasmania.

There were no other significant changes in the nature of the activities of the MS Society during the year.

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Future Developments There are no significant future developments identified by the MS Society.

After Balance Day Events There has not arisen in the interval between the end of the financial year and the date of the report any item, transaction or event of a material and unusual nature likely, in the opinion of the Directors, to affect substantially the operations of the MS Society, the results of those operations or the state of affairs of the MS Society in subsequent financial years.

Environmental Issues The MS Society’s operations are not regulated by any significant environmental regulation under a law of the Commonwealth or a state or territory.

Indemnifying Officer or Auditors The MS Society paid for the insurance premiums of Directors and Officers Liability Insurance policy indemnifying Directors and Officers. No other indemnities have been given or insurance premiums paid, during or since the end of the financial year, for any person who is or has been an auditor of the MS Society.

Proceedings on behalf of the Entity No person has applied for leave of a Court to bring proceedings on behalf of the MS Society or intervene in any proceedings to which the entity is a party for the purpose of taking responsibility on behalf of the entity for all or any part of those proceedings.

The MS Society was not a party to any such proceedings during the year.

Dashboard Benefits Payable to Directors and/or Officers

Revenue Sources

During the financial year: (i) no officer of the MS Society;

Others 2.06%

(ii) no firm in which an officer was a member; and

Donations & Bequests 7.54%

(iii) no body corporate in which an officer has a substantial interest; has received or become entitled to receive a benefit as a result of a contract between the officer, firm, or body corporate and the MS Society and no officer has received either directly or indirectly from the MS Society any payment or other benefit of a pecuniary value, except as noted in the financial statements at Note 13.

This report is signed for and behalf of the Directors in accordance with a resolution of the Board of Directors.

Pharmaceutical Contracted Services 7.54% Government Contracted Services 3.19% Business Activities 53.20% Fundraising Activities 32%

Fundraising Income Breakdown

Other Events & Community Fundraisers 5% A.N. Abbott Director

Mighty Swim 5% Mud Run 9% Direct Mail 6%

A. Scott Director Dated at Adelaide this 25th day of September 2013

Lottery Sales 76%

Breakdown of cost of Services Employment Services 68% MS Assist Services 3% Community Development 9% Physiotherapy 7% Occupational Therapy 6% Nursing & Social Work 8%

17

Comparative Income and Expenditure Statements for the years ended 30 June 2013 and 2012 Consolidated

The Society

Notes*

2013 $

2012 $

2013 $

2012 $

2

8,134,273

6,699,202

7,712,398

6,416,205

Revenue Employee Benefit Expense

(5,348,361) (4,684,330)

Depreciation & Amortisation Expense

(5,348,361) (4,684,330)

(193,598)

(149,802)

(193,598)

(149,802)

(1,205,159)

(1,130,797)

(1,205,159)

(1,130,797)

(496,897)

(387,063)

(496,897)

(387,063)

MS Australia Contributions

(66,349)

(52,110)

(41,141)

(27,110)

Operating Lease Expenses

(553,469)

(539,782)

(553,469)

(539,782)

Other Expenses

(389,250)

(285,804)

(377,990)

(200,319)

Surplus (Loss) from Operations

(118,810)

(530,486)

(504,217)

(702,998)

Fundraising Activity Expenses Client Support Costs

*Accompanying notes available from the MS Society of SA & NT

Comparative Statement of Changes in Equity for the years ended 30 June 2013 and 2012 Consolidated

The Society

Asset

Retained Revaluation Earnings Reserve $ $

Asset

Total $

Retained Revaluation Earnings Reserve $ $

Total $

Balance at 30 June 2006

1,139,841

76,332

1,216,173

818,227

76,332

894,559

Loss from Ordinary Activities

(356,153)

-

(356,153)

(369,994)

-

(369,994)

Balance at 30 June 2007

783,688

76,332

860,020

448,233

76,332

524,565

Loss from Ordinary Activities

(81,904)

-

(81,904)

(118,847)

-

(118,847)

Balance at 30 June 2008

701,784

76,332

778,116

329,386

76,332

405,718

(180,594)

-

(180,594)

(214,415)

-

(214,415)

-

301,951

301,951

-

301,951

301,951

Loss from Ordinary Activities Revaluation of Land & Buildings Balance at 30 June 2009

521,190

378,283

899,473

114,971

378,283

493,254

Surplus from Ordinary Activities

997,303

-

997,303

7,988

-

7,988

Transfer from/to Reserves

378,283

(378,283)

-

378,283

(378,283)

-

Balance at 30 June 2010

1,896,776

-

1,896,776

501,242

-

501,242

(771,811)

-

(771,811)

(832,443)

-

(832,443)

Balance at 30 June 2011

1,124,965

-

1,124,965

(331,201)

-

(331,201)

Loss from Ordinary Activities

(530,486)

-

(530,486)

(702,998)

-

(702,998)

Balance at 30 June 2012

594,479

-

594,479 (1,034,199)

(118,810)

-

475,669

-

Loss from Ordinary Activities

Loss from Ordinary Activities Balance at 30 June 2013

18

(118,810)

- (1,034,199)

(504,217)

(504,217)

475,669 (1538,416)

- (1,538,416)

Statement of Financial Position as at 30 June 2013 and 2012 Consolidated

The Society

Notes*

2013 $

2012 $

2013 $

2012 $

Cash

4

245,169

346,052

244,290

345,140

Receivables

5

509,105

375,588

508,305

374,920

Other Asset

6

63,584

14,454

63,584

14,454

Financial Assets

7

237,008

456,694

-

6,520

1,054,866

1,192,788

816,179

741,034

538,190

386,519

538,190

386,519

538,190

386,519

538.190

386,519

1,593,056

1,579,307

1,354,369

1,127,553

9

506,919

484,428

2,282,317

1,661,352

Loans Payable

10

16,976

-

16,976

-

Provisions

11

416,192

334,678

416,192

334,678

940,087

819,106

2,715,485

1,996,030

Assets Current Assets

Total Current Assets Non-Current Assets Property, Plant and Equipment

8

Total Non-Current Assets Total Assets Liabilities Current Liabilities Trade and Other Payables

Total Current Liabilities Non-Current Liabilities Loans Payable

10

84,824

-

84,824

-

Provisions

11

92,476

165,722

92,476

165,722

177,300

165,722

177,300

165,722

Total Liabilities

1,117,387

984,829

2,892,785

2,161,752

Net Assets

475,669

594,479 (1,538,416) (1,034,199)

Retained Earnings/ (Accumulated Losses)

475,669

594,479

Total Equity

475,669

594,479

Total Non-Current Liabilities

Equity

*Accompanying notes available from the MS Society of SA & NT

19

(1,538,416)

(1,034,199)

(1,538,416 (1,034,199)

Statement of Cash Flows for the years ended 30 June 2013 and 2012 Consolidated Notes*

The Society

2013 $

2012 $

2013 $

2012 $

Receipts from Fundraising Activities

2,455,280

2,430,261

2,455,412

2,430,261

Receipts from Employment Services

3,858,404

2,684,813

3,858,404

2,684,813

Operating Grant Receipts

259,439

304,646

259,439

279,646

Other Receipts in the Course of Operations

710,260

417,407

691,377

339,416

Donations/Bequests Received

613,666

532,963

306,042

257,963

(8,071,477)

(6,777,521)

24,030

1,099

1,015

-

7,971

11,722

7,324

4,825

(6,379)

(109)

(6,379)

(109)

(148,806)

(394,719)

(455,877)

(628,732)

(345,269)

(96,852)

(345,269)

(96,852)

Receipt from Sale (Payments) of shares held as Investment

291,392

244,008

-

(1,098)

Net Cash (used in) provided by Investing Activities

53,877

147,156

(345,269)

(97,950)

101,800

-

101,800

-

Payments received/(Advances) made

-

-

1,175,920

1,177,424

Repayments made

-

-

(1,177,424)

(265,042)

101,800

-

700,296

912,382

(100,883)

(247,563)

(100,850)

185,700

346,052

593,615

345,140

159,440

245,169

346,052

244,290

345,140

Cash Flows from Operating Activities

Cash Payments in the Course of Operations Dividends Received Interest Received Interest Paid Net Cash (used in) provided by Operating Activities

15

(8,028,511) (6,625,547)

Cash Flow from Investing Activities Payments for Property, Plant and Equipment

Cash Flows from Financing Activities Loan advances from finance companies (net) Loss from(to) related parties:

Net Cash (used in) provided by Financing Activities Net Increase (Decrease) in Cash Held Cash at Beginning of Financial Year Cash at End of Financial Year

15

*Accompanying notes available from the MS Society of SA & NT

20

Audit Report

21

Audit Report

22

Acknowledgements Foundations and Grants AET Discretionary Charitable Trusts Donations (over $1000) Anne Ness B Dahlsen Beth Howard Bronwen Jones Camille Domaille Don & Grace Gilchrist Donna Moore Glenda Creek Holdfast Lodge - 30 Jane Franklin Robert Kenrick Stephanie Toole The Fay Fuller Foundation Tony Abbott

Community Supporters Ansett Down to Earth Club Cheryl Stevens Church of Christ Colonel Light Gardens Concordia College Darwin Steel and Pipe Supplies Peter Bartsch Julie De Cristofaro Florentina Pergoleto Luke Lendrum Masonic Quilters & Craft Group Murray 4 MS South Australia School Surfing Association St Josephs Tranmere Event Supporters Beemede Group Bernie Lewis Centreprint Coopers Core Physiotherapy & Pilates Studio Dale Blackmore Dan’s Gym DBusiness Events Erindale Meats Garden Works Gerard McCabe Highgate Maggie Beer Multiple Solutions Norwood Swim School Ochre Digital Primo Estate SA Water Sudden Comfort The City of Unley The Real Learning Experience Triple M Urrbrae Agricultural High School Zoggs 23

Bequests Made (over $1000) Ava Jean Dunlop (dec) Janet Mary Butterworth (dec) Les Rowe (dec) Barry Thomas (dec) Services Support Bayer Healthcare Biogen Idec Genzyme Merck Serono Sanofi Aventis Novartis Government Supporters Department of Community & Social Inclusion (DCSI) Department of Further Education, Employment, Science & Technology (DEEFST) Department of Education, Employment & Workplace Relations (DEEWR) University of South Australia (UniSA)

Locations MS Assist 1800 812 311 Head Office / Mawson Lakes Module 6E, Endeavour House Technology Park 11—15 Fourth Avenue Mawson Lakes SA 5095 PO Box 377 Salisbury South DC SA 5106 P (08) 7002 6500 F (08) 7002 6599 Brighton 7a Sturt Road Brighton SA 5048 PO Box 275 Brighton SA 5048 P (08) 8198 1400 F (08) 8377 0711 Christies Beach Level 1, 111 Beach Road Christies Beach SA 5165 PO Box 885 Noarlunga Centre SA 5168

Darwin NT Nightcliff Community Centre 18 Bauhinia Street Nightcliff NT 0810 PO Box 867 Nightcliff NT 0814 P (08) 8948 5300 F (08) 8948 5344 Enfield 273 Main North Road Enfield SA 5085 P (08) 8360 0800 F (08) 8203 6699

Salisbury 6-8 John Street Salisbury SA 5108 PO Box 1069 Elizabeth Vale SA 5112 P (08) 8256 3700 F (08) 8256 3749

Modbury 31- 33 Smart Road Modbury SA 5092 PO Box 525 Modbury SA 5092

Woodville 51 Woodville Road Woodville SA 5011 PO Box 16 Woodville SA 5011

P (08) 8203 6600 F (08) 8203 6699

P (08) 8345 8700 F (08) 8268 4224

P (08) 8392 0100 F (08) 8392 0199

www.ms.asn.au

Morphett Vale Unit 3 204 Main South Road Morphett Vale SA 5162 P (08) 8187 2100 F (08) 8187 2190

24