Page 1

PARKINSON'S DISEASE FOUNDATION

Biennial Report 2012-2013


Table of Contents 2

Letter from Leadership

4

People Advancing Science

10

Science Informing People

14

Our Donors

32

Our Researchers

38

Financial Reports

40

Our People


The essence of PDF’s work over this period may be encapsulated into the following theme: People Advancing Science/ Science Informing People. In these phrases rests the heart of PDF’s strategy: linking our dreams for tomorrow with the necessary tasks of today.

Dear Friend of the Parkinson’s Disease Foundation: With pleasure and pride, we send you Impact, the biennial report for the Parkinson’s Disease Foundation (PDF) for fiscal years 2012 and 2013. The essence of PDF’s work over this period may be encapsulated into the following theme: People Advancing Science/ Science Informing People. In these phrases rests the heart of PDF’s strategy: linking our dreams for tomorrow with the necessary tasks of today. Let us explain. People Advancing Science. In this dimension of our work, PDF harnesses the energies of committed doctors, gifted scientists and generous donors to push the science forward in the quest for new Parkinson’s treatments and — ultimately — a cure for the disease. This commitment has been at the core of PDF’s research strategy since the organization was created more than a half-century ago. This research — investigator-initiated and rigorously reviewed by peers and people with Parkinson’s — takes many forms. One could be the individual scientist in her laboratory, studying potential disease-modifying treatments for Parkinson’s. A second could be the work of a diverse panel of experts exploring the debilitating impulse control disorders that affect so many people with Parkinson’s. A third could be the long-term collaborations of a university-based research team exploring the role of genetics in Parkinson’s disease. In addition to the communities of doctors, scientists and donors who have traditionally led this work, PDF includes a fourth community: lay advocates in the scientific process, trained and deployed by PDF though in-person trainings and an online course. Through this program, known as Parkinson’s Advocates in Research (PAIR), people touched by Parkinson’s can join our network of more than 230 Research Advocates from 42 states who are working to bring about better treatments at a faster pace. These individuals are taking on a variety of challenges, including recruiting individuals for drug trials, providing advice to industry and federal regulatory agencies, and educating support groups.

3 | Letter from Leadership


Letter from Leadership Science Informing People. As much a philosophical precept as it is a program strategy, placing information and education on the firm basis of science is a core principle at PDF. Whatever the medium — our publications and newsletters, our popular website, our online educational seminars, or our online programs of professional education for nurses and physical therapists — PDF serves as an entrepot of relevant, timely and authoritative knowledge and information on Parkinson’s. Our goal is simple: to identify the questions that are uppermost on people’s minds and then to give them answers they can rely on, based on the best science available. Many of you who read this report will be the people who already support PDF’s work financially. It is your generosity that powers our work — on the one hand, advancing, through research of the highest quality, our understanding of Parkinson’s disease, and on the other, through science-based education, improving the lives of people who are touched by the disease. To these people, we offer our heartfelt thanks for all that they have done to date to advance our work, and we hope that they will continue to ride with us on this journey. We invite you to read this report carefully and to contact us at any time if you have questions about our work or about Parkinson’s in general. In the meantime, we wish you good health and happiness during the balance of the year. Sincerely yours,

Robin Anthony Elliott

Howard DeWitt Morgan

President

Chair, Board of Directors

Impact: Biennial Report 2012-2013 | 4


Supporting promising, crowd-sourced, peer and patientreviewed scientific ideas that advance the knowledge of Parkinson’s. Our comprehensive strategy is focused on three results: solving the mystery of its causes, developing new treatments for those who live with the disease and ending Parkinson’s disease forever.

5 | People Advancing Science


People Advancing Science David Sulzer, Ph.D.: Finding Potential Targets for Preventing or Treating Parkinson’s Although the vast majority of cases of Parkinson’s disease (PD) have no known genetic cause, among those that do run in families, the most common mutations occur in the LRRK2 gene (leucinerich repeat kinase-2). Now, researchers led by Ana Maria Cuervo, M.D., Ph.D., at Albert Einstein College of Medicine and David Sulzer, Ph.D., at PDF’s Research Center at Columbia University Medical Center, funded in part by PDF, have shown for the first time, why the faulty LRRK2 protein is harmful, and how it can block the normal cell recycling process. This research was published in the March 3, 2013, online edition of Nature Neuroscience and builds upon earlier work also funded by PDF. Normal cells, including those in the brain, use a recycling and waste disposal system to stay healthy. The process — known as chaperone-mediated autophagy — begins when molecules called chaperones patrol for damaged proteins and then

transport them to a recycling center (the lysosome). After arriving there, the damaged proteins travel to the interior region of the lysosome, where they are broken down into components that can be reused. Drs. Cuervo and Sulzer showed that chaperone-mediated autophagy was capable of recycling healthy LRRK2 proteins, but it was not as successful in breaking down those LRRK2 proteins that had the mutation found in people with Parkinson’s disease. In addition, these faulty LRRK2 proteins then prevented other proteins, such as alpha-synuclein (a protein that causes PD), from getting broken down and recycled. The studies of Drs. Cuervo and Sulzer over the years have spotlighted the need for developing therapies that can help restart or speed up cellular recycling — therapies that could potentially benefit people whose PD has no known genetic cause as well as those who have LRRK2 mutations.

Daniel Segal, Ph.D.: Learning from Other Diseases to Find New Treatments In Parkinson’s disease, the protein that clumps together and causes the disease is called alphasynuclein. If scientists could stop alpha-synuclein from clumping in the brain, this could potentially provide a new treatment for the disease. With funding from PDF, Daniel Segal, Ph.D., of Tel Aviv University, has developed a new molecule, based on quinone, a compound that has been shown to inhibit certain cellular pathways, that may be able to do this. His molecule is small enough to fit into the brain, and is similar to another molecule shown to stop clumping in the protein that causes Alzheimer’s disease. Dr. Segal found that in a petri dish, this molecule was able to effectively prevent alpha-synuclein from clumping together, and that higher doses were more effective than lower doses. Now he is testing the molecule in animal models. His early tests in

fruit flies found that treatment with this molecule resulted in improved motility (measured by climbing behavior) in PD fly models containing excess alphasynuclein in their brains. He now will extend his testing to PD mice models. If he finds this molecule to be successful, this could mean a promising new therapy for Parkinson’s disease. Of course, clinical testing would have to be done in humans to ensure that the molecule is safe and works the same way in humans as it does in flies and mice.

Impact: Biennial Report 2012-2013 | 6


People Advancing Science Sheng-Han Kuo, M.D.: Using Genetics to Find New Treatments Genes, in ways still unknown, contribute significantly to the risk of Parkinson’s disease. Understanding the genetics of those who live with Parkinson’s disease may hold the key to finding a cure. To further our understanding of genetics, PDF established in 2012 the Lucien Côté Early Investigator Award in Clinical Genetics, which supports postdoctoral researchers and junior faculty in the New York City metropolitan area who are studying the genetics of Parkinson’s. One of the first recipients of this award was Sheng-Han Kuo, M.D., of Columbia University Medical Center, who is using induced pluripotent stem cells (iPS cells) to study how changes, or mutations, to certain genes may cause PD. iPS cells are skin cells from people with Parkinson’s disease that have been chemically induced to develop into dopamine neurons, which are the cells that are lost in the brains of people with PD. Dr. Kuo is studying dopamine neurons derived from skin cells that have a specific change to a gene called GBA (the full name is glucocerebrosidase). He wants to determine how changes to this gene affect normal function in the brain, especially how they affect the clumping of alphasynuclein (a protein that causes PD). Past studies in rats have shown that changes to the GBA gene do cause clumping of alpha-synuclein in the brain. Now the goal is to see if this clumping also occurs in human brain cells containing the GBA mutation, and the mechanisms by which this happens. This knowledge may potentially lead to the development of new PD treatments.

Since 2000, PDF has provided over $69 million to more than 400 scientists as part of a comprehensive and multifaceted approach that supports both research and training.

7 | People Advancing Science

“THE PARKINSON’S DISEASE FOUNDATION HAS PROVIDED ME WITH CRITICAL SUPPORT TO CONTINUE MY PARKINSON’S

RESEARCH

EARLY

PHASE

IN THE OF

MY

CAREER DEVELOPMENT.

Sheng-Han Kuo, M.D. Columbia University Medical Center


Antonio Strafella, M.D., Ph.D., and Mark Stacy, M.D.: Understanding Impulse Control Disorders in Parkinson’s Disease The PDF Conference Award program was launched in 2012 to support gatherings of experts in the field to address emerging clinical or basic science questions about Parkinson’s. Two of the initial recipients were Antonio Strafella, M.D., Ph.D., of Toronto Western Hospital and Mark Stacy, M.D., of Duke University. Together, they used the PDF award in conjunction with other funding to gather clinical and preclinical experts from various research backgrounds to develop a strategic plan for studying the debilitating impulse control disorders (ICDs) that affect so many people who have Parkinson’s. ICDs can be a side effect of dopamine agonist therapy and include binge eating, compulsive gambling or shopping and increased sexual behavior. The conference, “Impulse Control Disorders in Parkinson’s Disease,” was held in October 2012 and featured experts from fields including neurology, psychiatry, neurobiology, pharmacology, addiction, neurologic imaging and epidemiology. This multidisciplinary meeting addressed the spectrum of symptoms associated with ICDs, and generated new ideas for clinical, experimental and translational approaches to better understand ICDs. It also facilitated interaction and collaboration among experts from diverse fields, and developed a network of interested scientists and clinicians to further study the disorder. The proceedings of the conference will be published in Movement Disorders.

Impact: Biennial Report 2012-2013 | 8


People Advancing Science Benjamin George: Measuring the Benefit of “Virtual” Office Visits Could we be returning to the tradition of seeing our doctors at home? This is the concept of telehealth. But how does it compare to conventional in-person medical care? Investigators led by E. Ray Dorsey, M.D., M.B.A., at Johns Hopkins Medicine, and including PDF Summer Fellow Benjamin George, recently found that people with Parkinson’s may benefit from a consultation with a specialist via online video conferencing from home, providing an alternative to traveling to an in-person appointment. These findings appeared in a study published on March 11, 2013, in JAMA Neurology. This study is one of the first to investigate whether telehealth appointments are feasible and beneficial to people with Parkinson’s disease. Researchers measured the participants’ quality of life and PD symptoms, and found the same results for individuals, regardless of whether they saw a doctor in-person or via video conference. In addition, compared with in-person visits, each "virtual" visit saved participants, on average, 100 miles of travel and three hours of time. Although the number of participants in this study was small, the results provide encouragement that video conferencing with a specialist can provide similar benefits to people with PD as in-person visits, while reducing the time and expense of seeing the doctor. However, before virtual visits become a reality, researchers must conduct studies with larger numbers of participants, and with participants of more varied socioeconomic backgrounds. In addition, issues surrounding technology and insurance reimbursement and rules in the United States that require doctors and the person being treated to be in the same state, will need to be resolved.

9 | People Advancing Science

“THANK YOU FOR PROVIDING THE FUNDING TO ALLOW ME TO CONTINUE TO CONDUCT RESEARCH TO FURTHER UNDERSTAND AND IMPROVE ACCESS

TO

DIVIDUALS

CARE WITH

FOR

IN-

PARKIN-

SON’S DISEASE.

Benjamin George Johns Hopkins Medicine


PDF Research Advocates: PAIRing Up to Advance Parkinson’s Research PDF believes that better treatments can be found at a faster pace when people with Parkinson’s are primary partners in research alongside scientists, industry and government. Since its founding in 2008, PDF’s Parkinson’s Advocates in Research (PAIR) program is making this partnership a reality. Here are some of the ways in which these 230 volunteer advocates from 42 states are actively changing how research is done: • Rich Hoffman, Pharm.D.: Speeding Drug Development "As a Consumer Representative with the US Food and Drug Administration, I represent the urgency of people with Parkinson’s, while helping to ensure that potential new drugs are effective and safe." • Steve DeWitte: Increasing Trial Participation "When I ask people with Parkinson’s why they are not involved in research studies, many reply, ‘Because I have no transportation.’ My solution was launching the Clinical Trial Transportation Program (CTTP). By partnering with Beth Israel Deaconess Medical Center in Boston, MA, and Columbia University Medical Center in New York, NY, CTTP has helped 37 volunteers to participate in studies by driving them to these two medical centers.” • Jane Denmark: Informing the PD Community “This is a hard disease. The only way we are going to speed up the pace of drug development is by getting involved in research. As PDF Research Advocates, my husband Al and I bring this critical message to support groups, health care professionals and students in our community."

“AS A

A DOCTOR AND

RESEARCHER,

I

BELIEVE THAT WHEN WE PARTNER WITH THESE INFORMED RESEARCH ADVOCATES, THAT IS WHEN WE WILL

SEE

TRUE

CHANGE IN PARKINSON'S RESEARCH.” Joohi JimenezShahed, M.D. Baylor College of Medicine, PAIR faculty and steering committee member

Impact: Biennial Report 2012-2013 | 10


Developing science-based educational programs that respond to the expressed needs of people with Parkinson’s and health care professionals and collaborating with patient and professional organizations throughout the community.

11 | Science Informing People


Science Informing People Using Online Programs to Reach New Communities Recognizing the need to provide people with Parkinson’s and health care professionals with research updates and strategies for living well with the disease, PDF continued in 2012 and 2013 its popular PD ExpertBriefings series. Subjects for the one hour online seminars are selected based on surveys of people with Parkinson’s, and the faculty are experts from around the US. More than 15,000 individuals from 43 countries participated in at least one PD ExpertBriefing. Topics covered included: • Driving and Parkinson's: Balancing Independence and Safety (Margaret O’Connor, Ph.D., A.B.P.P., and Lissa Robins Kapust, L.I.C.S.W., Beth Israel Deaconess Medical Center) • A Closer Look at Anxiety and Depression in Parkinson's (Laura Marsh, M.D., Michael E. DeBakey Veterans Affairs Medical Center and Baylor College of Medicine) • Parkinson's Medications: Today and Tomorrow (Cynthia L. Comella, M.D., F.A.A.N., Rush University Medical Center) • Understanding the Progression of Parkinson's (Ronald F. Pfeiffer, M.D., University of Tennessee Health Science Center) • What is New in Genetics and Parkinson’s Disease? (Matt Farrer, Ph.D., University of British Columbia) • Coping Skills for Parkinson’s Care Partners (Julie H. Carter, R.N., M.S., A.N.P., Oregon Health & Science University and Parkinson Center of Oregon) • Gait, Balance, Falls and Parkinson’s (Terry Ellis, P.T., Ph.D., N.C.S., Boston University College of Health and Rehabilitation Sciences: Sargent College) • Under-recognized Nonmotor Symptoms of PD (K. Ray Chaudhuri, D.Sc., M.D., F.R.C.P., NPF International Centre of Excellence, Kings College London) • Medical Therapies: What's in the Parkinson's Pipeline? (Kapil Sethi, M.D., F.R.C.P., Georgia Health Sciences University) • Improving Communication in Parkinson’s Disease: One Voice, Many Listeners (Angela Roberts-South, C.C.C.-S.L.P., Ph.D. Candidate, Western University)

As of September 2012, continuing education credits have been offered to health care professionals — social workers, occupational therapists and others — who participate in these seminars. Although these professionals work with people with Parkinson’s, they often receive very little training on the disease. CEUs are managed through PDF's sponsorship of the American Society on Aging.

“THE

INFORMATION

PRO-

VIDED IN THESE PD EXPERT-

BRIEFINGS

HAS

HELPED

OUR FAMILY AS WE MAKE THE PARKINSON'S JOURNEY TOGETHER.

WE NOW FEEL

PREPARED TO DEAL WITH THE CHALLENGES THAT WE

KNOW WE WILL FACE.

Elise C., Ramsey, NJ

Impact: Biennial Report 2012-2013 | 12


Science Informing People Improving Resources for NonEnglish Speaking Communities As the number of non-English speaking individuals increases in the United States, the need for resources for these communities continues to grow. In fact, by 2050, the Hispanic share of the elderly population is expected to almost triple to 17 percent from six percent in 2005. Since age remains the biggest risk factor for Parkinson’s, the prevalence of the disease in this community is expected to increase. PDF is committed to ensuring that all people — regardless of who they are, where they live, what language they speak or how much money they have — receive needed Parkinson’s information and resources. In 2012, PDF expanded our HelpLine to include interpreters who are available to speak with callers in Spanish and more than 200 other languages. Our HelpLine is staffed by a team of information specialists who can answer questions about Parkinson’s treatment and care, identify legal and financial resources and provide referrals to doctors and support groups where available. PDF also expanded our line of educational materials available in Spanish to include fact sheets on topics such as deep brain stimulation (DBS) as a treatment of Parkinson’s, care partner concerns, the role of hospice in Parkinson’s care, managing Parkinson’s medications and understanding pain in Parkinson’s. In 2012 and 2013, more than 5,000 individuals requested information in Spanish. Since 2007, PDF's HelpLine has responded to inquiries from almost 50,000 individuals around the world as part of its commitment to ensuring that everyone has access to Parkinson's information and resources.

13 | Science Informing People

“I

AM EVER SO APPRECIA-

TIVE OF YOUR THOROUGH RESPONSE. OUR FAMILY BELIEVES IN THE POWER OF TEAMWORK, RESEARCH AND ACTION. UNDERSTANDING A DISEASE HELPS US ALL FEEL EMPOWERED TO HELP ONE

ANOTHER.

Sylvia G., Yuma, WA


Educating Physical Therapists About Parkinson’s While no treatment can prevent or reverse Parkinson's, research suggests that physical therapy can help improve strength, fitness level, walking speed and balance, leading to reduced disability and greater independence. Unfortunately, there is a lack of trained physical therapists to care for the growing Parkinson’s community. To address this need, PDF launched in April 2012 a free online course, “Parkinson’s Disease: A Practical Approach to Evaluation and Treatment for the Physical Therapist.” The course was designed by expert physical therapists in the field of Parkinson’s to help other physical therapists provide better care to people with the disease. PDF led the development of this course in collaboration with the American Parkinson Disease Association (APDA), the American Physical Therapy Association (APTA) and the Visiting Nurse Service of New York (VNSNY). The course includes ten educational sessions and two interactive panel discussions. Since its launch, more than 6,000 physical therapists have participated in this program. This program was made possible with the support of Kenneth M. and Susan Granat Weil in memory of John and Joan Haine; the Edmond J. Safra Philanthropic Foundation and the American Physical Therapy Association. It also received kind support from Rusk Rehabilitation at NYU Langone Medical Center. Additional promotion was provided through our media partners, which include the Houston Area Parkinson Society, National Parkinson Foundation, Northwest Parkinson's Foundation and Parkinson Association of the Carolinas.

“THIS COURSE PUTS THE

LATEST

EVI-

DENCE-BASED FINDINGS IN THE HANDS OF

PRACTITIONERS

AROUND THE COUNTRY TO HELP THEM PROVIDE THE BEST CARE POSSIBLE.” Terry Ellis, P.T., Ph.D., N.C.S. Clinical Associate Professor at Boston University’s College of Health and Rehabilitation Sciences

Impact: Biennial Report 2012-2013 | 14


Thanks to the generous support of nearly 36,000 donors, the Parkinson’s Disease Foundation (PDF) funded almost $10 million in research throughout the world and over $3 million in national education and advocacy programs in fiscal years 2012 and 2013. PDF gratefully acknowledges the following donors who helped us make an impact.

15 | Our Donors


Our Donors The following individuals, families, foundations and corporations have made cumulative gifts of $500 or more to PDF between July 1, 2011 and June 30, 2013.

Individuals Colman and Nancy Abbe

John Ayer

Robert and Georgean Abels

Kenneth Ayer

Andrew Abramson

Charles Babcock and Nancy Hamilton

Mark G. Ackerman Stephen and Marsha Ackerman Peter Adams Steve and Rebecca Adams Todd Adams Brigitte Addimando Allison Adkins David Adler Meeta Advani Dr. Avadesh and Uma Agarwal Roger E. Ailes John and Susan Akers

Robert and Toni Bader Sara Badler John and Susan Baer J. Edmonds Bafford Patricia P. Bailey Gerson and Barbara Bakar William and Sharon Baker Alex Balanevsky

PDF Champion Sean Wright and family at the 2012 Marine Corps Marathon

Inga Balke Buck and Leslie Balkind Byrd and Alice Ball

Herschel and Rita Bloom

Florence Barad

Deborah Berman and Bruce Greenberg

Benny Barak

Bernard Berner

Drs. David and Jane Bloomgarden

Katie Barrow

Arnie Bernstein

Theodore and Flora Blumenthal

Eric and Melba Anderson

Kathy Barthlama

Josh Bernstein

James Bobo

Joe Andronaco

Doris Bato

Richard A. Bernstein

Ernest and Rita Bogen

Nicole Angell

Peter M. Bauer

Neil and Marilyn Bersch

Richard Bohlen

Anonymous (8)

Millie Bayne

Danny Bone

Gene Anspach

Lawrence and Sandra Beal

Mr. and Mrs. David M. Berwind, Sr.

Mr. and Mrs. Thomas S. Alexander George and Jodie Allen

Richard Anthony

Michael and Marcia Beck

Toni Arai

Bruce and Carol Bell

Britta Arendt

Mr. and Mrs. Frank M. Bell, Jr.

Salvatore and Ruth Armenio

Janet and Lawrence Bell

Daniel Armstrong

Don and Carol Bender

Jeffrey and Shari Aronson

Tom and Anne Benedict

Dr. Marian Ashraf

Alison Benge

Simon Asselin

Robert L. Benjamin

Edgar Astrove

Elizabeth S. Bennett

John and Anne Atherton

Robert Benton

Allan Atmore

Ron Bergamo

Evan Avidane

James and Suzanne Bergoffen

Michael Axelrod

Fred Bering

Norman and Alison Axelrod

Donald Berkowitz

David and Jo Anne Bescherer

Roger Bonga

Beth Besen

Robert Book and Marcy Helfand

Caryn Biancosino

Dr. Doyle Booker and Linda Booker

Claudette Bidgood Louis and Anne Krementz David Binder Simran Bindra Jules and Helen Bingham Kyle Blackmon James and Shirley Blackorby David H. and Mary B. Blair Lawrence Blaskopf Richard Bleikamp Sean and Rosanne Bloodwell

Edward C. Booth Mr. and Mrs. Lee Boothby Patrick and Martha Boudewyns Dierdra Bowditch David Bradford Kyle Bradstreet Norman and Linda Braverman Andrea Cervantes Brennan Michael and Tracess Brenner Irving G. Brilliant Karen Brimberg

Impact: Biennial Report 2012-2013 | 16


Individuals Toby Brimberg

Andrew Callan

Carol C. Clark, Ph.D.

Sally Cross

Jayne Brindle

Pete Campbell

Elizabeth Clark

Jennifer Csorba

John and Patty Brissenden

Scott Campbell

Aaron and Wendy Clayton

Gene and Judi Curry

Jill and Ken Brodkowitz

Joaquin and Angela Campo

Michael Cloonen

Edna Curtis

Mr. and Mrs. Jed Brody

Jose and Lourdes Campon

Mark Coatney

Joseph D'Amadeo

Dr. William Coggshall

Stephen D'Amato

Robert and Joni Cohan

Guido D'Elia

Dayl Cohen

Burke Dambly

Suzanne Cohen

Cynthia Danel-Frankovitch

Alan and Betsy Cohn

Mr. and Mrs. Phillip A. Daniel

Gerard Cole, Jr.

John Danstrom

Ray and Claudia Cole

Ernest Dampf

Brenda Collins

William Darnton

Susan Comparato

Ted and Gerald Davenport

Dr. Valerie Cooke

Diana H. Davis

Mr. and Mrs. Thomas A. Cooper

Mr. and Mrs. Monty Davis

Katharine T. Cornelius

Richard Davis

Robert and Rhea Corrion

Elizabeth de Lima

Robert Cortelyou

Edwin Lee Solot and Marie De Lucia

Robin Elliott (left) with Isobel Konecky and Family at the 2012 Bal du Printemps

Jay Cossentine David and Angela Brown

Mr. and Mrs. William Canata

Dr. and Mrs. Lucien C么t茅

Doug and Julie Brown

Dr. Jeff and Dieta Cao

Mr. and Mrs. Michael Cotton

James S. Brown

Robert and Mary Capaldi

Norman and Helen Coulson

Rachael Brown

Ray Capitanini

Dr. C.W. and Deborah Cowles

Drs. Russell and Susanna Brown

Sharon Cardinal

Gabrielle Crandall

Steven Bruck

Peter and Nadia Cardozo

William and Clare Cribbin

Vivienne Bruckman

Mr. and Mrs. Raymond W. Carlin

Cary Cridlin

Christian Bruner

John K. Castle

James Cronin

Bunyan Bryant

John and Margo Catsimatidis

Lee Buchheit

Joseph Curci and Lisa Centone

Mary Anne Buchheit

Michael Cerussi

Don Buchholz

Mr. and Mrs. Bernard D. Chalfin

Mr. and Mrs. Mark Budd

Alfred and Nancy Chandler

Lieselott Buettner

Gary and Beth Ann Chard

Michael and Joan Burke

Carol Chase

Dr. Robert Burke and Dr. Sharon Wardlaw Julie Burma John and Barbara Burns Peter and Barbara Bye Julie Byrne Diane Calder Denis Callaghan

17 | Our Donors

Dennis De Pietro Michael DeGeorge Patricia DeGeorges Dr. Maria De Leon James Dellinger Cindy DeLuz David Dennis Anthony DePaolo Charles and Virginia Detoy

Mr. and Mrs. Adam Chasnow Fu Tzu Chen Terry and Brooke Cheng Thomas Cherner The Chiaro Family Anthony and Patricia Cilluffo Wayne Citrin and Deborah Arhelger

Guests enjoy CARNAVAL 2013


Our Donors Vincent and Jeanine Fatato

Alan and Marion Garfield

John Fatteross

Diane Garrett

Mark Faught

Gary Garrison

Burt and Noelle Faure

Thomas Garrison

Gian Favalli

David and Gail Gasser

Leonard and Gloria Fazio

Gary and Ellen Johnson

Andrew and Michelle Feinberg

Debra Gaynor

Dr. Daniel Feinberg

Willie and Christina Geist

Steven Feldman

Vic and Joan Gelb

Julia Ferguson

Seth Gelblum

Eda Ferman

Venita Georgieff

Richard and Schuyler Field

Adeline Gersen

Philip Fierro

Gerald Z. Gibian

Debbie Finkel

Joel Gibson

Roger C. Dunn

Eric and Keryn Fishman

Nora Gibson

Michael Deutsch

John Dwyer

Scott Fitcher

Dr. George and Anisia Gifford

Mr. and Mrs. Chris J. Dicharry

Brian and Karen Eckhart

Thomas and Barbara Fleming

Robert M. Gilhooley

Mark Dickinson

Hollis and Sharon Eddins

Anthony and Patricia Forgione

Eric Gillert

Ervin and Karen Dieckhoff

Mark D. Edie

Mr. and Mrs. Alan J. Forman

Christopher Gillock

Abbie Edwards

Andrew and Jean Fornato

Robert and Gail Ginsberg

Willie and Christina Geist at the 2013 Bal du Printemps Alvin Deutsch

Neal Dimick Albert Diringer

G. Pennington Egbert III

Cathy Forsberg

Don Ginsburg

Aida S. Dishman

Adele Eger

Dr. and Mrs. Brian Forst

Catherine Giordano

Drs. David and Jane Eger

Jack Fortinsky

Gerald and Deanne Gitner

Michael and Barbara Ditzian

Ronald A. Eger

Dr. Craig and Blake Foster

Jeffrey Gittleman

Kathleen and Eamonn Dolan

Roberta Ehre

Mr. and Mrs. Thomas D. Fowler

Seymour and Rita Glanzer

Jorge and Mary Dominguez

Frances Ehrlich

Dave and Jill Fox

Jerry Glennie

Juan Dominguez, Esq.

Joanne Eickhoff

Patrick Franc

Roger and Sandra Goetti

Charlotte Einstein

Jonathan Franzen

Morton and Claire Goetz

Anthony DiVito

Edward Dondzila Mr. and Mrs. Francis Donnantuono Michael Donnantuono Julie Donovan Neil Doppelt and Audrey Adams Vicky Dorn-Fontana Krista Douglas Ezra and Elizabeth Doverman Richard and Sarah Draut Craig and Monica Drill Jennifer Drinan Chris and Jill Drury Ryan Duffy Richard and Jane Dunbar

Ronald and Nanette Elenbaas

Mr. and Mrs. Stuart Fraser

Capt. Lewis and Ada Goldbek

Stafford Elias

Dr. Jay Freed

Allan Goldberg

Diane Elliott

Gary and Carol Freidman

Stephanie Goldman-Pittel

Robin A. Elliott and Dr. Sheila Gordon

Rick and Shelley Friedland

Amy Goldman

John Ellis Samuel and Maryann Ellsworth Stephen Ellis Kim and Lizabeth Erickson Arnold and Shirley Erickson Mr. and Mrs. Jeffery Ettinger Dr. Stanley and Charlotte Fahn Fernando U. Fajardo Steven Farber

Dr. and Mrs. Lawrence Friedman David Goldman William C. Friend

James and Sarah Goldman

Elizabeth B. Friou

Molly Goldstein

Meyer and Florence Frucher

Joseph and Mary Golemme

Dr. Paul Fuchs

Mr. and Mrs. Benjamin Gomez

Mark Funderburk

Dr. Robert R. Goodman

F. Daniel and Bunny Gabel

Scott Goodman

John and Cynthia Gallagher

James and Ann Gordon

Ronald and Kroupa Galowich

John Gordon

Sarah Belk Gambrell

Patrice Gordon

R.T. Farmer

Impact: Biennial Report 2012-2013 | 18


Individuals Dr. Simone Gordon

Stuart Gross

Nancy Harold

Timothy and Tracy Hilbert

James T. Gottwald

Henry Strater and Lillian Grossman-Strater

Dr. Steven G. Harper

Richard L. Hildbold

Janet Harris-Ahl

Roger Hildeen

Charles Harris

Lane and Laura Hill

Mark Harrison

Sara Hill

Randy Hartshorn

Mallory Hiltz

Lauren Hauser

Jerry and Joyce Hirsch

Jeffrey Havsy

Robert Hirsch

Gregory and Sharon Hawkins

Olga Hirshhorn

Dr. and Mrs. Joseph Hawkins

James Hirst

Mr. and Mrs. Richard Hay

Ian Hodgson

George Hebard

Monty Hoeflein

Peter John Goulandris and Dr. Karen E. Burke Mr. and Mrs. Peter Grad

Bill and Rhea Grous Leonard and Jennifer Gruenberg

PDF Champion Margaux Minutolo (left) and friend modeling Mind Over Matter T-Shirts

Susan Heidenberg

Elizabeth and Marvin Hoekstra

Dr. John and Peggy Heilman

Mr. and Mrs. F. William Hoffman

Dr. Sydney and Roslyn Helfen

Mr. and Mrs. Joseph Hoffman

Mr. and Mrs. Lewis Helfstein

Mr. and Mrs. Neil Hoffman

Michael Hencel

Philip and Mary Hogan

Richard and Rose Henneberger

Stephen and Margot Holland

Patrick Henry

Joseph and Jean Holman

Troy D. Henry

Alexander Holtzman

Stephen L. Graessle

G. Guist and Robin Guist

Margaret S. Herold

Joan Hornig

Joan Graham

Geoffrey and Sarah Gund

Tino and Rosie Herran

Mr. and Mrs. Hornstein

Sharyn L. Gunderson

Mr. and Mrs. Stuart A. Hersch

David Horwitz

Rachel Granger

Arlen R. Gunner

Dr. Daniel and Natalie Hertz

Rev. and Mrs. Alanson Houghton

Dr. Michael and Dena Granhof

Chris Gunner

Mr. and Mrs. Steven Herzog

Thomas and Anne Hubbard

Richard and Marcia Grand

Christine Grant

Jon and Stevi Gurkoff

Steve and Toby Hess

Patricia Huggard

Clair Grant

Andrew Gustin

Steven and Sherry C. Hibshman

Craig and Lane Huggins

Mr. and Mrs. James Graves

Mark Guzzi

William and Mary Hicks

Risto Huovinen

Kent Gray

Lois Gwinn

Michael Gray

Eleanor Hagan

Joshua Greenberg

Scott Hahn

B.J. and Howard Greenberger

Barry and Jane Haimes

Robert W. Greene

Alyce C. Halchak

Sherwin Greenwald

Dr. William and Katherine Hale

Nicholas and Marjorie Greville

John Haley

H. Duane and Sandra Griffin

Jennifer Hallenbeck

Mr. and Mrs. John Scott Griffin

Christina Halpern

Lisa Griffin

Jeffrey Hamer

Richard Griffith

Norma Hammond

Scott and Susan Grodnick

Sulabha Hardikar

Lexi Gross

J. Alan and Karen Harding

Pete and Emily Gross

Gilbert Haroche

19 | Our Donors

Stephanie Goldman-Pittel (left), Jerry and Arlene Levine (center) and Robin Elliott at the 2013 Bal du Printemps


Our Donors Christopher Keber

Kenneth and Cheryl Kuliga

Judithann C. Keefe

Howard and Gail Kunreuther

Dr. David L. Keller

Barbara Kyse

Douglas Keller

James Lacroix

Denise Kellogg

Patrick Lagrange

Edward and Kathleen Kelly

Rutherford C. Lake, III

Dolores Kennedy

Louise Lallier

John Kiernan and Catherine Ruvolo

Elina Lam

Mary and Franklin Kilgore David and Hyun-Min Kim

Genna Farber, Stevi Gurkoff, Jon Gurkoff, Gene Gurkoff (front row left to right) and David Farber, Kate Drury and Jack Drury (back row left to right) at the 2102 Bal du Printemps Francis Hyman Andy and Margo Illobre Mark Indelicato Gary Irwin Howard Isermann Clifford Ishmael John Isley Nancy Isserlis Ralph and Barbara Italie William and Judith Jackson Alan and Barbara Jacobs Randi S. Jacobs Selwyn and Marjorie Jacobs Ben and Martha Jacoby Peter and Karen Jakes Molly and Marshall Janes Allan Janoff April Jansen Raymond Jasen Judi Jecmen William Jeffery Charles Jenkins and Jeni Forshier-Jenkins

Kevin P. Johnson and Laurel E. Johnson-Smith Larry Johnson Mary Johnson

Thomas Kimbis Dr. and Mrs. William King Stubbs

Dr. Lenny LaManna Scott and Ann Landes Steve and Keala Landry Mark Lane Robert and Susan Larson

Kevin and Sarah King

Robert O. Laven

Donald and Bonnie Kinzer

Pauline M. Lecomte

Lori Kirsch

Bennie and Donna Lee

Kevin Kissell

Mr. and Mrs. Gregory Lee

Dr. and Mrs. Francis l. Kittredge

So Young Lee

Andy Klein

Brian Leffler

Jayne Klein

Mark and Gaby R. Lehrer

Gary M. Kleingartner

Thomas A. Lehrer

Dr. David L. Klionsky and Eva Youshock

Jill Leinbach

Thad and Suzanne Johnson Wes Johnson

James Knowles

Walter F. Leinhardt

David and Carolyn Jones

Suzanne Knowles

Herbert and Barbara Lembcke

Lauren Jones

Edgar and Eileen Koerner

Sally W. Leung

Nathaniel and Judith Jones

A. Kohn and Barbara Kohn

Drs. Ilan and Barbara Levi

Eleanor N. Jordan

Shiro Koike

Dina L. Levin

Reynold and Margaret Jordan

Patricia Kolb

Jerome and Arlene Levine

Colleen Joyce

Isobel R. Konecky

Dr. Irwin and Francine Levine

Dr. Daniel Judd

John and Cheryl Korth

Burt and Mary Ann Lewis

Andrew Kampf

Marcia and Walter Kortschak

Kevin Lewis

Vikram Kanda

Kay Kowitt

Melanie Lewis

Daniel and Susan Kane

David and Susan Kraus

Wesley and Diann Lewis

Robert and Jane Kantor

Myer and Phyllis Kravetz

Dr. Stanley and Anita Liebowitz

Gary M. Karlitz

James Kress

Mr. and Mrs. William Lifland

Dr. George Karnoutsos

Mark B. Kristof and Beth V. Ward

Paula Lightfoot

Gloria Kronenberg

John and Catherine Liguori

Mr. and Dr. Rhett Krulla

Richard Linhart

Charles Krusen

Joan Lipkowitz

Mr. and Mrs. John Kuelbs

Joseph Liss

Robert Kuhbach

Dr. Nan and Doug Little

Michael Johnson R.A. Johnson Rhona Johnson Ronald Johnson

Lynn and Sue Jenkins

Richard and Jane Karp

Maurice and Linda Jennings

Arnold A. Katz

Beverly Jensen

George Kaufman

Mr. and Mrs. Arthur P. Jentoft

James Kaufman

Charles and Linda Johnson

Arlan and Lori Kay

Donald and Marian Johnson

Paul Kebabian

Laurie Leiner and Morton Katz

Impact: Biennial Report 2012-2013 | 20


Individuals David Littleton and Susan Stevenson Robert LoBue William Lockeretz Arnold and Pamela Loeb Marshall Loeb James Long Robert A. and Joan H. Long Robert Lonier

George and Priscilla Matouk

Catherine Mock

George Newmark

Ray Matra

Gina Modica

Joan Nicolais

Diane Matusiak

Eric Moede

Sally Nightingale

William and Natalie Mauskopf

Donna Mondani

Agnes E. Nixon

Robert M. Maxwell

David Moody and Eileen Guilfoyl

Marla E. Nock

Michael and Jessica Mayerson Theodore Maynard Alexander and Marianna McAfee

Mr. and Mrs. Robert E. Moore Miriam Moran Howard and Ginger Morgan

Edward J. Noha Maryellen Noreika Robert S. Northington Sabato Noto

Evelyn Lord

Mr. and Mrs. Kevin McCabe

James and Laura Morgan

Mary Love

Alexandra McCagg

John and Debbie Morken

Dr. Jack and Lenore Lowenthal

Dr. Wesley McCain

Deborah Morrow

Dina Lowy

Randall T. McCallum

Pam Moshe

Harry Luebbe

Maureen McCarthy

Erin Montameni

Terrance O'Bar

Joseph Luetje

Robert and Marsha McCleary

Patrick and Debra Mucci

George and Barbara O'Connor

Walter Lyczkowski

Mr. and Mrs. Todd McClutchy

Sheila Muldoon

Patricia O'Donnell

William and Louise Lydic

Michael and Cynthia McConnell

George and Ellie Munroe

Daniel O'Neill

Kenneth Musen

Carol Okane

Jean Myers

Aksel and Kamma Olesen

John Myers

Marie Oliver

Catherine Nabulsi

John and Marnie Olson

Dorotea Nathan

Walter and Gloria Olson

Michael Mackey Darin Magedanz

Erin McGarry Cubero John and Helen McGrath

George R. and Linda L. Mahoney

W. McMillin

Mr. and Mrs. Burton C. Mallory

Iris McQuistion

Larry and Janis J. Malone

Paul and Kay Meister

Terence Malone

David P. Melillo

Reid and Jeanne Mandel

Dr. Vincent Memoli

Virginia Mankin

Andrew and Gigi Menard

Vincent Marano

Dr. Robert Mencher

Adam Margolis

Gerardo Mendez and Melissa Roth Mendez

Sidney and Phyllis Margolis Linda Markeloff Leon Markoff James Markowski Lizzy Markus

Anna Merker

Carol Noymer Mr. and Mrs. Lawrence C. Nussdorf

Paul and Marcy Nathan

Mr. and Mrs. Timothy Onders

Sunil Nayar

Lila Ontiveros

Douglas and Jean Nelson

Timothy and Nicole Oprisu

Harold Nelson

Richard Orechovsky

Alfred Netter

Dr. Salvatore Orsini

Dr. George Neuman

Aura Oslapas

John New

Marc and Neil Ozanich-McNinch

Dr. Karim Mezran Thomas Milana Dr. David Miller

Kay Marmorek

Elizabeth Miller and James Dinan

Stephen Marotta

Jim Miller

John Marozzi

Jody Miller

John Marquiss

Richard and Lois Miller

Sharon Marr

Walter and Marion Minton

Adolfo Marrero

Thomas and Marilyn Mints

Christine Martino

Zareen Mirza

David J. Marx

Lawrence and Ruth Misrok

Yvonne L. Mason

Lucile Missimer

Tom and Bev Mathis

William Mitchell

21 | Our Donors

Allan Novak

Peter Dorn (center) and friends at CARNAVAL 2013


Our Donors Stephen and Judith Pagano

Nicholas and Carol Paumgarten

John Pepples

Donna Pickett

Jeanne Payne

Sura Peter

Nina Platt

Sandy Payne

Amanda Peterson

William Platt

David and Mary Peachin

Mr. and Mrs. Frank A. Petitti

Carol Pogash

Melba Pearlstein, Esq.

George Petras

Drs. John and Susan Pollack

Elaine Z. Peck

Michael and Nancy Peters

Martin and Ruth Pollack

Hugh Patterson

Dr. Timothy Pedley and Dr. Barbara Koppel

Monica Phifer

Mr. and Mrs. Henry A. Pope, Jr.

James Patterson

Deborah Pelle

Richard and Eleanor Phillips

James and Sandra Porter

Mr. and Mrs. Robert Paglia and Family Lisa Painter Thomas and Jeanette Palizzi Tony Pallagrosi Kathy Patrick

Irving G. Brilliant $100,000 Research Challenge and Light of Day Foundation $100,000 Challenge Supporters The following individuals, companies, foundations and organizations contributed $500 or more to help PDF meet the Irving G. Brilliant $100,000 Research Challenge and/or the Light of Day Foundation $100,000 Challenge in fiscal years 2012 and 2013. Dr. Jack and Lenore Lowenthal

Ezra and Nilofer Reese

Todd Adams

Ferguson Family Trusts

Thelma R. Balbes

Ronald H. Galowich

James and Suzanne Bergoffen

Stanley F. Goldfein

Lower Shore Parkinson's Support Group

Preston Goodrich

Burton Mallory

Rose-Marie H. Boller

The Jack Webster Grigsby Foundation

Ellen H. Manian

Christopher Rohwetter

D. R. Booker

Wilma P. Hawk

Andrew Menard

St. Jude Medical

Brown Charitable Foundation

Majorie and William Hill

Bikini Offroad

Henry Richmond Steve and Teresa Riffle Sherie Ritzler

MetLife Alico

Stan M. Sandberg

Joseph W. Metz

Arnold and Marie Schwartz Fund

Mr. and Mrs. Mark Budd

Selwyn and Marjorie Jacobs

Marion Minton

Denis Callaghan

Eleanor N. Jordan

Andrea Moletteri

Dr. and Mrs. Thomas Shiftan

Robert Chartoff

Colleen Joyce

Sunil Nayar

James Cronin

Dr. and Mrs. Francis l. Kittredge

Robert Northington

Mr. and Mrs. Clyde W. Smith, Jr.

William Cunningham Vincente T. Dipatre, Jr. The DuBose Family Foundation Bob Duncan Joanne Eickhoff Paul Ellis Epstein, Becker & Green, P.C.

Barbara Kyse

Dorothy S. Oda

John W. & Laura S. Stewart Foundation

Rick Oddo

Rebecca C. Swan

John and Marnie Olson

Martin Typer

Mark D. Litt

Michael Opalak

U.M.R. Foundation

Dr. Nan and Doug Little

Peaceful Meadows Farms Ice Cream

The Light of Day Foundation, Inc.

Arnold and Pamela Loeb Lovinger Family Foundation

Dana C. Puddy Monica Reed

Mark Viviano Nancy C. Wheeler Dr. Fred and Mary Woodlief

Stephen Reed

Impact: Biennial Report 2012-2013 | 22


Individuals Margaret Posthumus

Llewelyn and Billie Rentel

Mark Rosen

Ruth Ann Potts

Ian Spencer Rice

Charles Rosenbaum

John Pougiales

Harold and Jane Richard

Jean Rosenberg

Arjun Prabhu

Paul and Takako Richards

Jeffrey and Sarah Pribyl

Alan and April Richstein

Mr. and Mrs. Edward Rosenblum

Elizabeth Scanlon

Martin and Carol Rosenblum

Donald Schaefer

Melvin S. Rosenthal

Mr. and Mrs. Robert A. Schaefer, Jr.

Roxanne Rosoman Dr. Harley and Sara Rotbart Mr. and Mrs. Steven Rourke Robert Rouse Dr. and Mrs. Lewis P. Rowland Lewis and Gail Rubin Milton and Adele Rubinfeld

Laurence and Marjorie Quaife Winifred Quinn Dejesus Ashley Quinn Judith Rader W. Matt and Amelia Ralls John Raphael Joshua Raskin Tim Rath Leonard and Ruth Rau

Dr. Gregory and Patricia Schlegel

Antonio Ruiz

Dr. Herbert Schlesinger

Frank Rumuro Danny and Melesia Rutland

Sanford Schlesinger and Lianne Lazetera

Jamie Saccardo

Bob Schmitz

Olga Salazar

Jay and Suzette Schochet

Saul M. Salka

Dr. Thomas and Jean Schreiber

Steve and Teresa Riffle

Leslie Samuels

Michael and Janice Shrimmer

Sandra L. Rigopoulos

Stan Sanberg and Stacey Mayesh

Shelley and Blair Schrum

David Sands

Brian and Kathy Schultz

Hellyn L. Sarek and Barbara Davis

Howard and Phyllis Schwartz

William F. Ringier Frank and Nora Joan Ritchey Sherie Ritzler Lawrence and Carol Rizzolo

David M. Schuld

Marie D. Schwartz

Mr. and Mrs. Jeffrey D. Roberts Matthew Roberts Thomas and Brenda Roberts Eric Robertson Sally Robinson Robert Southern and Karin Rodgers

Mary Rauhe

Clint Rogers

Edwin and Nancy Redkey

Michael Romano

Michael and Kristin Reed

Robert and Heddie Romanoff

Jonathan Reeves

The Romero Family

Allan Reine

Gregory and Barbara Romero

Kurt Reinsberg Ralph and Barbara Reis

Robert Roriston and Sarah Bird

Samuel Rensin

Mr. and Mrs. Jonathan Rosen

23 | Our Donors

Susan Schindler Steven Schirripa

Jane Safer

Mr. and Mrs. Michael A. Riddick

Roland Quade

Joseph and Bonnie Schinagle

Mr. and Mrs. Scott Schneider

Warner Price

Bhaskar Pulikal

Gregg Schenker Michael and Melissa Schilling

Mr. and Mrs. Thomas Schneider

April Rickey

Dana C. Puddy

Anand and Padma Savur

Mr. and Mrs. Albert Safer

Mr. and Mrs. Michael Price Dr. Serge Przedborski

Scott Sassa

Matthew and Frances Schaeffer

Dr. Stephen Ross

Gregory and Barbara Romero at the 2012 Celebrate Spring

Lawton Sargent and Audrey Meyer Sargent

PDF Champion Anna Rinaldo and friends at the 2013 Vintage Tea Party Event


Our Donors Mr. and Mrs. Marcellus Snow

Mr. and Mrs. Abbott Stillman

Drs. Paul and Terri Silverman

B. Robert and Mary A. Snyder

Rev. F. Barry and Colette Stipp

Mr. and Mrs. Mark K. Silverstein

Glenn Snyder

Keith Stoltz

Stephen Simko

Mr. and Mrs. Paul W. Snyder, Jr.

Scott Strickland

David and Joy Simon

Perry and Elaine Snyderman

Richard Strobel

J. Robert and Linda Sims

Kenneth and Joanne Sold

Richard and Marcia Sinclair

Amy Sole

Christianna L. Strohbeck and Dr. Ramaswamy Murari

Nicholas Singer

Phyllis Sonnega

Phillip S. Sirianni, Jr.

Douglas and Ann Spaniol

Samuel J. Sirota

Sue Sperger

Benjamin Slate

David Stagg

Jerome and Susan Slate

Mr. and Mrs. Doug Standley

Mr. Thomas Sutton and Dr. Marilyn Sutton

Martin Schwartz

Fred Silton

Max and Nancy Schwartz Frederick and Ruth Schwarzmann Rosanna Scotto Julie Seibert Edmund and Dorothy Seyfried Leslie Shapiro Ronald and Evelyn Shapiro Missy Egbert Sheehan and William B. Sheehan Mr. and Mrs. Sidney J. Sheinberg

Sharon Sturges Fred Sullivan Dr. and Mrs. Ira Sutton Dr. Lois Sutton

Diane Shenberger

Andrew Slepoy

Mr. and Mrs. Steven Starker

John Sheridan

Rebecca C. Swan

Dr. Bernard and Sheila Small

Kenneth and Alice Starr

Jack and Paula Sherman

Daniel Swanson

Annalise Smith

Athena Starry

Dr. and Mrs. Thomas Shiftan

Edward and Nancy Sweeney

Clyde and Bonnie Smith

Dr. Philip and Bonnie Stein

Ellen Shiro

Edward Swenson

Courtney Smith

Stephen and Gail Steining

Mr. and Mrs. Edward L. Shugrue III

Diane Swonk

Ethel and Leonard Smith

Scott Steinman

William and Christine Syers

Ann Shult

James Smith

Gail Stelter

Douglas and Hope Syverson

Rose L. Shure

Kathryn H. Smith

Douglas and Lisa Stern

James and Mary Talmage

David and Carol Sidman

Leon and Elaine Smith

Jonathan and Sydney Stern

Carol and Melvin Taub

Allen and Claudine Siegel

Steven and Georgiann Smith

Sandra and Evan Stern

Mary Elizabeth Taylor

Dr. Sandra and Arthur Siler

Wade Smith

John Stewart

Nathan and May Teitelman

Albert and Martha Sneed

Todd Stewart

James Parkinson Legacy Society

We thank the following members of the James Parkinson Legacy Society who have included PDF in their estate plans or who have established a charitable gift annuity with us.

Gertrude S. Bell Roger M. Bowman Ann Cavalli Aila G. Dawe Jean Dewdney Guy Estes Elizabeth A. Geiser Matilda Goodman Annette Korn Viola B. Marshall

Lisa Painter Edith Perman-Allen Marie D. Schwartz Stephanie and Bernard Schwartz Mr. and Mrs. Robert W. Smith Charles L. Thomas Lucy Venable M. R. Weingardt James B. Wittrock

If you have made estate plans which include PDF or wish to establish a charitable gift annuity which provides you with income for life, please contact PDF at (800) 457-6676.

Impact: Biennial Report 2012-2013 | 24


Individuals Rocky and Cynthia Terrel

Lloyd Vaughan

James M. Weichert

Ray Wirta

Jeff and Rachel Theilacker

Richard N. Vaughan

Mr. George Weiksner

Charles and Meryl Witmer

Josh and Ellen Thomas

Judith Velho Baker

Susan G. Weil

Joel Wojnilower

Ann Thompson

Darla Jean Verdin

Jeffery L. Weiner

Rae Ann Thompson

Dorothy Vetrano

Jon and Jill Weiner

Bill Wolf and Meredith Bluhm-Wolf

Andrew Weinrich

Ann Wolfe

Albert Weinstein Mr. and Mrs. Bernard W. Weiser

Kyle Blackmon (left) and Evan and Sandra Stern at the 2012 Bal du Printemps U.T. and Judy Thompson David and Mary Tidwell Melvin and Charlotte Timm Mr. and Mrs. David Timony John and Patricia Toebe Maureen Tokar Mr. and Mrs. David Tolli Robert and Phyllis Topchik Mark Topp Alison Torres Mr. and Mrs. Dennis Trifletti Martin and Margaret Tuchman

Andrew McLaughlin and Anna Vietor Edward M. Vietor Catherine Villeminot Mary Violette Joseph and Patricia Vitelli Paul Volcker Matthew and Sonja Vorwald Jules and Florine Wachter

Dr. Fred and Mary Woodlief

Marvin Weitz

Dave and Alice Wopat

Don and Evelyn Wells

Gregg Wysocki

Diane Wetterlin

Beverly Yoder

Madelin Wexler

Kathy York

Bruce and Pamela Wexler

Lt. Cmdr. Cassin Young

Nancy Wheeler

Jeanne Young

Robert and Jennifer Wheelock

Pat Younts

William White

James D. Zankel

Robert and Shirley Whiteford

Michael and Rose Zaretsky

Mary Wiebke

Judy Zendell

Sara Wilford

Louis G. Zimmerman

John Wilkins

Cynthia Zirinsky

Kenneth and Kimberly Williams

Donald and Lynn Zucker

Wendy Williams John and Karen Winkel

Susan Zwick Mr. and Ms. Jeff Zygler

Dorothy Winkey Nicole Winslow Rich Winter

John Wadsworth

Elliot and Johanna Utrecht

Philip Walker

Louis Vaccaro III

Michael and Gail Walsh Audrey Warfield Sandi Wasch Toshi Watanabe

Gregory and Lucienne Van Schaack

Elsa Watson

Craig Varrelman

Ralph and Jennifer Watts

Yvonne Vasicek

Larry and Anne Wayne

Marshall Vass

Brad Weddle

25 | Our Donors

Eve Wolff

Dr. James Weiss

Doris C. Wages Mr. and Mrs. Alan S. Waldenberg

Mr. and Mrs. Peter Van Nice

Philip Wolfe

Richard and Cheryl Wade

Darla Turlington

Mr. and Mrs. Alexander Valvezan

Adam and Kim Wolfberg

PDF Champion Brian DeFord and family at the 2012 Death Valley Hike-A-Thon Event


Our Donors Estate Gifts

Trust Gifts

Ethel S. Allen

Nurine Hoke

The Balz Trust

Julius Alpert

Bernice H. Jacobsen

Hilda M. Anderson

Ruby Jefferson

Stanley August

Lars and Lena Johansson

Carmen Becker

Bonnie Kaltenborn

Arlene M. Bevilacqua Revocable Gordon McLean Trust Trust Richard P. Rost Trust Adele Blank Charitable Lead Esther Ruddick Trust Trust Lester W. Stevenson, Jr. Trust Dorothy M. Booth Charitable Trust Bernice M. Stiers Trust

Marjorie Maiden Trust

BettyLou Burton Trust Ruth D'Atri Trust

Thomas F. Tipi Revocable Living Trust

Rita Muriel Dougherty Trust

Dorothy G. Verhoff Trust

Trust of Edith Eisler

Harold W. Verhoff Trust

Lida Ferguson Testamentary Trust

Audrey F. Wee Revocable Trust

Gladys Field Charitable Lead Annuity Trust Mildred Goldstein Trust

The William White Revocable Trust Esther Wright Trust Edward Wsolak Trust

Annette Goodrich Revocable Trust Hudson Charitable Trust Gladys T. Hyman Trust

Bob Benjamin (second from left) and Light of Day Foundation Board Members at the 2013 Bal du Printemps Jack M. Berghuis

Natalie B. King

Margery B. Brodsky

Dolly Koler

Gloria Broward

George Kozam

Charles Irwin Trust Rose A. Kalns Trust Mary M. Kneibler Living Trust Trust of Virginia Ladensohn Hortley G. Leblang Charitable Trust

Margery D. Bruno

Mary Lee

Leprince Grantors Trust

Dawn C. Bulle

Leila S. Lenagh

Martha Carle

Irene M. Matto

Toni Lieberman Family Charitable Trust

J. Stuart Cassilly

Appolonia Mayer

Margaret D. Lienemann Charitable Trust

Lois A. Chazen

Paul Edwin Melcher

Trust of Quirino Lomini

Alvin Colt

Lena Meyers

Carol Crimi

Velma R. Nagel

J. B. Daiches

Doris Helen Plopper

Helen Dalenberg

Frances K. Porter

Catherine T. Davitt

Raymond Radish

Nelson C. Doland, Jr.

John J. Robinson

Lillian Dursht

Angela M. Salatti

Jane C. Fink

Adele Selldorff

Earline Foiles

Rochelle G. Semel

Dinah Friedman

Albina D. Silveri

Charles B. Green

Naomi L. Smith

Sylvia B. Greenberg

Carol A. Spengler

Theodore R. Grimes

Invin L. Steinbach

Howard M. Halpern

John H. Winans

Beatrice S. Harrison

James B. Wozniak

John and Margo Catsimatidis and Rosanna Scotto at the 2012 Bal du Printemps

Frederick G. Heimberger

Impact: Biennial Report 2012-2013 | 26


We thank our PDF Champions whose efforts from July 1, 2011 to June 30, 2013 helped us fund promising research and also raised awareness in communities around the US. Max Adelman Taking the Plunge Against Parkinson's Stephanie Adler

Stacey Catapano Brooklyn Makeup Studio Grand Opening and Fundraiser to Benefit Parkinson's Gary and Beth Ann Chard Gary's 60th Birthday Party

Carolyn Anderson Kathleen Andruschat Pamela Aultman Alethea Bancale Niagara Falls International Marathon 2011

Elizabeth Claps Marine Corps Marathon 2012 Deirdre M. Cruz Pennies for Parkinson's

Herbert Dolaway Theresa Donahoe David J. Eger, Ph.D. Music for Parkinson's Research, 2011 & 2012; Manhattan Comes to Mamaroneck Emily Alice Jewelry Jewelry Sale for Parkinson’s John V. Faggione Lady Warriors vs. Lady Raiders Softball Game Sam Falk Jeni Forshier-Jenkins Shuffle 'n' Shake Parkinson's Awareness Celebration 2012; Cookie Bake Sale 2013

PDF Champion Jessie Gunter at the 2012 Marine Corps Marathon

Diane Banks Sycamore Hills Golf Fundraiser David Blomquist Canoeing for Parkinson's Laura Blum Zumba-thon for PD

David Davis Ride for Parkinson's Jason Davis Bill Lowery Memorial Fund Brian DeFord DeFord Mountain Hike, Death Valley Hike-a-Thon

Roger Bonga Roger's Run Across Michigan to Fight Parkinson's

Maria L. De Leon, M.D. Third Annual Parkinson’s Disease Foundation Fundraiser

Natasha Brown In Honor of Dani Rotholz

Cindy DeLuz

Tomee Brown In Honor of Mike Puzzi

Deana DeModena In Honor of Grazia Guarino

David and Audra Byer

Jeana DeNardo Nike Women's Marathon

Don Caruana In Memory of Donna Caruana

27 | Our Donors

Kate DeWitte Senior Project on Parkinson's

Michael Hornung Splash for a Cause Raymond Hull Kingswood Golf Tournament for Parkinson's Integrated Care Communities, Inc. Walk-a-Thon and BBQ Rachel H. Isenberg Mt. Kilimanjaro Climb 2011; Pittsburgh to Philly Bike 2012; Mt. Whitney Climb for Parkinson's 2013 Randi S. Jacobs Becky Jarnagin In Honor of Mom Jesus, John, Scott & Michael Poker for Jesus

Sarah K. Free Potholders for Parkinson's

Heidi Johnson Pars Fore Parkinson’s Golf Tournament

Caley Frunzi

Elizabeth Keshish

Ashley Garrett Rock 'n' Roll San Diego Marathon

June Keszeg In Honor of Tommy McEaddy

Antoinette and Ken Geraci In Memory of Maria Paratore Renee Gillpatrick Linda Giorgilli Rice Joseph and Mary Golemme John Gollisz

James Knowles New York City Marathon Tammy Kozumplik Cut-a-Thon for Parkinson’s Ivory Latta 1st Annual Ivory Latta Celebrities for Parkinson's Bowling Tournament

Alexandria Gorski

Cody Ledsworth Kayak for Parkinson's

Jessie Gunter Marine Corps Marathon 2012

Adrienne Lee In Memory of Fae Hong Lee

Hillary Hackett Senior Project, Barry's Fight for Parkinson's

Kevin Lewis Bass Fishing PD Tournament of Champions

Eleanor Hagan Body in Balance First Annual Move to Cure Parkinson's

Melanie Lewis National Technical Honor Society Beckfield Tri-County Campus 5k Race for Parkinson's

Noah Hartsock Cones for Parkinson's Linda Heise

Rachel V. Loeser Bat Mitzvah

Blair Hoffman

The Meadows of Glen Ellyn


Our Donors

Michael Roush Parkinson's Walk for a Cure/In Memory of Lloyd Roush

Danielle Surace Vincent Fillingeri Memorial

Frank Rumoro 1st Annual "Stepping Out" Fundraising Walk

Cynthia Taylor In Memory of George Higgins

Hailey and Taylor Salha Lemonade Sale Wendy A. Schreiber In Memory of Fern Hoover S. Jane Schrick Marine Corps Marathon 2012 Carol S. Schulte

PDF Champions Ambassador Ivory Latta and her father, Charles Latta

Peggy Sensabaugh Josh Faircloth Memorial 5k Run

Carol Tahsuda

Tekk Fusion Golf for Parkinson's Bryce Van Dusen Doris Vasquez In Honor of Segundo Vazquez Sierra Verdin Pasta for Parkinson's Jacob Wagner Waldwick High School Global Empathy Project by Students

Lisa Micarelli In Memory of Frank Micarelli

Jim Patterson Pints for Parkinsons

Michael Showstead 70th Birthday Party

Parkinson's Support Group of the Mid-Hudson Valley Mid-Hudson Valley Walk Over the Hudson 2012 and 2013

Rita Peters Oklahoma City Marathon 2012

Scott Shtofman

Ellen Warren Helping Hand Cuffs

Angela Sipes

Alicia Wasson

Annalise Smith Big Sur International Marathon

Matt Welch Whidbey Island Marathon

Thomas Milana Margaux Minutolo Karma for a Cure Blake Morgan Blake Morgan Concert John Morris Bicycle from Montauk Point to Niagara Falls

Kimberly Phillippe Pancakes for Parkinson's Natalie Piccin Wedding Donations for Parkinson's Pillinger Miller Tarallo, LLP Debra Pinon In Honor of Gloria Ruth DiOrio Tanya Puckett Albany, Georgia Marathon 2012

Megan Smith Quidditch for Parkinson's Linda Spence Ernie's Favorites Sports Physical Therapy of New York St. Luke’s Center for Neuroscience Movement Disorder Center Polka for Parkinson’s

Evelyn P. Wells Hands for Heroes Brittany West Gillian Woods Second Annual Stepping Up the Pace 5k; Third Annual Stepping Up the Pace 5k

Alexander Ranieri and Kristin Mazzone Long Island Half Marathon

Patricia S. Stearns

Sean Wright Marine Corps Marathon 2012; Marine Corps Marathon 10k 2013

Maria Nelson

Joe Rich

AJ Stelacio

Yacso - Meyer

Thomas Nguyen Norfeldt Elementary School

Molly K. Riddick Pancakes for Parkinson's

Rob Stevenson

Eric Young 5-Mile Swim for Parkinson's

Thomas Palizzi Jon Paparsenos

Teresa Riffle Circleville, OH Walk for a Cure 2012

Marina Parrish In Honor of Papaw Clyde Hardin

Roy Roden PD Challenge Ride Across America

Jennifer Neathery St. Jude Country Music Marathon 2011; Nashville Marathon 2012

Mel Stewart The Cape Epic Mountain Bike Race Pamela Strom Stand up to Parkinson’s

ZogSports ZogSports — Play for a Cause Zwick Pro Am 2011 & 2012

Tracy Stuckey

Impact: Biennial Report 2012-2013 | 28


Foundations/Corporations/Organizations A&M Label

Biotechnology Industry Organization

The Betsy and Alan Cohn Foundation

Community Health Charities of New England

Bisgeier Family Foundation

Cole Family Fund

BlackRock Kelso Capital

Cole-Crone Family Foundation

Community Health Charities of New Mexico

ADM Information Services

The David H. and Mary B. Blair Charitable Fund

Simon and Eve Colin Foundation

Agarwal Family Foundation

Blaskopf Family Fund

Kenneth Aidekman Family Foundation

Blue Cross Blue Shield of Kansas City

The George and Jodie Allen Charitable Fund

Bonner Family Private Foundation The Color Fund Columbia University Booz | Allen | Hamilton Neurological Institue Arnold Bortman Family The Community Foundation Foundation of Western North Carolina Boucher Charitable Foundation Community Health Charities The John and Patty Brissenden of Alabama Fund Community Health Charities Brooklyn Mechanical Corporation of Arizona

Community Health Charities of South Carolina

Brown Charitable Foundation

Community Health Charities of California

Consumer Electronics Association

Community Health Charities of Colorado

Cox Communications

Community Health Charities of Florida

Cumberland Community Foundation

Community Health Charities of Georgia

Edna Williams Curl and Myron R. Curl Endowment for Parkinson's

Abbott Laboratories Academy 4 Lil' Angels, LLC Adams and Maland Fund

Allen-Toebe Foundation Alliance Bernstein Allstate Giving Campaign The Allyn Foundation Altronix America's Charities American Physical Therapy Association

BTIG, LLC

American Society of Appraisers

Bucy Family Fund

AMG Charitable Gift Foundation Burson-Marsteller Amicus Therapeutics The Calder-Belsley Family Foundation Antz Foundation

Community Health Charities of New Jersey

Colliers Bennett & Kahnweiler, Inc. Community Health Charities of New York

Colligas Family Markets, LP The Colomby Group

Community Health Charities of Oklahoma

Community Health Charities of Texas Community Health Charities of Virginia Community Health Charities of Washington & Idaho Consumer Cellular

CSX Corporation

Archer & Greiner, P.C.

California Community Foundation

The Arena Energy Foundation

Community Health Charities of Illinois

Cushman & Wakefield

Canata Family Foundation

AT&T United Way

CANTEX, Inc.

The Atmos Foundation

Community Health Charities of Louisiana and Mississippi

The Dana Foundation

Cantor Fitzgerald Securities

Community Health Charities of Michigan

Danem Foundation

Community Health Charities of Minnesota

Deloitte & Touche

Avenue Capital Management

The Carefree Foundation

BAE Systems Employee Community Fund, Inc.

Castle Harlan, Inc.

BAE Systems

Cemex Materials, LLC

The Bane Foundation

Center United Methodist Church

Mitchell and Roslyn Barash Foundation

Central Texas Ob/Gyn Associates

Barish Family Foundation

Cuzson Associates, LLC

The Darrow Company, Inc. Diamantine Family Foundation

Linda and Bernard Chalfin Charitable Fund

Bart & Associates, Inc.

Terry Cheng Gift Fund

Alvin H. Baum Family Fund

Chernega Family Fund

Robert and Lois Baylis Charitable The Cimino Group, Inc. Gift Fund Citizens Bank Beck & Masten Buick-GMC, Inc. Clarus Therapeutics Patricia and Gardner Bemis Fund

Clayton Family Charitable Gift Fund

The Bendheim Foundation

Louis and Virginia Clemente Foundation

Berdon, LLP The Berner Charitable and Scholarship Foundation Berwind Corporation

29 | Our Donors

Cochran Family Foundation Scott M. Cohen Memorial Foundation

PDF Champions Port Jervis Softball Team at the 2013 Lady Warriors vs. Lady Raiders Softball Game


Our Donors Gemtron Corporation General Electric Company The Gerald and Deanne Gitner Charitable Fund Give with Liberty Ruth and Jack Glantz Family Foundation

The Dinan Family Foundation Direct Marketing Solutions

Essex Plaza Management Associates Evergreen Management

Barbara and Michael Ditzian Charitable Fund

ExxonMobil Foundation

Eamonn and Kathleen Dolan Charitable Fund

Fairchild Martindale Foundation

Don Ayres Honda

Farrell Fritz, P.C.

Arthur and Eve Fastenberg The Dopkin-Singer-Dannenberg Philanthropic Fund Foundation First Baptist Church of Ellenwood Anne and Gerald Down First Fruit Charity Trust Fund Charitable Fund FirstGiving Dreiseszun Family Foundation

Drug Information Association

The Floors For Cures Foundation

DuBose Family Foundation

Forest Family Foundation

Eagel Sports Promotions, Inc.

Fr. Maurice J. Wolfe Council, Knights of Columbus

Leona M. and Harry B. Helmsley Foundation Helping Hand Foundation The Heming Foundation Herndon Foundation

GlaxoSmithKline Foundation

HighVista Strategies, LLC

Glickenhaus Foundation

Philip M. Hogan Family Fund

The GMK Family Fund

Margot and Stephen Holland Charitable Fund

Ron and Judy Gold Family Fund

Missy Egbert Sheehan and G. Pennington Egbert III with their mother, Mrs. George P. Egbert, Jr. (center) at the 2012 Celebrate Spring

Hawaii Permanente Medical Group, Inc.

Joseph H. Goldberg Family Foundation

Homestead Foundation The Huggins Family Charitable Foundation

Edward and Marjorie Goldberger Foundation Sheila and Milton Hyman Foundation The Sarah and James Goldman Charitable Fund Inserra Supermarkets, Inc. Sol Goldman Charitable Trust

IPACT, Inc.

Goldman Sonnenfeldt Foundation

Isermann Family Foundation

Jerome and Molly Goldstein Philanthropic Fund Google

Jaclyn, Inc. The Anna and Alexander Jacobs Charitable Fund

Gorlitz Foundation, LTD

Alan L. and Barbara S. Jacobs Philanthropic Fund

Gottwald Foundation

Jacoby Family Fund

Grand Council Cryptic Masons

J&K Ingredients, Inc.

Grand Lodge Benevolent, Patriotic Order of Does

Jerome Haims Realty, Inc.

Eugene and Emily Grant Foundation Greco Traficante Schulz & Brick Alan C. Greenberg Philanthropic Fund

Jewish Community Endowment Fund JMC Search, LLC Johnson & Johnson Family of Companies

Early, Lucarelli, Sweeney & Strauss

The Connie Frank Foundation

Easter Foundation

Frankfurt Kurnit Klein & Selz, P.C. Greenberger Family Fund

The Echlin Foundation

Daniel and Harriett Freed Foundation

The Jack Webster Grigsby Foundation

The Freidman Family Fund

Gristedes

The Fremont Foundation

Gulf Parkinson's Source

Dr. Rudolph and Mildred Joseph Foundation

El Paso Corporation Eli Lilly and Company Foundation

Thad and Suzanne Johnson Charitable Fund Mary F. Johnson Fund The Jordan Family Foundation

Elias Charitable Foundation

Friedman, LLP

Gutterman Foundation

Joseph Rosen Foundation

Elma Eagle Riders

The Gabel Foundation

JP Maguire Associates

Emily Alice Jewellery

Gabelli & Company, Inc.

The Gwendolyn HalseyAlbertson Foundation

Empire Blue Cross Blue Shield

Gallagher-Kaiser Corporation

Encana Oil & Gas (USA), Inc.

The Cynthia F. and John F. Gallagher, III Charitable Fund

EP Energy Epic Systems Corporation Ernst Foundation

The Gambrell Family Foundation Gap, Inc. GE Foundation

Hang It Up Corporation Harrah's North Kansas City, LLC Harriet Ford Dickenson Foundation

Just Give The Kandell Fund Jerome A. Kaplan and Deena L. Kaplan Family Foundation

George W. Harris Foundation

The Marcia and Ned Kaplin Foundation

The Harte Auto Group

Robert and Florence Kaufman Foundation

Impact: Biennial Report 2012-2013 | 30


Foundations/Corporations/Organizations Henry and Elaine Kaufman Foundation Kelly Family Foundation

M&A Rubinfeld Family Fund MAERSK, Inc.

Northwoods League Foundation

The Mahoney Donor Fund

NYC Human Resources Administration

Kesselhaut Family Foundation

The Jamie and Paige Malone Foundation

Thomas P. and Patricia A. O'Donnell Foundation

Kidderbrook Foundation

Mana Products, Inc.

The Richard E. and Marianne B. Kipper Foundation

Management Planning, Inc.

The Calvin and Flavia Oak Foundation

Sam W. Klein Charitable Foundation

Kohl's

Office Automation System Massimo Zanetti Beverage USA, Ogden Cap Properties, LLC Inc. OH Local The Noreene Storrie and Wesley G. McCain Family Fund On The Ave

The Kortschak Family Foundation

John L. and Helen B. McGrath Fund

The Kosher Nosh KTR Capital Partners, LP Howard and Gail Kunreuther Charitable Fund

Kelly Refrigeration & Freezer, Inc.

Worth Knight and Kimberly Knight Charitable Fund

Mar-Ber Development Corporation

The Portmann Family Charitable Fund Premiere Paddle Surf The David C. and Jeannie Price Fund Prince Charitable Trusts Propeller Club Sport Organization Prudential Financial

The McGraw-Hill Companies

P. E. C. United Charities, Inc.

Puddy Family Fund

McIrvin Brothers, Inc.

P. M. Lecomte Fund

PY vs. PD Foundation

McKesson Foundation

Regina Pargament Trust Fund

Qualcomm

Parkinson's Unity Walk

R & R Endowment Fund

Hyman and Bessie Passman Family Charitable Foundation

R. C. Bigelow, Inc.

Microsoft Giving Campaign

Leesfield Family Foundation Legatus Foundation

The Millison Foundation Mirken Foundation

PATCO Construction Patton Holdings, Inc. Peaceful Meadows Farms Ice Cream Pearson Education

Redding Golf Shop Kristin and Michael Reed Family Foundation

Amy and Joe Perella Charitable Fund

The Kurt Reinsberg Philanthropic Fund Ralph Reis Family Fund

The Ilan M. and Barbara G. Levi Fund

Nanell Foundation

Lewis, Rice & Fingersh, L.C.

Pfizer, Inc. - Neuroscience Research Unit

National Notary Foundation

The Phillies

Anita and Stanley Liebowitz Fund NCREIF

Red Apple Group

The Donald Reich Family Charitable Fund

Lettuce Entertain You

Morton Capital Management

Ralph J. Duffie, Inc.

Pella Windows and Doors

Howard and Virginia Morgan Fund

William and Nancy Lifland Fund

James and Sandra Porter Charitable Fund

Public Financial Management Group

Midstate Radiology Associates, LLC

The Eileen and Peter Lehrer Family Foundation

Port Jervis Public Schools

Richard and Harriet Orkand Charitable Fund

Medtronic, Inc. Seryl and Charles Kushner Family The Elena Melius Foundation Foundation Merck Partnership For Giving Law Office of Howard F. Angione Lawrence Livermore National Laboratory

The Oak Hill Charitable Fund

Pillinger Miller Tarallo, LLP

Richard and Gail Ullman Charitable Fund

The Netter Foundation

Light of Day Foundation

Network Consulting, Inc. Linhart Family Philanthropic Fund New Dramatists Linsone, Inc. New York Life Insurance Company The Lisette Model Foundation Litterman Family Foundation

New York Yankees Foundation

The Little Family Fund

Newport News Ship Building

Loeb & Loeb, LLP

Robert and Kate Niehaus Foundation

Jane P. Long Fund of NY Community Trust

Sally Nightingale Charitable Fund

Loureiro Engineering Associates, Northern Trust Company Inc. Northrop Grumman Lovinger Family Foundation Corporation Lower Shore Parkinson's Support Group

31 | Our Donors

PDF Champion Jennifer Neathery and husband at the 2013 Ran Grand Canyon Rim to Rim Event


Our Donors Southwest Contractors

United Refining Company

SPA Products Import & Distribution Co., LLC

United Technologies

The Spurlino Foundation St. Irene's Philoptochos Society St. Luke’s University Hospital and Health Network Fred and Mary Stahmann Family Fund of the SFACF Frank and Domna Stanton Foundation James and Janice Stanton Foundation

PDF Champion Stacey Catapano at the 2012 Brooklyn Make Up Studio Event The Richard Foundation Rios of Mercedes Toby and Nataly Ritter Family Foundation Eli and Mae Rosen Foundation Joseph Rosen Foundation

United Way of Rhode Island United Way Of The Greater Lehigh Valley United Way The V & L Marx Foundation The Van Nice Foundation Vanguard Charitable Endowment Program

The Starr Foundation

The Vermont Community Foundation

Starrett City, Inc.

Veson Nautical Corporation

The Dorothy Strelsin Foundation Victory Park Securities Visa Givingstation Sullivan Solar Power

Schwab Charitable Fund Arnold and Marie Schwartz Fund Suplove, Inc. The Sutton Family Charitable Phyllis and Howard Schwartz Fund Philanthropic Fund Scievelbein Family Foundation Trust

United Way of Central Indiana

Visiting Nurse Service of New York The Walt Disney Company Foundation

SVM Foundation

The Wasily Family Foundation

Syde Hurdus Foundation

Waste Management South Atlantic Area

Secure Real Estate Management, Alexandra and Martin Symonds Rosie's Charitable Fund L.P. Foundation The Irene Herbert Ross and Semmes Henry and Marilyn Taub Harper Grant Ross Foundation Foundation The Shafir Family Fund The Ross-Kolmerten Fund Judy and Warren Tenney The Ron Shapiro Charitable Foundation The Miriam and Samuel Rotrosen Foundation Charitable Fund The David Tepper Charitable Shapiro Family Foundation Foundation Royal Neighbors of America Shepaug Valley Regional High Teva Neuroscience, Inc. Lawrence Ruben Foundation School Theresa Fatato Foundation The Martha and Max Rubinstein The Shubert Organization, Inc. Family Foundation Ellen and Josh Thomas Fund Fred Siegel Foundation RZR Realty Management Thomas Neal Foundation Company, LLC Siegel, O'Connor, O'Donnell & Beck, P. C. Three Swallows Foundation S & D Contractors, Inc. The Oscar and Edith Simon Timber Creek Capital S & S Roofing Foundation Management, LLC SAD Foundation Singers for Enjoyment TJM Investments, LLC The Safer-Fearer Fund Samuel and Beverly Sirota Family TLR Fund Philanthropic Fund Edmond J. Safra Foundation The Trukenbrod Family Skadden, Arps, Slate, Meagher Foundation Sanford C. Bernstein & & Flom, LLP Company, LLC The Tuchman Foundation The Herbert and Arline Slepoy Sanky Communications, Inc. Charitable Fund Turnaround Management Association Charles and Mildred Smith Barney (Citi) Global Schnurmacher Foundation Impact Funding Trust, Inc. Tyco Electronics The Jean and Thomas Schreiber The Lee and Perry Smith Fund U.M.R. Foundation Philanthropic Fund Smith Haven Ministries, Inc. UCB, Inc. The Schrum Family Fund of Triangle Community The Solomon Organization UHY Advisors NY, Inc. Foundation

Wechsler Foundation J. Weinstein Foundation Wellpoint Associate Giving Campaign Wells Fargo Bank, N.A. Wells Fargo Community Support Campaign West Fuels, Inc. WESTAT The Kirk and Elizabeth Wheeler Fund The Windbrook Fund Yorkshire Food Sales Corporation Peggy and Adam Young Charitable Foundation Ziff Brothers Investments, LLC Mary and George Herbert Zimmerman Foundation Zoe's Best Friend, Inc.

Impact: Biennial Report 2012-2013 | 32


In 2012 and 2013, PDF awarded almost $10 million for Parkinson’s research. These 80 awards were chosen by members of our Scientific Advisory Board, joined by PDF Research Advocates. We thank the following grant recipients for their commitment to improving the lives and futures of people touched by Parkinson’s.

Research Centers | $5.34 Million Allow talented scientists the flexibility and long-term support to collaborate on basic, translational and clinical research. Columbia University Medical Center Un Jung Kang, M.D., Principal Investigator Roy N. Alcalay, M.D., M.Sc. Robert E. Burke, M.D. Lorraine N. Clark, Ph.D. Stanley Fahn, M.D. Blair Ford, M.D. Jill S. Goldman, M.S., M.Phil.

Lloyd A. Greene, Ph.D. Paul E. Greene, M.D. Sheng-Han Kuo, M.D., Ph.D. Elan D. Louis, M.D., M.Sc. Karen Marder, M.D., M.P.H. Pietro Mazzoni, M.D., Ph.D. Eugene Mosharov, Ph.D. Serge Przedborski, M.D., Ph.D.

Rush University Medical Center Christopher G. Goetz, M.D., Principal Investigator Brandon R. Barton, M.D., M.S. Bryan A. Bernard, Ph.D. Cynthia L. Comella, M.D. Jennifer G. Goldman, M.D., M.S. Deborah A. Hall, M.D., Ph.D.

Seth L. Pullman, M.D., F.R.C.P.C. Yaakov Stern, Ph.D. David Sulzer, Ph.D. Jean Paul G. Vonsattel, M.D. Cheryl H. Waters, M.D., F.R.C.P.C. Ai Yamamoto, Ph.D.

Weill Cornell Medical Center Katie Kompoliti, M.D. Jeffrey H. Kordower, Ph.D. Leo Verhagen-Metman, M.D., Ph.D. T. Celeste Napier, Ph.D. Kalipada Pahan, Ph.D. Kathleen M. Shannon, M.D. Glenn T. Stebbins, Ph.D.

M. Flint Beal, M.D., Co-Principal Investigator Claire Henchcliffe, M.D., D.Phil., Co-Principal Investigator Chaorui Huang M.D., Ph.D. Alexander Shtilbans, M.D., Ph.D.

International Research Grants | $1.48 Million Promote innovative research projects that have high potential to significantly advance the knowledge of Parkinson’s. Epigenetic Dysregulation in Levodopa-Induced Dyskinesia David Anderson, Ph.D., and Jay Schneider, Ph.D., Thomas Jefferson University

Stability of Tetrameric Alpha-synuclein as a Biomarker in Parkinson’s Disease* Tim Bartels, M.Sc., Ph.D., and Dennis J. Selkoe, M.D., Harvard Medical School and Brigham and Women’s Hospital

Evaluating the Role of Mitochondrial Dynamics in Parkinson's Disease in an in Vivo Vertebrate Model: Real-Time Live Imaging of Mitochondrial Dynamics in Dopamine Neurons in Whole Zebrafish* Sarah B. Berman, Ph.D., M.D., and Edward Burton M.D., D.Phil., F.R.C.P., University of Pittsburgh *Denotes second year of funding

33 | Our Researchers


Our Researchers Impact of Low- and High-Frequency Electrical Stimulation on the Inputs, Integrative Properties and Output of the Subthalamic Nucleus* Mark D. Bevan, Ph.D., Northwestern University

Interaction of LRRK2 and Tau in Mediating Neurodegeneration in Mouse Models of Parkinson's Disease Darren Moore, Ph.D., Swiss Federal Institute of Technology in Lausanne (EPFL), Switzerland

Elucidation of the Role of Cholinergic Interneurons in Levo-dopa-Induced Dyskinesias Tomas Björklund, Ph.D., Lund University, Sweden

Identifying Connectivity Changes with Deep Brain Stimulation in Parkinson’s Disease Matthias Schröeter, M.D., Ph.D., and Karsten Müller, Ph.D., Max Planck Institute for Human Cognitive and Brain Sciences, Germany

Dissecting the Different Properties of Human Alphasynuclein Between Dopamine and Non-Dopamine Neurons in Vivo* Linan Chen, M.D., Ph.D., and Xiaoxi Zhuang, Ph.D., University of Chicago Cellular Mechanisms of Semaphorin 3E-Plexin-D1 Signaling in Basal Ganglia Circuitry Formation and Neurodegenerative Diseases* Chenghua Gu, D.V.M., Ph.D., Harvard Medical School Identification and Characterization of a Novel Gene for Parkinsonism* Paul Lockhart, Ph.D., and Gabrielle Wilson, Ph.D., Bruce Lefroy Centre, Murdoch Childrens Research Institute, Royal Children's Hospital, Australia

Small Aromatic Molecules as Novel Inhibitors of Alphasynuclein Aggregation* Daniel Segal, Ph.D., Tel Aviv University, Israel Imaging Impulsive Control Disorders in Parkinson’s Antonio Strafella, M.D., Ph.D., Toronto Western Hospital, Canada Cyclic GMP Signaling and Experimental Parkinsonism* Anthony R. West, Ph.D., and Kuei-Yuan Tseng, M.D., Ph.D., Rosalind Franklin University Identification of Genes for Parkinson's in an Isolated Greek Community and a Greek Population Cohort* Georgia Xiromerisiou, Ph.D., M.D., University of Thessaly, Greece, and Henry Houlden, M.D., M.R.C.P., Ph.D., University College, London, England

Fellowship and Career Development Awards | $2.23 Million Prepare leaders in Parkinson’s research and clinical practice. Research Fellowship Projects | $380,000 Regulation of Alpha-synuclein mRNA Translation in SNCA Expressing Neurons Ianai Fishbein, Ph.D., Institute for Human Genetics, University of California, San Francisco

Role of Parkin in the Clearance of Defective Mitochondria with Deleted mtDNA: A New Mouse Model of Parkinson's Disease Milena Pinto, Ph.D., University of Miami

Optogenetic Characterization of the Pallidostriatal Synapse in Parkinsonian Mice Kelly Glajch, Ph.D., Northwestern University

Clearing Defective Mitochondria: How is Parkin Recruited and Activated? Evgeny Shlevkov, Ph.D., Children's Hospital Boston

Characterization of a Novel Component That Functions Upstream of PINK1 Linking Mitochondrial Unfolded Protein Stress to Mitophagy Yi-Fan Lin, Ph.D., Sloan-Kettering Institute

The Role of Parkin in Regulating Mitochondrial Dynamics and Homeostasis in Cortical and Dopaminergic Neurons* Victor Van Laar, Ph.D., University of Pittsburgh

Dopaminergic Neuron Subtype Differences in OXPHOS Capacity and Mitophagy in Response to mtDNA Damage Alicia Pickrell, Ph.D., Division of Intramural Research, National Institute of Neurological Disorders and Stroke (NINDS)

Locus Coeruleus as a Substrate for Parkinsonian Cognitive Inflexibility* Elena Vazey, Ph.D., Medical University of South Carolina

Impact: Biennial Report 2012-2013 | 34


Fellowship and Career Development Awards (Cont’d.) Clinical Training Fellowships | $1.54 million Columbia University Medical Center David Arkadir, M.D., Ph.D. Christopher W. Hess, M.D. Meir Kestenbaum, M.D. Ruben Martinez, M.D.

Daphne Robakis, M.D. David Rydz, M.D. Hiral Shah, M.D. Madeline Sharp, M.D.

Sirinan Tazen, M.D. Tuhin Virmani, M.D., Ph.D. Brenton Wright, M.D.

Rush University Medical Center Sheila Eichenscer, M.D. Houman Homayoun, M.D. Gian Dev Pal, M.D. Padmaja Vittal, M.D.

Summer Student Fellowship Projects | $105,000 LRRK2-dependent Olfactory Deficits in Mice Rachel Bailey, mentor Jada Lewis, Ph.D., University of Florida Towards Elucidating the Structural Details of Alpha-synuclein in Parkinson’s Disease: Development and Application of Double-Labeled Alpha-synuclein Solongo Batjargal, mentor E. James Petersson, Ph.D., University of Pennsylvania Small Molecule Modulation of the Unfolded Protein Response as a Novel Therapeutic Avenue in the Treatment of Parkinson's Disease Joel Credle, mentor Anita Sidhu, Ph.D., Georgetown University Mechanistic Investigation of Alpha-synuclein- Mediated Microglial Activation in PD Connor Davenport, mentor Kathleen Maguire-Zeiss, Ph.D., Georgetown University Effects of Training on Learning and Retention of Tool-Related Skilled Action in Parkinson's Disease Holly Fernandes, mentor Norman Park, Ph.D., York University, Canada CD200/CD200R-mediated Neuroinflammation in Parkinsonism Collin Flanagan, mentor J. Timothy Greenamyre, M.D., Ph.D., University of Pittsburgh School of Medicine

35 | Our Researchers

A Novel Evaluation of Daytime Vigilance in Individuals with Parkinson's Disease Using a Virtual Reality Street Crossing Task Kristin Ford, mentor Amy Amara, M.D., Ph.D., University of Alabama at Birmingham Comparative Effectiveness Study to Evaluate In-Home Telemedicine as a Means to Increase Access to Sub-specialty Care for Individuals with Parkinson's Disease Benjamin George, mentor E. Ray Dorsey, M.D., M.B.A., Johns Hopkins University Investigating the Role of Enzyme-Mediated Neuronal Protection in Parkinson's Disease William Johnson, mentor Amy Wilson-Delfosse, Ph.D., Case Western Reserve University Effect of p11 Inhibition on D1 and D2 Dopamine Receptors Activity Darya Khazanova, mentor Michael G. Kaplitt, Ph.D., M.D., Weill Cornell Medical College Dopamine Receptor Expression and Function in the External Globus Pallidus David Klein, mentor C. Savio Chan, Ph.D., Northwestern University Evaluation of Splice and C-terminal Truncation Variants of Alpha-synuclein in Yeast Models Natalie Kukulka, mentor Shubhik DebBurman, Ph.D., Lake Forest College


Our Researchers Study of the Roles and Mechanisms of PINK1 and Parkin in Mitophagy Paul Lebot, mentor Serge Przedborski, M.D., Ph.D., Columbia University Medical Center

Dissecting the Role of c-Abl in Parkinson's Andi Shahu, mentor Ted Dawson, M.D., Ph.D., Johns Hopkins University School of Medicine Neuropsychological Predictors of Disease

The Molecular Interaction of Non-catechol Drugs with Dopamine D1 Receptors: Towards Improved Therapy for Parkinson’s Disease Sang Min Lee, mentor Richard Mailman, Ph.D., The Pennsylvania State University College of Medicine

Progression in Early Onset Parkinson’s Disease Megha Subramanian, mentor Paul J. Eslinger, Ph.D., The Pennsylvania State University College of Medicine

Effects of Alpha-synuclein Immunotherapy in a Mouse Model of Parkinson's Disease Eric Lin, mentor Virginia M.-Y. Lee, Ph.D., Perelman School of Medicine at the University of Pennsylvania

The Effect of Unilateral vs. Bilateral Deep Brain Stimulation of the Subthalamic Nucleus on Memory-Guided Sequential Pointing Ruth Tangonan, mentor Daniel Corcos, Ph.D., University of Illinois at Chicago

Using Drosophila to Investigate the Synaptic Effects of Ziram, a Parkinson’s Disease-Linked Pesticide Ciara Martin, mentor David Krantz, M.D., Ph.D., University of California, Los Angeles

Comparison of a Bimanual and Unimanual Finger Tapping Test for Detection of Upper-Limb Movement Variability and Freezing Episodes in Parkinson's Megan Trager, mentor Helen Bronte-Stewart, M.D., M.S.E., Stanford University

Interactions Between Tyrosine Hydroxylase and 14-3-3 Protein Ewa Nowara, mentor S. Colette Daubner, Ph.D., University of Texas Health Science Center at San Antonio

The Characterization of Autophagy in MPP+-induced Dopaminergic Cells Eric Tsai, mentor Karen O'Malley, Ph.D., Washington University School of Medicine in St. Louis

Rescue of Tyrosine Hydroxylase by Soluble GFR Alpha-1 in 6-OHDA Parkinson’s Model Catherine Owens, mentor Michael Salvatore, Ph.D., Louisiana State University Health Sciences Center Shreveport

Molecular Mechanisms by Which Excess Synuclein Impairs Synapse Function: Implications for Parkinson’s Alexandra van Brummen, mentor Jennifer Morgan, Ph.D., The University of Texas at Austin

Mild Cognitive Impairment and Health-Related Quality of Life in Non-demented Parkinson's Disease Patients William Reginold, mentor Connie Marras, M.D., Ph.D., Toronto Western Hospital Comparing Diagnostic Criteria of Mild Cognitive Impairment over Three Year Follow-up in People with Parkinson’s Disease without Dementia William Reginold, mentor Connie Marras, M.D., Ph.D., Toronto Western Hospital The Utilization of Mobile Technology for the Optimization of Deep Brain Stimulation Parameters for the Treatment of Postural Stability Sarah Richardson, mentor Jay Alberts, Ph.D., Cleveland Clinic

Phenotype-Specific Cell Loss in the Human Olfactory Bulb Associated with Parkinson’s Disease Ava Weibman, mentor John Cave, Ph.D., Burke Medical Research Institute Protection of Dissociated Rat Substantia Nigra Cultures from MPP+ Toxicity by a Combination of Neurotrophic Factors Stephanie Wyrostek, mentor Michael J. Zigmond, Ph.D., University of Pittsburgh Evaluation of Peripheral Olfactory Adaptation as a Potential Biomarker for Parkinson’s Disease Wendy Yoder, mentor David Smith, Ph.D., University of Florida

Impact: Biennial Report 2012-2013 | 36


Fellowship and Career Development Awards (Cont’d.) Collaborative Fellowships | $205,000 PDF-ABF Clinician-Scientist Development Award | $105,000 (Co-sponsored by American Brain Foundation) Mechanisms of Cell Type-Specific Vulnerability in Synucleinopathy: A Yeast Stem Cell Dual Discovery Platform* Vikram Khurana, M.D., Ph.D., Massachusetts General Hospital

PDF-PSG Mentored Clinical Research Award | $100,000 (Funded by a grant from PDF to the Parkinson Study Group) Neurophysiology Adaptations to Tango Dancing in Individuals with Parkinson's Disease Kristen Pickett, Ph.D., mentors Gammon M. Earhart, P.T., Ph.D., and Joel Perlmutter, M.D., Washington University School of Medicine in St. Louis Behavioral Treatment for Anxiety in PD Jessica Caileo, Ph. D., mentors Laura Marsh, M.D., and Melissa Shanley, Ph.D.

Advancing Parkinson's Treatments Grants | $376,500 Facilitate the movement of treatments from bench to bedside. Innovations Awards | $300,000 Training of New Parkinson’s Clinical Research Investigators through the PSG Annual Meeting Parkinson Study Group

Datamining to Better Understand Parkinson’s Disease Progression, Treatment Response, Complications and Outcomes Parkinson Study Group

Conference Awards | $76,500 West Coast Conference: Determining Factors in PD Progression Rate Marie-Françoise Chesselet, M.D., Ph.D., University of California, Los Angeles International Symposium on Falls in PD Leland Dibble, P.T., Ph.D., University of Utah, Gammon M. Earhart, P.T., Ph.D., Washington University School of Medicine, Colleen Canning, Ph.D., University of Sydney, Theresa Ellis, P.T., Ph.D., Boston University

Cognitive Assessment for Parkinson's Disease in MultiCultural/ Linguistic Populations Ignacio F. Mata, Ph.D., James. B. Leverenz, M.D., G. Stennis Watson, Ph.D., and Cyrus P. Zabetian, M.D., M.S., University of Washington Evaluating the Effectiveness of a Novel Patient Workshop/ Symposium in Parkinson’s Disease Lisa M. Shulman, M.D., University of Maryland School of Medicine Impulse Control Disorders in Parkinson’s Antonio Strafella, M.D., Ph.D., F.R.C.P.C., University of Toronto, and Mark A. Stacy, M.D., Duke University

37 | Our Researchers


Our Researchers Côté Clinical Genetics Initiative | $440,000 Identify and understand the role of genetic markers in Parkinson’s. Parkinson Disease in a Minority Inner City Population: Clinical Phenotypes and Genetic Etiologies, Focus on AfroCaribbean Populations Jose C. Cabassa, M.D., mentor Rachel Saunders-Pullman, M.D., M.P.H., SUNY Downstate Medical Center and Beth Israel Medical Center, Einstein College of Medicine Implications of Antigen Presentation by Dopaminergic Neurons in an AAV2-synuclein Mouse Model of Parkinson's Disease Carolina Cebrián, Ph.D., mentor David Sulzer, Ph.D., Columbia University Medical Center Amperometric Measurement of Quantal Dopamine Release from Primary Mouse Neurons and Human Induced Pluripotent Stem Cells (iPSCs) Se Joon Choi, Ph.D., mentor Eugene Mosharov, Ph.D., Columbia University Medical Center

Mutant Glucocerebrosidase Causes Dysfunctional Chaperone-mediated Autophagy and Alpha-synuclein Accumulation in Patient Fibroblast-derived Dopaminergic Neurons Sheng-Han Kuo, M.D., Ph.D., mentor David Sulzer, Ph.D., Columbia University Medical Center Molecular Characterization of MAPT Haplotypes in Parkinson’s Disease Oren Levy, M.D., Ph.D., mentor Lloyd A. Greene, Ph.D., Columbia University Medical Center Identifying Genetic Causes Underlying Early-onset Parkinson’s Disease Coro Paisán-Ruiz, Ph.D., mentor Joseph D. Buxbaum, Ph.D., Mount Sinai School of Medicine

Localization of Alpha-synuclein in Mitochondrial-associated ER Membranes (MAM): A New Insight into the Pathogenesis of PD (competively renewed in 2013) Cristina Guardia-Laguarta, Ph.D., mentor Serge Przedborski, M.D., Ph.D., Columbia University Medical Center

Impact: Biennial Report 2012-2013 | 38


In fiscal years 2012 and 2013, PDF was awarded both a four-star rating from Charity Navigator (the highest) and the Charity Seal of Approval from the Wise Giving Alliance of the Better Business Bureau (BBB).

Balance Sheet

June 30 2013

2012

2011

Cash and cash equivalents

$933,498

$385,179

$779,578

Contributions and other receivables

1,630,844

393,774

550,651

90,094

87,006

74,161

8,862,184

10,468,207

12,446,070

Fixed assets, net of accumulated depreciation

99,119

157,516

235,521

Other noncurrent assets

56,540

56,540

56,540

186,371

189,676

210,723

$11,858,650

$11,737,898

$14,353,244

Accounts payable and accrued expenses

$558,129

$663,943

$766,321

Grants payable

1,721,567

1,602,592

1,327,440

186,371

189,676

210,723

2,466,067

2,456,211

2,304,483

Unrestricted

6,033,208

5,886,973

8,608,353

Restricted

3,359,375

3,394,714

3,440,408

Total net assets

9,392,583

9,281,687

12,048,761

$11,858,650

$11,737,898

$14,353,244

Assets

Other current assets Investments, at fair value

Investments — restricted as to use Total assets Liabilities and net assets

Deferred compensation plan Total liabilities Net assets

Total liabilities and net assets

39 | Financial Reports


Financial Reports Statement of Activities

Unrestricted Restricted

Year ended June 30, 2011

Year ended June 30, 2012

Year ended June 30, 2013

Unrestricted

Total

Restricted

Total

Unrestricted

Restricted

Total

Operating support and revenue: Contributions Bequests Special events revenue, net Investment income In-Kind donation Net assets released from restrictions Total operating support and revenue Operating expenses: Program services: Research Public information/patient information and referral services Total program services Supporting services: Management and general Fundraising Total supporting services Total operating expenses Change in net assets Net assets, beginning of year Net assets, end of year

$4,299,967

-

$4,299,967

$4,752,851

-

$4,752,851

$4,022,882

$172,277

$4,195,159

4,538,625

14,661

4,553,286

2,150,721

4,306

2,155,027

2,398,320

2,366,462

4,764,782

298,105

-

298,105

238,541

-

238,541

348,050

-

348,050

723,742

-

723,742

(15,926)

-

(15,926)

976,398

-

976,398

226,548

-

226,548

154,234

-

154,234

-

-

-

50,000

(50,000)

-

50,000

(50,000)

-

833,314

(833,314)

-

10,136,987

(35,339)

10,101,648

7,330,421

(45,694)

7,284,727

8,578,964

1,705,425

10,284,389

5,934,056

-

5,934,056

6,084,574

-

6,084,574

5,671,135

-

5,671,135

1,997,921

-

1,997,921

2,045,879

-

2,045,879

1,990,591

-

1,990,591

7,931,977

8,130,453

8,130,453

7,661,726

7,931,977

7,661,726

598,136

-

598,136

570,880

-

570,880

586,536

-

586,536

1,460,640

-

1,460,640

1,350,467

-

1,350,467

1,269,557

-

1,269,557

2,058,776

-

2,058,776

1,921,347

-

1,921,347

1,856,093

-

1,856,093

9,990,753

-

9,990,753

10,051,800

-

10,051,800

9,517,819

-

9,517,819

146,234

(35,339)

110,895

(2,721,379)

(45,694)

(2,767,073)

(938,855)

1,705,425

766,570

5,886,974

3,394,714

9,281,688

8,608,353

3,440,408

12,048,761

9,547,208

1,734,983

11,282,191

$6,033,208

$3,359,375

$9,392,583

$5,886,974

$3,394,714

$9,281,688

$8,608,353

$3,440,408

$12,048,761

Advocacy

5%

Education 15% Administration & Fundraising 20%

Research 60%

2013 Impact: Biennial Report 2012-2013 | 40


Our People Board of Directors

Scientific Advisory Board

Officers

Stanley Fahn, M.D., Chair Constance W. Atwell, Ph.D. M. Flint Beal, M.D. Robert Burke, M.D. Cynthia L. Comella, M.D. David Eidelberg, M.D. Christopher Goetz, M.D. Lloyd Greene, Ph.D. J. Timothy Greenamyre, M.D., Ph.D. Danna Jennings, M.D. Katie Kompoliti, M.D. Jeffrey H. Kordower, Ph.D. J. William Langston, M.D. Karen Marder, M.D., M.P.H Serge Przedborski, M.D., Ph.D. Kathleen Shannon, M.D. Yaakov Stern, Ph.D. David Sulzer, Ph.D. G. Frederick Wooten, M.D. Anne B. Young, M.D., Ph.D.

Howard D. Morgan Chair Constance W. Atwell, Ph.D. Vice Chair Stephen Ackerman Treasurer Isobel Robins Konecky Secretary Stanley Fahn, M.D. Scientific Director

Directors Karen Elizabeth Burke, M.D., Ph.D. Margo Catsimatidis Peter Dorn George Pennington Egbert III Richard D. Field Sarah Belk Gambrell Stephanie Goldman-Pittel Arlene Levine Marshall Loeb Thomas A. Palizzi Timothy A. Pedley, M.D. Gregory Romero Lewis P. Rowland, M.D., President Emeritus Marie D. Schwartz Domna Stanton, Ph.D. Melvin S. Taub Martin Tuchman

Founding Chairs William Black Page Morton Black

President Robin Anthony Elliott

41 | Our People

People with Parkinson's Advisory Council Thomas A. Palizzi, Chair Fred Woodlief, D.D.S., Vice Chair Claire Berman Christine Col贸n, M.S. Diane Cook Maria De Leon, M.D. Steve DeWitte Hao Dong, Ph.D. Eric Hellinger Nan Little, Ph.D. Linda M. Morgan, M.B.A., R.Ph. Marc Sherman, J.D. Karen Smith Peggy Willocks


Page Morton Black: 1916-2013 In 2013, the Parkinson's Disease Foundation (PDF) lost a great, muchloved, deeply admired ambassador for all those who live with Parkinson’s disease — our Chairman Emeritus Page Morton Black. It was William Black, Mrs. Black’s late husband and founder of the Chock full o’Nuts coffee and restaurant chain, who created PDF in 1957. Mrs. Black served as Secretary of PDF until assuming the role of Chairman after her husband’s death in 1983. She resigned from the Board in 2012, serving as Chairman Emeritus until her death. In 2005, PDF presented Mrs. Black with its Lifetime Achievement Award.

Image Credits: Page 4 Page 6 Page 8 Page 9 Page 10 Page 14 Page 16 Page 17 Page 18 Page 19 Page 20 Page 21 Page 22 Page 24 Page 25 Page 29

©2014 Parkinson’s Disease Foundation

Janet Charles Courtesy of Dr. Sheng-Han Kuo Courtesy of Dr. E. Ray Dorsey Luigi D’Astolfo Janet Charles Michael Blanchard Janet Charles (top)/ Patrick McMullan (bottom) Patrick McMullan Janet Charles (bottom) Janet Charles Patrick McMullan Janet Charles Patrick McMullan (top) Janet Charles (top) Patrick McMullan (top)/ Janet Charles (bottom) Patrick McMullan


(800) 457-6676 | www.pdf.org | info@pdf.org

Impact: Parkinson’s Disease Foundation Biennial Report 2012-2013  

How is the Parkinson’s Disease Foundation (PDF) making an impact? Browse this report for the answers. Learn about our programs of research,...

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